Roll Call November 2007

Lcharmie

Hi Sharon,

I am sorry to hear about your itching and swelling and hope it leaves real soon.

I have had horrible itching after I get out the shower--I have changed soap 3 times and it does not matter, it has been so bad I have had to take Benadryl--it is more so on my shoulders and forearms--drives me crazy--feels like if it isn't one thing, it is something!!  You got it Felicia "the gift that keeps on giving" WHEEE!!

Sharon--so far I guess I am staying home this summer--probably go no further than Kansas City it is about 60 miles East of us--always lot to do there, and we like to go eat and go to the Casinos and shop.  The gas prices do make you think twice though.

Wishing everyone a fun and safe summer!!!  Rest as needed!!!

Linda C 

Yogi70

Hey Ladies!!!

Sorry about the itching Sharon I know it's driving you crazy.  Have you heard any news about herceptin yet?

Hey Felicia, how's it going?  What's up Linda?

I wish I could go on a vacation this summer.  My mother, aunt, sister and a couple of others are going to Hawaii.  I had planned on going but it interfere with radiation treatment and I want to get this mess out of the way.  Plus, I probably couldn't enjoy the beach much with the no hair deal and all.  But I'm not too down about it.  God willing I'll get there one day.

Lcharmie

Hello Ladies,

Happy Fathers' Day to all the single Moms out there!!!

I was raised by a single Mom(she raised 7 of us by herself, Jesus and her, passed away at the age of 87(there were 10 of us--one deceased and the others were grown) and my daughters are single Moms and it is a double- duty job.  And to have to carry this "Challenge "of illness--Stand tall---Ya are Special!!

Take care, and be Blessed!!!

Linda C

trumpet84

Hi Ladies!  Sorry I've been out of the net for a while.  I got a new computer and was moving real slow about getting things set up.  I still have lots to do, but I am on-line now.  I started my 3d week of Rads....yippee!  Hope all is well with everyone!  God Bless!!

Lcharmie

Hi trumpet,

Glad to hear from you and very glad to know that Rads are going well---Get your needed rest--that is what I felt moreso than anything ,was tired!!!  Hope your time flies by!!!

Take care.

Linda C

Lee27

Happy Belated to you Sharon. I too am a May baby (27th). And, I celebrated my birthday with a wonderful NED report for my lst 3-month mamo. Hope you enjoyed your day too.

Time will fly for you now in your treatments. My fingernails finally grew out the darkness...toes still have a way to go. I just pop some polish on and call it a day girl. I have just about 2inches on top of the head.  Looking forward to another inch to pop in.  

Take care everyone. Nice to know that this thread is here. 

trumpet84

Linda C - Yes! I am pretty wiped out today.  I have to drive 45 minutes to 1 1/2 hours to get to rads and back.  Traffic is a killer!!  So, rads + traffic = God reminding me I am still here and able to continue the journey! 

Lcharmie

trumpet,

I like your attitude!!!  Hang in there lady!!!

Linda C

Lcharmie

Hi Lee27,

My hair is growing back too--from the Taxotere last year, then I had an episode in Oct. with my WBC was 1.2, I had just started Tykerb and Navalbine and whatever happened, my hair came out again,  the little that had grown back, and the wig had to go back on, they said it was from the Navelbine, but I had been on it before and my hair was thin, but it did not come out--who knows--I am on Navelbine Chemo and the Tykerb still, it is the Navelbine that has  my hair in soft curls, (this is not my grade of hair) it is the good thing about the med, and I am having fun with the looks I get and folks wondering "what I am" looks rather like Mexican hair--I love it.

Belated Happy Birthday to you--I have a son , he was 31 on May 23rd, he is my Baby

Take care.

Linda C

sharont68

Hi all, just came back from my cardiology appt. Bad news! Looks like I won't be starting Herceptin like I thought. My cardiologist said that he doesn't think my heart could take Herceptin and that my onc and I may have to look at other alternatives. I am so heart broken right now........I just want to cry but nothing comes out. How can I choose between a treatment that has shown so much success with  Her2+ and making sure this disease doesn't come back to keeping myself from possible heart failure that is sure to happen in the future if I decide to take Herceptin anyway? I just don't know what to do right now!! 

I hope everyone else is doing well in their treatments.

Happy belated B-Day to you also Lee27! My toe nails have actually started to come back to life. My hair is growing in nicely also. I don't have as much as you though. It's coming in a pretty medium brown with gray mixed in.

Yogi-Girl the itching is driving me crazy. It doesn't take anything for it to start up. If it's not one thing it's another!

Have a blessed day ladies and keep smiling:>

Lcharmie

Hello Sharon68,

I am sorry to hear that you may not be able to start Herceptin, this may not help how you feel right now, as I know you were looking forward to starting it----I have been on many of the meds, and for what ever reasons, some have worked for awhile and then, I still had to go to something else.  I was on Herceptin for about 4 years and it was not doing what we wanted it to do, in my case---My Dr took me off and put me on Navelbine and Tykerb.  So far so good.  I am not for sure of all the meds that are out there for our kind of CA, but I been on a few, if one don't work, I ask what else do you have---Keep your chin up---I believe your Dr will find something.  No you don't need a heart failure, with all the meds out there, lets take the challenge of this journey if we must, and I know this is not what you want hear either, But--(and butt stinks)lol

Keep us posted as to how you are doing.

Linda C.

Anonymous

Sharon - sorry for the news about Herceptin. I hate this stinkin' disease...

Trumpet - seems you are closing in on the half-way point with rads. It will be over before you know it. Do you ever listen to books on tape during your drive to the rads place? Helped me keep my sanity - and my drive was only 30 minutes, lol...

Linda and Yogi - hoping all is well in your necks of the woods...

Lee - Happy belated birthday! Have a drink on me...

Yogi70

Sharon, I'm so sorry that you won't be able to take herceptin.  Just know that there are other treatments out there and others on the way for Her2+ we just have to sit tight. (((HUG))). 

Hey Ladies, Felicia, Trumpet, Linda, Benita, Lee, Sabrina, Rogam and whoever I may have missed.  Keep your head up!!!

God bless.

trumpet84

Hey Sharon - Hang tough; God will make a way!

Hey Felicia  - Never tried the books on tape.  I usually sig.  people probably think I am crazy.... mouth wide open, rhythmic hand and arm movements, hands up in praise, .....

Lcharmie

Hello Ladies,

Yogi, Felicia, Benita,Sabrina. Rogram---everyone else too.

Where ya been at---I have missed hearing from you all.  I was glad to see the Posts from the ones who have written.  I hope all is well!!

Take good care of yourself--EVERYONE!!!

Linda C

Lcharmie

Hey Ladies,

We have to get use of this, I was afraid they done away with us!!!

Hope everyone is doing as well as can be expected.

Take care--Hope to hear from ya real soon.

Linda C

trumpet84

Hey Linda C!  How ya doin?

Hey everybody!  How ya doin?!

Anonymous

This new screen is making my eyes hurt. I think the way the topics are listed shifts and the newest posted one moves to the top.

Hoping everyone is well! 

sharont68

Hello everyone!!! I hope everyone is doing well! It is really hot these days. I wish I had a pool even though I can't swim a lick! Can't wait to get to Hawaii in a few weeks! I see my onc on friday. Wish me luck. I don't know what we are going to do. I'll keep you guys posted.

Keep Cool Ladies!

cneal318

Hello  Everyone,

Just wanted to check in and say high. Things have been so crazy lately. I am sitting here listening to Marvin Sapp's CD. It is wonderful! I wanted to let you all no that mom is doing well. Her tumor markers continue to drop (GOD IS GOOD!). For those that dont know my mother has stage4 bc with mets to liver and bone. She is getting carboplatin and avastin every third week along with zometa for bones. She has been having pain in her right shoulder and so onc had her go for an mri and xrays well we found out she has a torn rotator cuff and should have surgery but that we can try some cortizone shots for a few months. Mom does not want to have surgery right now, so she is going to try the shots for a while since the pain is not severe all the time.

Well I hope everyone is doing well!

Crystal!

Lcharmie

Hey All,

Felicia, Trumpet, Sharon, Crystal,

Sure glad to hear from you all---glad all is as well as is.

Crystal, good to hear about your Mom--in prayer for her and wishing her well.

Oh Sharon--going to Hawaii, how wonderful, that is one place I would like to go if I ever stay out of Vegas--I love that place(Vegas), but do hope to get to Hawaii someday--Enjoy!!!

Felica--Whats Up???

Trumpet--Whats Up???

 Stay Blessed!!!

Linda C.

Anonymous

Glad to hear mom is doing well, Crystal. Give her hugs for us, please ...

And Sharon - I'm so jealous! Hawaii? Girl, have a blast...

Linda, how are you? Hoping all is well in your neck of the woods... 

Trumpet I'm waving at you, girl

trumpet84

Hey hey!

I am still doing the rads gig; feels like I've been in it forever!!  It feels like my entire morning is devoted to getting this thing done.  But, whatever it takes, is what it takes, and God will take it, so that I can make it!!  All I have to do is try to keep from sweating in this humidity!!

TripleNeg

Ladies- 

I haven't posted here in a while but wanted to stop in and say that I LOVE YOU ALL very much. We are survivors! The internet is an awesome tool and has  given me access to some incredible people.Thank you for being unconditionally friendly and available when I've needed you most. If we haven't formally met, by all means consider me a friend and PM anytime. Yes, we can!  God is able,  stephanie

Lcharmie

Stephaine,

Good to hear from you,

Yes, We are survivors!!!

Keep on keeping on Girl!!!!

Linda C

Anonymous

Just popping in to say hey to everyone. Hope all is well in your respective necks of the woods...

Yogi70

HEY LADIES!!!!!

WHERE IS EVERYONE?  HOW IS EVERYONE?  HOLLA AT A SISTA!!!!

Roya

Hi Ladies,

I am new to this site.  I was diagnosed 2 months ago and had a left breast lumpectomy on June 20.

I will see the oncologist on July 28th.  So far I know that I had grade 3 and that they took 2 sentinal nodes which were negative.  My surgeon said that there are no estrogen receptors and that the onc will probably suggest radiation and chemo.  I will know more after I see the oncologist.

We currently live in Paris and have 3 children 4, 14, & 17.  I just saw this forum and want to join in. 

Anonymous

Hi, Roya and welcome. You may be our first Parisian, oui!

Good news about your sentinel nodes being negative - hurray! It may seem like a bad thing to have to wait so long to see your onc, but it is kind of a good thing. They don't seem to be in too much of a hurry to start things yesterday, so to speak. Like you said, you'll know a lot more once you see your onc on the 28th...

OMG - you have a 17-yr-old and a 14-yr-old? TWO teens and a pre-schooler?!? Hats off to you!

Don't be a stranger! 

Yogi70

Hello Roya,

Welcome!!  Jump on in, this is a great forum!  Let us know whats going on. Do you know your HER2 status?

What is Paris like?  I've always wanted to visit.