Starting Chemo February 2009?

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited June 2009

    Kerry it looks like you have more hair than your picture last week :)  It looks thicker.  When I have that much I am ditching everything.  I will post Boobie picture this week.  I gotta see if my bathing suit fits still...hehe...  It maybe too big :(

    Judy~ I love the hair picture.  I have a ways to go before I have that much :(

    Apple~ I hope you are feeling something else and everything is fine.  Thinking of you tomorrow. 

    Gotta get off the computer to make my DH happy. 

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  • Denali
    Denali Member Posts: 347
    edited June 2009

    Judy!  Look at all your hair!  Looks so nice and soft!  I can hardly wait for something to replace my short stubble.

    Apple, think of all of us surrounding and supporting you tomorrow, our feather boas flapping in the breeze!  Maybe you'll get the same kind of response that I did, when I showed my oncologist how I thought one side of my stomach was higher than the other--due to a tumor, I was sure.  She said it was probably gas and not to worry!  sigh.  Anyway, please feel us with you tomorrow, k?

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  • MicheleS
    MicheleS Member Posts: 937
    edited June 2009

    Judy, Kerry, and Jaimie~ My hair looked like that 'till a couple of weeks ago... then *BAM* it filled in.  Really, it took friggn forever for the fuzz to start... but once it did, it came in fast.

    Linda~ CONGRATS!!! You did it!

    Apple~ Let us know as soon as you hear something.  Lots and lots of prayers coming your way!!!  Do you have a port?  I had swelling in my clavicle (in the fossa where the node sits) and my MD said it was port related.  Maybe the same for you??  {{hugs}} 

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  • living4today
    living4today Member Posts: 215
    edited June 2009

    Apple  (((((hugs))))) and prayers your way!  I know it is sooooo hard not to worry...and to not to freak...will be thinking of you tomorrow.

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  • webwriter
    webwriter Member Posts: 535
    edited June 2009

    Congrats to Denali, Suzanne, Jaimieh, Terri, Judy, Michelle!!! Way to rock it Ladies!

    Apple, beautiful Organ! Congrats to you too! I'll keep you close in thought tomorrow. Like Michelle said, hopefully it's a port thing.

    Jamieh congrats on your exchange! Can't wait for the pics, tee hehe!

    Michelle, loved your cupcakes! I hope your tooth is feeling better and those nasty chemo hole thoughts have gone for good.

    Denali I hope the pneumonia is over and you're feeling much better.

    Kerry, Sue50, congrats on getting 1/2 way through Rads!

    I'm loving all the pics, kids, hair, organs and fun! YAY!

    I'm nearly 12 weeks out now. Hard to believe. My hair looks a lot like yours, Kerry, although there is a tad less of it, I think. I couldn't take the uneven growth (white curly hairs an inch long, dark stubble 1/4 inch long) so I buzzed it with a #1 razor. Now it's all about 1/4 inch long, tho some on the sides is getting long enough to lay down properly. Long enough to be annoying, but not long enough to be called hair yet. lol!

    I'm almost finished with rads at last. I didn't burn until a little over a week ago. Silvadine is awesome, but am SO ready to be done. It makes me very, very tired and my stomach just roils every time. I've been giving Michelle a run for her title, I swear. So stupid to make it all the way through chemo only to have rads knock me out! Oh well. I'm down to eight boosts and this phase too will be in the past. 

    Keep the photos coming, ya'll! They were truly the highlight of my day today!

    Love and Hugs,

    Web

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  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited June 2009

    (((Apple)))

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  • ktym
    ktym Member Posts: 2,637
    edited June 2009

    Apple, my thoughts will be with you and your family all day.  Please let us know how things go

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited June 2009

    Apple - I'll be thinking of you all day today. I just so hope the news is good.

    Just heard from friend of my husbands - she went went through BC treatment last year, and she was so lovely at sending me emails before each of my Chemos. Her husband has just been diagnosed with some type of Bone cancer. I am so sick of this s**tty disease.

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  • Gramof3
    Gramof3 Member Posts: 301
    edited June 2009

    Apple    Prayers going up for good news today.

    Living4today  I'l be here for quite a while--still have 6 Taxol to do, then 6 wks rads.  I'll be hanging out with Judy.  Hope we all stay, at least through rads, and maybe even continue way past that.  We could  plan our octogenerain birthday parties and celebrate on-line!

    Webbie  Good  to hear from you!

    Jaimieh--I think we must share hair.  Mine just doesn't show up until the light is just right.  I think that means gray for me.

    Denali--Glad you are finally out of the hospital. 

    Michele   Sometimes I get caught up in the TN thing --seems it's always somewhere in the background. My onc doesn't order scans, however, I'm going to tell him about your monitoring plan and see if he will change his mind.  OR I could threaten to throw a screaming meemy fit in the middle of the waiting room.   Hope you are feeling better today.

    I got my port replaced Thursday, then on to Branson for the weekend with my son and gkids.  The girls (5 and 8) came back from the pool excited because there was "another bald-headed lady" in swimming.  I said, "hmmm, wonder if she had cancer" and they assured me she did because they could see her port.  They've learned a lot in the past 6 months, too!

    Hope everyone has a good week.  Take care, Helen

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  • Bethie1
    Bethie1 Member Posts: 393
    edited June 2009

    Hey gang!!

    Webbie--that's awesome that are almost done!!! Do they give anything for nausea during rads? I feel that way too. 

    Apple--beautiful organ. Hope you're doing OK!

    Gramof3-Have fun!!! Enjoy Branson!!!!! I did years ago!!!

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  • apple
    apple Member Posts: 7,799
    edited June 2009

    well.. i'm not as freaked out.  that supraclavicular node has always been 'hot'..  we'll scan in a couple weeks. go from there.  i'm not in any immediate danger of passing on.    thanks for the thoughts and prayers. 

    and on we go

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited June 2009

    Oh, Apple, I have been thinking of you all day. Glad there are not any "new" developments. As you say, you just have to pull up your socks and keep walking....

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited June 2009

    Apple~ You would still think that all the chemo. you have done would have beat the hell out of the node. 

    I had to go this morning to give blood at the hospital....grrr...  50 min. each way this morning for a 2 second prick and away we go.  I find out tomorrow as to what arm I will be randomized in.  I'm not having a very productive day today :(  Called my dog groomer who I have been trying to get for the last week and I got sorry I can't get you in this week.  Went to have the oil changed and tired rotated and found out I need 4 new tires (they are $165 each) and after all that fun I am ready for bed.  However I still got a ton of things to do before next week and my kids are driving me batty.  I really need to get them to the park but I have no energy at this moment to take them :( 

    I couldn't sleep last night which was horrible for my mood today.  I need my sleep and when I don't get it I feel horrible.  I have so much crap to do and I do not feel like doing any of it at the moment.  Maybe I will take a nap for a little bit... and see if I can get into a better mood.

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  • Grace4me
    Grace4me Member Posts: 47
    edited June 2009

    well I went to see my onc today. I have my perscription for Armidex on hold until he sees my lab work. My right arm pain is lymphadema so I'm on to the therapist soon. He has ordered a bone denisity test and an xray of the arm.  Did any of you have arm pain just prior to your dx? I did and my surgeon felt it was related to lymphnodes being swollen and the ca in the nodes.....so even though I promised myself that I would not be a person who thinks every pain is the ca back, I am worried about my arm pain. I am so sick of this, all of this..............does it ever just end and we wake up some day without pain and feeling great?............maybe not in this world.

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  • Artemis
    Artemis Member Posts: 759
    edited June 2009
    (((apple)))
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  • MicheleS
    MicheleS Member Posts: 937
    edited June 2009

    Thanks for the update, Apple.  Been worrying about you.  You would think they could take that badboy out (or irradiate the hell out of it)!  When are your scans??

    Helen~ I don't think that life ever goes back to *normal*.  I have to believe that things do get better, but never normal...

    Speaking of scans, I have my PET and brain MRI tomorrow.  I'm really, really nervous about it.  I mean, I'm glad I'm having it done, but still stressing.  How will I cope if they find something???

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  • living4today
    living4today Member Posts: 215
    edited June 2009

    ((((Michele))))....will you get results tomorrow too?  There is a great chance your scans will be good! 

    ps.  My oncologists all ready gave me the plan if something shows up in my PET (which I don't have until July 16)...I'm just praying all of us are clear and free forever!  Kind of feels like we've been to H_ __ __ and back and I still have one more chemo.  I could hardly drag myself off the couch today for anything...

    Hope everyone is having a great evening!

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  • Artemis
    Artemis Member Posts: 759
    edited June 2009
    (((Michele)))
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  • MicheleS
    MicheleS Member Posts: 937
    edited June 2009

    living4~  Are you having radiation after chemo? I'm not and *that* makes me nervous... 'tho, I had a mastectomy and the tumor wasn't close to the chest wall or anything.  More to worry about.  Being *done* is great in some ways but it is really, really stressful too.  So what's the plan if you have questionable scans??  My onc won't talk about anything 'till after the scans... 

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  • apple
    apple Member Posts: 7,799
    edited June 2009

    big hug Michelle (we should hug each other  )

     I like knowing exactly what will happen..  i have to know.  If the onc won't tell me (which she will) i'll ask the forum.. 

    big hug again.  

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  • Gramof3
    Gramof3 Member Posts: 301
    edited June 2009
    Michele  Repeat after me, "Clear, clear, clear, clear, clear."  ((((((hugs))))).
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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited June 2009

    ((Michele)) Big hugs.  I will be tihnking of you tomorrow. 

    I don't have any scans etc.. unless I have symptoms.  Sometimes I think that is a good thing and other times I don't...I am kinda torn. 

    I managed to get a nap in and then I over did it.  I shaved my 3 dogs, did 2 loads of laundry, folded them and now I am sitting and relaxing :)  I find out tomorrow what arm of the bisosulphat (boy I can't spell) trial I am on and then if I am on Zometa I have to go Wednesday afternoon.  If I am one of the pill arms I still have to go get the pills on Wednesday.  Speaking of pills I feel like an old lady I have a pill container just like my gran did...hehe...  but I noticed I can't keep the days straight so this really makes things easier on me. 

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  • living4today
    living4today Member Posts: 215
    edited June 2009

    Michele--I only get a PET scan as I have had continued back came through out chemo.  (otherwise my onco doesn't do scans or tumor markers--unless there are sxs or a "gut" feeling)...I have to have radiation on both sides...at first was told I wouldn't need it as I had the bilat mx, but was reviewed by tumor board and since I was node  + on left and not clear margins on Rt (didn't know there was cancer on rt until after path report).  My onco said if something did show up on PET I would get myself a ticket for some more chemo and radiation would be on hold.  Since I am working real hard to psych myself up to go to my last chemo this Thursday, I can't even imagine more chemo, but we do what we have to...

    Jaimieh--glad to hear that you got in a nap and you had energy to do so much...I can hardly motivate myself to even get off the couch today.

    Thinking of you all!

    Kim

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  • gcpommom
    gcpommom Member Posts: 883
    edited June 2009

    Michele:  You had a mastectomy, good margins, and a darned aggressive chemo tx.....I'm sure that your scans will be clear.  Try not to worry too much, and hopefully your doc won't make you wait too long for your results, I hate that.  (((hugs)))).    When you had your ganglion cyst, did it hurt alot?  Mine is on the underside of my wrist, and it is painful.  It is my lymph node arm, so I don't know if I can get it drained.

    Kerry:  I'm sorry to hear about your friend.  This disease does suck, I agree.

    Helen: I'm right there with you on the TN dx and no scans.....just doesn't mesh for me.   I say go with the "screaming meemy" fit, I might try that myself!

    Bethie:  How's the little kitty doing?  Hope all is well with you, and that your nauseousness goes away, I would think that the same meds you took for chemo nausea will work---nausea is nausea.

    Grace4me:  I didn't have any arm pain before dx, but it does hurt sometimes since my mastectomy ....if you have lymphedema, couldn't that be the reason for the arm pain?  Last time my arm swelled, I also found another cord in my arm, and it hurt....maybe you have a cord.  They can occur months or years after surgery.  And sometimes just doing ordinary tasks with my left arm makes it hurt (like today when I was emptying jugs of water, my arm hurt).  So try not to worry, there could be a number of reasons for the arm pain.  (((hugs)))

    Jaimie:  good grief, girl, you need to slow down!  I thought I was overdoing it, but you're non-stop!  It's funny, my DH suggested I get one of those pill boxes (I keep forgetting if I took my coumadin), and I said that it would make me feel too old!

    My PS cancelled his appts today, he was sick.  So I won't see him until August, which is fine since I can't do recons yet anyway.  I don't have another appt until July 21.  No doctors.  Weird. 

    Anyone else put on some weight with chemo?  I was so surprised that I did, I was always able to eat anything and not gain weight.  I haven't gained a pound in over a year, and now I gain 10.  And it's not going anywhere, even though I am 3 weeks out now.  I wonder if my metabolism has changed since I've been thrown into chemopause?  Ugh.

    Hugs

    Judy

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  • ktym
    ktym Member Posts: 2,637
    edited June 2009

    Michele, will be thinking of you and I think everything Judy said was right on

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited June 2009

    Michelle, I will be thinking of you today. Remember, you are really, really Early Stage, you just threw a whole heap of nasty chemo at it, there is no reason to expect anything other that clear scans. But I know that still dosen't stop the worry. When do the results come in?

    Judy - yup, I put on about 5lbs with chemo. It is being stubborn, but I finally think it is starting to come off. I, too, was an "eat what you want" person, so I am hoping the Hormones don't turn me into a fat old lady at 42!!

    Grace - I sometimes get twinges in my arm, and I have had a cord, too. I just stretch every day, and try and keep things supple. I'm sure there are many, non-worrying things it could be. I worry about every single twinge too, although I told myself I wouldn't. I am going to have a long chat with my Onc when I see her next (not til August) on exactly what sort of pain I should worry about. 

    Kim - here's hoping for Rads!  You are right - if you need more Chemo, you would manage. It would suck big time, but you would do it.

    Got my Surgery date for my Ooph yesterday - July 28th. So should be all recovered by mid-August, and  actually be able to manage a Vacation....

    Enjoy the good weather! Thinking of you all. 

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  • MicheleS
    MicheleS Member Posts: 937
    edited June 2009

    Kim~ Bleck... more chemo.  That doesn't sound good.

    Grace~ I have a cord too... I do yoga and stretching, and still got a cord.

    Kerry~ Thanks.  I hope you are right!

    Judy~ Are you having radiation??

    I have an hour till I leave for the hosp.  Been awake since 4am but was told not to exercise this am... I'm also fasting so I can't eat my stress away. LOL!

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  • webwriter
    webwriter Member Posts: 535
    edited June 2009

    {{{Michelle}}} With you today!

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited June 2009

    Thinking of you Michele ((bighugs)).

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  • apple
    apple Member Posts: 7,799
    edited June 2009

    Dang.,.. i wrote the cutest post about having Fantastic Four arms that could reach down and catch a hug and hold your hand while you are on that too narrow, too hard tablebed... but it didn't take.

    Good luck Michelle.  I'll be praying all day that you will be TOTALLY clear.. oh that would be wonderful.

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