Jan 2008--Ain't it Great?

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  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Oops, missed my shout out to ...

    Kris and Kimberly who will be bellying up tomorrow for their cocktail of choice (not).  Here's to an uneventful txt, hoping you'll both be adorning your FUBC T's (and cape) with attitude.

    Jenn, I will be sending the positive mojo vibes your way with your test results. 

    I loved your dachshund story, (we have two of the little buggers) who are best of buds!!!

    I did have to crack up at you calling your mom a grouchy old prude.

    Some just don't get the sense of humor or what I would call the reality of the whole thing!

    Cathy, looks like your well on your way to 100.  It has had to be an awesome experience thus far.  You go girl!!!

    Tina, wow, I havn't even been on the 101 since I was a kid.  Too cool to hear of your adventure in the northwest, my small town is just about 20 minutes from Bremerton and on the water as well.  I take the Whidbey ferry quite often for work.  Time for another trip ???

    Sorry your butt was dragging yesterday, sounds like your doing a little better today.  The cumulative part of this is a no sh*tter!   

    Okay, so I didn't make it to the reclincer, should start some dinner,

    Night All, Carol

  • Determined1
    Determined1 Member Posts: 806
    edited March 2008

    Oh for God's sake, Carol, get in the recliner!  Loved the pic.  How old is the ds?  He has like, 15, written all over his face.  Must be fun to have a boy (but you probably don't get your nails done together :) ).

    Yep, another empirical study, and there already seems to be a link between le and coldness/numbness of the hand!  We need to be more aggressive about educating our docs!  Keep up with your therapy, we'll warm those extremities up eventually!  (Maybe by July?)

    I've started something new with my legu.  I'm doing kinesio taping.  It's this weird tape that has stretchiness to it that is supposed to slightly "lift" my skin so it stimulates the lymph cells underneath.  The tape is arranged on my skin like a river.  The mouth of the river is where we want the lymph to go (near new/alternative lymph nodes) and the fingers of tape coming out of the river's mouth represent the rivers themselves.  They end at the point where my fluid builds up.  The thinking is that the tape will stimulate the lymph glands just under my skin to move my fluid from the buildup point along the "rivers" to the "mouth" to be dumped into functioning lymph nodes.  I got the tape on Thursday and my legu already noticed that some of my swelling had gone down (she's not completely crazy--I noted it was easier to put my arm down, so it must be true).  This, combined with compression (I'm not liking that much) seems to be getting the swelling on my torso under control.  We have my arm at an okay point, so now we need to get my shoulder blade, and the worst of it, my pit area under control.  She's having a compression garment fitter come in one day this week to talk to me about those (sounds medieval to me).  I'm also continuing with massage and the taping.  You can find out more about the taping at http://www.lymphnotes.com/article.php/id/215/.

    Always sumthin'.

    How did I find my lump?  I had a mammo in Dec. 06 and received the "all clean" letter in the mail about the 2nd week of Jan. 07.  Days later I notice a lump when doing a self breast exam.  (Okay, maybe I overstate.  About every 4-5 months I would try to remember to feel myself up when watching tv--I'd always heard it was important to be in the same position!  Just happened to be conducting my not-so-routine routine and noticed something new.)  Since I'd just gotten the all clear from the professionals, I waited till my next scheduled gyn exam in May to ask someone about it.  He didn't like it and sent me to my first surgeon.  Surgeon didn't like it, either, so did a needle biopsy.  That came back benign.  Surgeon still didn't like it, so suggested we remove it.  Since it was "benign," we didn't worry and I celebrated my kid's high school graduation, went on family vaca, etc.  Finally did the surgery in mid-August.  Oh-oh, here starts the serious part of the journey...

    Jenn, I know the waiting is hard.  But please know fingers are crossed for you.  Let us know.

    D1

  • joteach
    joteach Member Posts: 116
    edited March 2008

    Good evening, Jewels,

    Paula - I just read about the students tribute. That's so great! I got teary eyed just like D1. Congrats and we all know you deserved it!

    Kathy L - my bday is May 9. Thanks for sharing that story. It was wonderful and I was so moved - I loved it!

    Kimberly - Thanks for the invite!

    Jenn - I'll be 57 in May so we were born the same year! The dog story was fantastic. I am an avid dog lover. I just lost my dog

    right after I was diagnosed. I still miss him every day. He was 16 and had a great life.  Keep ositive about the heart scan. I'm sure its nothing.

    Carol - loved the birthday pic. What a beautiful family!

    I also keep a daily journal of my bc journey. Here is my story:

    October 18 -had my yearly mammo and u/s. (I have the u/s because they always have found benign cysts). But this time I had to go in for a biopsy (November 8). I got the news November 9 that I had invasive ductal carcinoma and the tumor was 1.5.cm - it was a Friday evening at about 5:00) Some weekend (: 

    I had an MRI on November 30 (all clear) and had a partial mastectomy on December 13. My nodes were clear and I had clean margins. The second path report said the tumor was 2.5 cm and grade 3 so its chemo, rads, and arimidex or femara for me.

    Joan

  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    My story:  I was getting ready to enroll in Nursing school so I needed to get a Physical and I noticed there was a slight lump under my armpit.  This was in August, I was referred for a CT scan to which my Dr forgot to request it, and then once recieved my HMO rejected it and finally was approved in October (two months later after being forgotten and denied) they approved for a Mammogram that came back abnormal; next did a biopsy and found Cancer in lymph nodes, Breast and Liver.  Through that I gained strength, love, compassion, friends and faith - so to me it evens out! Innocent

     Tomorrow is Chemo - and going forward I will have chemo on every Friday!  I am getting closer and closer to being Cancer free!  I pray that I continue to have a good time with this 7 days - 1 chemo - 1 day bone pain and being drained  - 1 day of warmth and itching = 4 days of Blessings left for me -  Not to bad! 

    Well I have off to bed,  Still working out and walking.  I know the next 2 to 3 days is my bodys and I shall listen to my body.

    I remember I was complaining because I was the only one left to do Chemo and here I opened my big mouth being that I am on this weekly rate/chemo,  I am going to pass you up quickly  - he ha ! THIS SHOULD TEACH YOU ALL THIS LESSON NEVER COMPLAIN, AND BECAREFUL FOR WHAT YOU ASK FOR.  Ha ha he he ha he Smile

    Good night I have to go pack my healthy snacks for tomorrow - Yippee!  Did  I tell you I love to eat healthy too - ha he.

    Have a Good night,

    Love Dana 

  • KathyL
    KathyL Member Posts: 534
    edited March 2008

    Wow!  This is gonna be long.  I have some catching up to do on reading posts.  Yesty night was great.  dd and dh looked good and dd felt like a prima ballerina for the night complete with the flowers.  Her hair turned out awesome--tho' she had to announce to everyone that I had no hair, and was wearing a wig.  Hope to get the pics up in the next week or so.  Too cute to describe all these little girls dancing with their daddies!  ds had to get in on the action and he was up on the stage running around and twirling between dances.  Little monster boy!  Today I have 2 gfs visiting (and bringing more food--no wonder I've gained weight).  Will just be relaxing.  dh has a long week at work, so I'm holding down the fort.

    Julie:  Happy to hear you are doing well so far this round. Got my fingers and toes crossed for you...  you so deserve a break for once!

    D1:  Thanks for the nail update.  Mine are doing the exact same thing (sensation and purplish color) and at the exact same timing (one week after #3)-weird!  I guess all my good nail care was useless-well, maybe not if it saves them from falling off.  They are nice and hard from all the TTO and strengthener.

    Ears piercing--  Mine aren't crusty, but I did notice the piercing got sore/sensitive after this last round, and the lobe was red for a few days; only on my left.  I thought it was infected, or starting, but then it just went away and I didn't do anything to make it better.  I've always only been able to wear gold in my ears (was a pain as a teen b/c I couldn't wear all the cheap stuff), so I've had my hoops in the whole time.  My second piercing in each ear did not seem affected by all this.

    Cathy-CA:  What a cool goal!  I'd just love to see more than the states on my coast... gotta conquer my fear of flying first I guess.  And I'm married to a guy that used to be a pilot-go figure!

    Tinalee:  Better living through chemistry!  Hope you're feeling better today.  I put my little bottle of Zofran out on the counter with all the other drugs each round, just in case.  I almost used one this last round and won't hesitate if it hits me next time.

    Yeah, the horse story made me stop and think about some nasty people in my life, too (still don't like them though, but at least I thought for a minute Wink ).

    Jenn51: I've never heard of shadows on MUGAs either. Did the tech say how big it was?  MUGAs really just look at dye flow through the heart for cardiac function.  This shadow sounds like something else that just turned up incidentally (not something they'd be looking for).  Some thoughts: the only things between the pancreas and left ventricle are the stomach, spleen, lung, and diaphragm.  Unless you have a hiatal hernia and the intestine has shoved up there (any GI symptoms?  I know that's hard with chemo... but anything out of the ordinary recently?).  It's also possible that your spleen could be enlarged-this can happen with chemo and/or neulasta.  It would feel kinda tender in that area (but don't push on it! You'd know if it was tender without touching it).  Normally you can't feel a spleen, but when it enlarges (usually in our case with chemo from work overload trying to filter out dead cells) it is palpable.  (It can also enlarge with mono --this is when I've see it mostly).  Any of those organs can look like shadows depending on their status at a given time.  Remember this was just a tech pointing this out.  Keep us posted.  Try not to worry, I'll bet it's not what you're thinking about as no one mentioned it the last time it was there.

    Also, just curious b/c it's a question I have for my onc-what was the timeframe between your first MUGA and this one?, and was this just a routine re-check or did you have symptoms? Thanks.

    Got your b-day down.  Don't worry about being the oldest-think of it as "most life experienced" or "wisest"; sounds better.  I think I may be the youngest so far; I beat Dana by 9 months or so.  Not a title I want to hold as it doesn't necessarily bode well for the future.  I try not to think about it too much.  I know I'll celebrate 40, 50, 60 and beyond like no one else!  Anyway-you're only as old as you act-remember that one, too.

    Carol:  Great pic.  You look awesome-and so much hair (jealous)!  My pics will be posted later (weekend probably).  Sounds like you had a great day with good tears (OK, minus the butt issues).  Glad you're liking Wendi's book.  She was amazing.

    My story:  no fam. Hx, never had a mammo (I was only 36 when dx last year).  Weaned ds in June after 20 mos. of BF, and thought, being the good nurse I am, that I should start doing my monthly exams again (I didn't do them while nursing b/c everything was lumpy!).  Felt a thickening in July, thought nothing of it-wasn't even sure I felt it really.  My friend was dx in July with DCIS, so in her honor did a really good exam August 4 and found a lump.  Thought it was a plugged milk duct (I got them a lot during BF both kids... hmmm, I always wonder in hindsight if that was a sign of the ducts' problems).  Had mammo and u/s  Aug. 7 which did not show anything but a teeny area of microcalcifications (did not see the lump, tho' we all could feel it).  Had biopsy Aug. 15= DCIS dx (got these results the day before leaving for our family vacation, was a mess b/c my "odds" of it being nothing were like 80-90%; reminds me to never gamble!).  Had lumpectomy Aug. 30 =DCIS + IDC.  Had mastectomy/reconstruction with expander, and augmentation on opposite side Oct. 5 b/c "dirty" margins had DCIS still and I was small breasted.  Wasn't going to do chemo b/c of small IDC size (4mm), but had second opinion at UPenn.  They did a new dye study and decided I should do chemo b/c IDC was now found to be multifocal, largest area 4mm, but many 1-2mm IDC spots seen in the DCIS areas.  I'll get yearly digital mammos on the opposite side (none on the reconstructed side), and the UPenn onc rec. MRI yearly for 5 years, so I'll be pushing for that.  I know I'll definitely be getting one at my year anniv. for sure.  Yes, Dana's right: be careful what you wish for!  I always wished for bigger boobs-I got ‘em now, just not how I would've preferred to get them.

    Have a good day Jewels!  Thinking of Kim, Kris60, and Dana as they get their chemo-tinins!

  • chj127
    chj127 Member Posts: 382
    edited March 2008

    Good morning, everyone!  I'm on tx Day 6 and back in the office.  I'm happy to be among people and feeling pretty good, except that I didn't sleep well last night, and I'm treating that with a diet Coke...

    Carol - you are so cute!!  And so are your kids. 

    Jenn51 - we'll pray for the best for you!!  Hopefully you are worrying for nothing.  And you are still a spring chicken.  I'm not that far behind, at 53.

    I also have had some sore ear problems.  Funny, it's the little things.  This is a sort of big deal for me, though, because I don't normally wear funky earrings (I'm a conservative type) but with the no-hair going on and wearing hats, I'm breaking out my chunkier earrings, some of which I saved from my first bout with BC.  But some of them have thicker wires or stems, and they are sore.  So it's not just me, huh?

    Joan - I'm sorry about your dog and the timing.  That must have been so hard.  The critters are just amazing when they sense how we feel.  And Joan - wow, our dates are so similar:

    My first bout with BC in 1994 was found as a lump and we went from there.  This time, it was found on my routine mammogram October 19 (other side).  Moved from the suspicious spot on the mammogram to the ultrasound, to the biopsy and the rest is history.  Lumpectomy was on December 13.


    Have a great day everyone!!

    CHJ

  • SISKimberly
    SISKimberly Member Posts: 762
    edited March 2008

    Good Monring Jewels,
    I have a lot to read when I get home.  I don’t have a lot of time this morning, so a quick note before I’m off to the chemotini lounge. See you there Kris and Dana.

    I’m thinking after last nights bout with power surges, my image of wrapping up in a blanket to hibernate rather than my being enveloped by fog image is sounding a little too toasty warm for me.  Between Decadron and nuclear meltdowns, I slept fitfully to say the least until after 4:30 am when I was able to sleep for a full two and a half hours without waking, which is why I’m running a little late.  My older sister is meeting me in 20 minutes or so for breakfast before we head out to the lounge.

    I’ll check back in later this afternoon after lunch and a visit to the ds. The older sis hasn’t seen his new digs.

    I’ve got my Supergirl cape, FUBC tshirt, Check Your Boobies hat, and chemotini glass in hand.  Up and Up and away…I hope Superman doesn’t mind me borrowing that line for today.

    SIS Kimberly

    PS Got the PM Kathy...I'll respond when I get home OK?   

  • deb102307
    deb102307 Member Posts: 248
    edited March 2008

    Ok, my story....

    After 2 years of having mammo every 6 months due to "shadow" was told in Jan 2007 that all was good and could go back to once a year.  Had clinical exam in May, all good.  Had clinical in Aug, all good.  Watching TV in Oct and wondering why left side a little sore, felt lump, next day it bruised (didn't last long).  No recall of trauma.  Made appt with primary care, they got me right in and put in for surgery consult.  Got a call 2 days later to go for mammo that afternoon.  Right after mammo went to Ultrasound.  5 days later, biopsy.  Met with surgeon less that one week later and results weren't back so surgeon started calling around and got the results.  Tumor.  Scheduled surgery for week later.  2 days before surgery, Mammo Dr asked my surgeon that if she could get me in for MRI that day, would it be ok.  They called me and I had MRI.  Suspicious findings on right side too so I said take them both as I am not going to spend rest of life worrying about it.  No recontruction, maybe later just to even things out some.

    No family history except maternal grandmother and she did not die from that (car wreck).  History of thyroid and autoimmune problems is all I had.

  • Wing
    Wing Member Posts: 34
    edited March 2008

    Hello Jewels,

    Let me begin by saying FUBC & FUSE's !!!!!!!!

    Haven't put down any words in a couple of weeks but I've been lurking.  Its funny since my last tx #3 A/C, (the hardest so far) I think I experienced all the se's all of you had, first totaly exhausted, nausea, emotional wreck, along with a bout of feeling sorry for myself, which really S&^%S!  Up to now I was feeling guilty that a lot of you were really feeling physically and emotionally yucky and although I was having mild se's that they didn't compare.  I felt I had nothing to say since I was doing OK.  Anyway I missed so much it is impossible to shout out this time, so sorry.  I'm still catching up.

    Anyone having chemotimi's today best wishes!

    I am going Wed for tx#4 of A/C last one!  Welcome to anyone coming with me!  Onward to Taxol for 12 straight weeks.  Waiting to hear about the se's from those of you starting this week I hope there not as bad.

  • texrn
    texrn Member Posts: 99
    edited March 2008

    OK, my story....

    First off, only family hx is a maternal first cousin who was diagnosed 2 1/2 - 3 yrs ago...& is doing great!

    Have always been pretty diligent about annual mammograms, & clinical exams, but was only occasionally diligent w/ my SBE's - 6-7 months out of the year. I found the lump in the shower while doing my SBE ( Sept 13 )- it was late at night, dh was out of town, & all the kids were in bed - I admit it was the only time throughout this whole ordeal that I panicked. I called my dh, woke him up, told him....& instantly felt better! Saw my gyn the next day - he said he thought it felt like a cyst, told me to wait a monthly cycle, then go to the breast radiology center to have an US & possible biopsy. Instinctively, I knew it was bc, but I waited anyway. Had a digital mammo, US, & biopsy on Oct.15 - radiologist told me that day she felt very strongly it was bc. I wasn't surprised, as I had spent the last month studying mammo, & US images on the computer to help me visually differentiate between a cyst, mass, etc. - only because I don't like surprises. Got the call on Oct.18 - IDC on the right. Saw the bc surgeon & the ps the following week. The week after that I had an MRI of both breasts & an MRI of the brain ( I had been dealing with a month long headache as well ). MRI showed nothing new on the right & nothing at all on the left ( brain MRI - negative ). Because I am an "all or nothing" type person who tends to worry a lot, I made the very personal decision to have a bilat. mastectomy ( Nov.13 ). I also chose to have immediate reconstruction w/ expanders bilaterally...with absolutely no regrets.

    I can totally relate to the old adage 'be careful what you wish for' -

    the 18 months prior to my diagnosis I had joined Weight Watchers,  lost 40lbs., then with the help of a trainer started working out 5 days/week. I was in the best shape I had been in, in a long time - but kind of sad with the toll the weight loss, breast feeding 3 kids, age, etc., had taken on my breasts. I was starting to consider a reduction &/or lift ( I was a DD ) - so believe me, from now on I am definitely going to be careful with what I wish for...

    As far as my bout w/ se's from this last(#4) tx - GI wise, I just have some residual numb taste buds, & occasional heart burn. It's the fatigue that's hit me much harder this time. I am so, completely, mentally & physically exhausted, that even though I feel excited about being done...if you look at me, you can't tell - I'm in total spaced out mode most of the time ( that is, in between naps). So far, my nails have survived, but I'm still losing some hair, & eyebrows & eyelashes are really thinning. My skin is pale & washed out - so, all in all, I look pretty horrific....but I'm too tired to care right now.

    My thoughts & prayers are with all of you,

    Therese

  • texrn
    texrn Member Posts: 99
    edited March 2008

    p.s. My birthday is 10-3-61

  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Day two of Chemo.  It wasnt so bad this time; hoping and praying that it stays this way. 

    Have a blessed day - Ladies!

    God bless,

    Dana 

  • Determined1
    Determined1 Member Posts: 806
    edited March 2008

    Hey Jewels--thinking of SIS Kimberly, Kris and Dana in the lounge.  Hope it all went well.

    Therese--I loved your comment about being too tired to care.  That's EXACTLY how I feel!  Today was a little better, so I'm hoping I'm turning a corner, but boy, I'm going along and then, BAM! I'm so fried I can't think or move.  We'll get there.

    Hey Wendy, good to hear from you.  Hope tomorrow goes well.  Last one!!!

    Can't wait to see pics from the dance, KathyL.  Sounds like you had a sweet time--even with the dd telling everyone you were wearing a wig.

    Interesting to hear others are having trouble with their ear piercings.  I wasn't sure if it was something related to chemo or not (altho I blame everything on chemo these days).  Hopefully, it will clear up soon.

    I'm off to my dd's winter sports awards night.  Since she didn't play much this season, we're not expecting any athletic awards.  She will, however, receive an award from the state for maintaining above a 3.5 GPA during the season (they should give her a special award for maintaining a 4.3 during the season--thanks to AP classes).  It'll be a little boring to sit through, but only this one and next year and then I'm done with that!

    Cheers to Carol, Judy, Joan and Wendy tomorrow!!  Fly safely, SHEROES!!!  FUBC!

    I'm off.

    D1

  • Jenn51
    Jenn51 Member Posts: 94
    edited March 2008

    Good Evening Jewels,

    For once I can say that my day was full of sunshine & almost warm. Just being able to crack the sunroof a bit & feel the sun on my face does wonders for a person's spirit. And it's supposed to stay like this for several days.

    Hey Carol, great pics! Good looking kids with a Jewel in the center. Don't those home-made cards really get to you? It sounds like you had a b-day worthy of a Jewel. I know what you mean by the weepies. There will be a couple of days that I will cry at the drop of a hat. Like really bad PMS. Augh! I thought I was done with all of that when they yanked my stuff out.

    I keep intending to start a journal. I'll have to back date a good part of it but like you I have a calendar with everything important on it.

    For the record I went in for yearly mammo. They found micro-calcifications & called me back for a diagnostic mammo. That confirmed the m-c & I was told to make an appt. with the surgeon. I had the same thing about 5 years ago, they were benign so I wasn't really worried. The surgeon did a stereo-tactic biopsy & I didn't think another thing about it. (More on this feeling later). So when he called me at home a few days later, he, the actual Dr., my knees went out from under me. He said the biopsy didn't show what we wanted & could I come in the next day at noon. I gathered my dh & my bf & off we went. Lumpectomy 1 week later & you know the rest of the story.

    One very ironic thing....I was about 6 weeks late with my gyno appt. Usually have the m-gram the same day, but this time they couldn't get me in. Said I could come in the next week, but no I was going to be cruising the Caribbean with the gfs. Ended up being about 3-4 weeks before I had the appt. Now I've been told these m-c were really tiny, but very fast growing. IF I had gone in on time would they have shown up? I don't think so. And if they were growing that fast I know I would have been in serious trouble before my next annual. I believe this is one of my own personal miracles, that more than fate had a hand in my timing.

    I'm not sure what my future m-gram schedule will be. They told me that I would never have just a screening mamo, that I would always go to the diagnostic center. And some one said something about every 3 months for the 1st year, then every 6 mos. My bf is 16 yrs out & she is only going 1 time a year now. That's on my question list.

    So you had dachshunds too. Are they the cutest things. Our 1st one came to me from Santa! Probably one of the last years I really believed, but that year nothing could have changed my mind. We have cocker spaniels now. A black one & a golden one. Clowns!

    Cathy, Thanks for the encouraging words. My onc's nurse called today with MUGA results. The test itself was great. And she said there was no note about a shadow. I'm going to hope everything is OK, but talk to my onc face to face on the 20th.  This guy seemed so certan that something wasn't right.

    Joan, I'm so sorry to hear about your dog. And right now when you could use all of the love they give. Do you have any pets to pamper you? I swear my guys know ‘something' is wrong. I'm getting so much more quiet love from them lately. It's good to know someone else is in my age bracket.

    OK, KathyL, I won't push on it again. I have to admit I have in the last few days to see if I could feel what he saw. I really don't understand because 1 of his ?? was did I have implants. And then the next was did I have part of my lung removed. Was he seeing something missing or something extra. Gonna put it out of my mind until the 20th. But thank you for the help. This MUGA was early because I told the onc that I was out of breath so much of the time. That's another ?? for him, if the MUGA is fine, why am I out of breath?

    I've also heard that you are only as old as you feel. If that's the case I must be 100 lately.

    Well, I better sign off for now. Tomorrow is my 1st real pt session. I'll let you know how it goes.

    I'm thinking positive thoughts for all of us to have a good day tomorrow. One day at a time, that's all we can do.

    Hugs to you all.

  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Ladies with the ear problems, yes you notice so pain with the ear and the crusty piercing - put neosporin on the earings post before you put them into your ear especially if they are not gold or real sterling silver but I use it at least every two days or so  - yes, it is an SE from Mr. Chemo - isnt he a pain in the ass - but we always have something to get rid of him!  He ha.  Let me know if that works for you because it works WONDERS for me!

    Muah!!!!!!!!

    dana 

  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Carol I totally forgot to mention your kids are CUTE they get that from you of course :) Sorry DH!  He ha he ha

  • kris60
    kris60 Member Posts: 91
    edited March 2008

    FUBC!!!!!!!!!     ac #4 down the drain, well, out the bladder.  2 more ac's to go, then 12 weeks of taxol. getting there slowly but surely.  time to follow the wise leaders advice, tylenol pm and bed, why fight it.. good luck tomorrow for anyone going for cocktails, i'll be in bed......

    Kris 

  • SISKimberly
    SISKimberly Member Posts: 762
    edited March 2008

    Afternoon Jewels,
    So, I’m 2/3 of the way done!!!!  Only two more to go, which means next time I can say 5/6 of the way done. WhooHoo!!!! Laughing

    Julie-Yeah that you’ve only felt tired and had no vomiting or nausea as of Sunday. Let’s keep going in that direction.

    D1- Hmmm, those nail issues don’t sound fun,but good to know it will clear up now that you’re done with chemo. Earring issues, too.  Geez.  Foot in mouth

    Love the legu acronym as you’re correct calling her your leg might be confusing.

    What was the final decision for your license plate?

    Hope the banquet wasn’t too boring.

    Tinalee- Oh,your trip memories reminded me of my dh and I taking the trailer on a trip up to Oregon and Washington. We also did Whidby Is., Anecortes, and other little islands. It was so beautiful. We hit the St. Helena park on the way up and the Crater Lake on the way back. We stopped in Klamath and stayed. My folks met us up there. While in Washington we visited Tacoma and took a trip over to Victoria and Vancuver. My twin flew up and met us for this leg of the trip.  Thank you for triggering that memory.

    CarolCa- 100 countries in your lifetime is a great goal. Go for it!!! Way to put the ‘shadow’ into perspective and once again educating those of us not familiar with all of these tests. Thank you!!!!

    Jenn- Oh what a scary thing and to have to wait for results is such a nightmare.  I’ll be sending positive thoughts your way darlin’.  I haven’t had a MUGA yet, but asked my onco. if I’d get one when done to make sure my heart was still in good condition after the TAC regime, which isn’t always nice to the heart. I do have expanders, so if I do have a ‘shadow’, will the expanders hide it or cause my onco. to not pay attention?  I also asked for a bone density test afterwards as TAC isn’t always so nice on the bones either. He was on board with both of those.

    Oh, your doxie story was so sweet, and your lovin’ reference to your mom as a grouchy old prude was priceless.  My mom’s mom wasn’t always the easiest to deal with especially toward the end of her life, and her side of the family even worse when it came time to deal with dispersing the estate after my step-grandfather, whom I loved dearly. He softened my grandmother quite a bit. It is what it is, so why not just call it what it is, right? Doesn’t mean you don’t love her or that I didn’t love my grandmother.

    Carol- Love the pic. Don’t you love the homemade cards? My son did that one Christmas for everyone bc he was really poor. Everyone loved them. He made me cry with his to me, and my dh, his step-dad, was moved by his as well. Writing allows our men to say what they want and feel, but just can’t verbalize, I think. And major points for the dh for getting you three more pair of earrings.

    Oh on the contrary, dear Carol, wearing a FUBC shirt is not against the positive thinking goal…we want cancer to go away, so we are sending that message out to the universe.
    We are positive this thing must go!!!! And you took such good care of yourself with the bath and getting comfy…all prepared for a new way of being for the rest of the evening. BRAVO!!!!

    About the analogy-they just come to me. Guess it’s my line of work and having to analyze literature or something.

    I’m doing the same thing as far as keeping track of things since the dx.  I think it’s a great idea that you write it out in your own words even if it is only seen by you and your family. It’s cathartic. Hope the pooper and period have resolved by tomorrow.

    My story: I moved and switched doctors. Met him in July 2007. He ordered all the usual yearly exams. My blood tests came back with really low hemoglobin. I’ve had issues with anemia off and on since I started giving blood. I’m A-, so my blood was in demand especially because I was negative for some virus thing. Anyway, I was used to being turned down a few times a year, but last year, it was more often than not. So, in July I took a test to make sure I wasn’t bleeding from the colon. I wasn’t.  I don’t consider my periods heavy at all which was another concern, so I was put on iron 900mg a day. I re-did the test in August, a small change.  I did my mammo at the end of August. I do one annually due to family history- dad had breast cancer. Never a bad scan. School was already in session. I noticed that when the tech did the top to bottom squish, that it hurt like heck,which was never an issue previously. That night I felt a huge lump on top of my breast. There was no way I could have missed that as I do self exams all the time. My husband said he certainly would have noticed that. I got the call to come in for a redo. I mentioned the lump I felt, and asked if the pain I felt could have been caused by the squish. Didn’t know. I was then taken in for an ultrasound. Yep, suspicious lump at 12:00. Back for a biopsy the next week. Cancer was diagnosed on 10/10/07. Met with oncologist, told him about the lump I felt. He said, the lump on the mammo is too deep to have felt it manually, so the lump on the surface was possibly an injury or something else. He ordered a PET scan and a breast MRI. The PET found two more tumors. One at 7:00 o’clock and one in the axilary area. That’s how breast cancer was found for me. Had my bilateral mastectomy on Dec. 6th, and I found the Jewels on December 14th. Oh, interesting note, my hemoglobin shot way up after the tumors were gone. Of course with chemo they’re back in the low category, but I have no doubt they will pick back up again.  Makes me wonder if there was a link between my cancer growing and the issues with anemia.
    Don’t know about future screening yet…my onco is a one thing at a time guy.

    Paula- Glad you were able to get out and walk in your 50 degree heat wave.

    How wonderful are you feeding the masses pizza, but great idea knowing they’d be wired. Food is a wonderful carrot to dangle once in awhile.

    OMG on that Respiratory Infection!!!  Time to have a dance with Jack eh?Tongue out

    Joan- How awful to think, benign, than discover it isn’t. Glad your doctor was vigilant even though the benign dx was given after the biopsy.

    I’m glad to have the company under the blanket as we head into the fog this round, although as I stated this morning, with the nuclear reactive surges I’ve been having the blanket may be too warm for me…I’ll be throwing my side off a lot. Hope you don't mind.

    Dana- So glad you’re getting 4 of 7 days that are good!!!!
    Glad you had a good infusion day. Kris and I were right there with you.

    Kathy- So glad all went well at the Daddy Dance. Aren’t kids great about just telling things like they are. I can imagine her saying something like, “Yes, my hair is gorgeous tonight isn’t it? Mommy has no hair, it’s a wig.“ LOL Laughing Can’t wait to see the pics next week.

    CHJ- I concur about losing a pet during an emotionally trying time being so hard and how they really do sense that something is different. Animals are amazing.  Glad you’re back at work and feeling good after only 5 days. That’s awesome!!!

    Deb- Wow, what a journey. I don’t blame you for just stating take them both, I don’t want to be worrying.  Reconstruction can totally be done at a later time.

    How’s the dp doing after the funeral?

    Wendy- So good to hear from you…and yep, you got the Tx #3 blue jewel syndrome and was hit by the same Mac 18 wheeler all right!  Here is to an easier Tx#4…I just had my number #4 today, so we’ll have to compare notes. Taxol for 12 weeks…no time to recoup…hopefully the se’s are much lighter that AC for you.

    Therese- I don’t regret my choice to remove both breasts either considering there were atypical cells found in the right, so I’m thinking it was ripe for starting.

    So, both you and Kathy were on the wanting breast augmentation/enhancement when you were dx, so getting your wish out of this not so pretty dx was totally deserved and paid for by your insurance company.

    Congrats by the way for taking charge of your weight and losing 40 pounds and training with a trainer. You’ll be able to get back to that feeling good and in the best shape of your life soon.

    Well, your tx #4 story is not making me feel so good about my hopes of skipping the cumulative action between #3 and #4…I was so out of it after #3, I can’t imagine being even more out of it.  Uuggghhh.  I’m Ok on the nails, still losing eyelashes and eyebrows. Had only a pimple or sore like thing in crease of ear where you would use a q-tip in the crease just above the ear’s opening…does that make sense? Left ear. Pale and just look ‘older’ IMO…it’s clear chemo is taking it’s toll as Kathy, I believe, mentioned earlier.

    Ok, all caught up. Good luck to Carol, Joan, Judy, and Wendy tomorrow.

    SIS Kimberly

  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Good Eve Gems and Good Morning to those in the East already in bed tonight.  I'm right behind you ...

    Happy to report that the ol' GI tract cooperated today and  I'm ready for txt #6 tomorrowSurprised!  Its amazing how just a simple thing can change my whole attitude from head to toe and everything in between!

    Just got the chance to read todays happenings ... I found your stories of diagnosis so interesting.  I've noted that  most of you found something on your own, during a BSE.  Something that we should be sure to advocate to all we know.

    Should have some time for shout outs in the morning, don't have to leave the house until 9:30 and I'm sure I'll be awake when the dh gets up to go to work at 5:00, though I'll try to sleep in a bit.

    Pleasant dreams, Carol

  • RN2teach
    RN2teach Member Posts: 312
    edited March 2008

    Good morning! 

    Wishing today's chemo warriors a smooth treatment day: Carol, Joan, Judy and Wendy--FUBC!!!

    My bratty resp. bug took me down yesterday. Went to work and within an hour started chilling...put on my coat...still shivering... added my scarf (my neck gets cold)...still chilly...broke out the blanket (nice to have a clinical lab for my nursing assist. students!). Started out w/ norm. temp, was 101 by lunchtime. Got my ducks in a row at work and headed over to onco office. He did labwork (WBC low, but not too low for chemo this Fri), NP swab (up the nose--not a fun thing), and chest xray. Started on Avelox, an anti-infective. Took tons of cough meds (didn't need the whiskey Tongue out) and slept well. Feel pretty good this morning, esp since my Hgb was only 8.1... should be feeling a little sluggish, I'd think!

    D1- sounds like your legu is an expert. Glad to hear that you're getting the best care. Thanks for the link to the taping info.

    Kathy- can't wait to see pics from the daddy dance. And, as always, excellent info for Jenn on the possibilities of that shadow on her MUGA. We are fortunate to have you as a Jewel!

    Therese and Kathy- I breastfed my 2 kiddos as well... so much for lowering the risk of BC! 

    CHJ- I broke out the funky earrings when I lost my hair. Haven't had any of the earring issues, tho.

    Kimberly, Kris and Dana--hope you're doing well on day 2 after chemo!

    Jenn- hope you have a good pt session today!

    Time to get to work. To all the Jewels: Happy Hump-day!

    Paula

  • Determined1
    Determined1 Member Posts: 806
    edited March 2008

    It was great to fire up the puter this morning and see posts from yesty's loungers already!  Good job Dana, SIS Kimberly and Kris!  FUSE!!

    Dana--thanks for the suggestion of neosporin.  I'll give it a try.

    I'm thinking of FUBCFU for the license plate, SIS Kimberly.  Is that overkill?

    Jenn--weird how you postponed your exams so that you'd find your cancer.  The world is so mysterious sometimes, isn't it?  Easy to say, but try not to worry about the MUGA till you see your onc.  I always try to remind myself that worrying isn't going to change anything and just gets me all wrapped up.  But I completely understand that it's niggling at the back of your mind.  Try to focus on your le therapy today.  I hope its as relaxing as mine is (love that light touch massage).  And focus on getting that age down under 100!!!!  (Boy, did I relate to that comment!)

    Gosh, Paula, temp of 101?  Hope the meds are bringing that down.  I know that temp would've landed me in a hospital bed, so my fingers are crossed that you're getting in to the normal range by now.  Perhaps that good night of sleep is just what you needed.  Try to enjoy some of that sunshine.  I'm hoping I get out in it, myself.

    Three cheers for Carol's pooper!!!!!!  Good to hear from you as you head out.  I hope today goes well.  Is the xMIL tagging along?

    I'm getting a little paranoid because my new, young radonc said he'd call on Monday with my rad pre-tests and dates and such and I haven't heard from him, yet.  Since the mind is such a wasteland, I'm swirling around thoughts that he looked more closely at the cd I took in (held mammos, MRI, CT, bone scans) and didn't like what he saw, or he just plain old decided he doesn't want me as a patient.  Or, or, or...  What a dolt I am.  I should probably just pick up the phone myself today and see what's up, but I don't want to know at the same time.  I should repeat--what a dolt I am.

    Oh, Deb, fingernails aren't quite as hurty starting yesty and I've found I can pick my nose again!!!!  :)  (Although they look like I've gone grunge.  It's a nice balance to the hip hop doorag on my head.  Not a combination most would think should go together--particularly on a 50 year old bald woman--but I'm pulling it off!)

    Off to see my legu this morning and then to do some bloodletting (not sure when I get to stop doing that).  Hopefully I'll have time for lunch with a friend or maybe some fabric shopping for new curtains for my kitchen/fam room (the ones we have are literally falling off the walls!).  I won't have time for anything if I don't get away from this computer!

    Later.

    Thinking about Carol, Judy, Joan and Wendy today!

    D1

  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Good Morning Gems

    Wow, its going to be kinda crowded at the chemotini bar today, must be happy hour! 

    Judy, Wendy and Joan I'll save you a seat and pick up the first round.  Bottoms up to an uneventful day of txt, FUBC and FUSE's, thank god I won't be needed to stop at Jiffy Lube on my way home.

    I have a gf taking me today.  The mil had a hair appt, and actually a couple of friends have asked numerous times if I need a ride.  Don't know if there just being the great friends they are and trying to help or if they actually are interested in the experience.  Probably a little of both. 

    Need to wake the ds for school, he gets a sleep in on Mom's day at the "bar".  I still have my notes I took last night for shout outs, might not get to those until this afternoon.  I know by then I'll have more to read ... god I love you gals!!!

    Carol

  • KathyL
    KathyL Member Posts: 534
    edited March 2008

    Jenn51:  Are you anemic?  That could make you tired, too, and much more likely with chemo killing off RBCs.

    Paula:  Sorry to hear the viruses keep getting you.  Good move, heading right to your onc's.  Probably saved you from getting worse since you've got some abx on board now.

    And doesn't it suck about BF and still getting BC?  I was so pissed!  I wouldn't change it (BF my kids) in retrospect, but it just made me mad that all those positive BF things didn't happen for me.  My kids still had about 5 ear infections their first year of life, too.  Thank God they never got to the point of needing tubes, but they were almost there.  Oh well, at least I saved a ton of money on formula!  And while I was nursing I looked like a boob goddess !

    D1:  [Slap!] Pick up the phone and call your doc!  Snap out of it woman, he probably just got busy, or he realized you think he's a hottie and is shy (hee hee).

    Yeah, I'm right with you all on the feeling/looking old these days.  This AM I looked in the mirror and just wanted to scream.  I look washed out/pale and tired, even tho' I slept great (and have been for the most part).  The hair is growing in, but all different lengths b/c some had fallen out (ya know what I mean? I plan on getting it cut to even it when I'm all done with chemo).  Plus my eyes are all swollen this week again.  Pretty picture!  I don't even recognize the face I see.  Waah!  I'm not down, just more like disgusted (sigh).  I can't wait to have some color back to my face, some hair, and some energy!  Plus I hate the thought of going back to work-wish I didn't have to.  That's another story that I can't post here, for fear of someone reading it that shouldn't.

    Guess I should go shower.  Taking dd to the dentist after lunch, then some shopping at the mall.  dh didn't get home last night until 10, will be the same tonight and even later tomorrow night.  So, I'll probably check back in here later.  Good luck to everyone with tx today.
  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    KathyL - cheer up baby, when you get a little pale apply a lil fake tan - which is so natural to do and much better then the sun!  I have noticed since my liver has attacked that my skin color isnt it the normal glow (since being black and white).  I usually have a nice color all year round but since the Liver cancer I have lost color especially around my eyes so I had a little cover there to help me look alive and Chemo helps me out with the warm glow.  For your eyes apply cucumbers in the morning and all Oil of Olay has a good products for puffiness too; they have little sponges I use every 4 days - its states to use daily but I dont have that daily money.

    As you can tell I have a lot of rememdies for my body. I also use a manadrin body scrub daily (trader Joes) to help with the dryness of my skin from Chemo and it workds miracles.  I am very Vain you can say :)  I just love trying to look and feeling good.  Remember Kathy - you are beautiful at all times. I dont know why I checked my mail before I left this morning to school but I guess you needed me :)   Remember I love you and you are beautiful to all of Us.   

  • SISKimberly
    SISKimberly Member Posts: 762
    edited March 2008
    Good Morning Jewels,
    So far, the only se’s are the rock in the gut and just a bit tired. Plan to get some errands run, get my Neulasta shot, and meet some teacher buds for a visit before the fog rolls in too thickly tomorrow.  Slept fairly well between peeing every two hours and a few chemo flashes…I took my valium last night. That helped.

    Carol- Let’s hear it for feeling cleaned out and lighter!!!!  Go kick some cancer booty today. Glad your gf is joining you.  And we love you, too. Look forward to hearing from you later this afternoon.

    Paula- You just amaze me with your ability to just work through your se’s and illnesses.  I’m glad that you’ve gotten some good drugs and that the cough medicine was enough to help you get a good night’s sleep. Hemoglobin at 8.1… are getting any shots to raise those RBC’s?

    D1- Do they have the eternity symbol as a choice? FUBC4(eternity symbol) would be cool.  Or the smiley fiace after FUBC would be cute!

    Isn’t the mind interesting?  We can really work ourselves up over things can’t we and our minds are always so willing to cooperate. When we get ourselves in a place that seems rationale, it brings up a question or thought that throws us all into a tizzy again.  Pick up the phone…his not calling probably has nothing to do with your case at all…maybe he got ill, had a family emergency, just needed a day off to unwind, or just got swamped and behind.

    Hope you had time for fun after the essential stuff- pt and blood work. I’m envious of your ability to make your own curtains…I am so domestically challenged when it comes to sewing, scrap booking, and other crafty tasks.

    Kathy- I’m right there with you wondering how the woman in the mirror is the woman I picture in my head. I know it’s only temporary, but it doesn’t feel good at the moment, that is for sure.  Hey, maybe we can write to Oprah and have a big ole January Jewels make-over during Breast Cancer Awareness Month. Probably not this October, but maybe October 09 when we’re all done with treatment especially our Herceptin gals. Maybe our book will be done and we can give it a plug. Heehee.  One can dream. Hope your have a good day with the dd.

    Dana- Love your beauty tips.  I too use an exfoliant. Haven’t thought of a liquid tanner as I imagine orange. I use Bare Minerals, which has a bronzer that helps me look more alive.  Every time people say I look good, I say,”It’s my Bare Minerals. I could be a spokes model for them.”  I did have one gal be honest and say she noticed that the chemo is taking its toll, but encouraged me to remember that it was only temporary.  Bless her!!!!

    You’re right about checking in without intending to being connected to being needed.

    Hope you have a great day at school.

    I’ll check back this afternoon.

    SIS Kimberly


  • PAlady
    PAlady Member Posts: 176
    edited March 2008

    Hello Jewels!

    I am finally feeling human again. Had my last tx on Friday and it was definitely the worst. I was much more tired and achy this round. But I made it!

    I've tried keeping up with the posts, just didn't have the energy to post.

    KathyL  - Love your pictures. It is so nice to put a face to the name!

    Golfer - Happy Belated birthday!  Hope it was a good one.

    As far as my dx - I had my annual exam in June and my mam in July everything was fine. On October 9, I was getting ready to take my ds to school and just was adjusting my bra strap and felt the lump. Dh was out of town, so I waited till the next day and called gyno to check it. She sent me for a sonogram and mammogram the same day. They could see it on the s/g but still not the mammo.  THAT is what scares me. I will never feel a mammo is enough.  I hope insurance will pay for either a sonogram or mri every year cause the mammogram isn't worth a thing to me.  One weird thing that happened - Last April I went to a medium for the first time in my life. I was always interested but quite skeptical. From the time I sat down, she was right on many things and on a lot of specifics, not just generalizations. Fast forward to a few weeks after I was diagnosed, and I remembered she had mentioned something about a mammogram. So I sat and listened to the tape I had of the reading. She had asked me if I get mammograms. I told her I did. She asked if I just had one or was just due for one. I told her I wouldn't get one until July. She told me in the mean time I need to start doing self breast exams so I could get to know exactly the shape and feeling of my breasts. I did not do this. I guess hindsite is 20/20. It was pretty weird to go back and listen to that tape, though!

    Dana - I am so glad you have gotten on with your chemo, finally.

    Dh and I are leaving for Vegas tomorrow. Just a long weekend. I am glad I was feeling good enough to go. So will be back on Sunday.

    I have been thinking of you and praying for you all.

    Hugs

  • Wing
    Wing Member Posts: 34
    edited March 2008

    WooHoo no more A/C!! One hurdle cleared!  Bring on the taxol and avastin for 12 weeks.  Carol, Judy and Joan hope all went well with you at the bar today I'll pick up a round too!

    Here's my story, I have been worried about breast cancer since the new millenium at the age of 38, because on my routine yearly mammo I was told I have very dense breast which as you all know are hard to read on mammo.  Anyway I was got the big scary call back in for my pics then sent to the breast surgeon for a biopsy which was determined to be calcifications.  The Dr. asked me to do a clinical on the new "digital" mammo xray system being developed which i figured would only help me as I would be monitered better so i did it for 2 years.  I then had the same repeat performance in 2005 with the same results biopsy/calsifications.  After going back on the 1x yearly mammo only 10 mos out in October 07 I found a lump in my Axilla area which I was drawn to because it was sore I waited about 1 month then went to my Breast Center thinking it was just a swollen gland nothing more.  My NP asked if I was busy this afternoon and ordered a mammo and US, while having the US the tech said "Oh boy you definitly have something going on in there, I wonder how some people get these things and other people like me just seem to never get anything".  It was at that point I knew I had BC.  It's funny I can still quote her after all this time.  She dosen't even know she gave me the diagnosis that day.  Anyway had biopsy in Nov and  then lumpectomy and some nodes out in Dec. found out they removed 2 cancer cells 1,IDC and 1, non invasive,  the rest is history.  I have no family history of cancer on any side of my family so this is a shock to my whole family, not to mention me.

     Started chemo in Jan. and here I am glad and lucky to be part of this warm and caring group of women who truly understand and welcome anyone no matter who the are into the group with open arms.

    Wendy

  • golfer779
    golfer779 Member Posts: 1,378
    edited March 2008

    Good Afternoon Gems

    Just got home from my chemotini today.  Had a uneventful time with the infusions.  My mil (the great lady she is) stopped by just to say hi, and my next door neighbor was also there getting his 8 hour drip (for bladder cancer).  We had been diagnosed within a week of each other.  I told him we need to stop drinking the water at home.

    Stopped with my gf for lunch at a cute little restaurant in Poulsbo.  Felt pretty adventureous in the food dept as my GI had been readied for today.  Had half of a huge philly cheesesteak sandwich.  D-lish ... got home started some laundry and the dh called to see how I was doing.  Walking to the mailbox while talking to him on the phone, the ol' GI tract said "Houston, we have a problem".  Hung up abruptly and felt quite thrilled to be at home and not at the Jiffy Lube.  I guess there is a reason they list the big "D" as a side effect almost at the top of list.  Didn't have this problem in month 1 and 2, hoping that this is not going to continue in the next 3 mos.  So now what do I do, not take Miralax tomorrow, that is what I did last week, and then just hope everything mellows out.  The darn oral meds then want to plug me up.  What a balancing act ... never would have liked a tightrope walk anyhow!!

    D1, okay enough about my problem, we have a good friend (in fact the one we're going to AZ with), who has used kinesio tape for a tennis (golf) elbow and also on his feet.  He had very good success with both areas.  I sure hope that you can get some relief and I say bring on all kinds of meds, alternative therapy, whatever it takes.

    Boy I sure wish I had a ds with the grades of yours.  Both of my dh girls we're very good students (in fact the one graduating from the U this spring has been on the deans list for all 4 years).  Awesome job for your dd to keep great grades, work, play ball, looks like some awesome parenting!   My son I believe has more of a motivational problem than actual learning problem.  We're hovering at about a 2.8 gpa, I believe for car insurance he needs a 3.0 for a break in rates.  He's got 2 months to hopefully work a little harder on his studies.  I definitely blame myself a bit, letting him spend so much time on "My Space".  We're like two peas in a pod lately, him gabbing with his cyberspace buddies and me yakking it up here.

    Kathy, glad to hear your evening at the dance was a winner.  Gotta love the honesty of our little ones, "Mom's has no hair".  Hoping that you'll be able to share some pics.

    Hope that your lunch with your gf's was fun, I kinda liked it when I was off after surgery to be able to do stuff like that.  I had more lunch dates in those 4 weeks than I have had in the last 10 years.

    Again, thanks for any/all of your medical in-site on so many issues that arise within our group.  Although I may not be having some of the se's as others, I still enjoy reading about what one should maybe do.  Oh, thanks for giving D1 hell about her doc not calling.  I'd be all over that like a big dog.  When I was waiting for my final node path report I was calling every number I had, couldn't get through to a real live voice, it drove me nuts.  Finally called a number I had to a nurse I had met just once at Seattle Cancer Care.  She was able to pull up my report and give me some details.  I wasn't going to see the doc for a few more days and knew that the report had been completed and I was going nuts waiting for a call.  So D1, hoping that you made that call today!!!

    Wendy, Time for celebration on your completion of AC.  Those lights at the end of our individual tunnels are getting a little closer!  I'm looking so forward to that bright light shining on all of us Jewels in the next few months, well maybe closer to a year.  As fast as Oct to Mar has gone for me, we'll be looking back at this adventure trying to remember the details before we know it.

    So you noticed your lump in the Axilla, I see that you ended up having no nodes positive, gotta like that.  Thanks for sharing your story.

    chj, I'm sure you probably had mentioned very early on that you had battled this beast back in 1994.  I say as we get older we get stronger both mentally and physically and "bc" does not even have a fighting chance this go around.

    Jenn, story on the weiners, had a old weiner dog, he was 14 in 2000.  My parents also loved this old guy, as my mom was dying from Melanoma that year, Abercrombie would lay with her in a hospital bed in their living room.  We knew Abercrombie wasn't long for the world as well, so to bring a little new life into the situation, my dh (boyfriend at the time) and I decided to get a new little guy.  Enters Reggie, 8 weeks old and my Mom would have the biggest grin on her face when we would bring him to sit on her bed, along with the old guy.  Needless to say my mom died about 3 weeks later, and I had to do the unpleasant task of taking ol' Abercrombie in to be put in doggy heaven about 6 weeks after that.  About 2 years later we decided that two weiners is as easy as one to care for so enters Schatzie (the wild one).  We literally have to put her toys up so she will settle down.  She thinks she is a retriever, will fetch forever.

    I'd love to see a pic of your "clowns".  I swear animals are at times a pain in the hiner, but the monumental unconditional love is invaluable.

    Phones a ringing, hitting send before something happens to this post,

  • Determined1
    Determined1 Member Posts: 806
    edited March 2008

    Ooohhh, KathyL, I have a five star on my face!!!!  It's those five fingers from that slap!  Okay, okay.  When I went in for my bloodletting I swung by his office.  He was booked up with patients, but I left a message with his receptionist for him to call me.  We laughed about how I didn't want to be a nag, particularly when I'm still struggling to make my good first impression.  She was really nice.  I'm still waiting to hear back from him...

    Oh, and I hear you, my friend, about the face peering back from the mirror.  It's not me.  Some bald, pale (sallow?), puffy faced creature has taken over my body.  We had a family picture taken at Thanksgiving of 2006 and I really don't even look like that person anymore.  But the way I look at it (when I'm having a positive moment) is that I get a fresh canvas.  I can create whatever physically beautiful person I want to when I'm done with this.  Sure, I get impatient waiting to begin my work, but I know someday soon I'll get my chance.  In the meantime, I'm trying really hard to adjust to a new definition of beauty and trying to enjoy all the breaks my "cancer look" gives me when waiting in lines, or paying the parking attendants (I've gotten out of garages 4 times so far for free!).  And for those who don't find the cancer patient still beautiful--f*ck 'em if they can't take a joke.

    LWDana--thanks, girlfriend, for reminding me to recommend my favorite Trader Joe's product--their Grapefruit Body Scrub.  I only use it once a week, but it really hydrates my skin and smells good to boot.  I'll have to look for the mandarin orange one--I'm drawn to the citrus smells, particularly in warmer weather.

    SIS Kimberly--stay away from digestive distress this time!!!  I'll bet you have all your remedies lining the kitchen counter--don't forget to take them before the symtoms appear (you know they're gonna appear, may as well be preventative, ya know?).

    Oh, and there's NO WAY I'm making my curtains!!!  I'm totally challenged when it comes to hand crafts.  I'm just picking out the fabric (with WAY too much familial input) and I'll take them to a local curtain making shop.  They made our curtains 14 years ago and the fabric is literally rotting off the walls.  I was supposed to do something about it as my back-to-school project last fall, but I got distracted...  I'm just totally psyched about the makeover, though.  We've hired a painter to paint the rooms (we're doing the ceilings, too, this time, so I told the dh he was off the hook), and then new curtains.  Urban renewal!!

    Oh PALady, I found my last one to be the worst, too (KathyL, I hope you've stopped reading this).  I think part of the problem was that I'd lost patience with the whole se thing and was ready to move on.  I'd been very careful not to count a tx done till I was past the se's for every one before, but that last one, well, let's just say I'd lost it.  Now that I'm coming around, I'm finding my attitude is improving, so hopefully you will experience the same.

    Wendy, Wendy, Wendy!  Many congrats on finishing your course of AC.  May your se's be few and mild.

    Off to fix dins for my dd--she starts AAU basketball practice tonight, so has to eat early to avoid tummy trouble.

    TTFN.

    D1

  • LilWarrior
    LilWarrior Member Posts: 268
    edited March 2008

    Kim, I too use Bare Minerals - I just love it.  Loreal makes a fake tan and it really looks good and not orange - give it a try.

    I am so tired today Ladies, only got 3 hours of sleep and went to school and Finally I am done with Level 2 - I got a B again on my Final.  I think Chemo is starting to affect my brain because I keep getting B's and before chemo I was getting A's.  I think having Chemo before test day doesnt help with me much being that I dont get any sleep.

    Wishing you all a pleasant night.  God bless!  

    Oh yea does anyone have any rememdies for my Ass its burning every time after chemo - it feels like I have eaten 10 jalapenos. I have tried AD ointment but that doesnt work - i am going to ask the Dr when I see him on Friday next week for something because it burns baby... He ha

    Ta ta for now! 

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