Jan 2008--Ain't it Great?

RN2teach

Getting packed up and ready to go to conference tomorrow. Any of you see the movie "We are Marshall" a couple of years ago? That's where I'll be for the next few days-- Marshall Univ. in Huntington, WV. I will have my laptop w/ me and will check in when I can...

KathyL- thinking of you this evening. Hope the memorial service went well.  

Carol- this week I'd be choosing my jammies over dinner out, too. Still having a good bit of nausea (glad I'm done w/ AC). I hope your GI tract has settled down this evening... having the runs at the JiffyLube... there oughtta be a joke in there somewhere

I hear you on monitoring the grades. What's up with these boys? My dd is an overachiever to the extreme... My ds is so lazy that he would only do the bare minimum to pass his classes if I didn't withhold privileges. Taking the car keys from a 17-year-old is a BIG motivator!

Dana- you're sounding good. Glad treatment 1 is a thing of the past. Take care of yourself!

D1- I'm glad you like your rad onco. Is this the one in Gtown or Arlington? I've already seen my rads guy for initial consult and he mentioned all the se you spoke of--heart, lungs, le, burns... As for the burns... a friend of mine just completed 33 rads and swears by Aquaphor. That's the only topical that is "allowed" by our rads dept. She used it several times a day and had minimal burning--much, much less than normal.

Kimberly- well, I wasn't sure what to make of D1's burka woman.... good dream analysis!

Julie, AZDonna, Tina, and Sista-- got get 'em tomorrow--FUBC!

Gotta go finish packing.

Love you all!

Paula

LilWarrior

CHJ - you are so right when you are on those steriods your mind goes over and over on different things; Especially things you dont need to think about, I was trying to keep God in my mind while laying down, then trying to breath slow and mediate - but none of that worked so I called on BENDARYL and he (BEN) helped me to put me asleep. 

I pray that we all get through this with ease and peace and know that God is there for you each and every moment. We are all so blessed to have another day, moment, smile and laugh!  I love you Pumkpins!.  Off to do me now.  

Have a blessed night! 

LilWarrior

Oh yea when I sport my shirt I tell others that it means Forget UBC.  I cant tell them what it really means because I am suppose to be a Godly Woman, but trust me in my heart I know what it means - he ha.. 

golfer779

Paula, oh yeah, I'm so going to use the car keys here in about 2 months when we turn 16.  We just had an issue once again tonight with the Spanish grade, looks like we bombed a test which is about 80% of the quarter grade.  His skating weekend in Portland is looking like a no go ... will see what the ds comes up with to try to up that grade in a few short days. 

And on the J.Lube/diarrhea front, I'm sure someone will come up with some of their wit at my expense!!! 

Sure hoping that I have that problem in check before my outing to the big city tomorrow.  Needless to say I won't be having any Miralax in the morning!!!

Night to all, and how about, no stinking se's tonight for the Jewels!

Carol

Determined1

Hey Paula--have a wonderful time at your conference.  Sounds like you're well-prepared.  Enjoy it.  (I'll be doing my rads at Gtown--longer drive, but I'm learning its the docs, not the facilities, that matter.)

OMG SIS Kimberly, are you SURE you don't have another calling in life???  I would never give myself enough credit for divining that women in burkas are oppressed (which we all know they ARE) and that there could be a connection to my med situation.  The magazine thing is weird, but maybe that's because I've only really been reading mags during this ride as I can't focus on a book (my normal read).  Certainly food for thought.  Fortunately, she didn't ring me up last night!

Hey LWDana!  Lovin' those 'roids, are ya?  Watch yourself when you stop taking them--I really crashed hard.  It wasn't till after my 2nd tx that we figured out that I was the type that had to be weaned from them, which really helped.  So pay attention and if you're a hard crasher, talk to your onc about a weaning program.  Hang in there and give yourself lots of room to just lay around and watch tv.  Drink, drink, drink!!!!!

I know I'm a little late to the party (you guys started talking about this while I was in my fog), but I want to jump on the pro-educators bandwagon.  Both of my inlaws and one of my sisters are in education.  They work a whole lot harder than I ever do.  My sister used to teach elementary kids, but got sick of the parents after 15 years and went back to get a 2nd masters in library.  Now she's an elementary librarian.  She also volunteers her time to establish literacy centers on one of the out-islands in the Bahamas (long story, but we spent a good part of our wonder years on Eleuthera, going to school and learning about life outside of our lucky one in the States).  Now my sis is trying to give back to a population that gave so much to us.  I've been down to help her once and her work is amazing (fortunately, I was the parent volunteer in our elem's computer lab for something like 8 years when my two were younger, so I have a decent background in being a "teaching aide"--you know, the type that works well with careful supervision).  She was just down in one of the centers we put together two years ago and found the lawnmower in the library!  (The librarian'd left and no one stepped up, so...)  Anyway, she and the janitress cleaned everything out and recataloged the new materials my sis took down and the janitress was so good my sis went to the principal who agreed to promote her to librarian!  We both know this woman from childhood and agree she's going to work really hard to make this center work, so it was a huge success!  While she's there, she also does distance learning with some of her schools in WI.  She has the island kids prepare reports on something unique to the island and the WI teachers have their students do reports on stuff Wisconsin and they hook up via internet.  I helped her with one of these one time.  They're amazing!  I just can't wait to get better so I can go down and assist her again (although I can do without the sand flea bites I know I'll get working in those dirty libraries!  Oh, and not to mention the critters we encounter--I really hate that part!).  But it's cool.  Next time, maybe I'll bore you all with how our high school teachers use the internet to post homework/grades here...

So today I get my last p/t for my back spasms and I see my le specialist.  I'm going through my 12-step program of acceptance on the le/rads thing and now I'm in the angry phase, which makes me wanna work hard to get my le under control before I start my rads.

Oh, and I forgot to tell you all about the prognosis for my nipple.  The rad onc said it was going to bear the brunt of the burn/pain for my breast and that I would not want to wear clothing for about a month starting somewhere around week 5 of rads.  His positive spin on it was that the weather would be nice for me to run around topless, but it was just another fun sounding se to me.  Hopefully, he's painting the worst case scenario for me and it won't really be that bad...

Okay, I'll move on. 

D1

KathyL

Good morning Jewels!  Well, I didn't make it to the memorial last night which put me in a major funk.  My body was sooo not cooperating: sounds like Carol and I could've shared a can of Oust spray as I, too, had some "sharts" as D1 calls them and stomach cramps.  Plus, I just felt real tired (could've been the NO SLEEP the night before?), achy, and was 99 degrees.  Normally, I'dve thought nothing of it all, but being a &*mn hypochondriac cancer patient now I was freaked out and didn't think it wise to be in a crowded, very full room of people, knowing it's also my nadir right now.  My friend agreed and said she personally would kill me if I went and got worse.  So I stayed home, and moped, and had a major crying session.   I hate cancer!  But I slept great, drank a lot, and feel better now.  Who knows what was going on.   Part of me is pissed that I didn't just go, but I guess it was better not to risk catching something and resting instead.  I'm sure the memorial was mobbed with people, and flu is still going around DE like wildfire.  Someday I can write about it all anyway when Kimberly and I do our book

D1:  OK, at least the doc was easy on the eyes even if his info was hard to swallow.  I personally like a doc like yours-- no BS, just give it to me straight.  Doesn't make the info any easier though.  So... first of all, don't freak about burnt skin.  Not everyone goes there.  Remember the calendula cream I told you about as prevention.  Also ask what THEY recommend to AVOID burning.  The cream they told you about (I'll bet it's silvadene-- have used it thousands of times on patients) is to TREAT an actual burn. We don't want you to get burnt in the first place.  Wear loose fitting tops for sure-- I've heard your skin does feel hot.  My friend applied cornstarch powder alot to her skin to avoid chafing.  And while you're shopping, hit a healthfood store for some "natural" deodorant-- you won't be able to wear your usual b/c they contain stuff that interferes with rads.  I'll ask my friend what she liked.  And as for the le-- you're doing everything you can, just keep it up.  Focus on the fact that you are working on it on as best you can, it could be irreversible... but it also COULD GO AWAY

Carol:  yeah, 2.8 is low.  Mine when I was hospitalized was 1.1.  Make sure they check a level again in about a week.  Be super careful right now about being out and about, especially with flu so rampant (at least it is here).  Avoid crowds and sick people as best you can-- you're at a higher risk for infection when your WBCs are below normal.  Handwash like crazy, too.  Most people's levels WILL bounce back up on their own in about 7-10 days.  This is also a time to be sure you are washing produce very well, and cooking all meats thoroughly.

And, oh yeah... hope your pooper's settled down.  We go from Miralax to Immodium in one day don't we???  Eat some bananas!

Dana:  Glad to hear you're doing so well.  Yay!  You need a good break after all the stuff you've been through recently.  The burny butt is also probably from just chemo in general-- does a nasty job on the way out!  Try a squirt bottle to clean instead of wiping a lot, and nice warm soaks in the tub.

Sheshe:  got the new date!  Sorry to hear you got pushed back, but at least it was only for 2 days and you're still pretty much on track.

Determined1

Quick t-shirt story from my last infusion--

I was on the elevator headed up to the 5th floor (the only thing there is the infusion center, so everyone on the elevator knows where you're headed) and it was just me and a younger woman on the ride together (dh was lagging behind).  She was getting off on another floor and looked at me and asked, what does your t-shirt mean?  I sized her up and decided she'd be cool, so I said, "It means exactly what you think it means."  She looked at me and raised her fist for a pound and said, "You go, girl!"

I'll tell you what, we Jewels, we da bomb!!!!

D1

sheshe48

I'm going to start out with some shout outs, some are from several days ago. I'm also having trouble with lymphedema my arms are swollen. I'm going to mention it to my new oncologist again on the 21st. He agreeded my arms are swollen. My old oncologist said they were not swollen. He is blind, even the nurse said yesterday she thinks I have fluid in there. I'm not as sick and nauseated today, the adrimycin is very naseating, Thank God, this new doc changed my chemotini. I can tell I can pee better, I was having a hard time flushing the chemo out the last 2 treatments. Adrimycin is hard on the kidneys. Hopefully my bladder this time won't get so irratated this time.

Thanks Kathy for updating me again, and sorry you did not make it to the memorial. I'm sending you good thoughts and vibes.

Kimberly  Glad you got to spend quality time with ds. Yes, keep a check on your heart during the adrimycin. The nurse and doc told me you really have to have high levels and many infusions before it damages your heart. I'm not taking any chances, I want to have a echo gram just to make sure my heart is still ok. We so have to take charge of our care.

Julie  Good luck with ds tournment. Glad you have a nice lunch with sister and good you are feeling better.

Dana  glad your chemo went well little warrior girl. Sorry you have to visit the chemotini bar weekly. You can do this!  You are a strong warrior. I love that idea too for the F in our shirts. I promise by the end of the month I will send a pix of me.

CathyCA  thats great you have the energy for all that excersing. You go girl.

Julie, Tina, AzDonna Hooray it's your last one!! Hope you all get feeling better soon.

D1  Sorry you had a bad day with surgeon, I'm glad you are taking charge of your care and firing him. It sucks to have to change doc and cancers centers in the middle of treatment. If we don't fight for our lifes, who will?  I'm glad you love your new rad oncologist, sounds like he is not holding back and telling you what to expect and how it's going to be. I hope your lung is alright. Keep us posted, today i have to get my nasty neulasta shot and then on Fri I have my bone scan, wish me luck that turns out ok Jewels. D1  sending you good thoughts and vibes.

CHJ  Hope your chemo went well.

paula  Get some rest you and Kimberly have busy jobs that keep you busy.

Julie  Sorry to hear about ice storm, stay safe. We got 6 to 8 inches of snow 2 days ago, a nice neighbor came over with his trackor and cleared the driveway no charge. That was so kind, my daughter took him over a thank you card and chocolates.

Carol  Sorry ds maybe not be going to hais skate meet. I hope you are feeling better and the insurance pays for your sleeve. That was sweet of you to buy a jewel a t-shirt.

Kimberly, Glad you had a great day with new friend and walking 4 miles that's great. Kick some bc butt!!

Vettegal  sending you good thoughts, I also had a rash around my ears not to much on my head. I'm wondering if it's my wig doing that to me. I don't wear it much I like the bandanas better.

Wvgirl  Glad dh is coming around, maybe this cancer thing has him scared and he don't know how to express himself. Good idea to read the book. sending you good thoughts. That's great you walked for bc. Keep it up.

Therese  you go girl glad you are done with chemo. Glad you enjoyed the concert.

Paula  Glad you are done with chemo too, it sounds like you and df and dh had a great time shopping and eating out. Sorry to hear your dh had cancer, I hope he is a survivor.

That's all I have lots of hugs, SheSHe

LilWarrior

Okay Ladies your Little Warrior is feeling it! Last night it was hitting me, it was like my Body saying Dana go lay down! Its weird you lay in bed and you dont even move you are like a damn zombie! I think a lot of this emotionally hard especially when you are a go getter; you know what I mean.  My body is telling me to rest and my mind is like no you can do this.  I do feel some pain throughout my body but its doable I might say, I can just lay in bed all day but I have clinical today I have to be there from 2:30 to 11pm. 

Dont worry I am going to be sitting around a lot and trust me I dont care if I get written up because I am a little pooped out today.  So I will sit in the Nursing station with a mask and gloves on!  I refuse to let Cancer have me, I have Cancer!

I will take some advil for pain and just put my mind over my body and tomorrow I will rest all day and saturday too.

I tell you Ladies I have a lot of respect for you and fighting this good fight.  My hat, socks and everything else is off to you - He ha.

Dont know if I could do this for 1 year or more like others do - this isnt no joke!  I am going to get off now and get some rest and pray that you and Me.

God bless and Muah! xoxox 

SISKimberly

Good Morning Jewels,
So, the sun is shining again this morning. I have to be gone by 11am so I can do my labs (didn't feel like going out yesty, so I didn't), then off to school to have lunch with my colleagues (one wants to try on my red wig as she loved the style and wants to see how it looks on her),to turn in my homework-our idea for a focus for next year, and to meet with the gal for my 125 Plan renewal. At 4, it's off to yoga.

Carol- I'm so sorry about your having to pucker those cheeks. Maybe ½ a dose the day before next time?

Hey, no problem with the borrowing of research. I'm not one to just sit back and do what I'm told without good reason. If I can get the same results without the se's by doing an ooph and not Tamox, I'm all over that. I just can't see putting more toxins into my body for such a low potential result. Remember, they report the relative stats, which make it appear that there is a 49% reduction rate in recurrence/first time breast cancer, when in actuality, it's .049%.

I also found out the makers of Tamox, make Arimidex-the newest kid on the block being pushed because the patent is running out on Tamox. The makers made DES, the first known carcinogenic endocrine-disrupting drug. Against the advice of the creator between 4-6 million American women and 10,000 Australian women were given this drug to ‘prevent' miscarriages and pregnancy complications.  In addition, it became the drug used for suppression of lactation, the treatment for acne, the treatment of certain kinds of breast and prostatic cancer, an inhibitor of growth in young girls, an estrogen replacement in menopause, and a ‘morning after' pill. It would take 30 years for the company to admit what they knew in 1938, DES is a dangerous and highly harmful drug. It was reported that women who took DES were 40 to 50% more likely to get breast cancer than those women who never took it. There were other horrible consequences like vaginal cancer and birth defects. Once DES was pulled, the company using it's research from this drug eventually came up with Tamoxifen, which causes the same abnormal cell changes found in women taking DES. It was first approved as a birth control pill, but proved to induce ovulation rather than inhibit it, so because there was a reduction in lab rats injected with breast cancer cells, it is now being given to humans. To top it off, the company that makes these drugs to ‘treat' cancer also manufactures pesticides which cause cancer. They're making their money on both ends.

Sorry for the rant. Lots to absorb.

LOL on the old guys with the big DENIED rubber stamp image. It certainly feels like that doesn't it. They are betting that the majority of people will not bother to fight that battle. They don't know you very well, do they?

Hope the sleeve fitting goes well. Have fun with the mil and here's to not needing a cork!

I'm with you on the recliner being more my speed most of the time even though I agree that moving more would be helpful.

CathyCa- I'll bet you're right about exercising daily making it easier. I'm going to keep up the yoga two days a week and add in weight training on my good days this round. Every little step forward is progress. Thank you for inspiring me.

And homemade chocolate truffles...what a yummy exam. I had to make a yellow cake with dark chocolate frosting the other day...craving...and I'm not a dessert person normally...just once in a great while. This is a new craving. Sun Chips were great for about a day or so, and now they're not so good. The only things that never let me down are eggs and fruit and toast.

Can you find out if your friend had chemo and how many nodes if any were positive? Node positive 4 or more seems to be a tipping factor. Thanks.

LWDana- WhooHoo, chemo-virgin no more!!!! The burning is the chemo passing through...Prep H gel and soaks in a warm bath help. I didn't have itching, but I did have the chemo glow. You're still on the Decadron high, so be prepared for the crash. Congrats on the B!!!!  Wish your pic was bigger, hard to really see your pretty face.

SheShe- Sorry about the mix up for the 3rd, but you're on board now and that's what matters. I'm so glad you like the new cancer center better. I heard that headaches could happen and glad it seems better today. Take care of yourself, and I know you said you'd check in later, but just in case, we will be here on the other side of the fog when you're back. And...you did check in later with a great list of shout outs. Glad you're feeling good still.

Paula- How exciting that the competition is just days away. I'll bet your kids are so excited and nervous. Good luck and look forward to updates this weekend.

D1- Glad Burka gal didn't come to visit last night. That is so cool about growing up in the Bahamas and how your sis is doing such good work down there. Yeah, I'm getting to the burn out point after 21 years. Hopefully, when I get back next year, my NCLB diet will allow me to get back to what I know teaching and learning should be instead of the test, test, test focus.

I'm so sorry that the rads se list is getting you down. The good news is that this rads onc sounds like he'd do anything to help you be comfortable, so more pt, massages, and sleeves paid for by insurance. You won't be able to wear the sleeve will you? Maybe I don't understand how they fit.

Excellent t-shirt story, and yes, we Jewels are da bomb!

Kathy- I am so sorry you missed the memorial last night. But it sounds like your body really needed the rest. Glad you're feeling better mentally and physically this morning.
I'm so there when you're ready to get our book written. Take it easy today.

OK, gotta go get ready. See you tonight gals.

SIS Kimberly

Cathy-CA

SheShe -- glad you're finding your new regimen easier to handle.

Paula -- Have fun at your conference.  It sounds great.

Paula and Carol -- my youngest is 17 and the car is the major incentive in his life.  He has my husband's old SUV, but whether or not we pay for insurance and gas is determined by how well he keeps up his grades.  I use that as a constant reminder when things start to slip.  He has a part-time job as well as being in sports, so has a lot to juggle. 

D1 -- You might ask your rad doc about Jean's Cream.  I've seen it recommended elsewhere on this site.  It was developed by a cancer patient and like KathyL mentioned, it's to keep you from getting burned.  The website is www.jeanscream.com Also, I'm too big to go braless and will be having rads in May-July.  I bought these things called Expand-a-Bands (website www.breastbinders.com ) that are intended to be used as compression garmets after mastectomy, but looked liked they'd be good for rads as well.  It's like a big, cotton-lined stretchy tube top.

Unfortunately, my taste buds are already totally fouled up.   I have Bunko in a little while and we do a potluck lunch.  I'm sure nothing is going to taste all that great.  Then, we have our cooking class mid-term tonight and everybody brings in a different dish for that.  Chocolate tastes so disgusting to me right now that I had to have my husband taste the chocolate truffles I made just to make sure I hadn't burned the chocolate or something.  I was afraid maybe it really did taste that bad and it wasn't just my taste buds.  Fortunately (or unfortunately), it's my taste buds. 

LilWarrior

Thanks Kim for saying I am pretty - it sure is hard to feel pretty when you feel like poop! 

I am up now took two advils and praying on my knees to my Almighty that it doesnt get any worse then this and I keep telling myself all day that this too shall pass and I will be blessed double for my trouble.

Off to the hospital to touch someones life today, even with the little energy I have in this fat body of mine; I know I am still alive and blessed and there is others that are doing worse then me.  I ask God to allow me to continue his work down here on earth!  

One great thing about the chemo is the glow it gives you - you look healthy but you sure feel warm as hell inside.

Have a blessed day and night Ladies, off to serve and spread Gods word to my patients.

God is love, and I love you.

Dana 

Cathy-CA

Kimberly -- my friend did not have chemo because the tumor was hormone receptor positive and about 1 cm.  She was node negative.  She did about a year of tamoxifen before she and her onc decided the side effects were outweighing the benefits.  She's also had a bout with colon cancer and serves on a survivor advisory board at one of our local hospitals so is a great resource.

Sweet spices seem to be my safest food choice the first few days after chemo.  I'm doing lots of cinnamon granola bars, cinnamon and raisin toast and cinnamon/sugar pita chips from Trader Joe's.  We had a lot of good salads at our Bunko luncheon, but they just taste off.  It seems like I lose my taste immediately after chemo and start getting at least a bit back by the first weekend.

vettegal

Ladies

      How is everyone? Hopefully all is well on the bc front!

D1-topless for a month...hummm the dh may like the idea and its kind of a "free hanging" as my dh calls it..

Carol-Jiffy lube what a name to think of when diarrhea kicks in...Glad you where close by..TRUST ME..I truly understand

as D1 says put a cork in it!  LOL

Ok, on the gift front again. A lady who works at our other location..is a wonderful, spiritual, person.. crochet me a a shall to wear at chemo to keep me warm and it was made at her church and blessed by her priest and I was truly touche and had my cry..I had many today. Taking that decadron before chemo tomorrow. I am wired for sound. I hope I sleep tonight. Nervous as can be.

Got a little joke to make all of you laugh..someone told me and it really made my day! Here goes..

What do you a call a chicken with erectile dysfunction?  

Boneless chicken

That is my entertainment for tonight..Need some humor in my life right now.

Dana-love the photo and pray everyday for you. I have told some of my friends to add you to there prayer lists for me. You are going to be fine with the help of god and all the friends you have found on this board. We do love you!Big hug and kiss from me and my dh!!

Paula- have fun at your conferance-gets you away from things, iwish i could get away even for a day trip it would be nice.

sheshe-not doing the wig thing "yet" i really think the scarf i was wearing around me  neck at work to keep me warm may have made me sweat a bit and maybe the rash is from that...who knows anymore!!!

Took my other two pills..yuk! Going to see my neighbors these 2 girls are the greatest..they make the cutest couple and we love them..great girls. They want to see my before my next treatment, before I get the sharts again (thanks d1)

To all the girls cozening up to the chemotini bar tomorrow..I am buying the first round, again I am a martini drinker and I really miss having a cocktail or a glass wine..April 1st when I am done with this crap and I start my new life..that is what it feels like to me.New beginnings...

Hugs to all....xxoo

Hugs

golfer779

Hi Jewels,

Had a great day, first off, non of the "D" word today!  Thank god, as I did not have my cork packed!!!

Met with a RN who took measurements of my arms.  It appears that my bad arm is showing some swelling in the upper extremity.  Not alot but more than what she would say would be the difference between a dominant and non-dominant arm.  I took her measurements with me so the pt can compare with her notes.  Anyway, she is ordering me a sleeve, we couldn't quite get a good fit with the ones in stock, but I'll have it prior to flying in about two weeks.

Went to Nordstroms to return my camisole I had bought to wear after surgery, (never did wear it), that paid for half of the sleeve right there, but I will still pursue getting a reimbursement from my insurance.   Had lunch as well at Nordy's, and got home just a bit ago.

So ... D1, keep working hard on your le.  I was told today that the massage therapy to keep the fluid from building up is really important.  I havn't been very good at all in having the dh work my arm, to the shoulder and over the back.  Looks like tonights the night!  I'll be doing my exercises when I'm done blabbing here.

I got a hoot out of your elevator story, I love how you sized her up before answering ... high fives around!!!!

Sounds like a trip to the Bahamas will be in your near future.  What a great experience that has been shared by your sis.

Kathy, so sorry to hear you we're not up to going out last night.  I'd have to say it sounds like you made a smart move, although left you emotionally drained.  Was glad to hear that your doing much better today. 

Wow, 1.1 on the WBC, thats not leaving much to work with.  Does the N-nasty shot bring that up quickly?  I was given a real cool cookbook by my onc's nurse yesterday, its directed towards cancer patients, and devotes many chapters to those going through chemo.  Just what I needed a whole chapter on recipes for constipation and diarrhea!!!  It really reitterates staying away from uncooked/raw foods as well, when counts are in the sewer.  Thanks for the reminders as well.

Dana, sounds like your on track to listen to your body, hope that your studies and work don't become too much right now.  Rest when you can gal, you'll still be the warrior!

Kimberly, boy you have done some research, as my dh says, if it weren't for the drug co's making so darn much money from "C", they would have found a cure years ago.  Very interesting info, makes you really think ... my onc at Seattle Cancer Care alluded to the drug co's and what they promote/sell, in regards to the Adrianmycin drug vice the older version of CMF.  She more or less said that its a drug that shells out alot of mula to get the docs to prescribe it to their patients.  Its definitely alot about big business ... unfortunately we're just the little guy, trying to prolong our lives.

I'll pick the brain of a teacher on this one, son is taking hs Spanish.  The new quarter started Feb 1, the only item that the teacher has reported a grade on is one test, done this week.  (Unfortunately the son bomb the test).  I looked at his on-line classroom grades and the teacher has written that this test in 100% of the quarters grade.  No assignments/quizzes/labs/homework, nothing else counts towards the grade for the quarter.  I thought I'd e-mail the teacher, any thoughts? 

Vettegal, wow, how special to receive a hand made shall.  Now the question is, do you wear that over a T-shirt with FUBC on the front?!

I did get a chuckle from your "boneless chicken", and I'm right behind you with the martini and glass of wine!!!  Well I do have to wait til June.  Is is summer yet?

Looks like Friday will be a busy one at the chemotini lounge...

PALady (yeah on your last txt), Vettegal and Peg ... FUSE says it all, and to wvgirl, looks like your going to be halfway done, gotta like that. 

Hope you all are having a good evening ... Carol

deb102307

Been in the fog much too long this time. Missing the whole week at work.  They weren't kidding about the cumulative effects.  I am so glad that the AC is over yet apprehensive about Taxol.

dp left today to attend her mother's memorial service in Indiana.  And it will give her a break from me.  She really didn't need he double whammy.

Sorry to hear about the insurance and doctor issues.  Sounds like they all need to see the movie "The Doctor" with William Hurt.  Made me all teary eyed.

I hope all of you are working through the se's. I have finally read all the posts and am thinking and praying for all of you.  I have been feeling like a big baby lately.  I am not a crier, never have been but boy lately I have been so close and sometimes for no reason.  Doc gave me Ativan to help me sleep but while it helps me go to sleep, doesn't do much to keep me asleep.  And my Doc doesn't allow any tylenol, excedrin, or ibuprofen so all of those sleep aids are out. 

Just to vent a little, I am tired of being tired.  I am tired of feeling like a have a rock in my stomach and I am tired of "poop" problems.  Simple day to day tasks have become monumental endevours.  You should watch me peel and orange.  It can be comical.

There is comfort in knowing you guys are here.  Welcome to some new faces and love the new pictures.  Hopefully my fog will continue to lift and I can be here to support others again.  We are expecting a blanket of snow tonight and tomorrow (in Arkansas in March???). It should be so pretty.  I plan on taking lots of pictures.

Tonight, I am a blue jewel but hope to shine again soon.

wvgirl

I meet with Onc Wed I ask to have a MRI done after 4th treatment so we can compare the size from beginning to end of 4th treatment. He said we will do a Ultrasound. I want to make sure that this is working. I also meet with Onc Consoler. He offered to give me eflixer (spelling?) He said it is harder to wean off of than other medications. I told him I would think about it and let him know at next visit.

He did give me an option to give the dh. Things can get worse, stay the same  or get better I am only giving you 1 option. I am still crying but not as much. It's not than I am scared of the BC its the the feeling of loneliness. I pray for strength daily. Dear Brother called tonight I cried on his shoulder, Gottta love him.

Trian Lee Best wishes for you

Dana-Gotta B that's great. Hope you are resting

When I was first taking the decradon I take 8mg night befor 8mg day of then for 2 days after morning and night I was also taking 8 mg. I could NOT Sleep. I told the onc about this. He reduced my days after to 4 mg am and pm and it helped.

Di Sorry for the lousy day you had.

Liked the story of the T Shirt My friend who just finished rads in Oct said that at WalMart they sell something called radial pads and they helped her alot when she was burned by the rad

Carol- Well Well Well Maybe I am suppose to only receive 1 hug a month.Ha Ha He is withdrawn to the couch after dinner and remains there until the crack of dawn.

He has at least decided to go with me tomorrow to my treatment. This will be his first treatment experience.

I am the same way. I have been telling my gal pals to make sure you do your self breast exams along with your yearly mamo. And if you have dense breast ask for ultra sound. I spoke with a bc survivor her lump was the size of a golf ball and did not show on her mamo. I was talking with a friend this afternoon. She said when she had her mamo someone there told her if her mamo was clear she did not have to go back for 5 years! I told her they were crazy. She is over 40 I told her she better get going to get one. She said she has no health insurance. I told her that the midwife I go to can give her a yearly and and a momo for free. It is based you income. She is a single mother of 3 and only works part time. I hope she listens to me. Enough of the ranting onward

KathyL-Ohh Power ball. I was just talking about that today at work with some co workers. I told them we should get a pool and buy a bunch. Then when we will we can plan on our trips. I told them I would go on a cruise to Alaska first. Then I would fly to Hawaii to thaw out.

JulieK and Kimberly- You both are great. Teachers never get the praise and respect the deserve.

She She-Good Reddens to your old center. Sounds like you made a great choice

Paula Hope you have a great trip. I will get the information to you as soon as Shannon (Clinical trial nurse) e mails me with the information on the conference here in Morgantown.

Vettegal-Hey there I  hope that you have been able to display your gifts so that you dumb PITA(pain in the a##) boss can see them. Maybe this will give him a wake up call and realize how lucky he is to have you as an employee.

golfer779

Deb, it sounds like you kinda hit the brick wall that so many others have hit.  Its probably too easy for me to say hang in there as I've been so lucky to not get slammed with se's that totally wipe you out.

Your fellow sisters have taken some time to cry, bitch, "feel like a baby", and with some time they seem to come back strong.  You too will come back strong and be on the down hill slide of txt's before you know it.  You have definitely had a little more on your plate as your dp's mom passing on top of your txt's.  I think you need to give yourself a big pat on the back. 

When you are feeling down, this is the place to let it all out ... glad you vented, and hope you'll be feeling better emotionally/physically real soon.

wvgirl, dog-gone-it, that dh of yours is heading right back to capital letters!  Maybe going with you tomorrow will bring a little more education to what your actually going through, and lets hope bring on a little more support.  So glad that you have your bro for a ear to cry to. 

I didn't realize you are doing neo-adjuvent therapy, lets hope for lots of "shrinkage" with your ultrasound pics.  Remember we're all here for you,

Carol

Determined1

A post before I head off to bed.  I'll be on the road all day tomorrow as I go pick up my beloved college girl for her spring break.  Life is good.

I'm so sorry you missed the service, KathyL, but sometimes it sucks to be adultish and have to make what you know is the smart choice.  We all know your spirit was there, though, so please don't feel that your physical presence was a requirement.  Also--really appreciated your thoughts on the skin care.  My le specialist (I'm going to have to come up with a shorter way to type that) also suggested that I ask if there's something I can be using now to prep my skin to make sure the elasticity is at an all time high when I start.  I'm amassing quite a list to talk over with my radonc when he calls on Monday!

Sheshe--get thyself to a le specialist (there I go again)!!!  Anything that is considered a chronic condition must receive our attention.

Oh LWDana-a-a-a-a!  Sounds to D1 like you're burning your candle at both ends.  Listen to your body and respect what it tells you.  You cannot afford to make yourself sick (let the chemo take care of that ).  Build some rest into that schedule, please.

SIS Kimberly--Ditto to you, my friend.  Once again, that dance card is full, full, full.  Remember what I told you last cycle--accept some slow dances.  Oh, and you can rant any old time.  I always learn so much from them.  I found the info on the HT drugs fascinating, but sadly, not surprising.

CathyCA--I don't think I've told you, but I find you truly an inspiration.  You sound like you made a decision similar to mine, which is to be home while the kids are in high school.  They really do need the monitoring then, even tho they say they don't like it.  Besides, being there when they come in the door to toss their backpacks on the floor is the only time they share an inkling of what they did all day.  I always loved getting them snacks while they poured themselves a drink because they always told me stuff even tho they didn't think they were talking to me. 

Hope those truffles were a hit.  I can't imagine cooking anything right now--it would be so unsatisfactory because I can't taste...  And thanks for the info on the cream and the Expand-a-Bands.  Like I said earlier, I'm compiling a list of things to check with my new doc and your ideas are there!

Good to hear from you, Deb.  I know what you mean about the crying thing.  My family is having a hard time adjusting to the waterworks me.  It's always at it's worst the 10 days after tx, so I'm curious to see if I'll dry up and return to my more stoic self.  I will say the cries are sometimes cathartic, so don't beat yourself up over them.  You're going through an awful lot right now (on top of the bc, you're helping your dp deal with her loss, no small thing), so give yourself room.  Oh, and I can't peel an orange at all--my dead fingernails are so painful.  I can't even pick my nose.  (Okay, that's probably a good thing.)  Focus on your good stuff--heck, you're done with AC!!!!!

WVgirl--sounds like you're going to win the med appt frenzy next week.  Be sure you keep us updated.  I need to redouble my efforts in sending sensitivity vibes to your dh/DH.  I'm sorry you're experiencing pain in your relationship.  I'm thinking of you.

Yeah, Carol, I'm trying to figure out a way to work le massage into foreplay without it appearing too greedy on my part.  I'm thinking that would be a win-win.  I've been in my relationship/marriage for almost 31 years now, so you know what that means in the intimacy department...  Can I make this le lemon into lemonade????  Stay tuned.

Since Vettegal has offered to buy the first round tomorrow, I'm thinking that takes me off the hook, but please know I'll call out to Vettegal, PALady, WVgirl and Peg1212 as I'm headed off to get my college girl.  Hey, Vettegal and PALady, I'll even be in your state!!!  I'll toot my horn in your honor as I cross the state line.  Good luck tomorrow.

Cheers!

D1

JulieK_11_30_07

Good Evening Jewels - I survived tx #4 today with no problems. The only strange thing is that my treatments usually take 2 ½ to 3 hours - I was done today in just 2 hours! I told my dh, I sure hope they didn't forget something!!! I go back in tomorrow for nastylasta, then on Tuesday for my anti-nausea drugs and fluids. Let's hope this one's better than my first three!! I actually have two more, but I'm at least seeing the "light" at the end of the tunnel!

Paula - I hope you have a wonderful time at the conference with your students. This is the first year I'm not attending the State FBLA Conference and it's hard for me to think of not being there. I so enjoy watching the kids enjoy their success - it' so rewarding. I hope you have fun --- nap when you can!

D1 - sounds like having a hottie for a rad onc could be interesting. Wow - 6 weeks, 5 times a week!! That a lot!!You can do it, though, girl - you're our fearless leader, afterall! Hope they get the le figured out for you - that has to be frustrating.

Deb - sorry you're a blue jewel tonight. Hang in there and know we're all here for you!

Kimberly - interesting take on D1's dream!  You might have something there.

Dana - LW - you go girl!!And you rest as much as you need to get through this. We're all here for you.

Kathy - sorry you weren't able to go to night. Your heart was in the right place.

Carol - Oh, I would DEFINITELY be emailing that teacher!!! Only one grade since Feb 1 and it's a test worth 100% of their grade - I don't think so!!! There should be tons of daily assignments/activities/ worksheets/etc. Especially in Spanish. I actually evaluate teachers in my department and that's one thing I look for is the types of grades they take and how often and also the distribution of the final grades for students. If I notice any issues, they're addressed immediately!

Vettegal, PALady, Peg, and wvgirl --- go get ‘em --- FUSE!!! Kick some bc bootie!

My fog will be settling in tomorrow so I'll be lurking through the weekend. I'll touch base once I'm past the worst of it. Love and HUGS to all of you Jewels --- thank for being here!!

Julie 

vettegal

Good morning Jewels

Up at 3am..got a lil anxious these damn steroids makes me hyperactive..off to breakfast with the wonder dh then off to treatment...Lets go get em girls today...lets knock some chemo ass today....FUSE stay away today!

Hugs....xxoo

peg1212

Good Morning Jewels,  I wanted to wish everyone today good luck with treatments.  I'm going for No 3 today,and thought that I had 1 more left after this until I went to see the Doc on the 5th and she said I'm doing 6 instead of four what a bummer.  Guess i'll be bald for a little longer yet, getting use to it now.  It has cut down on get ready time a whole lot.  Can get a shower and dress and be out the door in about 20 minutes.  Have to find some kind of positivity in all this. 

golfer779

Vettegal, quite the early bird this morning ... hope you enjoy your breakfast out.  And I'll ditto your FUSE's for the four of you having txts today.

Peg, I would be bummed at the moment with being told of having to do a couple more rounds ... remember its the long run we're interested in so bring it on!

Julie, thanks for your input on the grade ... the thought of it woke me up this morning at 4:00, I'll be signing off here and e-mailing the Spanish teacher next. 

May your fog be very thin, and burn off soon!

Have a great day gals, off to work soon,

Carol

RN2teach

Vettegal, PALady and Peg-- good luck today. Go kick some BC bootie!

Gotta run... catch you guys next week!

Paula

KathyL

Hello Jewels!  Well, DE is back to gray and rainy.  But I plan on venturing out anyway today.  Hoping my counts are back up, cuz I need to get out of this house.  Gonna go do errands and meet dh for a lunch date

I'm gonna get sappy for a moment, so bear with me.  I just have to say that reading our posts just brings a tear to my eye (maybe I'm having some chemopause emotional surge or something, who knows?).  I know we've all said it, but this group is so amazing.  I really doubt that there's many or any others like it-- face-to-face groups, or internet.  We are pretty cool how we all support each other and interact.  Everybody has different lives and situations, activity levels, etc. but we're all so damn nice (to each other, and individually) I can't stand it.  Studies have shown longer survival for BC patients if they are involved in some kind of support group--- we should all live very long lives, Jewels, based on this group.  OK, I'm done now.  I'll also report that besides our posts making me tear up, commercials and news stories are doing the same.  Maybe I'm just going nuts...  But I truly meant what I said about us, even though I'm a teary freak recently for no good reason.

Many Jewels having a big day today-- hope everyone does well.

D1:  Love the t-shirt story.  We DO rock!  Glad some of my comments were helpful to you.  Have a good weekend with college girl, and try to not worry about that arm for a few days at least.  Focus on the hot doc! And your great le spec. (OK at least that's shorter).

Dana:  Hope you are doing OK as I'm sure the 'roid crash will be hitting soon if it hasn't already. ZZZZZ!  We all seem to be worried about you overdoing it.  A nursing pearl: you have to learn to take care of yourself first, then others.  It's kinda the same when you're a mom.  You are no good if you are burning the candle at both ends and exhausted.  Listen to your body-- you do not need to push through and be a martyr.  You have to practice what you preach to your patients-- take care of yourself!  I KNOW how badly you want to do chemo and school, but remember to put your body's needs first right now.  Maslow's hierarchy, girl (every good nursing student knows about that!): basic needs have to be attended to first!  You are just starting this crazy roller coaster ride.  Have a good, and sleep-ful weekend:)

Cathy-CA: what a bummer... making truffles you can't taste.  Chocolate still tastes crappy to me too.  Someday, we can all eat again...I think when we all get together you are going to have to bring samples of your "homework".  Yum!

Carol:  your cookbook sounds like mine.  I have one called the "cancer survival cookbook".  It's pretty good with the tips, and I've tried a few of the recipes in it-- not bad.

I got the neupogen when I was in the hospital; it's short acting anbd fast.  It brought the 1.1 to 11-something in less than 3 days (about 3 shots).  Now I get the neulasta which is longer acting; my counts have all stayed normal or above normal now.

Deb:  So sorry you are a blue jewel.  I think it's great that you get some relief here at least.  You have had some incredibly stressful thing happen recently.  Know that it will get better-- for every down, there is an up.  Hugs to you, and let the tears flow!

WVgirl:  AAAAgggggHHH!  DH is at it again.  Men are so dense soemtimes.  I hope today goes well for you and that maybe it will be an eye-opener for him.  So glad you have your bro...

As for Powerball, I have sooooo many dreams and ideas of what I'd do, I know I'll never win it!  But I keep playing anyway. 

JulieK: I'll be thinking of you this weekend.  Hope this round is finally the one to go smoothly for you.  it has to be one of these, right???  Lay low, and think positive thoughts... "I will not get sick, I will not get sick"...

Peg1212:  sorry you found out you have to do 6 rounds now, not 4.  What a major bummer.  But like Carol said, focus on the fact that it is what's best for the future and you can do it.  Let me know new dates when you get them.

Sis Kimberly:  I am seriously thinking of writing.  Do you have any idea of how to start-- like who to ask about it and how to get going on it?  I have some fabulous ideas flying around this little chemo-brain of mine.  But I don't want to start writing if there's no hope of getting published, ya know... too much work involved for us.  I have read of a mother/son (the name escapes me now) that have had bestsellers.  They writeunder a common pseudonym, and they don't live nearby each other.  They e-mail and call their story as they write it, and then get together at the end once before it goes to press.  We could really do this I think. 

Lastly, making another call for Jewel birthdays!  I am the record keeper, and I need some more dates!  So far, I have: D1, JulieK, Donna1955, WVgirl, SIS Kimberly, Carol (golfer), Paula, and Dana.

chj127

Hi all,

I'm 2 days past tx and starting to fog over...zzzzzzz.  Was OK yesterday, got the Neulasta, and even had Chinese food out last night, but I'll probably be under for the rest of the weekend.  I'm still hoping to get through one treatment cycle without any additional illnesses!!  It's going to be another dreary couple of days in the northeast, which always makes me sad, but I'll be pretty much homebound anyway, so I guess I'll just sleep through it!!

The good news for me this time is that I think I have figured out the right dose of Senokot for me - the pooper is working a lot better this time!  The constipation in the first 2 rounds was unbearable. 

Hi to Peg - you & I are on the same page, I just got #3, and have 3 more to go.  Nice to have someone on the longer jounrey with me (sorry you have to do it, though - bummer when you had other expectations!)  In the meantime, Peg, I just have to ask you if you ever go to the Meadows frozen custard place in Hagerstown.  It's a franchise from my original hometown (Hollidaysburg, PA).  Good stuff - especially the chocolate frozen custard!!  I recommend it highly.  We've been to the place in Hagerstown a couple of times but there are other outlets near here also.

KathyL, I know what you mean about the support in this thread.  Everyone is so wonderful about sharing and not holding back.  It helps so much to know I'm not alone!! 

Also, Kathy - I didn't bother about my b-day because it's past, but it's January 27.  Thanks for keeping up with everyone!

Good luck to all of you going for treatment today.  Kick some butt!

Later,

CHJ 

tinalee123

Thanks for all the kind shout outs, and good thoughts and vibes you all sent!  Below, you’ll see just how well they worked!!

Deb – Sorry you’re in the fog.  Blessings to dp as she travels to her mom’s service – I’m sure you’ll be missed.  I hope these comments will help alleviate an anxiety about the taxol to come.  I had my first taxol yesterday.  I was completely freaked out by the thoughts of it, I think I’d read too much negative stuff.  But, I’m here to tell you that #1 wasn’t as bad as I thought.  I’d been taking Claritin once a day for about a week before tx, onco said that was a good thing, as it will help with body aches as well as the potential allergic reaction.  Sat down for tx, they gave me a Benadryl pill and started me on my Decardron (steroid) – I keep telling them they’re screwing up my eligibility for the Beijing Games this summer dammit!  Then, they dripped the taxol nice and slow.  I was prepared to be there for HOURS.  But, dh popped out and fetched us a few bagels to chew on, I was armed with drinks and apple sauce and my knitting.  Fell asleep for about an hour, probably due to the Benadryl.  Luckily, dh had wireless internet access, so he was happy as a clam to keep working and surfing during my drool fest.  I was done with tx about four hours later.  I was expecting at least 5 – 6.  So, was pleasantly surprised.  Now…the true test will come with the se’s.  I’m feeling the steroid warmth today.  Onco told me to continue with Claritin, and that I will probably be able to scale way back from the nausea meds for AC – but to just see how it goes.  I’m happy to do that, as they cause me quite a bit of constipation.  I’ll keep you posted on days 2 – 6, which were my tough days on AC.  But, so far so good!  These, along with LC13’s  positive comments on taxol, should help the mental part of preparing for the next round.  You can do it girl!

LWDana – You are one closer to be doing, honey!  Stay hydrated and get lots of naps!  Pretty icon picture.

D1 – Great t-shirt story.  I wish it was warm enough to wear mine to tx…it was -3 this morning.  We’re still dressing like Eskimos here in MN.  We eventually do get Spring…um, some time around end of May, early June…

Kimberly – I’m reading what you wrote about Tamoxifen with my chin on the ‘puter!  That is what I’m scheduled currently to receive following chemo, for the next 5 years!!  Help me with one thing…”ooph”?  For yourself, you’re thinking of going this route vs. the big “T”.  I think someone made mention that you had posted some details on another thread?  I’d be happy to go read, rather than have you repost what you wrote.  Let me know.  Thanks!

Sheshe – Glad to hear things are going better for you, girl!  Fluids are your friend!

Vettgal – Thanks for the laugh, we all need that, don’t we?  I’m with you on the martini front.  I had a beer with my fish fry last Friday, and, oh that was so good.  I am scared to venture into my wine collection for fear that they’ll taste “off” – what a waste that would be!  Same with the ‘tinis and cosmos…Good wishes to you today.

Carol – Will you let me know what kind of a sleeve you ended up going with?  Where are you traveling to?  Hopefully some place fun!  I have a lot of travel for work, and pleasure coming this summer and fall.  I am going to be making an appointment at my breast center for a sleeve, following a pt (dragging… kicking and screaming) appointment.

Wvgirl – Sending good thoughts your way that things are working – keep the faith, friend.

Julie – YAY for #4, you’re definitely on the backside of this thing.

Peg – Good wishes for you today.   

PALady – Good thoughts coming your way, too!

KathyL – Nice words…everyone here benefits from the positive vibes and prayers, it’s good to stop and think about how this kind of support can have a benefit in the overall wellness and the impact on our (collective) long term health.  Thanks for the reminder!  My birthday is:  May11 (Mother’s Day). 

CHJ127 – Thinking of you, hope your weekend is uneventful and you get some good rest.

All the best to our friends who bellied up this week, and hope that se’s are mild.  To those who are on your good week, looking forward to lurking and reading all your posts.

Happy Friday…heading off to get the neulasta shot later this afternoon.

Tina

chj127

Hi all,

One quick thing - I think it was on this thread someone was talking about bandanas and such.  The regular sized ones are too small for full coverage, and the 35" ones (ala headcovers.com) are too big.  I found www.bandanaworld.com that has 27" bandanas ("oversized").  I ordered a few, the standard paisley ones and they have solids also.  They came in less than a week, and were only $3.00 + $5.75 for shipping.  They seem like a really good size and will be cool for spring.

Thought I'd pass that on!  Back to the sofa, it's one of those foggy days...

CHJ 

Cathy-CA

Peg -- sorry that they've extended your treatment.  I know I'm celebrating being half way done and would have to mentally readjust to having more. 

D1 -- Thank you!  The high schools in our area are far enough away that walking isn't an option.  It seems like sometimes our only conversations were when I had them trapped in the car with me.   The youngest has been driving for over a year and I do like being home when he breezes in just to hear about his day.

KathyL -- I'll be happy to bring samples of whatever you would like.  A group of us are getting together next Friday to make biscotti and I'm hoping the taste buds are back by then.

For all of you in bad weather, I wish I could send you some Southern Cal sun.  Aqua aerobics is in an outdoor pool and this morning was in the 70s with blue skies and warm sun.  It's no wonder it makes me feel good.  I'm going to see "Miss Pettigrew Lives for a Day" with a friend this afternoon.  It looks really cute.

SISKimberly

Good Morning Jewels-
I had a busy day yesterday, and went to yoga again…it was so nice. Slept great again last night.

My brain has been mulling over the whole rads vs no rads thing.  I just need let it go since there is nothing more I can do until I talk with the oncologists. 

So, tonight dinner out with some friends, then a nice day in Calistoga with those same friends. Hoping wine tastes good since we’re going to a Jazz and Wine festival.

CathyCa- Hope you did will on your chocolate truffle test. Jean’s Cream is something to look into along with the Calenuda Cream.  I’m all for preventing the burn if I do decide to do rads.

No chemo because her cancer was ER+? That’s weird.  I’m ER+ and not doing chemo wasn’t even an option. I’m glad your friend is doing so well having gone through another bout of cancer of the colon.

I’m loving cinnamon on my applesauce.  Enjoy your movie this afternoon.

Dana- Totally know it’s hard to think you’re pretty when you feel like poop. Hope you find being at work or school helps take your mind of feeling icky. Maybe being active is what will work for you, like it does for CathyCa.

Vettegal- You are just raking in it girl!!!!  See, what goes around comes around.  You’re a wonderful human being, and you are being given back the love and support you’ve given to others in the past. 

LOL, loved that boneless chicken.  I’ll bet it’s organic, too…no added hormones or antibiotics…so no erectile dysfunction drugs for him. Hahaha.

April Fools Day is the end of the chemotinis and the hello to Martinis day, eh? That’s my 5th of 6 infusion’s day.  Like I said earlier, I’m hoping for the “April Fools, you don’t have to do chemo today, as a matter of fact, you’re done” fantasy to manifest into reality.  The thought of three more…uugh!!!!  Good luck today!!!!

Carol- WhooHoo on no sharts during your sleeve outing, and for getting it ordered. You’re right about just paying for it and continuing to fight for the reimbursement later. With letters from the onc, the pt, and this nurse, how can it be denied again?

About your ds and his grade for the quarter. I imagine that since the quarter has only been in session for a month, this test can only be 100% of the grade at the moment, but what about the class work and homework for all this time?
When you look at last quarter’s grade, are assignments included that aren’t tests?  I know that I enter all assignments -Formative and Summative, but anything that isn’t ‘Summative’ like tests, projects, or final drafts of essays is only 10% of the grade.  We have no control over what these numbers, it is district policy for the middle schools. 

I’d email the teacher and ask if all the grades have been entered because it seems strange to only have one grade for a month’s worth of class time, and whether or not your ds can bring his grade up to a passing grade before the quarter ends.  I’d also ask if he’s using his class time wisely and doing all of his work.  Does he have a buddy in class he can have over to practice with?) Are there retakes on tests?  Some teachers do offer retakes. Good luck.

ARDeb- Oh sweetie, we all know how you feel creeping out of the fog, so tired of feeling tired. Tired of the rock in your gut. Tired of the pooper problems. Tired of all of it. FUSE!!!!!!!  The good news is that the fog is lifting and you’ll be able to get your energy back before starting your Taxol. You’ll have more time in between infusions, so that will help a lot. 

I know that your dp’s mother passing and you’re being so sick has probably worn your dp down, and you’re right about being away, although for sad reasons, being good for her, but I’d say for both of you. This had been a tough road, and stepping back to get space and perspective is always good.

Enjoy the snow Deb, and know that you won’t be a blue jewel for long.

Wvgirl-Good for you asking for the tests you want to give you peace of mind.

Sounds like your counselor is on the ball!!! I like the advice he gave you. If you don’t tell people what you need, you won’t get it. If you accept what you get when it isn’t what you want, then you’re teaching that person to keep giving it to you.  Thank goodness for your brother!!!!

Hope your infusion goes well today and that your husband has an understanding, after witnessing it, of what you’re going through. Of course, he’s not wanting to face this reality, thus running to the couch when it gets too real, so I’m thinking this won’t change his behavior much.

Regardless, it sounds like you’re getting strong within yourself, and that’s always good!

D1- Oh, I do rest a lot. Wednesday was a total rest day as is today…except for laundry and dinner out, but that’s not too over taxing. I’ll also head over to see the ds this afternoon, and that isn’t taxing either.

Have a fab drive to get the college girl. A whole week off… nice.  Are you guys doing anything fun next week?  My son’s time off is the week after next. He’s looking forward to using that time to get upcoming school work done before it’s due to lighten the load when he returns after break. Smart. Hmmm, wonder where he got that idea?

Julie- WhooHoo, isn’t it nice to say, only 2 more? I’ll be there next Tuesday when you’re getting the IV fluids and anti-nausea meds.  Hope the fog isn’t too thick this time around. Take care of yourself and lurk away!  Thank goodness there aren’t any major school projects to get done this weekend, eh?

Peg- OK, I know you were hoping to be almost done with 4, but at least you can say, I’m half way there!  Good luck today.

Kathy- You are such a sweetie!!!!  I love your sappiness. I totally understand being more emotional as do so many of our Jewels…nothing wrong with being emotional and who cares why? It is what it is!!!!

Oh, me too on the ideas running through my chemo brain. I’ll PM you and give you some details and my home email address so we can start sharing ideas.

Kathy, I’m going to just change the wording if you don’t mind for Julie…instead of I will not get sick… focus on the positive wording of I will be healthy and strong.  The word ‘not’ is never really heard, and what follows…will get sick…is what’s heard.  A little something I learned in my psychology/teaching training.

CHJ- OK, the same goes for you. Focus on I will be healthy and strong rather than I hope I don’t get sick on top of this. Don’t is a negative, so what is left is ‘get sick on top of this’.  We’re all pulling for you to have a healthy and strong reaction this time around. We’ll see you on the other side. Happy Belated BDay!!!!!

Oh, I’m with you on the half way train until Tuesday, then I’m on #4 of 6. I’ll let you know how #4 is compared to #3,which kicked my butt and made me a weepy little blue jewel.

Tinalee- I’m so glad all went well with your first infusion of Taxol. Sounds like this will be much better than AC.

I know the big T is a scary drug, but please don’t let me influence your decision as we all have to make our own choices based on our knowledge and our needs. My goal is just to let you know what I’ve learned and let you check it out. Anyway I’d rather do an ooph…removing the ovaries to reduce the major estrogen producer than take drugs for 5 years that have horrid se’s for many women and others who get no benefit because they can’t metabolize the drug well. There is a test, but it’s expensive and not just offered of course. There are several threads that deal with Tamox and Oopherectomy. The thread titles are:Tamoxifin-risky? Quitting Hormone Therapy and More Ooph questions.  The Alternative Therapy group has interesting stuff, too.

OK Jewels.  For those bellying up to the bar- PALady,Vettegal, Peg, and wvgirl- today…here’s to you!!!! FUBC!!!

SIS Kimberly