Roll Call November 2007
Comments
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Hello Dream,
Life does not seem very fair at these times and for sure can look "pretty not nice "when you have to feel like you have with all that is going on now.
My prayers for you are "good days"and feeling better.
Keep us posted--we are here just for that!!!
Sincerely
Linda C
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Good evening ladies. Hope all is well. Been resting up most of the day. Went to a Women's Conference on Friday night and all day Saturday. What a blessing it was. The theme of the conference was STAND. An on time word. For all that I and we have been through here we still manage to STAND for ourselves and for our generations. The praise and worship was awesome. There was women there of every race but we were all there for one purpose to get our minds renewed and our spirits rejouvenated. I left there refreshend and lightweighted. BC is not the only fight I am fighting but it helps to know that I have the tools now to fight and stand through all the enemy has to throw my way. I have the victory in Jesus.
Dream (Regina) I usually shy away from post like this because I really don't know how to deal with people talking about the end. I always think as long as theres life theres hope. And with you already planning your end is...sad to me...Maybe because I think of it could be me talking and thinking like this some day and it scares me. I try hard not to think about it especially not knowing much about this dreadful disease and what it can do to you. BC today and something else down the line. I just finished tx March 5th and don't go back for more testing until April. I wonder often what if I am not done. But I know it is not up to me. I put my life in Gods hands and gave him full control. Try hard to hold on to my faith that I am healed. And think I will deal with the end when the end comes. Whether it is today, next week, or 70 years from now. It is not over until it is over. Like Felicia says keep on keepin on...
Sharon I hope you are doing well. Taxol is not kickin your but like it did mine. I am still having numbness in my feet and some nerve twitches but other wise doing fine. Yeah I understand about your neighbor. When I came in from the conference my son had a friend spending the night with him. I came in fully dressed and with my wig on. But i went to my room pulled off the wig and breast prosthesis put on my night gown and went down stairs. This kid looked at me like what in the heck. I wasn't even thinking. I laughed so hard. My son is so sweet and always compliments me even when I am at my worst. Told his friend to quit checking out my mom. This boys face was so red (a teenage white kid). I am like a mommy to all of my kids friends and they know I have a good sense of humor and not offended by much.
Well I hope you all have a great week ahead and know that I will be praying and thinking about you all.
Sabrina
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Hello Everyone,
I have been away for a while , I want to say hey to all.
Felicia,
How was the luncheon? How is the family? How was your tournament? I hope all is well. I am so sorry I didn't get a chance to meet you . I hope next time I will.
Deborahann,
How are you? hope all is well.
Sharon,
How is chemo going? How are things with the new cardiologist? My periods came back too, I had Ooph. surgery .
Sabrina,
Yeah! chemo is all done, congrats...I had PCOS too...I was diagnosed in my 30's had to take gloucophage to get pregnant with my son. My hair thinned at top, hard to lose weight,periods erratic , I did not grow unwanted hair but most women I know with it did also. Metformin/gloucophage does help. My nails turned black with taxotere too..they are back to normal, wont last too long. Hang in there , I am praying for you.
Yogi,
How are you? How is your port? How are you doing with the chemo? How is your new house? Congrats! I hope you are having some good days so you can enjoy it.
Linda,
How are you? Happy belated Birthday, Hope you are feeling better.
Dawn,
How re you? how did form fitting go? Hope all is well.
Crystal,
How is your mom doing? Tomorrow you get the news about the chemo, I hope all is well. You and your mom are in my prayers.
Trumpet,
How is your port? How are you feeling?
Aurora,
Thank you for the prayers ...welcome!
Chantal,
How is the radiation going for you ? I am praying for you my brave young sister. I am so glad you are getting a chance to go home. I am even happier your test came back fine. Praying for you.
Dream,
You are a strong woman,God Bless you. I pray for your continued strength . You are an angel. You family and friends are blessed to have you.
Sorry so long......I am thinking about all my sisters here all the time.
Ferne.....Love you alot ...Praying for you and I wonder if we can send Ferne cards from us? Does anyone have her home address so they can PM anyone who wants to send our Dear Ferne a card?
Love you all.
Benita
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Benita, you are such a sweetheart! Sorry we didn't get to connect, but a good time was had by all at the BC luncheon in NYC. There are pics from it on the "Get Togethers" board.
Hope everyone else is doing well!
BTW, I do have Ferne's address. If you'd like to send her a card, pm me and I'll get it to you...
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Benita - Thanks for the note! My port is doing well now!! I had tx#2 yesterday and all went very smoothly! The Dr. may even reduce my Lovenox shot dosage next week from 2 twice a day to 1 twice a day; just about my entire lower belly is bruised from the shots
. I am really tired today, so will try to get some rest.
Just a side note: My daughter got her drivers permit and it is a bit nerve racking to say the least. But, I know God will be with her and bless her path!
My prayers are with you all!
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Hey Trumpet,
I am so sorry about the bruising...I hope you get good rest.
Congrats on the drivers permit for your daughter, you are right God will direct her path. I am praying for you ..stay strong.
Benita
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I admire your strength Dream.
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Hello Everyone,
Benita, I think you might be telepathic. I went for my fitting a couple of hours ago. It went very well. Yes, it took me 8 months to finally go, but the fitters were wonderful and I finally have bras that look right. Thank you for asking.
And everyone else, thank you for checking up on me even though I don't post often. I really appreciate it.
D
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Hey Ladies!!! I hope this post finds everyone feeling well and in good spirits!!! Just know that we are all truly blessed and that God has the power.
Well, it has been a week since my first treatment A/C. So far so good. I'm feeling pretty good but today my onc. said that my WBC was down so she gave me a prescription.
Sabrina and Sharon, we are on the same regimen. I have 3 more A/C to go then taxol (12) and herceptin (52) with rads. in between. Sharon, I'm sorry that adriamycin weakened your heart and I pray it will heal quickly so you can get through your treatment. Keep your head up, girl.
Sabrina, I don't blame you for not wanting rads. I sure wish I didn't have to...but you know how it goes. Do you have any advice about the Taxol?
Benita, my port is doing fine and it is not sore any more. We closed on the house Friday and should be moving in this weekend. I'm looking forward to it.
Ladies, I must admit, I come to the boards alot but I don't always post sometimes just reading your stories is uplifting. This disease can make you lonely sometimes and I am just grateful to be able to reach out to someone who understands how I'm feeling because sometimes its scary.
Just wanted you all to know that you are all blessings.
Yogi
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Hi Benita,
Thanks too for the note--I feel so much better.
Today was my treatment day-- I go and get Navelbine every Tues A.M. It is not bad---Butt--and Butt stinks (lol) but I am still kickin and that is what counts with all of this.
I am always glad to hear from you and whoever writes--it makes me "Smile". Some days I do not get to the computer and other days I check the site often and just reading what folks have to say helps me along the way too.
Take care.
Linda C
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Hi Yogi
Here is my 2 cents about Taxol--I had it in 1999. 4 treatments of Taxol after 4 treatments of Adramyacin and Cytoxin.
I recall they gave me Anti-Nausea meds, and a form of Cortisone, and Pepcid all in my IV with the Taxol. I took a Compazine pill as "soon as I got home" and 1 every 6 Hrs. for 2 days--I did not want to think of being nauseated and this med can do that. My nurse told me to do this, and it really did help. This Chemo made my bones (seems like in my knees) achey after about the 3rd day when all the other IV meds wore off, it felt like I had the Flu, I took Motrin 800 mg maybe twice a day and was OK. i was 52 at the time--I think sometimes age plays a factor in how we respond to the meds. I was blessed to take 4 days off and was back to work and worked an 8 hr. shift at a hospital--as they say "my soul looks back and wonders how I got over" WHEEEE!!!! At 61 years of age, I think now, what was I thinking--but I felt if I got up and got dressed and could go to work, and was dealing with people, I would not have time to think of what was going on with me--it was scary--and it worked. Yep--very tired, but I felt I had a better attitude about life doing like I did.
That was my experience from Taxol, at that time. I realize after those many years, some of the Pre-meds may have changed and no telling what else, but I always figure for the better, with all the new technology. (Ya get to hear some History of what it was back then (lol) It is interesting to me to hear what the ladies write and what they are now doing, as for as the "Procedures now" versus then.
Hang in there!!! Keep us posted on how you are doing.
Linda C.
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Hey all, hope every one is doing fine. Still filling some se's from last chemo but other wise doing pretty good. Start physical therepy on left arm next week.
Yogi- taxol sucked. I had one episode with a/c but I really think it was from the nuelasta shot. I ended up in the emergency room with bad chest pain and muscle pain. Didn't know that was the se's. Scared the heck out of me. Now Taxol. Came down on me like a ton of bricks. Muscle aches, bone aches. Numbness in feet. Put me down for about a week or so after tx. Still felling se's. My dr told me since I handled the first round of chemo so well Taxol should be a piece of cake...NOTTTTTTTTT. But as they say everyone is different. I have talked to people that say it didn't bother them at all. Hopefully you will be the lucky one.
Went to my first bc support group the other day. Had a blast. I was the only AA there with a group of women all over the age of 57. Most of them were atleast 5-10 years cancer free only one other just finished rad in Nov. One lady graciously offered to knit me a chemo hat. And they asked me to be on there team for the Relay for Life bc fundraising event. I had already signed up to be a volunteer to help with the event. And it is being held right down the street from my house. It is an 12 hour event 6 in the evening til 6 the next morning. Starting off with a survivor dinner the night before. Then the first lap is the survivor lap. I have been twice before just as a spectator. It is a very emotional event.
Hey Linda glad you are doing well...I hope you done washed your butt by now...by the way have you noticed that your bm(poopy) really smells horrible when doing chemo. I know (TMI). but has anyone noticed that but me. Never smelt anything like it...lollllll
I know I don't have any sense...but gotta love me...
Trumpet...I feel you on the drivers permit. My daughter just got hers and she is driving me crazy. I told her I was going through to much stress with this bc thing to be worried about her driving me around any where. Her dad lets her drive. I just can't do it. My nerves are too bad for that.
Well I hope you all have a blessed day. Continue to pray for one anothers strength and wellness.
Be blessed
Sabrina
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Hi Sabrina,
Thanks---everyday is a Blessed day!!!
Yes , I love you!!! You made me laugh when I read that!!!
The smell of Chemo ??!!!! Yep it smells in" more ways than one " (poop)
I swear I smelled that stuff-- I thought in my skin months later--no one else seem to could though. (Not the poop)lol--Chemo!!!
Hang in there---stay Blessed!!!
Linda C
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Hey Linda and Sabrina,
Thanks for your input about the Taxol. Sabrina, I'm sorry about your reactions but I am glad you made it through. You know what they say that which doesn't kill you makes you stronger. My mom is trying to get a team together for Relay For Life our is May (Oxford, Alabama). I've never been so this year will be my first. We have a breast cancer support group here also called Steel Magnolias. And I was also the only AA woman and the youngest but those ladies are great. We are having a bake this Saturday at the mall and I can't wait. It has been on my mind to try and gather all the AA women I know who have battled and are battling this and start a support group. I just recently found out that a girl I grew up with (but not close to) had breast cancer and I think we need to support one another. I also know two others who had it years ago and are doing good now. So I am hoping we can do thisbecause I'm sure there are others.
Linda, I have enjoyed reading your post you are a spunky lady. I especially liked the phrase "it'll have to catch me running." My sentiments exactly.
Felicia, Benita, Sharon, Chantal, and every one else, How are ya'll doin? The sun is still shining and I'm gonna go walk my dog and enjoy it.
Miracles and blessings Ladies.
Yogi
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Hi Ladies,
Its great to meet you all. I will pray we all have a speedy recovery.
Ro
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Hi Ro,
Welcome.
D in NJ -
Hello Everyone,
For those who not familiar with my moms dx. Mom was dx in December 2005 with stage 4 bc ibc with mets to liver and in April 2007 mets to bone. We have no family history and before this mom was the picture of health no major health problems. She is also er-,pr- and her2+++
Well I wanted to update everyone on my mom. We went to onc on Wednesday and blood work shows that the xeloda is not working
. So she will have to be put on yet another chemo.
The onc is putting her on carboplatin every three weeks in addition to her zometa infusions and she will continue to take the tykerb also. She will start the new chemo Monday March 24. Mom didnt take the news to well, she feels like we are going through the different chemos to quickly and that we will run out of options soon. Her liver enzymes are up also.
Is there anyone here who has been on this chemo. I welcome any information you can give on it. I have done some research on it and it says she will loose her hair (this will be the 3rd time
).
I truley hate this disease! I know it is going to take my mom away from me much sooner that she needs to be taken. She is 55 and still has so much more to offer to the world. It seems like we keep getting nothing but bad news. Oh also she had scans yesterday so we will find out the results next week on those.
Im sorry to ramble on but I am so down right now. I just want to cry.
Hugs
Crystal
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hi Crystal,
I just wanted to give you a hug -- this must be so hard on you, and I know you're taking such good care of your mother. I think all us women are at least as concerned with BC's effects on our families/loved ones as we are with our own health -- what you are feeling about your mom bears that out.
Hugs
Ann
(not AA roll-call member, but friend
)
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Ann,
Thank you so much for your comforting words. The last 2 1/2 years has been very hard for me to see my mother going through this. I am thankful that she only lives 5 minutes from me and I see her all the time. I just hate she has to go through this and for that matter anyone having to go through this terrible disease.
Thank you so much!
Hugs
Crystal
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Hi ladies...I hope everyone is well and are in high spirits this Easter weekend. I had #3 taxol today. I had a lot of gas today after tx this time. Sorry TMI. No se's so far. My prayers are being answered!
Crystal-I know your mom really appreciates you taking care of her. My mom flew to help me after my surgery and I wished she could have stayed. I don't have any family here so she coming to help me out really was a blessing. I believe in prayer and will include your mom in my daily prayers.
Yogi-I hated A/C. I couldn't watch them inject the red dye. The chemo smell...augh! I had to hold my breath everytime I went to the bathroom or I would puke all over the place. Other than the headaches I did ok. To me taxol is a breeze so far! Now I all I have to do is start power walking to lose some of this belly fat.
Sabrina-Girl, at least you were able to put it out there. I'm following you. How are your nails? Have you had any swelling in your arm? My arm hand swells a little from time to time. Nothing major though.
To all my sistas who I didn't get to mention, I hope you are doing well and have a blessed weekend.
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Hi Crystal,
This must be so hard for you and I will keep you and your Mom in my prayers for "given strength" at this time.
It is OK to CRY--it is a "safety valve" and cleansing at times too--just for you. Believe me, I have cried for myself and for my families that have gone through this with me--it is Ok.
I know your Mom probably does think that they are getting her off the meds too soon, sometimes the side effects can wear you down and they don't see that the med is helping, so I have had the Dr. take me off before treatment time was up. Seems like in my 9 years I have been on and off quite a few Chemos, and Radiation 2 times, and for a time some have worked and other times not---No one wants to hear this either---Then I say, OK what else ya got---if it keeps me here a lil longer--I"ll try it!!! No I did not like loosing my hair and that has been 3 times too and I hate them wigs---they look cute on everyone else and this came from the trauma of me ever having to wear one in 1999. I just took my wig off today and got a cute very close haircut--I got a fat round head so I can wear the cut---the wig makes me feel like I am sick. So here I am rambling on and on---I hope for Mom she will see the meds as another "step "and it may take "some steps" to get where one will work and "No, we don't have to like it, and have every reason to feel what we feel--I am with ya all the way on that!!!
I just finished Taxotere last June--it did not work--so I am doing Tykerb and Navelbine, so far so good and with this illness this can be the way it goes---A Journey--that is no Lie--many twists and turns!!!
Take care of you too in this matter---hang in there and post often so we can give you all the feedback we know and feel.
Ok--I know this is long--but this is like a phone call to Crystal and her Mom and I gotta tell them these things, and as ya see, I like to talk to anyone who wil listen
.
Stay Blessed Everyone!!!
Linda C
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Crystal, Hugs to you and your mom. My mother went through similar in '92. I'm not sure what chemo she was on as I was living a few states away at the time, but her progression was much much faster. By the time the spreads to the lung and brain were caught, they only did rads. She was only 49, so I hear you about this beast taking her away too soon...
But, stay encouraged. Chemo is so different from what it was even five years ago. There are so many options and combos available. You both have to keep on keepin' on. Easy to say and hard to do, I know, but the journey of 1,000 miles starts with the first step and continues because you keep on stepping....
Sabrina, Linda, Yogi, D, Ro, Sharon and my state-mate Ann (welcome, btw
), continued blessings to you and yours...
Trumpet and Benita, how's it going?
Happy Resurrection Sunday, all!
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Hi everyone!
Crystal - Praying for you and your Mom!
Felicia - I am hanging in there. Tx2 has me spent - tired as all get out. Getting some numbness in my feet. The white tongue is back with a vengeance as well - I love to eat and I am missing my chocolate something awful! But, God is good!!
Have a Blessed weekend!
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Hello Everyone,
Hugs to you Crystal.
Felicia, I lost my Mom at 49 also (brain mets).
Sharon I wish you the best with your treatment.
D
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Hello Ladies,
I am so tired of bad news. When I took mom for the new chemo yesterday her scans were back and there is more progression in the liver. They said the lesions she had had grown and that there were multiple new lesions.
They gave her the carboplatin and in addition gave her avastin also. She also gets zometa for the bone mets which seem to be stable. We had to go back to onc today for her to get a shot to boost her white blood cell count.
I have been so sick and upset about all of this since yesterday. I cant even eat much. I am worried sick about her.
Thanks for listening to me!
Crystal
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Crystal, hang in there, my friend. You have to eat even a little something or you will be on a motorized bed in somebody's hospital really soon. I'm feeling your worry, but you've gotta keep up your strength, too.
We're right here holding your hand, my friend...
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Hi Crystal,
Prayers still "UP AND OUT" for you and Mom!!
Hang tough--yep you gotta eat---feed the brain so it can think!!!
Linda C
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Hi Felicia
How are you doing?
I read where someone else wrote--"you are here and always asking about everyone else" and it is so great!!!
I hope all is well for you too. Just wanted to give a personal "Shout Out" to you and wish you the best.
Linda C
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Aww, Linda, you are sweet. Just checking up on my girls! This can be such a lonely and difficult road we're traveling. It helps so much to know you're not traveling by yourself, y'know?
Hoping you are well!
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Crystal - How is everything going? Hope your appetite is better and prayers are up for your Mom.
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