For those starting chemo in June

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  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Mary,  I hope you feel better.  I had my gallbladder out in 94.  They did the laproscopy (sp) and made 4 small slits, one was for the camera.  I recovered very quickly.  So if you should have to have surgery, I would highly recommend that new procedure rather than the old fashioned surgery.

    Yeah, in some ways, it seems like yesterday and yet sometimes it seems like a very long time ago.

    PJ, are you all packed?

    Mary, does mud become a problem when it rains like that, or is it mostly grass?  Enjoy the lake.

    Later Taters,

    Janie

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2008

    Hi girls, Janie, yes the mud can be a problem but we have been lucky to get grassy or concrete areas. I went to the Dr. today and they are doing a sono of gallbladder, pancreas, duodenum and liver Fri. morn. They did blood for h pylori to check for an ulcer. I will come home tomorrow night or Fri. morn. and go back to our show. I hate to have to wait until Mon. for results. I will go get my report at the hosp. med. records and read it myself so I don't have to wait for a wk. or 2. The girls there know me and they don't charge me for it. Heck the report spells it all out for the Dr. so it is easy to read. I will get my blood work tomorrow and I will ask the sono gal about the gallbladder if she sees stones and they usually tell ya but some won't so I may have to wait until Mon. to check the report. I just want to make sure it is not my liver or pancreas. Thats a little scary. My mom never really had any nausea with her pancreas cancer she had abdominal pain they treated for u.t.i. for a year. Idiots!! She had it later after the surgery but not early on. Well I just hope its stones and they get them out and I can eat. Sometimes I can eat for a day then the next its back again. The Dr. said you need something for nausea? I said no, I am kinda used to that so this isn't all that bad just annoying. Sometimes it is bad but not constant. Well I hope everyone has a good evening. I have to get the camper ready so later ladies. Hugs, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Mary,  I do wish you could get to feeling better.  You have never really been well for a significant length of time since BC struck.  I will be thinking of you and praying it is nothing bad. Keep us posted.

    Love Janie

  • PJB
    PJB Member Posts: 2,615
    edited June 2008

    Mary, I'll jump on that prayer bandwagon. And I hope you guys up there get some break from the rain!



    All's well here. I'll probably not pack til Friday night. (and hope matt does laundry before then)

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2008

    Hey Thanks girls. We are wondering if we should even go now because it is to start storming this afternoon all the way till Sat. I hate to pay all that money to sit and watch it rain. We will see. Yea Janie, it seems I have had problems ever since chemo ended and it is kinda crappy. Oh well, I keep thinking it will stop someday, or not. Hugs and have a safe great trip P.J. hugs, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Well Mare,  what did you all decide.  Going or staying?  If you go, I hope you do well and also that you enjoy it.  I have been thinking about you and will be with you tomorrow when you go through still more tests.  {{{{{{{hugs}}}}}}}}}}   Janie

  • Jo-Anne
    Jo-Anne Member Posts: 41
    edited June 2008

    Good morning everyone, I had my first consult with my medical oncologist yesterday. She spent 2.5 hours with us, and the Oncology Nurse Practioner spent at least another 1 hour with us. Exhausting to say the least, very educational, so much information to digest. I think I counted six prescriptions to be taken at certain times during the chemo cycle. My ingredients will be the TAC regimen. Today I am to have an Echocardiogram. Next Thursday I'll have a port inserted in my R upper arm. On Wednesday June 25th I'll have my first infusion. Is anyone else doing the TAC regimen? and what has been your experience.

    It's so nice to be able to check in to see how everyone else is doing, and to know there is support out there.

    Thank you and I hope today is wonderful for you.

    Jo-Anne

  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Hi Jo-Anne,

    Sorry you have to go through all this.  I did 12 weeks (3X4) weeks of AC, followed by 12 weekly Taxol followed by radiation and 52 (one year) of Herceptin.  It looks like you are doing Taxotere instead of Taxol.  My regimen started back in 2004 and I recently reached my 4 year anniversary 3/11 with no signs of recurrence.  AC causes your immune system to go low and you will probably have to have a shot to boost it.  AC also causes nausea but there are some very good medications out there now for that.  It also causes hair loss.  Taxol causes fatigue and bone/joint pain and does a number on the nails.  However, it is behind me now and is becoming a bad memory.  You will not do Herceptin since you are HER2 -.  It only targets those who are positive for the aggressive HER2 factor.  Since you are ER/PR -, as I am, you will not do hormone therapy because there are no receptors for it to cling to.  Best wishes and prayers for your new trial drugs to work magic.  Janie

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2008

    Good luck Jo-Anne. How was everyones wk. end? Great I hope. We took 3 grandkids camping in the camper lastnight at the nearby lake. It is a big one and pretty nice. The grandkids had fun. They swam and fished and I am pooped! Hubby says we need a bigger camper. I am shocked at myself and frankly my sister is baffled too that I am actually enjoying this camper thing. I just never was a camper.  Yea, we took the kids out in a tent twice but I curtailed that after the second time. I just really don't mind this a bit and I  am in awe of myself for enjoying this. I bought the camper for a place to stay at the craft shows and to take to Az. for the winter until we decide if we are going to get a place there or just stay through the winter. I wonder if chemo messed up my brain? We ate fathers day fixins at my daughters. I am off to bed to work crosswords and relax and watch some t.v. Hugs, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Mary,  Hey!  Maybe there is hope for me yet.  I am not a camper.  I like the amenities and comforts of home too much.  Although there have been those occasions when camping and cooking over an open fire etc. were sort of ok.  A friend keeps wanting me to camp with them and I keep declining.  Traci and I went to see my Dad today.  He was asleep in the TV lobby and only woke up for a short while before sleeping some more.  I am sure he forgot what we said, the gifts, and for that matter, even that we were there.

    Anybody see the U.S. Open golf tourney?  What a finish!  It is going into a playoff tomorrow.

    Chemo brain?  Mine just still is not the same so I guess it never will be again.

    Well, back to the Braves.  I must be a glutton for punishment.

    Later Ladies,

    Janie

  • Jo-Anne
    Jo-Anne Member Posts: 41
    edited June 2008

    Janie - Thanks for the tips - I spent most of the afternoon creating a spread sheet for the meds I must take - I will have to double check it tomorrow to make sure I put everything in with dates and whether or not it's to be taken in the a.m. or the p.m.

    Mary1220 - thank you - I use to love camping - even primitive camping - but now that I'm getting older my idea of roughing it is b&w TV

    Have a nice evening

    Jo-Anne

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2008

    Well girls let me clear things up here. Our camper has a bedroom, bathroom with shower/tub and we have a complete kitchen with micro, stove, oven(exaust fan) and frig with freezer. We have air and heat and a flat screen t.v.. Some r.v. camps even have internet. I didn't want ya to think I am some kinda hero braving the elements and free range animals with a tent and sleeping bag. My bed is comfortable. It isn't my sleep numbers matress but I am thinking if we keep this camping thing up I will go sleep numbers. Jo-Anne, do you post on a June chemo site with ladies starting in June of 08 also? Sounds like you are getting things ready. It goes pretty fast but it will seem slow at first. I am the same dx. and treatment as Janie. The scariest part is the first treatment because you don't know what to expect and it is pretty easy actually. Some people don't get very sick at all. You have good days and bad and you will get that all figured out and it isn't too bad then. You learn when you can go do things and when you will want to rest so you pretty much plan things around that. Well, I go for my Onky apt. today, I cancelled and made it today since we were leaving Thurs. I get my good to go for 1 year today. I better go. I really need to clean house today. Later ladies, Mare

  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Mary,   I like your kind of roughing it!  I could handle that!

    Anything out of the ordinary happen at the onky apt?  Did you get to change to the one year deal?  My onky said that normally I would already be on that schedule, but my original scheduling came from Mayo and they decided to make the counting start at the end of tx instead of the beginning.  So, I am still on the 6 month, but I forgot when that changes.  Maybe next time?!?!  Chemo brain sets in again.

    Janie

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2008

    Hey Janie girl, I saw a different Onky today as mine was gone and he(diff. Onky) said back in 6 mo. He said, Oh its only been 2 years since you finished herceptin. Yea, so? Oh well. I will be gone in Dec. so I will have to see someone in Az. or see someone when we come home for x-mas. If gas keeps going up we wont be able to make it there let alone a plane ticket home for x-mas.. It is $4.17 here. Well, I may get into my reg. Onky and see what he says. I better get. We have a craft fair this wk. end and I am low on necklaces. Later girls, Mare

  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Mary,  sounds like you are being told the same thing as me.  Actually, I do not mind going every six months as things/questions tend to pop up that I want to know about.  My apts often end in scans or referrals elsewhere and it gives me peace of mind to know the lumps are calcifications etc.  I just don't like for all the apts to get out of hand like around Jan of this year when I was seeing so many docs I could not keep up with them all.  Of couse, they all had the intiial visits, the treatment or test, and then the follow-up visit at the very least, some had even more apts.  My time and co-pays and deductibles were being used up fast.  Did you make some beautiful jewelry?  Of course you did!  Good luck.  Hugs.  Janie

  • PJB
    PJB Member Posts: 2,615
    edited June 2008

    Hi, girls,



    Back from the trip down. Some beautiful country and we lucked out on weather. Having the dog along sort of curtailed any tourist stops, but that's OK.



    Mary, your "camper" sounds like quite the luxury accommodation. Very cool. Gotta be tough on the gas mileage, but I guess you guys don't go too far from home.



    Have a good day,

    PJ

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2008

    Glad you had a good trip P.J. I bet you saw some beautiful country. We take our dog a lot and it does seem like we have to cater to it some times. Hey, our camper isn't new and it isn't very big and it is a light one so the gas isn't too bad. We got it cheap or we wouldn't have gotten one. We are checking into a little bigger one but not for a couple months. We pay $20.00 a night for an R.V. space and thats cheaper than gas(to drive back and forth 100 miles or more) or a hotel or cheesy motel when we are too far from home for a show. We are not by any means capable of anything fancy. I didn't mean to make it sound like a $100,000 motor home but wow, wouldn't that be nice. I have seen some reeeealy nice ones but we will never sleep in one. Hubby kept bugging me about one and I thought it would be cheap to live in out west in the winter so here we are. I never would have thought I would actually enjoy it because I never have. Must be old age. I am not too good to tent camp, its fun once in a while but I just never cared to that much(arth. in hips and neck make it painful). Probably because I grew up  camping in tents all over the south. Then when I had kids and we camped in tents, I had all the cooking on the grill and walk to the showers which was always a mile away and the kids bored and fighting, I just didn't feel like reffing the fights after the first day of fun wore off and I was too tired to drown them and when they hiked they always found their way back. Now, it is quiet and less stressful. Gotta get, Mare

  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Welcome back PJ,

    I have traveled with animals.  It certainly makes a big difference.

    Mary, your trailer sounds very comfy, regardless of age.  My family never camped but I was a girl scout, and also camped with others when grown, so I have done my share.  Some of it was fun, but some of was not like insects and snakes and my ex, etc.  The campers I were in as an adult were off the ground, but very small, just mostly sleepers.

    I miscalculated my meds today and threw me off for most of the day.  I hate when that happens.  Easier to do when not on a specific work schedule.

    Well, you all take care.  Talk with you later ladies,

    Janie

  • Jo-Anne
    Jo-Anne Member Posts: 41
    edited June 2008

    Mare - I love your camper sounds just about perfect. I do post on the June, 2008 chemo site.

    Janie - good to read your posts.

    PJB - glad you had a nice trip.

    Tomorrow is the port insertion day. Will take one of the anti-anxiety meds tonight. Also am getting a cold, scratchy throat, feel really run down all that good stuff.

    I had to talk to my mum's lawyer today, she's dying, and it sounds like it's imminent. My 'sissies' flew in to care for her, and have been doing the day in and day out interventions. I did fly there a week and a half ago to say goodbye, very hard on all of us. I have Power of Attorney, Health Care Proxy and am Trustee and I have no idea what needs to be done. I called her attorney and left a voice mail this morning. He called me late this afternoon, his day secretary is on vacation, his night secretary is coming in later, and he will have her find the file. Sounds like he doesn't know where anything is in his office and I have a feeling day secretary may have a mess to clean up when she returns to work! Oh, did I mention he was my date to the Junior Prom back in 1958 OMG that's 50 years ago! I couldn't possibly this old. Giggles...

    Will let you know how the port insertion goes tomorrow.

    Jo-Anne

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2008

    Hey Jo Anne, If you still have a scratchy throat and cold feeling and they are going to give you anything tomorrow be sure to let them know how you feel. They may want to check you if they are putting you to sleep. I did not get a port so I have no idea whats involved. You have a lot going on. Good luck but I hear the port thing isn't bad. Janie, my dad has some places on his thyroid that may be cancer. Gosh!!! What is it with the thyroid thing? He is scared to death and will not have surgery. He won't even get his cataracts fixed and he can't see a thing. His prostate is as big as a basketball but nope. He still has a cath. in his side, he don't want no surgery to get it out. He had one and thats it no more. How did my mother ever put up with him? He is soo forgetful I could scream, then I have to remember how great my memory is and I can't sass him much about that. I would probably forget what I was chewing him about anyway. Well, gosh, I am wondering what other things I might like in my old age now. Maybe skydiving? Nah, too affraid of heights.  Oh well. I best get. Later little June Bugs. Hugs, Mare

  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Jo-Anne,  I am sure you have your port by now.   I had one for about a year and a half.  It was in the chest.  I have difficult veins and I loved it.  There are times I wished I still had it but it would probably do me no good since only those technicians/nurses specificially trained for ports can access them.  I am sorry about your mother and wish you well with all the legal and health issues.  It is hard having ailing parents while going through this.

    Mary, it sounds like your Dad's fears are endangering his health.  Maybe if he had the surgery, he would not remember it?!  You have gone through so much in the last few years. I have said it before and will again.  You really deserve a break.

    Hugs.  Janie

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2008

    Good morning girls, hope all is well and everyone is haveing a great wk. end. We are at a craft show just a small town close by so we are driving back and forth. Hope all went well with the port J.A.  Later all. Mary

  • Jo-Anne
    Jo-Anne Member Posts: 41
    edited June 2008

    I just stumbled back into this thread - they changed the look of the web-site and I'm lost! I had the port put into my arm on Thursday, they gave me an IV antibiotic, felt better. They numbed me with Lidocaine, could still feel the pressure but they kept giving me more Lidocaine! One of the nurses had been a student in the High School I had been assigned to, she said, 'You look familiar.' I said 'Her name, and said you were one of the kids who wanted to major in Health Room!' We had quite a laugh. She's well liked by the staff, and I got great care.

    On Friday my mother died, my youngest sister was with her, she said her death was peaceful. So arrangements made. Yesterday and today I felt awful, feverish, but no fever hoarse, coughing, just awful. On of my supervisors called me to see how I'm doing, her husband happens to be a research (breast cancer) oncologist at NIH. She said 'have you talked to your onco?' 'No.' 'I think you should call the office and let hem know what's going on with your health and tell them about your mom.' Okay, I called the office, explained the situation, onco got on the phone and said she didn't want to start chemo if I was ill so push chemo back a week start next week, and you can travel to go to your mom's funeral. So arrangements undone - redone and I'm going. Wearing a mask/gloves I now have a port and have to present a card at security 'cause there's metal in it! So I'm happy/sad. All the anxiety has to be put on a back burner for about a week. Then it's a go!

    I'm glad I re-fouond this thread!

    Jo-Anne

  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Jo-Anne, So sorry to hear about your Mom.  It is rough losing a parent while going through all this.  I know first hand.   Take care of yourself.  I flew with a port, a lymphedema sleeve and also wrapping, and a wig off and on.  They ran a doo-hickey (scanner) across my arm once.  That was about it.

    Hi Mary, PJ.  Have you found your way around this new board yet? 

  • PJB
    PJB Member Posts: 2,615
    edited June 2008

    Wow, it took me awhile to find you guys. I always looked for shelliks...

    Jo-Anne, let me add my condolences to you and your family. I'm glad you'll be able to go to your mom's funeral.  

     Hot today. Gee, you'd think it was summer in Texas. My sister had her first day of work in  San Antonio today, and all was well. We're busy trying to trap a rat at my mom's house while she's off helping my sister get settled in. So far, the little sucker's been elusive. 

     Hope you all have a good rest of the week. Jo-Anne, our thoughts are with you. 

    Paula 

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2008

    Gosh, I still use Janie's shortcut to get here and this is wild. I am not good with change. Sorry about your mom J.A., glad all went well with your port. You probably got yourself all prepared to get it on and now it is all cancelled and you have all this worry. I am sorry and I hope you get some good rest and get over this flu going on. P.J. a rat? People around here get them if they live close to the corn or bean feilds. We had one once and it wasn't pretty. They can squeeze through anything like a snake. They can flatten their body. ECK! Hope you catch that sucker! Janie, I been meaning to ask, did ya win any money at the races? If your like me your horse came in last and theres no booby prize darn it! These festivals we go to, I always buy chances on gift baskets and 50/50 drawings and the people that win, the mayor, the business owners, never us poor people. We bought chances on a 4/wheeler and trip last year and the city won the 4/wheeler and the lady that put the festival on won the trip. Now come on. Oh, and the water dept. won the tools from Sears. Oh well, I better get busy. We have to set up tomorrow for Thurs. through Sun. Later girls. Hugs, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Mary, I wish I could flatten MY belly like the rat you spoke about.  Maybe I should find one and watch to see how they do it.  Bet there may be some in the forest behind my house.  Hard telling what creatures lurk out there.

    Mary I bet on Big Brown at the Preakness and won, but the odds were the worse they had even been and he only paid 20 cents on the dollar (1-5 odds).  I had never even seen odds like that before.  They are usually something like 5-2, but NOT that time.  So anyway, I also bet a few dollars earlier on horses I had never heard of and didn't count it up, but probably broke even or maybe even lost a little.  I was not a big gambler so it didn't matter a whole lot.  Would love to have had money on the one that won the Belmont.  It paid really big.  

    I was at a drawing for a Cadillac once and it came down to two people and one was holding the winning ticket.  Both rich as sin.  Another rich dude paid one of the ticket holders big bucks to sell him his ticket.  He lost, but I'm sure he did not miss the money.  Didn't need the car either. The haves and have nots ........................

    I love riding 4 wheelers.  It has been a while but I would give it another whirl.... lymphedema, old age,  and all .  

    Good luck Mary.  Hey PJ.  J-A, hope you are feeling better.

     Janie 

  • NancyLee13
    NancyLee13 Member Posts: 496
    edited June 2008

    Sweet, I like the new boards.  I have been trying to get back here for a very long time and I just got a note that they'd revamped the site and I got on just like that!!  I will try to find some time to read back and find out what you are all up to.  I have been fairly well...only in the hospital twice in the last month...once for 4 days due to dehydration and the second time for heart testing...they think that all the chemo did affect my heart in some way after all.  Last Friday, I went to the Relay for Life in Bowman, ND.  That was lots of fun.  I bought myself a Pink Schwinn Bike...that is total fun too.  Well, I have to be to work early in the AM so I will sign off...Love you all...Life is GoodSmileSmilesSmileNancyLeeLaughing

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2008

    Hey N.L. great to have you back! Sorry you have been ill. Glad your o.k. We have missed you. I posted a whole epic lastnight but the board went blank and said the host had erred and is was gone. Gosh I hate that. Well we are off today at another show. It is a little festival about 15 miles away. We had a deer right in front of our bay window this a.m. just taking in the view. He stayed a while. Very pretty but they are known to break through glass doors and go right on in a house or business. Janie I saw a rat run up between our cabinets in the corner and thats a tight space   (30 years ago). Hubby thought I was nuts and even made fun of my rat story. Our washing machine went on the fritz a few days later and hubby was on the floor with his head under the back of it when something kept rubbing on his cheek. When he was able to shine the flashlight on it, it was the rat sitting on the motor and it didn't move but hubby moved real fast. I was quite surprised at his speed. Toolman/ratman got the pliers and got the rat by the tail and asked me or may I say demanded me to get the bb gun and shoot it. I got the gun and tried to aim at the squirmming thing and it was a good size rat(small dag) but it would look at me with sad eyes and I could not shoot it so toolman/ratman  had to go outside and throw it into the field. Toolman/ratman should have not have made fun of me huh? When he was histarickly asking me to shoot the d#%n thing I kept saying, but its not real its all in my head so why shoot at nothing? Yea, we/I pretty much get a good laugh at that one when I bring it up now. Well I better get. We have to pack. Hi all. Hugs, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited June 2008

    Nancy Lee!!!!!

     I was just wondering about you and how you are and where.  Sorry you are still having so many health problems.  Are you enjoying a summer break or does your preschool stay open year round?

    Hey everybody!

    Janie

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