Starting chemo January 2009?
Comments
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Kathy/kt57 - congratulations! you're almost thru it!!! enjoy today and then rest up as need be! i love the visual X X X X X X. love it! we need hats or shirts like that LOL!
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I'm done. Hooray! I'd be typing in caps and !!! but I'm still a little high from the benadryl, LOL. My cc gives out paper pink crowns for ladies on their last day. There were two of us today.
One more think to check off the list!
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Shockedat39 - I'll type in caps for you! CONGRATULATIONS!!! WELCOME TO THE OTHER SIDE! Hope your side effects are minimal! Would love a photo of you in your paper pink crown. I wore a graduation hat LOL!
hugs,
Lisa -
Congratulations to all who have finished chemo!!!! WAAAAAAAHOOOOOOOOO!!!! So sorry you have to deal with the yucky side effects. My husband still is convinced that after the 30th of April, I will be able to go back to usual!!! I know for him it is probably wishful thinking- as I feel as well- but gosh!!!!!! Hope everyone who finished gets thru those ses quickly!!!
If we have to wait a bit for a gathering, that would be okay, don't you think? Like Kathy said, let's commit to keeping in touch on this thread and then we can start to make an actual plan for a get together.
13 days till my last chemo!
I had to have an axillary node dissection-every once in a while my arm by my elbow feels cold. It is a very strange sensation. Anybody have that???
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of course we can wait for a gathering! the more the merrier! so, we can wait till ALL of us are done with our treatments, build up new vacation time, whatever!
jrgolomb - i'm not having any cold elbows, but my FEET have been cold. i have an underlying thyroid issue (hashimoto's) which can cause hot/cold extremities....need to make sure my meds don't need to be changed b/c of breast cancer. interesting, i have heard of a link between thryoid issues and breast cancer....makes sense....all hormonal stuff. sometimes, being a girl sucks!
ok....off to get my son from school. i'm driving the 3 short blocks today...not up for a walk, even in our gorgeous weather.
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Yeah, that hormonal connection. i have Hashimoto's as well.
Lisalisa, I hope you have a nice night on your own. My family isn't often gone, but when they are I find myself wandering around.
Jillyg----DId you ever make contact with the woman at the park?
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11 down and 5 to go. 99 bottles of beer on the wall, 99 bottles of beer
I just had chemo #11 and have some serious steroid munchies. I just ate one of those cafeteria size cans of peaches in syrup. Well, not cafeteria size but it was a huge can. yuck!
ladyjane - I just wrote a nifty little post and hit the key that brings up a "memory being dumped" message and shuts off my computer. I hear ya on the lost memo! I can't even uni-task! I even find myself mumling. Oh no. People will think of me as "that mumbling lady with no hair".
I'd LOVE to head to Napa but I know I won't be travelling for a while. Time and money need to be banked again before any such ventures. Until I started losing my lashes and brows, people would often comment that they forgot I was sick. Several people have told me they are impressed with my positive attitude. I always realize that it's because of my secret weapon, this support group! I would not be getting through this nearly as well without you all. It would be so special to meet but at least I know I'll be logging in for a long while.
jrgolomb - the armpit and back of my arm, down to the elbow, on the side where I had the axillary dissection feels lifeless. It is numb and cool to the touch, almost rubbery I would say. My tissues seem to have lost their 'spring'. I now have nearly full range in that shoulder, have been doing at least one back bend each day
, but no feeling yet and it is coldish. I was so stoked when I did my first back bend. Thought I would give it a try to see how miserably I failed. I was amazed I could do it. It really seems to help that shoulder girdle to sit up there for a few breaths. Feeling better lately about at least trying Tamoxifen. I still need to ask my Dr how much it improves my survival rate. I visited with a PA today, a woman. Doc is on vaca. She was so thorough in her answers, so clear. I wish she were my doctor!
Well ladies, have a great beginning of your weekend.
Nancy
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Gosh--99 bottles of beer sounds good right now, along with that mega bag of trail mix a friend bought me from Trader Joe's before our hike yesterday (oh--right--I ATE the whole thing already). Yup those steroid munchies are making me a "greater" person.
Taxol #8 done today (and Nancy YOHat--I need to add the 4 ACS to that) 12 CHEMOS DONE!! 4 to go. I'm a bit panicked about stopping chemo even though I really want to. Someone here I think mentioned chemo boosters. I'm going to cover that by most likely signing up for the bisphosphonates trial. My onc seems to think it's a better idea than just prescribing Zometa for bone density issues (and I just found out to day that mine's "a bit low." I never ask for numbers--I should really get copies of everything). I guess on the trial the amt prescribed is that used for people who already have mets. BACK BENDS--wow!
Jess--My under arm to the elbow is still numb. And I get numbness/heaviness around my scapula on the "bad" side. I have a sleeve, and it helps but when I take it off I think I get a rebound effect. I need to get the sleeve checked by my lymphedema massagers.
I'd love to meet and party and relax with my life-saving (not kidding) JJs. Let's think about it more. I love Napa, although I've only camped there. Vegas is cheap, but I'm wondering if there is some more relaxing place closer to east coasters/midwesterners. When I get a minute I'm going to research some options (that might not be for a few weeks!) I can do weekends pretty much after May but don't know how rads will affect me. I definitely commit to keeping in touch!
I went to my first support group last Weds. It was ok but not as good as this thread! The women had a variety of different cancers, which was interesting. I'm going to give it another try, as so far it's at a good time and just down the hill from my house.
CONGRATULATIONS to Shocked for finishing up! Wow!
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Year of the Hat---I had to laugh about you eating the peaches and the back bends along with the 99 bottles of beer, plus the final image I have of you-your pic. SMILES! I know what you mean about the steroid munchies....I can't stop. Yuck is too mild. At least you just ate peaches. I ate chips, ginger snaps, two servings of pasta, two glasses of milk , vanilla yoghurt mixed in the ginger snaps, pretzels and about three glasses of water-with huge swigs of my husband's wine! Egad! What was I thinking! All of that in under two hours! I am so full I can barely breathe! I feel I am starting to waddle like I did when I was pregnant with my daughter! And oh by the way, I think I took an extra steroid by accident. The cancer center gave me all of them for my taxotere tx, and instead of the atavan, I took the decadron! I can't win!
Yeah, Kim, let's research Napa and other places. RENREL---about places near you????? I am like Kim-I have a bit of flexibility with travel during the summer. It can be this summer, and later..
Great convo...... I have a long weekend with work related stuff, so I will check in on Sunday. I hope everyone is great......
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you want to hear gross? i just ate a filet-o-fish from mc'ds. i haven't eaten ANY fastfood in about 6 or 7 mos. and i drove by mc d's and it was calling my name!
later i had a bagel and cream cheese. now, i'm eating popcorn. i have to keep eating and chugging drinks to get rid of this horrible metallic taste.....my antibiotics give me metal mouth....add the chemo and my mouth is RANCID!
yuck!
at least i'm not the only one eating LOL!
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jrgolomb:
chips
ginger snaps
pasta x 2
milk x 2
yoghurt ginger snap crunch
pretzels
water x ?
swigs of wine
egad!
But if I had shopped yet this weeek I'd have you beat for sure!
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Add me to the munchers - first DQ Blizzard of the season - Reeses peanut butter cup -- followed by Zofran --- do we know how to live or what!
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I'm day 9 from 5th TAC and I am still craving chocolate!
BTW, I also have hashimoto's. I wonder what the connection is to BC? I had a thyroid scan the first of April. I have two small cysts (they've been there for years) and one had grown. The endroconologist wants to do a biopsy but the onc said "wait til you are done with chemo." I guess he is concerned with infection.
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had chemo #7 of 8 today. one more to go (on May 1)!!! i blog my experience at ddlatt.blogspot.com
re: chocolate - before taxol started, i never liked chocolate or ice cream or any sweets, but now i can't get enough of frozen yogurt and hershey's dark chocolate! dangerous!
the nurse told me that i could cut down on infusion time by taking 50mg of benadryl capsules at home before i come to treatment (and of course being driven to chemo!), rather than have 50mg benadryl in the IV. now she tells me!
i was interviewed yesterday for a podcast and also will be videotaped (in san francisco on may 17th) about my photography and use of my self-portrait mastectomy photos as a way of encouraging women to get mammograms. details on my blog. those photos are here: http://www.flickr.com/photos/oceanbornstudios/sets/72157608493948291/
am also hoping to be featured by AARP in their magazine. since i've posted the photos on flickr and then the san francisco magazine interview and their publication of ten of my photos, i've received hundreds of e-mails from women around the world saying they are getting their mammograms or having their lumps checked out because of seeing my mastectomy photos. two men wrote to me and said they had been begging their wives to get mammograms, but they finally agreed once they saw my photos. i only found out that i had cancer six months ago--i would never have dreamed i'd have self-portraits of my bare chest--sans breasts--published for people all over the world to see. it's one the best things that's happened as a result of my cancer.
we're almost at the finish line! can you believe it's been four months? to me it feels like a year.
happy weekend, everyone!
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ddlatt: i call that worldwide impact -- what a gift you have given to many.
In my idle habit of doodles -- X X X X X X X O ---- May 1 the O becomes an X for you! It has been a long haul for us -- January seems a long long time ago...
Have a great weekend, all.
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Hello Jewels! Well, I took the plunge and started my Tamoxifen last night. My oncologist said take it at bed time. I slept great and didn't have any hot flashes, but maybe this is something that takes time to set in. So...no side effects from the first pill.....one day down.....1,824 pills to go!
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Jillyg: 1 down l,824 to go. Made me laugh.
I am not there yet but did ask my dr. what he was thinking along those lines and he mentioned two drugs to me that I have not heard anyone here is taking: femara and arimidex. Anyone heard of these? I haven't done much research yet as I have 8 chemo treatments to go.Had first taxol on Thursday and so far I haven't had any bad SEs. Makes me nervous when I don't have them - Is it working?....lol Well anyway a little dry mouth and a definite buzz from the benedryl. My DH said I was slurring my words during treatment. But otherwise I feel fine. Worked on Friday and had tons of energy from the steriods I guess. Hopefully it will continue to be this easy, but my DH keeps reminding me that the first A/C was easy too. Does not want me to get my hopes up. Did you guys find the taxol got harder with each treatment. I am still anixous about WEEKLY treatment.
Steriod munchies!!! That's what it is???? I had no idea why I all of a sudden could not eat enough. I lost about 15 lbs during A/C and gained back 5 already! Well, at least now I know I am not alone. This thread is great! Seems we all get what we need even if we don't know we needed it.
Beautiful weather here in Maryland finally and my DH and I walked this a.m. It was great to be out and feeling good.
Hope you all enjoy your weekend.
Patti
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I believe the Tamox is for those ER+ who are premenopausal and Arimidex and Femara are for post-menopausal, but could be wrong on that.
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Jilly, your post CRACKED me up LOL! My onc said I could be on tamoxifen for 5 yrs or 10 yrs or MORE?!?!?!? I don't even want to count that many pills.
Glad you had no side effects the first night....hope it continues!
Ladyjane - it is funny that we all have the munchies! I've maintained my weight throughout chemo but will likely gain from this last cycle....I can't stop eating, mostly to mask the horrible taste in my mouth! My son is having friends over and just bought stuff to grill hot dogs, and make root beer floats. I haven't had soda in a long time....but put it with ice cream and YUM!!!!
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Debated about doodling and crossing out 30-40 rad treatments, but didn't think I could keep up.....know for sure doodling 1,825 pills is out of the question...
. Too funny!Shocked: welcome to the "other side" !!!
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BerkelyKim - I meant to mention that I'm so glad you're getting through the Taxol OK so far. I think it's great that our schedules are almost the same and that I am not alone in the long chemo haul. I was frustrated last week but now that I had my treatment yesterday I am feeling really close to being done.
ddlatt - I am proud of you! What a great impact you are having. I am very impressed! You are a strong woman.
Patti - Last week was hard and that was after Taxol # 6. I was terribly tired. I am taking drugs to help me sleep and started taking Hydracodone for aches last week. I am sure those drugs together contributed to my tiredness. Work has been low-key but I have been there about 35 hours each week. That is another factor for sure. The aches were undeniably worse last week and they were all over my body. Tylenol had worked up until then. I neuropathy is not bad. It seems to pass quickly - so far. At first the Taxol really didn't seem to effect me much and now I feel it. It is possible you will have a cumulative effect too. Who knows? The way the SEs build gradually makes it easier to adapt to and accept them, I think. I had mentioned it before but I also started losing my eyelashes and brows about 2 weeks ago. That was a bummer. I am just so glad I am close to being done - May 22 is my last! You'll get there sooner than you think.
Bye for now Jewels.
Nancy
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Hey Jewels. Just checking in. In truth, I've been checking in, but haven't had the energy to post. I'm in the rads portion of treatment (Hmm, that sounded a bit like a commercial from the fifties: "this portion of your treatment was sponsored by...") It's a little vexing that the fatigue at this stage feels worse than it did with chemo. But enough of that. I can't help but feel whiney when I think of what a lot of you here have had to handle...and with such humor and dignity. You're not Jewels for nothing!
Jilly, are you not doing rads? My onc hasn't mentioned anything to me yet about what I'll be on after rads. I saw my onc this past Friday and told him about the severity and frequency of my heat flashes. He prescribed Megesterol. I told him I had reservations about Effexor (how supposedly once you stopped taking it, the flashes came back even stronger). He said that megesterol was better in that it kicked in sooner, but it was also easier to wean yourself off of it. But if you're having the same effects with Tamox and the flashes...hmm, makes me wonder why I shouldn't just start that as well?
Also, I noticed that there was talk of a get together. Just an FYI, that there's also a thread called the Ta Ta Sisterhood something or other that is planning a trip to Vegas in September as well. It wouldn't be as intimate a group, but there is the benefit of numbers for discounts. Just putting it out there...
Catherine
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Hello all.... Yes, the trip to Vegas in September is a possibility. would be harder for me, but i am willing to take off work if the economics of it pan out and others on the JJ thread could go.....
I had a very long day in public with friends I see periodically. In encountered a few people who were so insensitive to me and many who were wonderful and genuinely glad to see me. I guess I wanted to share a couple of the STUPID stuff people did /said/reacted to that really got to me.
P 'oed reaction number 1
I felt shock and aversion toward a person with a job working with women in the medical field who when I told her I had IDC said " oh, my god,that is aggressive, people die from that!!!!!"
NO S**t SHERLOCK!!!!!!! I thought of a slow choke till her eyeballs popped out. I guess the comment she made should go on the "stupid things people say" thread on this site.I did explain to her that many of us are surviving and going on to live quite wonderful and enduring LONG lives in spite of the "aggressive/invasive nature" of the beast. I was quite surprised to hear that comment from someone in the medical field, especially when I have talked to the cancer team helping me and they are so optimistic. I wanted to ask her if she had been looking at some of the older web sites I was told to avoid because the stats are wrong and many of us doing quite well.
Poed #2--I wear a hat most of the time in public. Tonight I had a french beret on-black -and a guy called me Peppy La Pew (sp) . Yeah, I'll give him Peppy-- The guy knew me..he knew why I wore the hat. Doesn't that seem a bit insensitive? I don't know, maybe I am self conscious about it....Sigh.
I guess this week must just be one of those weeks for me.
Hey Year of the Hat----here's my list of engorging for today!
slice of toast
coffee
hot and sour soup---msg d---double headache cause I forgot to ask them to leave it otu
chicken /broccoli--one servin--packed the rest
ground turkey pasta spaghetti
6 ginger snap cookies
several swigs of my husband's wine---I guess that doesn't count, right/??
It's not my glass??Gotta love those gorges....Actually at this point several days out of tx, I can't use that excuse anymore??? I truly don't know, but gosh I have eaten things I haven't had in years literally!! I have gained about 7 pounds..........!
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Jess, that comment would have taken me aback as well. It's like how you always assume someone older than you is wiser than you, but then they open their mouths and prove you wrong. As for the second comment, I would like to think that the reference was to the beret and Pepe being French. Perhaps not the cleverest of comments, but certainly not one born out of insensitivity. But you know what? If it ticked you off, good! You're entited to be ticked off. We're all fricking entitled!!!! And when people say things to us that leave a little to be desired, when is there a better time to let loose and let them know it? We all got dealt the cancer card, seems a same not to play it.t
So, to person number one: You're a G-damned idiot on a whole bunch of levels. (actually, I think you should have gone with your gut and yelled "No shit, Sherlock!)
And to person number two: Really? Pepe Le Pew? Is that he best you've got? What are we, TWELVE? In that case, I'll just call you Elmer Fu#$. How's that?
However, if I said either of those things, I wouldn't be able to stop myself from laughing at the end of each statement.
How are you guys able to eat all of that? I've lost 12 pounds from all of this so far...my energy levels suck, and my appetitite is crap. I just started drinking Ensure to get my calories up. I would much rather be with you guys on the gorging. This is the time that out bodies need to be fed,, and better to overfeed than underfeed. I'm envious of you guys. But also inspired. I'm going to eat something right now.
Catherine
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jrgolomb: Just because they're in the medical field doesn't mean they're any good at it.
eadsla: I'm with you, I lost weight too. The only thing I could force myself (and I mean force myself) to eat by the end of chemo was mashed potatoes. Now I gag thinking about them. Found my appetite came back pretty much in time with my hair. Took about 8 weeks to begin to even notice a difference and its slowly improving.
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KMMD--Your hair is growing! Wonderful. that's gotta feel good. When I took FEC-I lost weight, but now on the taxotere-with steroids, I am packing on the weight. I really didn't eat a huge amount last night, but I am gaining weight because I am always hungry -to the point where my stomach is growling and I feel light headed. I can't stand mineral water anymore and mashed potatoes because that is what I ate during the FEC tx.
Eadsla--Funny responses......I think Pepe Le Pew is the cartoon character on BAMBI....don't know my daughter is a teen and we have stopped watching disney cartoons.
I am over it now, and I sort of have to laugh about the Pepe comment. Some people just don't know what to say or do....
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hi ladies. I'm still feeling like crap. I was up all night. Went to go to the bathroom and couldn't get out of bed to walk. My husband had to help me out of bed and I couldn't even walk with his help. I had to crawl. I had diahrea really bad. My husband went to work for awhile and called my doctor. Told us to come to the office that morning. She was going to admit me and said she would really think about it. Wanted to see how my day would go. I was extremely dehydrated, had low blood pressure. I was fed 3 bags of saline. Had a cat scan cuz my doctor was worried about the pain in my stomach. That came out ok. I was there from 9:30-4pm. Met a couple of ladies that have been thru the ringer. The 1st one had ibc 2 years ago. Had a mastectomy. Cancer spread to her bones and liver. She went to Houston and had stem cell transplant. She is doing well. She goes in every week for something. I forgot what it is. Its for Her2+. Thats what I am and she said I should be on it, but I know nothing about it. She gave me a lot of good info to check out especially about going thru rads, and a double mastectomy. We exchanged emails and hope to stay in touch. I may run into her again. The other lady has had cancer 8yrs. Started with b/cv and spread to her bones and liver also. They are still trying to contain one of them. I didn't want to ask. Shes been thru alot..My doctor decided I was feeling well enough to go home. YAY!Got a prescription for augmentin. I'm not sleeping. I'm waking up with diahrea.Hopefully thats taking care of any infection I have. I have no appetite. My mouth is horrible. Is that what thrush is? Its very scaly and sore and everything tastes awful. So I'm taking it easy today. Its supposed to be 62. I may get outside. I was out most of the day yesterday. I was feeling ok. It ws 72 and beautiful .My DH and I went to a nursery and bought some bushes and grasses to plant and I sat outside for awhile. My younger daughter and I met with my older daughter when she got her dinner break and got something to eat., but I didn't eat, got a milkshake. Then I dropped her off and went to rent movies. I had to leave my daughter cuz I had to find a bathroom asap. This diarhea sucks. Went home and then I was too tired to watch them, so today will be good to do that. On the positive side, I swear I'm growing hair. There are a few strands off the nape of my neck that weren't there before, also around my ears. I actually went out with just a baseball cap on yesterday. I felt strange but I am sick of my wig. Anyway, hope you all had a good weekend. I just hope I'm better by tomorrow.
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Plutz, so sorry to hear about how bad you're feeling. That diarrhea is the pits. Keep up on your fluids and let us know how you're doing
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kmmd - yeah! hair is coming back! i have a little too....and went out yesterday just wearing a baseball hat. it was hot and i don't care anymore!
plutz - i'm so sorry you feel like crap. ugh. i've been thru the diarhead thing....it takes EVERYTHING out of you. are you having stomach cramping too? that's what really did me in and made me go for a stool culture. i ended up with c-diff after chemo #5. its VERY dangerous. i, too, had to go in for IV liquids a few times. its so easy to get dehydrated and so dangerous.
take care of yourself!!!!
as for me, i've been sleeping ALOT. my son went to another sleepover (bless my friends and his his). my DH and daughter come back from their Catalina island trip today.....i've missed them but its been nice to rest without a 5 yr old ALWAYS needing my attention. better rest up for when she is back....she'll be tired AND want my attention LOL!
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Plutz, so sorry to hear of your awful night. Hopefully the prescription will be of help. Interesting about the woman you met who had success with stem cells. And she's had cancer for 8 years. I can't even imagine. She must be one tough lady. As are you, just do your best to stay hydrated.
kmmd, I am relieved to hear that someone else has had issues with appetite and weight loss. This week I'm drinking most of my vitamins and protein, because it's easier to do right now. Hopwfully it will lift my energy a bit more to get back to cooking and that will get me back on track to get through rads. By Friday of last week, I was so exhausted I was beginning to question whether I could get the energy to get out of bed, much less drive to rads.
lisalisa, glad to hear you had a day of rest and sleep. And your DH and daughter couldn't have a better weekend to go sailing. (OT: St. Joseph's is in Burbank, right across the street from Disney Studios)
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