anyone starting chemo in Nov 2005

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  • kim825
    kim825 Member Posts: 284
    edited January 2006
    Good morning everyone. Hope you all had a great weekend. We had no power for 48hours. We all snuggled by the fireplace and under lots of blankets. Feeling good today. It took me longer to feel back to normal after this past 4th treatment of Taxotere. Longer emotionally and physically.
    Kaye, glad you checked in. Thinking of you.
    Deb, that is great about the food. We have people from my daughters preschool bringing us food. It is nice and I'm learning it is ok to let people do for you. BTW I saw that Stepmom was on and could not bring myself to watch it.
    Wendy, I get the bone pain from the Neulasta shot also. Sometimes it is unbearable. It is mostly in the legs and arms.
    Odalys, my onc. didn't mention anything to me about the ice tub. So far my nails have been ok. I have short stumpy nails to begin with, but I haven't seen a change. (yet?). My aunt who was on Taxotere, didn't loose her eyelashes, eyebrows or nails until after Taxotere treatment was over. I still have eyebrows and eyelashes and nails. The actual time the Taxotere is being dripped is 1 hour for me. Maybe if onc. feels this will help you can do it on and off. Not sure.
    Hope you all have a great week and those having treatment this week, thinking of you.

    Kim
  • Odalys
    Odalys Member Posts: 2,103
    edited January 2006
    Kim - Glad you got your power back. It must be so difficult to be without power on a cold winter day. We lost power for 2 weeks during the last hurricane (summer temp >95 with high humidity) and the heat was sufficating. Not only that but it's amazing how we rely on modern conveniences/technology to get us through the day.



    Thanks for your input on taxotere. Onc feels the coldness will help the circulation and will reduce the pain, tingling, and numbing sensation as well. So far, thumb nails are becoming discolered but they're all strong and growing. I will try to place hands and feet on/off ice for as long as I can tolerate it. Also will trim them down and keep them short while on treatment.



    BTW- I heard Sannibell had some damage after the recent hurricanes but for the most part it's beautiful. A great place to chill out, enjoy the beach and mother nature. What a nice idea to celebrate the end of chemo. Hope you have a great time!
  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited January 2006
    Wendy, just got my first Neulasta shot today and will start Taxol on 2/2. I can't wait to be off the steroids.
    Sounds good to get our taste back, but curious how long the bone pain lasts. Are you "self-injecting?" What are you taking for the bone pain? My nurse recommended a heating pad plus Motrin or whatever you and your onc agree upon.

    Kaye, you darling. So glad to hear that you're working through that horrible time. By all means, pace yourself and only do what is most meaningful and pleasureable.

    Deb and Debbie, hang in there. I know its disappointing to find out that you're not done yet, but you're on your way. Debbie, maybe you can open up a diner on the side.

    Warm hugs to all of you.

    Nancy
  • LizM
    LizM Member Posts: 963
    edited January 2006

    Hi ladies, I'm a week past my 4th and last AC treatment and it has been a little worse for me than the others. The queasiness has lasted longer and over the weekend I developed this tickle in my throat and a dry cough. I can tell it isn't in my chest but in my throat. I'm not sure if it is a mouth sore in my throat, a dry throat or is flem from my sinuses that have also been draining since my first treatment. Is there anything you can do about the dry throat and cough? I have all the biotene products for dry mouth but I don't know what to do about a dry throat. Has anyone had a mouth sore in their throat? My oncologist told me it could happen but how do you know if you have a mouth sore in your throat. All I know is that there is a tickle in my throat that makes me cough all the time and I'm not sure what to do about it. Any suggestions? I sure hope I am not coming down with something because I have my first taxol treatment next Monday. Hope everyone else is having a good week and good luck to those who have a treatment this week.

  • cojadeb
    cojadeb Member Posts: 10
    edited January 2006
    Hello All,

    I had the last of my AT today and received all my info on the next and hopefully final "leg" of my journey. I will start on Feb 6 with the carboplatins and go weekly for that infusion I also start the Xeloda which is actually in pill form that I will take twice a day for 7 days and then off for 7 days. He had originally told me 6 rounds of this but today he said 8, I was little pissy I said "Make up your dang mind" So it looks like I will be getting to do this for 24 more weeks. Not thrilled but am happy about the prospect of hair coming back and if I remember correctly it should start fuzzing up in about 6 weeks. So should have enough hair to emerge into public without fightening any small children in my store around July, I hope. Has anyone purchased a wig from Paula Young? I found some new "hair" in their online catalog but am a little worried about buying it without trying it on first? Any opinions out there? I am also looking at one that is human hair instead of synthetic they don't seem to really cost much more than what I have paid here and I kinda like the idea of being able to change my style somehwhat.
    Deb your right we can go through this together and since your a ways ahead of me you can keep me posted as to what to look out for. Sorry that I did Taxatere instead of Taxol so I can't tell you what to look for but I can tell you that Aleve works well for the bone and joint pain, take it as soon as you get the neulasta shot don't wait for the pain to set in I found that by being proactive it was just a dull ache instead of the horrible pain I had in the beginning.
    Those of you still searching for the perfect water try Figi its the only one I drink now. Has no aftertaste and just tastes wet. Little pricey but I could care less at this point.
    As always my prayers and thoughts to you all.
    Deb
  • AnnaM
    AnnaM Member Posts: 1,387
    edited January 2006
    Kaye, how wonderful to hear from you. I hope you treat us with little messages as often as you can. I love you and miss you. You're my birth-year buddy!

    Liz, I had a dry cough through A/C treatments 1 through 3, a tickle really, very bothersome esp. when I was talking on the phone. I thought it had something to do with the chemo and told my onc. about it; she said it was probably just post-nasal drip from a slight cold or an allergy and that being on chemo makes things like that, which you normally get rid of fairly quickly, take much much longer to beat. Then my stepson visited and he had the same cough and then my husband got the cough too. I hear it might have something to do with the mold outside being worse this year than normal. Are you allergic to mold? It might be that.

    Do mention it to your doctor if it continues.

    Also, Liz, I found the last A/C even more tiring than the others too.

    Deb, I ordered a wig (only $29 on sale) from Paula Young and it is very cute, but it sure isn't as comfortable as the one I bought in a wig shop for $100 regular price. That one really stumps people and everyone tells me they love my new do. My brother says it looks like the girl in Sleepless in Seattle. The PY one looks more like a wig to me and it can't be adjusted as well. I don't even really like to wear the better wig; I must have a sensitive bean because after about 2 hours I'm ready to tear it right off my head.

    I like my fleece caps but they sure aren't attractive. My daughter took a whole bunch of pictures of me, bald, with wig, with fleece cap, with baseball cap. She printed one of the bald ones to take back to France with her. I look at it and feel a funny feeling. I look so vulnerable, but kind of sweet. There's a glow to my eye area that is quite nice. Maybe it's the flash bouncing off the no-eyebrow/no-hair parts? Not that I ever had much in the eyebrow department in the first place. My hair was always very light blonde. Now I have three little hairs in the eyebrow on the right and four or five on the left. A few lashes still.

    Good luck to everyone going in for treatment this week.

    Anna
  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2006
    Nancy, you made me giggle about opening a diner!!! I'd have enough stock for a few months of food!!

    Liz-I had a horrid cough a while back-I caught it from my son and hubby. What was a simple cold for them was debilitating for me because I was neutropenic. I was put on Levaquin and felt better within the day.

    Anna-I love what you said about your pictures. I just had my hubby take my first bald picture today, and although I cringe when I see it, I also feel a sense of pride. That bald head means I am getting well/healthy/strong!! Our bald heads mean that cancer does not HAVE US!!!!!

    Love and prayers, Debbie
  • kim825
    kim825 Member Posts: 284
    edited January 2006
    Good morning everyone.
    Seems like a few of us had a harder time with 4th treatments. More tired, more nausea, more fatigue. Glad to see we are doing better now.
    Deb, I bought a Paula Young wig. I bought it because it was $29 and figured if I don't like it it is only $29. Well, I hate all 3 of my wigs, the $29, the $99 and the $200 one. I like my baseball caps (headcover.com) and in the house I wear nothing.
    Liz, I get a dry cough one in a while, especially at night. It usually goes right away but it is annoying. I am thinking of getting a humidifier to help with that a a dry itchy nose.

    Hope you all have a great day.
    Kim
  • Odalys
    Odalys Member Posts: 2,103
    edited January 2006
    Hi everyone,
    Seems like several of us are trying to adjust to our wig(s). Just want to share with you that several ladies in the office have ordered wigs from www.wigs.com (just to change their hairdo) and are very happy with them (wigs look good). Not for me, I wanted to try them out first so ended up buying a synthetic one (looks like real hair) at a local mall for $200. The thought of having some else’s hair on my head gave me the hebee yebees (sp). Most folks can't tell it's not my hair. At first, I could not stand the pain and pressure on my scalp. After a couple of hours, I felt like Anna ready to "tear it right off my head". Then I found a product on the ACS's "TLC catalog" called the "comfy grip". It's been heaven sent because it cushions the pressure points, keeps the wig in place, and keeps head cool (important in 80 degree weather). It's a little pricy ($29) but a necessity since I wear the wig Mon-Fri for almost 12 hours every day. Ooops…don’t mean to sound like an infomercial.

    Enjoy your day!
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2006
    Hi everyone, I'm a little nervous about the Taxotere on Thursday. Do you all know if this treatment has steroids? I have to tell you, I'm over cancer. Grrrrrr

    I have felt a little better in some ways since my last treatment, but my spirit is not as strong.

    I just seem to be in such a funk lately. My teeth are killing me and I have a toenail that has turned very yellow and looks as if I will lose it.

    Can another thing go wrong. I guess it's the winter blues alone with everything else. Sorry for the whine, I just needed to vent.

    I did get my pictures loaded onto my web site this week, we painted my head for Christmas. If you want to take a peek , link is in my profile.

    Please sign my guestbook if you have time. The site is my Weight Watchers site, which I will start again after the chemo is behind me. And I was doing so well.

    I gained so much weight after I remarried 5 years ago , plus I quit smoking at the same time. I have some pictures of what I looked like in 2000 on my site too. No wonder I feel so ugly now. It's like looking at a whole different person.

    Well let me close, sorry for the pity party. I'm going to try and have a better frame of mind today starting with a cup of coffee and a prayer for us all. Kaye, you are at the top of my list.

    Hugs to you all.
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2006

    Odalys, happy early birthday!!!!!!!!! I saw that this Sunday is your big day.

  • kim825
    kim825 Member Posts: 284
    edited January 2006
    Hi Mary Lou,
    Sorry you are feeling a little down. Sending you lots of hugs. I looked at your site and you look great after your weight loss. Congrats. That is such a great accomplishment. I did WW at a time and never lost more than 30 lbs. lOL!! I have about 80 to loose. Maybe when chemo is over I can go back.
    I do get a steriod as one of my premeds for Taxotere. I would get leg jitters a couple days after treatment and I'd have trouble relaxing, the onc. said that is from coming down off the steriods. Good luck tomorrow, we will be thinking of you.

    Kim
  • Odalys
    Odalys Member Posts: 2,103
    edited January 2006
    Hi Mary Lou - will be thinking of you tomorrow, God be with you. Let us know how it goes. I'm just as nervous about Taxotere, will receive first one on Friday. Still don't know if I can stick my hands and feet on ice while receiving treatment and thumb nails are becoming discolored. Will just have to wait and see what happens.

    Thanks for the early BD wish. It's hard to think about celebrating a BD two days after first treatment of Taxotere. I'm very nervous. Guess I'll have to celebrate somehow since son is already asking for a birthday cake.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2006
    Hi ladies, I can understand about being so nervous about the new meds. I was so nervous the day of my first taxol/carboplatins that I literally nearly passed out!!! The nurse was very concerned about me after that, but it was fine.
    Gotta tell you what someone at church said to me today...."Your chemo is like my friends was. She had bc several years ago. She didn't make it. But I have a PRETTY GOOD feeling that you've got a GOOD CHANCE!!!" Oh my gosh, I know people mean well, but COME ON!!!!!

    I'm a little spooked, I just found out that my college boyfriend passed away from mets to his liver. He had stomach cancer a few years ago. He was only 31, and left behind 3 kids, one of them being an 11 month old.

    My nails are gross/yucky/totally discolored, and are still sensitive. They don't hurt nearly as bad, but I am still aware that there is pain.

    Oh, this shall end soon, right???
    Love and prayers, Debbie
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2006
    Thanks girls, I'm in a much better frame of mind now. Went to the store with Michael and got stuff to make a healthy pot of veggie soup.

    It really hit the spot. The wind is cold here and very strong.

    I wore my wig and a baseball cap, really looked good , but felt so funny. I saw a friend of mine and she didn't know it wasn't my hair.

    I also had jeans on, felt funny too. I was just trying to feel normal. Does anyone know what that is?????

    Thanks for looking at my web site. I have started to follow program again, I just feel better when I eat well. I don't need another health problem .( just lucky so far.) Really thought I was going to have a heart attack from the weight.

    I stopped smoking b/c I didn't want to get cancer. Then gained all the weight and worried about my heart, and ended up with cancer anyway. Go figure.

    BTW, if I have new boobs, I don't want my belly hanging out past them. I would like to return to a healthy me in every way I can. This has taught me a great lesson.
  • Odalys
    Odalys Member Posts: 2,103
    edited January 2006
    Hi Debbie - Wow, some folks just don't know how insensitive they sound. They are really clueless. Sorry you had such an experience.



    Sad to hear cancer took another young life and devastated another family. Poor baby, will never get to know dad and feel his love. It's so hard to understand God's master plan sometimes. It just does not seem fair. I can understand why you feel spooked.



    Hugs...
  • kim825
    kim825 Member Posts: 284
    edited January 2006
    Debbie, I thought that was very insensitive of the lady at church. I know they mean well, but come on. That is very sad about your ex-boyfriend. How terrible for his family.
    Mary Lou, thinking of you today. I hope you can feel our love and strength with you today. Are you getting a neulasta shot tomorrow? Let us know how you are doing.
    Odalys, we will be thinking of you tomorrow.

    Kim
  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2006
    Hi everyone, I just completed week 3 of 12 of taxol/carboplatins. I am sweating like a pig, and achey, but I'm NOT pukey!!! Except when my hubby came home with a fruit smoothie (have major issues with those after AC). I am on so many prescriptions now I'm having a tough time keeping track of them. I just got put on something for my hot flashes, and read that a side effect is excess sweating?!?!?!?! huh?!?! I also get a heavier dose of Neurontin (was on it already for MS). Yes, I have MS, too.
    Praying for all of us as always!!! Debbie
  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2006
    Mary Lou, I just peeked at your website, and LOVE it!!! I loved the poem by your hubby, it brought tears to my eyes. Your pictures are great, too. What an inspiration in every way.
    Debbie
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2006
    Thanks , to you all , for looking at my site. I added some more pictures tonight. One after my treatment this afternoon , and one with my real hair.

    The real hair shot, was taken about the end of July, right around the time of my mammogram, I started to go down hill from there.

    So far the Taxotere is fine. Nothing has given me a problem. My Onc gave me something for the "HOT FLASHES " too!!!!!

    Called Gabapentin, generic for Neurontin. 300mg

    He said just start with one tonight, then start taking 3 a day. Said it may make me sleepy. Yes, it's making me sleep alright LOL , it's 3:3o am and I'm wide awake. And I have been up since 8:30 am.

    I wish you all had a website, I would love to know more about you all and see the children and grandchildren. Some other part of your world besides this awful part of our lives. There is way more to us than our cancer.

    That is why we fight everyday. To be the strong women that we are !!!! For our lives!

    Oh dear, I was getting loud! LMAO

    Debbie, I'm so sorry to hear about your MS, my very best girl friend has MS too. We have been friends from the age of 5 and 7. Me being the oldest.

    She said she is really seeing a difference these past few months. Would you email her for me, I'm as lost with MS, as she is with BC. If that is ok send me a personal email. You are sweet and she needs that right now.

    I just don't know what to say I have a great deal of respect for each and everyone on this board. If I didn't I would never ask you to do this. That goes for everyone. That's why I shared my site with you all.

    You are the sisters I needed to get me thru each day, even when I just wanted it to go away. I really don't know if I will ever be normal.

    One thing did happen at my treatment today. One of the nurses came up to me, and said , I almost called you to come speak with a lady about losing her hair. She works in the radiology dept here in the main hospital. Just found out about the cancer.

    They told me she was freaking out about the hair loss. They think it would be good for her to talk to me. I told them I would.

    If it was just that simple. It's a long hard ride. But I will talk to her and maybe she can find some help here on the boards.

    I will be going to the center after this is behind me, I must give back , just as I did when it all unfolded. Starting by giving my hair to locks of love. And will end it by giving my heart to those just starting this journey.

    Thanks for letting me pound these keys. Michael is snoring, I will never get to sleep, I hear him from my kitchen.

    Love and (((Hugs ))) to everyone.

    ML
  • grace05
    grace05 Member Posts: 30
    edited January 2006
    Good morning everyone,

    So many post and a lot going on. Well I had my #4 treatment out of #6 yesterday and my ONC said it would be my last plus she dropped the Adrimycian, the neulasta shot so I had only Taxotere and cytaxon. Ladies I am done with Chemo (with the grace of God) what a pleasant surprise! I have to go back in 21 days and she will prescribe Arimidex and in another week I will receive my hereditary test to find whether if I'm positive or negative, this will determine my options for a bilateral and breast recontruction or just another re excision and radiation. Please stay prayerful. I can't believe that suddenly I'm off Chemo but she felt strongly being on TAC and with my diagnoses that it would be enough. I have confidence in my Once she is one of the best at my hospital.

    And speaking of side effects all my nail and toenail are dark but I have a great manicurist who takes good care of them and paints them in dark colors, I have no hair but I do have my eye brows and eye lashes. I have expeienced dry mouth, dry eyes, and nostrial. I have used a humidifier, saline drops, mouth kote (good), eye drops, and used neosporin for head bumps and in my nostrils when bleeding from being so dry.

    I have been taking Gabapenatin from day one of Chemo and it doesn't make my hot flashes go away but at night I seem to sleep better.

    As far as wigs I wear several from wigs.com and receive so many complements of them but I get hot flases from wearing them and a cap underneath.

    In Weight Watchers I lost 15 pounds reached my goal a little after I was dx with BC and now I have gained the 15 pounds back I will be getting back on track.

    Well I will be checking in often to see how everyone is doing and letting you know of my progress.

    ((((((((((((((((((((((((((((((((((((Many Hugs)))))))))))))))))))))))))))))))))
    Love and you are always in my prayers.

    Blessings!!
    Grace
  • lana17775
    lana17775 Member Posts: 37
    edited January 2006
    Grace!
    You lucky dog! What a pleasant surprise! On to the next stage! Congrats!
    Liz-
    I know you start dose dense Taxol on Monday (I start on Wednesday). My onc gave me a scrip for Decadron (5 night before, 5 morning of) - this is apparently more for the stuff the Taxol sits in, not the Taxol itself -- weird! I don't think we need popsicles for Taxol, but I'm wondering what we do need...any thoughts? I'm going to pose the question on the Taxol thread, if you're interested.
    Chins up!
    Lana
  • twingle99
    twingle99 Member Posts: 42
    edited January 2006
    Hi Odalys,
    I have not been on here forever just thought i'd pop in to see how everyone has been doing and noticed your post. I finished my Ac and now started Taxotere this week.
    Awhile back i had seen a post about someone sticking their fingers in ice water during Taxotere. Well I started doing it during my treatment and I had asked the nurse if she had ever seen anyone else do it and she said no. Well she went and mentioned it to the Doctor and he imedietly came out and told me NOT to do it !!! He said do you know what that does. I said yes it stops the blood flow from going to that area and he said yes and also the medicine!!!! So needless to say i stopped!!!!!
    Just thought i'd pass that along.
    Rhonda
  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2006
    Grace, I'm so happy for you!!! You are done with a major part of your journey! We will continue to pray for you as I know you will continue to pray for us.

    Rhonda-So good to see you on here! It has been a long while!! I hope you are doing well.

    Lana-no popsicles necessary with taxol/taxotere! Isnt' that great? I want to barf whenever I think of popsicles/ice/fruit smoothies/starbucks frappucinos. These are all things I ate while on AC, and will NEVER eat them again!!! ICK!!

    Kaye-still praying for your family. How are you doing?

    Thinking of all of you!! Love and prayers, Debbie
  • LizM
    LizM Member Posts: 963
    edited January 2006

    Hi ladies, I have been dealing with a bad cold this week. Started with a tickle in my throat last Sat and turned in to a pretty bad chest and head cold. Went to my family doctor on Wednesday and she put me on an antibiotic and gave me cough syrup. Called my oncology nurse to clear the antibiotic and she said it was fine. Today I am feeling a little better. Sure hope I am OK on Monday for my first Taxol treatment. I don't want to miss any cause I want to get this over as soon as possible. I was doing quite well until after the 4th AC. I have been reading up on the Taxol threads trying to prepare myself for it. I am really nervous about it. I guess because it is something different and the infusion takes so long. Hope everyone had a good week. Liz

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2006
    I just wanted to update you all. So far nothing from the Taxotere. I have only had 3 hours of sleep. About to go to bed now. How long does this take to hit you??????

    I also was thinking, only 3 more to go before the rads. WooooHoooo!!!!!! I can at least look forward to the boobs !

    Thinking of you all tonight. ((HUGS))
  • spirit3kd
    spirit3kd Member Posts: 37
    edited January 2006
    I am still hanging around !! Actually feeling much better now that I am off all the drugs. Only take xanax for anxiety and it helps with the pain.

    I go in for surgery on the 24th Tuesday to have the Port removed. It was only used once....

    I am concentrating on getting my travel trailer in shape to do some traveling when the weather warms up. Here in SE Arizona we have been having freezing temps at night. I know that is probably a heat wave to some of you, but I am use to 90 degree temps to be comfortable.

    Hope you are all doing well......Love, Kaye
  • AnnaM
    AnnaM Member Posts: 1,387
    edited January 2006
    Kaye, it's always wonderful to hear from you!



    Jeeps, I wish I had thought to have regular Starbucks Frappucinos during the A/C part of treatment. I wish I were cured of that inclination as opposed to being cured of ever wanting to see another popsicle in all my life! As is I stayed away from Starbucks since I seem to have decided to give up coffee after my surgery in September, so Frappucinos sound just as exotic and wonderful to me as ever.



    I go in for my first Taxol/Herceptin on Monday and will be getting weekly doses for 12 weeks. I really wonder how I will react. I hope the fatigue isn't like those last two A/Cs. I won't have my okay week 2 and my really okay week 3 any more with the weekly doses, but maybe everything will be okay instead?



    I've been reading the Taxol thread and talked to my oncologist and a nutritionist. Up to now I've only been taking a multivitamin and Calcium with vit. D and magnesium, along with a Warfarin to keep my port shipshape. I have now added the L-Glutamine, one complex vitamin B and 2 x 100 mg vitamin B-6/day. The vitamin B is not an anti-oxidant, and I was told not to take anything that is time-released as that puts more of a strain on the liver, and our livers are under enough stress as it is.



    So that's all I know to do to prepare for the Taxol. The calcium is for my teeth and the Bs are for potential neuropathy side effects and rebuilding nerve endings and such. That's what I was told anyway.



    None of us should add things to our regimen without running them by our doctors. They need to know what we are doing, and some doctors probably have suggestions of their own.



    Tomorrow is a big day for me. My work involves setting up a business class for US students in Paris each spring, and tomorrow is our first information/recruitment session. Three of last year's participants will be talking to potential students and those three have not seen me since last May. I got pretty close to two of them and we did lots of trekking around Paris and talking weddings (one of them was planning hers and we had just married off our daughter the year before) and stuff. I am apprehensive about how I will react to the three because the last time I saw them I had no idea what was in store for me (pre-diagnosis) and just thinking about seeing them makes me want to be weepy. I am also kind of nervous because I figure I look quite different now and since they are women they will know. Or wonder. On the one hand I have been very open about all I've been through, but this is the first time I confront my work life in my new, what, my new mindset? state? physical form and emotional shape? I know I am a different Anna, but I'm not sure how, at least not on the outside.



    I guess I'll be wearing my wig.



    So, a big Saturday for me and then a big Monday as well.



    I hope you all have a great weekend!



    Anna
  • mrsz0619
    mrsz0619 Member Posts: 39
    edited January 2006
    Good morning Ladies,

    Good to see you Kaye, popping in. i am so glad you are feeling a little better off the meds. Thinking of taking a trip somewhere? Keep us posted. Good for you.

    marylou, I went to your website, and read the entire thing. Great job putting it together. I agree, I would love to have some insight to all of the special people we chat with here on these boards, it is a nice idea. I have never made a website, but maybe I will look into it.

    I had my fourth and final A/C treatment Thursday, 1/19. I was a little nervous going in, anticipating the miserable few days after. It seems treatment #3 was lousy, so I guess I was dreading #4. The infusion nurse got me an ativan, along with the decadron and zofran. I managed the treatment fine, but was sick feeling all evening, and slept til 7pm, then at 10pm I started throwing up. ugh....first time, and last treatment, how weird. I did end up sleeping all night, and had no more episodes, thank goodness. I just layed around all day yesterday, and did nothing.

    I dont have to do Taxol, so I am done with chemo as we know it. I will be going back onto Herceptin, for a remainder of 9 months. scheduled 1st treatment for 2/16. I am due to have it every 3 weeks, for 1 1/2 hr drip. I have a mammo and u/s scheduled for next thursday, to have the surgeon plan the re-excision, to clean up the margin. hopefully that can be done soon, so I can get on schedule for the radiation. I need to go back to work, to keep health insurance, and will be postponing the bilateral/recon til later. Not my choice, but my only option. Cobra payments for my insurance are outrageous, and I lose my insurance april 5th, if i dont go back to work.

    I have a strong faith in God,and believe all will be fine with me. I also have a great support network, of friends and family. I miss working, and the socialization of that, so this will be a good thing. Tonight is a church supper, and should be fun. I hope I feel well enough to eat!

    Take care everyone, Love LynnZ
  • wenblown
    wenblown Member Posts: 25
    edited January 2006
    Just checking in. Grace - HOW AWESOME FOR YOU!!!! CONGRATS

    Anna: I have avoided any big business meetings for the very reasons you mentioned. I had always had work as one of my definitions of who I was, if that makes sense. Now, I do not do any kind of business luncheons or meetings. I felt lost for a very long time. I actually skipped a very important meeting on Thursday because of my anxiety of the situation. I did not want to wear my wig either, hee hee
    Good luck with your day Saturday as well as Monday.

    Nancy: For the bone pain, I take vicodin. It lasted day 3 to day 5/6 After chemo. I do use a heating pad also. The pain was in different areas with taxol though. I had alot of pain in my hips, legs and back. Neulasta with A/C just gave me bad pain in my left shoulder, although with both it hurt to be touched anywhere.

    I read alot of posts to catch up. I am glad alot of you all have moved on to better things. How wonderful is that

    I see the plastic surgeon this week on Wed about reconstruction and chemo on Thursday, bed on Friday...I hope everyone has a wonderful week.

    thanks for the great posts

    P.S. I had the BRCA 1 & 2 DONE THIS WEEK. I am very anxious as I have a 14 yr old daughter and two sisters.

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