Anyone starting chemo in Aug. 08?
Comments
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Happy Friday all,
Today is 7 day post 1st TX and still feeling good. I think I'm going back to work earlier than planned but still want to wait see how next tx goes. I had lunch w/ a great friend yesterday and even went to a Tina Turner concert in the park last night with the girls. It was fun.
So glad to hear you're both doing well Misty & Kim. Cool mohawk story Kim. Kids are awesome. Misty: Funny story about the "Look Good, Feel better class". I've heard some bc gals call them the "Look awful,Feel worse class" not too nice. That must have been funny!
Joyce: Good luck on your counts. Hope they're up.
That was really sweet of dear ol' dad shaving his head for you Stacy. I've still got both my dear parents both 75 & 74. I wouldn't have gotten this far w/out them. Thanks also for the very interesting genetic info. I got tested for the BRCA gene and need to get those results for my DD. Laughed @ how you're hubby's enjoy the "below Brazilian" too. Thx too for the St. Peregrine site.
Wishing you also positive results or shall I say "negative" mets results on your MRI Dawn. Keeping you in prayer. (I would chant "No Mets, No Mets" before each scan)
Glad to hear your 1st TX went well Denise! I too was surprised at no SE's! Keep the prayers going! Wish you luck also Theresa; We're all doing this and you will too. Drink water!
Deanna: I live in Whittier, CA - Perhaps we can meet up one day and compare our cute bald heads? Where do you live?
For all the ladies shedding hair, I feel you! Stacy, Misty & Alibug. I've got 8 or so days left to enjoy my frizzy wavy hair. Oh the agony! I think I'm really going have a big yell then 1 big cry or just punch someone.
Have a great weekend everyone,
Prayers & Hugs to all.
Jeannine
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Good afternoon all,
DFOnt, I'm on the FEC series. I had my first tx on Tuesday 4 hrs, 3 hrs on Wednesday and Nt shot on Thursday. I've been doing really well. I did eat ice throughout both tx, got a big cup on Sonic Ice, I also ate a big blow pop sucker. I'm also rinsing a couple of times a day with Biotene mouthwash. So far not mouth sores. I'll let you know how it goes. I've had some naseau but not much. A cracker or two usually gets it under control. I've taken the reglan a few times and that seems to work great.
stacy, I think your prognosis sounds great with the surgery. I know it's hard to think about going ahead with all of it but that 95% sure sounds great to me.
I'm really getting tired in the afternoons, can't wait to go home and go to bed. I used to love the friday afternoon happy hour emails and looked forward to my date night.....now I just want to go to bed.....
My love and prayers to all this weekend, peaches
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Funny hair story...
After my first treatment my fiance was feeling some of the SE's. I thought he was having sympathy SE's and, I know this may sound odd but, I thought it was sweat. He works at a prison and was guarding a prisoner in the hospital. He got to talking to the nurse and started telling her how he was feeling the SE's of my chemo. She proceeded to tell him that since he was being physically comforting to me (holding me, kissing me, and holding my hand during chemo) he porbably absorbed some of the chemo that was coming out of my pores. This the part I love...now he is worried that HIS hair may fall out. I've been freaked out abou the whole hair falling out thing and he kept telling me that it was ok, it'll grow back, think about the big picture, all this good positive stuff but now that his may fall out it's a big deal. Guys crack me up. I told him he could borrow my wig. LOL
Speaking of hair...I don't know if anyone else has done this but I've been enjoying my last few days of my hair. When I wash it I take my time, massage my scalp, make sure I style it nice every day, no quickie hair dos. I've also been driving with all the windows open, radio blasting, singing real loud, hair whipping around. I'm going to miss my hair.
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Sounds like everyone is doing rather well..the hair thing hmmm.. sounds like everyones taking control. told my kids they could all draw on my head. their soccer coach said he would draw a soccer field and my ears could be the goals lol.
today is day 2 of my first treatment Taxol/Avastin and i feel amazingly good. i was up past 5:30am this morning from the steroids then only slept 3 hours before getting up for the day with tons more energy. No nausea. Its almost scary how good i feel. Hope i feel as good the next few days as well. Ive been afraid to talk about it that i might jinx myself! My premeds were: Benedryl,Dexadron,Tagamet,Aloxi they worked wonders!
Going for MRI of spine wednesday checking for spinal cord compression..praying its not happening
Thinking of all of you ladies out there going thru tests and treatments also..
teresa
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My first treatment went very well so far! They did give me a steroid first, and ice chips to suck on. Also ice cream! I feel fine so far but I took the reglan before I am eating anything, and I'm drinking lots! They said to rinse with baking soda or salt and water, but I do have the biotene mouth wash, and biotene toothpaste and gum! Was there for about 3 hours total. I didn't find any good wigs at the support centre, but I have one that I ordered and my sister said it looks ok, I got a few scarf / hats from them and received a couple more bandannas and cotton knit caps in the mail today. I think I'll end up wearing those hats most of the time. I also got to come home to a nice clean house! I hired Merry Maids to come in every other week and they did the first big clean today.
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Hi Stacy and Aug Hot Baldies! I'm doing well, just a little sad that we all will be hearing less from our Good Friend Rock the Bald who posts on the May board and a lot of the others. It seems some of her "friends" found her posts on these boards and asked her about them. It's one thing to share all your cancer fears, stories, etc with your fellow bc sisters but it's another thing to share with the people you work with, related to etc, so she has decided to take a break. I can't blame her, but I will miss her soooo much! She was so funny, thoughtful, & I could go on but it just makes me sad!
On a positive note, my onc visit went well on Wed. My counts were fine. My next T-C tx is on wed 8/27. Hope it goes as smoothly as tx #1! My hair is very thin. I'm shedding everywhere. My hairdresser didn't have the heart to buzz cut me, she just cut it short. I have the wigs, hats, scarves, do-rags all ready to go. I'm signed up for a Look Good Feel Better Class next month. I'm feeling "normal" and using this time to shop for wedding dresses with my DD & packing my DS up for college. We move him in Univ of MD on 8/28. Looking forward to crashing on the sofa Labor Day Weekend!
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Hi everyone,
I have been off the boards for a while, went to the beach for a few days and then just getting my mind wrapped around this whole treatment thing again since I tried to forget about it at the beach. I have my first TAC treatment this past Tuesday. It went fine. Wednesday I felt pretty normal, but yesterday and today I feel like I've been run over by a mac truck! No nausea so far (which is great because I am so prone to it) but, I can't seem to concentrate on anything, I feel like I'm in a fog already (is that normal so soon into treatment). I'm having a hard time thinking and tying this message out.
I'm glad to read that everyone seems to be handling things well and hope that we all stay as free from SE's as possible. I'm praying for us all.
Monique
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Hey bc sisiters!
Hood1980 raises an important and very sensitive point. The posts on bco.org are NOT confidential. A good friend of mine from the Feb. '07 group posted some comments re: her boss with whom she was having some issues and the boss "stumbled" onto the posts on the worldwide web!. When she told me about it, I googled a few key words and sure enough there were her posts, open, honest and candid----- FOR ALL THE WORLD TO SEE! Long story short---- my friend lost her job, Since the posts can appear at anytime now or in the future it's a good idea before you click "submit" to ask yourself if there is anyone you would NOT want to read this! There have been a few posts that one member of our group has pm'd me questioning how "appropriate" they are on a general discussion thread. Her feeling was that the "TMI" comment re: certain hair loss was more "appropriate" to the "mojo" thread and perhaps it should be taken there. Two members have pm'd me re: what they thought was an insulting and unkind comment re: 62 year olds and bc. PLEASE, PLEASE dear sisters, let us be sensitive, concerned and caring for ALL who have been stricken with this beast. One person's suffering is no greater or smaller simply because one is younger or older, male or female, stage 0 or stage 4. And I could go on.
That said, Let me say Hood that we have lost one of the greatest assets I have ever known on bco.org. Rock-the-Bald is my heroe!
Nico
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Sorry if I offended anyone with a TMI comment about certain hairloss issues. In no way was I trying to be offensive and I sincerely apologize to any and all who were offended. I am mortified and embarrassed and actually in tears right now. I was feeling comfortable and didn't realize there may be a more appropriate place or that anyone would find it offensive as it is a reality that we are all facing and I was trying to make light of the situation. I have edited my previous post and removed the avatar containing my children's pictures as I don't want to embarrass them as well. I wish you all well! I feel the need to step away for awhile as my comfort level has decreased dramatically.
Stacy
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Stacy,
I was not the one offended and no apology is necessary to me.
I am just the messenger.
Nico
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Stacy,
No offense was taken by myself either. I too find it useful to make light of our situations. Everyone copes in their own way. I am feeling fine since yesterday's treatment. Went to the races tonight with hubby, mom, brother, niece, nephew, and cousin. We had a great time. Hope all is well with everyone.
God Bless,
Kim
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Stacy,
No offense was taken by myself either. I too find it useful to make light of our situations. Everyone copes in their own way. I am feeling fine since yesterday's treatment. Went to the races tonight with hubby, mom, brother, niece, nephew, and cousin. We had a great time. Hope all is well with everyone.
God Bless,
Kim
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Stacy
Any s/e are legit and theres going to be some who relate and some who do not. I was not offended and appreciate learning more about whats in store for me. I'm sorry your feelings were hurt and a pm may have been more appropriate to address it. Dont go away..we all need each other
Praying for all of us
Teresa
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Oh Girls,
It's a shame this is not a place we can come to so we can "bare all!" Stacy, no offense taken on any of your comments-in fact, I am in the same boat as you with your one "comment!" I did not post a picture because of the privacy issue and doubt I ever will. I guess we just have to be careful.
Just woke up on day 3 of TX2-feeling pretty good-looking forward to a steroid-free day. I am getting very little sleep with them. Got my Neulasta shot yesterday so I don't drop like TX1. Saw an older lady there who just finished her last/4th TX of TC-said she had no real problems. I hope to follow in her footsteps. Had a great day at school. My DH is in awe of my ability to do what I normally do. Went to a weekly neighbor party last night. This wig is getting a real work-out! Still finding it hard to eat and drink things that appeal. I saw somewhere on the other boards about taking a Zinc supplement to take away the mouth/taste changes-might try some.
Hood-where you are? I saw that you took your child to College Park. I am not too far from there.
Everyone-have a great day and a fun weekend without any appts!! There are so many new friends joing here. Won't it be fun to go back and read all of these posts over the winter when we will be done with this?!
~Misty
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Nico,
I take taxotere and cytoxan every 3 weeks for six treatments. I hate to jinx myself, but other than some aching and tiredness from about day 4 to day 14 it has not been bad. I do get a sore feeling mouth, but no actual sores, constipation(normal for me anyay) nothing a few stool softeners can't fix. I have been working fulltime other than chemo day. I usually take a little nap after work and usually get a little help with supper. I have been trying to walk when I can as I have gained weight due to quitting smoking and the steroids. I take my decadron the night before treatment, then the next day in the am and the pm. My hair pretty much left me the day of my 2nd treatment when I went to get my wig. I am pretty much doing everything I did before this bid "C" thing came along. Thinking about going to see my college boy today, but worried about how he will feel about my hair loss. I knew it was going to be a big issue for him.
You guys do a good job posting each person individually, but my chemo brain doesn't function that well. Sorry, I usually just make general statements unless asked a spesific question, but everyone is in my thoughts and prayers.
God bless
Kim
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Hi All,
Yesterday was my 2nd A/C tx which went well. Labs were good. Nausea started creeping back this morning despite change of meds. The compazine supp is helping. Nursekim, I will ask my doc if I can take my steroid the night before my next treatment. That sounds like a very good idea. One of my nurses suggested sucking crystalized ginger which is sold in the international stores, specifically Asian. I will let you know how it works for me. Youv'e seen those little nausea bags on the airlines? I have started keeping one in my purse just in case I am out somewhere and can't get to the bathroom in time. Keeping one in my car too along with a small packet of moist baby wipes.
Dawn, hope your nausea is easing. Misty & Teresa Annette, hope all went well for you yesterday. Mamashift, Dana, & Lashon, hope you are feeling better..
Stacy, I luv that photo of you and your kids wearing the du rags...soooo cute! You wrote about offending someone. I just want to say that I am glad that we have this wonderful place where we can come together and express what we need to say. Nico, thanks for your timely, helpful insight.
Dk875, I too am enjoying my last days of 'hair'. I have been doing hot oil cap treatments to ward off dry, itchy scalp later when my hair is gone. Nico, I have heard of 2 women that lost most but not all of their hair and remarkably, one of my friends did not lose her hair at all with chemo but she had a very noticeable & uniform kink in each strand marking when she received the chemo. The kink lasted until it grew out.
Hood, thanks for letting us know about Rock the Bald. She wrote well & gave so much helpful advice. I will miss her very much. Somehow, she made hair loss seem sooooo much less traumatic. (Even our smilies are bald
)Hope everyone enjoys a wonderful weekend. So few days of summer warmth & sunshine left.
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DFOnt;
I too am from ON about an hour from Ottawa. Your treatment plan sounds much like mine except after the FECx3 and the Tx3 I will also be doing Herceptin every 3 weeks for a year due to being HER2 positive and radiation one month post chemo. I am scheduled for my bone scan, cardiac scan and MRI all the first week of September and waiting for my port insertion and really hoping to get started on chemo mid September. I also tried to sign up for the Look Good Feel Good session but haven't heard back yet.
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Hi All,
Grrrrrrrrrrrr. I just lost my entire post because I went back a page to see if I had checked on everyone! Does anyone know how to prevent this? So frustrating.
Nico
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Just about to post myself, Nico, and saw your question. What I figured out to enable the back and forth you described is to draft in "Word," then cut & paste into the reply box here.
What I wanted to share is something I learned the hard way this a.m. If you haven't cut your hair and it's coming out, do not wash it! I made the mistake of doing that this a.m., and ended up with quite a mess. I'd thought I'd pulled out everything that was loose (literally handfuls) before jumping in the shower, but evidently I hadn't or the hot water loosened a lot more of it, because when I got out, my hair was all matted and badly tangled together. What a mess! I literally had to cut large areas out. My sister called just after I'd finished combing, snipping and pulling out huge hunks, and we had a good laugh about it. But it was quite frustrating when it was going on. Deanna
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Dearest Stacy,
You are a wonderful, caring, loving person that is an inspiration to us all. You and your family have shared such a positive attitude with us all and I personally I'm so grateful. We are all here to support each other, lift each other spirits, help each other through tough times, and make each other smile and laugh. Please don't leave us! We are all here because of what we have in common, bc. We are all from different walks of life and if it was not for this disease we may never have crossed each others paths. We each have our own personality and unfortunately we do not know each other well enough to know what would offend and what would not. No one is here to offend anyone and unfortunately we cannot know what will offend until it is out there. All we can do is be respectful to each other and move on and continue to support each other during this difficult time in our lives.
I personally love your humor and was not offended at all.
denise
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Hey ladies,
Just popped on, and I must say I'm very surprised.
Stacy, You have been a huge help to me the last few weeks and I hope that you'll give us another chance. We are all here for the same reason going through some of the very same things. We should be able to say anything about what were going through. If we think some of it is funny all the better!! God bless those that can't take things said here in a light hearted manner. There is no one on this thread that has ever said anything to hurt someones feelngs. I have taken the things that I have learned here to my treatment room and helped others who have not had the opportunity to talk to others like we have.
Hope to talk to you soon, prayers for all. peaches
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JDPeaches, thanks for the welcome. I have lived in Austin for 2 years, though originally from Ohio and have moved around a bit. Are you a native Texan? Love the Texas spirit-- helps to have strong people around.
Roya, thanks for the welcome. Hope everyone in this chemo group gets through this with good spirits and results!
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Nico, Sorry you are having such pain. That must be awful. I am packing today for convention in Branson. I leave today and return Thursday. DH will come get me if I get to feeling too bad. Not looking forward to the 41/2 hour ride though. Keep me in your prayers that I can relax and enjoy convention without S/E.
Stacy, We miss you!!!! Please come back!!!!!!!!
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Hi Ladies and Thanks for being here: Got the port in on Thursday. Suppose to have the port in on Wednesday and the sedation did not work and I felt the entire painful thing and was crying on the table and the doc. tried to put the line in the vein and it popped up time after time so had a procedure from hell aborted the moment he noticed it wasn't working. Thursday went to a different hospital with an ultrasound guided procedure. Sedation worked and it was a piece of cake to have the protabella mushroom installed. When you are me everything is equated with food. Anyone get over food obsession with chemo???????? Too funny. So friday I go for my first chemo treatment x 4 then on to Taxol for l2 weeks in a row. Will shave my head in two weeks. Yesterday was scared to leave the house but it wasn't bad. Today I will try to take my normal two mile walk. You all know what I am talkin' about. So just thanks for being there!!!!!!!!!!!
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Nico - OMG your kidding! some people are in the wrong field of work!! I too have been having a lot of bone pain. I had TAC last tuesday, Nuelasta shot on Wednesday and on Thursday the pain kicked in. It makes it very hard to function. I had read on these boards that Claritin helps after the nuelasta shot so last night I finally tried it. I think it is working
. I hope you find relief soon it is miserable and I for one just felt like crying all the time. If anyone else has any other ideas please share them.In regard to the discussion about people's offensive comments on the boards. We are all here for one thing and that is to help each other out at this time in our lives and give support, hope and faith. I hope we can all put our differences aside in this forum and just focus on helping each other. Lets keep the focus on support
WE ALL NEED IT Monique
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Do most of you go out and about as normal? I'm debating whether or not to go to a movie this aft. Had my first FEC on Friday, haven't left the house since. Feel ok, just concerned about germ exposure.
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I'm on T-C and my onc told me to be super careful days 7 -14. I didn't feel much like going out my first weekend but I say if you feel up to it, go for it! I'd take my Lysol wipes & wipe down the chairarms and would try to sit away from other folks especially if they are coughing or sneezing.
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NurseKim
Have a great time in Branson! ****SO HAPPY **** to know you are feeling well enough to do that. Have been researching Taxoterre this am and will present my "case" to my onc tomorrow.
Monique
Many ladies on the boards use Claritin and say that it helps with the bone pain. For some reason it doesn't work on me so I use Zyrtec and it helps with the pain and really knocks out the headache and sinus symptoms.
Quinda
I'm afraid to step on the scale! Between the steroid weight gain, fluid retention and EATING all the time the number will probably scare me.
Hood1980
Being careful with germy places is a good idea esp. with flu season coming up. Can't imagine going through tx and getting the flu!! My onc said if my temp goes up to 100.5 to immediately go to the hospital and let them know that a chemo patient is coming so they can isolate me. IV antibiotics are our only defense when our white counts are so low.
As for going out in public, I do try to go at the least busy times to grocery shop etc. Stay away from small children days 7-14 and and wipe everything off with Clorox wipes (cart handle) etc.
Ladies, I hope it's a glorious day in your neck of the woods and that you can get out and ENJOY!
Nico
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