under 40 with young children

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  • sims2addict
    sims2addict Member Posts: 24
    edited April 2008

    Hi, I'm 33. I'm married witha 13 yrold, and I work fulltime.  I was diagnosed on Apr 11. I'm still having exams done to determine my exact stage. I do know I and between stage 2 and 3, only 1 lymphnode is in question, and my lump is 4.6 cm.  No one in my family has ever had breast cancer, so this came as a surprise to me. I felt a lump in my left breast about 2 months after having a miscarriage in Dec. (full story in my bio). Several women have share their testimony of surviving BC, so I am very encouraged I will get through this, and so will you.  I wish you success in your journey.

    my motto - Happiness is a journey, not a destination.

  • susieloutoo
    susieloutoo Member Posts: 107
    edited April 2008

    smilevirgo74 -

    Your story struck me since it is so very close to mine - strange really - I was diagnosed April 11 last year.I was 36 and I have a 5 year old. 2 nodes stge II and a larger lump too. 

    Sorry you have to be here but you are in the perfect place to heal and learn. This time is so crazy - you have so many decisions to make, tests to take and questions to ask. I harvested my eggs at this time too...You should be encouraged - you can do this and you can win! Be sure to find the support you need whether it is 2 friends or 200 - just make sure you take care of you! We so often forget as moms and it is so hard to relent to those who want to help. Set your pride aside and take in the love......best thing I ever did. How is your son doing???? This must be hard for him....PM me anytime! Where are you? I am near Ann Arbor.

    Hugs

    Susie

  • LorenaB
    LorenaB Member Posts: 937
    edited April 2008

    Positive healing vibes going out to all you women with young children (and to everyone else, of course!).  I'm a 41-year-old single mom with a 7 year old son, and right now I'm halfway through chemo, with a mastectomy to follow in a couple of months.  During the past few weeks I've pretty much thrown our regular routine out the window -- I've been letting my son watch more tv and eat more prepared foods than I usually do, just so I can rest.  And we've been eating a lot of ice cream -- before dinner! I feel sort of guilty, but I know it's just for a short time and it won't matter in the long run.  My son is spending a lot of time with his father and his grandparents, which really is good for him and for everyone. 

    And there is nothing like the hugs and cuddles of your child when your are feeling down.  My son is the only one who truly isn't bothered by my horrible stubbly almost-bald head.  When I asked him if it scared him, he replied, "no Mom, I'm brave!" and then told me I was the best Mama ever.  When I picked him up at school he announced to his friends, "Guess what? My mom is wearing a wig!" like it was the coolest thing ever.  Children are the best.

  • nursedj
    nursedj Member Posts: 20
    edited April 2008

    Hi to you all, I am so glad I found this forum, I am 41 and am about to have an ultrasound due to several masses found in both breasts. I am terrified, I have two daughters 22, 21 and a daughter still at home that is 13 almost 14. I think she is a little worried but I try not to talk about my fears with her until I find out whats up. I have been reading nonstop for days and days and have learned so much. I hope that I can be as strong as all of you if I get bad news. I have a new grandbaby on the way and already have a 3 year old granddaughter. I want to see my family thrive and grow and to see my 13 year old graduate and go to college and start a family one day. I know God has a plan for us all and I know with him beside me I can get through whatever life throws me. I will keep you all in my prayers and I just want you to all know that you are heroes to me, women are the strongest in the World. Love and hugs to you all. I will keep you posted as to my ultrasound findings tomorrow.

  • nash
    nash Member Posts: 2,600
    edited April 2008
    Welcome, nursedj. Hope the u/s went OK--let us know what the doc says. Waiting and not knowing are one of the hardest parts of all this. Hoping for happy, benign results for you! Smile
  • nash
    nash Member Posts: 2,600
    edited April 2008

    And welcome to sillygirl and smiley, too. You'll find such great support here--glad you found us!

  • frogger
    frogger Member Posts: 52
    edited April 2008

    hi gals ,

    i was diagnosed on march 17 2008 i was 39 at the time. i turned 40 on april 6 th. happy b-day to me sitting at home recovering from surgery on 4/1/08. i have 2 kids a 12 y/o daughter and a 2 y/o old son. my daughter is the one thats taking things rough since she had to move about 3 mnths prior when i left my husband for abuse. she has that what ever attitude and tries to play your sick mom and i'll do what i want. my son just likes to push the limits with me cause he knows i can't lift him yet so he thinks it's fun to try to make chase him. kids all react different. my oncology nurse gave me a book called when mama wore hats. my daughter did read it and seams to be understanding better about what is happening. wishing you all the best with your kids find what works and stick with it. there is no easy answer when it comes to them

  • nursedj
    nursedj Member Posts: 20
    edited April 2008

    Well ultrasound was all clear, the sonographer said she sees nothing and so did the radiologist that looked at them after she did. I can't understand what we (me, my nurse, and my surgeon, and now the sonographer) are feeling. The sonographer said I have lumpy breasts. I wonder if my surgeon will still bx these lumps? Or maybe he will give me the all clear. I thought maybe they were cysts but nothing showed up. I am totally confused now and am wondering what is next. Thank you for all the support. Any advise will be greatly appreciated. I will keep you posted. Thanks for your prayers, you are all in mine.

  • Youwearpink
    Youwearpink Member Posts: 87
    edited April 2008

    I am 32 now and was diagnosed almost 6 years ago, 10 days after the birth of my second daughter. My daughter was 3 1/2 when I was bald. She remembers it a little.  I am going through a scare now. An MRI revealed a suspicious spot in my hip. I need a pet scan. It is on Friday. My 9 year old heard me on the phone with the doctor. She was praying and crying this morning.  I am nervous!!!!!!!!

  • Youwearpink
    Youwearpink Member Posts: 87
    edited April 2008

    I am 32 now and was diagnosed almost 6 years ago, 10 days after the birth of my second daughter. My daughter was 3 1/2 when I was bald. She remembers it a little.  I am going through a scare now. An MRI revealed a suspicious spot in my hip. I need a pet scan. It is on Friday. My 9 year old heard me on the phone with the doctor. She was praying and crying this morning.  I am nervous!!!!!!!!

  • Jule
    Jule Member Posts: 250
    edited April 2008

    Hi. I am 36 and I received my diagnosis today. I have a 4 year old daugther and a 6 year old son. I have more tests in the next couple of weeks before surgery.  My sister died several years ago due to breast cancer. I am relieved that I know what is going on - the last week has been horrible. I am ready to fight because I will see my babies grow up. Has anyone heard of or tried different diets, exercises, etc that are helpful while going through this whole process?

  • nash
    nash Member Posts: 2,600
    edited April 2008

    nursedj--if the surgeon can feel the lumps, he can biopsy them. However, a breast MRI first might be helpful--if it's negative, he might be more comfortable declaring your lumps fibrocystic changes. The fact that you have multiple lumps in both breasts points to fibrocystic changes anyhow. I think it's probably good news that the u/s was negative. When do you see the surgeon again?

    Youwearpink--I'm sorry you have to go through a PET for a suspicious spot on your hip. I have a 9 1/2 year old and a 6 year old, and the 9 1/2 year old is definately very aware of everything and much more worried than my little one is. Keep us posted.

    Julie--I posted to you over on the "Not Diagnosed" board. I'm sorry to hear about your sister. My mom just died of bc 8 1/2 weeks ago--it blows. Have you been BRCA tested yet?

    You also asked about diet/excercise, etc. Well, during chemo, diet and excercise will pretty much boil down to whatever you can tolerate. There's a whole section of the boards called "Help Me Get Through Treatment" that you may want to check out if you haven't already, as well as a chemo board. You can get lots of input over there.

    My 2 cents on it, though--post-surgery, your surgeon will probably have you do some specific arm excercises to reduce the chance of lymphedema in the arm on the cancer side (due to lymph nodes being removed). And during radiation, the rad onc will probably give you specific excercises to stretch out the muscles that are being radiated (mine did). But as far as regular excercise (walking, running, etc.), like I said above, it will just be whatever you can tolerate. If you regularly excercised before treatment, you should be able to continue during treatment, just not as vigorously, and probably not as often. There will be days you feel like moving around and days you don't. Same with the food--some days you'll be able to eat normally, other days, all you'll be able to choke down will be Cheetos. And while on chemo one needs to be careful about eating raw fruits and vegetables when one's white blood counts are low. And one might want to up the intake of iron rich foods to combat low red counts. Hope that helps a little.

  • Jule
    Jule Member Posts: 250
    edited April 2008

    Nash,

    Thanks for all of the advice.  I'm just trying to wrap my head around if there are things that I should be doing now. I am worried that I will be so exhausted I won't want to do anything. I guess I will figure it out. 

    Thanks for all of your comments. It's nice to know that others are listening. Where are you in this whole process?  

  • shiny
    shiny Member Posts: 892
    edited April 2008

    Hi there, just signing in,

    mum of 2 (4 and 7) 40 now,  diagnosed at 39 with triple neg idc w 1/16 nodes.

    Have had pretty positive experience as my mum came from canada to help with the kids. Most days, am just soo grateful to be here, alive, enjoying the kids. The treatments mhave taken their toll, but, you do your best.

    2 month ago, I had double mast with immidiate reconstruction using flaps from my tum, with no need to cut through the stomac muscle, so am very very pleased I chose that type of surgery. feels very natural. Just thought I'd post that, in case soem of you are thinking about your surgery options. In my case, I just feel, it's nice that my new "boobs" are all me (especially as I am prone to allergies)and this will mean fewer procedures in the long (let's hope)term.

    good luck to you all! kids sure are a great way to focus on the positive and stay busy!

  • nash
    nash Member Posts: 2,600
    edited April 2008

    Julie--I had a lumpectomy last July, finished chemo in December, finished radiation in February, and am now on Tamoxifen.

    Welcome, shiny, from the other side of the pond! Smile Glad you had good results with the DIEP reconstruction.  

  • lisa39
    lisa39 Member Posts: 255
    edited April 2008

    Hi Ladies,

    I'm 39 - was dx'ed last Nov. at age 38 and have two sons ages 6 & 7.  Am halfway through 8 rounds of chemo. For me, the worst part of having BC is the terrible fear that I might not be around to see them grow up.  My cancer was caught early and I'm getting very aggressive treatment to deal with it, so the Doctors say the prognosis is good.  But still, those little worries pop up in my head.  I wonder how I'll deal with it when my treatment is done.

    Lisa  

  • nash
    nash Member Posts: 2,600
    edited April 2008

    Hi, Lisa. You and I are almost the same age, and our kids are about the same, too (mine are 6 and 9 1/2). I fear the same as you about not being around to see them grow up. My fear is amplified by the fact that we've lost 5 family members to cancer, 4 just within the past 7 years, and most recently my mother to bc, two months ago. So we don't have a terrific track record of surviving cancer in my family. That being said, now that I'm done w/chemo and rads and the constant doc appointments have died down, I am thinking less and less about my bc, even on the heels of my mom's death. So I think that fear will always be there, but it will fade into the background for you.

    Are you getting a year of Herceptin along with the chemo? My mom was her2+, and another great site to check out, in addition to this one, is www.her2support.org. I visited that site daily for the 5 1/2 years she was on treatment. They're very knowledgeable over there, and it's a good resource in addition to this site. 

  • shiny
    shiny Member Posts: 892
    edited April 2008

    Hi Nash, thanks for the welcome.(am canadian but "accross the  pond since 92).

    I was astounded to read how many people in your family passed away ue to cancer. I am sure that must affect your own cancer experience alot. It must also make you more determined and pro active about your life. No doubt you are very strong, you've had to be.

    Lisa,Re: kids, (i have 4 and 7 yr olds) On diagnosis I had those thoughts about the possibility of not beeing around for my kids, it's a very painful thought, we all have to acknolege, then move on from I guess. At the time, especialy since my boy has special needs, I felt very protective of them, but I didn't dwell on this, like Nash said, that fades. I figured, I am not in charge of when I am going to go, never was never will be, cancer or not. Also, I though, my kids are wonderful and loved by many, so I will just trust that, if ever the "what if" happens, they will be supported and loved by wonderful people. They may not mother them in the same style as me, but they will be loved and adored. That realisation comforted me then. Now I just really feel thanks and gratefulness to be with them each day.

    I hope you both have a peachy week end. best wishes.

    shiny

  • lisa39
    lisa39 Member Posts: 255
    edited April 2008

    Hi Nash and Shiny,

    Thanks for your support.  Yes, I am getting Herceptin - starting it with my Taxol on May 5th.  Waiting for results of my first MUGA scan now.  It's good to know that the fear fades over time.  I will check out HER 2 support.

    Sorry to hear about your Mom, Nash.  That must be very painful.  It's such a horrible disease.  I can't wait till they figure out how to cure it once and for all!!

    Lisa  

  • nash
    nash Member Posts: 2,600
    edited April 2008

    Thanks, Lisa. <<<<<hugs>>>>>>>

  • kitkat04
    kitkat04 Member Posts: 38
    edited April 2008

    youwear pink

    Just read your note, I have a 10 years old son(also a 6 years old)  they were 3 and 7 when I was dx at 34.  So hard dealing with the older children, at least if they are only a few years old they do not understand.  Just wanted to send a ((((((HUG)))))) and tell you you are in my prayers.  Remember too that what a 9 year old can imagind in her head could be worse than the reality, be truthful.

  • DLY
    DLY Member Posts: 1
    edited May 2008

    Hi everyone. I just found this website when I was searching the side affects about tomoxfin. I just turned to 39. My daughter is 12. I was diagnosed in Sep07. Followed by surgery, chemo, and now I am on radiation and on pills as well. I have been through a lot last year. My life just got settled, two car accidents within four months totally destroyed my health and life, not recovered from the indjury yet, been diagnosed breast cancer stage IV. I prefer not knowing too much about my cancer. Previous indjuries make it harder for me to go through my treatments. even two weeks ago wanted give up the raditions because of lots of pain on my neck, back and shoulders. I even thought couple of times to end my life because of those pains. Just imagine what kind of life is it. each movement with pain. I am out of shape because of the pain. I had been very angry after the diagnosis. I have no family history, no bad habbit, always be very nice to people around, help others whenever i could. why all of these happened to me?Now the only thing i can do is just accept it. I am really exhausted about what to eat because my homo test was positive. If someone knows, I would appreciate  your sending me email at d_leeian@hotmail.com.

    I know it is very hard for us with young kids. I know if you have your family around will be great. My husband is around. However I would rather he is not here. He does not speak english, he spends time playing online games, reading chinese novels rather than learning english. he does help me with housework since he stays at home every day. Other than that. You can not expect him anything else. I keep asking myself if this what I want. Is this the husband I want. I can not remember if he ever ask me what doctor said or what is going on with my treatment. He has never collect any information to help me go through the treatments. When he went to the hospital with me, he never asked me what the doctor said. He just read his novels. when my nails turned blue, he asked me what happened to my nails. I just know when I was in the emerge, he was the last person I wanted to see. I don't know what should I do now.

  • gogators
    gogators Member Posts: 39
    edited May 2008

    Hello everyone.  I am a 34 yo single mother of two boys age 12 and 13.  To make matters a little rougher, my 12 yo is bi-polar, schizophrenic, and IED.  It makes life interesting on most days.  I have been completely upfront with both boys.  They know a little bit about cancer, my mom died just after the birth of my first son from Non-hodgkins Lymphoma and as they got older they each wanted to know about thier "grammy" and what happend to her.  Then, my father died of Thymoma in August of 06 just a few short months after being diagnosed.  So, needless to say, they are concerned but also are at that point in thier life when thier friends are EVERYTHING, I am kinda thankful for that because it keeps them busy and their minds off of things for now.

    I was diagnosed 3-26 and have had two lumpectomies since then.  I have not yet started treatment, I will be having a port installed next Friday and then tx to start on 5-22.  One thing I have been doing with my oldest in this time is teaching him how to cook a bit more.  At least easy things for now.  Hopefully that will help me with those duties as I am going through treatment. 

    I am so glad to have found this site with not having much support (because of the job situation here, my 3 best friends have moved to Ohio and North Carolina) I feel like I will probably be on here quite often.

    My best to you all!

    Tina

  • nash
    nash Member Posts: 2,600
    edited May 2008

    Hi, Tina, so glad you found us. You will get tons of support here, which will be especially important when you start chemo. Be sure and post over on the May chemo thread over on the chemo boards if you haven't already--I don't know how I would've gotten through everything w/o my chemo buddies.

    So sorry to hear about your parents. Both of my parents died of cancer, too (my mom had bc, and we were on chemo simultaneously), as well as my FIL. So my kids are a bit freaked out. But things are starting to settle down now that I'm done with chemo/rads, and things will settle down for you eventually, too. You've got the added challenge of a special needs child, but this is the place to come and vent and cry. We'll all go, "Wow, that sucks," and send you virtual hugs, and then you'll feel better. Smile

    Happy Mother's Day! 

  • nash
    nash Member Posts: 2,600
    edited May 2008

    Welcome, DLY. Wow--you've got a lot going on! You asked what to eat b/c your hormone test came back positive. Can you elaborate on that? I was under the impression that ER/PR status and what we eat weren't connected. If you give me a little more info, I can try and find an answer for you.

    I'm sorry to hear your husband is unsupportive. Men deal with things in a funny way. Maybe he's so freaked out by your stage IV diagnosis that he doesn't know what to do, so he just ignores the whole thing. I don't know. But I'm sorry that you're not getting the support and attention that you need from him. However, we're here for you 24/7, so glad you found the site. 

  • drcrisc
    drcrisc Member Posts: 836
    edited May 2008

    Hi everyone,

    Just found this thread - I post regularly on several others, but was looking for one like this.  I have seen some of you there - LorenaB, Nash, Tina.

    I am 40 (41 tomorrow) and was dx in March.  I have 2 girls, 41/2 and 8 (almost 9).  I have been worried about many of the things you all have mentioned.  My oldest was most disturbed about my potential hair loss ("You mean you're gonna be BALD?"), but has seemed to adjust to the idea.  She has also offered me her (or her sister's) eyelashes/brows and told my dh "I think mom might need to borrow my eyebrows."  Smile

    Tina, like you, I may start chemo on 5/22.  I'm still waiting for some 2nd opinion results.  I can totally relate the "short fuse" thing and I'm trying to really work on that.  I'm also trying to keep things as "normal" as possible for them, but hard to know how that will work with chemo. 

    Hope everyone is having a great Mother's Day!!

  • shiny
    shiny Member Posts: 892
    edited May 2008

    Hi drcrisc,

    1st, thank you for reminding me about mother's day! I can still call my mom from here. I usually remember to celebrate the UK date and the Canada/USA date also.

    re Hair loss: I got some great little cotton knitt hats from headcovers.com. I was loosing so much hair by day 10 of FEC (which I got every 3 weeks followed by docetaxol x3) that I went to my boy's barber to have it shaved off. I am forty and my hair was always my "crowning glory" but I was surprised how "easy" it was. I knew it was temporary, and I figured it was a small price to pay for chemo to help me. I got a wig, just in case my kids "needed me" to wear it (esp my special needs one). In the end, never wore it, didn't feel like me. Liked my hats though.My girl helped me choose the colours and styles.

    When the kids saw that I was ok with it, they were fine, mostly. I let them touch my very soft smooth head and reassured them that "the potions for mummy's lumps" made it fall out, but it would come back. I wore hats, little cotton ones all the time. The weirdest was loosing the eyebrows, but got good at penciling them in. The hair started to grow back before I finished docetaxol.

    Good luck with your chemo. I finished in November 07 and it feels a long time ago.  Hope your second  opinion clarifies things for you. all my best.

    take care.Shiny. 

  • gogators
    gogators Member Posts: 39
    edited May 2008

    Drcrisc: what course of treatment will you be doing?  I am dong TAC x 6 treatments.  It will be interesting to compare notes...

    As far as the hair issue goes, I plan on purchasing a wig. My kids are cool with the no hair thing.  My 12 yo shaves his head bald regularly and said we can do it together now!  For me, the wig will be needed for work.  I work at a residential facility for male juvenile offenders (14 - 18 yo) nuff said!  I just hope it looks as cute on me as it does on the pretty internet model!

    Well, I must go, my 13 yo son is almost done with my Mother's day dinner....Penne pasta with meat sauce.  By the time my treatment is over with, he'll be a master chef!  LOL

  • drcrisc
    drcrisc Member Posts: 836
    edited May 2008

    Shiny - Glad I reminded you!  We have looked a little at that website and I have my prescription for my "cranial prosthesis" from the onc.  I will probably have my older one help me with colors and styles - she'll like that.  I'm not expecting to get a different result from the second opinion, but if I'm going to do this I want to be sure!!

    Gogators - I think we're both on the May 08 chemo thread also.  When I start, I will be doing Carbo/Cytoxan every 3 weeks x 4 and then Taxotere on the same schedule.  Then 6 and a 1/2 weeks of radiation, although the onc said I could do them together if I want.  Not sure about that.  I also will have to get a wig of some sort particularly for work.  Interestingly, I work in a men's prison so I get them after you, but you get the reason!  I might as well wear a neon sign if I come in with a turban!  LOL

    Mother's Day was pretty good - we just hung out and then went out to dinner.  It's also my birthday tomorrow, so we did it kind of big today.  My best present:  I was watching "America's Favorite Mom" with the girls and my older one said "Why aren't you on there?  You should be."  That got me.

      

  • LorenaB
    LorenaB Member Posts: 937
    edited May 2008

    Cristine - Happy Birthday!  Your "America's Favorite Mom" comment was so sweet.  As I think I've mentioned, my 7-year-old son is totally not bothered by my lack of hair.  I just completed chemo a few days ago (yay!) and I've given him the "job" of checking my head to report on any new hair growth.

    Ugh, I feel awful today (for some reason day 5 after chemo has been the worst each time) but I'd better get my child dressed and onto the school bus.  Best wishes for a good day for everyone!

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