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  • jennylynn1970
    jennylynn1970 Member Posts: 8
    edited March 2008

    WHAT is bootface?  :-)  I am new here and trying to catch up with some of the posts, but I feel a bit lost.  The support here is really quite special.  JL

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Hey Shirl!   It isn't your searches that are saved, it's the things that are the same every time you visit a site, like the background, format, etc. That way the basics are already there and your computer only has to gather what's new on that site. It's for your convenience and is very useful if you have a slow connection. With a broadband connection, you don't really need it.

    To keep it under control, go to the same place you did to delete it. Next to the delete button is a settings button. Change the size to 8mb (smallest allowed). Then every few months, delete the cache.

    And yes, the Towhee is a bird. It is very shy, looks a lot like a robin, and I just have an affinity for it. We have lots of them around here. My avatar is one. 

    jennylynn, welcome! This is a special group. Bootface is the name of the ugly thing we have shared...cancer. I can't remember where it started, but it's a great way to gain control over it. Sue often boils it. 

    Judie 

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  • NancyD
    NancyD Member Posts: 3,562
    edited March 2008

    Well, I bit the bullet and bought a wig today. I'll be in this stage of chemo for nine weeks (3 chemos, once every three weeks), then surgery, then a second round of 3 chemos once every three weeks. Sounds doable with that break. But it will mean about six months or more of no real hair (except the bit that will grow back while I recuperate from the surgery...just in time to be swept away by the second chemo).

    It's a great looking wig. I will look like I am finally keeping up with the color, cut, and styling, LOL.  When my hair starts to go in about a week, I'll go down for the final cut (putting in bangs for me) and fit. He'll shave the rest of my hair off, too. A lovely little shop in Westwood, NJ.

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  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    YOOOOO HOOOOO Sisters xxx

    I hope ya all good xxx

    Guess what ...I was meant to be in work at 9 am today...and I woke up at 9:05 ...hahahaha ....I overslept!!! Anyway ...got to work at 10 ...worked til 5pm then went food shopping and I just made a lovely stirfry sweet chiili beef with noodles.... xxx

    I love you all... my mouth is sore my nose is bleeding.... so I expect to be rite down by Weds...which is when AE got me to go hospital last cycle.... where art thou AE ...

    Shirlann ...it is 9:11pm here...now ...I am so happy happy happy that your pencil is remedied...thankyou so much Towhee...

    Ok I am off to read....and catch up....

    Much Love xxx

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  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    Nancy...I would be lost without my wig...I love it....it always stays straight and looks so real...I dont have to use straightners ... and it saves so much time.... my hair is growing back fast now..... xxx You done well to organise all this....I hope you're feeling good xxx

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  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    Jenny ...way back when I got dx ...I was posting on here and called the c!$**#  ugly boil in the bag bootface ...and it kinda stuck... cos I hate the other word and bootface here in the UK means ugly ....xxx

    YES BOOTFACE WE TALKING BOUT YA ...SO BUTT OUT

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited March 2008

    Sue - I'm here!!!! And so is UB - who by the way is wondering why he hasn't heard from you!!!!

    You better be careful or you will wind up in hospital again -  don't wait if things get really bad.

    AE 

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  • my3girls
    my3girls Member Posts: 3,766
    edited March 2008

    Just a quick hello to all my dear sisters here.  I am working today...only 45 min. left. Sue...I woke up late today too! I looked at my clock and it was 7:35am, had to be here at 8:30, and I have a 30 min. drive...made it!!

    Happy Easter to all of you.  Many blessings to each and every one.

    Love to all!

    xoxo

    Lisa

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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited March 2008

    Hi everyone!  Sue, I'm so glad to hear that you slept--even if you did arrive late for work.  Have a wonderful evening and get to bed at a decent hour tonight, okay???  Love you, sweetie!

    Isn't it a beautiful day today, Judie?  Why can't it stay like this through tomorrow?  I'm not looking forward to hunting eggs in the rain.  Ick!!!

    I admire you ladies who can wear your wigs.  I spent over $500 on the two of mine and wore them less than a dozen times.  They were so itchy and hot!  Even with my wig liner, they were very uncomfortable.  I've worn hats and doo rags the whole time.

    It sounds like you're tolerating your chemo really well, Nancy.  I forgot what your chemo cocktail is.  Will you be on the same regimen after your surgery?  Hang in there--I can already tell that you'll do great throughout every phase.

    Welcome, Jenny!  We're a great group.  I think I speak for everyone when I say, "the more the merrier".  We'd love for you to join us.

    Love to you all--Lisa, Mel (even though you won't see this until you get back), Jane, Jule, Shirlann, AE, Lucy, Ulla, Sheila, Wren, Mia, and anyone I may have forgotten.

    Hugs and a happy Easter to you all,

    Karen

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  • NancyD
    NancyD Member Posts: 3,562
    edited March 2008

    Hi Karen, I'm on TAC now, and it looks like it will be the same afterwards, unless something comes up in the surgical pathology report that changes things. The only strange se's so far are hiccups whenever I eat a piece of bread, and I'm a bit constipated, but things seem to be moving along, albeit slowly, in that area.  I've even been cooking dinner for the family the last couple of nights after a nice two hour afternoon nap.

    Less spacey tonight. Whatever was causing that has seemed to worn off.

    I'm looking forward to a nice holiday dinner tomorrow at my brother's. It will be an early dinner (2 PM) so I will not have to stay late, can come home and jump into bed an go to work on Monday.

    I like the look of the wig a lot, but you know, I don't know if I will be able to tolerate it for a full day. Maybe I'll just wear it while I commute on my bus, and then switch to something more comfortable while I'm in my office. Everyone in my office knows of my illness, so it not like I need to hide anything there, but I don't think I want to advertise it on the streets and subways of NYC. Too many crazies around that might get personal.

    Well, while my head is clear I should get my monthly report done for my boss. It's due Monday and I've put it off because my mind was so distracted before the chemo, and then fuzzy afterwards. I begged off it last month because I was going through all my tests and diagnosis. Thankfully, things are slow and there's not much to say.

    Happy Easter and Happy Spring! 

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited March 2008

    HAPPY EASTER!! To all our dear sisters and friends on this site. WOW, we have such a nice crowd. Everyone is so precious to me.



    I wish I could add a lovely Easter Lily or a bunny, but, I am lucky I can WRITE thanks to dear Towhee, lovely bird, lovely lady.



    I am seriously packing now. So many books, I read, read, read. It is nice, everytime I look up, it is NOT at something I should be doing. Best reason of all for a vacation.



    I can e-mail on the ship, so if I can figure out how to get the pix on, or one or two, I will.



    Love you all, Shirlann



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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited March 2008

    This one's from Shirlann everyone!

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited March 2008
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Such sweet pictures from lovely ladies. I adore them! I send Easter greetings to all. May this day see the beginning of a renewed life of health and joy for the deserving sisters who come here.

    But, being the evil thing I am, I just can't help myself. It's been around for a long time, but is still my favorite Easter giggle.

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited March 2008

    Happy Easter Everyone!!!

    Sue - check in please - I'm worried about you!!

    AE 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    happy easter everyone!!!!

    I cant stay too long as Im having all my family here for dinner later today!!!! I think I was having one of those "DUH" moments when I invited everyone, what the heck was I thinking!!!!! I will have about 25 people/kids here today!!!

    I wish the weather were like it was yesterday for the egg hunt though...it was bright and sunny yesterday and today is overcast and predicted to rain :(

    Hope you all have a WONDERFUL day!!!

    Love

    Jule

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Judie,

    Your easter bunnies are soooooo cute!!!! brought a big smile, thank you...

    I love all the pics....I need to figure out how to post them better myself!!!!

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  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    Good evening lovely sisters xxx

    I am just checking in to tell you I think of you every hour of every day and you are all extremely special to me .... and in turn that means to my family as well ...thankyou xxx

    I am holding on tight today...a lot of bleeding and my body wont give up shaking....xxx

    I wanted to post again last night ... but I became overwhelmed with sadness again... I cant get over all the losses here...and I keep thinking of Joanne .... sorry ...I just have to tell you my thoughts xxx

    I am in for a rocky week with the blood counts dropping and am praying like mad it is easier xxx

    PLEASE PLEASE PLEASE PLEASE KNOW THAT I HOLD YOU ALL CLOSE EVEN THOUGH WE ARE MILES AWAY...YOU ARE WITH ME AND YOU ARE ALL PART OF ME xxx

    Much Love xxx

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited March 2008

    Oh Sue, honey, don't feel bad about feeling sad. This is a sad thing we have all been through and are going through. It is, no two ways about it. It is perfectly natural and to be expected, ESPECIALLY on holidays when it seems to be expected that we are all so happy and we aren't. So always tell us, we will boost each other up when we need a kind shoulder. You are loved, sweet Sue, and all this love and prayers are flying through the air, straight to your heart.



    Karen, darling girl, thank you so much for the cute Easter bunny, that was so nice!



    We will all be here, for all the gals in treatment, to get through this nasty journey.



    Hugs, and love and bunny kisses, Shirlann

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  • NancyD
    NancyD Member Posts: 3,562
    edited March 2008

    Hi everyone,

    I'm having constipation problem. I don't want to get into a habit of using the laxitives. Anyone have any suggestions for setting my system right again? Please tell me that this is a just-after-chemo problem and will not last the full three weeks until my next dose, UGH.

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited March 2008

    Nancy,

    Take the laxatives - its a temporary problem.  Try to drink lots of water too.

    It gets better!!!

    Hang in there!!!

    AE 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2008

    Nancy,

    I didnt have chemo so dont know if this works or not but a lady that I went through radiation treatments with said that someone told her to drink a cup of hot water just before bed each evening...said just plain hot water, like you would a cup of tea...sip it until you have drank the cup...my grandmother also did this but I never knew why...Im sorry you are so uncomfortable and will hope with you that this is only a short experience and DOES not last until your next treatment!!!!

    Sue-its ok to be sad, we are all sad and we are all here to help chase your saddness away...Im glad you told us how you feel....its important for you to be able to tell someone and not keep it inside....just saying it can help alot.....

    Hugs

    Jule

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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited March 2008

    Nancy, I had TAC for my first two round of chemo, and I would be constipated for about three days and then went to the other extreme for a few days as well.  Miralax is a wonderful product, and helped a lot with the constipation.

    Hope all you lovely ladies had a beautiful holiday!

    Love and hugs,

    Karen

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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited March 2008

    Hoping and praying that tomorrow's a better day, Sue.  Hang in there, sweet girl!

    Love you,

    Karen

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  • gsg
    gsg Member Posts: 3,386
    edited March 2008

    Nancy, I drank tons of water.  Didn't help.  Plus none of the over-the-counter laxatives worked for me while on chemo.  An older woman from the "old country" told me to drink 1 to 2 TBS of molasses stirred into a small glass of warm water before bedtime.  It tasted horrible but did the job.

    I've read on some websites to use 1/3 cup of molasses. 

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  • my3girls
    my3girls Member Posts: 3,766
    edited March 2008

    Sue, I do hope you are feeling happier today.  Please get some rest.  I think your sadness partly comes from you wearing yourself down. You are like the energizer bunny...YOU DON"T STOP!! I hope you had an enjoyable relaxing EASTER with your little men!!

    Thanks for all of the beautiful and funny Easter wishes. Jules, I love that one too..with the chocolate bunnies!! haha.

    I hope everyone enjoyed their Easter with their families.  Mine was very nice, very relaxing.

    I am off to get some much needed cleaning done at my house.  Now that I am able to do everything again...woohoo!!

    Nancy...hope the constipation is getting better.

    Where is Ulla?? We have not seen her in quite some time!  How about Lucy?? I do wish they would check in.

    I am sure our Melody is having a great visit with her Mother!!  So happy for her!

    I will check in with all of you later.

    xoxo
    Lisa

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited March 2008

    I just got on and wanted to wish all a Happy late Easter.

    I have 2 pages to read when I get a chance (after I get caught up on entering orders) 

    Sheila

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited March 2008

    Sue - WHERE ARE YOU???? ULLA, YOU TOO!!! 

    Check in please.

    AE

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited March 2008

    Where is everyone today? I finally got to read all the posts and AE was the only one else to post today.

    Sheila

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  • sueps
    sueps Member Posts: 2,266
    edited March 2008

    Hello dear dear sisters xxx

    I hope you all had a nice Bank Holiday ...is it bank holiday in the US xxx

    I have just done a 10 hour shift at work...was suppposed to be 6 but staff staff staff grrrrr.... well I am going to fire 2 tomorrow...xxx

    I am feeling OK so far from the chemo...off beat ...sore ...sick ...but I am so full of incredible energy...I havent felt this healthy for about 4 years...so maybe I was really fighting without knowing.....I am feeling my age again xxx

    Well still feeling very very sad for all our dear sisters we have lost ... it is a terrible terrible disease... I am not even my usual angry self ...I am just sad ....OK ...I just steamed my self up and see red now ...

    GET LOST BOOTFACE YOU MAKING MY BLOOD BOIL ...YOU MAKE ME RAGE .... YOU I WOULD DO TIME FOR ...HOW DARE YOU HURT ALL THESE WONDERFUL BEAUTIFUL PEOPLE ..YOU MAKE ME SICK ....

    Dear sisters ...my trip neg dx is playing on my mind again...I finish tx in June ...and nothing more ....I do fear it coming back....I fear for my family .... I am not in fear of dying ... just leaving behind a lot of pain ..... I want to live forever... but I think trip neg is not very good ay xxx

    Zippy is much better I got him some caramel fur ball paste and wormers...he is so much healthier...THAT CAT IS HIGH FREAKING MAINTENANCE .... hahahahaha... xxx

    Sorry for my recent posts ....maybe I am just going through a bad patch xxx

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