Good 3 Neg story

Options
2»

Comments

  • dellmonica
    dellmonica Member Posts: 74
    edited April 2008

    I was diagnosed on 2/4/08 triple neg and I just completed Cycle 1 of 6. Taxotere and Cytoxin.  Cycle 2 will include neulasta.  I love all these positive comments!!  My Onc told me there was nothing but negative stuff on the internet for triple negs.   I was glad to prove him wrong.  Peace and Blessings to all my sisters (and the few brothers)

    · Share on FacebookShare on Twitter
  • Vickan
    Vickan Member Posts: 54
    edited April 2008

    Hi Dellmonica,

    I totally agree with you that the internet if full of negative stuff for people like you and me...

    So it is lovely to hear ALL the postive news.


    Thx to all spreading the postive vibes.

    Vickan

    · Share on FacebookShare on Twitter
  • renahen
    renahen Member Posts: 12
    edited June 2008

    Hi. I came across this thread, and I thought I'd add another encouraging story. I am an almost-22-year survivor. I was diagnosed in 1986 with ER/PR negative cancer and 22 positive lymph nodes. There was no HER test back then, but since then my doctor has said that it's almost certain I was a triple negative. I was young (37) and have since learned that I'm BRCA2-positive. Anyway, here I am all these years later, alive and well. I was lucky to have an oncologist who had just finished his residency at Stanford. At first, he was going to treat me with the standard CMF chemo, every three weeks for six months. But then he decided to take my case to Stanford's tumor board, and they felt that treating me with CMF once a week for a year would be better. That's what I did. I agree that the triple negative diagnosis inspires even greater fear than the hormone-positive diagnosis, but it seems clear that triples respond really well to chemo, and I always found it comforting that my hormones weren't trying to kill me! I wish all of you the very best. Rena

    · Share on FacebookShare on Twitter
  • Gorilla12
    Gorilla12 Member Posts: 63
    edited June 2008

    Hi Everyone!

    Well it will be 3 years for me in July 2008 and I am NED. We are celebrating my daughter's high school graduation and my son's 8th grade graduation this weekend. I remember when I was diagnosed and didn't know my prognosis I just asked God to let me see my daughter graduate high school and I did! Plus I am continuing on with LIFE and it feels wonderful! No more tests until April of 2009!

    Best of luck/wishes to all of us out there.

    Imagine life and then live it!!!!

    · Share on FacebookShare on Twitter
  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited June 2008

    Twink,

     I just wanted to check in and see how you are doing.  Have you made your move yet?  Hope things are going well for you.

    Warmly,

    Sadie

    · Share on FacebookShare on Twitter
  • canonbal
    canonbal Member Posts: 1
    edited June 2008

    I was diagnosed at the age of 48 with triple neg in January 2006.  My sister had just gone through treatments for small cell lung cancer.  She had just finished 17 rad treatments to brain for precaution.  Her cancer diagnosed in Jan. 05.  We're both doing great!  My question is and I am not sure anyone knows, is triple neg any deadlier for women of color than for white women, in other words, is there a difference?  Really just curious since I am not of color.

    · Share on FacebookShare on Twitter
  • ehall
    ehall Member Posts: 663
    edited June 2008

    Hi Canonbal--I kinda stumbled across your message and immediately thought about a CNN article I read today.  It addresses the question of being dx with triple negative and women of color. 

    here it is....

    http://www.cnn.com/2008/HEALTH/conditions/06/16/hm.triple.neg.breast.cancer/index.html

    Erin

    · Share on FacebookShare on Twitter
  • carpediempenny
    carpediempenny Member Posts: 90
    edited June 2008

    Hi ladies, I am just starting the waiting game. I finished rads about 2 weeks ago and will have my stage 2 surgery in July. I go see my onc in August.

    Thanks for the encouraging news.

    Penny

    · Share on FacebookShare on Twitter
  • pinoideae
    pinoideae Member Posts: 1,271
    edited June 2008

    When I was diagnosed triple negative in October 2001 I was not aware of all of the new information that is out there now about triple negative. Here I am almost 7 years later.  It is amazing how knowledge changes so fast about this hideous disease.  Hoping one day no one will ever have to go through chemo and radiation treatments again.  (Not knocking treatments though, they did their job, attack the cancer cells, thankfully).

    · Share on FacebookShare on Twitter
  • malatete
    malatete Member Posts: 14
    edited June 2008

    I, too, am (was?) triple neg--and just got my one-year all clear. Mammo, ultrasound, CT, MRI and chest x-ray are all NED. (Never mind that I now glow in the dark and there are more pictures of my boobs out there than Pamela Anderson's.)



    Also wanted to share that I was stage III at dx, but after the lumpectomy/node dissection, I was found to have had a complete clinical response. There was not a speck of pathology to be found--and they rechecked it twice because before neoadjuvant chemo (TAC) I had a 5cm lump in the axilla. Onc tells me this means I have no greater chance of recurrence than the general BC population.



    So--new triple negs, stage IIIs, everyone, just know that great results ARE possible and I hope they are for you.







    · Share on FacebookShare on Twitter
  • pinoideae
    pinoideae Member Posts: 1,271
    edited June 2008

    Good to hear malatete.

    · Share on FacebookShare on Twitter
  • lauren4paul
    lauren4paul Member Posts: 4
    edited July 2008

    its so good to hear all theses storys i have been reading for about two days know and i just read summer story malatete story and just make me feel better

    michele 

    · Share on FacebookShare on Twitter

Categories