Jan 2008--Ain't it Great?

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  • sheshe48
    sheshe48 Member Posts: 338
    edited May 2008

    This is my dd Brandy and Me and the bottom pix is Brandy's cat Cougar. She loves my feet, she wraps her paws around my ankle and I drag her around the house. Been trying to break her, but I really dont care anymore. She is a fun little kitty. The photo with my daughter we were at my mom's house. My cake was good, it was orange cake and orange frosting.

    Kimberly and D1  Hope you both are enjoying every bit of your cations. The rest of us I guess had staycations. ha ha

  • sheshe48
    sheshe48 Member Posts: 338
    edited May 2008
  • sheshe48
    sheshe48 Member Posts: 338
    edited May 2008

    Hi Everyone,

    We decided not to put 49 candles on the cake because it would of been a towering inferno. And it took so long to light them. I can tell I have seen better days.

    Paula  Get some rest and I'm praying for you and dh and your family. I hope you can give us some better news soon about your husband.

  • golfer779
    golfer779 Member Posts: 1,378
    edited May 2008

    Hey Sherry, I hate to be the bearer of bad news, but I think your photobucket lost your pics.  Or maybe its just my computer, but your shots come up blank on my screen. 

    I do like your new avatar pic, I'm especially fond of your t-shirt!!!

    Hoping that many had a day to relax and enjoy their holiday.  Tina, you hit it on the head with your words of why we're celebrating this time.   Your dh's ribbies sound great, I've never had them smoked before, and how fun to have neighbors to share an eve with.  We're as well very fortunate to have "fun" neighbors.  It sure helps when our houses are on top of one another.

    I'll be checking back in tomorrow, I think my weekend of lots of walking is catching up with me, will be hitting the hay very early tonight, not looking forward to the 5:15 alarm in the morning.

    Pleasant dreams to all, Carol

  • PAlady
    PAlady Member Posts: 176
    edited May 2008

    Hi Jewels,

    I have been MIA. Just trying to stay up with everyday stuff. I had a wonderful visit to the south with my girlfriends last weekend. One of the ladies I did not know and she and her husband have done the 3 day walk as well as a few others. She was very interesting to talk to. I also end up being a bit sad as being with these friends makes me long to move back down to that area.

    While I was gone, I received the Deanna Farve book from D1 (thanks for the bracelet - I am glad you mentioned it, as it didn't come out with the book!). I also got a package from my sp. I got a book that looks fun "Why Do Men Have Nipples?" and some note cards and a pen. The exciting part was the return address was Indian Trail, NC. I was staying in Matthews, NC for part of my trip which is 5 - 10 minutes away!

    The boards sure have slowed down a lot. I think with nice weather coming and so many finishing up and feeling better it is hard to find the time. That is my problem. I go away for a few days and spend so much time trying to catch up as well as the holiday coming and end of school stuff for the kids. Saturday I went to Cleveland with my sister in law and ds and his gf for a Kenny Chesney and Keith Urban concert. It was great but we were gone from 12:30 pm till 2:30 am. My body ached by the time we got home. 

    Last week my ex-bil was diagnosed with a rare kind of skin cancer in his neck. I have been trying to help him get some info on it without much luck. I even went to the research area at my cancer center and spent a few hours trying to find anything on it. He is only 37 and they say it is normally found in 60 - 70 year old men. I swear every time I turn around there is someone else with some type of cancer. I also went to my bc support group meeting last week and there were 3 new women there.

    Paula - I have been keeping you and your husband (and kids) in my prayers. I hope things are looking up for your dh.

    D1- and Kimberly - I am sure you both had wonderful weekends. I hope the weather was great for both of you.

    Carol -  Do you only have one more round? You are doing so great with your training - that is impressive.

    Sherry - same deal as Carol - I can't see the pics either. Happy belated birthday!

    Jenn - I hope you get to feeling better soon.

    Tina - congrats on getting through your exchange!

    Julie - I have heard the drains are a pain. I did not have drains when I had my lumpectomy and SNB. Within a few days you could hear the fluid shloshing around in my boob! It freaked me out. I called the drs office twice trying to make sure everything was ok.

    Even though I haven't checked in, I have been thinking of you all.

  • sheshe48
    sheshe48 Member Posts: 338
    edited May 2008

    Hi Carol and Palady,

    Thanks for letting me know, its wierd because I see the pictures on my screen. That is very strange. I guess I will try it again in a couple of days. After my rads treatment I got very dizzy and still am, I'm going to ask them tomorrow is this normal?  PAlady nice to see you back on the boards, sounds like you had a great time on vacation last weekend.I'm sorry to hear about your friend, he is young, I'm to the point I just hate cancer. I'm finally going to start a going to a bc support group. They have one at my cancer center once a month. I was waiting to feel better before I join. And in June I'm going to start yoga at my cancer center too. They offer it free, you can go once a week.

    Carol  I love our t-shirts too, get some rest.

  • Determined1
    Determined1 Member Posts: 806
    edited May 2008

    I'm baaaaack!

    I had a great time with my mom and sisters.  I haven't laughed so hard in years!  I also drank like a fish and may need to go to detox to get rid of all the poison, but it was sure fun!  Highlights included some fabo food-tex-mex, bbq and Indian (yep, Indian).  A fun tour of the LBJ library where we borrowed a wheelchair for my mom because we decided that she was so sauced that she'd surely fall down if she walked the whole thing.  A swing past my old apartment (it should probably be demolished now, but it was nice when I lived there almost 30 years ago, I swear!).  And a walk thru the UT campus for me and my youngest sis who lived with me for one semester and attended UT with me (one of the highlights of the trip, IMO).  We also attended the Austin Wine Festival, where I tried to apply some of the facts I learned by reading the wine book my SP sent to me, but I think I tasted too many wines and overlooked the finer points... ;)  We played cards and drank some more and laughed (did I mention the drinking and laughing????).  We had a marvelous time.

    I also went topless for the weekend.  It was GREAT!  At dinner one night a young gal came over to our table and told me she hoped she wasn't being too personal, but had I recently done chemo?  I started chatting with her and it turned out that her 82 year old granny had finished chemo about a month ago and just had her lumpectomy the day before-and, get this, was with them for dinner!  Well, I popped right up and went over to give granny a hug.  She let me peek under her hat and I discovered that she had about 50 chin length hairs on her head.  She said she didn't want to shave them off because it was all she had left.  She was darling.  I told her how impressed I was that she was at the restaurant a day after surgery and she said she didn't think she was really all there, so not to be so impressed.  We didn't have time to do much more, but I really liked meeting her and wouldn't have had the chance if I hadn't been out in all of my balditude.  What a sisterhood we have!

    So, what have you all been doing while I was cirrhosising my liver?

    LWDana-My onc said the same thing about the ovaries.  Apparently, removing them will temporarily halt the production of estrogen in our bodies, but eventually our systems will find another way to manufacture it and we'll still need to use some type of drug to block it from feeding cancerous cells.  I'm going to bug my onc for more info on Tamoxifen as I'm not very excited about the se's, either.  I'll report here anything I learn.  Please do the same.

    Paula-So, so sorry to hear about dh's seizure.  I'm hoping as I read on, you'll have more to share about his situation.  All my thoughts are on you and your family right now...

    CHJ-Congrats on the move.  You're one tough gal to be able to do that so soon after chemo.  Hats off to you.  Good luck starting rads tomorrow.  It's really a breeze compared to what you've done so far.

    Julie-Hooray on the drain removal!  And you're coping with Motrin?  Good for you.  Hope you were able to make it in to school today for the half day, I know that always makes you feel better.

    Omigosh, Sherry!!  Happy belated birthday!!!!  I know what you mean about missing your rads team-mine was great, too.  What a good birthday present they gave you!  A real send off.  It sounds like you're moving at a quick pace on this wedding.  Wish I could've helped with the cake tasting...

    Oh, I just got to your pix, but they don't show up on my screen.  It says Photobucket moved or deleted them.  Darn it.  (Just read that Carol is having the same experience, poopy doo.)  I do like the avatar!  FUBC!!

    Yoga sounds great, I hope you do it.

    Jenn-Don't worry about getting your thoughts down.  We're all thinking about you and pulling you through.  Just try to pop in and let us know how things are going and if there's anything we can do to help you.  If you recall, we become sapphires when we're feeling a little blue, so stick with us, Jewel, we're here for you.

    Way to go, Carol, on the walking!  I know you'll fall off the pace a little come tomorrow, but I'll bet you'll bounce back a lot faster since you're getting the rest of your body conditioned.   Hey, and way to go to the ex on coming up with some wheels for the ds.  It's wonderful when they can get themselves to and from work, isn't it?

    JKiss!!!  Another "long time/no post" Jewel!  Thanks for letting us know everything's okay with you.  I can totally understand not wanting to talk bc so much.  It sounds like you're moving on.  That's a good thing.  Stop by once in a while and let us know how those 3 month checkups are going.

    Hope you got all those flowers to the cemetery before the rain set in, Tinalee.  That's such a nice thing to do.  I love driving by cemeteries when they're dressed for Memorial Day.  Fast forward:  Just read about your Memorial Day.  It sounded wonderful.  I really liked that you guys are reconnecting with your neighbors.  Not sure you'll like my sense of humor, but some funny movies I can think of:  Borat, the Wedding Crashers, Roxanne, hmmm, if I think of more, I'll send them along.

    KathyL-the school party sounded like so much fun!  I almost got tears in my eyes imagining how happy it made you to see your kids having a blissful day.  I'm happy for you.  And the thank-you party was such a nice gesture.  I honestly don't know how you do it-like SIS Kimberly would say, a SHERO for sure!  My dh and daughters were in your neck of the woods this past weekend, at Rehoboth Beach.  They said it was the best weather we'd ever had at Rehoboth.  I'm so sorry I missed it on many counts.  Next time...

    PALady-sounds like you had a good time away for your cation.  They are so good for the soul, aren't they?  Glad you got the book, it's a pretty quick read.  I think it will be normal for us to start to get back to our "lives" as we finish tx.  My guess is that our daily posts will be shorter and shorter as time goes on.  And that's a good thing.  I do believe that we have shared something that no one but us will ever understand, so it will be nice to check in with each other from time to time.  I hope we'll be able to keep that up for many cancer-free years to come.

    So, here's hoping Kris60 passed the halfway point today without a hitch.  And good thoughts to Wendy and Carol tomorrow (Carol, you know we're all still "with" ya.  And before you know it, you'll be done.  Chin up, girlfriend.).

    Glad to be home.  I'll be looking forward to my next cation!!!!

    D1

    Oh, oh, almost forgot!  I'll be lighting the candle my SP sent to me tonight.  I'm looking forward to some relax time with it and my book.  Thanks!!!!!!!

  • KathyL
    KathyL Member Posts: 534
    edited May 2008

    Hi Gems!  A good night to all.  Busy day today.  Work, ENT appointment, picked up the kids and went to the library, home for dinner (dh is working late tonight-- tomorrow is dd's preschool grad, so he has off then), made lunches, and have to check in on you girls before I bathe the kids and get them to bed.  ENT said what I thought-- my eustachian tube is still clogged from the ear infection.  Will resolve on its own, unless I want to take some 'roids to help open it faster.  I said I'd had enough drugs in my body this year, and would let time do the truck instead.  Good to know I have no permanent problem here.

    Anyhoo--- hello to D1.  Sounds like you had fun... maybe too much :)

    PALady:  Good to read your post.  Did I mention I got my SP gift before?  Loved it!  Made one of the pasta recipes already-- yum! 

    Gotta run girls.  The kids are calling.  I'll check in later this week.  Tomorrow will be busy.  Big day for dd!!

  • kris60
    kris60 Member Posts: 91
    edited May 2008

    half way point!!! FUBC. 

  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited May 2008

    Good evening, Jewels! Haven't posted for a couple days - we had a rather busy weekend. My dh spent all day Saturday buffing out and waxing our boat, getting it ready for the "season." When he went to pick it up, he stopped at a farmer's market and picked up FOUR flats of fresh strawberries!!! While he worked on the boat, I cut up ALL of the strawberries and got them ready to freeze. It took forever, but will soooo be worth it during the summer to have them already on hand.

    My dh woke me up Sunday with, "Let's go to the lake!" So, we packed up, and headed to the lake for the day. It was so nice and relaxing! It wasn't super sunny, but at least wasn't raining or storming as it did every other day of the weekend. We stayed for about three hours, just cruising the lake and got home just in time for a major storm to hit!

    Sherry - happy b-day!! Glad you had a nice day. Your pics are doing the same thing for me as the others. Hope you can get them fixed so we can see them.

    Jenny (JKiss) - so glad you stopped in! You've been missed. Glad things are going well for you - don't be a stranger!

    Tina - your weekend sounds very nice. Glad you got to enjoy some ribs! That's one thing my dh hasn't mastered yet so I always envy those who can do them well.

    Carol - I am so impressed with your training regimen!! Hope you had a great time with Ginny again! I need to start working out for mine coming up in June (just the 5K - but I've done NOTHING for so long, I know I need to gear up for it!) I plan to talk to my ps this Friday and get approval to start walking on the tm.

    Kathy - so glad you had a nice time at the kid's picnic! I just love those - my son's school doesn't do one and even cut their end of the year "fun day" when a new principal came a couple years ago. Glad the new job is going well. Sure wish that ear would clear up for you - glad it's nothing permanent!

    Paula - you and your whole family have been in my thoughts and prayers. Please let us know how things are going once you have time to post.

    PALady - good to hear from you again!! Glad you had a nice trip - it's always great to get away with girlfriends, isn't it? So sorry to hear about your bil - hope he's able to find something out soon.

    Kris -- YAY!!!! Half-way there!!!! You go girl!

    D1 - sounds like you had a FABO trip!! LOL on the "drinking like a fish" - you certainly earned that after the hell you've been through over the last several months!! Glad you had such a great time!

    I did make it to school today for the half-day Teacher Inservice - it was so nice to see everyone before summer break. I mentioned previously that some of the teachers put together a team for the Race for the Cure - when I got there today, about 40 teachers/staff had on special shirts that say "Cure" on the front with the bc ribbon and "Jules Rules" on the back!! I was so overwhelmed and touched and I'm really getting excited about the Race in June.

    My ds only has two more days of school left - he's THRILLED!!! I'm excited about this weekend - my sister is going with me to my "fill up" on Friday, then we're getting together with our two cousins for the evening  - that will probably involve eating and drinking. My sis's dh is going out of town for the weekend, so she has asked me to stay with her for the weekend so she can pamper me. We're probably going to get pedicures on Saturday, will do some shopping, and might be hitting a Cardinal game on Sunday if I'm up for it.  

    Well, Jewels - I better sign off for now! Hope all of our mia's are doing okay! {{{{{HUGS}}}}} to everyone!

    Julie

  • Determined1
    Determined1 Member Posts: 806
    edited May 2008

    FUBC, Kris.

    Way to go.

    D1

  • Determined1
    Determined1 Member Posts: 806
    edited May 2008

    So, Jules, you posted while I was composing.  The lake day sounds like the right thing after prepping 4 flats of strawberries!  I'm ready to throw my paring knife at the wall after only 2 pints!  (What a lightweight.)  I LOVE strawberries and have made kick-ass strawberry shortcake several times this Spring already (although my dh describes my cakes as doughballs.  He's the only one, though, everyone else loves it.  What's not to like about sugar and butter and a little flour????  Screw him.)

    You're sure busy--how's the energy holding up?

    KathyL--what a relief that the ear thing just needs time.  Is the hearing improving any?  Hope you survive the dh's trip okay.  You sure have a lot going on.

    Gonna go watch some bball.  I missed it when I was with my mom and sisters.  They're not into it.

    Till tomorrow.

    D1

  • golfer779
    golfer779 Member Posts: 1,378
    edited May 2008

    D1, Welcome home our fearless leader!

    Called into work this morning, decided to take an extra day, these 3 day weekends can wear a gal out, along with some yucky nights sleep.  I spent the day catching up on a few things that I didn't accomplish over the weekend.  My training walks which I do over in the Seattle area end up taking most of the day, in fact Sat I left the house at 5:45am and didn't get back home til about 3:00.  Yesterday was just about as long.  Had to stop for some Mexican food with part of our walking team and Ginny.  After 10 miles, a little chips and salsa hit the spot, oh and that Corona light was history in about 3 swallows!

    Norma, thanks for your update, it has gotten a little tougher to find the time to read and post, atleast for me, I find that my time in the recliner is not what is was a few months ago.  So appreciate your taking the time to pop in.

    sounds like a fun trip, any chance of you all being able to go back to live in that area at some point?  I had to take note on the couple you met who have done the 3day event.  I'm sure they had a tale or two to tell.  I'm all jazzed up about doing the event in Seattle, each person I've met so far from the team I'm walking on has so much to share.

    You had quite the outing for the concert, no wonder you we're achey.  I'm tired just thinking about being up til 2:00am.

    Sorry to read about your ex-bil and his newly diagnosed skin cancer.   All I can say on that one is FUC!!!

    Sherry, let me know if your still having troubles with that darn photobucket, I might be able to help ya. 

    Julie, sounds like your dh is one step ahead of us on the boat waxing.  The dh had our boat out from under its cover last weekend, fired her off, but we ended up not getting it waxed or in the water.  The new water feature the dh was working on this weekend took precedence, and my walking definitely filled a lot of my weekend.  So what lake do you go to?  Sounds like you timed it well with the weather!  Are you all into fishing, or watersports?  I'm getting more and more where I just like to cruise myself, I'm still trying to participate some with the watersports, (just so the kids know I can still do them).  This year may be a different story with one arm that might not like the pull from the ski rope.  Time will tell!

    Sitting thinking that strawberry shortcake is sounding mighty fine, hey D1, send your doughballs my way, they sound great to me.

    Hoping you get the thumbs up to start some walking exercise, I swear that it has helped me so much over the past couple months.  That's just too cool about your co-workers and honoring you for the walk.  The T-shirts would have started my tear ducts big time!  

    Kathy, I'd be with you, and pass on the "roids" as well.  Hope that your ear begins to clear up soon.  This has been a doozy of an infection. 

    Big day for your dd, just think before you know, it will be highschool grad day.  That's pretty cool that your dh will make the event as well.  Have a great day and enjoy the moment!

    D1, what a time it sounds like you had ... what a great capper after what all you've been through the past months.   So we didn't hear about Willie!!!  Assuming Mom got a hoot out of your effort.  So who was driving that wheelchair?  I can only imagine what you and your sisters and mom would be like cationing together.  Look out Texas!

    I enjoyed your story of going topless and sharing with "granny" SIS.  I bet you made her evening out.

    So did our sleeve and garmet do its job while flying?   

    Kris, looks like your now officially past the half way point with your "T" txts.  I'll shout out a big Whooo Hoooo to you, I know if Sis Kimberly we're on line that would be a must! 

    Wendy, looks like its you and I tomorrow at chemotiniville,  all the best to you for an uneventful txt. 

    Although I'm not looking forward to putting Miralax in my cranberry juice, and eating a few dinners of Cream of Wheat over the next few days, I am very ready to be 1 more txt closer to finishing up.  I'm ready to bring on my next step in treatment.

    To all my fellow Jewels, I am thinking of you all often ... Carol 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2008

    Got my surgery cert, ready to go under the knife tomorrow.  

    Best to all. 

  • golfer779
    golfer779 Member Posts: 1,378
    edited May 2008

    Hey gals,  trying to re-group this afternoon.  Went in for #11, and had blood drawn and unfortunately my counts are too low to give me my txt.  I was so surprised as I feel pretty darn good.   I have an appt for next Mon, and god I hope they have gone up.  I have a call into my rad doc, as I had everything planned perfectly (I thought) to have my simulation a couple days after my last chemo.  Looks like that will be pushed back a few.  All I know is that I have things to do and people to see come 15 August, and I'm ready to get the rest of this party started.  I'll check back in tonight, just needed to air my dirty laundry, I'm pretty disappointed.

    LJ, sounds like your ready to go gal, all the best for a smooth surgery and fast healing.  I'll be thinking of you tomorrow, it shall take my mind off of feeling sorry for myself!!!!

    Carol

  • Determined1
    Determined1 Member Posts: 806
    edited May 2008

    Hey Carol-Hope the tx is going okay for you, today.  I know this isn't necessarily the bar drink you had in mind (particularly when you have a cranberry/miralax chaser), but like you said-you're one closer to your grand finale!  Think of the partay on the JJ thread when the last Jewel finishes chemo!

    Forgot to mention Willie and his escapades!  Mom doubled over with laughter when my sis and I greeted her in the airport with him.  He ended up going everywhere with us and got a lot of attention.  I was surprised by the number of people who'd met Willie Nelson.  Turns out, when he's in Austin (which is home to him), he just mixes with the regular folk (he's probably so high all the time that he doesn't realize that he's a celebrity).  Anyway, most everyone had a Willie story to tell my mom and she loved the attention.  Unfortunately, on our last morning there, we were eating breakfast at a table with one of those large umbrellas over it and it suddenly started to rain torrentially.  We were thinking it was good we were under that umbrella, but the mist on the air blew on to our table and on to Willie.   Since he was just a photo mounted on cardboard, the mist got on his face and made it blotchy.  It looked like he has some kind of contagious disease!  My mom was really upset, but my sister told her that it was now part of the Willie saga.  (He already had a blotch on his face from a margarita spill earlier in the weekend...)  We certainly had a lot of folks laughing at Willie over the weekend, so it was worth the 3 hours (!) I put into making him.

    So today was good.  My friend who'd really taken care of me during chemo had surgery yesterday to repair her deviated septum.  I stopped and got her her favorite lunch of ½ matzo ball soup and ½ chicken soup (there's a diner here that mixes it for her, she goes so often!).  It was nice, because the manager gave me the soup for free and I just paid for my sandwich.  Then I stopped at the local Starbucks we haunt occasionally to pickup coffees for the two of us.  I hadn't been in to the Starbucks since I started chemo and it just so happened that the manager was there today.  She was so glad to see me that she gave me the coffees for free!  So lunch for the two of us cost $8 for the sandwich!!!  Oh, and I've gotten out of parking garages 11 times so far without paying because of the balditude.  Cancer does have some privileges!  (I know, that's sick, but you have to find the humor...)

    Good luck to LJ13 for tomorrow's surgery.  Let us know how it goes when you're feeling up to it.

    Okay, it's 5:30 to me and I haven't had anything to drink for two days (well, I had to take a break-I certainly drank my share over the weekend!).  I think I'll go pour me a glass of wine.  Love that glass for cocktail hour...

    D1

  • Jenn51
    Jenn51 Member Posts: 94
    edited May 2008

    Hi Jewels,

    When I read the posts I realize just how much I miss you guys.  And how many times things you say bring a smile to my face.Smile  And how many other time I realize that I am not in the worse situation and how much I have to be thankful for.

    Update:  my last tx was May 1st.  I have hair growing.  It's really coming in slow but it's there.  And it's straight, mine was super curly before bc.  And it's gray!  UGH!  I think it's going to look like Jamie Lee Curtis' hair.  If only I was that thin I could deal with it. 

    I went for my rad sim yesty.  No tatoo, just semi-perm ink.  No dots either.  2-3" long marks.  I look like a checker board.  Today was a pulmonary function test.  Still trying to find out why I am so short of breath.  The tech said everything looked OK to her.  So now what?!?

    My onc tripled my dose of Herceptin so I only have to go for that every 3 wks.  Hooray, when rads are over I won't feel like I live there.

    Thanks to each of you for your kind words & encouragement.  I'm fighting to get out of this deep, dark hole.  I guess I had to admit I was in there to start climbing out.  It's not easy.  I thought I could reclaim my life once tx was over.  But I can't do an 8-hr day yet & I can't runn errands or clean house like I used to.  This makes me mad & it makes me sad.  Things at work are frustrating too.  They are still fighting the new comp. sys. But the 2 gals there are just doing things the easiest & fastest way possible.  With no concern for the consequences.  I have OCD when it comes to work, my customers & our company image.  It's depressing to struggle to spend 6 hrs at work & only fix the stuff that's been screwed up.  I can't get back to my own work.

    Enough about me.  I'm going to read a few past days posts (I said a few) & try to give some shout outs.  But one person I am concerned about is Paula.  I've been praying for you & your family Paula.  I hope things will get better.

    Here's wishes for a great week & even better weekend for all the Jewels.  Love & hugs for all of you.

  • Jenn51
    Jenn51 Member Posts: 94
    edited May 2008

    Hi again Jewels,

    Let's see if I remember how to post.

    SheShe48, A Belated Happy Birthday to you.  I vaguely remember my 49th.  That was the year of my hyster. & seems everything has gone down hill from there.  But I wasn't a grandma then either, so there is a bright side.  (see gals, I'm trying!)

    Carol, I like your new pix.  Good to see dh there too.  That is dh isn't it?  I don't know how you are managing all that walking.  But you seem to have more energy thru this than I could ever hope for.  You have really been a bright ray of sunshine through these last few weeks for me.  I am very grateful.

    I'm sorry to hear about your blood work.  I'd be bumming too.

    PALady,  I'm sorry to hear about your ex-bil.  I'm close to some of my exs too so I know how you feel.  It's hard to imagine you can't find anything about this form of sc on the web.  But some of these things are so rare.  I think it's great of you to try to help him.  I'm sure we would all agree that the more informed we are the more armed we are to fight our battle.

    Speaking of battles, my friend with the brain tumor lost his in April.  We were supposed to win our battles together.  He had been moved to a health care facility & I had not gotten to see him since he was moved.  I feel very bad about that but after tx #5 I was worthless.

    D1, you are always so cheerful.  I love to read your posts.  I have been going topless since some hair started growing back in .  I had been tl around the house this whole time, but not in public.  I've had some supportive comments but one that takes the cake in the other direction.  I walked into the ladies room at an interstate rest stop and the cleaning woman was in there.  She looked at me & said "You sure cut your hair really short.  Why do you do that?"  I said I was going thru chemo & hadn't cut it, it just fell out.  She just kind of grunted & walked off.  I had to laugh what else could I do.  I had been hot in the car and had taken my hat off.  Didn't think about putting it back on just to pee.

    I must have missed your plans with your mom & Willie, but I get the drift.  That must have been so much fun.  How nice you get a chance to repay your friend's kindness and to do so at a bargain....what more could you ask for.  Can't say that I've gotten any bargains or freebies by showing my bald head.  I bet it's more your bubbly personality that gets it for you.

    Kris, Congrats on reaching the half-way point.  You go girl!

    JulieK,  Wow, strawberries & a trip to the lake.  Sounds like heaven to me.  And your timing was perfect.  Your weekend sounds like so much fun too.  Be sure to take some open toed shoes so you can flash those toes when you go out to eat.  Sounds like you work with a great bunch of people.  How great they are supporting you in this way.

    D1, now you are talking strawberries.   I can't stand it.  I'm going to have to get some at the store this weekend.  I like Bisquick's recipe for shortcake.  I like to roll it out & use a huge drinking cup as a cutter to get perfectly round, individual servings.  Now I'm making myself hungry.

    I better go.  DH is grilling pork chops but I have to do the inside stuff.  Talking to you guys does make me feel better.  Thanks for being there.

  • wvgirl
    wvgirl Member Posts: 196
    edited May 2008

    Hey Jewles !

    Miss you all.

    d1-I love to read your stories. They are so uplifting. I ran into a bc (10 yr) survior last weekend. She told me when she had her lump surgery that evening she went to the local parade.

    Paula- I am sorry to here about your dh. Keeping you both in prayers.

  • wvgirl
    wvgirl Member Posts: 196
    edited May 2008

    Hey Jewles !

    Miss you all.

    d1-I love to read your stories. They are so uplifting. I ran into a bc (10 yr) survior last weekend. She told me when she had her lump surgery that evening she went to the local parade.

    Paula- I am sorry to here about your dh. Keeping you both in prayers.

  • wvgirl
    wvgirl Member Posts: 196
    edited May 2008

    Hey Jewles !

    Miss you all.

    d1-I love to read your stories. They are so uplifting. I ran into a bc (10 yr) survior last weekend. She told me when she had her lump surgery that evening she went to the local parade.

    Paula- I am sorry to here about your dh. Keeping you both in prayers.

  • wvgirl
    wvgirl Member Posts: 196
    edited May 2008

    Hey Jewles !

    Miss you all.

    d1-I love to read your stories. They are so uplifting. I ran into a bc (10 yr) survior last weekend. She told me when she had her lump surgery that evening she went to the local parade.

    Paula- I am sorry to here about your dh. Keeping you both in prayers.

  • wvgirl
    wvgirl Member Posts: 196
    edited May 2008

    Hey Jewles !

    Miss you all.

    d1-I love to read your stories. They are so uplifting. I ran into a bc (10 yr) survior last weekend. She told me when she had her lump surgery that evening she went to the local parade.

    Paula- I am sorry to here about your dh. Keeping you both in prayers.

    I hope everyone is doing well. I take each day one by one. At least the medication has helped with the crying spells.

    It's sometimes I feel all alone. I know you all are here and my friend and family are there also. It's loneliness I feel I want someone to hold me and get a hug once in awhile. Maybe I need a T-Shirt that says. My husband is a DH-lonely lady needing hugs> LOL

    Take care and sorry about the posting I hit the enter button more than needed

  • Determined1
    Determined1 Member Posts: 806
    edited May 2008

    Oh Carol, just read your post.  I'm SO disappointed for you.  I know you'll take this in stride with your sunny disposition, but it really sucks. 

    I'll be doing a "count cheer" for you all weekend.  Chin up, my friend.

    D1

  • Determined1
    Determined1 Member Posts: 806
    edited May 2008

    Jenn--So good to hear more from you so soon.  I'm glad you're a grandma, too, it clearly makes you happy.  :)  Now, go get yourself some strawberries before they're out of season and make that shortcake!!!!

    D1

  • Determined1
    Determined1 Member Posts: 806
    edited May 2008

    Hey, wvgirl, I think your computer has the hiccups!

  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited May 2008

    Hi girls! Hope everyone is having a decent day. I spent a couple hours outside in the sun, reading a book - it was heaven! I still don't have a whole lot of energy, so I'm trying to take it easy. It's hard, b/c there's tons I wish I could be doing.  Oh well - it'll still be there when I'm allowed to do more and actually feel like it.

    D1 - I don't make my own shortcake - we buy the little sponges or angel food cake for ours. My mil makes some that are pretty good. If I haven't mentioned before, I'm not real great in the kitchen! Wink Your Willie escapades sound hilarious! I'm sure your mom enjoyed it.

    Carol - so sorry your counts were too low today. Hopefully they'll be back up by your next appt. As for boating, we usually go to Rend Lake in Illinois, which is only about 20 minutes from our house. We're into the cruising, anchoring, and watersports. I started skiing when I was 6 and love it! My son finally got up on skis last summer, but he's more into the tubing and flying off.

    LJ - I'll be thinking of you tomorrow - hope all goes smoothly with your surgery. Check in when you feel like it.

    Hi Jenn - so great to hear from you again!!! I'm the same way with not having the energy to do the things I want to do. My last tx was April 17 and, of course, my surgery almost two weeks ago put me even further behind. It's frustrating, but you need to remember to listen to your body and take it easy until you have the energy to do what you feel like doing. All those chores can wait!! Hope things get better at work with the computer system - that can be very frustrating!

    WVGirl - hang in there - we're here for you. Reach out to your friends and family when you feel you need a hug. In the meantime - here's a {{{{{{{{BIG HUG}}}}}}}}}} for you!!!

    Well, girls, better find something to eat. The dh is picking up the ds from TKD tonight so they'll most likely drive-thru somewhere on their way home - so I'm on my own.

    Take care, Jewels!!

    Julie

  • joteach
    joteach Member Posts: 116
    edited May 2008

    Good evening Jewels,

    Its so good reading everyone's posts.

    D1 - It sounds like you had a great time on your vacation. I loved the story about the granny. I'm sure you lifted her spirits.

    Carol - so sorry about the blood counts. Saying prayers that they'll be fine next time.

    Paula - SO sorry to hear about your dh. Will be praying for your whole family. How are your rads going?  I am finished 16 out of 33 tx. So far, so good - no redness or soreness yet.

    Jenn - Good to hear your in better spirits. I certainly know about being a blue jewel myself.

    Sherry - Happy belated birtday!

    Joan

  • LilWarrior
    LilWarrior Member Posts: 268
    edited May 2008

    Just wanted to share this with you ladies.  God bless you!!!!

    Do you ever feel like every time you try to move forward in something, you hit a roadblock? Something happens that throws you off course. Be encouraged today because right now in your life, God is going before you. He’s preparing a way. He’s making your crooked places straight. He’s making your rough places smooth. You may be going through a difficult time right now, but it’s not the end. It’s only the beginning. God has equipped you for this journey. You may feel like you’re in a dry season, but don’t look at your circumstances. Look at the promise of God today! If you’ll keep speaking words of faith, God promises that He’ll anoint your head with oil and your cup will run over. That means you’ll be refreshed and anointed to do what He’s called you to do. God is preparing your path and equipping you for the journey. What do you need today to keep moving forward? Start by checking your attitude. Don’t go around complaining and focused on the negative side of things. Put on an attitude of praise and thanksgiving. Thank Him for making your crooked places straight! As you do, you’ll move forward in joy and gladness in the blessed future He has prepared for you!

    A Prayer for Today

    Lord in heaven, thank You for Your goodness in my life. Thank You for preparing the path for my life and making my crooked places straight. Thank You for restoring my soul and life and for guiding me in everything I do. I submit every area of my life to You today. In Jesus’ Name. Amen.

  • RN2teach
    RN2teach Member Posts: 312
    edited May 2008

    Evening, Jewels!

    Hope everyone is doing well today. I logged on last night and caught up with all the posts. Had a nice post of my own prepared but when I pushed "send" it went bye-bye forever... Unfortunately I didn't use Word-not making the same mistake tonite!

    Carol- What a nice surprise--B&J treats! Yuuuuummmmm!!! Thank you, thank you, thank you!  

    Darn! I just read about your blood counts being too low for your treatment today. I know you're disappointed-I'm disappointed for you! I'm sending out wishes for excellent counts come Monday so you can get back on the chemo train for the next round.

    D1- loved reading about your vacation with your family. Man! I wanted to be there with you-what fun!

    CHJ- the new house sounds grand. Hope things are going well with the move.

    Sherry- happy belated Birthday! Sounds like you had a nice one. Love your avatar, but I can't see your pictures either. I'm looking forward to seeing them!

    Jenn51- I'VE MISSED YOU! I'm so sorry that you're feeling blue, my friend. I wish there were something I could do to help... I will be praying for you!

    Jenny (jkiss)- glad you checked in. I know you're busy with your little one. Best wishes to you and your family!

    Kris and Wendy- hope your treatments went well this week. One more down!

    Tinalee- your Memorial Day get together sounds like just the thing to kick off your summer. And thanks for the lovely reminder of the purpose of this holiday.

    PALady- I'm glad you had a nice visit with your girlfriends. I so want to do that sometime soon!

    Sorry to read about your ex-bil's cancer. Keep us posted on his situation.

    Julie- another Jewel who had a great weekend! Glad you were able to get your boat in the water and take a cruise on the lake!

    One of our neighbors brought me a huge bucket of fresh strawberries from his farm, so we're enjoying some strawberry desserts. My mom makes a terrific strawberry freezer jam so I gave her some of the berries for that.

    LJ- best wishes for a successful surgery and a speedy recovery tomorrow!

    WVGirl- good to see your posts. Aren't you having your last treatment this Friday? AC # 4, isn't it? You're almost finished!!

    Joan- my rads twin! I just had # 16. Notice a little bit of pink after each treatment, but it subsides by morning. No soreness or tenderness yet. I do have some swelling under my arm and my bra feels uncomfortable after my treatment... can't find one that I can wear comfortably, so I've taken to wearing those tees with the shelf bras-works out okay for me since I wear scrub tops all the time... those things hide a multitude of sins, know what I mean?!

    Looks like my rads schedule will be delayed some for dh's treatments. We saw the rads oncologist yesterday and he referred him to Duke for stereotactic radiosurgery (like the gamma knife). We will see the medical and radiation oncologists next Monday morning. There's no time to waste as his type of tumor doubles its size in as little as 2 weeks. He has 3 areas of concern, but the radiosurgery will only deal with one area and we will be discussing chemo for the remaining areas (which are too big and ill-defined consider rads). On the positive side, these two areas have always "lit up" on his previous MRIs... they're a little brighter now, but they've always been there-might be scar tissue or swelling instead of cancer...

    Time to hit the sack. Take care all, Paula

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