Starting chemo Dec 2007

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  • bapnkat
    bapnkat Member Posts: 104
    edited April 2008

    Hi everyone!  So glad you are all doing so well!  Sorry to hear about your ankle Suz, hope it feels better fast!  WishIwere, Happy Belated Birthday!!!

    I need to lose some weight, too.  I'm just not doing very well at it.  I need to exercise more, but by the time I decide to exercise my energy is to low.  Or I'd rather use it for something else.  Cindy, I'll try to get out and walk on Sat too.  I think it's cool that you'll have us with you in a way. 

    I have to go in tomorrow for my x ray for radiation, but my left surgical sight is still being a pain.  Once the antibiotics stopped, it got red again.  The good news is it does seem to be shrinking.  I just hope it doesn't slow down anything else.  I so want this all to be done.  My onc is very worried about me because of my "stage 3 thing" so he wants to do extra tests.  Lucky me.  I absolutely do not look forward to that. 

    On the bright side, God is in control and He can take all this so I don't have to worry about any of it.  Yay for that!! 

    Jeannie, the tatoo thing your son and hubby did....that is so cool and so sweet!  I myself will probably stick to the temporary ones so that if I get sick of it, I can just take it off, but I think if you think you want to live with one forever, go for it!  The only one I'll have to keep is the little dots I guess they give you for rads. 

    A couple jokes from my pastor:

    What do you call a dog with no legs? 

    Ans.  You don't.  He can't come to you anyway.

    What do you call a man with no legs in the doorway?

    Ans.  Mat

    What do you call a man with no legs in the ocean?

    ans.  Bob

    If three frogs were sitting on a log and one got the notion to jump off, how many are left?

    Ans.  Three.  He only took a notion, he didn't jump.

    Have a great day!!

  • bibliowarrior
    bibliowarrior Member Posts: 200
    edited April 2008

    Not to get off-topic, but Cindy-- your website is... well, wow!! Do you design websites for a living? Unbelievable.

    Anyway, good luck on Saturday. $2800 is a lot of "cure cancer" moola!

    Wishiwere, I think I spaced out so a very, very happy belated birthday. And a sincere wish for many chemo-free years  to come. I hope those stupid doc visits and "healthy living changes" start to simmer down for ya so you can just relax. You deserve it.

    Amy, yippee on the port being gone and the very kind nurse who attended you. Those kindnesses can really make the whole thing easier, can't they?

    Just checkin in on folks. I read up on other forums for my other BC issues, but then I always come back here to see how my buddies are doin. Laughing

    Gonna post a pic of me from the weekend... I had just gotten back from my (now) daily 2-mile walk... I'm pointing at the last of the snow in our yard. Hope the pic won't be huge. Anyhooo, shade your eyes because the glare off my shiny dome might blind ya, he he he

     

    Can you see the eye lashes?!! Just kiddin. 

    Love ya ladies, Sal 

  • Laurita60091
    Laurita60091 Member Posts: 140
    edited May 2008

    Just stopping in to say hello, ladies!  I hope you are all well and enjoying spring!  I am feeling pretty darned good and my energy is coming back.  It is my b-day on Saturday so I started celebrating last night and will continue tonight and tomorrow.  I am now halfway through rads and so far no skin issues, just some pain in rib/breast but hardly more than a slight distraction.  It is so wonderful to be looking at the end of all this getting closer.  Best of luck to you on Sunday, Cindy!

    Hugs to all,

    Laurita

  • wishiwere
    wishiwere Member Posts: 3,793
    edited May 2008

    Laurita!  So very cool!  I'm glad you are getting your energy back, but watch for that relapse with rads and take great care and don't overdo and prolong your healing girl! Take care of you!

    Sal!  You look fantastic! I love your pic!  And it's not blaring, but most definitely more whiter than mine!  Have you had the thicker hair come in yet at all?  Mine is white, dark and lighter shaders all over!  UGLY!  Not sure what to do.  I had been growing out the color in mine for a few years prior to BC, but having it blended so it wasn't so obvious.  THIS (mine) is VERY obvious and I'm not happy, although I keep thinking....UGH, if I start coloring it will a necessary evil I don't want to have to keep up with, so for now..............I'll look my aunts! :D

    Kate?  How did you test turn out? Any news?

    Hope everyone is gearing up for a wondeful weekend!  It's already getting muggy from the little rain we got!  Did a ton of work in the veggie gardens yesterday!  Feels good to accomplish something important! :D

  • JeannieBell
    JeannieBell Member Posts: 38
    edited May 2008

    Hey everybody!

    Laura -- I hadn't realized that you two had been apart most of your married life... That will be so exciting for you when gets there... I'm proud for you... you deserve all the best!!!

    Amy - I'm sorry you have been having such a terrible time...and hope you are feeling better soon...

    Wishiwere... Ditto on the "Go away Medical Crap"... Hopefully not mcuh more of all of this Cancer Crap and we can begin to live our old routine lives again....

    Cindy - your page is Great!  and you are just so "Precious" .. with your cheery looking self!   Go Girl!!!    Good Luck on Sunday, and I will be walking w/ ya miles away of course but in my heart right beside all of you girls!!!!

    Sal - Hows' the sleep thing going?  Are ya getting any lately?  I sure hope so, and I hope your feeling better soon.

    Kate - Have you started your rads yet?  or do you have to have them? I can't keep up ..(chemo brain).....

    Hello to Kim and Lori and anyone else I've missed...

    Love and Blessings,

    Jeannie

  • bibliowarrior
    bibliowarrior Member Posts: 200
    edited May 2008

    HAPPY  BIRTHDAY  LAURITA!!!!!  Laughing

    Hugs everyone,

    Sal

    (I think this was my shortest post EVER!!) 

  • JeannieBell
    JeannieBell Member Posts: 38
    edited May 2008

    Laurita --

    Happy B'day to you, Happy B'day to you, Happy B'day dear Laurita!

    Happy B'day to you.... (and many more)...Cool!!!!

    Have a great day!   

    Love and Hugs,

    Jeannie

  • suz45
    suz45 Member Posts: 796
    edited May 2008

     Laura, Wishing you the best Birthday ever Wink 50 is the new 40 right!

                                  Photobucket

                        Photobucket

    Much love, hugs and celebration on your special day, Suz

  • suz45
    suz45 Member Posts: 796
    edited May 2008

    Sal, love the pic.. your sporting the same doo as mine only I have ueneven dark patches scattered throughout the whiteLaughing.

    My Computer is 100% caput so I'm in dh's (cold) office. I kinda got used to having my laptop sitting beside me all the times. Not sure if its worth repairing, will find out soon Im sure.

    Cindy, got my walking shoes out and will be walking 5km with you tomorrow on the West Coast

    Whooo Hooo go Cindy   Photobucket  Much love to ya.

    Hope everyone else is well and enjoying spring. Love and Hugs, Suz

  • clsd
    clsd Member Posts: 101
    edited May 2008

    HAPPY HEALTHY BIRTHDAY LAURITA !!!!Laughing 

    Hi girls,

    So psyched about tomorrow, just finished putting finishing touches on my shirt. I will send a picture soon.

    Thanks for all your support, .....in everything.........I could never had made it through these past eight months without you all.

    Did you know Gloria Gaynor is going to sing to us tomorrow..." I Will Survive " Soooo exciting !  xoxoxoxoxo  cindy

  • JeannieBell
    JeannieBell Member Posts: 38
    edited May 2008

    Cindy -- That is awesome about Gloria Gaynor!!! How exciting is that?!!?   Good Luck tomorrow!  We'll be there with ya!!!

    Sorry I can't post any kind of cute animations (don't know how) but the best of luck and hugs anyway!!!

    Jeannie

  • clsd
    clsd Member Posts: 101
    edited May 2008

    Hello everybody !

     What a day at the Race for the Cure. I am trying to remember how to include a photo in my message......Yell...but no luck. Would one of you computer saavy ladies remind me of the easiest way to do?

    Gracias ( cinco de mayo ) xo cld

  • kimbly
    kimbly Member Posts: 398
    edited May 2008

    Just checking in on everyone... happy belated birthday Laurita!!!  How was the Race for the Cure??? not sure how to add photos hope someone else can help you as I sure want to see! 

    I hope to do a shorter race here in my area this year.  There is a teacher at my daughter's school that has battled bc twice that organizes one so waiting to hear about that one.  

    I am doing well. I too have the wierd hair thing going on.  It is growing but so not all the same, some dark, some white.. some straight some kind of curling.  I don't care though... that is what haircuts and hair color are for!!!!  

    I have most of my energy back now, had my surgery just last week and am healing from that well too.  

  • suz45
    suz45 Member Posts: 796
    edited May 2008

    Cindy, I went back to the Jan 4 post by Laura and copied it here. She explained how to insert pics. Hugs Suz

    From Laura's Jan 4 post:

    Here's how to put a photo in your posting: 

    First, you have to save the photo out there somewhere in internetland, such as Photobucket, Flickr, etc, then follow the instruction below.  As far as how I do these multi-photo screenshots, that would be another classWink, as it is something I do all the time for my work (analysis, documentation and training for an IT project) and it uses another application.

  • Laurita60091
    Laurita60091 Member Posts: 140
    edited May 2008

      

    Thanks for the birthday wishes, ladies!  You gals are a big part of what got me this far and your support will keep me going!  WIW, I was super tired after all the celebrating, and it was completely exacerbated by my inability to sleep last night (maybe 3 hrs), so I am very tired now.  I just hope I can sleep all night tonight.  Fortunately I don't have too much planned this week so I'll be resting up.

    It is great to hear everyone is doing so well.  Cindy, can't wait to see the pics!  Gloria Gaynor - very cool...Kimbly, good to hear your surgery is done and you're healing up.  Suz, sorry to hear about your laptop!  I can't imagine.  Mine is always here with me so that when the insomnia hits me (as it has been lately, big time!) I can just surf or work or read or whatever.  Sal, love the pic!  My hair looks a bit darker on top but is quite grey on the sides and I have these two "receding hairline" patches in front on the top left and right hand sides.  Lovely...I hope they'll fill in.  Hair everywhere else is coming in gangbusters.  Will need to shave legs and pluck eyebrows very soon.  Amy, thinking of you and hoping you are busy enjoying life.  Jeannie, yes - I am really looking forward to hubby being here so we can finally spend lots of time together.  I have a long list of projects for him so he'll be busy!  Kate, good luck with everything, sound like you are good and ready to start rads.  I'll have to pop over to the rads board to see if Loriann is hanging out there.

    I keep falling asleep while trying to write this, lol. 

    I am very excited, I have only 8 more rads tx to go.  So far just a very slight tanned appearance to the little boobie and the skin is ok, so I'm keeping my fingers crossed.  I have pain but it is nothing serious.  It is wonderful to know that this will be over in just 11 days!  I think I will draw a happy face on myself for the rads nurses, that will give them a good laugh.  They have been wonderful.

    OK I am going to sign off now - take care ladies - keep enjoying life and living it to the fullest!

    Hugs

    Laura

  • clsd
    clsd Member Posts: 101
    edited May 2008

    DSCI0253 (Medium)DSCI0261 (Small)

    DSCI0222 (Medium)

    Thank you Suz and Laura......I know I did not do it 100% correctly, but I promise to work on it !!! Hopefully this will do for now !

    SO, here is the Race for the Cure Team photo, me and my running shirt with your names, and me and my youngest two children @ beach (Robert and Natalie)

    We are having some absolutely gorgeous weather today, hope you are too.

    Saw onc yesterday;though my blood counts are still quite low, he feels that now rads are behind me my numbers will continue to climb. I am going to the market now and by me a huge steak for the grill !! I'll get those counts up one way or another, and have fun trying !!!!

    xoxoxoxoo  Cindy

  • suz45
    suz45 Member Posts: 796
    edited May 2008

    Cindy, Congradulations!! You look fantastic and wow... whats with all the hair? Thats also a gorgeous pic of you with ds & dd on the beach. It really was an honor to to be taken on your run. Big hugs and a huge thank you! Now you git that steak on bar be and work on getting your counts back up.

    Laura, Happy you survived the birthday celebrations and Cinco de Mayo, back to back. Maybe time for a little R&R, you need to be good to you. Way to go on the rads, only 8 more to go!!

    My first radiation zapping is tommorrow morning @ 7:45am so guess I'll be up with the birds to try to beat rush hour. Hopefully they will tell me how many treatments I will need. I still dont know.... I think thats really odd that they havent told me yet. Oh well, at least they are starting Cool.

    Big hugs out to everyone, am thinking about you. Lots of love, Suz

  • bibliowarrior
    bibliowarrior Member Posts: 200
    edited May 2008

    Cindy-- beautiful pictures. Absolutely beautiful.

    Suz-- good luck on your 1st rad tx tomorrow!

    I go see my onc Thursday to discuss my ongoing pain problem. Wish me luck. I'm not expecting a miracle; just hoping he can prescribe some new meds, give me referrals, etc. etc.

    Anyone else having trouble sleeping lately? I slept so much better when I was on chemo... probably because I was fatigued most of the time. I mean, I know I have the whole "back/butt pain" + "tissue expanders uncomfortable to sleep on" + "Tamoxifen hot flashes" thing going on all at once every night, but it just seems like I was getting WAY more rest when I was goin thru chemo. I'm wondering if this is normal when going off chemo. 

    Sun was out again today. I love the nice, warm days. Laughing

    Big hugs, all

    Sal 

  • bibliowarrior
    bibliowarrior Member Posts: 200
    edited May 2008

    Oh yeah... Amy... a long time ago, I think you (?) mentioned something to take at night to help with hot flashes ??? Or someone else? I think it was an herbal thing. Or does anyone have suggestions? I know my onc mentioned that there is a pill I can take to help with them if I really need to, but I'd like to try "home remedies" first. Thanks.

    Gonna ask him about a prescript for Ambien though. I think that was the sleeping med Amy suggested.

    -Sal 

  • JeannieBell
    JeannieBell Member Posts: 38
    edited May 2008

    Hello Butt Kicking BC Friends !

    Kimby - Glad your doing well after your surgery... Hope you continue to heal and feel better w/ each day!

    Cindy - Congrats on the Race... The pictures are Great! You are so

    beautiful! Look at you with your "LONG" hair... That's Awesome!!  and your kids are so pretty and handsome... you must be very proud!!!  How was the concert w/ Gloria?

    Suz - Good Luck w/ rads tomorrow... I won't start mine until 1st part of June and will have about 7 weeks of rads...  I had my first tx. of Herceptin only this past friday...And what is so weird is that I just remembered that I don't have anywhere to go this Friday....No appts. anywhere, not even bloodwork for 3 weeks... WoooHooo!!!!

    Sal - Did you ever take Ativan?  It helped me relax and makes me a little sleepy when I take it....the dose I take is very small, just .5mg.  I only take it once in a while,  as needed...Hope you find sleep....Smile.

    Love and blessings to all,

     Jeannie

  • wishiwere
    wishiwere Member Posts: 3,793
    edited May 2008

    Cindy~  You look marvelous!  My hair is shorter, much more grey and I certainly don't look as youthful as you, :(  You go girl!  The pics are great!  What a happy bunch, kids and your team!  Thanks for taking us with you!  :) 

    Suz!  Hoping all went well today with the rads appt!  Did you hear how many yet?

    Kimby!  Rest and hopefully you'll have a quick recovery girl!  Remember to do as they say and take care of yourself!  Don't overdo!

    {{Sal}} so sorry you are sleeping well.  No wonder with that pain.  I have a problem with my hips and shoulders, but it's the hips that wake me.  They were happening before arimidex, but seem to have worsen.  I walk like a 90 year old after waking, sitting for any length of time and/or getting up from gardening :(  HATE that constant pain in the hip!  Have you thought of trying a pain clinic if they can't help with a referral?  Perhaps they could tell you what it's from and who to see?  Or an ortho (is that who does the bone stuff?)  I hope you get relief quick lady!  It's hard to heal when there is pain involved.  Are you taking anything for it?

    To the rest!  It's great to hear everyone is doing well.  Hoping those we aren't hearing from, are just busy with their lives or moved on to other threads :)

    Be well my friends!

  • suz45
    suz45 Member Posts: 796
    edited May 2008

    So I'm up with the birds, on time and now I wait for the staff to show up. lol go figure. Cool thing is they have a computer in the waiting room so here I am Cool. tap tap tap...... hello anyone here.

    Luv ya ladies and will touch basis after Ive been zapped, Suz

  • suz45
    suz45 Member Posts: 796
    edited May 2008

    OK, I made it through #1, it was alright and the techs were very kind. Lathered myself up with aloe & lubriderm as soon as they were done, then put on a cotton t shirt. I'm gonna try to go bra-less as I don't want to irritate the skin with anything tight or elastic. 

    I found out I'll be having 16 treatments with 4 boosts so 20 in all. Didn't think I would feel it after just one, but it feels like my L boob just got out of a short session on a suntan bed. Oh well, 1 down 19 to go.

    Just got a call from my genetic counselor with the test results.. they were positive, so I do carry the brca1 mutation. It is quite upsetting and of course comes with a whole new set of decisions that I need to make re: surgery's and such.... one day at a time.

    Big hug, Love Suz

  • wishiwere
    wishiwere Member Posts: 3,793
    edited May 2008

    Well, tis better than 25-30, but still, OWY!  Hope it's just a 'getting' use to it feeling and not a burn already!  16's a weird number since they do it 5 times a week, right?  I've always heard them in 5's, I think?

    {{Suz}} sorry about the BRCA 1 news.  I've not had the test, mostly be/c I'm scared of having go into my records, since we are in a flux state coming up on work and insurance, I'm fearful to have that done yet.  Be thinking of you with your decisions!  {{hugs}}

  • bibliowarrior
    bibliowarrior Member Posts: 200
    edited May 2008

    I logged on here after breaking down at work. I had to throw some rowdy kids out of the library and a couple of them called me some rather crude names. I know they are only kids, and sadly this happens more and more frequently (yes, even at a library), but I think the hormones & lack of sleep are playing havoc with me because I went back to my office and cried. I tried to think of something that would get my mind totally off them and put things into perspective... the forum. When I saw Cindy's pic from the other day, with our names on the t-shirt, and suddenly everything was ok. "I beat BC. The best those little snots can do is throw insults?? Screw them!"

    Ok. Onto serious matters...

    Sorry about your test results, Suz. I've really been giving the test some thought after you mentioned that you were having it done. My general surgeon strongly recommended it, but I'm not ready to cross that bridge yet. If you make any decisions regarding your results, down the road, let me know. You give me courage.

    And congrats on having your first rad tx completed. I hope they are over and done with before you know it.

    Back to work.

    Hugs,Sal

  • kimbly
    kimbly Member Posts: 398
    edited May 2008

    Cindy you absolutely fabulous and have way more hair than I do that's for sure!!! Mine is dark with some white and grey mixed in .. oh yay, but hey it's hair and that's good!  

    I just got the final path report today from my onc and she said yes nodes definatley clear !!!! 

    Suz I was going to get the gene test done but then changed my mind.  I am again considering it now that I have so much of this 'dealing with cancer crap' behind me .  My surgeon said that she wasnt going to try and talk me into it because statistically I am on the side of probably not. HOWEVER I have a 13 yr old daughter and don't know my bio-dad's background at all.   I will wait till that legislature passes though probably.  

    I dont think radiation is in my future.  IF if is for some reason (meeting with surgeon on friday) then so be it and I will deal.  

    I do struggle with staying asleep some nights.  I did while on chemo though too.  I take xanax to relax me if I am having a huge problem.  Sometimes I just read until sleep takes me again.  

    I start tamoxifen tomorrow, hoping for not too many side efffects. I have my 2nd herceptin only drip tomorrow as well.  I am doing well since surgery still.  I started the exercises and do get some shoulder pain at the end of the day at times.  Most likely from doing too much! LOL

    Anyhow hope everyone is well!  and woohoo to all of us.. we are all so strong!!!

    Kim 

  • wishiwere
    wishiwere Member Posts: 3,793
    edited May 2008

    {{{Sal}}} I'm so sorry you had to deal with those little BRATS!  And yes, I called them BRATS!  DD and I were talking about how when I was in school, if a teacher disciplined you, you dang well better hope the news didn't get to your parents, b/c you'd be grounded there too for what ever you did!  I remember one kid getting his nose busted when a teacher hit him!  Yes, extreme and I don't agree with that.  Then again, I did/do agree with this same teacher dealing with kids who chewed gum in class (imagine such a cruel rule), making the kid stand with his nose pressed against said gum at the blackboard for the remainder of the class.  Can you imagine the hissyfit a parent would make today if their child had to endure such torture for not following rules?  IT's sad the state we allow our children to run wild in! 

    Will they be disciplined for the name calling? or any other infractions, as though that isn't enough! :(  Sad, really sad!

  • bibliowarrior
    bibliowarrior Member Posts: 200
    edited May 2008

    Kimbly,  congrats on the "All clear!" on your pathology report!!! That is super news!!!!!!!!!!!!!!!!!! LaughingLaughingLaughing

    And good luck with the Tamoxifen. I'm on week #3, and the only thing I've noticed is an increase in the hot flashes. I've been doing the "take 1/2 in the morning, 1/2 at night" scenrio that several ladies recommended; supposidly helps keep the SEs at a minimum (but who really knows). 

    A couple of you ladies mention Herceptin shots. What are they for? Is it anothe chemo drug, or something else? Just curious.

    Keep strong, ladies!

    -Sal 

  • wishiwere
    wishiwere Member Posts: 3,793
    edited May 2008

    Herceptin is an antibody used to prevent cancer in those with the HER/neu overexpression (positive).

    Kimbly~ Whoohoooo on the clear Nodes!  Great words aren't they?  Clear Nodes!  I remember that news and it's the only thing I remember from right after surgery!  Whew!  Congrats!

  • beasgirl
    beasgirl Member Posts: 241
    edited May 2008

    Hi all--

    I've been enjoying the spring and doing battle with all the CRAP in my house that hasn't been dealt with in like, 9 months. 2 kids and two packrat grown-ups really should have more than 1280 sq. feet. But that's the way it goes in Boston. Anyway, I caught a cold (are we still immune-compromised? How do you know when you're not anymore?)...and have really been struggling with over-doing it. I've also decided to wean myself off the anti-depressant...very sloooowly...Feeling a little overwhlemed, but happy to be back in the swing, mostly.

    Cindy--you rock!! Thanks for walking "with" all of us (I went out and did about a mile that AM--not much, but I thought of you!). And thanks for doing it, just in general. You are gorgeous, really just radiant.

    Sal, all I do for sleep is Ambien CR. I find that the hot flashes aren't what WAKES me, it's just that if I wake up a tiny bit in the night, like most people do, that sets off a hot flash, and then I'll be up and uncomfortable for an hour or two...so I take the time release ambien to keep me asleep. It really does help. But I don't have pain like you. I really, really hope you can find a solution for that. I hope you whine and complain to your docs until they make you feel better. You've been through enough. And those dern kids on top of it!! Librarians aren't supposed to have to be disciplinarians. Especially nice lady Maine librarians with cancer. For gosh sakes. You call me next time, and I'll drive up and kick their little punk butts for ya. Grrr.

    Suz, I'm sorry to hear about your genetic testing. That's scary, and I imagine, overwhelming. Still, you are so strong and level-headed, I know you will be able to use the information to your benefit. For me, knowledge is power, for sure. I wanted to know, even if the news was scary, because then you can be proactive. One step at a time, and you can outsmart even those stinky genes, and get hit by a big ol bus at age 98, like I plan to. Thinking of you, for sure. Hope the rads aren't too owie...you made it through chemo, so you can now officially do anything!

    Kim, Jeannie, WIW, et al--thanks for the well-wishes, and hope you're doing well.

    Back to the piles o' junk. Ugh.

    love--

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