Starting Chemo in JAN 2007

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  • TPPJ
    TPPJ Member Posts: 1,017
    edited June 2008

    Lynn, I've been traipsing around a Celtics flag w/me for years but they've stunk so bad for years, I never used it.  I think it's time to put it out.  :)

    I remember the glory years.  My friends and I would take the T from Wellington/Medford into North Station, see a game and later end up at the Scotch and Sirloin where many of the players hung out after games.  Oh, those were the days...

  • TPPJ
    TPPJ Member Posts: 1,017
    edited June 2008
    • And in my early 30's, the DH would get comped for Miami Heat games at American Airlines arena...we'd go and they'd have this FABULOUS Vegas type buffet.  It was a blast.  We took my parents a few times.  One time the jumbtron scanned in on the guy who just won Do You Want To Be A Millionaire?  He was right behind me.  Of course, I got him to take a pic w/me.  He was there alone!  No girlfriend, wife. 


    Speaking of Vegas buffets, the Bellagio dinner buffet is absolutely fantastic for dinner...and a good way to visit the hotel.  It's like $30 pp but the quality of food far surpasses anyting on the strip, if anyones interested in having dinner there one night.  Everything under the sun, from jumbo shrimp cocktail to prime rib and on and on.  Some buffets have low quality stuff...

  • Rebecca
    Rebecca Member Posts: 971
    edited June 2008

    Tina that sounds like a great day…we had the humongo rain up here, too but we decided to ignore it and barbeque anyway…I made kebobs, and my meat ignorance is such that we had to actually ask someone what kind of beef to use.  The lady steered us right, and I got a slab of sirloin that I cut into chunks and marinated for a few hours before threading them onto skewers with various veggies….it was PAINFULLY good.  The neighborhood that you live in sounds so lovely…that is the kind of childhood that Matt and I have always wished to give our children, but alas we have yet to find the right place.  I suspect that we would have to leave Jersey to find it.  I well remember the woods behind my best friend’s house that we used to explore when I was a kid…it was wild and woodsy but with well pounded foot trails, and hollow bushes perfect for forts.  We spend endless hours back there making up ghost stories and imagining cities and just generally having a good time.

    Skye isn’t that just the way with those licensing things….that is hilarious.  Just like me getting my approval letter for my PET scan about a week after I had it done.  My friend and I are going to try and get the paperwork done to sub in the fall.  Seems like it would be a good supplement for me, and would be a good way for me to get into the district and see if that is what I want to do “when I grow up”.  In NJ they have an “alternate route” teacher certification program that someone like me can do…it does not require additional classwork, but you have to be sponsored by a school.  On the other hand, I still have this idea that I would be a good academic reference librarian.  Ah well….no rush.

    Viddie I have indeed watched Meerkat manor…it is a very cute show.  Those little critters are just so endearing.  Thank you for keeping us updated about Arlene…send her my best, I am thinking of her. Hope everything came out OK yesterday <grin> and your edema is less.

    Speaking of edema….my seroma all of a sudden got bigger, and now I have fluid leaking out…I am a little scared by that but am unsure what to do, particularly since my PS is on vacation this week (of course).  I do not know what it means, or if it is bad, but I am swollen under my armpit even and it is not terribly comfortable.  I think of more concern to me is the leakage…the serous fluid is coming out through my incision which of course I had thought CLOSED since it has been so long since surgery.  It NEVER ends.  I am so discouraged.  This reconstruction has been nothing but complications for me….I can not help but wonder if I did this to myself by overdoing it…lifting, etc….but I have to live my life!  I have not been stupid, and I do not pick up heavy stuff and try to remember to open heavy doors with my left hand, but it is difficult given that I am right handed, and I find myself picking up the pasta pot to drain it with my right hand which I am sure I am not supposed to do….or carrying the laundry baskets up and down the steps which I HAVE to do or the laundry amoeba takes over my house!  I have this sinking feeling that my skin and tissues are just too damaged from the rads to be able to heal properly.  I do not know what to do!

    OK, enough whining from me, and back to reading posts….

    Mary I did the Komen walk last year and it was so wonderful.  We are going to do it again this year.  I wound up raising quite a bit of money, and I just found out that I was one of the top 100 individual fundraisers…I get a special Tshirt and free registration to next years race!  How is your arm feeling?

    Lynn, glad you are enjoying your game and I hope you got a nice dress!  Oh, and before I forget to tell you and Viddie….I will be in Boston late in the summer (after Vegas).  DH has a conference and I am going to go along for the ride.  We should try to hook up!  I will give more details (privately) later on.

    Mel, fifty lashes with a  wet noodle to those contractors.  That bathroom should be done already!  The final countdown is on for your surgery…yipeeeeeee.  I am glad you found your rings as well.  That is stinky that they will not hold your job for you…but perhaps it will work out better for you.  As you said, you might like being in the pool better.

    Regarding my lemon-car…YES they did fix it I think.  For the first time in several years the transmission does not slip.  They also fixed the on-board compass, which told me that I was going North no matter what direction I was actually going.  LOL.  Apparently it was set to “the wrong zone” whatever that means.  I was under the impression that there is only ONE north.  I could not get that rental car back to them fast enough….as nice as it was to drive, you could actually SEE the needle on the gas gauge dropping as you drove that thing.  I do not know how people can afford to drive these things!  Needless to say my love affair with the Saturn Outlook was over as fast (or faster than) it started.  The moment it ended….sitting in the Sunoco station calculating how much gas I had to buy to fill the tank up to half ($35).

    TLC it was good to hear from you…of course we remember you!  Come back anytime and let us know how you are doing!

    OK, I think I have rambled on long enough….to anyone I did not mention, love and hugs to you all.  Happy Sunday, and happy first day of June!  If you have sunshine enjoy it, if you have rain, snuggle on the couch and enjoy it!

  • meliaanne
    meliaanne Member Posts: 682
    edited June 2008

    Hi All,

    Rebecca, I am sorry about the seroma; you are right, it's hard to protect that arm all the time. I have tried to be careful too, but I am noticing a bit of swelling on the affected side ... I have an appt with my onc on Friday and am going to ask to be referred to a lymphedema specialist. 

    And I agree about cars. I drive a small saturn, 02 I think, and it's been fine, great mileage. But Steve goes back to work tomorrow, so he will take it back since he has a long commute, and mine is only ten miles. But that means I have to drive his full sized pickup, which I hate to do. And it inhales gas.

    Mary, that komen event sounds inspiring. I haven't done anything like that yet. I hope you are all healed from the fall.

    Mel, thinking of you a lot, wishing you the best.

    Tina, we raised our kids here in the house where we still live. We chose this neighborhood because it was so rural. It is quite built up now, years later, but the hike we all loved is still there, and yesterday when I took it, I saw deer. The kids could roam and ride their horses when they were growing up, and they have very fond memories of all that.

    Quiet weekend here. I went to a luncheon of the San Diego BC org ladies yesterday and it was so nice. Good to see them all. The group has grown to 12 -15 which is great.

    I hope everyone is doing well, and enjoying the first day of June.

    Many hugs,

    Melia

  • mer1957
    mer1957 Member Posts: 534
    edited June 2008

    Rebecca, I'd call the PS even if he is out of town on Monday and get some advice.  Don't blame yourself.  Blame this darn cancer.

    Skye, good luck on the calligraphy.  They won't be asking me for any artistic work!  I got a D in handwriting in the first grade and it hasn't improved much.

    I bought a bike helmet today that fits and am about to go out.  The arm is scabbing over finally although it is still very tender. 

    Thinking of all of you, esp. Joni and Mel.  Hugs.

  • luckymel
    luckymel Member Posts: 643
    edited June 2008

    Well tomorrow is the big day for everyone else, but today is the big day for me - many things to do and lots of stress about getting it done.  Larry was recaulking the shower, and swept up the mess with the wet/dry vac which was full of concrete dust from the contractors, and now I have concrete dust all over everything - including in the closet.  I should probably wash all my clothes, but no time for that today.

    The bathtub works,  but the job isn't totally finished - at least we can use the tub, though.  I got a shower chair yesterday, after Lynn and Viddie insisted.  I got my hair cut quite a bit, and colored, and it looks much better.  Not great, but I can stand it, and it feels better.  Larry likes it, but I think he's just tired of wigs. 

    There are so many things I'm not going to be able to do for a while, that I feel like I need to do them all today.  I'm also trying to cook for Larry, and make sure he is taken care of next week, because he is going to have a hard week also.

    Rebecca, I'm so sorry you're continuing to have problems.  You are probably right that the radiation damage is to blame for the slowness in healing, although anybody can have a seroma.  I'm just sorry you have to deal with it.  Glad the car's fixed, at least.

    Mary, please don't tell me you've been riding without a helmet.  I used to, but that was in the '80's.

    Thanks, everybody, for the good wishes.  Viddie is on Larry's call list, and she will let everyone know how things went.  Thanks, Viddie.

  • skyedivine
    skyedivine Member Posts: 839
    edited June 2008

    Hi Ladies,

    Rebecca, I'm not sure I've even heard the term "seroma" before but it doesn't sound good. I hope you can have it seen ASAP. How many lymph nodes did you have removed? I've been babying my arm since the weed-pulling incident and it is much better now. I'm so glad your car issues are settled.



    Mel, you sound so busy I bet you'll be glad to lie down on that gurney tomorrow and get some rest. :-) We will be waiting for Viddie's report on you and of course thinking of you all day.



    Tina, your neighborhood sounds like something out of Leave it to Beaver. It sounds like you landed in just the right place for your family. We live in a small town so my sons had relative freedom too but not as much as we had as kids. Playing "kick the can" long after dark up and down the street, spending whole days picnicking in an old rock quarry, those were the days. Your Mexican dinner sounds delicious too.



    Melia, I so wish I had a local BC org like you do with luncheons, etc. There is a local support group but I've been warned away from it as being very depressing rather than uplifting.



    I'm finally relaxing after the party, we had a lot of fun but it was hectic because church took longer than usual due to 8th grade graduation from our church school, so we had to do a lot of cooking fast. It was just the boys and their grandparents and us so not a big crowd but we had marinated chicken breasts, DH's special camp potatoes cooked on the grill with onions, cheese, and other veggies, and I made a big salad, plus cake and the birthday pie. For fun, I had bought each "boy" a Super Soaker -- half-price at Shopko -- and they had a riot chasing each other around the yard like little kids. Weather was perfect, 77 degrees and sunny, almost no wind. Grendel was in heaven, especially with my mom hand-feeding him chicken the whole meal.



    Here is a question; if your right ovary felt "sore," from the inside, would that be something to bother the doctor with? My right one has felt that way for a couple of days. I used to get cyclic cysts on that side fairly often but that shouldn't be happening post-meno, especially with an AI, right? Man I get tired of second-guessing every little thing now. It doesn't help that when I went in for my Warfarin prescrip the other day, the pharmacist spent about 10 minutes telling me about the poor prognosis of someone she knows with ovarian cancer. If my ovary hadn't already been feeling sore I'd think it was all psychosomatic.



    Hoping for a good week for everyone nonetheless, and again, Mel, prayers for you tomorrow. - Skye

  • Rebecca
    Rebecca Member Posts: 971
    edited June 2008

    Oy Skye I hate people who tell stories like that...I once had the husband of a friend tell me a whole long story about his mother who had breast cancer...which of course ended with her dying a horrible death.  Not exactly what I wanted to hear as I was in active treatment at the time.  Sometimes people are so insensitive.  About your ovary...you should ABSOLUTELY have it checked out, although I will tell you that from what I understand, symptoms of ovarian cancer are more like indigestion than anything else, which is why the prognosis is so poor....it gets diagnosed fairly late because it is so non-specific. 

    Mel, thinking of you for tomorrow.  I too will be waiting for news from Viddie.  We will all be there with you in spirit, and I know everything is going to be great.

    Skye-a seroma is just a collection of fluid, and it often happens in women with lumpectomies as fluid fills in the cavity left by the excision.  In my case, the cavity is the "pocket" where my implant used to be, and can potentially get filled with quite a bit of fluid.  In itself, the seroma is not serious, and my PS is aware of it.  What I do not like is that my incision scar appears to be opening up.  It has degraded badly over the last few days, and today I think I actually have several weeping holes.  eeeeeewwww that is pretty graphic, I guess...sorry guys, but needless to say I am quite concerned and more than a little freaked.  I think I am going to call the PS office in the morning.  I know my doc is out of town, but maybe I can get looked at by a covering doctor just to tell me what to do! 

    ARRRRGGGGHHHHHH!! 

  • luckymel
    luckymel Member Posts: 643
    edited June 2008

    Rebecca, insist on being seen tomorrow if you think your incision is opening up.  There has to be someone covering, so be a pest if necessary, but get someoe to take a look at you.

    Skye, sounds like you (and Grendel) had a delightful day.  Sorry you have to worry about the ovary...doubt that it's ovarian cancer, as that isn't usually painful, but if you need to get checked out to relax, and it seems we all do these days, then do so.    Does it feel like your cyclic cysts used to feel?

    I'm just taking a break for a snack - I have hardly eaten today because of so many little chores, and I'm probably going to regret that by tomorrow.  I'll probably be up all night.  This truly is as bad as going on a trip, for me.  I get obsessed with getting everything perfect and organized.

  • skyedivine
    skyedivine Member Posts: 839
    edited June 2008

    Rebecca, weeping holes? OY! It is ultra-good you are going in tomorrow. Please do keep us posted, we will fret for you. And I forgot to mention I think subbing is a good idea, I used to do that when the kids were at home yet. It's a great way to get into a school system.



    Mel, glad you took that break. The ovary doesn't feel quite like the old cysts which used to be a much sharper pain that kept recurring. This is just like an ache that doesn't stop. But you are right I think that Oc isn't usually painful. Maybe just my body still stubbornly trying to make its old cysts. Hope you can sleep tonight and just trust that anything important will be taken care of.

    Big hugs to all - skye

  • meliaanne
    meliaanne Member Posts: 682
    edited June 2008

    Skye, let us know what your dr says when you call (and yes, you must call) today. I agree that it makes our lives unnecessarily bumpy, all our fears, but they are real fears. When I was trying to decide whether to call for an appt because of my vague ache in my side and my mild arm swelling, I told myself that the only way to the other side is through the process. I am going in on Friday, and already am trying to rationalize cancelling, but am not going to allow myself to do so.

    Rebecca, you need to call too. It does sound like your poor body is needing a long break from medical procedures, doesn't it?  I imagine a competent lawyer would be able to build a case for malpractice, dating from way back when they gave you the wrong type of implants. But who has the time / energy / motivation to do all that?  Right now you just need help to heal.

    I am reading a great book called The Year of Living Biblically, about a fellow who decided to take a year and try to follow biblical precepts. It's witty and easy to read, and very thought provoking. I struggle with petty feelings, and am hoping this helps me in that area ... interesting book.

    Viddie, let us know about Mel as soon as you can. I know we are all thinking of her today.

    Melia

  • meliaanne
    meliaanne Member Posts: 682
    edited June 2008

    Skye, let us know what your dr says when you call (and yes, you must call) today. I agree that it makes our lives unnecessarily bumpy, all our fears, but they are real fears. When I was trying to decide whether to call for an appt because of my vague ache in my side and my mild arm swelling, I told myself that the only way to the other side is through the process. I am going in on Friday, and already am trying to rationalize cancelling, but am not going to allow myself to do so.

    Rebecca, you need to call too. It does sound like your poor body is needing a long break from medical procedures, doesn't it?  I imagine a competent lawyer would be able to build a case for malpractice, dating from way back when they gave you the wrong type of implants. But who has the time / energy / motivation to do all that?  Right now you just need help to heal.

    I am reading a great book called The Year of Living Biblically, about a fellow who decided to take a year and try to follow biblical precepts. It's witty and easy to read, and very thought provoking. I struggle with petty feelings, and am hoping this helps me in that area ... interesting book.

    Viddie, let us know about Mel as soon as you can. I know we are all thinking of her today.

    Melia

  • meliaanne
    meliaanne Member Posts: 682
    edited June 2008

    Oh, Skye, I meant to say that I started the San Diego bc.org support group in Feb of 07. All I did was post a brief message in the Get Together thread. Our first luncheon was five women, and now we are 12 - 15. I don't always go as it is often on Sunday, which we keep as a family day, but when it's on Sat I try to go. Maybe you could post a message and see who responds?

  • skyedivine
    skyedivine Member Posts: 839
    edited June 2008

    Melia that is a very good idea about the post on the Get Together thread. I hadn't even thought of looking there, much less posting, myself.



    I have to go in for that flush today so I'll mention the ovarian ache while I'm there. I think they are arranging a bunch of scans and such right now anyway.



    I've heard about that Year of Living Biblically; I think I heard an interview with the author on public radio. Sounds like a fascinating one to pick up.



    I'm glad you are also getting seen this week! - Skye

  • Caya
    Caya Member Posts: 971
    edited June 2008

    Just a quick check in as I am super busy... Dh is in NYC, so I am alone in the office.

    I saw Sex and The City on Sat. night with 2 girlfriends - I LOVED it.  I was not a big follower of the TV show, but the movie was much better - really well developed story line, pathos, comedy, (never mind the fashions and footwear) - this is a great chick flick night out.

    I will go over the past few days of posts and check in later today or tomorrow.

    xo

  • Rebecca
    Rebecca Member Posts: 971
    edited June 2008

    Just a quick update...got my PS on the phone just now, and he wants to see me today, so I should have some answers quick.  AAARRRGGGHHHHHH! (just have to let it out!).  He said "do not panic", but I am not sure how I can NOT!!!!

  • skyedivine
    skyedivine Member Posts: 839
    edited June 2008

    Caya I would love to go see that movie. DH actually liked the show so he might go with me.

    Rebecca we will panic for you. Quick answers are great, I hope this all gets settled as fast as your car repairs. Let us know what happened when you get home! - Skye

  • Caya
    Caya Member Posts: 971
    edited June 2008

    Hello gals,

    Well it seems there are new/old aches, pains etc. in our little group these days. 

    Rebecca - I'm glad you got into your PS today.  I know you will post an update for us when you can.

    Skye - ovarian aches?  OY!!!  I had those for years too, full of cysts.  But you're right, I doubt you would have cysts now, but WTH?  I'm sure it's nada, but as you say when you get your port flushed, you can ask.  Speaking of getting the port flushed, a chemo/Herceptin friend who finished her Herceptin last week called today to tell me that our onc.'s office called her today with an appointment to get the port out in 3 weeks.  Needless to say I will be on the phone tomorrow morning to call his secretary to see what gives.  I don't mind keeping it in until the first 3 month check up (Aug.), but I really would like to get it out ASAP.

    Mel - I guess today is the big day.  I hope you are doing well, and your DH via Viddie will let us know how everything went.

    Melia - I saw the author of that "biblical" book on a talk show recently - it sounds like quite the year he had.  I think his wife got very fed up with it all.  I hope you and Steve are doing well.

    Mary - You MUST ride with a bike helmet.  It's a law here in Ontario, you can be fined if you don't wear one.  LOL re: the D in handwriting - I didn't do much better.  Luckily we have nice fonts now.

    I went to an amazing Bar Mitzvah last night - the appetizers were unbelievable, they had a mushroom station, a hand cut pastrami station, lots of sushi, eggrolls, veggies with some exotic dips - and then the dinner - they served steak and chicken - who could eat by then?  Then they had a "candy" table - cardboard letters of the kid's name filled with all kinds of candy, licorice twisted into tall glasses, popcorn, etc. - they gave you little plastic bags so you could fill up with whatever candy you wanted - don't even ask.  Then a sweet table - they were making waffles.  I really broke the low carb regime last night.  Oh well, tomorrow is another day, (right Scarlett?)

    Unfortunately Allan was not there as he is in NYC for the Shoe Show and meetings, but alot of my neighbours were there, so it was very nice.

    Cassie is still in Greece, having a great time.  She flies back to Israel on Friday for the wedding.  So it's just Amanda and I at home this week, it's nice to be able to spend some one-on-one time with her.  We went for a nice brisk walk today, made some meatballs and some cookies.

  • mer1957
    mer1957 Member Posts: 534
    edited June 2008

    Off for a bike ride with my new helmet so you'll be able to relax about me.

    Mel and Rebecca, sending healing thoughts your way.  Skye, any news?

    I went to my radiation onc for my follow up visit -- don't have to go again to him for a year - yeah!  But I gained 4 pounds so back to watching what I eat and weighing myself!  It's hard to believe with all of the time I exercise that I could gain weight but I guess it's what you put in your mouth that counts!  Next Monday is my mammogram - Boy I sure know how to have fun.

    Caya, that Bar Mitzvah sounded yummy. 

  • Rebecca
    Rebecca Member Posts: 971
    edited June 2008

    hi ladies...what a day!

    Just back from seeing my PS, and he was fairly horrified at what he saw.  There was an area on my incision that I looked at this morning that looked necrotic (dead), and I was correct...he pulled it out, and my seroma immediately started to drain (that was more than a little disgusting).  10 minutes and several soaked chux later it was empty, and he took a look inside and saw.....the INSIDE of my capsule, meaning that this hole was just like the first hole I had...only MUCH bigger.  I now have a gaping wound on my chest, a sports bra stuffed with chux, gauze and silvadene cream and I am scheduled for surgery next Wed.

    Well, it does not rain but it pours Frown.

    I am suitably miserable, and very sore now because after he drained the fluid he irrigated it with some betadine (now THAT was fun). I think I will probably take a pain pill tonight and go to sleep. 

    Mel...despite my own personal misery I am still sending positive thoughts and hugs your way as you complete your much awaited transformation!  xoxo

  • viddie
    viddie Member Posts: 547
    edited June 2008

    Hi all,



    I just heard from Larry. Mel is fine. She is out of surgery and is in icu. She will be there until tomorrow. That is routine with Diep surgery. She went in at 8:00 and was out by 5:00 and the ps said everything went great!!!!

  • viddie
    viddie Member Posts: 547
    edited June 2008

    Rebecca,

    Hugs to you. I am so sorry you have to go through all this.

    Did he give you more pain pills? I agree- you should not hesitate to take a pain pill. You need to be as comfortable as you can be.

    It is so aggravating you have to be put through this again. It is not fair. Hopefully next week he will fix the problem.

    Hugs to you,

    Love,

    Viddie

  • viddie
    viddie Member Posts: 547
    edited June 2008

    Caya,

    The Bar Mitzvah sounded delicious and fun. I haven't been to one in quite a while, but I do enjoy them.

    I also love one-on-one time with my kids. It is a special time. Enjoy!



    Skye,

    What did they say about the Ovarian ache? I hope they could give you some answers or reassurance.





  • Rebecca
    Rebecca Member Posts: 971
    edited June 2008
  • jonimb
    jonimb Member Posts: 900
    edited June 2008

    Hello Tatas,

    Well I had my 5th infusion today (only the Gemcitabine)...we are going to be adding Abraxane (like Taxol only without the ethanol and camphor).  As Abraxane is not yet approved in Alberta, my oncologist is getting special permission to use it.  It can be used in some provinces where people have an allergic reaction or liver uptakes from Taxol or Taxotere, and that is exactly what is happening with me.

    I had a very bad scare yesterday. Thor had a seizure.  He has never had one before, so I called the vet.  He had all his shots on Thursday nite, and the vet (Emergency vet) said that this happens sometimes, and that in future, I should make sure I space out all is shots.  I tried to stay very calm, inside I was so scared.  Dan finally heard me from downstairs, and came up.  We have been watching him very closely ever since.  He even came to the hospital for my chemo today.

    Mel, my thoughts are with you today.  I had my healing stone with me at chemo, and I said extra little prayers for you.  I'm glad to hear that all went well with the surgery.  We all love you.

    Rebecca, I'm so sorry to hear about all your troubles.  Hopefully next Wed. they will get everything all fixed up properly.  Hugs to you as you sound like you had a very rough day.

    Viddie, I've been saying extra prayers for your friend Arlene.

    Sharon, how was your long weekend.  Did you say you were going fishing?  Did you catch any?

    I got myself a blonde wig for Vegas..but I'll bring my others too.  I don't know what I'm going to do for swimming...any ideas...as I won't have any hair.

    Robbin Jaye, haven't heard from you in a while, hope you are well. 

    Tami, it was really nice hearing from you...keep in touch.

    Jan, Lynn, Caya, Melia hope you are all well

    Hugs to all.....Joni

  • skyedivine
    skyedivine Member Posts: 839
    edited June 2008

    Oh, Rebecca, OY OY OY! I can barely fathom how you could have gotten to this point, I'm blaming all your doctors for not one of them catching this sooner. Irrigation with betadine...shiver...you are one brave little English professor. And what are they going to do in the surgery? You deserve a pain pill and some rest, for sure. I'd be lights out and don't wake me up unless someone's bleeding. A lot. Do you have to keep all the gauze and stuff on til next Wed.? Many heartfelt air hugs to you, dear.



    Viddie, thanks for passing on the good news about Mel. Please keep us posted with any other news.



    Caya, I forgot you have one girl halfway around the globe. And that banquet, yowza! I would never have gotten past the mushroom station. Your friends and rellies have the best food.



    Mary, glad to hear it's helmet time. You can't walk down the aisle as MOG with a grievous head wound.



    And you guys are gonna kill me but I totally forgot to ask about the ovary when I went in. I was done so fast, and amazed at how little time it took, and was quizzing the nurse about the bloodwork and stuff, and then I was halfway home before I remembered. I've become so accustomed to the little dull ache that I don't even think about it any more. I'll give them a call tomorrow if it's still there. Also I was really really tired, it was all I could do to keep my eyes open to drive home. I needed an hour's nap. Usually Grendel curls up on the bed next to me and snoozes nicely but today he sat up and stared off the edge of the bed into the room toward my dresser and growled very low but steady. I was too tired to care or be freaked out. I have no idea what that was about. - skye



  • skyedivine
    skyedivine Member Posts: 839
    edited June 2008

    Joni we posted at the same time. What a scare with Thor, hope he is ok.

    Sounds like you are coming right along in your infusion schedule. I sure wish I could have had Taxol without those additives.

    For swimming, you could just go topless like all the best swimmers who shave down for meets. We sure won't care! Or do they still sell swim caps? Remember the ones they used to have with flowers all over them? You could also wear a scarf or bandanna tied and tucked in tight.

    The blonde wig sounds very sexy, we'll have to keep an eye on you on that Strip! :-) - Skye

  • viddie
    viddie Member Posts: 547
    edited June 2008

    Tina,

    The Bellagio dinner buffet sounds like a great idea- along with the Cheesecake Factory. I can't wait!!



    I went to my new primary care doctor today. He is young, cute, enthusiastic, very bright, funny, friendly, and extremely nice---I would like to wrap him up and send him to Meri--but darn, he is married. lol.

    Needless to say, I really like him. Now I am searching for a new oncologist that I would like.



    It was beautiful here today. Did I mention that my Endocrinologist gave me a blood test and it came back that I am low in Vitamin D? Now I take 2000 mg of D daily. I also read that if I sit in the sun for 15 minutes daily without suntan lotion, that would be more than enough for a daily supplement. Needless to say, I enjoyed the sun today. There is some link between low vit D and Breast cancer- very interesting. Months ago, when I asked my oncologist if my vitamin level could be tested, she said she would not be able to read or understand the results. Bright response, huh??? That's one of the many reasons why I am looking for another oncologist.



    Mel,

    I am thinking of you. Hugs to you.



    Love,

    Viddie

  • viddie
    viddie Member Posts: 547
    edited June 2008

    Joni,

    It is great hearing from you. I am glad Thor is okay. What a scare.

    How are you feeling? I agree with Skye, you can go topless- we will support you. Maybe you can pick up a cheap short wig, just for swimming. It should dry fast, and you won't care what happens to it.



    Skye,

    Please call tomorrow. I have done that before, forgot to ask my most important question. I hope you have a very good night's sleep tonight so you can wake up bright eyed and ready for action- whatever that may be.

  • sharon56
    sharon56 Member Posts: 220
    edited June 2008

    hey there hi ...... i have been busy and reading the posts to keep up , miss ya'll i have been working , camping , fishing and now back to work . The weather here has been so nice today and i am getting the garden in order .

    Joni hope Thor is ok and your onc sounds like he is right on the ball getting you what you need. Keep your head up,

    Attached here is the fish I caught its a lake trout caught in Lake Tamagami , i also caught 2 walleye but did not have the camera with me. Just me and dh went for a week . The weather was chilly but we were snug in our camper .

    I am still having trouble with my legs shaking and aching all the time , had a nerve test, no nerve damage so I am off for another CT next week of my pelvis . Wonder if it has something to do with my last surgery . Damn if its not the BC its the colon cancer after affects .Almost been a year now since my bowel blockage , what other fine things are left in down there .The dr thinks that maybe its more scar tissues aggravating my nerves ....... lovey ol body of mine war zone of many hidden treasures .

    And ......... HELLO AND BIG HUGS TO EVERYONE ....... the fish tasted yummy............ all I am still here will keep poppin in

    Chec out this baby ........ ummm   

    http://i25.photobucket.com/albums/c75/shorti56/fishy.jpg

    http://i25.photobucket.com/albums/c75/shorti56/myfsh.jpg

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