Roll Call November 2007
Comments
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Whoo-Hoo Sabrina! I'm tossing confetti for you over here
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Hip, Hip, Hooray...It's been one...Next....Holla...Peace Out...More confetti....Balloons...
Hey, ladies I am home and besides feeling a little woozy from the benadryl I am doing ok. My appt went well today. I took in cookies and a beautiful card to my onc and the nurses. I am so thankful to them to have treated me and my family wonderful. I asked my dr now what? In a month I go back for blood work and a bone scan because I asked him about getting my ovaries taken out. A few years back I was dx with Polycystic Ovarian Disorder. Where you gain weight, grow excessive hair in places a woman shouldn't have hair and your ovaries make cyst and hormone inbalances. I had fibroyds and my gyn took out my uterus but wouldn't take out my ovaries because i was too young. I was also dx with Hyperthyroid which messes with your hormones. Yes I am (tore up from the floor up). From reading I am finding out that some of this has been the instrument to me having bc. He says since my tumor was her+ receptive I could most likely be a candidate even at this age (38) to go ahead and get my ovaries removed. He said since I only had 3/24 lymph nodes no need for radiation. Thank God.
I am going to try desperately to get my body in order. Eating right and excersising. I made it through this far and I want to be around even longer. God's Will...
So now on to the next phase....Are yall with me??? I sure hope so.
May God bless and keep you all
Sabrina
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Sounds like good news to me, Sabrina. Onto the next phase - I'm with ya!
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Sabrina, Please keep in touch and keep posting. I love the humorous side to you. CONGRATULATIONS GIRL!!!!! You deserve all the praises.
YOU GO GIRL!!!!
Crystal
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Good morning Ladies...
Still feeling good after last tx...tried to sleep in a little today but hubby crawled in bed with me and started sounding off. I swear all the gas he has in him can fill up both of our cars.lol...oh I can't stand him. We have been together since we were 14 years old and he has not changed a bit. I love it when he spoils me though. Today he said we are going to take it easy while the kids are in school and order lunch in. Made a slammin peach cobbler last night for dessert think Ill spoil my self with that good treat today. Well I seem to just be rambling on.
How is everyone else doing? I hope to blessed to be stressed.
I love this thread and I am not going anywhere. I will continue to pray for you all and please continue to pray for me.
May God bless you all and keep you. For by his stripes we are all healed.
have a blessed day
Sabrina
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Hello ladies, hope everyone is doing well. I made it through my first tx of taxol today. No bad. I did have some nausea during infusion but I took a zofran and did ok. The benedryl made me sleepy. I slept an hour and a half after my infusion was done. The nurse didn't want to wake me bacause he didn't want my driving home sleepy.
Sabrina-Congrats!!! I can't wait to be where you are :>
I saw the cardiologist tuesday and you know he had the nerve to ask me if I went to church! It was his third question to me and it was the way he asked me. What does me going or not going to church have to do with my visit concerning my heart. This was the first time meeting this man...he doesn't know me from eve and he thought it was his right to ask me something like that. I've known my onc for five months now and he has never asked me that and we talk about everything! I was so stunned that I couldn't focus on anything that he said after that. I told my dh and he was furious! At first I thought, omg! something must really be wrong with my heart and that my onc didn't come clean with me about the muga scan. After he(the cardiologist) left the room for a few mins I thought that maybe he was judging me, that because I don't go to church was the reason I got the cancer and is now having this probem with my heart which really pissed me off! I have never been asked that question before by a physician. Why did he think that my faith was any of his business in the first place. Who gave him the authority to ask me something like that! Let me stop I'm getting myself worked up again. Have any of you ladies had this happen to you? If so, did you think anything of it. Am I making too much of this? I mean, to come out the blue and ask me that and not have a reason for it just doesn't seem professional to me. I can see if I asked for his help but I didn't. I have faith in God and I believe in prayer. Even that is none of his business!
Ladies let me go. I hope everyone has a great weekend!
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sharont68 - Congrats on getting thru the 1st tx of taxol. Are you on cytoxan also? I am on taxotere and cytoxan (TC). That has never happened to me;sounds a bit unprofessional. Do not let that get under your skin!
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Hi ladies,
I'm not African-American, but I just want to let you all know I enjoyed reading your thread. I'll keep you in my prayers. God saves, God heals!
Love and blessings,
Aurora
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Hi Felicia,
Thanks--I am hanging in here tough!! Could not run from the "uglies"in the air and wind up with bronchitis for my birthday on 2-14.
So I celebrated last week.
Our weather---well I have had enough snow---snowed today and was 21 degrees, I do not let this stop me, I am so thankful to be able to move and go--I just go--GONEON (lol)
Take care.
Linda C
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Hi Sahron68.
I am appalled at the question by the Cardiologist. However I am finding more and more, that some of the "Professional people" have not learned or been taught how to talk to " the patient" and I have heard alot. I have felt like some of their colleagues at times and have had to laugh because they can't have a clue. I worked in hospitals for years and am "old school" and there are some things you just don't discuss with "the patient"and I guess until we make it known if we are offended, they will just keep on.
You might just ask him sometime---What was his Point of that conversation?!! Some folks "when they just found Jesus" and this could be him, this is how they "roll"--could be about him, and nothing to do with you---but we won't know till you ask him, and you have as much right to ask him, as he did you---go for it!!!
Take care of you.
Linda C
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Hi Subrina,
Yep--we are with you!!!! Next phase--be blessed!!!
Keep on keeping on!!!
Linda C
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Good morning ladies....
Sharon...First wu-saw....Relax...Relate...Release...That dr really ticked you off didn't he. Do not let the enemy come in and still your joy. Look at it this way if he asked you that question and did not see any problems in the exam than he was probably saying your belief in God and prayer has healed you. Maybe he saw something before that miraculously is gone. Praise God. I hate to say he is unprofessional or lack empathy for his patients because there is some out there who just don't care. But you have to know that you know that you have the right dr. for you. And pray over him and his nurses. My dr and the nurses knew we were christians off the back. We came in there praying and letting them know who was our chief physician and healer. We prayed on the way to tx and during tx. They would listen. It incouraged them. My sister-inlaw that has been there with me through it all is a minister and she was binding up everything that they would try to say could or would happen. Some girls on the site called ac/ the red devil. We changed it to the blood of jesus. Like taking communion. My last tx the nurses commented to my sister in law that she wished that more patients would have someone like her supporting them. It truely made a difference. Everyone deals and looks at this whole cancer thing different. I believe by his stripes I am healed. But I am still scared. Don't know what is next. I just had my last tx of Taxol. And it is starting to kick in. My legs are starting to hurt and my feet are still numb from the first tx of taxol. But I will fight through it. My nails are turning black which some says they will eventually fall completely off. But I will deal with that too when or if it comes.
What I am trying to say is stay as positive as you can. That enemy is a trickster and he will try to use anything and anyone to steal your joy and confidence. We have the victory.
Thanks to all of you that are supporting me. It is great to know that I have a bunch of sisters fighting with me and got my back. Even if its across the highways and by ways.
Felicia, Trumpet, Sharon, Aurora, Linda, crystal, Happy, and any one else that I have missed may God's blessing continue to shine upon you. You are my sisters...My strength and my pride...(Set it Off...)
God bless you all and have a wonderful weekend.
Sabrina
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Sorry ladies for exploding like that. I prayed on this issue last night and I'm over it now! I think it was the way he asked me the question that really pissed me off. No eye contact or explanation of why he wanted to know...nothing. First impressions are everything and I don't think I can work with this Doc. so I'm going to ask for a different Doc. I want to thank you ladies for all your comments and support. I've prayed and I know that God has healed me! I may be a little nervous, but not for long because I know that He will always be there for me!
Sabrina-You are so right. I will never let anyone else or thing take my joy, the joy that my Father in Heaven has given me away again! My fingers/fingernails turned black also. They haven't fallen off yet and hope they don't. How many tx of taxol did you have in all? I have 11 more weekly to get. I still have rads to do also. Will you be getting the herceptin also? I see that you are HER2+ like me. I can't start herceptin until my heart heals. My onc doesn't think it should be any more than 8 weeks before I can start though. I'm just want to get it done and over with. My friend has really bad se's from herceptin but she does dd infusion once every three weeks instead of weekly.
Linda-You can't believe how stunned I was when he asked me that. I will ask him if I see him again, what was the reason for him asking me the way that he did. I want to hear why he thought it was any of his business in the first place. Either way I will have a new cardiologist!
Trumpet- No I'm not on cytoxan. I had that with the adriamycin that damaged my heart. I'm supposed to be on taxol and herceptin right now but because of the damage to my heart from the adriamycin, I can only do the taxol until my heart function gets back to normal. The herceptin is also bad for the heart so he didn't want to start it yet.
Aurora-Welcome to the tread!
Thanks again my sistas for keeping me in your prayers! Have a blessed weekend!
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Hey Sharon68,
This makes this Post all the reason to be here, so we can vent and get things off of us---this really does help our being, not to have to carry this, and when we got all the rest of the sisters with their thoughts--it is wonderful, and gives us other ways to look at a situation---no need to apologize--ever, glad to listen!!!!
I know prayer helps and you are there!!!---In the meantime--we are here
Linda C
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Hello Aurora,
Thanks for the prayers!!!
Stay Blessed!!!
Linda C
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Chantal Campbell, Stationed in San Antonio, TX ( USAF)
23 yrs when dx now 24
Tumor removed Jul 30 2007
DX 02 Aug 2007
Chemo dose dense ACT 8 treatments 4 Sept - 11 Dec 2007
23 Jan 08 bi lat mast.
21 Feb 08 started 6 wks radiation no boost
Stage IIIa, 4/34 nodes + Triple negative
Grandma, aunt, 2 cousins (who are sisters) dx an died from BC
Started a non profit organzaiton called JOY KEEPER
www.joykeeper.org
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Good afternoon ladies. The sun is shining beautiful and bright and was a few snow flakes falling on the ground earlier but it still is a beautiful day. I am still filling ok after tx. Had a real restless night of sleep. Leg and joint pain. Weird dreams and pain on my surgical side. But I am still here. Fighting through another day.
Sharon I had only 4 tx of taxol. And before that 4 tx of ard/cytox. No radiation needed because I only had 3/24 nodes involved. Did your dr ever tell you what caused the nails and hands to turn black? I am glad you are not having any se's from the taxol. All I want to do is lay down. It's hard to walk with the numbness in my feet. Feels like I have teret syndrome some times when the nerves start to shot pain. I am so glad you are feeling better though. Never apologize for venting thats what we are here for. Someone else might be feeling the same way you are and just don't know how to let it out. I have tried to journal through this but I can't seem to do it. I get out my emotions here. So as long as you keep coming on I will be here withcha all.
Sabrina
ps. I notices today that spelling is getting a little hard for me. I don't know if my brain is funcitioning very well. Been having a few bouts of headaces. Anyone else notice that?
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Felicia, I just wanted to ask how are you doing. You are always so concerned and asking how everyone else. How are you? Hows the weather there in New York. I am in Columbus, OH and we were hit with a blizzard the last two days. We got 20 inches from Friday to Saturday Evening.
Hugs
Crystal
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sparker38
Could be from the chemo! My taxol experience sounds just like what you are going through even had to go to the ER for it. I have had headaches since I started radiation my rad oncol said I shouldnt get them from radiation so after im done there are going to do some scans its kind of makin me nervous cause along with the headaches come blurred vision so we shall see.
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Howdy, everyone! I was off-line for a few days and was so happy to see all the new posts this morning! Welcome to you, Aurora
!
Chantall! Glad to see you are well. I think you had a birthday since we last "talked", so happy belated! Sorry to hear about your headaches and blurred vision. Hoping you get some answers soon. BTW, I publish a women's magazine and am always looking for information - health-related and otherwise - to include in the mag. Can you pm me more info about your non-profit?
Crystal - you are such a sweetie! I'm doing well, just still battling this sinus thing/head cold. I'm on day five of my antibiotic. I hate antibiotics because 9 times out of 10, they kill everything and I end up with a yeast infection. The weather here finally took a turn for the better yesterday and we made it into the 30s - whoo-hoo! Hopefully, we have seen the last of the snow (just a few stubborn patches left). Hope you have shoveled out of the stuff you were hit with by now...
Sabrina, I love your humor. Thank you for being such a bright, silver lining
. I didn't have chemo, but my mom did and I remember that she also had problems with her spelling for a while after. It sounds like full-effect chemo-brain, but you may want to mention it to your doc just to be on the safe side...
Howdy to you, Linda and Trumpet
! Hope all is well in your respective necks of the woods...
Sharon - congrats on getting that first treatment under your belt! I'm tossing a little confetti over here for you and if I had some champaigne, I'd offer up a toast, too, lol. What a strange thing for your cardiologist to do - especially without any follow-up or explaination as to why he wanted to know about you and church. Follow your gut: if you don't feel comfortable with him now, you probably never will. Bold move, girl! Hats off for making it...
Please keep our Ferne in your prayers. Stephanie (triple neg) and Gina (no surrender) posted that she's been admitted to the hospital. Hoping you are up and about soon, Ferne!
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Hi all! Just checking in. Hope everyone had a good weekend. Watch the headaches; I had them with increasingly high blood pressure and pulse rate. If you are on chemo, be sure to keep record of your blood pressure if you are at risk already!!
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I already have high blood pressure im just gettin everything from my mom lol! My scans are good!! WOO HOO! I hope everyone is doing fine!
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Hi ladies, thank you so much for all of your support. I don't know what I'd do without all of you!
Sabrina-I don't know why either, but for the last two days I've been having really bad headaches also. I'm also having the weird dreams and my arm from the surgery side has been tingling. I'm going to have to ask my onc what's up. For the blackness of the hands and nails, I was just told that it was a se of the chemo. Not really sure why it happens.
Chantel- Nice to see an online friend so close. How long have you been in SA? Are you getting ready for the heat? Does the rads burn like I've heard? How many sessions do you need?
Quick question ladies, my onc told me that I wouldn't be getting anymore periods. NOT!!! Have any of you stopped getting your periods once you started chemo? I was so hoping not to have to deal with that mess anymore. I have a little hair growing back now. Has anyone else started growing hair back yet? I am so tired of wearing wigs and hats I don't know what to do.
Ok, enough for tonight. You ladies have a blessed night!!!
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Hi Sharon! I have been in SA since Oct 2007 got orders here after I was dx in Aug so I could get help from my parents during treatment! No I dont think Ill ever be ready for this TX heat! I can feel the burn already! Yeah I have had about 3 wks of treatment skin is very irritated and red!
But the fatigue is makin me feel worse than the burn! I have about 3 more wks to go.
I havent had a period since Sep 27 07 (started chemo Sept 4 07) an I aint complaining I finished chemo Dec 11 07 an my Onc said it would return slowly. My hair is growing pretty good right now it jus came in so quickly an its so pretty feel like I had the best relaxer ever! LOL! Hope it stays like this. I stop wearing my wig once I started to get peach fuzz everyone around me was like dont wear it they made me feel so comfortable. I hope thats how its gonna be for you Sharon.
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Hey Ladies!!! How is everyone? Felicia, Sharon, Benita, Chantal everyone "Hello". I had my first chemo. treatment today(adriamycin and cytoxan) and so far I'm feeling alright just waiting to see what tomorrow and the next day brings. I have to go in tomorrow and get a shot of neulesta.
I guess sometime within the next 14 days I'll be lookin at my dome. I'm not really that stressed about losing the hair but it is kinda of irksome because I grew it out for about a year (it was cut short) because I wanted a bob. I finally got it the way that I wanted it and now this. Oh well.
I just wanted to check in, I'm gonna get myself ready for bed now.
Good night all and God Bless.
Yogi
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Hey, Yogi,
I am glad you are doing ok. Sounds like you are on the same regimine I was on. I had my last tx last week. Are you going to be on Taxol next? Now that nuelasta shot is what got me. It burns going into your arm. I ended up in the emergency room the first shot. Good luck. And be sure to drink plenty of fluids to flush all that stuff out of your system quicker. And take it easy.
Sharon I haven't started growing hair back yet. Well a little bit of fuzz. It's coming back in grey. Even though it was already I was hoping for some odd reason that it would turn back black. duhh...I am tired of wearing wigs and hats too. Can't wait to be able to gel this stuff down and go.
As for the period thing. Haven't had one in years since I had my partial hysterectomy. But I do understand you not missing them booggers...
Hello Felicia and everyone else. It's late and I need to try and get some sleep for once. I try not to take any drugs for pain but tonight I think I am gonna so I can sleep a little...Lorazapan anyone???
Have a blessed night and a wonderful Wednesday!!!
Sabrina
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Hey everyone! I hope all is well. I'm haveing #2 taxol tomorrow:<
Yogi-You are on the same cocktail I was on. I hated the red dye. It made me sick just looking at it. I didn't have to get the shot! I guess that was a blessing in itself. I only got really sick once...my third infusion. I had my onc change my nausea meds and I was fine. The first tx messed up my taste for a few days but they came back. I did gain a lot of weight while I was on a/c. My appetite is back to normal now though. Make sure you drink lots of liquids to flush your system.
Sabrina-My fuss is growing back gray also. I think I have more gray than black. Now that it's getting hot I just wear a scarf on my head when I go out. At home I just go around bald. My neighbor saw me for the first time bald today and she about fainted when she saw me. I thought it was so funny, I couldn't help but laugh!
Shantal-I'm glad that you were able to come home so that your parents could help you with this. I'm going to be moving to NC next week closer to my parents also. I wish my period would just disapear. I don't want to think/deal with it right now. Oh, well. I hoped that my hair would grow back black but it does look like it. I met this sister at contour solutions and she let me feel her hair and it was so soft. It felt like newborn baby hair. It was beautiful.
Well I pray that everyone has a blessed weekend!
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My name is Regina. There is another Regina so you can call me Dream. I was diagnosed with breast cancer Dec 20. Dec 27 met with surgeon who told us no reconstruction and surgery asap. Jan 11, moderated radical mastectomy, 18 out of 18 nodes positive, tumour 14.9 cm. I didnt take in much more. Two weeks later, breathing problems brought me to ER, after a CT (to which I learned that I am allergic to the contrast dye) found out that I had bone mets, spine and hips, shoulder blade and liver and lungs. I started chemo, 6 FEC, 18 Taxotere. I mutated. Declared stable Jan 2007. No more chemo, just tamoxifen. February couldnt breath - had two pleural effusions. They were drained and chemo drug put into the cavity to seal it. Didnt work, have two small effusions. Had the flu next for a week in the hospital, dressed like a newborn and in isolation. Since then health improved and am a full year stable. Hoping to stay like this indefinitely. Have come to terms with being stage 4. Planning my end is important. I want my memorial to be a party. I want an angel urn. And all of my friends and family are receiving letters and angels from me. However I may have to buy some, the list keeps getting longer.
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Regina, my heart goes out to you for having to deal with so much from this stupid disease. You also made me smile because your attitude and spirit so shine though your post. You go, girl!!
What an incredible testiment it is to you and how you live your life that you are thinking of others in planning your end. You sound like a very loving and quite remarkable person...
Keep on keepin' on, my dear. Thoughts and prayers are most certainly with you!
Edited to add: Sharon - two down! I'm smiling for you
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Hello Melanie,
I just looked at your video--"Awesome" is the only word I can come up with!!!
Your son; What a handsome young man!!!
Stay Blessed on this journey!!!
Sincerely
Linda C
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