Jan 2008--Ain't it Great?

golfer779 · April 2008

Maz, was sorry to just read of the passing of your dear friend. May many happy memories the two of you shared be set in stone for you to always remember. My thoughts are with you, take care my friend, Carol

SISKimberly · April 2008

Hi all, I’m back from my antibiotic infusion. Today I wasn’t out of there until 5pm. I called a friend, who I’d planned to meet knowing I’d not be out in my usual 30 minutes, and asked her to just pick up the coffee (decaf for me) and meet me at the infusion center instead of at Starbucks across the street as we’d planned. It worked out perfectly.

The nurse was being extra careful with my port site as it is still really swollen and inflamed. Carol, the Elma crème is something I’d have to get from my onc, who I see tomorrow, so I’m so doing that, but do I have to put Saran Wrap and tape over it? I can’t do tape. Anyway, then we had to get quite of few viles of blood to do a blood culture. These nurses are so on top of it, here. Greg asked about my possibly becoming immune to this antibiotic being on it for so long and seeing as the infection is still lingering (building its fortress of scar tissue. The muscles are spasming when I get out of bed like they did right after surgery, so these poor mounds have been swollen and stretched to the max. The ps wants to put in smaller permanent implants to help my skin recover when it comes time. I am all over that. Right now, bumping into me would not be pleasant for the bumpee or the bumped - rock hard and painful).

So, the nurse called in to Dr. Lim this morning to ask if he’d order the blood culture and agree to change the antibiotic based on the blood culture’s results.
He totally agreed with her. After the viles were collected,the nurse transferred them into two larger glass containers, and then we needed the vile for the CBC panel.
The lovely port flush was next, which I can smell and taste, you all know what I mean if you have a port, and I was ready for antibiotic, except the bag was linking so most had leaked out. The nurse had to order another bag.
Finally got those antibiotics pumping, and had a great visit with my friend, who brought me peanut butter cookie to go with my coffee. She so loves me. I am blessed.

D1- Only 13 more to go? That’s gone by fast. Sorry your poor boob is unhappy though. Hopefully, babydoc can give you some relief…I mean write a script for some relief.

Oh, the hair thing…I agree about just skipping appt. Those see through puppies might want to be trimmed down to match the incoming hairs, so they blend in more. Remember an earlier post about the waitress who told me she had see through hairs that fell out and that those hairs don’t hold pigment. They aren’t staying for the long haul, so don’t worry.

I agree that LJ13 onc will become a more compassionate onc after being finished with treatment because he/she will really understand what it’s like to be a cancer patient.

Vassar is a great writing school. I’ll be sending out positive vibes when it’s time to Vassar’s admission’s dept.
How’s her ankle?

Thanks for the pep talk coach. I’m ready! My chemotini glass and cape are waiting to serve me one last time.

Kathy, I agree with D1, it is only temporary, and you’re so beautiful bald. Go in with balditude, girl and sport that ID badge with pride until you’re ready to retake the pic. Who really looks at the ID pic anyway, they should be looking at you in the eyes, right?

Oh, Julie, you so deserve uneventful. I’ll be thinking of you from the infusion chair tomorrow. I’m glad the dh will be with you. Hearing from you so soon gives me hope that I too will only disappear for a few days.

Paula- I know, you’re right behind me. Isn’t it exciting and anxiety provoking all at the same time? Maybe since you’ve got the energy to keep working, maybe not, eh? D1’s pep talk got me all psyched. “Who are we? January Jewels!
And who are we hear to beat? Cancer! How do we do that?
By putting on our Super Girl capes and putting one foot in front of the other. That’s right, now go kick some cancer booty!”

Maz- Oh Maz, I’m so sorry to hear about Val. Your positive spin is a good insight, though. I agree that everything happens for a reason. (((HUGS))) I’ll be thinking of you on Friday as you say goodbye to your dear friend.

Thanks Tina, my own cheerleading section to go with the coach’s pep talk. Thanks!!!!

OK, if I don’t check in tomorrow morning, I will when I get back from my chemo/antibiotic infusion.

SIS Kimberly

joteach · April 2008

Good morning,

Maz - I just read about your friend. I am so sorry. My prayers are with you.

Kimberly - Yes, I've been mostly lurking but have posted a few times. Its true that I am done with chemo!!!! April 2 was the last one. On Thursday I have my CT simulation for rads and will start shortly after that. My onc said I had to wait a month to start.

Vettegal - Good news on vettesis!

D1 - How did the Vassar excursion go for dd?

P. S. Good morning America is on now and Robin Roberts looks great. She gave up her wig yesterday.

wvgirl · April 2008

Good Morning,

I still am trying to catch up I think I am behind now 10 pages lol.

Last Wednesday when I was at the Onc. they found another lump in same breast! He said we will keep an eye on it. When I ask him about the thyroid he said we will check it out after my surgery that wont be until July. WTF I guess he is the expert and feels it is nothing to worry about.

My WBC count was too low Friday to have treatment. I am to go this Friday and will have to have the nuelasta shot for the last 3.

Let me ask you my sisters about this. The 1 time the DH went with me to my chemo appt. He said make it last as possible so I do not have to take a whole day off. Well last Sunday night his friend called and ask him if he wanted to go to Florida for 4 days. (Free plane ride down) Friend will be driving his boss's car back to WV. He said Sure I will only have to use 4 Vacation days.

When I spoke at the Breast Conference it went very well. I was ask if they can call in me again I said sure. When I told the DH he said Why would the ask you again.

My dd said she was going to get a job at a local restaurant. He said you could not do it. You can't even carry a glass of milk without spilling it.

I am so tired of his negative comments and lack of emotional support.

What is your thought on this so called man I married. :-(

golfer779 · April 2008

Morning Jewels,

Yeah for the sleep-in advantage when having a doc appt.

Kathy, looks like were both under the examination of the "dermie" today. Hope that they can help you out with your chemical induced acne. I've got a small red spot on my nose thats been there since last summer (I think). Hate to say it but the ol nose has had its battle with the sun over my life. Lots of days in a boat, thinking many times I have wipe my face after waterskiing with a towel and probably removed alot of SPF over the years. I'll know in about 2 hours what going on there.

Ditto on what others have said in regards to your pic, gal you look marvelous from the pics you shared with us. And yes those would be the ones without hair!!

LJ, I will pass on your synopsis of your Taxol txts with Kalen this afternoon. We're meeting for coffee (decaf here!), after work today. She starts her "T" txt this week. Come to think of it she probably is lurking the site here, looking forward to sharing war stories with her.

Tina, looks like Kris is getting some good info. Our post is so great about sharing with each other. Could you imagine trying to get this info in a book ... (not)!

Gotta like the "airstream" thought, or how about one of those "toy haulers", that way the Harleys could go too!!! Glad your getting some spring weather to enjoy. I keep looking at the annuals set outside so many stores right now, boy wouldn't they look great after a good freeze in my flower beds !!! I'll be waiting until Mother's Day, for my plantings.

D1, so how the dd's ankle, hoping that its on the mend and not requiring too much time away from the hardwood. Reading about your dd and college, looks like she is giving herself some options. We just got word last night from dd number two, that she was accepted to Gonzaga U. She is just finishing up her freshman year at the University of Wash., looks like a large college loan to me, Gonzaga is about twice as much as the UW. Time for a summer job, ya think?

Julie, hoping for a se free day of any head/tummy problems. Glad the dh can be with you.

Paula, 4 games in one week, we must be having some makeup games huh? Knowing you, I'm sure you'll not miss a beat. And yeah the the pic is kinda tiny, may have to look through some others!

Joan, just flipped to GMA, Robin Roberts looks fabo. I bet she looks beautiful without the tv makeup as well. We'll be right behind you on the rads front, looking forward to your accounts!

Jennifer, okay, that is not a dog but a small pony, hope your back at the post soon!

Maz, just to let you know that you have been in my thoughts, I'm sure the last 24 hours has been a tough one. Thank goodness that you are on a "so called" chemo break right now. I'm hoping that you have somebody to lean on "in person" to share your feeling during this time. We're all here for you to share as well.

wvgirl, glad that you popped in. Sorry to hear about the doc finding another lump. I am assuming that you are doing neoadjuvant therapy and that your surgery you mentioned is after your chemo is completed. Will be keeping my fingers and toes crossed that it will stay in check and that surgery will eliminate any cancer that may be trying to hang on.

I'm rather speechless on the DH's idea of what is appropriate behavior. I can only say that I am sorry to hear that you have to be bombarded with negativity from the one person you would expect to be there for you. I would try to surround myself with those who are compasionate to you during this trying time. If you have friends/your brother or other family members, support group, take their positive energy and wrapped it around you at every opportunity you can. Let them know you need their support, they may not really know what your dealing with at home. I'm sure that it may sound easier said then done, but try to open yourself up to others that love you and let them help. Probably the reality of dealing with your relationship with the dh is a little much at this point in your journey, but definitely will have to be addressed at some point. Hang in there Carla, we are here for you to share.

Kimberly, Your blood draws gave me the hibbie-jibbies, not liking the sound of having to put the sample in "large" glass containers.

We're thinking soft mounds!!!

A ginormous WHHHHOOOO HOOOOOOOO is being sent your way today. Time to clink that chemotini glass one last time. Looks like your picking up your own tab today... You Go Girl!!!

Time to shower and get ready for the scrutiny of my dermie, I tried really hard to wear more sunscreen than ever in the desert, hopefully I don't get too big of a lecture!!!

By the way, DWTS is getting harder to pick who's best, I'm liking them all at this point.

Back at ya later, Carol

Anonymous · April 2008

Kimberly, you don't have to do Saran/tape. Just use the Glad Press and Seal. I've been doing it for the whole course of my chemo. It doesn't have adhesive like tape. Like you, the adhesive from bandaids, tape, etc. gives me big red welts. You put a dime-sized blob over the raised part of the port, lay the press & seal over it, and press down around the cream (but not right where it is). I use a fairly big piece so it doesn't creep out (like 3" square).

And actually, my onco is fine (knock on wood). He is a sweet and compassionate man, and I would be almost as devastated if he got it as getting the news myself. (The onco. who was diagnosed belongs to a coworker ....)

Maz, I'm so sorry about your friend Val. We honor her and her fight. There's something you MUST do now, for her ... BEAT YOUR CANCER FOREVER!

deb102307 · April 2008

Maz,

I am so sorry to hear about Val. My prayers will be with you and Val's family. It is so hard to understand sometimes but we go on and try to do what we can to honor their memory in the little things we do.

Deb

LilWarrior · April 2008

Maz - my prayers are with you and her family. She is finally resting and in Heaven! Thank you Jesus - no more suffering..

LADIES help me please, I have cracked corner lips and I know its from Chemo does anyone have any remedies for it. I have tried neosporin, carmex, and vaseline and nothing is working. It is driving me crazy. Please someone help me.

In One hour I will have my MRI of my Liver and I praying and having faith in God that when I go in for Chemo on Friday he will tell me I am NED Smile Tongue out Innocent ....

So please continue to pray for positive results for me. Even if I am NED I will chose to do Chemo a little bit longer want to make sure that little bug is gone!

Love ya,

Dana

LilWarrior · April 2008

Wvgirl, my opinion is that man are not made like us with compassion, and sensitivity. I think sometimes men say the wrong things and have no idea they just did. I wouldnt hold onto what he says because he is a MAN. I try not to allow my ex or any other man affect me because I realize they are one brain cell short then us (even with Chemo). Men are just so different then us, and it is our responsibility to have them respect and understand us. A man will only do to YOU what you allow him to do; so you stand up for yourself and demand respect. I think that is why God made us because he realized men need help - he ha... Also on the other hand I think we as women can be very sensitive and it doesnt help with hormones changes that we are going through with these treatments. I take a deep breath and count to 10 before I curse them out - he ha. Just kidding! No more cursing but I do give them a handful of words and my opinion. Just take one day, moment and a time and speak your mind and opinion to him because a closed Mouth doesnt get feed honey! Last but not leat just remember Men are not as smart as us. He ha..

I hope that helped but I know the Jewels can make you much better being that I am younger and not as wise as them!

Dana

KathyL · April 2008

Wish I had the baldititude to go topless for the ID pic today (as Kimberly suggested), but alas, I did not! I'll see the results in 2 weeks at new employee orientation day. All of my pre-employment "stuff" went well otherwise. I am really looking forward to this job-I think it will be just what I need right now.

D1: What part of my little state did you pass through last weekend? I'm guessing you were on 95...

Maz: So sorry to hear of Val's passing. You are in my thoughts and prayers. Yes, everything (meeting us Jewels) does seem to happen for a reason. (((BIG Hugs)))

Thinking of Dana today and her scan.

Big WOOHOO out to Kimberly on her last round today.

WVGirl: I am so sorry to read about your woes with DH still. I do not think he is being the support you need right now. I am glad you did well speaking at the conference, and I think you need to surround yourself with positive experiences and people. (Carol summed this up pretty well in her later post I just read.)

Carol: Hope your derm appt. went well. Mine was fine-no new spots for him to note. He gave me an RX for a new acne med. to try. Hope it works as I'm too old (well, in the grand scheme of acne, that is!) to have to deal with zits like this! Congrats to dd2 on her college acceptance. You and D1 must be such proud mamas of you soon-to-be college girls!

As for DWTS last night... I like her, but I think Marlie's time is up. She seems to be having a hard time with the dances that really require hearing the music.

TTFN Jewels!

RN2teach · April 2008

Maz: I am so sorry. I'll be thinking of you and Val's family as you grieve for her. Cling to those precious memories of your friendship to help you cope with the days to come. I'll say a special prayer for you from the chemo lounge on Friday.

Carol- loved your story! I can't see the picture you posted, tho... I can well understand why you're being honored by so many--you're a special gal!

Kimberly- you're finished with chemo--yahooooo! Now, if your girls will just calm down and get with the program... Good for your nurse on getting those blood cultures ordered.

I use the Emla on my port, but I've never done the saran wrap thing-- had never heard of that until it was mentioned to you. Naturally I'm curious and you can bet I'm going to try it out for the last infusion on Friday.

LJ- I think you mentioned the leg weakness from Taxol? I have noticed that as well. And it just seems to be the legs... I've had some nights where my legs just throb with pain as well.

WVGirl- your DH's thoughtlessness "takes the cake" as my granny would say. You definitely don't need those negative vibes around you, so ENJOY the DH's (that would be DICKHEAD'S) absence for a few days!

I'm glad your speech at the BC conference went well.

KathyL and Carol- watched DWTS (thank God for DVRs). I'd say Kristi and Jason are my favorites, but I really enjoy watching the others. Marlee might go this time, too, although she IS amazing to watch. Shannon is getting some rough critiques from the judges, too.

Wendi: kick some cancer bootie tomorrow!

Sheebas: Judy, hope you have time to check in and let us know how Xeloda is working for you. Been thinking of you!

My kids honor banquet is tonight, so we are headed out for the evening. Hope everyone has a good one.

Paula

Determined1 · April 2008

Happy Tuesday, Ladies. Thinking of SIS Kimberly flying solo in the lounge today (hope she has her cape!)

I hadn't heard about the fire, Tinalee. How awful. I'm glad no humans were hurt, but I'll bet there were plenty of living things that didn't fare as well.

How cool, Carol!!! Almost makes we want to join a Curves-almost (I'm such a gym rat and I love my community rec center...).

Hope the schnoz is okay. Maybe as I read more of the posts I'll see the outcome.

Way to go on Gonzaga!!! Sorry about the tuition increase, but if she's inspired there, that's what counts. Sounds like a summer job, loans, etc., etc. Maybe there's some grant money available through your county or an organization to which she has belonged? Maybe a Google search will help you find them?

Ankle is purple and green, but she's walking on it. She's wearing one of those supported ankle braces on it (the ones that lace up and have "ribs" imbedded into them for support). She came home from school today all whiny because she couldn't exercise (this kid will go to the gym if she doesn't have practice-even worse, if she comes home from practice and didn't sweat enough, she hops on the treadmill. Weirdo.). I tell her to take a break and she'll be on the hardwood again in no time. Easy for me to say.

SIS Kimberly-Sounds like you had quite the visit for your abx tx. I'll bet you were happy to have the port for all that activity. I've done emla cream before and I just put Saran Wrap over it-no taping. Course, you're probably already at the bar, so my 2 cents is too little too late.

Dd is really a talented writer (she must've been separated from you at birth). Her SAT scores on the writing section were 780 out of 800!!! (We won't talk about her math score.) She wants to study something that will allow her to hone her writing skills (I'd say that's pretty much anything, but I think she's looking at English/Humanities). She's already sweating the admissions process at Vassar because they are only accepting 17% of applicants this year and they said the number will likely go down in the future because so many talented students are applying. I just think dd has much to offer, so she shouldn't worry so much (besides, she's padding her activities with basketball, yearbook editor, NHS, Spanish Honors Society, volunteering at the Food Bank and a part-time job. All that has GOT to count for something!). Anyway, applications are several months away, so time to relax for a while.

WVGirl-Ugh on the new lump. Hopefully, they can take care of it during your surgery. When are you having your surgery?

I must say, Carol pretty much summed up my thoughts on the DH. I'm sorry you're having to cope with his negative attitude while you're on the bc journey. Like you don't have enough to handle. Carol's idea of finding positive support somewhere else is a good one. I hope it works out for you okay.

Dana-you absolutely MUST keep something on your lips at all times. I had a devil of a time with dry, chapping lips. I used Burt's Bees at night and one of those Clinique glosses that applies with a spongy wand (I got it for free at my LGFB seminar and it has really been great-I'll be buying one when it runs out). Not sure how to clear up the mess you have-I just kept applying stuff to my lips and it cleared eventually. Then I kept them moisturized and I didn't have any more trouble. Hope that helps. Thinking of you getting your MRI...

KathyL-Yep, we were on 95. I was honking and waving-embarrassed my family, I think. Hope the acne meds clear things up-I agree with you that we are too old to deal with zits.

Enjoy that honor banquet, Paula. Better pack some tissues, just in case you get those proud mama tears!

Hmmm. Dd is hungry, so I should rustle up some grub. (Actually, we're eating all the food out of our basement freezer as it appears to be dying-it's 20 years old, so it's time. So only reheating for me! Oh, if anyone has an upright deep freezer that they love and want to recommend, I'm all ears. We'll be buying a new one in a few weeks, I'm sure.)

Lata.

D1

sheshe48 · April 2008

Hi Jewels,

I have been trying to catch up. My sinus and allergys have been so bad, it affected my eyes. I'm feeling much much better now. My headaches are gone. I still reading everyone's post. It's amazing how many there are, I think it's great. I hope everyone at the chemo bar this week will be se free and everything goes alright. Good luck to the ones doing rads. I start next week. I have been kind of busy, I'm going to start looking for work in May, so I'm trying to brush up on my office skills and things like that.

See Ya, SheShe

LilWarrior · April 2008

Ms. Paula - I love how you identified DH stands for dickhead. he ha. Now if I said that everyone on this board would be yelling at me - he ha.. Thanks for the laughs... I just love your sense of humor!

God bless,

Dana

Determined1 · April 2008

OMG. Quick post--haven't even read the ones that came in after mine--sorry ladies.

But I'm watching my tivo'd DWTS from last nite and I have to say, I'll do Jason any day. That guy can move those hips and the ass is to die for!!!!!! (AND we have matching hairdos! How great is that? We were meant to be together.)

I'll try to be more discreet in future posts...

Okay, gotta get the tivo off pause and see what the judges thought of that cha-cha-cha.

D1

texrn · April 2008

Hi everyone,

Say, did anyone watch the HBO miniseries 'John Adams'. The final episode aired last Sunday, the 20th. I had read the book, by David McCullough - & I thought the miniseries was very well done. Anyway, his daughter died of breast cancer. back in the early 1800's - they did a mastectomy on her right breast - they gave her something to drink (probably a shot of whiskey), gave her something to bite on, tied her legs to the bed posts, & chopped her breast off while 4 men held her down - all while her parents were waiting downstairs ( of course they did it at her house )...poor, brave girl! I cannot fathom how scared & horrified she must have felt. I know we have a long way to go in the fight against bc, but we have sure come a long way, as well. It made me feel so thankful that I live in a day & age where, at least, we have options.

The scene really touched me, both in the book & on the screen.

Anyway, if any of you are history buffs you might want to check out the book +/or the movie ( I'd be happy to send the book to anyone who is interested).

Have a good night!

Therese

kris60 · April 2008

well, first taxol down yay me !!!

thank you for the info, it gave me some ideas for questions to ask.

They gave me the benadryl, then decadron, anti nausea that i can't remember the name, and zantac, all those before the taxol to help with the effects of taxol itself. It seemed to work other than the lil yawns it wasn't that bad. what a difference (for now).

They had my blood pressure hooked up to check in 15 min increments. all is well, the highest it got was 117/70 when I started it was 104/65 those are my normal bp anyway. I asked about the iron thing and was told that iron really wouldn't help raise my rbc, so we'll see. My chemo nurse said to use tree tea oil on my finger/toe nails to help. The 6 ac's already started affecting my finger nails, very tender, bruised like feeling.

11 more to go, lets hope they are tolerable for me ....... beddy by time

tootles

Kris

golfer779 · April 2008

Hello Jewels, just a quick pop in tonight, will post tomorrow.

First off, Jennifer wanted me to let you all know that she is okay, just pooped herself out with the Race for the Cure walk this past weekend. Hopefully will be seeing her supportive shout outs soon.

Wendy and Judy, bottoms up tomorrow at the lounge, time to check one more txt off. Here's to an uneventful txt, and lets show those se's who's boss. Best to you both!

I met up with Kalen this evening, we ended up shooting the sh*t for about 3 hours. Never a lull in the conversation. She is doing great in my opinion, she did reiterate that she is on her good days, she'll be starting her Taxol portion of txt on Thursday. She had great color to her skin, and was happy about her finger nails that we're better than ever. I would have to say that I have not ever visited with a bald woman before and it took only a minute to see right passed the missing hair and see the person she is in her eyes. She is more than comfortable with the baltitude appearance, and I must say has a great head for the look. I'll be looking forward to getting together again real soon, probably time for dh's of our to meet!!!

Had the "dermie" appt this morning, I really love this doc. A petite lady, with a dynamo personality. We chatted about my past 6 months, and moved on to my skin check. I mentioned right off the bat about a spot on the side of my nose. She took the bright light and ultra magnifier to it, was so happy to hear that it is just a blood vessel that has sprung about. Unfortunately there is not much to do unless I opt for a cosmetic laser surgery to remove it. I'll deal with that some other time. She went on to examine the rest of me, and looked at some pics she had taken a couple years back. The not so good news is that I have a mole (or what I refer to as a freckle) on my back that she would like to remove. Its not raised, but looks A-typical (I believe that was the diagnosis). It has gotten a bit bigger over that last couple of years. Since I still have two months of chemo, we scheduled a day surgery (yuck) for 18 Jun. This will be about 8 days after my last day of cytoxan. We're going to keep our fingers crossed that my WBC will be up to having the surgery. I would like to get in done before the start of rads. Anyway, not the news I wanted but atleast I will be proactive in getting anything suspicious removed.

Kimberly, was hoping that you would be able to post tonight, hoping that your day went well. Thought of you often as I dated paperwork today with 4/22, knowing it was a big day for you.

I pooping out as I type, time for the big bed and a little DWTS on the bedroom tv, bummer not watching it in HD upstairs. Chances that my eyes will still be open for the results are slim to none. Thinking that Marlie will be history as well. Oh, D1, gotta like that bum of Jason's. God he was hot!!!!

Back tomorrow, working half a day, home for bit and then off to chat hormone "stuff" at the Seattle Cancer Care tomorrow afternoon.

Night all, Carol

Determined1 · April 2008

Good morning, Jewels!

Wednesday is my day off from the gym, so I have time to chill before my appointment in the tanning bed (my rashy area itches like a bitch! I'm trying really hard to keep my hands off.) I should be watching the tivo'd DWTS results show (can't watch those reality shows in real time-too many commercial breaks), because I want to make sure I'll live to see Jason shake that booty another week, but here I am, instead...

Therese-the dh and I are watching John Adams, but we've tivo'd it (where would I be without tivo??), so we've only seen 3-4 episodes. We're really enjoying it. Although I don't think the guy from "Sideways" (Giamatti?) makes a good John Adams. Laura Linney is awesome, though. I didn't know daughter Adams had bc. I guess I'll have to have tissues nearby when we get to that episode.

How are the eyebrows? Mine are dropping like leaves in the fall. You can see new ones are starting to grow in when you look in a magnifier mirror, but right now I have some serious blank patches. I haven't tried to draw new ones in because I pretty much suck at that. I'm also still experiencing a good deal of pain in several of my joints/muscles. The worst is my left achilles' tendon-I can barely negotiate stairs. At least the right one has gotten better in the last couple of days, so I'm hopeful. I also have pain along that big muscle on the tops of your thighs. That Taxotere really hangs on, doesn't it?

Oh man, Sheshe, what a crappy time to have allergy issues. Unfortunately, now that it's Spring, you won't get much relief from that for a while. I hope you have some OTC meds that can help. Rads aren't that bad. I think the trick is to get some exercise to help with the low energy. I managed to stay energized through the first 3 weeks and now notice that I flag sometime mid-afternoon, but I'm learning to save "sit-down" work for that time. It goes by much faster than chemo did.

Kris-Congrats on surviving your first Taxol. I hope you tolerate it as well as LJ13 seems to be. Let us know how you're doing.

Good news on the nose, Carol! Funny that you'd mention surgery for your "freckle." My dh is having 4 "freckles" burned off today (he had just one done a couple of months ago and tolerated it well enough to just get the rest done at once). I think his dermie used a similar terminology when describing his, but his are quite big (well, he's a big guy-6'5"!). You're smart to have it removed, although it sucks that you have to have it done surgically-I think all of us here are a little tired of surgery...

I'm anxious to hear how the LAST ONE went for SIS Kimberly yesterday. And all the best to Wendy and Sheebas who are bellying up today. FUBC!!!

D1

PAlady · April 2008

Good Morning Jewels!

Paula - Do you watch Desperate Housewives? After Sunday's show, I had a dream I had hair like Lynette's awful do that was growing in. I laugh every time I think of it. I really hope that is not how it looks when it is growing in! I definitely dream a lot with relation to things I see or hear. How is your dh doing?

Carol - Like the new pic. You look very happy! Great story about the bulletin board. I hope you can get the picture to post - I would love to see it. Ds just had to have a mole removed from his neck. He had a bunch taken off in august and did fine. Only one has been found to be pre-cancerous. Glad you got an appointment to get it taken care of. How involved will the removal be? If you are interested in the 60 Minutes clip you can watch it here: http://www.cbsnews.com/stories/2008/04/10/60minutes/main4006951.shtml They have had it work in rabbits and mice/rats. They are hoping to go to human trials in 18 -24 months. Let us know what you find out about the tamox /ovary issue. My brain hurts from thinking about it!

Vettegal - Good new for vettesis. Is she going to your doc? Hopefully she doesn't have to wait too long on getting the surgery, etc. We all know that the dumb waiting is the hardest part.

Hey Tina! - Congrats on your last tx if I didn't say so before. Isn't nice to start getting some nicer weather. We finally are here, too. I like your new pic.

Julie - Hope this last tx is treating you well. You're done now too?!

Maz - So sorry about Val. That seemed awfully fast. Thankfully she can be at peace now and not have to live with pain. Thoughts and prayers are with you.

Kimberly - Glad you made it through that last infusion. Hope the se's are kinder to you this round. I don't know if I can do the Relay this year. I cried when I walked for my brother - I am sure I would be a fountain this year. They gave me the emla cream with saran wrap to do w/my surgery. Never even felt the wire or dye - which I had been told was the worst part of the surgery. I sent my cards on Monday, finally.

Kathy - Sorry about your friend's mom. Sounds like you have some exciting changes coming up soon. I keep wanting to ask you - what does the x mean when people are abbreviating different words? (tx, bx, dx, rx, etc.) I see it all over the boards and think I have figured out what they are abbreviating, but can't figure out why it's always an x cause the last part of the words are not all the same? Hope your nip surgery goes well today - is it involved? I agree about Marlee. I haven't watched last nights show, yet - but assuming it was her. Do you think Derek and Shannon really have something going on?

Texrn - Does your hair seem to be coming in all over at the same rate? Mine is coming in much thicker on the sides and back than the top. The top is coming in more I think, but still shiny. My ds said the other day I will probably have it grow in as a mullet! LOL.

Dana - Hope your MRI comes back clear. I like your line about a closed mouth...

D1 - I just winced reading about dd's ankle. My toenail finally lifted from the injury a few weeks ago. Bummer - I thought I was going to get to keep it. It has lifted about 2/3 of the way down. I am just trying to keep it short and crossing my fingers that there is a nail bed underneath. Just in time for sandal weather. Ugh. I have tried a few times to draw in some eyebrows - I swear it looks like a little kid just took a crayon to my face! Bravo on dd's writing score. Ds scored on the lower end of average on the writing. He is good in math. He is taking it again in June to try to bring up his writing and English a bit. You sound like me with the tvo. I have hours and hours of shows I need to catch up on!

LJ - Thanks for keeping us all informed. You always seem to have some good links to share.

Joteach - Thanks for the heads up on RR. I went and looked the video from Monday it was great. I love the song they played - "I am Not My Hair" - could be an anthem. I can't wait till my hair is thick enough to get out of my scarves.

Wvgirl - Good to "see" you again. Sorry DH hasn't come around. Hang in there best you can. We are here for you. Will they biopsy your lump?

I am still getting flushing every day for about ½ to 1 hour. This started with my last infusion. It is very annoying although people say it gives me a healthy glow! Both areas on my cheeks where this happens are like alligator skin. I have tried using udder cream, pure almond oil, oil of olay regenerist and a few other creams. If anyone has any suggestions I am open to trying anything.

I only have 10 more rounds of radiation - Halleluiah!

Good luck today Wendy. Judy - Let us know how you are doing.

SISKimberly · April 2008

Good Morning Jewels,
Man was yesty a long day. Went to breakfast with my twinsis. Unfortunately, what my brain thought I wanted didn’t taste good at all, thankfully the fruit and toast were enough. Then it was off to the oncologist. He was very understanding of my decision not to do radiation and HT, but really wants me to get second opinions to ease his mind that I really did get all the information I needed beyond my own research. I agreed to do that to ease his mind, although I am very at peace with my choices as is my family. His wife had breast cancer, so he wants me to see her radiological oncologist and then find another Breast Cancer Center of my choosing to visit, and he’ll send my records. After that it was off the my last chemotini lounge visit. It took a long time. I got there at 11am and didn’t leave until a little after 3pm. After my antibiotics and chemotini were down the hatch, I walked back to my oncologists office and into their chemo lounge to pass off my Super Girl cape to one of the young nurses who is pregnant- due in two months with a boy- who was diagnosed with breast cancer. She’s been through two treatments all ready and has all ready lost her hair. She’s got a really cute wig though. Anyway, she was so excited to be passed the cape. My twinsis needed to be back in Folsom by 4pm for a meeting, so I just went home with her and called Greg to pick me up at her house after work. By the way, my darling dh sent me flowers to the infusion center to congratulate me on my last chemotini. He is the best! My twinsis made dinner for Greg and I, so we didn’t get home until after 8pm. Wish I could have checked in with you all, but I went straight to bed.

Joan- I thought you were done. So rads is next. How many treatments will you be doing? Has this time off been good?
Are you feeling stronger? My older sister told me about Robin Roberts giving up her wig and how she told the viewers that she had identified her TV anchor role with her looks and hair, and that she wasn’t her look and hair, and wanted to show the world her truth. I’m so proud of her.
She’s been doing Oprah and Echkart Tolle’s, A New Earth class, and I think this revelation is a manifestation of her awakening. Good for her.

WVGirl- Oh sweetie, I think you all ready know deep in your heart that you are dealing with an emotionally absent and abusive man in your life. All you need to do is decide if you and your dd are worth the effort to leave this toxic marriage. Don’t let excuses like lack of money or whatever stop you when you’re ready. The DH will have to pay child support and possibly spousal support. Make sure you file for separation so that it is spelled out that all expenses occurred by your DH are his to pay and what you accrue are yours starting from the date of separation. Wouldn’t want the DH to wipe you guys out financially because he’s pissed. Get your name off joint accounts as soon as you file for separation. You’ll have to send a copy of the separation agreement to those accounts, but you can open your own checking and credit card account if you don’t already have your own even before you leave, so you can establish your own source of cash and credit in advance.

It sounds like he can’t handle the women in his life being independent and strong. Don’t let him bring you down to his level. I am so proud of you for speaking at the Breast Conference and of your daughter for wanting to get a job and be a responsible young lady.

Let us know if we can be of any assistance to you.

On the new lump front, you’re doing chemo first to shrink everything, so your surgery in July will take care of whatever is left, and I’m assuming rads is going to be a mandatory thing for you. You’re right to trust that your doc knows what he’s doing. There really is no choice by to watch that new lump and see what it does, right?

Carol- Thanks for the WhooHoo and glad your dermie appt. went well as far as the nose and OK for that mole. Better to be safe and get it removed and checked out than just leave it.

Congrats on the dd#2’s college admission!!!!

OK, so apparently I missed some big kudo’s you received and so well deserved. Can you fill me in? How did I miss that?

I’m so glad the meeting with Kalen went well and that she’s doing so well. Time for the dh’s to meet sounds like a grand new couple’s friendship may be blossoming. You are so great at reaching out to others, Carol. I love that about you!

LJ13- Thanks for the info. I forgot to ask my onco about the cream. Too much else we had to discuss. The Lidacain shot isn’t too bad and does the trick.

I’m glad your onco wasn’t the one diagnosed and the he’s such a good onco for you. I do believe your coworker’s onco will be a much more aware and compassionate onco than before his dx and tx, and hope your coworker has been able to get in to see another onco who is wonderful like yours.

Deb- Glad to see you popped in. How are you doing?

Dana- I have no ideas for your mouth. You’ve tried everything I have tried. I’d talk to the onco to see what he recommends.

I agree with your assessment regarding Carla’s DH not knowing how to show compassion and all, but he really does sound emotionally abusive. I suspect that it is something that has been tolerated for awhile and that it is just now becoming very magnified as Carla finds her own strength through her support groups and being asked to talk to the Breast Conference ect… Like you have discovered, she needs to separate herself from that kind of negativity.

Take care sweetie. I’m sending you lots of positive energy for a negative Liver scan.

Kathy- Yeah that your dermie appt. went well. Yeah, what’s with going through adolescent acne again. Hormone craziness? Hope the new meds take care of things.

Excellent on getting through the pre employment paperwork. So remind me what the new job entails…chemo brain isn’t recalling this. What did you decide on limited hours on your schedule with the old job?

I agree that Marli’s time is up. Sad to say as I’m so inspired by her willingness to put her all into this when she can’t hear a thing. Of course, I agree with Paula that
Shannon has been getting some rough critiques, too. I missed last night’s result show and didn’t DVR it. So, let me know who was kicked off, OK.

Paula- I got your envelope yesty. Thanks for the card and notepad. I’ll have the dh use that to track who is getting which gal as their Secret Pal.

Hope the awards banquet was fun last night.

D1- Glad to hear the dd’s ankle is mending. Wow, on the over achiever workouts! I wish I had her energy. As far as Vassar applications, with her grades and extra-curricular stuff, glowing recommendations from teachers, and her admissions essay, she’ll just blow them away! I’m with her on the math scores compared to my reading and writing scores. We are definitely right brained gals!

Oh yeah on Jason. He is one yummy man!

SheShe- So glad you are feeling better and was able to post.

Therese- No I didn’t see the series, but what a powerful scene. I can’t even imagine what his daughter endured back then. OMG. Yes, we can truly be grateful for the medical advances of our time.

Kris- Thanks for the update. Glad your first was uneventful and hoping light se’s all the way.

Kick some cancer butt at the lounge today Wendy and Judy

Ok, all caught up and I’ve got to his the shower and get to my ps appt. for the mounds recheck. The redness is gone and the pain has subsided, so I’m thinking I’m finally on the mend. Hoping the continued antibiotics over the next seven days will prevent another infection from hitting me while I’m down for the count in the fog.

Love to all my sisters,
SIS Kimberly

PAlady · April 2008

Kimberly - We must have been posting at the same time. I am happy it sounds like you are finally getting the infection under control. Re: second opinion - I think that is a great idea. I thought if you had a masectomy you don't need to do rads?

So sad about the nurse. I am sure she appreciated the cape!

LilWarrior · April 2008

Jewels - for cracked mouth use A & D ointment it really works.

I took my school test and let me tell you I studied my ass off and the passing grade you have to get is an 80 or you failed and I got an 80. I cant tell you how bad my memory is getting. We went to lunch today and I forgot I drove everyone there and when I left the restaurant I started walking back to school and everyone just laughed and laughed. That is so crazy! I just cant hold anything into my brain anymore. So today I am going to start reading the next chapter for our next test. I am telling you I am getting so worried about this level and its in Gods plan if I graduate. Please continue to pray for me because Lord knows I need it.

Love ya,

Dana

vettegal · April 2008

Hello Jewels Laughing

Just popping in for a few updates....

Vettesis is having surgery on May 5th. She is having both breast removed. She has IDC in the left breast and ILC in the right breast. She is ok with that. Finally, she has a time frame. Thank you to everyone who has been thinking and praying for her.

Carol-Got your envelope with the shirt. I will forward it off to vettesis and the card was beautiful!!! HUGS xxoo

I know some of you had swollen ankles after the or during the chemo. Mine just showed up 2 days ago and I was wondering what you all did and how long it lasted? Mr dr just said to keep my feet up and that is it..DUH! I know i need to keep my feet up...LOL Tongue out

Also, to make you all laugh. Has anyone else had "gas"? I had the worst gas this pass week, even when i was walking the are coming out and even when we out to dinner last night..I am in this booth and you try soo hard to squeeze the butt cheeks together (i know it worked for the sharts)and i swear it make it LOUDER!! Thank goodness the place wasn't real busy...What we go thru for BC!

I start rads on monday...more fatigue that is what they tell me.

Hope you all have a blessed and wonderful evening..

hugs to all....xxoooo

Patty

Anonymous · April 2008

Patty, I just watch my weight to make sure I'm not retaining too much fluid, and sleep with my feet on a pillow. That allows the fluid to "drain" out of my legs overnight, then during the day they swell up again. It's been pretty much daily since I started Taxol/herceptin (and I do weekly Tx # 10 tomorrow).

I look forward to having skinny ankles again some day soon.

Keep an eye on the swelling. If it won't go away, or your weight shoots up more than 3-4 lbs in one day, you have to let the dr. know right away. They'll usually put you on a diuretic at that point.

RN2teach · April 2008

LJ and Deb- good luck with your chemo tomorrow.

D1- WTG dd on that SAT score-fabulous! Your girls sound wonderful-the products of good parenting, no doubt. Congrats!

Sheshe- hope those allergies don't get you down too much. How many rads do you have to have?

DTWS Fans- oh, baby! My tongue was hangin' out just watching Jason dance on Monday night! What a MAN! Tongue out

Therese- I read John Adams a few years ago and loved it. I've read several other bios by McCullough since then. "Truman" is my all-time favorite of his books. I have caught a few of the episodes on HBO, but missed the BC one.

Kris- glad your first Taxol is history!

Carol- You're such a JEWEL (definitely a rare gem)! As Kimberly mentioned, you are so great at befriending people. I admire your style!

PALady- LOL at the hair dreams. Remember Vicky Lawrence in Mama's Family? In my last hair dream, that was what I saw when I looked in the mirror. NOT looking forward to curls like THAT!

My eyelashes are all but gone-a few stragglers left, that's all. The eyebrows are okay for now, but given the Jewels' experiences I'm not expecting them to stay. I really chuckled at your attempts to draw brows. Thinking I won't be very good at that either.

Thanks for asking about my dh. He is doing well. Since we added the 3^rd seizure med, his seizures are much more mild than they used to be and not occurring as often. Last brain MRI was a month ago and he was clear.

All the "x's" are just medical shorthand-we're big on abbrev.

Abx=antibiotics, Bx=biopsy, Cx=cervix, Dx=diagnosis, Ex=excision or exercise, Fx=fracture, Hx=history, Px=prognosis, Rx=prescription, Sx=symptoms, Tx=treatment/ therapy, transfer or traction

Kimberly- I love that you passed your chemo cape to the nurse at your center. How awful for her to have to deal with BC during what should be such a joyful time in her life.

WTG Greg on the flowers! I'm glad you have such a wonderful dh to make this journey easier.

Dana- congrats on passing your test! "See you" in the chemo lounge on Friday!

Vettegal- I hear you on the gas-too bad we can't use our surplus to fuel our vehicles...

Glad to see that Denise's treatment plan is in motion.

Dh is gone with his brother to visit a friend this evening, dd is having dinner with the boyfriend and his parents, and ds is at baseball practice. I have a lot of papers to grade and need to get ready for my sub on Friday. Better get with it!

TTYL, Paula

texrn · April 2008

D1 & Paula -

The bc episode on 'John Adams' is the very last one called "Peacefield". The scene is much more powerful on screen then in the book, as you can imagine. Actually, I really like Giamatti in this role ,especially portraying Adams in his later years, but I've always been a big fan of his since 'The Cinderella Man'. My dh & I really think they all did a wonderful job.

D1 - As far as my eyebrows are concerned, well my left one is all but gone. I have to almost draw them on from memory. I'm so sorry to hear you're still having the muscle pain, but I've read that some of these se's, like the muscle pain & swelling, can hang on for 3-4 months.

I'd better go for now - got a lot to do before 'bedtime'....

Therese

KathyL · April 2008

Hi Jewels!

I feel like I've missed a lot in the past day. Today I had the nipple construction "surgery". It was so easy. Didn't even feel the local anesthestic injections at all (guess there are good points about not feeling anything at the mast. scar site). I was awake during the whole thing, which only took about 15 minutes (at the most). No IV or nothin' either. I am a big chicken (when I'm the patient), so I couldn't look until the end. But very little bleeding (per the ps). Anyway... holy cr*p is it (the new nippie) BIG! Thank God she told me it would look "oversized" for now as the skin does shrink overtime. Looks like my kids could be nursing again it's sticking out so much. Hahaha! And it kinda looks like a spider with all the sutures. So not a pretty sight at all, ladies. I guess I have to remember (as before), that it's a work in progress. I'll see her in about a week for suture removal and in a month for the final part-- tattooing. I hope it looks better over time b/c it looks pretty gross right now and not at all like my previous nipple. But it was a very easy procedure for any of you that have this ahead. And I honestly have no pain tonight (that's nice for a change).

Otherwise, my life is fairly dull these days. The ankle swelling seems to be a little better (maybe it's all in my head) with exercising. So far I have managed to drop 4 lbs. Still a lot of work ahead.

Eyelashes and brows continue to drop. It's looking pretty homely. Can't do anything about the lashes, and I've tried to pencil in the brows-- OMG, a make-up artists I am NOT! I've decided pulling my wig down lower when I go to work might be best!

The new job entails working with familes of soon-to-be discharged NICU babies. I was a NICU nurse for 6 years before I was an NP, so this is right up my alley. I'll be doing monitor teaching (many of the babies go home on special monitors), and CPR training with the parents. I'll also be setting up tests on babies with breathing problems (apnea), reading the results, and doing some consults on babies/children admitted to the hospital for "apparent life threatening events"-- where they've stopped breathing for an unknown reason. The new department head (one of my bosses) also hopes to get me and the other NP involved in teaching teen moms with NICU babies,and maybe a few other things now that he knows what we can do as NPs. I start May 5.

I haven't decided what to do about the offer at my old job. I'm going to meet with the doc there and discuss what his ideas are and see if it's something I want to do. There are actually many "pros" to it (working the "off" hours) for me... so we'll see. Don't want to jump into too much right now.

OK, totally knew that was coming on DWTS last night. I think she did a great job considering though and admire her determination. And ditto the Jason comments. PALady: I totally think Derek and Shannon are gettin' it on!

Can't wait to see what happens tonight on AI-- that Jason needs to go. I'm thinking it's either him or Brooke tonight.

Well, I'm pooped for no apparent reason tonight. I might not even make it to see AI results. Hope everyone is feeling well. Loved the recent posts, but decided to just comment in general tonight.

Dana: Welcome to chemo-brain!

wvgirl · April 2008

Thank You all for your advice and support. You are so right Carol this will need addressed.

Tonight was a great night. Meet daughters after work for dinner. Came home and cleaned the house. I will have treatment Friday.

The evening was nice and peaceful without him around. I could get use to this.

Doc called I will need to have neulasta shot after my last 3 treatments to keep my wbc count up

Take care my dear sisters.

tinalee123 · April 2008

Hi Jewels,

Hope you’re all well today.

Wendy and Sheebas – Was thinking of you today, hope your tx went okay.

Therese – I just picked up the book, ‘John Adams’ this weekend. Glad to hear it’s a good read. I love history. Have you watched the BBC Series, ‘Robin Hood’?

You will get a chuckle out of my eyelash story. It happened in February. I was putting on makeup and using an eyelash curler. My finger got stuck in the handle, rather than opening the curler first, I tried pulling my finger out, yanking the whole dang thing off my eyelashes…closed! And, along with the curler, came most of the lashes, except the ones at each corner of my eye. It hurt like crazy, needless to say, the lashes haven’t grown back in. Not one of my finer moments. I haven’t completely lost the lashes on the other eye, or my brows…although they are quite thin. My wig has bangs which camouflage.

Paula – It’s great that your dh is doing so well! Wishes for continued good news.

Kris – Hope you’ll find few se’s with Taxol. Glad the tx was uneventful. Hope they’re all like that!

Patty – So glad vettesis has what sounds like the start of a plan! It must be a great relief for her and your whole family.

Wvgirl – Glad to hear from you. It’s wonderful that your speech at the conference went so well! You asked for our thoughts on DH. I don’t want to make you feel worse then you probably already do. I will say this, you don’t deserve this kind of treatment, and you don’t have to put up with it. Please think about your own well being and that of your dd’s.

Kimberly – Oh, you had a long day, friend. What a wonderful surprise from dh! You’re so thoughtful to pass on your cape, always giving!

PAlady – Thanks for the good wishes. I am feeling pretty good after the final tx on Thursday. Other than the flushing, have you been feeling okay?

Sheshe – Glad to hear your headaches are outta here, and you’re feeling better. No more, okay?

KathyL – Best wishes to you on your new job. Sounds perfect for you! Thanks for the reassuring notes about nip construction. It’ll be a little while for me, but, I’m glad to hear it was uneventful.

Carol – Great suggestion about a toy hauler…we’ve seen those, that would be perfect. There’s so much to see in this country. It’d be tough to decide where to go first.

Deb and LJ – Good thoughts and wishes heading your way for tomorrow!! FUBC!!

Rest well everyone.

Tina

Jan 2008--Ain't it Great?

Comments

Categories