Roll Call November 2007

Anonymous

Roll Call November 2007

Anonymous

Hey thought I might start a roll call

Benita NY

42 years old

Diagnosed 40 years old

stage 3 er/pr +her-

4 rounds A/C

MRM

4 rounds Taxol

42 rads

tamox/Arimidex/Femara(current)

Ooph surgery

BRCA- , mutated gene present

Father, Sister breast cancer also

I will survive and beat this .

fd411

Hello, I'm Ferne

Diagnosed 4/11/06 at age 41 (stage II) Triple Negative

6 rounds TAC, lumpectomy, rads (final pathology - stage IIIA)

Diagnosed 5/04/07 Stage IV.

Have taken Xeloda, Navelbine, Avastin, but progression on these.

Currently on Abraxane.

But no worries because I'm still very blessed! 

Anonymous

Howdy, I'm Felicia - and I'm a BC survivor ;o)



History of fibroadenomas since age 16



Diagnosed 10/4/04 at age 37



Multifocal DCIS w/microinvasion, node negative, much of area close to chest wall



bilateral mastectomy + radiation (36 treatments)



BRCA negative, but "mutation of unknown significance" detected



Tamoxifen since 3/05



Mother diagnosed stage III in '88 (age 44), died at age 49 from brain mets



Aunt diagnosed w/DCIS 9/03



IGAP reconstruction 6/07 - nipples 10/07 (almost done!!)



This is a rough road, but I'm still able to smile everyday. God is sooo good!

shorfi

I am 53 ; first one in family with this disease

Diagnosed 8/31/04

Lumpectomy 9/1/04

Invasive ductal carcinoma (1.5 cm), Stage 1, Grade 3, 0 Nodes

4 rounds of AC, 7 weeks of radiation

Oophorectomy 10/05

Arimidex because chemo put me in chemopause.

Other than that, doing and feeling well.

Anonymous

Hey Sherry, I forgot you were from Philly. I went to Temple in the late 80s and stayed in Philly for a few years after graduation. I try to go back a few times a year.

shorfi

Yep, born and raised there. Temple is nice, and much nicer area for the students. They are really building up around that area of town.

Sheri

CurlyKatFL

I am Kat from Central Florida but originally from Jamaica.

Diagnosed 4/23/2004

Mastectomy ( right side) immediate reconstruction

Chemo

Lymphadema

Tamoxifen 2years

Zoladex shots to shut down my ovaries

Now on Femara

Sister was diagnosed at 36 had bilateral mastectomy and then we lost her due to liver Mets a few years later.

Aunt diagnosed at 37. Died due to lung Mets.

Felicia thanks for the PM. Sorry I didn't reply but I was having some issues with blood pressure meds and was off the boards for a few weeks. It is very nice to meet you.

DWS43

Hello I am Dawn or D.

I was diagnosed with Stage 0 DCIS, er/pr -, her2neu +, Grade 4 comedo type w/ necrosis at age 40 in my rt. breast.

I had a Lumpectomy w/ two re-excisions and 6 weeks of radiation.

I had a recurrence of Stage 0 DCIS, er/pr - her2neu +, multifocal in my right breast at age 43.  I had a bilateral mastectomy w/ DIEP.  My reconstruction failed due to repeated clotting.  No clotting history.

FayeFighter

Hello Ladies,

Rakesha - age 30

Mother - diagnosed at age 36 again at age 53.  Now has metastic cancer to her bones and pelvis

1st Aunt - diagnosed at age 48, died at 50

2nd Aunt - diagnosed at age 60.  Now has metastic cancer to her bones, pelvis, spine

This is a rough road for me watching all the women in my family go through this, but GOD is GOOD all the time and my mother and aunt are FIGHTERS. 

Anonymous

Hi, Rakesha - and welcome. Sorry you had to find us, but glad you did.



How are your mom and aunt doing? I'm sure it must be tough to watch them fight their battle, but bless your heart!



Have you or anyone in your family had genetic testing? I did - as have a few others here - but tested negative, although they think a mutation that hasn't yet been named may be the culprit.



All the best to you and your family! Hope to hear from you again soon.

Anonymous

Hello Kat,Dawn and Rakesha,

I welcome you warriors with a sad but open heart, wow what a family history Rakesha,I am so sorry for your loss . I would be interested to know if you have BRCA or "mutated gene" I hope your Mom , Aunt and you are doing as well as can be expected, God is good and he is a healer and a deliverer.How are you Dawn ?Strong family history also Kat,I am also sorry for your losses.How is your lymphedema? I too have right side and edema.Hoping everyone is well and has a great weekend . Benita   

sparker38

Hello,

Sabrina age 38

dx October 8, 2007

Baby of the family with no family history of cancer except for on my dad side.

DCIS   stage II   HER+   3/24 nodes

Left Radical Modified Mascectomy

Start chemo on November 28.

Know through it all that God has my back

after all if you gone pray don't worry and if you gone worry don't pray.  Name it and claim.

I got the VICTORY!!!!

Come and take these pieces he made me a promise, he'd put me back together better than I was before"  Show Me

Yolanda Adams.

(my theme songs that keeps me)

All my sisters be blessed...

sabrina- Illinois

DWS43

Happy2bme,

Thanks!  All is well, I am blessed and grateful to be here.  I appreciate all the kind and encouraging words from everyone. 

D

halika

Hello Ladies,

My name is Cheryl . I was diagnosed with ILC in May 2005.

I was diagnoses at age 47 with no family history of breast cancer.  Clean mammogram Jan of 2005.

ILC - .9 CM, ER+, PR-,HER2-  Stage 1, 0/3 nodes.

Mastectomy June 2005

Tamoxifen for 2 years.  

Peace and blessings to each of you.

Anonymous

Hello Cheryl Hello Sabrina,

I pray for your continued blessings Happy Thanksgiving to all..

Benita

sparker38

Hello All

Just wanted to wish everyone a blessed Thanksgiving.  For we all know we have a lot to be thankful for.  I know I do.  My life and having it more abundantly.

Be Blessed my sisters

Sabrina

sparker38

Hello All

Just wanted to wish everyone a blessed Thanksgiving.  For we all know we have a lot to be thankful for.  I know I do.  My life and having it more abundantly.

Be Blessed my sisters

Sabrina

cneal318

Hello Ladies,

My name is Crystal and I am 35

My mother is 53 and was diagnosed with Stage 4 bc with mets to liver in December 2005 and recently in April of this year it spread to her bone. She is the only family member we know to have breast cancer although she is stage 4 she still continues to work. She is my breast friend and I have been my her side through all of this and will continue to be there for her. Her name is Jacquelyn and she is such a fighter in all of this. I hate this disease. I am glad I have you ladies to talk to.

Anonymous

Welcome, Crystal. Sorry you had to find us, but glad you did. Sorry to hear about your mom, but this is a wonderful site full of wonderful people who are so caring and willing to share. If you post anywhere, someone will answer you/offer a hearty hello. It truly is a wonderful community.



The "African Americans w/BC" section was started after one of our sisters posted in a panic about the bad survival rate statistics for Black women. The amount of support and information she got from the women here was amazing. We asked to have it moved from where it was because of the fear that the great info would have been missed had it remained where it was...



Please feel free to send me a private message if you want to chat. Big hugs to your mom!

Anonymous

Hey Everyone,

Hello Crystal , Your mom is a strong woman, many prayers of healing for her and strength for you and her. I hope you find help , comfort and camaraderie here with us. If I can help in any way I would be honored to do so. Hope everyone had a great Thanksgiving (Thanks Sabrina hope you are doing well!) Hope the Holiday season is treating you well.  

Benita  

Lcharmie

HELLO LADIES,

MY NAME IS LINDA--I WAS DIAG. WITH BREAST CANCER NOV. 17, 1998.  I HAD A LUMPECTOMY, LEFT BREAST, AND THE COCKTAIL OF ADRAMYCIN AND CYTOXIN, THEN TAXOL: RADIATION 34 TREATMENTS; AND SAILED ALONG TIL 2002, IT CAME BACK AND I HAD A MASCETOMY OF THE LEFT BREAST, AND 3 WEEKS LATER A LUMP WAS FOUND ON THE RIGHT SIDE, MALIGNANT, SO I OPTED TO HAVE THAT BREAST TAKEN .  DIAG. IS HER2--SO I HAVE HAD TO DO CHEMO EVERY WEEK FOR THE LAST 5 YEARS--HERCEPTIN AND NAVELBINE---RADIATION AGAIN LAST YEAR, IT DID NOT HELP, THEN HERCEPTIN AGAIN.  THE CANCER CAME BACK IN THE SKIN OF MY CHEST, IN 2003, AND I FEEL BLESSED THAT, IT IS ONLY WHERE IT SHOWS ON THE SCANS.   I HAVE HAD 5 OCCURANCES OF THIS CANCER.   I HAVE GIVEN GOD A LOT OF THINGS AND TAKE THEM BACK(IN MY MIND)THIS I HAVE HAD TO GIVE IT TO HIM AND I MEAN TOTALLY--HE GOT IT ANYWAY---BUT YA KNOW WHAT I MEAN--AND I HAVE PRAYERS ACROSS THE NATION AS FRIENDS AND MORE FRIENDS PRAY FOR ME.  AS OF SEPTEMBER I AM NOW ON TYKERB AND NAVELBINE AND THE PLACES ON MY SKIN LOOK FAINT AND NOT THE WICKED RED THAT THEY HAVE BEEN AND I AM A BELIEVER---I WANT TO ALWAYS BE AN INSPIRATION TO PEOPLE TO MOVE ON AND HAVE STRIVED TO DO JUST THAT IN THESE PAST 9 YEARS, NOW I HAVE HAD MY DOWN DAYS, AND ALLOW FOR THEM, AS IT HAS A WAY OF COMING OUT IN OTHER WAYS--YOU NAME IT---OK I GOT CARRIED AWAY WITH THE ROLL CALL--LOOKING FORWARD TO HEARING FROM EVERYONE--TO ALL OF US--MY MOTTO HAS BEEN "THE CANCER WILL HAVE TO CATCH ME RUNNING AS I WILL NOT LAY DOWN FOR IT"--ARE YA WITH ME??!!!

SINCERELY

LINDA

Anonymous

Howdy, Linda - and welcome. Sorry you had to find us but glad you did :-)



How old were you when diagnosed if you don't mind me asking?

sharont68

Hello all,

Sharon from San Antonio

Age 39

DX 10/09/2007

IDC, HER2+,3.1cm,Stage IIIc,12/15 nodes positive

Lumpectomy with nodes disection 10/24/2007

Total Left Mastectomy 11/09/2007

Chemo start date 11/14/2007; TAC/HERCEPTIN

Nice to meet everyone

Lcharmie

HI FELICIA,

I AM VERY GLAD TO HEAR FROM YOU. 

NO I DO NOT MIND YOU ASKING--I WAS 51 YEARS OLD WHEN I WAS DIAGNOSED.  I AM THE 1ST FEMALE IN MY FAMILY TO HAVE BREAST CANCER.  I HAVE 2 DAUGHTERS 39 AND 40 YEARS OLD AND 3 GRANDDAUGHTERS AND I HOPE AND PRAY THEY WILL ALL BE OK.

Anonymous

Welcome Sharon! We were diagnosed almost three years apart to the day. Hoping your treatment is going well : - )



Linda, have you thought about testing for BRCA? There are only two genes they look for: BRCA1 and BRCA2, but there are more than an handful of Black women here who tested negative for those genes, but had some other gene variant of "unknown significance." Not sure how much research is going on to find out what the heck that means, but it might be good information to know - especially for your daughters and granddaughters.

Lcharmie

HI FELICIA,

THIS INFORMATION IS HELPFUL AND I WILL ASK MY DR.  MY DAUGHTERS ARE HAVING MAMMOGRAMS DONE ALREADY AND KNOW MORE THAN ANYTHING, TO DO THEIR OWN MONTHLY EXAMS, AND THIS GOES TO ALL OF THE WOMEN WE KNOW OUT THERE--AS MY LUMP DID NOT SHOW UP ON THE MAMMOGRAM--I FOUND IT-WE JUST HAVE TO HELP OUR SELVES IN ALL THAT WE CAN.

THANKS AGAIN FOR THE INFO!!!

LINDA

Lcharmie

HELLO SHARON AND WELCOME:

HOPE ALL GOES WELL FOR YOU AS YOU START THIS NEW CHALLANGE,  HANG IN THERE, AND COME VISIT US, SO WE CAN HELP EACH OTHER ALONG THE WAY!!!

LINDA

mibriggs

hiya ladies

My name is Melanie and I was dx in Sept 2005

I was dx stage 3 B ( intra mammary nodes involved),  I was 33 yrs .  Now I am 36

I have done a bilat mast with lat flap recon (nov2006)

6 rounds of FEC

15 rads.

currently on tamox and trial zometa

Somewhere in the midst of this horrible journey, I found Jesus in the most powerful way, and my life has just begun.  What a Saviour!

Ladies.... lovely to meet ya, sorry it is in this forum. 

here is the link to two small clips I put together of my journey so far 

http://revver.com/video/282100/undefeated/

 http://revver.com/video/302093/a-new-creation/

M

xoxo

Anonymous

Mel, your video was awesome! You are beautiful, as is your little guy. What a lovely tribute to your journey!!

Deborahann

Well, well, well:

  I have definitely been away too long.  I was not aware of this new link and I must say, I am very pleased to see it. Although, I have always enjoyed conversations with my all my sisters in the struggle.  I am quite pleased to see this site dedicated to my other sistas!

Eat well, laugh often, and love always,

Deborahann

DX: 11/04 Stage: 2a, triple (-) grade: 3 size: 3.0cm surgery: Lumpectomy with axillary sentinel node biopsy Location: left breast 3:00 position (found on SBE) AFTER Mammogram the month before.

Treatment: six months of Adriamycin, cytoxan, followed by taxotere Radiation: two months followed by two weeks of pin point at the surgical site.