Bottle 'o Tamoxifen

mpeaches

Sandee - I'm happy to join in any pocket parties, I'll bring the brownies!

Chocolate purrs,

Jenn

Paula66

Sandee Im jumping in too!  Look out girls here I come!!!  Yummy brownies!  Good luck girl, you will do great.

MamaV

I hope I'm not too late for the pocket party!  I could use a few hugs while I'm in there too ...

jo1955

MamaV - Here is a big hug for you my friend.

 

tinkertude

sandee...wings on ready to go with you!!!! hoping in hugs!

Paula66

Hugs for you *Mama V*!!!!!

Ok does anyone have this problem?  I have been on the Tammo for 6 months.  The hot flashes have been a nightmare and they finally calmed down.  So I thought.  This week they have been a nightmare.  I'm having as many as 30 of them a day.  Could my diet be the problem?  I am back to the nightsweats as well.  I'm back to the Ambien so I can go right back to sleep without any problems when they wake me up.  If anyone has any problems like this, please let me know how you got them to ease up!

June2268

Paula honey so sorry I cannot help you.  I have only had one hot flash while on Tamox, so I am no good......I worry cause I have some SE's but not like the obvious one most of you have.....Hope someone can chime in and help you my friend.....hugs!

LuvLulu07

Hello All -

Newbie to this thread.  I've searched for when Tamoxifen is usually started post-surgery, but can't seem to find anything.

I'm one month post BMX w/recon - still sorting through path reports (ugghh!) - no need for rads, chemo is still undecided.  When is Tamoxifen started?   Does it coincide with chemo?  

Thanks all ~

Joy 

Kay_G

If you're going to do chemo, you won't start Tamoxifen until chemo is done.  At least that is what they did with me.

Paula66

Joy welcome, from what I have read, Tammo is started after chemo.  Thats the same thing they did for me as well.  I did 8 rounds of chemo then waited 2 weeks and started the Tammo.  I hope all goes well and you dont need chemo and can go straight to the chemo.

sgreenarch

Hi, while we're jumping in pockets, I'll join you, Paula and mamaV, but when you're done, need to ask you to swing by here. Have my mammogram on Sunday (workday here) and am having that punched in the stomach feeling. Anxiety. No reason to think that anything is wrong but just walking into that room again feels like going back to a crime scene. Smart hubby says I could see it as the room where my life was saved. That's such a great way to look at it...but, what can I say, I am still part nut job when it comes to this. Trying to breathe, stay positive...for all of us!



Thanks, Shari

odie16

Paula - So sorry about the hot flashes & night sweats returning. I so far have very infrequent hot flashes but you could set a clock by me for the night sweats...lol

MamaV  --- BIG HUGS!!!!

Joy - Welcome! Sorry you have to join us but am glad you did. These ladies are awesome!

Shari- WIll gladly jump in your pocket for the mammy trip. Love the way hubby choses to look at it but understand the anxiety. Hang in there!    

Happy Thursday to all my Tammi girls!

Sherryc

looks like we will be pocket jumping the next few days! Good Luck everyone

jo1955

Shari - I will be there on Sunday - was an unusal day - we do not have doctor appts here on that day. We can bring some food and have a good time.  Your hubby has such a cool way of looking at it - but still understand the anxiety.  Hang in there!

LuvLulu07

Thanks all for Tamoxifen info.  

It's yet another wait and see - I'm just ready to get on with whatever is recommended.  So hard waiting for yet more path results.  

Sandeeonherown

Well, had my appointment with my breast surgeon...I realllllly like her..straight from the hip, no BS kind of gal..we hit it right off last summer...she asked what was new since she had seen me and I said 'radiation went well, started tamoxifen, had a heart attack, went off tamoxifen and started arimidex..." and then I felt tears gushing..good lord...she ook one look at me and said ' Go off it...you are 49...we got it....you have .25% each year of getting breast cancer again on the arimidex and .50% off of it...live your life..if it comes back again, a. there is no guarantee that it will be ER+ in the first place and b...we will deal with it then...we will book another mammogram in 6 months....this is not you"...it felt sooooo damn good to hear someone just say don't take it....be healthy..get back to the gym every night., eat well.....I have had zero energy for anything except sleep and I still wake up exhausted....I worry constantly about arimidex and now the naproxen causing heart stuff...would rather live my life....whatever that is right now..all I know is that on arimidex, i don't feel like I have one...so...for now at least...I am done with it.

and on a sad note, a friend's mom who was diagnosed this summer with BC and mets to the lungs died a few hours ago....so sad.

Sandeeonherown

Jo, Tink, June, Shari, Odie16, Jenn, Paula, Mamav....thank you sosoooooo much for your company today. I felt you int  he rain and the wind...I wore a bright yellow rain slicker and pants (belonged to my next door neighbour..he is a man and about 6'tall so...I was swimming in them)..but there was lots of room for all of you....and you brought me comfort while I mopped up after my little tear burst with the breast surgeon1

Mamav, Shari...jumping in yours when you need me

Welcome to the group Joy!!

NotAgain2015

Sandee - your doctor sounds amazing.  Wish i could sign up.  Sorry to hear about your friend's Mom.  Shari, count me in your pocket on Sunday.  MamaV - big ((((hug)))) to you.  Welcome Joy - sorry you had to join us but glad you found us.  Keep us posted on your path report.  Paula, I had hot flashes right off the bat, then they died down, then they returned.  I haven't had 30 a day though - hang in there!  It is amazing how much you can sweat.  I remember one time the tops of my forearms were sweating.  What the??  Been on T for 6 months now.

mpeaches

Shari - I'm always up for a pocket party - and I always bring brownies.  (I make the best brownies ever - VERY chocolatey but not very sweet).

Sandee - what a WONDERFUL Dr. appt!  I'm so glad for you!

Purrs all,

Jenn

Paula66

Sandee Im so glad it went well for you.  Im so sorry to read of your friends mom passing.  This dang cancer needs to be put to rest.  Enough is enough.

Shari we will be there with bells on.  Tink get those wings ready for a long flight.  Shari you will have to tell us what time to fly.  Im so I cant for the life of me remember the time difference and wanna make for sure we are there for ya.

Caroline Im now sweating in places that I never sweated before.  

Jenn the brownies sound so good right now.  I will put my order in now.  Just a dusting of powdered sugar on mine please.  

Had a great time tonight.  Went to the bunco Christmas party tonite.  I havent seen alot of the gals since I went thru chemo so it was nice to see them.  Its a group that I sub for and not my regular group that meets every month.  Did a nice ornament exchange and I can just hear the hubby now.  More decorations, you just got rid of a bunch of it, lol!  I'm working on getting Christmas down to 3 totes and Im doing really good.  Just sent a bunch of stuff up to the auction barn.  

Have a great night all!  Love to you my "sistas"

Sandeeonherown

Thank you ladies...Carlinenc, Mpeaches, paula66.....arimidex hasn't been sitting well wih me ..went from my old self in august to terrified cancer sandee once i went on this med..too afraid it too will cause a heart attack or some other major problem.....the heart was enough...can't do it right now...I will keep watching my estradial levels etc...we are also going to check my B12 to see if it is low or my thyroids acting up...my Gp and I are kind of gobsmacked about the level of fatigue i am experiencing.

jo1955

Sandee - You doctor sounds amazing and hope that you will feel better going off the Arimidex.  My deepest condolences at the passing of your friends mom - that has to be tough.  

sunangel27

Great news!!! I came on here earlier on my phone......to post this, and for some reason i couldn't get it to work........     

Anyway........all nodes in my lungs were B9!!!!!     There was one he said had hydraplasia in it.....but it is OUT!   Thank you each and every one of you for being in my pocket, and the prayers and good thoughts!! I know that each and every one of you were a big part of these results")

I haven't had the chance to read the last two days, so I pray each and every one of you are doing ok tonight. I will try to go back and read some tomorrow afternoonl.

Love and hugs!!
Paula M

sgreenarch

Hi,

Paula M, I got teary when I read your good news. Fantastic! You've been so in my thoughts. Thanks for posting great news so quickly! We have an expression here in Hebrew that translates to 'Now may you go from strength to strength.' Wishing you only good things. What a great present for the holidays.



To the 'other' Paula - I'm sorry about your hot flashes. Since my ooph exactly a month ago, I have had only one real hot flash. I'm a bit surprised by this as I had them fiercely before on just tamoxifen and then even worse when I started the Lupron shots. They actually made me feel weak as they would wash over me. I expected them to be even worse after the ooph, and I know it is still early and they can return with a vengeance, but for now I'm enjoying the hiatus. But Paula, I want to suggest that you pay attention to how diet affects them. I am sure there is something to this. I noticed that if I ate very healthy, with almost no white carbs or sugar, I had fewer hot flashes. On days when I ate lots of veggies, whole grains and drank lots of water, I had fewer. I know everyone is different and you have to weigh pain of no sugar vs. pleasure of no hot flashes:), but might be worth a try to figure out if you have any diet triggers? Maybe the women on the healthy alternative thread have some insights, too.



Sandee, so interesting about what your doc said. Sounds like you have a great doc who really listens to you. There are plenty of early stage women who are not doing hormonal treatmt for one reason or another and are doing fine. In my case, with lobular, strongly ER positive, it was strongly recommended, but had I had trouble tolerating it like you did, I think I would have done the same, trying to do everything I could with supplementary things that were in my control, such as diet, exercise and stress reduction. I am sure you can do this and it'll probably have the added benefit of getting rid of some of that fatigue. Hope your job gets less stressful, but you sound like you have a good attitude and handle on that. Sandee, are you in Nova Scotia? We honeymooned there and I remember it being such a beautiful place. We stayed in Inginish! Loved that name.



Welcome to the new Ladies. I haven't been here that long myself, but I already feel enveloped by a terrific group of supportive women. You can really say anything here.



Thanks for coming along with me on Sunday. Time diff is seven hours (we are ahead, here) so by the time most of you wake up I hope to be able to give you the all clear re my mammogram and move onto birthday celebrating! (What kind of a Loser has a mammogram on their birthday!?!!? How the schedule worked out...) anyway, as you can see, I'm trying to think positive! That and a truckload of Xanax....



Good weekend, everyone,

Shari

BlueCowgirl

Best wishes, Shari. With the hours I keep lately, I may still be awake if you don't mind a Tamox newbie in your pocket.

Today I took my first Tamoxifen. Bottle had been sitting on my nightstand for weeks. I came up with every excuse I could not to take it...Then this morning woke up and thought, today's the day.

Y'all seem like such a supportive group as well as a great source for information (and commiseration). Thanks for being here. 

schipmom

Paula:  That is such great news!!!  I'm so happy things turned out good for you....yeah!!!!!

Paula66

Paula Thats so great!!!!  I am so happy for you!  Now its time to Party Hardy!!!!!  Time for a good ole time Tammi Style this weekend!!! 

Paula66

Oh BTW Shari thanks for the info.  I am starting to suspect diet has something to do with it.  I know Im not the healthest eater.  In fact Im down right terrible at it.  I still have days where I live off sugar and popcorn, I know thats not a good thing.  When I went thru chemo I was a very good girl and ate health.  It was the only thing my tummy could handle at the time.  I will for sure check out the diet route.  This is getting crazy.

Panmars

PaulaM, Yay! Great news! So relieved to hear that everything is B9.

Got up to 5 below zero temperature here. Yikes. Think I'll stay in today. 

Hugs to everyone, and hoping for good results for everyone waiting on test results!

Sandi 

MamaV

Great News PAULA! 

Thanks again for all the hugs ... what a great group of women we have here! 

You will all continue to be in my thoughts and prayers for help dealing with anxiety, new fears, new challenges and more!