MI Survivors

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  • pconn03
    pconn03 Member Posts: 643
    edited November 2004
    So sorry I had to miss this time but hope to make it in January. Just as a side note, I will be going away from 1/22 - 1/29 so IFFFFFF it could be before that, it would be great!!

    Blessings,

    Pat
  • Lorie_Anne
    Lorie_Anne Member Posts: 77
    edited November 2004
    Hi Ladies,

    I am 1 day post op from the implant exchange and doing pertty good. Alittle sore; but nothing compared to the masectomies.

    It looks as though you had a great time meeting for lunch. What are your plans for January? I see my onc on Monday for the results they found on the CT. Has anyone here had nodules show up in there lungs? She mentioned they were pretty small?

    Anyways, hope everyone is ready for SNOW tommorow.

    Lorie
  • gmr52
    gmr52 Member Posts: 74
    edited November 2004

    I'm sorry I missed the lunch since I really wanted to meet those who couldn't make it last time. I was in the process of moving but hope to make the next one in January.

  • nurse_mikki
    nurse_mikki Member Posts: 26
    edited November 2004
    Hi ladies: I have started a Michigan Directory which will include names, addresses, screen names & email addresses. I figure individuals can exchange their own phone numbers as they wish.

    I don't know if anyone else has such a list already started. If you are interested in being included, just private message me here or email me via my aol.com address which is mikki630. I posted it this way so that it can't be easily harvested for SPAM

    Everyone who submits info will get a copy by email. It will be in the format of Microsoft Word. If you are unable to receive attachments or don't have the ability to read MS Word documents, let me know that, too. We can work something out.

    We can also include ladies from other states as well--maybe a regional/national list. I created such a list from an old messageboard I used to visit. We arranged gatherings twice a year, in Spring & Fall. We traveled to such places as Myrtle Beach, San Antonio, Las Vegas, St. Louis, Boston... It was a blast!

    Hugs, Michele
  • normalcani
    normalcani Member Posts: 230
    edited November 2004
    I'm so sorry that I didn't make it...I had a fill on that previous thursday and was in unbearable pain for the next 5 days....My mast wasn't even that bad.....

    It sounds like you all had fun....I wish I could've made it...I can't wait for the next one....

    Hope all is well with everyone.....
    Hugs to you all......
    Candi
  • gcpommom
    gcpommom Member Posts: 883
    edited November 2004
    Hi girls! Just checking in, been SWAMPED with homework!

    Lorie and Candi,I hope you are both doing well and feeling better!

    Everyone have a great Thanksgiving, maybe it'll snow, huh?

    Hugs
    Judy
  • Not_Me
    Not_Me Member Posts: 180
    edited November 2004
    I just wanted to wish everyone a happy Thanksgiving as well. I too have been swamped...with work and school. We also just got back six days ago from a week in the Bahamas. It was great. You know...I think I might have actually lived thru a few days without once thinking about my bc experience.

    I also decided to look for a new job. Life is too short to work for someone you really don't like. I think your boss is 50% of your feelings about your job.

    Wishing all a great holiday. We are heading upnorth to spend time with my family.
  • pconn03
    pconn03 Member Posts: 643
    edited November 2004
    Blessings to all of our "Michigan Gals," with thoughts and prayers for a wonderful holiday season and peaceful, calm thoughts!!!
    Blessings,
    Pat
  • mom2acat
    mom2acat Member Posts: 556
    edited November 2004
    I hope all you Michigan gals had a happy and safe Thanksgiving!
  • Not_Me
    Not_Me Member Posts: 180
    edited December 2004
    Hi all,

    Just wanted to check in with my MI gals...getting ready for Christmas here...we have our decorations up and our Christmas tree. I am crrently writing my annual Christmas newsletter and am somewhat perplexed as to whether to include the C info or not. My hubby says yes...and I have mixed feelings. What do you think? I have about 70 on the list this year and so far, about 1/2-2/3 of them already know about it. My thinking to let others know is this...1. When your doctor orders a test...get it and 2. Appreciate every bit of life that you have been given.

    Thoughts?

    Chris
  • Pamela1
    Pamela1 Member Posts: 19
    edited December 2004
    Chris:
    I understand your mixed feelings. The intent is to let people know not to skip an annual mammogram and to appreciate each moment. On the other hand,I am sure you don't want sympathy, just acceptance and empathy. I was reluctant at first to talk about it, because I didn't wnat to look like I was tryoing to get sympathy. But then, after I got over the shock of having it, I did share with friends. I was overwhelmed by all the love and support and prayers. It did spur some of my friends who had put off having their mammograms to schedule one. I don't send out Christmas letters. If I did, I am not sure if I would include it, because the majority of people I send cards to, are aware of it. E-mail was great for letting people know without having to face them. So, I am not much help. Thanks for asking for an opinion. Have a blessed Christmas.
    Pam W in Woodhaven (formerly Worried in Woodhaven).
  • Sphynx
    Sphynx Member Posts: 611
    edited December 2004
    I am grappling with the same problem as Chris and it is being discussed on another post. I don’t write a blanket xmas letter but do send cards to many people whom I never talk to but once a year. These are former co-workers or former neighbors. Since I wasn’t up to sending cards out last year, there are about 12 people who still do not know.

    I thought of saying that it was a rough year but things are looking up. I finished treatment for breast cancer and then found out my husband had prostate cancer.

    The problem is that my hubby is still not out-of –the–woods. I’ve had the cards sitting on the table all week trying to come up with the right words. It sounds too bizarre when I re-read it back and I don’t want sympathy or any “poor you” type responses. Or even the expected response – nothing. I hate feeling like the victim but I’m also dealing with the fact that many in my family and one very dear friend has skipped out of my life.

    I’m open for suggestions. I hope all is well with each of you. I saw my oncologist yesterday and my latest tests were good. My white count is still slightly down but he isn’t concerned about it. I’m now on a 6 month schedule – yee ha! Happy Holidays everyone!
  • Lorie_Anne
    Lorie_Anne Member Posts: 77
    edited December 2004
    Hi All,

    Boy, you certainly hit a nerve with me. I, too struggled with writing a letter this year since technically speaking I am not out of the words. How do you write " I have a mass on my neck now, with nodules in my lungs"? So...I ditched the idea of a newsletter and just stuck with cards.

    Sphynx, let us know what is happening with hubby-your in my thoughts.

    Happy Holidays Ladies.

    Lorie
  • pconn03
    pconn03 Member Posts: 643
    edited December 2004
    Sphynx: So happy to see you posting. I was just about to send you a PM since I hadn't seen you on the boards for awhile!!! So happy your tests are good. I pray that your husband will 'turn the corner' and have the same news to report very soon!!
    Chris and all gals grappling with the 'tell or no tell' problem - I really don't have the answer. I guess most of my closest friends know and those that I send cards too are folks I don't see all that often. My solution - I just let it go. Not sure if that's right or wrong, it's just my way.
    God bless you all,
    Pat
  • gracejon
    gracejon Member Posts: 972
    edited December 2004

    I have been thinking about you a lot. I do want to let you know that I am doing okay and now once chemo has started, it did relieve a bit of anxiety. You all were right again! Please send me thoughts of ideas if I can help any way.

  • Not_Me
    Not_Me Member Posts: 180
    edited December 2004
    I just wanted to say hello to all of my Michigan sisters out there. I did decide to tell on the xmas letter and haven't received one comment. I know the holidays are very dfficult for some of you who are not feeling well or who have suffered loss this year. I do sympathisize with you.

    Wishing all a blessed holiday season.
  • Anna_Marie_Rogers
    Anna_Marie_Rogers Member Posts: 198
    edited December 2004
    Hi! I just found this thread. I was diagnosed in August, has a mastectomy Sept. 30, had a massive infection & had the mastectomy reopened & was in hospital for a week & came home on IV therapy. When that was over I had intestinal blockage (not connected to cancer), so I had emergency gastro surgery to cut an adhesion. Then I had to wait for axillary node dissection. They removed 29 nodes; all were negative, but the sentinal lymph node had been positive. I am ER+PR+, Stage 2, Grade 3. I'm probably a victim of long-term HRT with both premarin & prempro--my own fault I guess. A port was put in a week and a half ago & I've been back to work teaching high school in Detroit for 1 week, 2 days. I live in Rochester Hills and am a Henry Ford Patient. I'm supposed to start chemo Mon., but just the thought has had me up all night throwing up. My 23-year-old lives with me, but has doen enough and has her own problems. My 26-year-old daughter lives near Kalamazoo and is a teach who is into civic theater. She has no time & if I get emotional says she can't deal with my mental problems. She's married & also has 2 dogs & a cat to care for. My 22 year old flew home from Africa tonight & will return to WMU in Jan. He's great, but can't abide emotions either. If I don't do chemo & relapse, they'll blame me, but I am just too frightened. I'm divorced & my former long-time SO is in prison. He writes & calls supportively, but also expects me to do chemo. His sisters all did chemo, but one is out of remission and the other has other health problems now. Sorry for runing off at the mouth, but I thought I could make myself do this and do it without anti-emitics, but I can't even think about it without being sick & emotional> I thought I was okay on the hair thing too, but can't find a wig that doesn't look like it belongs on a sheepdog or Dolly Parton & don't have big bucks or time to find one.
    Sphinx - I'm sorry your husband is still not well. My SO is a prostate cancer survivor.
    Lorianne - I'm so sorry that you have a lump & nodules. You were so brave & optimistic (beautiful too) when I met you at the luncheon. I hate for you to have more problems after all you've overcome. What is the next step?

    Jon, Thank you for your posts. I'm glad you're feeling better, but if I get brave enough for chem, no decadron for me! I'd probably be committed. I hope the next chemo goes well for you.

    Sorry, this was so long, but at least it stopped me from crying for a while from fear.
  • Lorie_Anne
    Lorie_Anne Member Posts: 77
    edited December 2004
    LuckyAnna:

    I just got finished reading your post and my heart ached for you. It sounds as though your DX is very similiar to mine (or at least the pathology) and frankly speaking I think you are doing a wondeful job just to stay "up".

    I will tell you when I was in the decision making fot adjuvant therapy; many people which includes friends and families were probably more apt to be "pro-active" in terms of having some resdlution to the therapy that was offered. I made a personal choice and opted for none. Since I have been through the ringer on more than once occassion with cancer; I really did my homework on the treatment options; in my case chemotherapy with Ad and Cytoxan. The toxicity involved with both just did not appeal to me; since I knew that the side affects while not life-threatning could of course show up years later in some other secondary cancer. I was not a candidate for radiation either--or clinical trials.

    Ironically, with the new problems that have developed my oncologist said frankly it would not have made any difference if I had done the chemo. You sound as though you have thought out all the options and whatever you choose Lucky; just know my arms are around you.

    I wish I could of said I met you-but, I never made the get togethers. (smile) The holidays garner all sorts of emotions, I just want you to know that whatever you need from all of "us" here; feel free to reach out.

    As far as I am concerned; I am scheduled for a CT in January for the mass and nodules. Where that leads is anyone's guess, but thank you for asking.

    Remember, you have a friend.

    Lorie
  • gcpommom
    gcpommom Member Posts: 883
    edited December 2004
    Hello everyone! It's been awhile...whew, a crazy few weeks for me! I hope everyone is well. I am good, just really tired. Tonite was my last final for the semester...it was a really hard semester for me, too. I'm glad I decided to take only 3 classes after radiation..wasn't sure how I would feel. Turns out I was kind of tired still in the beginning of the semester, but the tired I am feeling now is simply from doing too much, staying up too late, and working too hard!

    So now I can start the christmas shopping. Yeah, I said start. Ugh. I really wish the school semester ended earlier so those of us with children had a bit more time before the holidays to get ready. Oh well.

    My daughter had surgery yesterday for her endo. The did a uterus suspension, too, although I'm not really sure how that will help her. We were hoping she would go home yesterday afternoon/evening, but her heart rate stayed between 120-140 beats per minute for over 12 hours, no one knew why. So they kept her overnight, which was just as well because then she started bleeding kinda heavy...she really freaked out about that...but she's doing somewhat better now. Poor kid. This was her 4th laparascopy, and she's only 18.

    I am glad to talk to you all again. I tried to pop in here and there over the last month, but knew I had to keep my butt on track and do my assignments first. I taught for five weeks in my son's class...that was the first time I actually taught entire lessons to a class...I was nervous, but I did ok.

    I've missed talking to you all. Hope we can get together again soon. I hope you all have a great holiday!

    Hugs
    Judy
  • Anna_Marie_Rogers
    Anna_Marie_Rogers Member Posts: 198
    edited December 2004

    Judy, I am so sorry about your daughter. I hope it all turns out well. It is far worse for your children to be sick than for yourself. Are you done with student teaching now? If so welcome to the teaching tribe. I love my profession, even if the public doesn't! Merry Christmas!

  • mamarama
    mamarama Member Posts: 3
    edited December 2004
    Greetings to all:
    I am new to this site, but am a 6 year survivor of breast cancer. Dx in 1998 (two days after my mother's funeral).
    Had a lumpectomy in Dec. 98 - margins not clear - masectomy and reconstruction done in Feb. 99, followed by 12 rounds of ATC, 29 rounds of radiation. Started tamoxifen in late 99 and about to go off it, but on to arimidex. I would have never thought six years ago, that I would be writing my story, but there is success in breast cancer and we are all proof. Treated at Harper Hospital and Karmanos, live in Clinton Township. Married 32 years, two adult children, 29 and 26, one getting married in 2005. Work for Clinton Township Government and hope to retire from here someday.
    Life is not fair, but we must all take what we get and make the best of it. Kudos to all the survivors, not only in Michigan, but all over; and kudos to our medical society, which is making breast cancer a treatable disease. Happy Holidays to all of you and hope for a happy, healthy, New Year.

    marge
  • Sphynx
    Sphynx Member Posts: 611
    edited December 2004
    Welcome Marge – 6 year mark is wonderful to hear.

    I see a few more Michigan women posting under the newbies topic. I haven’t responded to so many posts since I’ve been off for a while. I had a cold all through xmas but I’m better.

    Ann - I was going to reply to you a few times but couldn’t find the right words. It sounds like you are now doing good and I am so glad. It is ok to climb the crazy tree – we will help you back down.

    Jon – you have a wonderful son. Hope you are still doing well.

    Judy, hope you daughter is recovering and that this takes away her pain.

    LorieAnn – How are you doing? I hope you can meet us for our next get-together. I’m sending you all the best that you will get better.

    Pat – thank you for the kind words. My husband has many tests this week and then we play the waiting game again.

    This is why I don’t respond much – I don’t want to leave anyone out!!! It was just so nice to meet those of you I did and I hope to catch the others in the next meeting.

    Happy New Year!
  • Wlondon
    Wlondon Member Posts: 6
    edited December 2004
    Hi LorieAnne,



    I was dx with lobular breast cancer ten years after having ductal breast cancer in opposite breast. Was treated at Beaumont Royal Oak. Dr. Pettinga is my breast surgeon and Dr. Meininger is my plastic surgeon. They are both fabulous and caring doctors! I had bilateral mastectomies done on 11/2/04 with expanders. I am slowly expanding as I had radiation to the right breast 10 years ago. I am up to 330 cc's on both sides now. I had 12 weeks of taxotere and ended up with pleural effusions and CT scan showed small nodules in lungs. I am due for another CT this month or next. I pray that these are benign for us. Please let me know how you make out. Wendy
  • normalcani
    normalcani Member Posts: 230
    edited December 2004
    Wendy....Meininger is my plastic surgeon also....I think he's an awesome doctor...I'm being treated at Karmanos in Detroit....Have an appointment with rads onc today to start that process.....

    To all other Mich sisters....May you have a happy, healthy, comfortable New Year.....You are all in my thoughts and prayers for the New Year.....

    Hugs.....
    Candi
  • gcpommom
    gcpommom Member Posts: 883
    edited December 2004
    Hello everyone, hope all had a wonderful holiday. To all who asked, my daughter is doing ok,-- no real relief from pain yet, but she received a lovely 1/2 carat engagement ring for christmas! It will be a longggg engagement, she's only 18!!! But her boyfriend has been with her for almost 4 years, and helps her through her illness every day.

    Welcome Wendy and Marge to the MI board! Marge, it is wonderful that you are doing so well. Wendy, I hope everything turns out B9 for you!

    Anna- I still have 7 classes left before I student teach, but have been doing (and will be doing) lots of mini practicums in the classroom. I have a 45 hr. practicum for reading next semester.

    Lorie, Nancy, Chris, and everyone else: hope you are all doing well. Everyone have a wonderful new years.

    Hope to see you all soon!

    Hugs
    Judy
  • pconn03
    pconn03 Member Posts: 643
    edited December 2004
    I would like to join with Judy in wishing all of our Michigan sisters (and all the breastcancer.org sisters as well), the healthiest and happiest New Year ever.
    God bless,
    Pat
  • Wlondon
    Wlondon Member Posts: 6
    edited January 2005
    Hi Normalcani,

    I agree he is awesome! Just curious, are the expanders in now before you start the radiation? Glad your chemo is behind you! Wendy
  • Lorrie
    Lorrie Member Posts: 29
    edited January 2005
    Hi Wendy and Candi,
    My plastic surgeon is Busuito who is in with Meininger. Saw Dr. Meininger once when Dr. Busuito was out of town. They are both very good Drs. Wendy, my surgeon was also Dr. Pettinga, definatley one of the best! Lorraine
  • gmr52
    gmr52 Member Posts: 74
    edited January 2005
    Hi Michigan sisters,
    I also treated with Dr Petinga until she moved to the Troy facility. Meininger is my ps as well. Just had my expanders exchanged for implants on 12/8. It looks like quite a crowd treating with Meininger! I see him again on the 10th and may have to discuss possible revision.
  • nurse_mikki
    nurse_mikki Member Posts: 26
    edited January 2005
    Yoohoo! Anyone interested in meeting for lunch/dinner in January or February?

    Do any of these dates sound good to you? Jan 14,15,16,28,29 or 30th? Those are Fri-Sat-Sun dates.

    Any ideas of a region in which to meet?

    Let's get something started!

    Hugs, Michele

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