2005 ROCK-TOBER CHEMO GIRLS

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  • ake
    ake Member Posts: 684
    edited May 2007
    Ok ladies. I'll be in and out all day....took the day off I'm having lunch with a friend, getting a manicure and pedicure, and a um...bikini wax (worst part of the day!) We leave tomorrow for Florida and I probably won't have any internet connection, so I just wanted to say have a good rest of the week and weekend and I'll be back to catch up next Tuesday

    Love you all!!!

    -Amy
  • debbie444
    debbie444 Member Posts: 847
    edited May 2007

    Pole dancing - its all i can do to get up when i have been sat down , never mind swirl myself around upside down on a pole!!

  • cathy987
    cathy987 Member Posts: 179
    edited May 2007
    Ladies

    I'm sitting in a Starbucks down the street from dd's apt. Had to send stuff to my office and can't connect and send attachments with my computer so here I am. Weather here is really nice. Will write more when I'm not in such a public place. Can do that on the computer in the apt.

    I'm about a block from Macy's so think I'll go do some power shopping. (I don't do power shopping.)

    Talk to you all later.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2007
    I'm gone for a few days and come back to find you girls pole dancing! LOL Hey...go for it...whatever floats your boat...You can actually have one put in your bedroom - if you're really into it! LOL

    I have been super busy with gardening, work, housework, etc. And I'm still working out every morning! In fact this morning I worked out and then two hours later walked 3 miles through our town with one of the survivors from my Illinois thread! It was great.

    Hope you're all doing well...more later...
  • Graycie
    Graycie Member Posts: 839
    edited May 2007

    Laura, I think you should put one in your house. You have those high ceiling's, you could really get a work out.....lol

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2007
    OMG - Graycie!
    I know what I'm buying you for your next birthday! LOL

    -----------------------------------

    Most of us are so stiff from Tamoxifen, etc. I wonder how we'd do! LOL

    ----------------------------------

    Did anyone even miss me?
  • Graycie
    Graycie Member Posts: 839
    edited May 2007

    I missed you, but I knew you have been busy......

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2007
    Awwww...thanks Graycie! I knew I could count on you! LOL Your new avatar is great!
    --------------------------------
    Girls -
    It's getting closer to our meet! Can you believe a whole 'nother year has gone by? It's as though time is just frickin' flying. Most days I just think that we'll all be okay. Cindy, of course I know that you're doing the repeat, but my thoughts of courage and strength are with you.
    -------------------------
    Please be well everyone.
  • ravdeb
    ravdeb Member Posts: 3,116
    edited May 2007
    Gail..love your new avatar. You look really good! That's how I wore my hair before it all fell out. It was about that length..maybe a touch longer. Not like I had posted once. That was a bit longer. The guy kept cutting it shorter all the time!

    Now I'm into short hair. Yesterday I saw a woman at the grocery store who works in the make-up dept who knows me and she noted that I had stopped coloring my hair. Not sure she knows my real secret but that was funny. I just smiled and moved on to the juice and water area to load my cart!

    Amy..have a fun week in Florida! I will get my manicure and pedicure there if I don't do it in Chicago. I don't trust the places here.
  • debbie444
    debbie444 Member Posts: 847
    edited May 2007

    Of course we missed you but knew youd be creating or running marathons or heaving rocks around or something!! Good to see you back.

  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited May 2007
    Good Morning Ladies,

    Just a quick note as I dont have alot of time this morning. Cindy all the best sister as you continue your chemo journey.

    My dh is taking Scooby to her "interim home" a lady who owns Scooby's half sister and lives on 60 acres of land. She is also a trainer. She will work with Scooby until our breeder finds her a proper home. We have signed back the "CKC" registration to our breeder as she wants her say in where she is placed and control of where she goes, which is what we want.

    We are sad and shed many tears last night. My dh is taking her this morning while I am at work, couldnt do it myself....

    We are headed up to the trailer for the weekend tonight after I get home from work and returning on Sunday afternoon.

    Ladies....have a faboulous weekend and Amy enjoy your "2nd honeymoon"!

    Love
    Michele
  • ravdeb
    ravdeb Member Posts: 3,116
    edited May 2007
    Michele..have a fun weekend! Oh..lots of women here are going away this weekend. I'm jealous! Have fun Ladies.

    Amy..Congratulations on another year of marital fun. You guys aren't in bliss mode but rather FUN mode and that is how it should be!

    Michele..I'm sorry about your puppy. I am moved, honestly, by the love you and your dh have for this dog no matter how difficult it has been. I remember "going outside of my body" so to speak when I had to call the animal rescuers to take a puppy from us that I couldn't deal with after he sat on my car! He was big. He had torn up the garden and the drip system and my dh was fit to be tied. But my youngest really loved this dog and was angry..really angry..when I did it. He was little and told me he had always wanted a black dog. He was really a pretty dog, with a little white spot on his neck and he LOOKED like a menace and WAS.

    Hard to have to say goodbye...
  • debbie444
    debbie444 Member Posts: 847
    edited May 2007
    OH Michelle , its sad. I am glad that the breeder is going to help you find him a new home.
    A trailer break is just what you need.
    I am on the internet looking to hire our car for August. Roger has decided he really wants a dodge charger. I am glad i wont be on the desk if they give him something else!!
  • debbie444
    debbie444 Member Posts: 847
    edited May 2007
    Aarghh - if there is anyone around , help me!!
    What insurances do you advise i get - this waiver that waiver - why dont they just do one!!
    Deb - when you fly into the Us , do they give you the I -94w on board????
    can you feel the panic setting in !!
  • ravdeb
    ravdeb Member Posts: 3,116
    edited May 2007
    Debbie..what is the I-94w? I'm an American citizen so I don't have to fill out anything, I don't think. Can't remember cuz that stuff doesn't stress me. Isn't that just the form where you have to claim what is in your bag? I just don't. I mean..I just have my stuff in there! And I never have an address to fill in anyway cuz then I'd have to dig into my carry on and find somebody's address!

    I am almost confirmed on all my flights but the one going back to Israel..oh darn! Actually, I have one but it's bad because I'll sit at JFK for hours on end eating and shopping. Not a good thing! I am totally unfamiliar with JFK and this is the first time in close to 20 years that I'm leaving the States from there. I always leave from Newark and am flying into Newark first. Funny but the other scenario I had with Continental (I'll be flying EL AL although I have frequent flyer on both of them) was to fly into Newark and to return via Newark and there was only a $20 difference. I prefer EL AL ( I enjoy the characters that fly on there...all the religious Jews. I get a kick out of it. I'm like the only one who does!)so that's what I chose. Besides..it's a better flight getting me there in the morning. And..then I don't get embarrassed when I speak Hebrew to the flight attendents. It takes me a while to switch to English only when I travel so on the plane last year I flew Continental and kept speaking Hebrew to the flight attendents. My daughter was laughing at me the whole time!

    Gosh..before you know it we will all be together. What a riot!

    Cindy..do you have treatments again tomorrow?
  • RoseMarie
    RoseMarie Member Posts: 502
    edited May 2007
    I need to go back and catch up on the posts but I quickly needed to just vent, cry...or whatever.

    My left arm, right below my wrist, has been hurting for a month and a half. It's my LE arm and when I went to the Onc a few weeks ago they looked at it and felt it was not cancer related - told me to go to my PCP. Yesterday it was very swollen so I asked my neighbor who's a nurse if it looked like a blood clot. She told me to go to the ER immediately. Thankfully, it's not a clot and I was in and out of the ER. But I had put in a call to the onc. and the nurse just called me back and said they need to see me again and do further testing. I'm freaking out and having a MOMENT.

    I am so freaking p**ssed off!!! I just want a freaking NORMAL LIFE!! I AM SO MAD that ANY of us have to go through this FLIPPING turmoil for the rest of our lives.

    I have an appt. with my PCP on Mon. and an appt. with the onc. (actually his physician's assitant) on Tuesday.

    Enough about me...back to reading the posts.
  • RoseMarie
    RoseMarie Member Posts: 502
    edited May 2007
    ok - the pole dancing, Rocktober, elephant sisters...laughter certainly is good medicine.

    Michele -sorry about Scooby!!!
    Cindy - hope you're doing ok still!!
    I'll be back later - I hope. It seems that I stay on the go lately!
    Love all of you and hope you are all having a wonderful day!!
  • cathy987
    cathy987 Member Posts: 179
    edited May 2007
    Ro-so sorry you have to go through this. I'm sure it will turn out to be nothing serious but the ongoing worry is what really gets to us. The image of us poledancing is enough to make us all feel more lighthearted.
    Michele-so sorry about Scooby. I know you did everything in your power to make keepin him work out and now you are doing what's best for him It's still hard.

    Good news here! TracyNY and I are doing lunch!

    doing this on my palm and am not good with my thumbs. Will try to get on dd's computer later.
  • debbie444
    debbie444 Member Posts: 847
    edited May 2007
    Rosemarie , sounds like you are having a bad time. Before this i didnt panic about health issues - now every twinge is the BIG C.
    The kids were laughing today as i was sitting on the garden doing some weeding when it started to rain. They ran inside but yours truly was stuck - couldnt stand up. I had to crawl to the steps to lever myself up while they stood at the window wetting themselves with laughter!!
    The I-94w is for non US - the I-94 is for Us citizens i think. It kind of comes after the visa - you fill it in at customs ( i am hoing thats the case anyway) to promise you dont intend stopping ,i think. Gosh - cant you just tell what a seasoned traveller I am LOL
    I am coming back via Newark I think.
  • debbie444
    debbie444 Member Posts: 847
    edited May 2007

    I just knew it _ cathy is making it around visiting us all in turn before Aug. when is it my turn ? Iwill get my hair done!!

  • Graycie
    Graycie Member Posts: 839
    edited May 2007
    Rosemarie, I really don't think it is cancer related but then again I'm not a doctor. It sound's to me like carpal tunnel. Try and calm down and see what you PCP has to say on Monday. It still could be from having the lymph nodes out because mine did that last summer and the swelling never really went down. It seem's to act up in the heat. My ONC always' looks at both my hands and said I just have a mild case of lymphedema in my hand. I will keep you in my thought's and pray for good results.

    Hey girls, I am so proud of myself I got on the scale this morning and I lost 4 lb's. I have been trying to eat less and have been bike riding or walking every morning and night. I only have one problem my friends are taking me out for a belated birthday lunch today so I have to be careful.......lol

    Michele, Sorry to hear about Scooby but that happen's with some dog's. We had a German Shepard once that just wasn't right, even the vet said there was something wrong with him. Way too high strung. To tell you the truth they may work with him but it may not do any good. You are lucky she is willing to take him back. I know it is sad for you because you are attached but you don't need that added stress. Think about it as doing it for your health maybe that will help.

    I hope everyone is having beautiful weather like we are. Get out and get some vitamin D from the sun. I just read an article in this morning's paper that Roswell Park Cancer center think's vitamin D play's a big role in preventing the cancer cell's from growing. I will see if I can find the article on line and post it. Sunshine is the best source.
  • TracySeattle
    TracySeattle Member Posts: 690
    edited May 2007
    Morning all.....

    This info came in my Komen Newsletter this morning, thought you all might be interested:

    Susan G. Komen for the Cure Commissions Study on Environmental Factors Linked To Breast Cancer

    Study Results Published in Cancer; Free Access Available to Mammary Carcinogens Database

    DALLAS - May 14, 2007 - Susan G. Komen for the Cure and the Silent Spring Institute announce the publication of Environmental Factors in Breast Cancer, the most comprehensive review to date of scientific research on environmental factors that may increase breast cancer risk. The study findings were released today in the online version of the scientific journal Cancer. A hard copy version of the study will be published as a supplement to the June 15 edition of Cancer.

    The state-of-the-science review, commissioned by Komen for the Cure and conducted by the Silent Spring Institute with additional researchers from Harvard University, Roswell Park Cancer Institute and the University of Southern California, collected and assessed existing scientific reports on potential links between specific environmental factors and breast cancer.

    Researchers identify 216 chemicals that cause breast cancer in animals
    The researchers synthesized national and international data sources and identified 216 chemicals that cause breast tumors in animals. They used the information to create a unique searchable online database featuring detailed information on the carcinogens.

    Free, searchable online database - carcinogens
    The database, accessible at www.komen.org/environment, is available free of charge and will be of particular interest to researchers, healthcare workers, policymakers and some members of the public.

    Komen's goal in funding the initiative
    Komen for the Cure's goal in funding the Silent Spring initiative was to determine where there is consensus within the scientific community on the relationship between environmental factors and breast cancer and where additional research or improved research methods are needed. Such information can help guide public policy and help funding organizations like Komen for the Cure to determine where to most effectively target research grant monies.

    Study details
    The database includes references to 900 studies, 460 of which are human breast cancer studies that were critically evaluated by the research team. The studies measure breast cancer risk related to body size, physical activity, environmental pollutants, and prospective studies of diet. For each study, bibliographic information, key methods and findings, and a critical assessment of the strength of the evidence is included.

    The database reveals that among the 216 compounds that cause breast tumors in animals:

    -- 73 have been present in consumer products or as contaminants in food

    -- 35 are air pollutants

    -- 25 have been associated with occupational exposures affecting more than 5,000 women a year

    -- 29 are produced in the United States in large amounts, often exceeding 1 million pounds per year.

    "Komen is eager to see quality science yield answers that will eventually lead us to our ultimate goal of knowing how to prevent breast cancer. Commissioning this study is a step toward that goal, because it helps to determine what is known and what is not known about the possible link between certain environmental factors and the incidence of breast cancer," said Hala Moddelmog, president and CEO of Komen for the Cure.

    "While it is disturbing to learn that there are so many chemicals that may be linked to breast cancer, there is also a great opportunity to save thousands of lives by identifying those links, limiting exposure and finding safer alternatives. It is critical that we integrate this information into policies that govern chemical exposures," said Julia G. Brody, PhD, executive director of the Silent Spring Institute.

    Silent Spring Institute examines lifestyle influences
    The Silent Spring Institute study also examined lifestyle influences on breast cancer, such as physical activity and diet. The study results underscore the importance of regular, life-long physical activity to lower a woman's risk of developing breast cancer. The study concluded that further research is needed to determine the relationship between dietary factors and breast cancer risk.

    Komen funds additional environmental projects
    In response to the study's findings, Komen is now funding the development of new and innovative models for researching breast cancer and environmental risk factors. Komen also continues to fund environmental projects as part of its investigator-initiated grants program and is actively looking for ways to partner with other research groups such as the U.S. Centers for Disease Control and Prevention Environmental Health Labs.

    Susan G. Komen for the Cure is committed to continuing its involvement in the investigation of environmental factors related to breast cancer and is funding a second phase of the Silent Spring Institute study. Phase two focuses on the toxicology of endocrine disruptors, perinatal and early life exposures, non-hormonal pharmaceuticals, tobacco smoke, occupational exposures, exposure to light at night, and stress and social factors.

    "As an advocacy organization, Komen for the Cure is committed to educating people about what we know about breast cancer today, while continuously searching for evidence that will provide answers for tomorrow," said Moddelmog.

    Cancer is a journal of the American Cancer Society.

    About Silent Spring Institute
    Founded in 1994, Silent Spring Institute is a non-profit research organization dedicated to studying the environment's effect on women's health, with an emphasis on breast cancer. Silent Spring's groundbreaking research on endocrine disrupting compounds and pollution in homes has been published in Environmental Science & Technology, Environmental Health Perspectives, and other scientific journals. Silent Spring Institute scientists work in partnership with physicians and public health advocates, and researchers at Brown University, Harvard University, SUNY- Stony Brook, and elsewhere. Funding for Silent Spring Institute's research is by grants from the National Institutes of Health, National Science Foundation, private foundations, and individual donors. For more information, please visit www.silentspring.org.
  • TracySeattle
    TracySeattle Member Posts: 690
    edited May 2007
    I just went out and took a look at the database referenced in the article I posted..... VERY interesting information and a lot of it....

    check it out!
  • TracyNY
    TracyNY Member Posts: 434
    edited May 2007
    I went to a meeting this morning that was so far uptown in Manhattan, I damn near needed a visa!! I had to walk a million miles from the train station to the meeting site and it is hot as the dickens!

    Cathy and I were supposed to meet for lunch but she got the time for her pre-op appt. muddled up so I went into Bergdorf's, picked up a few items and headed back to the salt mine where I have to clear my desk and delegate a few projects before I skeedaddle.

    My stylist still can't find what he needs to make my new wig so I am going to take off the one I have and go natural for the vacation. No-one knows me over there so I can look anyway I please!! I have to meet him after work, pick up my prescriptions, collect my washing, pack for heavens sake... aaagh!! Help!!

    Anyway I plan to have a great time and I'll catch you all when I return.
  • Graycie
    Graycie Member Posts: 839
    edited May 2007
  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2007
    Meeshell -
    So sorry about Scooby...that is such a difficult situation...sorry you had to go through it.

    RoseMarie -
    I had goose bumps reading your post...I hear you loud and clear! I hope it's nothing, but I can truly understand your concern. I hope your appt goes well.

    Amy -
    Ahhhhhhhhhhhhhh...enjoy! Happy Anniversay!

    TaDah -
    Hey...b/4 you know it, you'll be sipping foo-foo drinks with cute little umbrellas in them! You will soon feel like a new girl!

    Debbie -
    Hang in there...I had the same situation with all the forms when we went to Mexico...Rog: Good choice - I think you'll love the Charger!

    ------------------------------

    I feel like Ro right now...on and off for a couple of weeks, I have had pain in my left armpit! That happens to be the bc side - and also the side that I had 11 Axillary Lymph Nodes removed from. I think it could be from working out, but on Monday, I was digging with a shovel, and when I used my arm to toss the dirt, I got an incredibly painful shooting pain in my armpit that shot down to my elbow! I almost fainted from the pain. I went inside the house and Roy could tell from the look on my face that something very painful was happening. I took two Aleeve and rested and a couple of hours later it was sore, but much better. We looked at a medical chart and right where the pain is, there's an Axillary Nerve there. So, now I'm worried that something is going on in there - possibly related to the fact that my Sentinal Node was positive! It's always something...I am going to call my surgeon. Maybe he can put my mind at ease. I don't think that a nerve can be damaged from exercise? Do any of you know? I would think that a muscle or a tendon could, but a nerve?
  • Graycie
    Graycie Member Posts: 839
    edited May 2007
    TracySeattle, That was interesting. I think we all need to live in a bubble..

    Tracy NY, Have a great trip which I am sure you will. Can't wait to hear all about it when you get home.
  • ravdeb
    ravdeb Member Posts: 3,116
    edited May 2007
    Gail..the best thing would be to join a nudist colony and live on a sunny beach.
  • Graycie
    Graycie Member Posts: 839
    edited May 2007

    Laura, Maybe you have a pinched nerve or had one for the moment. Not sure how the nervous system works. lol......hopefully it is nothing. I have all these weird nerve things going on, I'm still blaming everything on Taxol...the sore armpit could be from exercise, been there done that.

  • Graycie
    Graycie Member Posts: 839
    edited May 2007

    Ravdeb, Wait a minute.........a nudist beach?.....lol...You might have something there.....haaa

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