Cytoxan and Taxotere ?

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  • loopyloulee
    loopyloulee Member Posts: 80
    edited November 2007

    Thanks Ladies!  I do not know why they said I would not lose hair, I am really ok with it, just want to be prepared.  I am not going to be caught without hair or a scarf or something.  I think your all correct about the nails.  I will go and have them removed this weekend!  I am so glad that I found this site.  I'll keep you all posted.

    Lou

    Hey guys!  Forgot to tell you all that My daughters and I went to the Coach Purse outlet yesterday!  I felt I deserved a Coach for chemo!  Good idea, right??

  • karen1
    karen1 Member Posts: 23
    edited November 2007

    Hi,

    I finished my 4th and last t&c treatment on thursday the 15th nov.  Still tng to feel better.  no nausea, but fatigue is greater this time.  I have cracks on the sides of my mouth and have been using biotene mouthwash, any one have any other ideas? For all  of you that are out of Chemo,  how long does it take for your hair to start to grow back.  I have some left but it is white and corse and does not cover my head.  Along with the ghostly complection the white hair is not attractive.  Oh well just glad this part is over.  I had mammosite so rads are finished,  now I am told when I see my onc in Dec,  I will be put on Tamoxifen for 1 year and then a AI if periods don't resume.   Also how long does it take to get your energy and feel somewhat normal?  Thanks for any suggestions. 

  • clubmember5
    clubmember5 Member Posts: 15
    edited November 2007

    dear lady4law  I had 4 rounds of tc and blood counts went down after chemo also...neulasta brought it up...still remains a little low months after chemo has been finished.  Dr. said this is not unusual and I sleep with two BIG MainCoon cat everynight and I'm not dead yet!!!!  Couldn't live without my cats...they were my best friends through it all!!!!  I also have birds.  Just be careful and you will be fine.

  • Harley44
    Harley44 Member Posts: 5,446
    edited November 2007

    Hi there,


    I have TWO cats, and they were a big help through all this bc treatment.  They even slept with me some nights.  I really believe that animals can sense when we are sick or hurting, or upset emotionally, because when I was really down or depressed, that is when they came and slept with me, or were especially receptive to my needs.

    Gotta love those cats!

    Harley

  • GoodMommy
    GoodMommy Member Posts: 294
    edited November 2007

    Harley and Clubmember,

    You are right about cats.  My cat, Cougar, would spoon behind me on the couch as I was recuperating from chemo.  I never told her not to walk on my chest after the bi-lat mastectomy, she just knew.  She was my best friend next to my husband during treatment.  Unfortunately, after 16 years of love, we had to have her put to sleep a month ago.  The house still seems empty.  Tonight, give your cats and extra hug for me.

    God bless,

    Chris

  • jane1607
    jane1607 Member Posts: 9
    edited December 2007

    Has anyone here had carboplatin with taxotere? it was suggested to me recently for an 'undiferentiated recurrence". Sounds horrible, and doc couldn't really give me any stats or results or outcomes, just threw it out there as an agressive chemo b/c my cancer came back but without the HER2+ status they expected from first time. What is it? How long do you get it? what's the dif between Carbo and taxotere? Any ideas?

  • wendyk13
    wendyk13 Member Posts: 1,600
    edited December 2007

    Hi Jane....

    I had Carbo and Taxotere with the Herceptin.  Taxotere works well for E/P+ bc and carbo has been shown to work well for Her2+ bc.  I had 6 rounds of C & T, every 3 weeks with H every week until chemo done, then I went to every 3 weeks for H.  Meds must have worked great as I was never sick, never tired.  Fingers and toes did get a little tingly from the T...also taste buds got REALLY screwed up for 8-10 days every round but that was about it for me.  Hair of course went but it is now growing back quite nicely.

    Hope that helps.

  • Harley44
    Harley44 Member Posts: 5,446
    edited December 2007

    Chris,

    I am SO sorry to hear about your loss!  Cougar was a VERY SPECIAL cat, and I can tell that she was very well loved! 

    We got a new recliner and Spike and I have races every evening, to see who will get in the recliner first.  He LOVES that recliner, and I will just be sitting on the sofa, watching tv, and thinking, "gee, that recliner is comfortable... maybe I'll go get in it!"  And, just like he has ESP, he comes over and gets a running start, and jumps into the recliner!  It is so funny! 


    But, we just had a sofa delivered, and now BOTH Spike & Thor love the sofa.  The sofa and recliner are both micro suede, and they just LOVE IT!

    Hugs,

    Harley

  • jane1607
    jane1607 Member Posts: 9
    edited December 2007

    Ok I'm confused now about why he even brought it up as a treatment, since I'm triple negative. It's not that I am giving up but what would be the point of going through a course of treatment that is specifically designed for a different type of disease? I would do it in a heartbeat if there was some sort of results to back up the reasoning but.....I think I just annoy the doctors when I insist on these stats and explanations but hey, I have to live in this body...I ned to know why I am putting it through whatever treatment I decide on!

  • DianeB
    DianeB Member Posts: 78
    edited December 2007

    Did anyone have the choice between TC x 4 and CMF 5fu? If so, what helped you make your decision? The CMF 5fu being offered to me would be once a week for 24 weeks, but would be less toxic and I probably wouldn't loose my hair. But TC seems to be the one most oncologists go with. Any advice?

  • DianeB
    DianeB Member Posts: 78
    edited January 2008

    Karen:

    I just started my tc x4. Would it be alright if I emailed you or called you about your treatment? If you would email me at pdblough@verzion.net, I would really appreciate it. I need to talk to someone who is going through the same treatment. I am feeling sad and discouraged. I feel weak and know I have many weeks to go.

  • NANA45
    NANA45 Member Posts: 44
    edited January 2008

    DianeB

    I completed the regime T/C x'x4 in June.  I found it very doable and yes I did take anti anxiety meds.  The fatigue was cummulative building as treatment progressed.  I was completely terrified, but I did it, and now in retrospect it really wasn't that bad.  Just remember you are killing them cancer cells.  Use these fine women on these boards as your strength they sure helped me.  I read and researched everything I could.  I also worked throughout all my treatment.  T/C x 4 and 33 rads.  Glad it's over, hope it worked, live one day at a time.  Take your meds faithfully, and relax.

    Take Care

    Sandy

  • NANA45
    NANA45 Member Posts: 44
    edited January 2008

    DianeB

    I completed the regime T/C x'x4 in June.  I found it very doable and yes I did take anti anxiety meds.  The fatigue was cummulative building as treatment progressed.  I was completely terrified, but I did it, and now in retrospect it really wasn't that bad.  Just remember you are killing them cancer cells.  Use these fine women on these boards as your strength they sure helped me.  I read and researched everything I could.  I also worked throughout all my treatment.  T/C x 4 and 33 rads.  Glad it's over, hope it worked, live one day at a time.  Take your meds faithfully, and relax.

    Take Care

    Sandy

  • DianeB
    DianeB Member Posts: 78
    edited January 2008

    Sandy:

    Did you have days were you felt "normal" and energetic? This is my first week and I just feel exhausted. I can't do much of anything and I'm not exactly sleepy.

  • loopyloulee
    loopyloulee Member Posts: 80
    edited January 2008

    Hey Diane!  I think everyone reacts differently.  I do have days where I feel normal and energetic.  They are usually very close to the next treatment date.  for example, I felt great this week, and monday the 7th is my 3rd treatment of tc!  I have never felt overly depressed, but then I am one of those people who is usually very up beat, so maybe that has something to do with it!  I look forward to the end of this whole ordeal.  The 28th of this month will be my last treatment!  So I am looking forward to mid February and getting back to normal!

    Lou

  • love2canter
    love2canter Member Posts: 5
    edited January 2008

    Hi Karen,

    Don't see that anyone addressed your hair question, so I'll try.  Mine started growing back about 6 weeks after the final chemo.  Right not it's about 1/2 to 1 inch long (longers in some places than others) and it's been 6 months since my final chemo.  It really takes a long time to grow it back unless you had it short to begin with.  Still seems like one of the minor side effects to me, since it does come back.  Good luck!!

    Nora 

  • SharonS
    SharonS Member Posts: 326
    edited February 2008

    Hi Ladies - I am scheduled for 4 cycles of TC beginning 2/26...so one week to go. Got my port today, good decision as had to stick me 4 times for the IV...don't know what was up with that...b/c I do have good veins....Going to take the pain meds they gave me painly to get a good nights sleep...there is so much sickness around it worries me when I can't sleep.

    Have to stay home tomorrow, since they won't let me drive...so plan to enjoy that as well..Good luck to everyone going through treatment...good to know there is a place to go to talk about what is going on...

  • lazlo63
    lazlo63 Member Posts: 3
    edited February 2008

    Hi G. First time on this sight. I had stage three 12 positive nodes 3 1/2 years ago. Did a mastectomy, and 4 treatments taxol/cytoxin and 3 ad., then radiation , left breast. I also had a preventative mastctomy to the right breast 3 years ago. I was just diagnosed with a second primary cancer in my right nodes, 19 out of 24. Turns out the "healthy breast" had cancer cells when they pulled up the path from 3 years ago. What a blow. I will be getting 7 treatments TC every 3 weeks then radiation. Starting in a week. I already have numbness in one hand from the first round of chemo, and Im nervous about the taxotere . I dont know anyone who has had two separete stage 3 cancers. Im really scared. Im also on arimadex. love to chat with you. Lazlo

  • bean4865
    bean4865 Member Posts: 64
    edited March 2008
    Hi all! I had my second round of T/C today. Breezed right through the first one, but today I had a reaction. Not real scary as I had learned some from the nurses, and so much from all of you so I kinda of knew what to expect... some trouble breathing,very flushed in my face and neck, blood pressure went up, and I had some weird spasm in my lower back that started probably immediately after the nurse asked me if my back hurt. I said no and there it was...the spasm, then I said yes and felt like a nut case. The nurses were all gathered around. They are all so attentive. My poor mom had to witness but she was so good and calm. It really wasn't that bad though. They stopped the drip immediately and soon after all side effects stopped. They gave me some more saline and decadron which is probably why I am writing so late...I'm wired!!! After that I did fine. Now they know what to do next time. Well 2 down and two to go. I'm halfway there. My hair started fallin out last week so my husband buzzed me on Friday. I've gotten so many compliments on my new wig that I am beginning to realize that my real hair really was that bad. People are saying how much they love my hair and what did you do differently. I love their faces when I say "it's  a wig"...Surprised priceless!! You really have to try and have fun with it. I love to bust people. They all know I had bc and am on chemo, but I think they just forgot about the hair thing. Oh well gonna go and try to sleep. Thanks for listening.
  • aran63665
    aran63665 Member Posts: 7
    edited March 2008

    Hi all,

    Just starting T/C with Neulesta next week.  Love this site - such wonderful support.  Thank you for the good humor too. I am so scared that I am already nauseous! How many of you wore a wig vs. a scarf or hat? I am not sure I like the wig thing.  My surgery is still healing internally - how long after surgery did you start chemo?  Mine is about 4 weeks apart. Please write. aran

  • Dansmom
    Dansmom Member Posts: 82
    edited March 2008

    Anyone starting this soon or recently?  I'd love to hear your thoughts about going to work while getting chemo.  I have a pretty high stress, fast paced job with lots of thinking, interruptions & decisions.  I usually love it and it's been great to be there since my diagnosis.  But tonight I came home exhausted - I think just emotionally worn out & I haven't even started the chemo yet.

  • BuckyB
    BuckyB Member Posts: 1
    edited March 2008

    I had Carbo and Taxotere with Herceptin every 3 weeks for 6 sessions. I shud say I will be having my 4th treatment on Monday.  My complaints are nausea, constipation and fatigue.  The nausea is the worst, but it doesn't last that long.  I am also prone to motion sickness which may have a bearing.  The herceptin I get every week.  It is virtually symptom free.  It can however, be tough on the heart.  I am Her+.  Good Luck  CBuckyB

  • gramadeb
    gramadeb Member Posts: 210
    edited March 2008

    My onc told me that Cytoxin and Taxotere have similar results to Adriamycin, Cytoxin, Taxotere without the cardiac involvement. I am waiting my oncotypeDX results - if I am high I will be receiving the Cytoxin Taxotere 4 doses every 3 weeks

  • aran63665
    aran63665 Member Posts: 7
    edited March 2008

    Hello all,

    What did you take in your bag when you went to your TC treatment?

    What sort of food should one eat before the treatment (or not eat?)

    What precautions did you take when your WBC counts were low? Did you wear masks, stay home, use gloves for everything? What about your family, kids (mine are teenagers) and precautions they need to take? Could you cook, do laundry?

    Thanks so much for helping me with this. Going nuts preparing for my first treatment!

    Love to all, aran

  • Kindergarten
    Kindergarten Member Posts: 4,869
    edited March 2008

    Hi, there!!!!! I had four treatments of cytoxin and four treatments of taxotere three and one-half years ago. Both were very doable and the amazing part was I had a great clinical response to both. I did the chemo before surgery and by the time I had surgery my tumors had pretty much disappeared. I am glad I did the chemo before surgery. I then had a bi-lateral masectomy. I am now on aromison. I believe in being very agressive. I also had 36 radiation treatment. I feel darn good. I hope this helps. God bless you, Kathy Prihode

  • Dansmom
    Dansmom Member Posts: 82
    edited March 2008

    Aran, I start treatment in the next 1-2 weeks and my husband suggested that I go get my teeth cleaned - I thought that was brilliant.  I'm sure they don't want somebody poking around in your mouth.  I went to a look good feel better program on Monday & they suggested using pump soap so that you don't share soap with your family.  Also that you go ahead & get your wig if you're going to have one and start wearing it - just to give you a little more control.

    I have an apt with the oncologist in a week to get the instructions & dates.  I'd love to hear what you're doing - sounds like we'll be going through this about the same time.

    Take care! 

  • boobandahalf
    boobandahalf Member Posts: 2
    edited March 2008

    I am 5 days out from my first infusion on T/C.  I didn't have any nausea but did have the headaches. I took Advil and was able to suffer through. Kitrel the anti nausea med is the culprit. I have had mild tiredness but I have a cold. I also noticed my taste buds are really messed up. Nothing but bland taste good. Mexican, my favorite, taste horrible.....my husband will be happy. I have 3 more treatments and so far so good. My problem is the hair loss. I will be giving up my hair tomorrow before I lose it. I will be rubber banding it to keep it for ball caps and hats. I did get a cute wig today. I also went to my first breast cancer support group today. I am glad I went.

  • kathys_hubby
    kathys_hubby Member Posts: 25
    edited April 2008

    Hello, ladies. I'm Steve, my wife Kathy was diagnosed in January, had surgery end of February, and started her TC treatment on 3/25/08. She is er+/pr+, HER2-, 3.8 cm, 4/20 nodes. And she is very frightened. We have an excellent doctor with a great reputation who is absolutely convinced that 6 treatments with TC (followed by radiation) will do the trick. She is 47 years olds. The tumor was removed cleanly, and she has an expander in place which has "balanced" her very nicely! She is concerned that she should be receiving adriamycin to make sure they do their worst, even though the doctor and many articles I've read seem to indicate that the TC is just as effective for her situation. We have four kids, and she wants to make sure this works.

    It was obviously all a big surprise for us, she is young with no family history and no risk factors. Although she is a very strong woman and a very positive person, she goes through the "why me's?" on occasion and today is one of those days. Anyone else out there who had node involvement (IIB or IIIA) and can offer words of encouragement? Bone and CT scans were clear. She really,really wants to recover and live a normal although changed life. And I sure want her to also!

    BTW, we are at Day 9 after her first treatment, and other than bone aches (Neulasta?) and metallic taste in her mouth she is doing fantastic. She had Emend for nausea the first couple of days and it did the trick. She's been eating like normal with no unusual side effects. Her hair hasn't done anything yet, but we did go wig shopping Saturday in anticipation of the inevitable. We hear it usually hits around day 14 to day 17.

    One treatment down and five to go! Those of you out there who pray, please pray for my Kathy!

    Steve

  • barbara46
    barbara46 Member Posts: 2
    edited April 2008

    I am starting TC on Monday this is after a bad round of my first chemo on.  I was given carboplatin, so now the thinking is cytoxen.  I had such a bad expeience with the first round, I am so scared.  Any comments would be great.

    Have a great day, Barbara

  • barbara46
    barbara46 Member Posts: 2
    edited April 2008

    Hi Steve,

    I was diagnosed with bilateral breast cancer in Dec.  I am a former hodgkins patient.  I had Hodgkins 20 years ago.  This is cancer of the lymph nodes.  The radiation treatments that I received gave me this breast cancer. My left breast is her2neu pos, no lymph node activity, 1.7 cm tumor.  The right breast is er/pr pos, 4/10 pos nodes and a 1.5 cm tumor. 

    I had both breasts removed and started the reconstruction process in February and did well with the surgery. 

    My doctors originally gave me a drug that they find to be too hard on me.  I've was really sick for my first treatment.  I will have my second treatment on Monday.  TCH.  I am told it is just as effective as AC.  I cannot have AC as oriingally thought because it would cause acute leukemia because of my prior with hodgkins and radiation.

    I am scared too, and I am at day 14 and my hair is about to go any minute.

    I hope Kathy does well.

    Barbara

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