Jan 2008--Ain't it Great?

sheshe48

Hi Jewels,

I went to the tanning booth today it was not so bad. Love the name, good one you jewels think of everything. I'm not even pink yet, I laid there topless and they put that plastic bra thing on me that they made and snap me to the table. The macine took x-ray pictures and gave me 3 sets of rads zaps. When I looked up at the ceiling it was siren. It looked like you were looking at the sky and it had pretty flowering trees. I told the nurse how pretty and "she said one patient said" " Where are the birds"?  I thought that was cute. They are diffently nicer on rads side. I guess all in all, it was not so bad. I guess after doing this 5 days a week I will get used to it. Little sis and I went shopping afterwards and she bought me 2 cute hats and she bought one too. And she bought me a pair of cacki capree pants. we aren't twins, but before I lost my hair we did look like twins. now with our matching hats we will be twins again. lol

Patty  I hope your experience today was a good one.

kathyL  Sorry about your very bad day. I know just how you feel, when my eye lashes and eye brows started falling out. I was in the shower and saw this black thing on the shower wall, and I thought it was a spider at first. I went and got my daughter and my glasses and we discovered, to our surprise it was just my eye lashes lol. It looked like those fake ones you put on they are all together. It was like a row of half of my eye lashes. I felt so stupid, it shook my daughter up more than it did me. I also thought your eye lash story was funny also. You expect it, but you don't. I would stay off the TM until your ear infection clears up. Get well soon, we be thinking about you during your infusion. GP appt.

Julie  I'm so glad you are coming out of the fog and no headaches. I was also feeling in kind of a limbo too. I thought it was just me, I guess those are normal feelings. I did start rads today, so I guess I will be doing the limbo thing again after rads. lol  Have a good day. Sounds like you had a great time at Wally World, call me dumb I did not know there was a real Wally World. I thought that was just for the vacation movies with Chevy Chase.  Before you know it, you will be so busy with reconstruction appt, I think we are all moving right along with our journeys.

Maz  I'm glad Val bought you and some of your friends some closure. She will always be with you, like Carol said she will be your Guardian Angel now. So glad the jewels are here to help you thru your time of grief. Heres a big {{{{{{{{{{HUG}}}}}}}}}}}

SIS Kimberly  You are so poatic and wise. I'm glad you are getting well and having your last infusion of antibiotic, I will be thinking about you at your plastic surgeon appt.

Paula  Hope your day was stress free and SE free.

Carol  When you do your 60 mi. walk, I will be leading the cheer team. Yeah were all a little crazy, but that's what will get us all through bc together. If anyone can walk 60 mi. it's you and your team.

Dana  Hope you are having a good day

Anonymous

Please take a look at this!

AnnNYC

DO NOT CLICK ON THE LINK IN THE POST ABOVE FROM RACHEL5236.

THIS IS SPAM!  He (yes, Rachel is a he) is a known spammer who's only objective is to make money off cancer patients by having them visit his website.  DON'T GO THERE, EVEN OUT OF CURIOSITY, since it will just encourage this scumbag to continue to spam the BC.org website. 

KathyL

D1:  Hee hee hee!  You'll be glad to know we do not have and firearms in our abode.  I'm feeling perkier anyway after reading today's posts.  Tomorrow's a new day

Sheshe:  Had to chuckle about your 'brow looking like a spider.  That's what I thought about my new "nip" (it looked kinda like a spider with all the sutures)!  Spider's are everywhere with the Jewels!  Happy to report I did 1.5 miles today on the TM and did not fall off.  I really slowed it down at the end to almost a standstill, so maybe that helped.

OK, and what's with spammers on our thread???

RN2teach

Hey girls,

Maz- you've been in my thoughts. I'm glad Val's service went well. I'll be praying for you this week as you go through your last chemo.

Kathy- Vent away, sister! I loved the "one-boobed, one-eyebrowed, mostly-bald, half-loony" rant, BTW. If you have to have a crummy day, make it a rainy Monday. Hope the sun is shining for you tomorrow and no car problems!

Kimberly- "patient in the shadow listening to the symphony of songbirds while awaiting the gift they know will come" Such beautiful imagery-you are a fabulous writer!  

D1- I got your pm and am happy to send Wendi's book on to you. I have already read Deanna Favre's book-thanks for the offer, though.

Sounds like dd was rocking the court this weekend-glad the ankle wasn't cramping her style!

Carol and Julie, you've got my number... so, you knew I'd go to work today, eh? LOL! I feel very fortunate that my se's have been mild enough to allow me to work-and I'm doubly blessed that I love my job!

I had a little surprise this afternoon. It seems that my colleagues and students entered me in an outstanding nurse contest sponsored by Charleston Newspapers to celebrate National Nurses Week... there were around 90 nominees and somehow I won. I was interviewed and had my picture taken after work today. (Oh, joy! I'm SO photogenic right now!). They are going to print my nomination letter (which I haven't seen) along with my picture and interview in Sunday's paper. I took the opportunity during the interview to promote BSE and mammograms-hope they print that part!

Kris- Best wishes with Taxol #2 tomorrow!

TTYL

Paula

golfer779

Hi Ladies,

Running short on time, off to pick up the ds at skate practice, read through todays posts, and I must say WOW to Sis Kimberly.  I can't imagine what your mind was like before being induced with chemo drugs.  Your words are truly inspirational, and make me sit back and just think for a moment or two.  You are the woman!!!

Paula, speaking of "the woman" awesome on being picked as Outstanding Nurse.  If there is a website to the Charleston paper it would be cool if you could share.  I'd love to read your nomination letter as well.  And yep, I knew you would go to work today!!!

D1, proud parent moment this weekend, congrats to the dd.  You've not had to good of luck with your weekend ball being up to snuff lately. 

Sheshe, thanks for the rad update ... sounds like you had a fun time with your sis.

Kathy, I'm glad you posted again this evening, although I will have to admit that I laughed with your candid description of yourself, tomorrow is definitely a new day!!!  Good job on the tm, baby steps gal!!!

I saw Steph (my friend, co-worker) today, seems he will be at the chemotini bar on Weds, I told him to save me a seat!  They are going to try another chemo regimen on him, prognosis is not good, but he is willing to try anything to buy some more time.  I told him that I shared his story on line and that some were praying for him as well.  He said to let my "friends" know that it means alot to him.

Took a walk tonight to the Post Office, ran into a gentleman who's son I have coached waaaay back when, and our sons have played many sports together over the years.  He noticed my "Check Your Boobies" hat I was sporting.  He then went on to tell me of his wife, (whom I also know pretty well), and that she had a lump. a few weeks ago, they did not get clean margins so she is slated for a mast in a couple of week.  I couldn't believe it ... I mentioned bc.org for support, education, I e-mailed him the particulars, and I'm hoping that she may call to chat in the near future.  This bc family is getting way too large!!!

Okay, sorry I don't have time to shout out to all, but I must go for now,

Take care my friends,

Carol

sheshe48

Hi all,

Carol I keep forgetting to mention, I hope Steph gets well and we are all rooting for him. Sorry to also hear about your friend getting bc. It seems like everyone knows someone with some kind of cancer. I hope she does call you, or she joins us chatting.

Paula  Congrats on winning Outstanding Nurse, you are the Shero today.

I'm too lazy to check who is going to the chemo bar tomorrow, good luck and were behind you jewels.

I guess we have to worry about the spammers now, is anything sacred? he he haw

Kathy  That's great you walked on TM, just don't over do it. Good thing you went slow. Sending you good vibes, you will have a great day tomorrow.

Sheshe

LilWarrior

Ladies I am losing my eyelashes and eyebrows as well but as long as I can hold on to some I am blessed.

I will ask again just in case you over read my msg - does anyone have burning sensation in the breast.  I thought it was the chemo working but I guess I was wrong.  Just curious as to what it can be, it comes once in a while.

Thinking of you all and God bless,

Dana 

JulieK_11_30_07

Evening girls! Okay - just had to do a quick post. I know many of you are DWTS fans and I watched it tonight for the first time this season. Is there any way Jason Taylor could any more of a perfect specimen? Holy cow, he's HOT!!!

Kathy - glad your day got better! Your post this morning made me LOL!

Paula - congrats on winning Outstanding Nurse! What an honor for you! I'd love to see the article too - share the link if you can!

SheShe - glad RADS went well today and that you had fun with your sister!

Off to watch some DVR'd stuff -- HUGS to all!!!

Julie

tinalee123

Hi jewels,

Hope your weekends’ were pleasant.  I am truly thinking that dh and I jinxed the nice spring weather and pissed off ol’ Mother (or, motha, as she’s referred to around here) Nature by hauling out those motorcycles!  We had another blast this weekend, but my area scraped by with only a quickly melting 1½ inches of snow.  Other areas north of here got 12 – 18 inches.  We are believing we’ve double-whammy’d things by hauling out our little fun car, we had a weather window on Sunday, so made a mad dash to the chicken coop (converted to seasonal storage) and retrieved the last of our summer-time belongings.  We’re still in the 30’s and 40’s for temps.  Looking in my garden, I think the tulips are even retreating! 

Paula –  YAY!! For the last Taxol!! What great pics!  And, I’m so glad you only got a warning!!  And, WOW for the nomination.  That’s fantastic.  What an honor.

Julie – I had reconstruction done at the time of bilat mast, so I’m a little further along.  But, like you, I am “done” (stick a fork in me???).  Like Carol, my onc said they don’t do additional scans or mri’s unless I have issues.  She said they got it all, and I won’t be needing rads, either.  I’ve got expander exchange surgery scheduled for May 20th.  Will be seeing onc the following week for more discussions on what’s next.  Same as Kathy, everything is very fresh in my mind, if you have questions.  I just love all the cute little animations you add to your posts, you’re so creative.

Joan – Thanks for the update on Robin Roberts.  That’s a very cool story. 

Sherry – Good for you on the gym visit!  Sounds like you’re going to be one very busy mother of the bride.  What an exciting time.  I’m glad your rads tx went okay today.  Hope that continues to go well.

D1 – Like you wrote to Julie, being cut loose is a little scary.  I was just saying to dh tonight, no chemo Thursday…no neulasta shot Friday…we just looked at each other…wuhhhh…what do we do?  My cancer center has a series of discussions each month, specifically addressing post-treatment issues and situations.  I can't decide whether to go.  I kind of like the idea of having an entire week (or, weeks) without some kind of medical appointment to go to.

KathyL – Sorry for your sucky day.  I love when one of our jewels writes about things that resonate with so many.  For you, it allows you to unload and vent.  For those who’ve experienced the same or similar events, it allows us to realize we’re not the only ones, and, can often provide some comic relief.  We’re right there with ya, sis.  Please, don’t ever feel like you should stay quiet.  Your reflections are valuable, as are everyone’s.

Kimberly – I’m so happy you’re feeling better.  Your writing is touching, thoughtful and encouraging.  Thank you for reminding me to look for the positive, and have hope.  I love your house cleaning motto!

Carol – Oh, talking about your friend/co-worker, Steph, got me.  Sending good wishes to him for his stint at the bar, and hope that this tx will be the one that does it for him.

Maz – Thinking of you this week.  I know these days without Val weigh heavy on your heart and mind.  But, as many of the other girls have said, she’s always going to be with you now.  It’s amazing that because of Val, people separated by time came together.  I hope you find some peace in these facts. 

Kris – Hope tomorrow’s date with taxol goes well.  Will be sending you good wishes!

Sleep well all –
Tina

texrn

Hey all - I haven't posted in several days & it feels like several months.

I am still trying, 2 months out, to live in the moment & not freak out over every little ache & pain. From all my research on the subject, it seems to be the national standard  not to do scans as part of the routine follow-up for early stage bc. The theory is  that the lag time between something showing up on a scan & symptoms appearing is about 4 months - & either way, there is no difference in type of treatment, efficiency of treatment, or survival rate. Plus scans are expensive & can have a high rate of false-positive results. As far as tumor markers go, false positive results are common as well - I was told that they were only a reliable tool with recurrence & mets ( haven't researched that yet ). Since my onc seems to follow the nat'l standard, I've decided not to live from test result, to doctor visit, to test result, etc.... I'm trying to stay active & focused in my day to day life, & make every day count for something.

It looks like I have a lot to catch up on, plus I have a lot to share about my 5k Race last Saturday - but, alas, I have some studying I need to catch up on first...I'll check back in later for some shout-outs & updates!

  

Therese

p.s. Hope all is well with everyone.

golfer779

I'm back, atleast for a moment, trying to watch DWTS and read backwards up the post ... bear with!

Therese, my onc said exactly what you stated in regards to the tumor marker tests showing false positives.  I have this feeling that we'll mellow out a bit over the months and years to come.

Looking forward to your 5K story!

Dana, I cannot remember what your story is ...did you have a mast or lump?  I believe that sometimes those feeling to the chest area are the nerves trying to rejuvenate themselves.  Heck I had myself freaked about a bump to my mast side, had the gyn check it out and found out it was just my rib bone.  Guess I havn't seen those since I was a skinny kid!  If you are concerned, I would bounce the question off your doc.  Hang in there!

Tina, time to enjoy a "normal" week, I need to quit bitching about the weather here when I read your posts!!!

Kris, looks like your going solo to the lounge tomorrow, hoping for an uneventful day for you.

D1, just saw a blurp on the boob tube of a tornado in VA, hopefully not in your neck of the woods.

Okay, waiting for Jason to dance, gotta go!!!

Carol 

wvgirl

Good morning

 I had treatment Friday and then the Nasty shot Saturday.

Took yesterday off from work.

Thank you all for the support  I promise to catch up on the post

SISKimberly

Good Morning Jewels,
Each day I feel a little more energy than the previous day.
It feels soooo good to know that I will never have to feel the se’s of the chemo fog ever again.  Sorry, for those of you in it right now. I can’t help myself from shouting out to the roof tops- I AM DONE!!!!!

I go to the plastic surgeon today, and shoot, I do have one more antibiotic infusion today. Thought I was done yesty, but the nurse told me I still had one more. I have two areas on the right mound that are of concern. The skin is redder than what is around it and peeling like a sunburn. I’m hoping it is because it was stretched beyond its desire and will settle down now that the skin is relaxing.

I got a call from the radiologists office last Friday to make an appointment. I avoided doing it yesterday and told my dh I didn’t want to even think about making another appt. right now.  I just want to bask in being done for a while, but he encouraged me to just get it done. He’s totally behind me on just saying NO.  Sigh, guess I’ll put that on my list of things to get done today.

Julie- I’m so glad you’re feeling well and that the migrain headaches have cleared up. April showers bring May flowers as the old saying goes, maybe your spring is going to bring the most amazing carpet of flowers around you and your community this year.

I call WalMart Wally World, too. Sometimes just getting lost in the aisles of a store is just what is needed. Of course, I totally understand the sudden feeling of, “OK, gotta sit down now” that can come over you these days. Glad you had a good day.

That feeling of being a drift now that you’re done…D1 is right. Therese did express that exact feeling. I suspect we all will feel that feeling and as D1 pointed out, that is what we are going to be helping each other through next.

Isn’t it great that we have pioneers to lead the way. Those done with chemo and heading into rads will have those already in rads to get info from. Those heading into HT will have others who have already started ahead of them.
Those facing being done will have those who have already faced the feeling of ‘now what?’.  We are so lucky to have found each other here, Jewels.  

P.S. I love the little graphics you find, and OH YEAH, I second the Jason being HOT comment. Bet you won’t be missing anymore DWTS episodes.

Kathy- Although I appreciate that my words touched you, it pains me to think they have also caused you to “feel like I should not even bother to rant or open my "mouth" because you ALWAYS have the positive outlook”. That was not my intention at all.  My response to the question was just my answer to the question we have all asked either out loud or within.  We all deserve to ‘rant’ and ‘open our mouths’ in order to live our truths.  It was not my intention to invalidate your feelings or those of anyone else. 

BTW, loved the quote from Hitch and loved that movie. I may have to re-rent that one. Thanks for reminding me of the quote.

WhooHoo on 1.5 miles on the TM and the new day outlook.

This guy has been around awhile. He poses as women. He was  Sophia a while back. I got on many threads as others did to do just what AnnNYC did for us. Women on this site watch out for him and then warn others on the threads he’s visited, which he bombards with his crap, and lets the moderators know he’s back in order to get the posts removed.

LWDana- I’m sorry, I’ve forgotten if you’ve had a lumpectomy or mastectomy. That burning sensation is most likely nerves and stuff trying to heal, but I would certainly ask your plastic surgeon. As far as exercise, I was told only walking, too. However, some of our gals seem to have been able to go to the gym throughout. Oncologist’s treatment preference, maybe?

Just read Carol’s post, man we think alike.

D1- Thanks for getting your envelopes in the mail. I plan to send out Secret Pal names as soon as I get yours.

What is with the weather in the east?  It is crazy that you guys are being tossed back and forth between winter and spring. This week, we had in the 80’s yesterday, it is supposed to be in the 70’s today, and then tomorrow in the 60’s. Crazy.  Oh, I’m not complaining as I know some of the gals would love to be in the 60’s, but it’s just such manic-depressive (aks Bipolar) weather we’re all having.

I am so glad to hear the dd’s ankle is getting better and better. 

So, can you believe that rads is almost done for you?
How’s Frankenboob doing?

I am so glad to know you, too. Again, if it weren’t for you starting this thread, this wonderful group of ladies would not have been. Of course, as I’ve said before, the universe knew we had to be, and so we are.
Thank you!!!!!!

Sherry- I’m so glad to hear your first rads went well and that you had a great time with your sis.

Have you completely recovered from your allergies and all?

Sounds like wedding plans and preparations are in full swing. How exciting. Have you gotten your dress yet?

LOL on the eyelash story.

Paula- OMG, that is sooo exciting and so well deserved!!!!! Please send us the link to your local paper so we can read it on Sunday. Congratulations!!!!
Oh, just read Carol’s post. Great minds think a like, eh?

Thank you for the compliment regarding my imagery.

P.S.  You are SO photogenic right now. Those pics from the chemo lounge are great. Paula, you are beautiful inside and out!!!!

Carol- Well, I’m so grateful for your words regarding my post. I guess I’ve never been able to look at the other side…read what I write and say, Wow, that was really inspirational or whatever. Writing has always been my way of expressing my thoughts and feelings as speaking to others has not always been my forte. My twinsis is awesome at that, and it is something I continue to work on…being able to just talk to others by starting the conversation or continuing one they’ve initiated. I’m more of a listener.

I’m glad to hear your friend is going to try another type of chemo, but feel so badly that he has to experience the se’s yet again.

Well, you certainly have become the ambassador of bc in your area. I admire that about you, Carol. That is so awesome that you gave your friend the information about this site and have offered your number for support. BRAVO!!!!

Tina- Well, like I said to D1, “What’s up with the bipolar weather?”  It is possible that pulling out the summer play toys too early has angered Ms. Nature. Now she’s teaching you the be patient lesson, eh?

As I said above, I too am just so ready for no appts for awhile.

Therese- I can’t wait to hear how your 5K went. I’m so impressed with your doing that so soon after finishing tx, or maybe it’s been longer than I think since your last tx.

I love what you said about not living from test to Dr. appt. ect.  I too have found the same research about not doing scans as a routine for follow up and about false positives etc. I didn’t know about the 4 month window from symptoms to being able to be found on a scan, however. Thanks for sharing your research with us.

Wvgirl- Take care of your self. Get back to us when you can.

Joan-I saw Robin Roberts the other day. She looks fab.
I know that while in the fog, you answered a question I asked, but for the life of me I can’t recall. I’ll have to go back and find it. So, in advance, thank you.

To those still drinking chemotini’s I’m thinking of you. To those getting tans at the salon, remember your sunglasses.
Jenn, CathyCA, CarolC, CHJ haven't heard from you all in awhile. Hope all is well, and you're just on some wonderful 'cation somewhere. Oh, AZDeb, sorry I missed the birthday shout outs. Happy belated.

All caught up. Have a great day ladies.
SIS Kimberly
 

LilWarrior

Thank you Carol and Kim for your replies.

I am so stupid I realized the Dr just gave me tamoxifen which is only a Hormone Blocker and I assuming maybe next week or after I try this for a little while I will get back on Chemo.  I will leave it all to God and the Dr.  I had lump not a maste. 

Well off to get my Dog she had a tumor removed today and had surgery so I cant wait to see her again.  I sure miss her kisses.

God bless,

Dana 

texrn

Happy Tuesday everyone!

Paula - 'Outstanding Nurse' - what an honor! Please do share the link with us so we all can read about it.

KathyL - Good for you w/ the TM - as I've always said - you need to start somewhere. For the longest time I was at the 'cool down' level, but have since moved up to the 'warm up' level - Woohoo! I think, in the end, it is the length of time that matters. I may not be in the shape I was pre-bc, but walking the 5k last Saturday was a piece of cake!( Well...almost )

Carol - I am praying for your friend Steph - hoping this next chemo does the trick.

Kimberly - Welcome the the " down w/ chemo"...I mean " done w/ chemo" club!! I don't blame you for wanting to bask in the no-appointment zone, even if it's just for a day.

My hair is still filling in like crazy - looking darker & darker everyday, plus I'm still evenning it out every 7-10days. My eyelashes & eyebrows are still looking more bare every time I look in the mirror - although I haven't actually witnessed them falling out or seen any 'spiders' in the shower - LOL!!

The 5k last Saturday was awesome! I had never participated in anything like that before ( mainly d/t my work schedule ). The team I was on had been participating for 9 years & each year it has been growing. There was probably about 30-40 of us, w/ me being the only survivor this year. We met at the team captain's house in the early AM before the race - there they had a continental type breakfast for us, then they had 2 school buse take us to the race site in Fort Worth. It was a gorgeous, clear day, with a high of about 68-70. Although the walk felt farther than a 5k, it wasn't so bad - except for the occasional hill ( who knew they had hills in FW! ). They had cheerleaders at the 1st mile mark, but I swear the 2nd mile mark was at least 4-5 miles away! Never did see the 3rd mile marker, because I was too focused on the finish line off in the distance. All in all, it took me 1hr17min to complete - I know....IMPRESSIVE!! AFter the race the buses took us back to the captain's house, where she had a brunch in her backyard. It was quite a spread & several of the husbands were back there cooking the eggs to order, & the french toast, pancakes, you-name-it! As people would come to sign-in, in the morning, they would fill out small pink "in memory of" cards, then they would attach them to these pink & white balloons - well after we ate brunch, they released all these bunches of balloons ( I know, not exactly environmental or airplane friendly ) into the clouds while someone at the gathering was singing....it was very moving - I think b/c there was at least 30-40 balloons floating up into the heavens. They gave me a gift - it was a gardening bucket w/ a tiny potted flower to plant, along w/ seeds, & pink gardening tools, apron, & gloves...all to signify new beginnings & new life. I was very touched. By the time I got home I was so physically & emotionally exhausted - but all in a good way!

Plus I had a rum-punch w/ brunch ( hadn't had any alcohol since pre-bc ). I took the best 1 hour nap!

There was an elderly man paricipating in the walk who was walking w/ a walker...I got choked up watching him patiently struggle with each step.

Of course, pinned to my back was a pink sign saying I was walking in celebration of " The January Jewels!"

You see, you all are always in my thoughts, & have become a very important part of my life...my survival!

Thank you,

Therese 

KathyL

Good evening Jewels!  Thank goodness, today was a better day.  The sun actually came out this afternoon for a little while even though it wasn't very warm.  dh got the Jetta running again (it was the cooling system).  Had my herceptin infusion this morning.  Uneventful-which is nice for a change.  I'd begged my onc to recheck my CBC today-I think it might have been a waste of blood.  My levels are only very slightly improved, but at least I know now that they are heading in the right direction.  I was really surprised that 6 weeks post-chemo, they still are only low-normal, and some are not even normal yet.  This afternoon, I saw my GP-had a physical and she rechecked my ear.  That, too, is slowly improving.  At least I know that I should be able to hear again some time (add half-deaf to my previous rant!).

So, I hope all the Jewels are doing well.  D1... thought of you all day and hope the tornadoes did not affect you.  I'll be reading posts now and hope you have written something to let us know.

Paula:  Congrats on winning the nursing contest.  What an honor!  Please let us know if there is a link so we can read the story.

Carol:  You should be nominated for BC ambassador (LOL-I just read down the post and Kimberly said the same thing!).  I love how you reach out to everyone.  How's training going BTW?  I hope to maybe do a 5K someday, but don't think my little piggies could do 60miles.  I'll be there with you in spirit!  

P.S.  I wore my "boobies" hat today to my center-they loved it!

Sheshe:  I'm slowly working my way up on the TM each week.  I used to only do a half mile on a half hour, now I'm up to 1.5 miles in a half hour.  Guess every little bit counts.  I used to do spinning, and hope this will get me ready again for that in the next month or two.

Dana:  I agree with Carol about the "burning Boob".  I think I had some of that feeling when I was healing from my mastectomy.

Julie:  LOL!  Totally agree that Jason is a hottie (on DWTS).  His dances last night were really good.  He looks nice in those pants-MEOW!!  BTW Christian is easy on the eyes in his pants, too.  I hope he didn't hurt himself too badly.

Tina:  Can't believe you got snow AGAIN!  Mother Nature is being quite the "Mutha" to your area.

Therese:  My onc said pretty much what you posted. 

Can't wait to hear about your 5K.  Did you run or walk (just read farther down that you walked)?  I ask b/c I am not much of a runner, but would like to walk one someday.  I'm much better at swimming or biking.

Just read you post about your walk-thanks for sharing.  It sounds amazingly cool.  Reading about the guy with the walker made me teary, and I wasn't even there!

SIS Kimberly:  Oh, how I hate the computer sometimes!  Please don't take my last response as an affront.  I just meant that I really have to work at thinking of the positive sometimes instead of just blurting out my (sometimes negative) feelings.  You are AMAZING how you seem to do it effortlessly, and I always look forward to your comments and positive spin.  And your words are just beautiful.  Trust me, I own my feelings, and comments-and I highly doubt that my "mouth" will ever be quiet (much to my dh's dismay!).  I only hope that I did not offend YOU with my ranting.  I truly strive to be more like you in your positive ways.  Are we OK, sister?

Dan:  Hope your doggie's surgery went OK.  I'm sure you'll get lots of kisses on her return.

OK, caught up.  Hoping D1 is OK in VA tonight as I didn't see a post from her.  Anyone know what city she lives in?  Gotta get the little ones into bed.  The watch AI and DWTS-I have become such a TV junkie!  It'll be nice when the summer rolls around and there's nothing on (I hope).

golfer779

Good Eve,

Well today I'm not in the meltdown mode I was in last month returning from AZ, but I'm definitely not too hyped about chemo #9 of 12 tomorrow.  I'm starting to see how the 6 month regimen although probably a little easier on the se's front, but its getting really old fast. 

Kathy, so we're having a better day today, glad to hear it ... we're entitled to being ticked off about this whole experience every once in a while, with all the "PITA" issues that have popped up for so many of us, I think we're as a group and individuals pretty darn strong minded.  The good thing is that we can recognize the need to vent and then move on.

So with your ear problem, I kinda forgot about the nip ... hope its healing up nicely for you.  Sounds like the ear infection is almost history. 

Since you asked, our D1 lives in Arlington (hope thats not a secret)!  I checked out a map and I believe most of the tornado problems we're further south.  I actually tried her cell phone to check, havn't heard back.  

Kimberly, so today should be it for being "poked in the port" so to speak!!!  Are we thinking about a time for removal of that baby, or does it stay in through your recon surgeries? 

Gotta love a time of no doc appts, knowing that your not going to be going into the fog again, and yep, the vino should be back to tasting might fine here real soon.  You Did It Gal, Enjoy!!!

D1, so I was thinking you we're taking your toys and going home, but know you got your cards in the mail to Sis Kimberly.  Hoping that everything is cool at your place and that your off doing something fun.

Julie, I really thought that I'd sit this years 3 Day out as well.  But by Sept, I'm really hoping that I'll be okay.  I should have to good stories to share from this years, and hopefully some hints to get through it!!!  I'm planning on decorating my little pink tent with the faces of all of my Jewel sisters.

wvgirl, thinking of you, and hoping that Mr. Negative can maybe take a positive spin on things atleast for awhile.  You deserve to be treated well at all times.

PaLady, so how are the rads going, is your fair skin handling the txt okay?

Vettegal, thought of you today as I jotted in my journal.  I have been writing bits and pieces for about two weeks now and I havn't even gotten to my first surgery in November yet.  Hope your progress is going smoothly on your book. 

How are the rads txt treating you?

Dana, sounds like your getting some info on Tamoxifen, I was a little surprised as you called it chemo a bit back.  I thought to myself, I'm not signing up for that!!!

CathyCa, hope your enjoying your vacation time.  Have we gotten any more hikes in?  We'll all look forward to your words of wisdom when you return, hope all is well with pops!!!

Judy, I'm sure hoping that your tolerating your new txt regimen and that it is doing a kick ass job clobbering out those cancer cells.

Sheshe, I need a refresher, when's the wedding day?   I have well over a year for the dd's, but she has already reserved a wedding/recep site, and even bought her dress.  Talk about a planner, I think we'll just have to show up with the $$$$$'s.

Jennifer, hey gal, hoping that your having some fun and that everything a okie-dokie on your end.  Thinking of you.

CarolC, hello are you out there? 

Therese, your walk sounded like it was great, with good weather, company, food and the thoughtful gift as well.  I know that I'll probably be a blumbering idiot at the Seattle walk, hope I can walk with a runny cry-baby nose!!!

Tina, okay time to pull out your woolies again, put away your fun summer toys, and beg for mother nature to cooperate.  I thought I'd head out for a walk tonight, its almost looks like ice pellets in the rain this evening.

Maz and Wendy, I'll be thinking of you both tomorrow as I belly up to the bar with ya.  Maz, I know Val's spirit will be right at your side tomorrow.  And Wendy, YEEEAAAHHH, for your last txt.  Another one erased from our list.

My son is escorting me tomorrow, I'll work in the morning, swing by his school, pick him up, cruise by the house to apply my Emla cream and take a Lorazepam and then off to the chemotini lounge. 

I spoke to my co-worker Steph today, and he'll be saving me a sit as he also has an infusion tomorrow.  I will take my camera to document the trip, I'm pretty proud of my son to actually want to go with me. 

Okay, just maybe I can go for my walk, I guess rain never hurt anyone!!!

I'm sure I'll be surfing tonight gotta try to stay up til 10:00 for DWTS results, later for now ...

Carol

JulieK_11_30_07

Hi Jewels! Had kind of a lazy day today - not feeling quite up to snuff and started getting a migraine this evening. I think I took something soon enough and it's getting better already.

Tina - sorry about your yucky weather, but glad you didn't get dumped on like some of the others up by you! My mil emailed that they ended up with 6" of the white stuff in Wisconsin - they're definitely as tired of it as you are! I'm sure I will be picking your and Kathy's brains on the recon stuff! I'm very anxious for my appt and really want to get things scheduled soon. I think it'll give me something "new" to focus on now that chemo is over.

Therese - thanks for your insight. I guess I'll just go with the national standard and be sure to watch for any signs of problems. Sounds like your 5K was amazing! Good for you!!

WVGirl - hope your fog is light after this tx and you'll be back with us soon.

Kimberly - you sound like you're doing great! I hope you LAST antibiotic infusion went well - bummer that you had another one after you thought you were done. At least you're DONE now!!! Wooohoooo!! Speaking of our pioneers --- we have several who have been done with chemo for a while now. I'm  VERY interested in how fast the hair's growing back (or not). Pictures, girls???? Please share!!!

Dana - hope your doggie is okay - I'm sure she's getting spoiled tonight!

Kathy - I'm so glad you had a better day and that your herceptin infusion went without a hitch! Hope that darn ear infection clears up for you soon. I will definitely be watch DWTS weekly now! Yah, that Christian was pretty easy on the eyes too! I saw something on the Internet today making fun of his "injury" from last night - I felt bad for him. And, btw, your rants are welcome anytime - that's what we're here for and you definitely captured some of what I had been feeling lately!!

D1 - thinking of you - hope you and your family are all okay after the horrible weather in that area yesterday. Check in when you can!!

I'm hoping to go to my son's Regional Track meet tomorrow at the high school - at least for a little while. Then I'm supposed to go to school again on Thursday to meet (and fight with) my administration about my sections for next year. Hoping I feel up to it!

Kris - hope today went well for you! Thinking of Wendy, Carol, and Maz tomorrow - go get ‘em girls! WOOOHOOOO for Maz - LAST ONE!!!!

Love to all!!

Julie

tinalee123

Hi gems,

We had a lovely day here, today.  I know, you all are thinking, “thank goodness, now she’ll stop with the snow reports!”  It was cool (50’s), but brilliantly sunny.  It’s amazing how sunshine can change a persons’ outlook and attitude.  

As you all know, I have been quite house-bound since December.  I actually worked outside my house today (third time in the last two weeks), visiting one of my favorite customers and instructing. 

Now that I’m DONE, I need to decide when I am going back to work, in my office.  I really get a lot accomplished by working from home, but, I miss the camaraderie with my coworkers.  I’m fairly certain they miss my bowl of chocolates that I keep on my desk.

Tomorrow I head in for another “last”, my final expander fill.  Then, on Thursday I’ll be having my port removed.  I am really looking forward to that thing being out.  I wonder if the ps will be able to do something about the scar, right below the port itself.  It’s larger than I anticipated (probably due to the whole area being stretched and expanded), and not pretty.

Therese – It sounds like you had a great time on your walk!  What a wonderful experience.  Such a great accomplishment, and it’s so cool that you honored the Jewels.

Julie - When is your appointment to discuss reconst?

Maz – Thinking of you for tomorrow!  FUBC!!  Hope it’s uneventful and over in a quick hurry.

Carol – Best wishes going out to you as you head in tomorrow, too!

Wendy – Go get ‘em tomorrow.  Half-way point, right?  FUBC!

TTFN,

Tina

LilWarrior

Carol, you are so funny!  The weird part tamoxifen feels just like chemo to me; that is why i thought it was chemo.  It gives me major hot flashes, and bone pain but as always I cant complain about it.  But the next time I dont know what I am talking about can you please let me know - he ha.  I think the Dr is addressing my hormones right now, and that is what the tumor hasnt gone down because my hormones are producing too much estrogen.  

Today I meant a wonderful lady in the store that had Kidney cancer and they removed her kidney and she told me you look so great I would of never known you had Cancer except for the scarf.  I said thanks, she told me you will beat it because you have such a great outlook on life and such a sweet personality.  I sure hope she is right.  It is really nice to see people care.

I got my baby from hospital - she had two walnut size tumors growths on the outside of here - she is 12 years old and a pitbull; yes a pitbull and she kissed every dog and person in the waiting room.  Its all how you raise them.  Anyways the Dr said do you want to run test on the tumor which I think they are cancerous and I pulled off my scarf and said NO I dont want to know only one Cancer Victor in the house is allowed.  He smiled and then gave me a big hug!  My baby is fine now, I also have her on rimadyl for her arthritis.  I laughed so hard when I got her paperwork it stated she had a lumptectomy.  He ha - Just like her mama.

God is sooooo good to me and I blessed with each and everyday.

I hope you all are still praying for me and keep them coming.

Love ya,

Dana 

LilWarrior

Tina - yes the weather change can sure make a difference on how you feel.  I hope you get more sun!

Julie - I hope your headache goes away, that really sucks.  Just put a cold towel on your head and relax.  I also heard that behind your ears there is a spot to help relieve the pain of headaches.

Love u,

dana 

golfer779

 Me Again, I received this e-mail from Steph at work, I talk quite often about the continued support I receive from you all and he has been quite taken by it all.  I have passed on to him the well wishes and prayers that are being sent his way ... so here it is ...

Lady Carol,   Please feel free to pass this on to those wonderful folks you have been chatting with.   Even old codgers like me sometimes find a sense of humor (like, from beneath a rock) that just makes someone else laugh and feel young again.   Sometimes, we need stewpud people like me to show that we don't have to be morose during treatment: it does get mo' betta.   Take care, and I look forward to your hugs tomorrow!  

Now thats a chemotini ...   He is not going anywhere without a fight!!!  This pic is from his txt which would have been about a year ago now.  Dang those olives look good!!!

SISKimberly

Man, what a long day. The plastic surgeon is very pleased with what he saw today, but is giving me an oral antibiotic as an insurance policy for the next 7 days. He said we can talk about doing my exchange next week when I go back to see him. I told him I’d like to do it at the end of June, and he said he’d have his office gal work with me on that next week. WhooHoo!!!! There was a confusion about wether or not I really had an infusion today as one order said it ended yesterday and another that said today. They had to call the plastic surgeon to get it straightened out and then a patient had an emergency, so all the nurses were working on him (he’s fine), so my usual in and out was over an hour and a half. I’m pooped.

Dana- Lumpectomy, that’s right. Yes, Tamox is a Hormone receptor blocker. So, a different chemo is still in consideration mode, eh? 

I hope your pup is OK. She’ll be so happy to see her mommy, I’m sure.

Therese- Your walk sounded awesome!!!! The older gentleman with his walker, WOW!  Sounds like our Team Captain was pulling out all the stops for her team. After a 5k, you deserved a little alcoholic yummy and a nap. Thanks for sharing.

And the hair report is sounding promising. I am looking forward to having some. OK, funny oh I forgot I don’t have hair story. So, I’m putting on my face lotion this morning, and I actually use one hand to move my bangs away from my forehead.  Uh, duh, Kimberly, you don’t have any bangs to move. 

Kathy- We are soooo good.  I didn’t take your comment as an affront at all.  I was so worried I’d made you feel invalidated. Yeah, I agree that sometimes the darn internet communication can come off sounding wrong…not the way it was intended at all. Whew, glad we got that squared away!!!

Whoohoo, on the ear infection clearing up, slowly, but clearing up, and your blood numbers creeping up. Every little bit is progress.

Carol- Man, I hear you on #9 of 12 being a real drag to even consider, and how drawn out this must feel to you.
(((HUGS)))  Glad your ds will be with you, though, and that Steph will have a chemotini lounge buddy. (We must have posted at the same time. Great picture of Steph. Thanks for sharing his message with us. Give him a big HUG from the Jewels tomorrow.)

Thinking the port goes at the exchange.

Julie- Whew, caught that migrain before it took off. Thank goodness. 

You have to fight for sections, too, eh?  Our school fights with the District every year about sections. The DO always low balls the numbers and our principal and scheduling gal check, double and triple check the number of kids coming from feeder schools. Fun, eh? Good luck.

Tina- Hey, last expander fill. Gotta love that!!! And getting the port out…yippee!!! And sunshine to boot…life is looking good at your house, eh?

Go get ‘em tomorrow, Carol, Maz, and Wendy.
See ya in the morning.
SIS Kimberly

RN2teach

Evening, Js!

It has been a looonngg Tuesday here. I woke up in the middle of the night and couldn't get back to sleep d/t pain. I've been up since 4am... Had a full day of aches and pains and still going strong tonite--I'm just waiting on the med to take effect so I can sleep.

ds had a ballgame this evening and dd is on the campaign trail--she's running for president of her class. Between the two of them, they kept me going all evening.

Tinalee- glad the sun was shining on your world today.

Therese- loved hearing about your walk. Mine is coming up Saturday--hope I do as well as you!

Julie- I'm trying to come to terms with the follow-up protocol (or lack thereof). I will see my rads onco tomorrow, my surgeon next Tuesday and oncologist next Wednesday. I don't want to obsess about follow-ups, but I plan to ask for an MRI annually in addition to my mammograms. I'd like to have the MRI in the near future and alternate this test with my annual mammogram in late November.

Given how rapidly triple negatives can pop up and spread AND the fact that we have no targeted therapies to inhibit their growth, I believe that follow-up testing should be performed more often than once a year.

Therese- thanks for your input on follow-up. I have decided that blood tumor marker tests and others that have a high rate of false positives are not worth it.

Dana- Hope your pup is doing well after surgery. How ironic that it was a lumpectomy, huh?!

Carol, Maz and Wendy: good luck in the chemo lounge tomorrow.

Carol: tell Steph we're thinking of him--love the picture!

Thanks for the congrats on the nurse award. I'll post a link to the article if it shows up online. I was really touched that my students got involved in this promotion. I'm flattered, humbled, and even a little embarrassed at the attention.

Ah, I'm feeling sleepy! Night, ladies!

Paula

deb102307

Good morning Jewels, it has been a while.

Been lurking but wanted to shout out to Carol, Maz and Wendy for their day at the bar.  Hope it goes great.

Dana - So sorry to hear of all that has been going on with you.  You are one of the strongest people and your faith just helps keep me going alot of times.  Someone shared this with me and I really liked it and thought maybe you could enjoy it to.

PS..Someone sent this to me today and I wanted to share it with you.

Smart" God
Make haste to me, O God! You are my help and my deliverer . . .
Psalm 70:5

Recommended Reading
Psalm 116:1-5

Advances in the field of medicine never cease to amaze us. Currently, research is being done on an advanced delivery system of medicine to the body using nanoscale particles. Scientists and researchers hope that by using these tiny particles, the presence of drug molecules will increase wherever they are needed in the body and wherever they will do the most good. In essence, they hope to create a "smart" way to deliver medicine directly to the sick cells in a person's body.*
While we must wait for this technology to be available, we have a "smart" God who is able to target exactly where we are hurting or in need and deliver His healing to us right now. The Bible says, "Let us therefore come boldly to the throne of grace, that we may obtain mercy and find grace to help in time of need" (Hebrews 4:16).
Trust God in your time of need, for He loves you and cares deeply for you. He is longing to help; He knows exactly what you need and what will do the most good for you. Believe it and be comforted!

Where there is pain, there is healing. Where there is mourning, there is dancing. Where there is poverty, there is the kingdom.
Henri J. M. Nouwen

Sis Kimberley - it is always good to hear from you again and glad you are coming back to brighter days.

Maz - all I can say ....(((HUGS)))

Paula - Congrats on the award. Would also like to see the link if one comes up.  It is always very special when someone takes the time to go above and beyond to let you know you are cared about and respected.

Sorry for the limited shout outs.  Been lurking.  Not liking Taxotere at all.  Bone aches, fatigue and just overall air headiness are horrible.  I know I only have one more to go but that still seems a long way off.  My hands are peeling, feet will be peeling, feel like someone hit me with a hammer......repeatedly.  I went to work yesterday and lasted 5 hours.  Not going today.  My thoughts are so out of control and lost I have no concentration.   This time has been the worst so far.  And did I mention the bone pain???? ANNOYING and painfull.  To top it off, my coworker gave notice so is leaving before I even finish treatment.  There are only 3 of us in my office right now so of course that is going to make me want to suck it up and be there everday.  BUT not today.

I know that there are others that have suffered alot more than I have and I truly do pray for everyone here that it will get easier and be over soon.  I just needed to get it out of my system.  People tell me that I am looking good and doing very well.  While I think I have aged 10 years on the outside (eyes and skin), how do you explain what is really going on on the inside?  It is so hard to describe what they can't see.  Don't get me wrong, everyone has been so supportive, my partner, friends, work....I guess it is just me.  I realized the other day that I have not cried once since I was diagnosed.  How weird is that?  Heck, I didn't cry WHEN I was diagnosed.  My surgeon almost did but not me.

OK, think I have purged for a while now.  Sorry so long.  Wish I was more support for more people.  I can just keep trying.

Love you all and all are in my prayers.

golfer779

Hi Jewels, 

Just to let you all know, our fearless leader D1, is just fine (we played a little cel phone tag) and they were not blown off the map with the recent tornados in Virginia.

She's one busy beaver, and will hopefully be back to the post soon!

Later, Carol

JulieK_11_30_07

Deb - so sorry to hear you're having such a tough time. Hang in there, dear. We're all here if you want to vent. Take care of yourself and take the time you need to rest and deal with your se's. Work will still be there once you're feeling better.

Carol - THANKS for letting us know D1 is okay. I've been worried about her!!

Getting ready to head to the track for my son's track meet. Looking like it will be a loooong day. Hope everyone has a great day!

Julie

golfer779

Deb, my guess is that every one of us has had to deal with similar as well as different se's from the meds that are going to make us stronger in the long run.  I'm sure it would be hard to find a group of ladies that would not sympathize with you all the way to the end of your txts.  This is a great forum to let out some of those unwanted feelings, just wish we could take the bone aches along with the words.

I understand how you feel when others say you look great, and you probably just want to  let the world know that your feeling cruddy inside, and not necessarily liking what you see in the mirror.  You have almost finished this grueling time, and brighter, painfree days are just ahead.  Hang in there sister friend!

Off to pick up the ds at school, just popped my Lorazepam, applied my Emla cream (I love Miss Emla), hoping that infusion day is uneventful, especially since Zach is accompanying me.!  I'll be back tonight, take care all.

Carol 

SISKimberly

Morning Jewels,
I wish I could express the lightness of my being right now. I just smile when I think about being done and how good I feel when compared to infusion #5. Life is Good!!!!

Paula- FUSE!!!! on the bone pain and not sleeping. That has got to be emotionally draining being in pain on top of not sleeping and your very busy schedule.  Knowing you, you got a couple more hours of sleep after you logged off and then got and went to work. SHERO!!! I’m telling you. That’s why you’re getting this award.  You do so much for your kids, and they see how dedicated you are even as you deal with bc.

Deb- Vent away, Deb. It does suck. It is hard. No one can see what is happening on the inside or even all that is happening on the outside as clearly as we can.  I’m so sorry you’re having a tough go this time. Only one more to go, Deb. You can do it.  I know that last one seems far away, and then there’s the anxiety of not wanting to go through it again just when you’re starting to feel better.

About not crying yet. Everyone handles their feelings in different ways. Like I said in my post after coming out of my last fog, “As humans, we do not like having our mortality thrust in our faces.  We want to believe that we are all going to live long and wonderful lives, so when something rises up and challenges you, "You wanna bet?", it tends to shake you right to the core.  Often that shaking up does not happen right away.  Being in survival mode tends to put one on a path with blinders on moving one step at a time and keeping to the plan that will get you to the buried treasure…back to your life.  When the treasure is found, you are left to wonder, "Now what do I do?", because you know that you can never go back to the life that you were leading before.  The journey has changed you, and change is not always easy.  It takes readjustment, and that takes time and patience”. 

Be patient with yourself. You are in survival mode right now, and eventually you will allow the tears to flow. You are not weird at all for not having cried. You are Deb.

As Julie stated, you are the number one priority. Take care of yourself. Work will be there when you can be there.

Carol- Thanks for the update on D1.  Kick some cancer booty today.

Julie- Pace yourself. Have a good day.

I’ll check in later,
SIS Kimberly