Starting Chemo May 2008

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  • ewesterman
    ewesterman Member Posts: 417
    edited July 2008

    Cris

    Keep thinking. You will find it You don't deserve to feel this crappy. 

  • drcrisc
    drcrisc Member Posts: 836
    edited July 2008

    Thanks, Eddie.  I'm trying...my consolation is that no one is home but me and I can hang out all day with you guys, er, gals, if I want to.  And I think I wanna!

  • drcrisc
    drcrisc Member Posts: 836
    edited July 2008

    Found it!  I actually wrote in my appointment book - called him and he will call something in later this afternoon (not sure why later, but I don't really care!).  Whew.  Maybe I'll be able to sleep tonight...

  • lisaO
    lisaO Member Posts: 7
    edited July 2008

    Hey Sable - the eye watering stopped for me a couple of weeks after I finished A/C.  Thankfully I've had no sign of it with the Taxol treatment which I am halfway through.

    Cheers, Lisa

  • otter
    otter Member Posts: 6,099
    edited July 2008

    Hmmmm.... Career Day.  This will blow my cover, for sure.  I need to give a preface: 

    9th Grade:  Wanted to be a veterinarian.  Gave a report on veterinary medicine for career week.  High school guidance counselor (male) said vet medicine was not an appropriate choice for a girl; the work was too strenuous and too dirty--think of something else.  So I decided to be a biochemist.  :)  Ha ha.

    College:  Majored in biochemistry/microbiology; graduated (B.S.); got a really great job as a technician in a lab at a vet school.   Went to grad school part-time for a few years, then full-time.  Majored in microbiology/immunology.  Graduated (Ph.D.), and 2 weeks later I started vet school (it was inevitable).  Never did plan on practicing--I was way too academically oriented, I guess.  I love libraries.  Finished vet school; found a really great job.

    Career:  University faculty member--teaching/research/clinical diagnostic service/politics, at a different vet school.  Retired last year after working there 25 years.

    That's it.  People used to ask my mom if I'd had trouble figuring out what I wanted to do with my life, and that was why I was in college for so many years....

    otter 

  • ellenoire
    ellenoire Member Posts: 674
    edited July 2008

    hmm, my turn. I feel barfy and gross still, but am trying to stay distracted. Day 5 is usually better than this, but I can barely stand up without feeling crappy.

     I grew up 2 blocks from here (about an hour from Toronto) 

    1985 College- Middlebury College, Vermont-Theatre, Dance Film Major with a concentration in Hebrew Literature and Language. ( yes, I was a little confused) Dropped out in Sophomore year. Returned to college town yearly to visit friends and little perfume/ bath product store on the main street.

     1987 to 1993 - had various jobs in various countries and cities, mostly waitressing. Hated everything, bounced from relationship to relationship. My motto then? " I'd probably be famous now if I wasn't such a good waitress!" 

    1993 - was told by a friend to stop whining about my life and to start this perfume business that I apparently never  stopped talking about.

    1994- opened part time perfume/ bath product business in my living room and continued to waitress and have bad relationships

    1996 to 1999 had my child, left jackass boyfriend

    2000 to Present- took business courses while raising child alone, opened the first perfume/ bath product store in '02 and have been doing it full time ever since. My specialty is custom making natural fragrances, and custom scenting/ creating the recipes for the bath products that we hand make.

     I hope to go back to school someday, but this is the career I have now!

    Cheers, Noelle  

     

  • ranD
    ranD Member Posts: 373
    edited July 2008

    Wow, is it just me or does bc strike talented and, interesting women?Cool

    Noelle, Day 4 for me and it is usually better as well.  Sent dh and all the kids over to a friend's house to swim.  My 16 yo is dogsitting for them and since they have a pool, it will be a quiet week here!

    Right now, I am thinking I need to get something in me. So, I pulled out a loaf of Costco garlic bread, some fresh tomatoes and some fresh mozzarella...anyone want to join me in the terrace with some nice vino???????lol, ok, no vino today, but I am seriously going to put away at least a half loaf......

    randie

  • drcrisc
    drcrisc Member Posts: 836
    edited July 2008

    Ooo, Randie, that's right up my alley today (but definitely no vino).  That's kinda sad...

    Can I just say, I have been eating/craving the oddest things?  Things that make absolutely no sense at all, yet I must have them.  Back to the Taco Bell (like last time), and anything, tangy/salty/crispy - yes, like chips.  I tried to eat an apricot (a homegrown one, even) and had to spit it out.  Just weird...

  • Sable
    Sable Member Posts: 738
    edited July 2008

    Cris~ the zofran only barely worked for me the first time. Then they switched me to ativan it worked for one treatment.. then I got to take both at 3 hour segments and that barely worked as well. Hope you get to feeling better!

  • Sable
    Sable Member Posts: 738
    edited July 2008

    Oh randie if I only could! even yogurt is giving me heartburn... this is killing me!

    Gee I need to add to my list of jobs now LOL.

    Did your waitress, conv stores, fast food junk, photographer, then walmart till my late 20's. Then got a bright idea I wanted to DJ on the radio. I did that at 2 different radio stations, one country, one top 40. Then decided I needed to go back to college and actually do something that pays. And here I am Cad-person extrodinare. How's that for jumping all over the scope LOL.

    Lisa~ YAY! there is hope my eyes will return to normal soon! Oh I can't wait!!! I'm gonna ask onc if this pesky heartburn will disappear soon as well. I really want food with some flavor.

     Eddie~you and I are taxol #1 on the same day. I'll send you good vibes from my end! And I've always wanted to learn how to play mahjong in RL. I love playing on the computer.

  • KristyAnn
    KristyAnn Member Posts: 793
    edited July 2008

    Hi Everyone,

     I have finally made it back online after TCH last Thursday- a littlr more fatigue this time around although tolerable- mainly because I keep thinking only one more!

    I work in IT- Im the IT Team Leader for the Human Resources Dept at my company- which means I deal with a lot of data and mainly with people who are cluess about their data!  I actually have a BS in Geology and a MS in Computer Science- which explains why I like all the scenic mountains and volcanoes and beaches we choose for our weekly trips.

    Wierd se this weekend and once after last treatment too - but I didnt think it was a se last time- middle of the afternoon- palms of my hands start itching terribly, then arm starts itching aroung the PICC line, then face is itching and Im hot- it feels like an allergic reaction except I havent eaten anything in hours, today I also had dry heaves for a couple of minutes, then my lips swelled up- I sat under a fan and alerted the family in case we had to leave for ER. After a few minutes it started subsiding and over several hours all the itchy tingly lips etc went back to normal- I have NO CLUE what this is and will be calling in the morning- any of you ladies have any ideas? Maybe it was just some horrible chemopause hot flash? Im baffled!

     Sucking on an atomic ball- cinnamon candy - while you drink water makes water taste better when you are in the taste buds from H**** stage! 

    Kristy 

  • ellenoire
    ellenoire Member Posts: 674
    edited July 2008

    Sable- ask your Doc for Nexium for the heartburn. It saved my live during A/C. I tried over $200 in OTC meds for heartburn and Zantac and Nexium is the only thing that helped.

    Kristy! that SE sounds nuts! I hope you work out what it is....

       N

  • rock
    rock Member Posts: 1,486
    edited July 2008

    Randomly -- and probably incompletely -- because I am distracted by almost finished index and my friends' new family member!

    1.  I am going to DC next week to play mah johng with girlfriends from my undergrad days in Kansas!

    2.  Taxol -- no dry eyes, far fewer side effects.  Hopefully, there will be no allergic reactions but the nurses will probably watch you very very closely so you both should be okay!

    3.  I'm sorry some of you are getting whacked repeatedly with the side-effect crap stick. NOT FAIR.

    4. Noelle -- what cities have you lived in? I am so very very jealous. I SUCK as a waitress but I am an excellent typist. 120+ wpm.  And Otter? A-HA! I am so relieved to learn of your background. I swear, if you had said, "I have a PhD in Art History but science just comes easy to me" I would have hit myself in the head with a shovel.

    5.  I love reading about people's lives. Especially how we got whereever we are.  Okay. So I'll see how far I get with mine. 

    Childhood -- grew up in very very rural area, outside a town of 500 people in Kansas.  Went to college to study speech pathology (I know some sign language, and the phonetic alphabet -- was signing 3 weeks ago at chemo!) but dropped out when I broke up with a boyfriend. I moved to England for 6 months and wound up working with homeless people who were mentally ill, violent, addicted to drugs or alcohol or all of the above. Experience changed my life

    21. Returned, changed major to one I made up. Road trip to DC with bf to see a friend who had testicular cancer for the second time. We broke up  but I stayed in DC.

    21-22? 23? Worked for Defense Department as a clerk; we investigated fraud and I went to the Pentagon every Tuesday to buy delicious raisin bread at their bakery. Volunteered with Mother Theresa's nuns at her AIDS hospice. Got accepted to Peace Corps. Turned 'em down to get engaged to a plant geneticist though that didn't work out.

    24-29. Got a PhD in Sociology: Justice. Dissertation examined sentencing of men and women drug offenders, and how whether or not they had kids influenced their sentencing. 

    30-42.  Got a tenure-track job and moved to NYC. My research is mainly focused on women in the criminal justice system. Early work also looked at HIV/AIDS.  

    Now. The book I'm finishing now looks at the criminal justice system and how it regulates women's reproductive rights (e.g., hard to be a good mother when you're being beaten, hard to have good repro health when you're locked up).

    Other: I learned to play the guitar (a little) a few years ago, and I picked up piano again. I love my life and I'm happy on my own (not dating at the moment, zero interest in marriage), but there are many times I am jealous (not in a mean way) of people who are happily with someone, making plans together, traveling together, owning a home,  helping each other out, making each other sandwiches, going on bike rides, building some shelves, fetching water or tacos, holding my hand, picking me up at work, you know?

    Gotta go. There is a lump in my throat and I don't think it's a side effect!

    Big hugs to everyone.

  • rock
    rock Member Posts: 1,486
    edited July 2008

    Cris -- I love your photo.  And I can relate to not knowing where the phone number is. I have my onco nurse's phone number scrawled on a ripped-off scrap of paper that I've been moving around since early May -- it's not even a post-it!!!!!  I swear, when they told me I shouldn't write on the back of my hand anymore (the anti-Palm Pilot), I lost my major means of keeping track of things!

    Into Thin Air and the other steroid-breast cancer-climber movie -- both fantastic! I am a sucker for documentaries.  And who knew we had so much in common with people who climbs mounts besides our love of yodeling.

  • otter
    otter Member Posts: 6,099
    edited July 2008

    Aw, Rock, I know it's not the same thing, but we'll slog through the hard times with you, and help you out, and make you (virtual) sandwiches, and hold your hand (especially during chemo, but whenever you need comforting).

    otter

  • Roxi65229
    Roxi65229 Member Posts: 462
    edited July 2008

    All I can say is what an amazing group of women we have here. You are all so awesome!

  • rock
    rock Member Posts: 1,486
    edited July 2008

    Amen. 

    I do feel the support. And it means everything to me, on days good and not-so-good.

    xoxo.

  • Sable
    Sable Member Posts: 738
    edited July 2008

    k I feel a tad better about the taxol this week....... well sorta. I can't help but still feel nervous about it.

    We sure have a big variety of smart women in this group. Bravo ladies!

  • familyroks
    familyroks Member Posts: 575
    edited July 2008

    Wow...what an amazing and very interesting group of women you all are.  I have obviously led a very tame and sheltered life.

    Sable - I know you won't be able to calm your nerves until you get the first round of Taxol behind you.  I was the same way.  I will say that I am so happy with how much better Taxol is for me.  A little bone pain day 4 & 5 (yesterday and today).  I find staying on my feet to help.  Constipation for the first time in my life after Taxol #1, so for Taxol #2 I started drinking Prune juice the night before treatment...1 glass.  Then for the next 5 days, a glass in the morning and at night before bed.  So far it has worked.

    ~Adrienne 

  • drcrisc
    drcrisc Member Posts: 836
    edited July 2008

    Thanks, Rock for picking up on the photo change.  It's my way of posting pics (until I can have enough of an attention span to figure out the other way) even though they are very, very tiny.  That is my little dd.  They are both spending the night with Grandma 'cause dh is at work and I can barely take care of myself today.  Although the older one tried to talk me into letting her come home with "but I'm the easy, helpful one!"

    It's a little funny about the phone number - I was actually looking for the business card and I had copied the number into my little bc organizational book - which I got before I started chemo or it would have never happened!!

    Otter - my nephew has just moved up to Seattle, WA (hi Eddie!) to get his PhD in biochemistry.  He got a full scholarship for the next 4 years plus a stipend to live on!   But...he really wanted to go to vet school and has worked for a vet since he started high school.  I wouldn't be surprised if he ends up in vet school, which, I hear, is harder than medical school.  Wink

  • sueper13
    sueper13 Member Posts: 1,224
    edited July 2008

    Cris,
    I'm with Eddie.  You'll find it.  Feel better.  Channel shovelgirl.

    Love ya.

    Sue 

  • drcrisc
    drcrisc Member Posts: 836
    edited July 2008
    Sue - I did find it and he told me to take Benedryl (basically, to knock myself out) and then come in first thing in the morning if it's not better.  WTH?  I live across from Walgreens - call it in, man!!  I guess I shouldn't complain too much - at least he returned my phone call on a Sunday night.  Now for the drugs...
  • Gracie713
    Gracie713 Member Posts: 302
    edited July 2008

    Good morning ladies!

    My career story.....started out in retail--went to a junior college right out of high school and got my degree in merchandising.  Worked for a short time managing a clothing store, then found out was pregnant with first dd.  Took time off from work to take care of my mother and then after having dd, went back to work in a small retail store.  When dd was 6 months old, met dh and have been happily married for 27 years.  Was a stay at home Mom for awhile, and continued taking care of my Mom until her death in '82.   Moved out of state, had second dd.  DH was layed off from his job, so we moved to Southeast KY, where he grew up.  Started working in a nursing home as an aide, then went back to school and got my nursing degree.  Worked in nursing home for another year, then went to a doctor's office.  After a couple of years, decided I needed something more challenging, so I worked for a temporary staffing agency, going to various hospitals and gained a lot of experience, including management.  I then worked at a small hospital for 6 years, working ER and medical, did ambulance runs on occasion. I have also worked in ICU and post partum.  After that I returned to long term care and that is what I have been doing for the last 5 years--and I am back at the long term care facility where my nursing career began.  I an scheduled to go back to work on Aug. 7, but won't be doing direct resident care-I will be working in administration, learning the MDS and QI process, in other words, paperwork--which is okay because I always enjoy learning a new area of nursing.  This change is to keep my exposure to germs/bacteria at a minimum.  Rock--I still have my nursing cap and wore it during the early days--very proud of it because it took a lot of hard work to get it, but really glad that we no longer have to wear them!

    On the personal side, We have 3 children--yours, mine and ours and a total of 11 grandchildren (7-I'm counting the one due in 2 weeks, plus 4 step grands, who I love dearly)  We live a quiet, country life but will probably be moving closer to the "city" soon. 

    Thinking of all of you who have treatments this week.   

  • otter
    otter Member Posts: 6,099
    edited July 2008

    Re:  contact numbers and life choices....

    I am so bad about scribbling something on an odd scrap of paper, or carrying a critical document into another room, and having it vanish.  I never did use my hands as notepads, and I have to tell you:  when I see a nurse do that, it makes me really nervous.  What if that's my BP on her hand, and later she thinks it's my blood glucose level?  But, I'm not nearly as organized as everyone (except my dh) thinks I am.

    What I do when I don't want to lose something is make a zillion copies of it, and leave one in every place I might possibly look.  So, I keep a list of my BC contact numbers and docs' names in the "chemo portfolio" I was given at the infusion center, on the desk by the telephone in our kitchen, in my overnight suitcase, in a pocket of the computer case I use with my laptop, and in a "folder" on the desktop of this computer.  No point taking any chances.

    I did want to comment again on the "job" issue.  Choosing the path I chose did take a lot of time and patience, and even a lot of money.  But, one reason why I chose an academic career, instead of any of the myriad of other choices, was job security.  I wanted to know that, after a certain number of years and amount of effort, there would be some assurance of stability in my job and my paycheck.  I also checked out the benefits package, which turned out to be better than I realized (especially for retirees).

    I can't begin to tell you how much respect and admiration I have for people who have carved out their own career paths, or who go through life without any of the stability and job security that was so important to me.  Some people thrive on risk-taking.  I can't make a $2.00 bet at the dog track, and I've never bought a lottery ticket.

    Being a parent is one of the riskiest, least predictable, "jobs" I can imagine.  I never took that risk, either, although I do have a wonderful step-son who I like to think of as the best wedding gift I received.

    otter 

  • Sable
    Sable Member Posts: 738
    edited July 2008

    Well so much for rain today. Had a nice BIG storm heading our way and once it got close it disappeared. Guess I am watering plants int he morning.

    Anyone else have to wear compression garments at nite or some sort of padding? My swelling is all in my chest area and I have to wear a under armour brand shirt at nite under my jammies. Along with makeshift temporary padding for the swelling. My therapist was supposed to have ordered more permanent padding for me about a month ago and I still haven't heard anything. She's a tad bit spacey if you ask me. I will be glad to get to a point where I might not have to wear these everynite.

    Otherwise my day is going pretty well. Got a bit of work to do today, some laundry, lots of stalling before I actually work lol. So far no heartburn but I know as soon as I hit send on this it will probably rear it's ugly little head. Tongue out

  • angelsaboveus
    angelsaboveus Member Posts: 298
    edited July 2008

    Happy Monday Ladies,

    Wow after reading everyone elses career and life choices mine is quite boring in comparison.

    Moved to Nelson when I was 4, Age 15 got a job in a local drugstore as reciever, kept working after graduating high school. Didn't know what i wanted to be when i grew up (still don't!) so didn't ever make it to college. Did make enough money to buy my childhood dream of owning a horse, moved out at 17, not because i didn't like it at home, but was independent and needed to try it. Started seeing my husband in the Nov. of '83 age 19 and we got married the following Sept., (no point in waisting time when you know it's right!)  So I guess after 3 kids 21,19 & 12 and 24 years of marriage (I"m 44) my career could be summed up as domestic engineer.  Sometimes i wonder where i would be if i had gone to school and where that would of taken me, then i think  if i had done that the husband and the 3 kids in that picture next to me wouldn't be there and I know then i have made the right decision with my life and it has been all worth it!   This year i did go back into the work force and was helping out at our family business and thoroughly enjoying it until......well you all know the story from here.

    I do admire all you women who did take the career path as it too takes alot of courage to juggle relationships, homelife and work all together.

    Sorry for the ramble, feeling a little emotinal today ....sigh

    Have a great dayInnocent

  • familyroks
    familyroks Member Posts: 575
    edited July 2008

    Angels - Not boring!  Just a different path.

    I did not attend college either.  I went to high school overseas, in Taiwan.  As soon as I could, I came back to the states with a classmate of mine.  Arrived in Washington state in 1982, having never been here, and its where I've been ever since.  I married at 20, had children and worked most of my life.  I had a successful career, having worked my way up from the bottom, in the debit/credit card and data processing/technology field.  I made what I thought was a good move into the dot com world taking my years of experience with me.  Well the dot com world crashed big time.  Company closed.  During that time, the job market here in Seattle was horrid.  After what seemed like forever looking for a new job, I made the decision to stay home and take care of the family for a while.  That was 6 years ago.  Wow...I can't believe I survived at home this long!  One DD (21 yo) now lives in Nebraska, the other DD (18) just graduated high school and will be going to college.  So that leaves me, my DH and my DS (8).

    I was just starting to get the bug to start looking for a new career when "this" happened.  When I'm done with treatment, I will go back to work.  I enjoyed working.  I just don't know "what" I'll be doing.  At this point, I'll be starting over and that is just plain scary.

    I hope everyone is having a fabulous Monday. 

    ~Adrienne

  • Jeano77
    Jeano77 Member Posts: 237
    edited July 2008

    What an interesting (and amazing) group of women.  No Angels, your path is not boring.  A path that involved 3 kids could never be boring . . . Wink

    I graduated from college (mktg & finance, minor in IT) into a job market that was difficult to find work.  I feel backward into programming position for a few years then moved into a job as a technical instructor (teaching others how to program).  My biggest fear was speaking in front of folks, so I thought the best way to get over the fear was to take a job doing exactly that.  I spent the next 5 years traveling 90% of the time teaching courses and seeing the country.  I grew tired of coming home to an empty house, so I took a job in network design (no travel) and bought a dog (my chemo companion shown).  Smile  I picked up my Masters in Communications in my late twenties and have spent the last ten years designing local area networks and wide area networks for large customers.  It involves routing, switching, wireless network, IP Telephony . .  . this is where family and friends generally roll their eyes with boredom.  I am thankful that I love what I do for a living. 

    Gracie:  I keep looking at your photo wondering how you could possibly have 11 grandchildren - you look so young! 

    Happy Monday to all!  Jean

  • Roxi65229
    Roxi65229 Member Posts: 462
    edited July 2008

    Ladies,

    I have a question and don't know who or where to ask. Maybe I need to start a question on the forum tab but I have no clue how to do this.... 

    My plastic surgeon said I have to wait 9 months for my swap surgery to allow the skin to stretch. Nine months puts me at February. I would really love to have it yet this year. Have you ever heard anything about the optimal time to wait? I have a vacation scheduled in March and would like to have been through the recovery process. I hear the trans recovery is 6-8 weeks.

    P.S. I buzzed my little bit of hair I have left to 1/2 ". I'll post the photo later. Keeping some for the wig....

  • lewing
    lewing Member Posts: 1,288
    edited July 2008

    I'm loving this exchange of bio's.  Here's mine:

    Started college thinking I wanted to be a journalist (of the muckraking/hellraising type).  But, instead of majoring in journalism, I decided (smartly, I think) that my major should help me understand the things I wanted to write about.  So, I focused on economics (actually, it was an interdisciplinary social science program, but my particular course of study was heavy on economics). 

    Was politically active in college, did an internship in the legislative office of a union, loved it, and hung around for a few years after graduation before heading off to graduate school in New England.  Loved teaching, but didn't care for the rest of academia, and didn't finish my PhD.  (That makes it sound like a conscious choice: "Dang it, academic life isn't for me!  I'm going to stop working on this half-written dissertation right now!"  In fact, it was much slower and more agonizing.)

    After coming back to Michigan and working in a regional think tank-type place for a couple of years, I wound up back at the same union where I'd started, this time in the research department.  And that's where I still am, 17 years later.  I love the work I do, which involves a mixture of number-crunching (industry trends, costing out contract proposals) and writing and speaking and, these days, supervising other staff. 

    Along the way, I was married (briefly), had my daugher, divorced (still friendly with my ex, though I could never, ever live with him again), and floundered emotionally for a long time.  Not quite two years ago a college friend fixed me up with someone I'd admired from afar - even had a crush on - during our college days.  (This person had actually graduated before I got there, but we had a lot of friends in common and his reputation as the nicest guy ever lived on.)  It was maybe not the most promising set-up, seeing as how we live in different cities, but something clicked and we've been together ever since.  It's hard to imagine going through this whole bc ordeal without him.

    . . .

    In other news: I do believe that the hair on my scalp is now longer than the hair on my legs, which I count as a milestone.  And for once, I was happy when the (mild) neupogen pain started to kick in around Day 10.  I need those neutrophils!

    Linda

    Edited to add: Of all the surprising things I learned from the life stories here, one of the most surprising, to me, was the fact that you can buy delicious raisin bread at the Pentagon.  Who'da thunk it??

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