Am curious and would like to ask a question
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Does anyone every feel totally back to normal. I mean I feel fine, mentally I am happy. But there is always a feeling of a band around my chest under the breast, my underarm pit and underarm is still numb down to the elbow. I still bothers me to raise my arm reaching really high. It also bothers my trying to lift really heavy things such as helping my husband move a wrought iron picnic table yesterday. It has been 4 years and I don't think I will ever be as strong and totally pain free again. Just wondering is I was normal.
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I will have my 4 year anniversary in September. I still feel twinges if I reach too high or over-use my chest muscles. It's a constant reminder. Not to mention the news stories that pop up everyday about new developments in treatment. No, I don't think we ever go back to normal, totally. We go on but it's a new state, not the same as the old normal.
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I "celebrated" 4 years a couple of weeks ago.
I get weird feelings in my chest sometimes, but it's not a constant reminder. I think one legacy of the cancer surgery is that you will have scars and they need to be stretched all the time. Plus we're all four years older!
If you aren't in the habit of lifting heavy things I think you could expect to feel it after moving a wrought iron table around!
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I will be five years on November 3rd. I think we reach normalcy again but it is a new norm. And I don't mean that in a negative manner. I think cancer changes us forever much the same as any life threatening event.
After all this time I still have side effects from all the surgeries and have just accepted the fact that this is how my body feels now.
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I had gotten to the point that I could barely walk. Would get out of the car and have to stand there for a while to get all the joints in line.
I was rehabbing to get my quads in shape to get a knee replacement and began working with a trainer in the pool 3xwk. I progressed to 1xwk on the floor (workout room) I began in so much pain, people had to close my car door for me, I couldn't reach it. I crashed for the rest of the day at home.
I increased my upper body strength from 4 lbx to 65 lbs. in 6 mos. I have delayed the knee replacement to ??? don't need it now. I also swim laps for 30 and work with the trainer for 30 min. (no machines) (trainers are cheap around here, $10/half hour. I no longer feel guilty about the $ since I don't play gold or tennis or what ever)
I spend at least 15min streaching every day----have only lost about 10 lbs but have had my slacks taken in 2x and can wear nice clothes that fit better and I stand taller with better posture.
Now, I''m really not bragging----I was in the worst shape of my life and could barely walk around, let alone any distance, and was very short of breath. No upper or lower body strenght. I am a plus size woman and will likely never loose it now that I'm almost 65, but by George, I feel pretty dang good.
I have never given much validity to the"you need to exercise, you'll feel better" theory. I just didn't beleive it. I was very wrong.
I began the work out to just become flexible again---and have. I had a beer to celebrate when I was able to touch my toes! I needed to get upper body strength---couldn't open a bag of chips, let alone a jar. Now I work in the yard, get up and down(totally unable to do that before) I have leg strength that was totally gone before.
Ok, I'll stop, but I just feel so damn much better! The streaching was the best place to start, IMO.
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WOW, Iodine, you make me want to jump up and start right now. Am going to start today. You just inspired me.
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Normal? Yes but not the same normal as 5 years ago. I do have days where I feel like BC is just creeping around waiting to strick - well more like moments not full days. I've created a new normal for me and my family and I think that's all we can do after going through all this. We are new people and we have a new life.
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Iodine, that sounds awesome...it makes me want to get up off my big fat a.. and get moving. Actually, working out/walking/moving, has been at the top of my mind for a couple of months, I just need to get it going.
But you Iodine, really inspire!
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After my first BC, lumpectomy, rads and tamox, no chemo I felt totally back to normal. There was a little residual numbness - but it didn't matter.
After the second one with chemo, lumpectomy, rads, herceptin no I didn't feel normal. I still have numbness in hands and feet.
After the third with bilateral mast I don't feel any worse than I did before. The odd twinge but I don't miss the breasts. I care about my hands and feet because they are still useful and when they don't operate properly it matters.
I am in awe of Dottie. I need to get there, I want to feel somewhat strong again.
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Ok, gals, I know the "get up off my ass" feeling---that didn't work for me: I had to have something to work towards---knee replacement.
I made it a medical necissity to get flexible and increase my strength--and it was, really. but I had to commit to myself and no one else on this. the trainer appt is what made me keep going even on days that I SURE didn't want to. That's one of the reasons I shelled out for the trainer. If I have an appt, I will rarely cancel. On the other hand, I will cancel on a "buddy". so it kept me going till I began to really see a difference in myself and quality of life. Which is the best motivator of all.
The trainer started me off with wee steps, literally, in the pool. I could only walk in the water, and it wore me OUT. but I have to tell you, I will never forget how absolutely wonderful it felt to walk in that heated pool the first time and have all that weight lifted off my joints!!! I think about that every time I get in the pool to begin laps (had not be really swimming in 45 years, even tho I did scuba dive) There is a freedom of movement in the water that you can match no where else.
The first few months after I was able to begin laps, I worked mentally on breathing and form (I can only do back and side stroke) then I just began to make grocery lists and plan what I needed to do when I got back home.
Go for it. I can only tell you that you OWE this to yourself. Commit to 3 months. If it's not working for you, quit. Good luck. (personally, I wouldn't have believed a word I just said 18 mos ago)
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Iodine you said that you were in your sixties but your picture looks in the 20's. Is it you?????
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Yep, it's me, but a while ago. I am grateful to my mom for good skin plus, I burn in the sun, so always, always wear a hat and when it came out, sunscreen. Besides, I'm pretty sure the photographer was 3 sheets to the wind and blurred the pic!!!! That always makes us look better.
I've added pounds since that pic, but keep it up there because I won't let anyone take my pic now, and that's the latest one around. Besides, I like the feeling of a "toast'!
I get Medicare next month! And don't get punished financially for having had bc. Yippppeeeee!
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I so agree with Iodine. I get in the pool 5-6 days a week for 1.5 hours each time. I go to a warm water pool a few miles away where I have learned strengthening exercises in the water. I spend 2 days a week swimming laps for 1 hr--can only do breast stroke and lots of kicking with fins on using a kickboard. The 6th day is my optional one, as I go to the pool when I can with my 14 mo. old granddaughter and my daughter. We have a fun time just enjoying the water. The bonus for me is I have upper body Lymphedema, so the water acts as a compression mechanism to keep my lymph fluid moving through the nodes and out of my body. If I can't go to the pool, I really notice the difference. Because the warm water pool is only 4 ft deep, I even get some weight bearing exercise, which is critical as we get older.
I purchased my "equipment" from Hydrofit online--includes 2 dumbbells, 2 cuffs (for ankles or arms) and 2 webbed gloves to wear when I do laps or walk in the water and work my arms. The warm water pool classes are offered by our local hospital and are taught by physical therapists with experience training clients to use the force of the water to get stronger and more fit. I have been taking the classes for 2 years. I get overheated very easily on land, even if the temperature is only about 60 degrees. The water prevents me from suffering from heat exhaustion.
I also walk several days a week with my husband and our 2 dogs. We do about 2 miles each time. However, several months ago, I did a walk to raise money for our LE clinic, and I walked over 7 miles. Of course, I was toast for a day afterwards! But I was really proud of myself, as I have never been an exercise fan.
Believe me, if you feel the same as I do, look for some water exercise classes in your area. It has made a huge difference in my life and I am in better shape than I was before bc diagnosis!
Here's to walking in the water--and it's fun!
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Count me as another "exercise with personal trainer" disciple! I've come so far with the trainer and am so much stronger than I was before. For me, that helps counterbalance the constant physical reminders. Yes, I will always feel as though I have a constricting band on my left side of my chest, and my lymphedema is always lurking. But I can run 5 miles! I can bench press 90 pounds! I can do squats while holding 40 extra pounds!
I encourage you to begin exercising and find new strength.
Also, a therapist trained in the Chickley method of lymphatic drainage may also be able to release the pectoral muscle fibrosis due to radiation enough that you get some relief from that constriction.
Hope M.
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Oh, yeah! Forgot the benefit of no overheating in the pool!!
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Agree with the "new normal" thing but, yeah, normal. I think that the emotional/psychological/spiritual is the hardest part. The physical - depending on your physical health before you went into it, your age, your ability to follow through on exercise, etc - I think that can be done to get you at least back to where you were. It takes work and HELP!!! I'm a huge advocate of physical therapy and it's never too late. I was blessed with an incredibly talented PT who did a lot of manual work through the whole process (starting after the lumpectomy and ax biopsy on through the mastectomy/implant 5 months later and until I was able to work out on the Nautilus and free weights on my own).
I think full range of motion is possible. I think good strength is possible but it depends on what was done (what muscles were cut, etc).
I work out probably 5-6 days a week - Tae Kwon Do, a boxing exercise class, stationary bike, still do my PT exercises with one of those cable deals at the gym (it's been 2 years since the mastectomy now) and just started a new routine that I had a personal trainer (the boxing teacher) set up for me. I do lots of pushups - more than I did before!
Anyway, my advice is get some help (physical therapy/personal trainer) and go for it. You have nothing to lose!
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Thanks everyone for your input, I appreciate it. I feel like the pool stuff would be best for me to start and maybe walking in the evening hours. My husband did say he would walk with me. Thanks again.
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