Good 3 Neg story

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jeng
jeng Member Posts: 13
edited June 2014 in Triple-Negative Breast Cancer
Good 3 Neg story
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  • jeng
    jeng Member Posts: 13
    edited March 2008

    Hi Ladies - I posted for the first time in many months on another thread - advertising my 4 year survival.  Several mentioned the encouragement they gained from my post and others like it.  Being 4 years out, and being young - I just don't discuss my medical history with people very often.  Well, today at work, I found out that one of my co-workers is a triple neg - she had 2 lumps, mast, 5 pos nodes - and she was DX in 12/03  She is FINE!   She had a mast and 6 rounds of TAC.  She worked through it all (teaching elementary school) - she had rads too.  Her onco told her 3 years was the magic number for triple negs.  (My onco said 5)

    Anyway - if some of you were lifted by MY story, you must be much further lifted by my friend's!   5 Nodes - and she is fine!   Yippee....

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited March 2008

    Jeng,

    Thank you for a wonderful post.  Girl's let those doctor's know you are not a statistic in their medical books.  They can't lump everyone together. Even though they will not tell you..triple neg means they really don't what kind of bc we have.

    Flalady

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  • twink
    twink Member Posts: 1,574
    edited March 2008

    Love hearing these stories...thank you.

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  • HeatherBLocklear
    HeatherBLocklear Member Posts: 1,370
    edited March 2008

    Thank you so much for your story and that of your friend. I have been very down over the past few days because from everything I read and no matter where I turn, there's nothing but bad, bad, bad news about triple negatives. I think that even more than women with other types of BC, we triple negs really hunger for stories like yours -- they keep our hopes alive, and hope, as much as the chemo and other medical procedures, is what helps fuel recovery.

    Thanks again from the bottom of my heart.

    Annie

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited March 2008

    This is so crazy, I know it is not wrong to tell the stats, but when I was diagnosed in 1998, Triple Neg diagnosis had just become possible, and few statistics were available. So, no one said much of anything. I know that sticking your head in the sand is no solution, but I have never worried about the Triple Neg at all, just because I didn't know I should.



    Anyway, I am 9 & 1/2 years out, still fine, and I am so sorry that this thing has added grief to an already difficult time.

    Oh, one other thing, that we don't want our other sisters to hear. At first, they realized that Tamoxifien increased chances of us developing uterine cancer, but no one was too concerned because this cancer is easy to find and simple to treat, but as the years have gone by, they found that THIS particular uterine cancer, the one from Tamoxifen, was VERY, VERY aggressive. So that is another thing. (Don't mention this to gals on Tamoxifen)



    Anyway, love you all, Shirlann

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  • susieloutoo
    susieloutoo Member Posts: 107
    edited March 2008

    So happy to hear for you, your friend and us!

    Susie

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  • janekhaldy
    janekhaldy Member Posts: 33
    edited March 2008

    I always see you post and thank you SO MUCH for your always positive comments!

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  • lisamed123
    lisamed123 Member Posts: 186
    edited March 2008

    Thank you so, so much for your stories.  I am just looking for hope.  I am doing scans this week and starting chemo in a couple of weeks.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    thanks ladies....

    love to hear those good 3x- stories....just love them, they make me breath deep and smile ear to ear...

    i am 3.5 years out now and sooooo hope that i can inspire women the way you have sometime down the line...

    i just wish i could see more on the cure side of things.....

    but if it is an odds game for now, so be it...

    roll!

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  • dunner1
    dunner1 Member Posts: 49
    edited March 2008

    I know I have posted many times but for those that haven't seen my stats.... Triple Neg. and 5yrs., 1 month, 19 days, and 12 hrs AND I'M NOT TOO SURE HOW MANY MINUTES out!!!!!!!!!! Too many nodes to count too!!!!!!!!!!!! TAKE CARE!!!! Love- Dunner

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  • dhettish
    dhettish Member Posts: 501
    edited March 2008

    Whooo Hooo! So glad to hear the good news. I just finished my chemo and started into that worry and wait. I saw an e-mail of my husband's and he was telling someone that my prognosis was good. I felt he was wrong. Why???? No he is right! My prognosis is good! Thanks for the hope!

    Debbie 

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  • defeatbc
    defeatbc Member Posts: 53
    edited March 2008

    Thank you so much for sharing your story.

    I've just been diagnosed, and this is just the most refreshing thing to hear.

    Gives me so much hope.

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  • HollyHopes
    HollyHopes Member Posts: 497
    edited March 2008

    thank you so much for sharing the story...i am 6 months post tx and am hoping, praying and doing a little dance every day that this never comes back...you bring me hope my sistersn and courage if the day should ever come when i have to post about a recurrence...i love you

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  • twink
    twink Member Posts: 1,574
    edited March 2008

    Yay Dunner!  I wanna be just like you.

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  • snowyday
    snowyday Member Posts: 1,478
    edited March 2008

    Thank you, thank you, thank you, we really needed some good results posted here.

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  • linda447
    linda447 Member Posts: 6
    edited March 2008

    One more happy camper...thank you so much

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  • Labgal
    Labgal Member Posts: 62
    edited March 2008
    CoolI am three yrs four months out and still NED! I wish all of my triple neg sisters just starting their journey the best! Hang in and hang on...
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  • Youwearpink
    Youwearpink Member Posts: 87
    edited April 2008

    Hello Ladies,

    I am also a triple neg. AND BRCA 1 AND BRCA 2 positive! I will be a 6 years survivor in June!!!!!!!!!!!  I had one positive node!  I also (THANK GOD) did not realize the trip neg was something to worry about. Lord knows I was a nervous wreck all the time in the beginning and worried about EVERYTHING already. I was only 26 and had a newborn. But, I want to let you all know that I heard soooo many success stories. One I held onto REAL tight was from a friend's sister.  She was also a triple neg (I think, I know she was def Er/pr neg) and she had 17, yup not a typo, 17 positive nodes. She is a 12 year survivor to date!  So keep your head up ladies.  I love hearing the positives........

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  • jacqueline56551
    jacqueline56551 Member Posts: 48
    edited April 2008

    Thanks for the great stories everyone. Holly I am 5 months out of treatment.  I found a great book to read, "Dancing in Limbo"

    Take Care everyone

    Jacqueline 

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  • Vickan
    Vickan Member Posts: 54
    edited April 2008

    I love to read about you and the "friend" you write about. This is so important for a newcomer as me to hear that it is possible and beatable!

    Thx!

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  • sharebear
    sharebear Member Posts: 332
    edited April 2008

    I don't want 3 negs. to think it's all bad. I was first diagnosed in 8/95 at age 32. I was good to go until 1/07 when I found another lump on the other breast. It's now 4/08 and as far as I'm concerned, I'm fine again. This time, I removed the breasts.

    Oh and did I mention that I'm BRCA 1.

    13 years........Age 45.........Life is good!

    Sharon

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  • Vickan
    Vickan Member Posts: 54
    edited April 2008

    Sharon,

    Brilliant news although I am sad to hear that you had to remove your breasts. I removed mine in Jan 2008 when I found the lump and it was cancer.

    I will be checked for BRCA1 in a couple of weeks... I do not know how long it will take to get the result.

    I have 2 effected lymphnodes as well so I thought everything was dark for me... but as you write Life is good!!!

    Thanks for sharing!

    You give me spirit!

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  • cmb35
    cmb35 Member Posts: 1,106
    edited April 2008

    Girls,

    Triple neg dx in May 2005 at age 41, will be 3 years next month and I'm still NED. There are a few more of us hanging around here too.

    Hang tough!

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  • Vickan
    Vickan Member Posts: 54
    edited April 2008

    cmb35,

    good that hear and find that you and some more are still hanging in.. thought may days were counted...

    Lovely to hear that you still NED soon getting 3 years!

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  • Gorilla12
    Gorilla12 Member Posts: 63
    edited April 2008

    Hi Everyone,

    I was diagnosed in 7/05 and am approaching my 3 yr. mark NED!! I wish I had heard more positive news about triple neg back in 2005. So I am happy to post it here so others can feel good about it.

    Take care!

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  • Vickan
    Vickan Member Posts: 54
    edited April 2008

    Gorilla12,

    Lovely to hear. I feel happy to know - it is possible.

    All the best with your 3 yr mark NED!!

    Post me if you would like to tell me more - I am really keen to hear positive news at the moment....

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited April 2008

    Hurray! Gorilla! I hope you celebrate long an hard...Cool

    Flalady

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  • twink
    twink Member Posts: 1,574
    edited April 2008

    Yay Gorilla and cmb!  I wish you many more NED years.

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  • Judine
    Judine Member Posts: 11
    edited April 2008

    Hi All,

    I was triple negative diagnosed 5/03 stage IIA 2.7 cm tumor.  I'm approaching my 5 year mark in May and all is good!

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  • twink
    twink Member Posts: 1,574
    edited April 2008

    Wonderful news Judine! 

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