Has anyone started a forum for Chemo in Dec 2008?

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  • Lainey64
    Lainey64 Member Posts: 740
    edited December 2008

    Happy Friday Divas.  I got up feeling a bit tired this morning.  I think I'm just worn out from working all week.  I've felt good the past few days and think I've overdone it.  This morning has been fun at work - exhanging gifts and stuff and I really wore myself out.  I felt exhausted and out of breath for a few minutes.  It made me so emotional and I started crying.  I don't know what happened to me.  I'm fine now but it really bothered me.  Has this happened to anyone?  It's 9 days post my first A/C and I'm just surprised that it kind of hit me out of the blue.  I'm worried too about my next TX next Thursday.  I hope my SE's aren't going to get worse.  I have noticed some mouth sores popping up on my tongue and inside of my cheeks.  I've been using Biotene mouthwash and it seems to help.

    I hope everyone is having a good day.  Love to all! Elaine

  • CindaD
    CindaD Member Posts: 120
    edited December 2008

    Good Morning Dec Divas!  It's day 9 for me and I feel really good except for my taste buds, I really miss my morning diet coke! 

    Lainey, a friend of mine who went thru tx a few years ago told me this is like being on a rollercoaster, some days you are really high ( that's me today), other days you just hit bottom, she said the important thing is to just have a good cry and then get right back in the game.  Also, remember, for those of us who are pre-menopausal,  chem will start the process, so it could just be hormones.

    Karen, I think you are going to be pleasantly surprised with the SE's this go around, I haven't read that many of us have been vomitting, I just have been nauseated, but it wasn't that bad.

    Meg, I was wondering how you made out, I feel like we're kindred spirits since we both love Jimmy!  I play his music all of the time.  Do you think it would hurt to have a little margarita now and again?

    I have something to report today,  I have a habit of shaving my legs every morning, I can't help myself.... and this morning there wasn't much stubble on my legs.....it's a sign

    TGIF

    Cinda

  • Lainey64
    Lainey64 Member Posts: 740
    edited December 2008

    Cinda, thanks.  I'm feeling better now.  And you're right about the hormone thing.  I'm 44 and was already peri-menopausal before all of this so I'm sure it's my hormones adding their fair share of grief.  I work with a woman who has gone through TX a few years ago and she recommended mentioning anti-depressants to my oncologist.  I'm just not sure I want to go that route yet or not.

    Oh, and about shaving.  I have to admit, I haven't shaved my legs for about 2 weeks!  hehe

  • Firni
    Firni Member Posts: 1,519
    edited December 2008

    Hi everyone.  

    I'm into day three Tx 1.  Food all tastes like nothing.  No metal taste.  Just nothing.  After I eat about half a meal, I get sever stomach pains and have to run to the bathroom.  Needless to say, I have me some butt paste too.  I haven't had any nausea since the first night.  I'm really sore today, I imagine from the Neulasta shot yesterday.  The Claritin seemed to work yesterday for achiness but can't take it for another 2 hours today.  I'm tired but I think because I can't sleep for more than a few hours at a time.  Just can't get comfortable with these darned expanders.  If I lay so my chest is comfortable, my back hurts.  If I lay so my back feels ok, my chest hurts.  Such a drag.  I'm hoping after this weekend, I'll start feeling more like myself.  

    I did have to laugh about the Carmen Miranda hat.  There was a lady at the clinic yesterday who was commenting on all the lovely hats and scarves she's seen there.  I can just imagine her face if she saw that coming into the clinic!  Thanks for that BCDiva. 

  • EleanorJ
    EleanorJ Member Posts: 752
    edited December 2008

    About the shaving... my thinking is why bother shaving if it's all going to fall in the end? But now you gave me the itch to shave so that I know when it's coming!

    Day 5 - still have cramps, probably left over PMS cramps. My entire back is killing me, so I'll be laying in a hot tub while hubby goes Christmas shopping for me ;)

    My SIL is turning 21 today, so I hope I'm able to put a painless happy face on tonight while we go eat some cake. Trying to rest now, so that I have energy later. I wasn't expecting all my energy to be drained like that.

  • Lainey64
    Lainey64 Member Posts: 740
    edited December 2008

    My office had our annual holiday luncheon today at a very nice steak restaurant.  We've been there several times before and I love the food but today I could barely stand anything.  What a stinker!  I'm exhausted again and watching the clock until I can go home and take something for my constipation.  I'm feeling pretty crummy but I know I'm just tired.

    I am going to shave my legs now just so I can see how fast it grows back in.  Thanks for the idea Caroline!

  • colleen1960
    colleen1960 Member Posts: 226
    edited December 2008

    Had 2nd tx today.  It seemed really long.  My appt. was at 10:20 for onc and blood work and treatment was suppose to be at 11.  I was not done until almost 2:30.  They seemed really behind today.  I am a little tired this time, unlike last time when I felt like the little bunny on TV.  The onc told me to take benadryl if I can't sleep and if that does not help she would give me something else.  For some reason I think I will sleep. Also she told me to take the nausea pills right away and not wait this time.  She also said the SE's should not get any worse this time around.  And it they did to let her know.  I am hoping she is right!!  Regarding anyone  with the diarrhea has anyone taken imoduim.  My friend who had that problem swears that was the only think that worked for her.  Well I am off to rest.  Hope everyone as a great weekend.  Have Fun!! 

    Be Well,

    Colleen

  • ptjen
    ptjen Member Posts: 52
    edited December 2008

    Had my first TC tx on Tuesday and so far, so good. Not knowing what to expect made this way worse than the reality. I know SE's will be cumulative but it was all manageable this time. Glad I had the Zofran and Imodium. And my Dana Farber oncologist and chemo nurse were wonderful!

    I had an incredible Friday. I've been avoiding dealing with the prosthesis - but the cost of seeing the woman at the hospital (this was at my local hospital in Maine), who was keeper of an incredible selection of hats and scarves, was also having a prosthesis consult. So I went today and had a wonderful friend that I don't see enough of come with me and we had a ball. The hat/scarf woman didn't even let me tell her what I liked - she just showed me everything! Then she proceeded to urge me to explore outside my comfort zone. I came home with a collection of absolutely beautiful hats and scarves that I am looking forward to playing with.

    The real surprise was finding a prosthesis (which I actually did before I got to see the head stuff). We did the insurance paperwork then she showed me all sorts of bras. I was astounded at how beautiful alot of them are.  She measured me and then had me try on the bras we'd selected. Then she brought a prosthesis out one at a time to get a good fit. After each one, she had me put on a light robe and had me look in the full length mirror. The fourth one was it. I looked in the mirror and totally unexpectedly, started to cry. I never saw it coming. I hadn't realized it was an issue.

    Before my surgery (mastectomy), I just saw my breast as my enemy. I wanted the cancer gone. After the surgery, it was just this ugly, uncomfortable place that I had to keep clean and put antibiotic ointment on. I hadn't realized that this 58 year old, overweight, gray-haired lady was even thinking about it. I'd been wearing zip up athletic jackets and loose pants, flat shoes (b/c I just didn't feel solid in my usual higher shoes). Turns out the prosthesis doesn't just make your clothes fit better (they do!) but it balances you and keeps your shoulders aligned. 

    I had also assumed that the insurance company would only pay for one and if I got it too soon I'd need another that I'd have to pay for (b/c I've so totally changed my diet that I am losing weight and I always lose weight in my boobs too). But I found out that if you have insurance coverage, they cover another prosthesis if your size changes b/c of weight. They also have ALOT of donated ones for people who don't have insurance. 

    I guess the thing I wanted to let everyone know was that I HAD FUN! I still can't believe I am saying this. That shopping for a prosthesis and hats and scarves for when I lose my hair would be - or even could be - fun. But it was. Alot. 

  • lisasayers
    lisasayers Member Posts: 850
    edited December 2008

    Cinda...I'm a have to shave my legs every day girl too! LOL 

     Okay, so tonight, decided to have a glass of my favorite wine.......ACK!  It tasted awful...so bad it made me cry! LOL  This bad taste is a contstant in my mouth and the only thing that does taste good is salty stuff.  My sister, who is going through treatment too...she can only taste sweets!  Too weird!

    I did have more joint pain today...my neulasta shot was Monday.  But it wasn't anything I couldn't manage.  Tomorrow is another day!

    Good night Divas!

  • mimiwhite
    mimiwhite Member Posts: 60
    edited December 2008

    Hi girls just checking in.  Has been 12 days since first TC.  My rash was folliculitis and went away after a few days on an antibiotic.  It was like the worse case of acne and it itched.  Other than that, I am fighting mild cold symptoms.  How are WBC counts?  Mine before Rx was 10,000

    and one week later it was 1,500.  Yikes!  Labs this coming Monday.  Curious to see what it will be.  I just hope my cold does not get any worse and I will be ready to go for the 12/22.   

    Lisa I miss wine.  I am craving a glass of something red.  ;)

    Have a great weekend!

    Mimi

  • Meg511
    Meg511 Member Posts: 4
    edited December 2008
     

    Hey CindyD!  I'm doing great!  Had chemo on Wednesday and still no major side effects.  Just a little tired but appetite and taste buds still intact for the most part - a little different but tolerable.  Not sure about the margarita but I have to admit that the "wino & I know" that I have partaken in a glass or two of cabernet since chemo. Keeping my fingers crossed but staying realistic. BTW, I'm a huge coke zero girl. I've switched to regular diet just to psych myself out because then I expect it to taste different. Scary thought that I play tricks on myself...I think that defeats the purpose but in my present state of mind - all is possible. 

    Hang in there ladies!!!!  This too shall pass...and think about how much stronger and wiser we'll be as the result of this journey!

  • sdavis
    sdavis Member Posts: 96
    edited December 2008

    morning all,

    I didnt check in yesterday, my son had his program at school and that totally zapped my energy. I spent the rest of the day on the couch. Lazy me. lol I am enjoying it because I go back to work on Monday morning. I work in home health care.  I told my scheduler to shorten my days and no evenings so I get my schedule and she puts in six 9 hour days and 5 evenings including two late nights (after 10pm) I dont know what she was thinking. I have to change it all on monday, like I dont have enough to do with dealing with this now I have to do her job too. I have had a raging headache for three days now. Tylenol helps but wears off after a few hours. Constipation gone and soft stools in play. I know what you mean about eating very little. wanted a snack yesterday and had 3 animal crackers and was full. I can stand to loose a few pounds anyway so not too worried about that.

    Over all feeling fine today as long as I can keep tylenol handy for the headache.

    drink drink drink thats seems to be all I do.

    Sue

  • EleanorJ
    EleanorJ Member Posts: 752
    edited December 2008

    Ah do I miss my wine too!! I haven't even tried it yet, I know it won't be good. The sad part is my parents are visitings us for the New Year right, well, that implies my mom cooking (Yes I know, I can't even cook in my own kitchen when my mom's here!) cooking amazing food & drinking LOADS of wine for a week. Hubby is the only that understand how I really feel about missing out on that. Did get a tiny glass of Pina Colada last night, and THAT was good :) I think it was thye coconut I could taste, so I might have to switch to Pina Coladas :)

    Day 6 - Still have some stomach cramps. Constipation seems to be doing better. Aching joints are gone, but my back is killing me. Still can't taste food :(

  • Lainey64
    Lainey64 Member Posts: 740
    edited December 2008

    Good morning Divas.  Last night I had some major joint and bone pain.  Now I know what they're talking about!  It was pretty bad and a little frightening.  I took some Tylenol PM before bed and that helped a lot.  It's now 9 days since I got the Nuelasta shot too.  My taste buds are way off.  Yesterday I sniffed a glass of champagne and it smelled terrible.  Everything is super salty to me now and I don't have to add salt to anything.  I used to be a diet coke drinker but now I can't stand "diet" or sugar free of anything.  My next TX is the 18th and I'm anxious to get going with it!

  • ENFENETEE
    ENFENETEE Member Posts: 13
    edited December 2008

    Hi, I was dx'd 10/30/08. Uni lateral mastectomy  (left breast) 11/20. Out patient surgery for port installation ( I feel so robotic) 12/19.  Starting Taxotere/Cytoxan (4 cycles) with Herceptin during chemo and after for a year  12/22. Followed by radiation, I will then have the right breast removed and reconstructive surgery all at the same time  Stage II B, T2, N1, M0 E-, P-, HER2+

    I was in a bad car accident 6/3/08 and they thought I had an hematoma. Was rushed to the hospital 10/18 with a fever of 102. The "hematoma " was aspirated then biopsied and I found out when I went back for my follow up that it was cancer. I thank GOD everyday for my accident! Innocent 

  • LindaBusEd
    LindaBusEd Member Posts: 121
    edited December 2008

    Miniwhite, 2nd tx on the 23rd. Started a hacking cough this week; afraid it might turn into bronchitis or pneumonia so I went ahead a called the doctor. He put me on a z-pack and Municex(spelling). I didn't want to take any chances of this interfering with my next treatment.  I noticed last night when shaving my legs that I have these tiny bumps on my legs. Anyone else?

    Other than this cough, I feel like a normal person.  Going to a cookout tonight in the neighborhood(5 couples); guess everyone will be partaking as I will be drinking my water. Have not had a taste for my Bud light Lime.

     Sdavis, could your headaches be from caffeine withdrawals. I have had no desire for coffee(my all time favorite) or diet coke since I have taken this journey.

    Hope to put up decorations today and do some shopping next week since I feel like my old self. I know it is short lived before I start back over.

    Have a great weekend. Linda

  • Firni
    Firni Member Posts: 1,519
    edited December 2008

    Hey everyone.  I'm on day 4 tx 1.  I have such bad bone pain it's unreal.  With Claritina and Motrin, I can get it down to a high level of flu type ache.  I'm also sooooo tired.  I went to bed last night at 8:00 and didn't get up, (well except for bathroom trips) until 7:30 this morning.  All I've done so far is make breakfast and wash one load of clothes.  I'm ready to go back to bed.  My back also hurts a lot.  I think that's because I'm still half sitting up to sleep coz of the expanders settling on my ribs and hurting.  Some times I think that chemo won't be over till the end of March, I won't have my expanders switched out till the end of May.  How am I going to make it that long?

    We're supposed to go to a holiday party this afternoon and I guess I'd better take a nap.

    I haven't noticed any bumps on my legs but my scalp is hurting this morning.  I wonder how long it hurts before hair starts falling out.  My onc. nurse said that the tingling and pain is the hair follicles dying and letting go.  I have visions of myself out somewhere and having my hair just let loose and all fall out at once.   

    ENFENETEE, my aunt kind of had the same thing happen to her.  She was visiting in NY several years ago and got mugged and hit on the head.  When they did the head scans to look for bleeding, they found a big ol' brain tumor.  She was never so happy to have been mugged. 

  • havehope
    havehope Member Posts: 503
    edited December 2008

    Updated list:

    Texas357                1-Dec        FEC+Taxotere

    mimiwhite                1-Dec         4xTC

    gts                          1- Dec 

    meb                        1-Dec         4xAC+4XTaxol 

    Colleen1960             2-Dec        CMF

    mmliv                      2-Dec        4xTC

    msbusdriver             2-Dec        4xTC

    LindaBusEd             2-Dec        TAC 

    vtmama                   2- Dec       4xTaxol+C 

    shan1171                2-Dec        6xTAC 

    Brenny                    3-Dec        4xTC

    zuffa                        3-Dec        6xTAC

    Lindy58                    3-Dec      4xTC  

    Catrenae                  4-Dec        4xAC+12xTaxol

    Lainey64                  4-Dec        4xAC+4xTaxol

    CindaD                     4-Dec        4xTC

    BreastCancerDiva      4-Dec        4xFEC+4xTaxotere

    lisasayers                 5-Dec        4xTC

    simvog                      5-Dec        4xFAC+4xTaxol

    cebula                      8 Dec        6xTC

    sdavis                      9-Dec        6xTC

    berrypathc               9-Dec        6xTC 

    ptjen                       9- Dec       4xTC     

    ShondaE           #2  9-Dec         AC 

    Meg511                   10-Dec      6xTCH

    Firni                         10-Dec     6xTC 

    Lindy58                     10-Dec    1xTC+3xAC 

    Colleen1960             #2 12-Dec        CMF  

    ddlatt                       15-Dec      4xTC                              

    horsercn                   16-Dec      4xAC+12 Taxol+Herceptin 

    apfuentes                 16 Dec       4xTC 

    busqueen                 16- Dec      4xAC+4Taxol 

    iktracey                    16-Dec         4xTC 

    Texas357                #2 16/17-Dec        FEC+Taxotere 

    Kranie                      17- Dec           6xTC 

    Lainey64                  #2 18-Dec        4xAC+4xTaxol 

    momof4stars             18-Dec?    FEC+Taxotere

    ENFENETEE            19-Dec             4xTC 

    mimiwhite              #2- 22 Dec  4xTC

    colleen1960            #3 22-Dec      CMF 

    LindaBusEd           #2 23-Dec        TAC  

    mmliv                     #2 23-Dec        4xTC 

    msbusdriver           #2 23-Dec        4xTC 

    Brenny                 #2 - 24-Dec        4xTC 

    lisasayers             #2 26-Dec         4xTC

    simvog                  #2 -29 Dec  4xFAC+4xTaxol  

    cebula                   #2 - 29 Dec        6xTC 

    CindaD                  #2 - 29 Dec        4xTC

    DrDecker                 29 Dec             4xTC

    Firni                       #2 -30-Dec     6xTC 

    ptjen                      #2-31-Dec       4xTC

    Bkokie                     4xTC 

  • lktracey
    lktracey Member Posts: 110
    edited December 2008

    Well, I did it.  Chopped 12 inches of for Locks of Love and kept a good bit for my own new sassy, chic cut.  I figured what the hell, if I didn't like it, I'd only have a few weeks to deal with it till it falls out, right?  I also decided that if I were to lose my hair, it would be on MY TERMS, NOT CANCER OR CHEMOS terms!!!

    I debuted it at my girls night out.  Our husbands call us the Pink Mafia!  Little did I know way back when that they'd all become my Cancer Posse too!  My friends loved the new me.  I am getting used to it.

    Still scheduled to start my first tx Tuesday.  Had a PET scan Friday.  More to worry about till the results come in!

    I am scared, nervous to start, but know it is just one more step closer to survival and some closure on this journey.

    Thanks to all you ladies who share your journey, as I eagerly take it in every day!!

    Lauren

  • mmliv
    mmliv Member Posts: 128
    edited December 2008

    Day 12 TC - Well, day 11 is the nadir for WBC..... Thursday night had to go to the hospital for fever over 100.5, never found an infection and they suspect I had neutropenic fever. My ANC count (and under 1000 is considered low) dropped to 26. I am back home and after being loaded with antibiotics for the last few days and that my count is now going back up I am feeling MUCH better. 

    It was handy having hair that was on 1/2 inch long - easy to take care of in the hospitalLaughing. Got to try out a lot of my new hats.

    Sue, I met a med tech at the hospital where I was admitted who is a nephew of an Escanaba charter service owner. He was shocked that someone not only knew of Escanaba but also his uncle. Small world and I thought of you as we were talking about Escanaba and Marquette. What is with your scheduler......can't believe this scheduler is so clueless......

    Interesting about the taste buds, I CANNOT taste salt!!!! If the salt is concentrated I do taste an obnoxious flavor - but only if something is really salty. Sweet flavors have lost potency so I really don't want sweet foods. That needs to stay with me .... LOL

  • lisasayers
    lisasayers Member Posts: 850
    edited December 2008

    If you want to add my second TX...I'm scheduled for the day after Christmas!  Oh Joy!

     My sister can only taste sweet and I don't want anything to do with it...I can't get enough salt and spicy...that is what tastes good to me. 

    Escanaba...know exactly where that is.  Went to college at NMU!  God's country!

  • havehope
    havehope Member Posts: 503
    edited December 2008

    Day 8 TX1

    I used to have long hair. I cut it short as soon as I found out I had cancer - (Oct). Before starting chemo I cut it very short - half an inch - and everybody loves my new look. The new look is different not only in length but also color; before I was a brunette and now I am salt & pepper (more salt then pepper). I've never released how much gray hair I have. I've been going "white" since 8th grade and in high school I was cool with some white strings, but in college I was back to my "natural" color. I stopped dyeing it only during pregnancy. The hair is still growing even after I started chemo. I have no signs of loosing hair anywhere and my nails are still growing. I was wondering if this medication works. I did not expect the hair to start falling the next day, but I didn't expect to grow either.

    I too miss my wine. I drink red, most Pinot and Merlot, and even though my doctor told me I could have a drink here and there, I don't feel like drinking. My heart is aching for a glass but my brain says no. I now indulge to V8.

    Feeling good today, tired but mostly due to lack of sleep - last 2 nights we had full moon and sometimes the moon keeps me awake. Bought the Christmas tree today and I am writing Christmas cards. My daughter is having a cold and we are separated. My poor DH is wearing a mask and tries to keep both of us happy. We eat and sleep in 3 different rooms. Our poor puppy (we just bought a Schnauzer one month before my dx) is confused with all this commotion.  I hope my DH can survive the cold without getting sick otherwise I might have to move out to a hotel.

    Please let me know when you have your second TX so I can update the list.  

  • colleen1960
    colleen1960 Member Posts: 226
    edited December 2008

    Simvog:  I will be having my 3rd tx on the 22nd.  Had my 2nd tx treatment yesterday.  Very tired today, but otherwise I am ok.  Sorry to hear about your daughters cold and your poor dh running around trying not to get sick himself.  I do miss being able to have a drink to .  I am usually a beer drinker Michelob Ultra - but I have not had one in over month or so.  I did have a few glasses of wine before treatment started, but right now it does not really appeal to me.

    mmliv:  Sorry to hear about your hospital trip.  But glad to know that you are home and on the mend. 

    I do have a question?  How would you handle this -- they have a food chain going for me 3 days a week someone brings a home cooked meal to us around 5:00 pm.  They did it after my surgery for two wks. and now again during treatment.  We are so grateful for everything the only problem is that every meal is some kind of chicken.  My husband and kids are going crazy every time someone comes they are like please let it be something other than chicken.  I guess people feel that chicken would be easy for me to eat.  But I really need a change.  Does anyone have any ideas, I don't want to insult anyone.  But we can't eat anymore chicken!!!! lol

    Thanks,

    Colleen 

  • Lainey64
    Lainey64 Member Posts: 740
    edited December 2008

    Colleen, that is a tough one!  At first I thought I wouldn't know what to say, but since you have started chemo now, I think you could blame it on that.  You could ask someone you know pretty well to spread the word that since you have started your treatments, that there are some things you are having trouble eating (this wouldn't be a lie!) and tell them that chicken is one of them.  That should work, what does everyone else think? 

    Lauren, don't let yourself worry too much about the PET scan.  I know that's easier said than done, because I worried like crazy when I had mine done.  But it is a routine test that they do to get a baseline.  My doctor didn't even call me with the results.  After a week I finally got the courage to call them and the nurse very casually told me "Oh, you're results are negative". 

    Simvog, thank you for keeping our treatments updated!

    Firni, I hope you feel better soon.  The bone pain took me by surprise too.  I never expected it to be that way.  Get all the rest you need and don't push yourself too hard.  Everyone will understand.

      

    Well, I finally shaved my legs today.  We'll see what happens.  When I was washing my hair I was trying to see if anything was coming out yet and it all seems to be intact.  I think my scalp is a bit tender in a few places but I might just be looking for it too hard. 

  • ptjen
    ptjen Member Posts: 52
    edited December 2008

    Simvog:  Thanks for keeping up the list. My 2nd will be on 12/31. I cut my hair too a few weeks ago. I have never liked short hair and figured I should give myself a chance to get used to it. Turns out, I love it. It is so easy to take care of - so I may keep it short after it grows back. My hair is basically white and has been for years (I found my first gray hairs in high school) so I figured there was no way it would come back in any unexpected color as we are warned. I don't know where the hair follicles would find any color! But my hairdresser said that it could still grow in with some color. That would be neat even if it's temporary.

     Fimi: I'm sorry about your bone pain. This is my 4th day out too and I've been feeling aches and pains in my legs all day. I wasn't sure if it was from the Neulasta or just general aches. I decided to take Tylenol - it will hopefully help either cause. btw...my understanding is that it takes about two weeks for hair to fall out after TC starts. I asked my onco if it was 100% that it would fall out and she said that until recently she would have said yes, but she has one patient who didn't lose her hair - she doesn't know why. 

    Colleen:  Lainey's suggestion is a good one - but I wonder who is co-ordinating the people who are sending food. Perhaps a word to that wonderful person would help. 

    For all of you who are going through this at the same time you have to deal with peri-menopause, I am so sorry. But please take care of yourselves. Your hormones will play havoc with your emotional well-being and if there was ever a time when you need to be the one in charge, this is it. If you need help, please talk to your doctor. I waited too long when I was dealing with it (several years ago) and really paid for it. Please - take care of yourself!

  • sdavis
    sdavis Member Posts: 96
    edited December 2008

    hello all again, its 3:30 am here and cant sleep, headache is less but still there. No I don't think its caffeine withdrawal, I don't drink much of that to begin with. always half-calf of decaf coffee and decaf soda. My husband hunted up a huge massage heating pad he bought me the last time around and it really helps with the bone twitching and aches. I stopped drinking about 5 years ago also so don't have that craving. Sweet tastes funny and salt is just almost sour. Not eating alot all at once but a bunch of little snacks thru the day. Pudding still tastes good but I try not to over due it.

    I am going to take couple of Tylenol PM and go back to bed, hopefully to sleep.  night all

    Sue

  • Brenny
    Brenny Member Posts: 116
    edited December 2008

    Mimi - on the wine issue, I went to a party on day 8 after first tx and had a glass of chardonnay that tasted awful --I thought perhaps it was a result of the chemo.  Then I thought maybe it was just the label.  So tried a glass of my old tried and true CA chardonnay and my wine-taster is not broken!  It was fine.  Did your onc say no to wine or have you just lost your taste for it?  I often have a glass before dinner to unwind from the day at the office - maybe I should not during chemo??

    Hey - send some of that chicken my way -- I was complaining (smile) that no one has made me a single meal since this whole ordeal!!  (Poor, poor me! ha) I'll take your overstock or your mom who has come to cook, or anything!

    Day 12 after first tx -- is this the low point for WBC as a general rule?  How does one know if the count is low (other than a blood test)?  I won't have blood work until I go for second tx.  Didn't get the complementary Neulasta shot which seems to be causing a lot of you SEs.

    Good luck this week to all!

  • Firni
    Firni Member Posts: 1,519
    edited December 2008

    Made it to the holiday party yesterday afternoon.  We only stayed a couple of hours but that was plenty long enough.  As we were saying our goodbyes to the hostess,(who we don't know real well) and my DH tells her I just had my first chemo treatment a few days ago.  She grabbed me and hugged me and told me I'd be fine.  She was in the same place 6 years ago.  Then, the tears came.  I haven't cried for over a month.  But there, in front of acquaintances and strangers, I become a slobbering waterfall.  She understood, but I'm sure some of the other people there thought I was nuts.  Our hostess also said not to eat or drink thhings you've always really loved, coz you'll lose your taste for it when this is all said and done.  However, it it tastes good, I'm eating it.  So many things don't taste good.

    I had trouble with people cooking for us and putting cheese in and on everything.  My DH doesn't eat cheese.  So, now that there is chemo, I have told people cheese isn't working with chemo and please don't use any.  Otherwise, people have been asking what we want or what we've had recently so we don't get a lot of the same thing.  I just don't understand the obsession with cheese.

    Brenny, with my chemo info, I got the nadir for taxotere (days 5-9) and cytoxan (days 10-14). So, really the whole second week of the cycle is when we, who are getting TC, are at our lowest immune state.   

  • Brenny
    Brenny Member Posts: 116
    edited December 2008

    Firni

     We obviously are both up very early this a.m......did you also get the little Chemo & Sexuality book that strongly suggests avoiding intercourse during that second week between chemos??  I haven't seen anyone make note of that......

  • colleen1960
    colleen1960 Member Posts: 226
    edited December 2008

    Firni:  I take some of your cheese (family loves it) and give you some of the chicken. lol.  Day 3 amd I am definitely starting to feel the nausea.  Hopefully it will not get that bad, I took a pill before bed last night and again this morning.  I slept pretty good last night once I fell asleep.  I am going to try and go shopping for a little bit today with my sister and daughter just to get out of the house.  Have a good day,

    Colleen

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