Bottle 'o Tamoxifen

sunangel27

Sherry!! PROMISE!! NO Margaritta's or martini's for Tink........don't want no broken wings........or us getting FUI..........(Flying under the influence) tickets......no jail time for us!! We have enough to deal with!! hehee

Hugs!

CatbirdC

when my onc said I didn't have to have chemo but he would prescribe Tamoxifen for 5 years.....

then that statement was misleading......  you think?

Bonnie

CatbirdC 

tinkertude

Now wait a minute.. I really really was looking forward to the Margaritas!!!!.. hmmm maybe when we get back from our pocket trip???... with you all the way Paula hugs!

  hahaha could you imagine all of us in one cell!.what a party that would be

tinkertude

Bonnie.. yes I agree my ONC was not one to offer up that Tamoxifen is in the "chemo class" either. Would be nnice to know so when we start with the se we are not so thrown off gaurd..hope your having a good day!

Sherryc

Bonnie my MO did not tell me either, like I said before it was my mail order pharmacy that sent me the information.  I guess the onco's don't tell us because it is not an infused chemo. IDK

dualgate

Sherryc, Hi I have almost the exact profile as you, I was just wondering how you are doing in the past two years? Im begining to have a little anxiety. I had a lumpectomy in nov 2009. rads followed jan 2010 and I am having some issues. Not severe, Im probably being a hypocondreact but just curious how someone with similar diag is doing. I also had no chemo. Jamie

My oncotype score was 13

Paula66

Happy Birthday Shari!!

Oh and yes we do need to keep Tink away from the drinks, lol.  But trust me on me on this one, it sure would be one heck of a cell party for sure!

geewhiz

Hi guys, havent posted on this thread before but was looking for some advice. I hit chemopause 2 years ago and have been on tamox for 18 months...ish. I used to not have much more than occasional hotflash but holy smokes!! Over the past month or so I wake myself up several times a night thinking my bed has a heater implanted in the mattress. I am drenched, and this goes on during the day too! My onc says in March she wants to switch to an AI. I suppose that has a host of issues too? Any thoughts as to why I am just now years later coming into these flashes? I am 45 years young.
/p>

sunangel27

Well, it didn't go as good as I had planned it would!     Part of it I already knew..but was hoping not!  Guess I was wanting to be in a bit of denial about them. But, onc did feel under my arm today and did feel the lumps. Set me up with breast specialist. I go the 21st of this month.

The arm.....I have to go to the fibroadema clinic, They are going to call me with my appt. Onc is going to do my blood work again Jan, 10th and see me on the 15th.  And he is having my path report on the lung nodes sent to another pathologist for a second opinion.  And it goes on and on and on.........I thought I was gonna be able to breath for awhile, but guess not.

Oh well, I WILL FIGHT!!!!!!!

Sandeeonherown

Sunangel..in your pocket my dear!

Going to a funeral Weds morning...the mom of a fellow staff member...her mom was diagnosed with stage 4 breast cancer and mets in July....so fast....I am sure I will bawl like a baby but really feel the need to be there to support Sam. Send up some positive thoughts ladies:)

Linda-n3

Oh, Paula, how frustrating!  Way too many appointments.... We are still hoping for everything to be B9!!! Yes, you will fight, but for now, take some R&R so you are rested and ready for the next battle.  You know we are with you and all in this together.  Special hugs tonight.

odie16

Paula M - Hang in there & KICK BUTT!!! Sending hugs your way...

Sandeeonherown - I am so sorry about your co-workers' mom. It breaks my heart to to hear of anyone losing their mom and to something like this just sucks....Sending heartfelt sympathy & hugs as well.

peg119

Paula - that really stinks.  It is so hard to keep having appt. after appt. with no real answers.  Sometimes the answers make it easier to fight.  Hang in there and we are all hoping for the best for you.

Sandee - sorry to hear about your co-workers mom.  This disease really sucks.  It is so hard how many women it has taken from us all.  I am so fortuanate that my mom and my sister both are survivors and have been for a long time.  Keeping you in my thoughts on the tough day coming up. 

Sherryc

SAndee so sorry about your coworkers mom. 

Paula  (((((((((((((((((((HUGS)))))))))))))))))))) I am praying very hard that everything will be OK for you girl.

Duelgate I sent you a PM

Geeweez welcome to the thread.  I cannot figure out what goes on with the meds we take.  I have hotflashes that come and go and they also range from hardley anything to OMG my body is hot.

jo1955

Paula - This really sucks - sending prayers and good thoughts.  Will definitely be in your pocket.  Please keep us posted.

schipmom

Paula: That really does stink.  I know how frustrating it is.  I'm sorry you are going through this, but hang in there and we will all be there with you.

Paula66

((((Hugs))))) Paula. Praying for you. Jumping in those pockets for ya!

Panmars

((((((Paula)))))))) Hang in there, girl. We're with you all the way!

kennylynne

Sandy I have only been on the tammy train for a week so I can't really help you out. I too still feel like crap from the chemo still I will be 4 weeks pfc on Thursday. Good luck I see you are in London that is where I am doing my rads starting today uggghhhhh

Paula66

geewhiz I have almost the same problem as you.  I went into chemo pause and stayed there with the Tamo.  The hf were a nighmare.  They started to let up then bam a few weeks ago they came back with a vengenance.  I go to see the Onc on the 30th and see what can be done.  I hope that she has some answers.   

sunangel27

I'm off the tammy for two weeks. Dr. wants to see if that is why I am sick to my stomach and vomiting so much lately. 

Hot flashes? OH MY!!!! There are days when I need to carry a TOWEL with me!! I sweat so bad off and on all day, then others, it is only a few times a day..

Thank you all for being in my pockets... and I will for SURE be in all of yours!!!

Sandee so sorry to hear about your co-workers mom...condolences to the family!!

Hang in there everyone.....we might have to throw a few parties later!!

A friend of mine was dxed with breast cancer 10 yrs ago A few months ago she learned she had lung cancer, now it has spread to her brain....stage 4. She txted me last night and said the dr. told her the chemo possibly is working! The tumor has not grown any at all for now! Thank God!

Sherryc

Paula so sorry about your friend.  Is the cancer in her lung and brain BC mets or did she end up with Lung Cancer as well.  Either way I hope the chemo works for her.

CatbirdC

Tinkertude ~~ Sherry,

 Although it won't be until June that I see Dr. Onc  I certainly plan to ask him about the Big T  being a form of chemo. 

When I had the lumpectomy I was to get radiation.  When they found more ca and decided to do the mastectomy .... Dr. Onc  said something to the words....At least you won't have to go through the radiation or chemo.....just Tamoxifen.

 JUST.

Bonnie Catbird 

Allenan

Hello Everyone,

May I join in on this group?

Just finished radiation and eager to get on with my life but achy bones in feet, knees and hip keep reminding me to slow down.  Could this achiness be the result of the Tamoxifen.  I was taking it at the same time I was going through 5 wks of radiation.  The achiness is worse after long sitting (which I do at work).

So far, no other SE from the Tamoxifen.  Oh, the hot flashes are still coming strong.  These started half way through chemo.  I am now in chemopause, getting and growing little chemo curls on my head.

Anne

tinkertude

Anne.. welcome aboard! You have joined an incredible group of ladies. We are here for whatever you need, support, answers when we can and even laughs!!!  I get very stiff in the knees after sitting for awhile too. I think it is The Tamoxifen.

Sandee. so sorry!

Paula.. with you all the way girl!!!! hugs!

Snoopy73

Hello ladies! May I join as well? I finished my radiation on 11/14 and started Tamoxifen on 12/1:-) the only side effect that i still have so far is the hot flashes uuurrgghhhh they drive me bananas:-(

stheresa987

Going to start Tamofixen after Christmas.  Just finished last round of chemo. Worried about side affects as I am still having some from the chemo.  No hot flashes...just bone and back pains.  Need to keep a positive attitude and keep reading your posts!!

tinkertude

Welcome Snoopy and sttheresa!. sorry we are all meeting like this, but you have come to the right place

Maria

Snoopy73

sttherea - sorry about the chemo SEs:-( i finished chemo on 9/8 and i had the aches & bone pain for almost 4 weeks after!! then they just stopped:-) so hang in there. The other SE that i forgot to mention is sleep!! I cant seem to get any sleep, i have to take sleeping pills almost every night, otherwise i will sleep for 2 hours then wake up then stay up for a while then fall asleep again for a few hours uurrgghhh..

sandy115

Starting Rads on Monday been on Tomoxifin 11 days now does not seem to bad still having muscle pain due to 5 weeks post chemo.