Roll Call November 2007

Hip, Hip, Hooray...It's been one...Next....Holla...Peace Out...More confetti....Balloons...

Hey, ladies I am home and besides feeling a little woozy from the benadryl I am doing ok.  My appt went well today.  I took in cookies and a beautiful card to my onc and the nurses.  I am so thankful to them to have treated me and my family wonderful.  I asked my dr now what?  In a month I go back for blood work and a bone scan because I asked him about getting my ovaries taken out.  A few years back I was dx with Polycystic Ovarian Disorder.  Where you gain weight, grow excessive hair in places a woman shouldn't have hair and your ovaries make cyst and hormone inbalances.  I had fibroyds and my gyn took out my uterus but wouldn't take out my ovaries because i was too young.  I was also dx with Hyperthyroid which messes with your hormones.  Yes I am (tore up from the floor up).  From reading I am finding out that some of this has been the instrument to me having bc.  He says since my tumor was her+ receptive I could most likely be a candidate even at this age (38) to go ahead and get my ovaries removed.  He said since I only had 3/24 lymph nodes no need for radiation.  Thank God. 

I am going to try desperately to get my body in order.  Eating right and excersising.  I made it through this far and I want to be around even longer.  God's Will...

So now on to the next phase....Are yall with me??? I sure hope so.

May God bless and keep you all

Sabrina

Sabrina, Please keep in touch and keep posting. I love the humorous side to you. CONGRATULATIONS GIRL!!!!! You deserve all the praises.

YOU GO GIRL!!!!

Crystal

Hello ladies, hope everyone is doing well. I made it through my first tx of taxol today. No bad. I did have some nausea during infusion but I took a zofran and did ok. The benedryl made me sleepy. I slept an hour and a half after my infusion was done. The nurse didn't want to wake me bacause he didn't want my driving home sleepy.

Sabrina-Congrats!!! I can't wait to be where you are :>

I saw the cardiologist tuesday and you know he had the nerve to ask me if I went to church! It was his third question to me and it was the way he asked me. What does me going or not going to church have to do with my visit concerning my heart. This was the first time meeting this man...he doesn't know me from eve and he thought it was his right to ask me something like that. I've known my onc for five months now and he has never asked me that and we talk about everything! I was so stunned that I couldn't focus on anything that he said after that. I told my dh and he was furious! At first I thought, omg! something must really be wrong with my heart and that my onc didn't come clean with me about the muga scan. After he(the cardiologist) left the room for a few mins I thought that maybe he was judging me, that because I don't go to church was the reason I got the cancer and is now having this probem with my heart which really pissed me off! I have never been asked that question before by a physician. Why did he think that my faith was any of his  business in the first place. Who gave him the authority to ask me something like that! Let me stop I'm getting myself worked up again. Have any of you ladies had this happen to you? If so, did you think anything of it. Am I making too much of this? I mean, to come out the blue and ask me that and not have a reason for it just doesn't seem professional to me. I can see if I asked for his help but I didn't. I have faith in God and I believe in prayer. Even that is none of his business!

Ladies let me go. I hope everyone has a great weekend!

Hi ladies,

I'm not African-American, but I just want to let you all know I enjoyed reading your thread. I'll keep you in my prayers. God saves, God heals!

Love and blessings,

Aurora

Hi Sahron68.

I am appalled at the question by the Cardiologist.  However I am finding more and more, that some of the "Professional people" have not  learned or been taught how to talk to " the patient" and I have heard alot.  I have felt like some of their colleagues at times and have had to laugh because they can't have a clue.  I worked in hospitals for years and am "old school" and there are some things you just don't discuss with "the patient"and I guess until we make it known if we are offended, they will just keep on.

You might just ask him sometime---What was his Point of that conversation?!!  Some folks "when they just found Jesus" and this could be him, this is how they "roll"--could be about him, and nothing to do with you---but we won't know till you ask him, and you have as much right to ask him, as he did you---go for it!!!

Take care of you.

Linda C

Good morning ladies....

Sharon...First wu-saw....Relax...Relate...Release...That dr really ticked you off didn't he.  Do not let the enemy come in and still your joy.  Look at it this way if he asked you that question and did not see any problems in the exam than he was probably saying your belief in God and prayer has healed you.  Maybe he saw something before that miraculously is gone.  Praise God.  I hate to say he is unprofessional or lack empathy for his patients because there is some out there who just don't care.  But you have to know that you know that you have the right dr. for you.  And pray over him and his nurses.  My dr and the nurses knew we were christians off the back.  We came in there praying and letting them know who was our chief physician and healer.  We prayed on the way to tx and during tx.  They would listen.  It incouraged them.  My sister-inlaw that has been there with me through it all is a minister and she was binding up everything that they would try to say could or would happen.  Some girls on the site called ac/ the red devil.  We changed it to the blood of jesus.  Like taking communion.  My last tx the nurses commented to my sister in law that she wished that more patients would have someone like her supporting them.  It truely made a difference.  Everyone deals and looks at this whole cancer thing different.  I believe by his stripes I am healed.  But I am still scared.  Don't know what is next.  I just had my last tx of Taxol.  And it is starting to kick in.  My legs are starting to hurt and my feet are still numb from the first tx of taxol.  But I will fight through it.  My nails are turning black which some says they will eventually fall completely off.  But I will deal with that too when or if it comes. 

What I am trying to say is stay as positive as you can.  That enemy is a trickster and he will try to use anything and anyone to steal your joy and confidence.  We have the victory. 

Thanks to all of you that are supporting me.  It is great to know that I have a bunch of sisters fighting with me and got my back.  Even if its across the highways and by ways. 

Felicia, Trumpet, Sharon, Aurora, Linda, crystal, Happy, and any one else that I have missed may God's blessing continue to shine upon you.  You are my sisters...My strength and my pride...(Set it Off...)

God bless you all and have a wonderful weekend.

Sabrina 

Hey Sharon68,

This makes this Post all the reason to be here, so we can vent and get things off of us---this really does help our being, not to have to carry this, and when we got all the rest of the sisters with their thoughts--it is wonderful, and gives us other ways to look at a situation---no need to apologize--ever, glad to listen!!!!

I know prayer helps and you are there!!!---In the meantime--we are here

Linda C

Chantal Campbell, Stationed in San Antonio, TX ( USAF)

23 yrs when dx now 24 

Tumor removed Jul 30 2007 

DX 02 Aug 2007

Chemo dose dense ACT 8 treatments  4 Sept - 11 Dec 2007

23 Jan 08 bi lat mast.

21 Feb 08 started 6 wks radiation no boost

Stage IIIa, 4/34 nodes + Triple negative

Grandma, aunt, 2 cousins (who are sisters) dx an died from BC

Started a non profit organzaiton called JOY KEEPER

www.joykeeper.org

Felicia, I just wanted to ask how are you doing. You are always so concerned and asking how everyone else. How are you? Hows the weather there in New York. I am in Columbus, OH and we were hit with a blizzard the last two days. We got 20 inches from Friday to Saturday Evening.

Hugs

Crystal

I already have high blood pressure im just gettin everything from my mom lol! My scans are good!! WOO HOO! I hope everyone is doing fine!

Hi Sharon! I have been in SA since Oct 2007 got orders here after I was dx in Aug so I could get help from my parents during treatment! No I dont think Ill ever be ready for this TX heat! I can feel the burn already! Yeah I have had about 3 wks of treatment skin is very irritated and red! But the fatigue is makin me feel worse than the burn! I have about 3 more wks to go.

I havent had a period since Sep 27 07 (started chemo Sept 4 07) an I aint complaining I finished chemo Dec 11 07 an my Onc said it would return slowly. My hair is growing pretty good right now it jus came in so quickly an its so pretty feel like I had the best relaxer ever! LOL! Hope it stays like this. I stop wearing my wig once I started to get peach fuzz everyone around me was like dont wear it they made me feel so comfortable. I hope thats how its gonna be for you Sharon.

Hey, Yogi,

I am glad you are doing ok.  Sounds like you are on the same regimine I was on.  I had my last tx last week.  Are you going to be on Taxol next?  Now that nuelasta shot is what got me.  It burns going into your arm.  I ended up in the emergency room the first shot.  Good luck. And be sure to drink plenty of fluids to flush all that stuff out of your system quicker.  And take it easy.

Sharon I haven't started growing hair back yet.  Well a little bit of fuzz.  It's coming back in grey.  Even though it was already I was hoping for some odd reason that it would turn back black.  duhh...I am tired of wearing wigs and hats too.  Can't wait to be able to gel this stuff down and go.

As for the period thing.  Haven't had one in years since I had my partial hysterectomy.  But I do understand you not missing them booggers...

Hello Felicia and everyone else.  It's late and I need to try and get some sleep for once.  I try not to take any drugs for pain but tonight I think I am gonna so I can sleep a little...Lorazapan anyone??? 

Have a blessed night and a wonderful Wednesday!!!

Sabrina

My name is Regina. There is another Regina so you can call me Dream.  I was diagnosed with breast cancer Dec 20.  Dec 27 met with surgeon who told us no reconstruction and surgery asap.  Jan 11, moderated radical mastectomy, 18 out of 18 nodes positive, tumour 14.9 cm.  I didnt take in much more.  Two weeks later, breathing problems brought me to ER, after a CT (to which I learned that I am allergic to the contrast dye) found out that I had bone mets, spine and hips, shoulder blade and liver and lungs.  I started chemo, 6 FEC, 18 Taxotere.  I mutated.  Declared stable Jan 2007.  No more chemo, just tamoxifen.  February couldnt breath - had two pleural effusions.  They were drained and chemo drug put into the cavity to seal it.  Didnt work, have two small effusions.  Had the flu next for a week in the hospital, dressed like a newborn and in isolation.  Since then health improved and am a full year stable.  Hoping to stay like this indefinitely.  Have come to terms with being stage 4.  Planning my end is important.  I want my memorial to be a party.  I want an angel urn.  And all of my friends and family are receiving letters and angels from me.  However I may have to buy some, the list keeps getting longer.

Hello Melanie,

I just looked at your video--"Awesome" is the only word I can come up with!!! 

Your son;  What a handsome young man!!!

Stay Blessed on this journey!!!

Sincerely

Linda C