please help

Options
1…144145147149150…532

Comments

  • Shirlann
    Shirlann Member Posts: 3,302
    edited February 2008

    Hi Sue dearie, here in San Diego we have earthquakes once a week, no big deal.  I have lived here 60 years and felt dozens.  I was in the grocery store once and the shelves actually moved from side to side.  It was eerie.  But no one in California pays any attention.   We have had some bad ones, but those are mostly around San Francisco or in the desert where the San Andreas Fault is.  Nothing to worry about, just mother earth, adjusting her underskirt.

    Now, about this bleeding.  I didn't know you were in a trial?  What trial?  What the $#%^*&@ is that all about?  Grrrrrr, you have too much on your plate for trials.

    Just the normal stuff, please, just the normal stuff, use someone else for a guinea pig, not our Sue.

    Oh yes, you can get a day or a week off from chemo with no bad results.  You may have to heal up.  Can't go on like this.  Lot's of gals get time off when their counts go down or they catch something, no big deal. 

    Honey, no wonder you are so miserable.  What in heaven's name have they done to you?   Grrrrrrr, I wish I was there, they would know better than to talk our little Sue into something that could cause this result.  Grrrrrr

    Well, now I have cheered you up.  I will say, I love you and all our sisters, and you need to say, "No more trials, just the normal treatment, please, or my American sisters will storm this place".  See, it is easy.

    Hugs, hugs, and kisses, Shirlann 

    · Share on FacebookShare on Twitter
  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    Sorry I went quiet on you all ...I was having a right bawl out on my bed...about when my mum fought and lost her battle... xxx

    Mel....what made you get through your tx ...did you just close your eyes and grit your teeth...xxx

    The trial is the xeloda one I think but I am havibg E CMF ....its an old drug but the regime is different....

    It is gone 1am here..my sleep patterns are truly mashed up of late xxx

    Shirlann ..I love you sooooooooooooooo much... one day we will meet ... xxx I have to have a goal xxx

    I am just going to do that reading on here I was meant to do ...xxx

    Mel ...how many rounds did you have xxx 

    Thankyou for my candle xxx

    and that little animated emoticon in one of the posts you just did cracks me up..its my favourite LOL

    · Share on FacebookShare on Twitter
  • candie1971
    candie1971 Member Posts: 4,820
    edited February 2008

    Sue,

    I hopped on over here when I read the CMF thread and yousaid you were posting here. So glad youwent to the hospital...I was getting so worried about you. Try to relax and rest and hoepfully all will get better for you. I am praying for u.

    Hugs and prayers,

    Candie

    · Share on FacebookShare on Twitter
  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited February 2008

    Thank goodness you're okay and at home, Sue!  i've been thinking about you all day, but haven't been able to get on the computer (minor emergency with a science fair project).  I hope you're resting well, you dear sweet girl! 

    Love and hugs to everyone,

    Karen

    · Share on FacebookShare on Twitter
  • livesstrong
    livesstrong Member Posts: 1,799
    edited February 2008

    Hey Candie - Welcome - nice to see you here - come back any time!!!

    Valerie

    · Share on FacebookShare on Twitter
  • anneshirley
    anneshirley Member Posts: 1,110
    edited February 2008

    Sueps--please believe what everyone above me has said.  You are not doomed.  So much has happened in just the last few years.  Women who are HER2 positive (formerly a bad diagnosis) now have herceptin.  Women who are triple negative now have a much wider range of chemos to which they respond quite well.  Women who are hermone positive have even a wider range of options.  Whatever your pathology is, there's a treatment to insure that you'll have a long life with your sons. 

    I can't say don't worry about every freckle, because I do myself these days. Unfortunately, it's part of the whole cancer thing.  But bones creak all the time, even in someone as young as you.  You should always check out any new pains and aches but most of the time they turn out to be the same aches and pains that you had before cancer.  I'm glad you're getting scans soon.  It always helps to be doing something rather than just worrying.   

    · Share on FacebookShare on Twitter
  • livesstrong
    livesstrong Member Posts: 1,799
    edited February 2008

    Sue, just checking in.  Hope you are sleeping soundly.

    Where is everyone???  Lisa, Karen, Mel. Ulla, Jane, Lucy......................sure is quiet.

    AE

    · Share on FacebookShare on Twitter
  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Hoping you are feeling better today, Sue, especially that your mouth is less sore.



    Maybe you're back at the doctors for a blood count to see if its up or down.



    Regardless, you're in my thoughts.



    Tender

    · Share on FacebookShare on Twitter
  • Shirlann
    Shirlann Member Posts: 3,302
    edited February 2008

    Hmm, I am here.  I was walking the dog yesterday and was looking over my shoulder and fell flat.  I felt like such an idiot, as there was, of course, a nice audience.  I have a sore hip, a sore knee and a sore hand.  What a royal klutz!

    I am feeling sorry for myself, hope Sue love is sleeping and I wonder if they are trying something new on her.  I wish she would find out.

    Worries me, she needs the full monte, but no more, no less.  Nothing strange.  They can save that for the ones without children who don't have to work.

    Anyway, I am here, beaten up, but still here.

    Hugs, Shirlann

    · Share on FacebookShare on Twitter
  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    (((Shirlann)))     I am sending you these flowers ...I am sorry to hear of the royal klutz xxx   Please rest up!!!  I will be back in a min ...just going to sort Daniel out xxx  Talking of royalty ...Prince William is learning to fly for a few weeks at my o/h airbase ...Surprised...isn't he rather nice !

    Back in min ...I will explain my chemo to you Shirlann xxx

    Hello AE ...sending ya big squeezy hugs xxxx

    · Share on FacebookShare on Twitter
  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    Hello Everyone xxx

    I hope you are all having good moments xxx

    Well Shirlann...let me explain way back when I went to see my ONKY at the start of tx. He offered me a trial... and I went away to think about it. I agreed to do it after a long chat with him...I was a little naive and in hindsight I am relieved at the outcome. As the random "generator" chose for me to have some of the older treatment..BUT more frequently. So what I am having is the same as other people... However I am sure now that they will decrease the dose or leave longer between ea cycle ....god I hope.... xxx

    Well today ...I am starting to feel a teeny better...I have only had a couple of nose bleeds...but I am still very sore in the mouth. I have only had to sleep for a couple of hours this afternoon..which is a sign I may be on the up xxx  I HOPE

    I spoke to my dad today and he is begging me to go on the sick...he doesnt know how I manage to work...so I have promised him when I am on holiday on the 7th ...I will write a financial plan out ... and IF when I go back to work ..I still feel rough I will get a sick note for a couple of weeks at a time....my dad would do anything for me ...but I feel really bad if he had to support me..when in reality it should be a time in life that I am physically able to look after him...he understands how independant I need to be....but I also now know it is imperative that I have some of the stress of this crazy life I lead eased for a while...xxx

    I am back at work tomorrow...so I will see how it goes...I dont even feel like going in to be honest...I have pains in my chest and pains in my head...but I will give it a shot xxx

    Well I hope everyone that is AWOL is doing good....I miss you all xxx

    Candie thankyou so much for your thoughts and prayers xxx I love your avator..where is that picture taken xxx

    Please know that I am forever grateful to all of you for keeping me going through the difficult times and pushing me along the right track ...I would have derailed without you all xxx

    THANKYOU FOR ALL THE ASS KICKING THIS WEEK!! 

    So the yellow bricks are ahead and we are on our way again !!!

    Much Love xxx

    · Share on FacebookShare on Twitter
  • livesstrong
    livesstrong Member Posts: 1,799
    edited February 2008

    Sue - follow the yellow brick road..................xoxoxoxoxoxoxox

    No time now, will bbl,

    AE

    · Share on FacebookShare on Twitter
  • Shirlann
    Shirlann Member Posts: 3,302
    edited February 2008

    Sue, honey, one of the hardest things in life is accepting a gift.  You are a strong, independent woman, but if your dad can help you, let him.  Sometimes the hardest thing to do is give in and say, "I need to take a break".  But think of it this way, he will feel wonderful, that he could help his child.  That is a great gift to give him.  I know, because I would do anything for my boys, and it is rare that they need me for anything anymore. 

    You need to get through this thing and know, in your heart, that you did everything you could.  And while I know that this feels like "giving in", it isn't, it is just good sense.  You won't be too bored.  I am home all day and we can play games.

    Love and huge kisses to you, sweetie, Shirlann 

    · Share on FacebookShare on Twitter
  • my3girls
    my3girls Member Posts: 3,766
    edited February 2008

    Sisters,

    I have missed so much since the other day!  Dear, dear Sue...I am SO SORRY, that you have been feeling so terrible!  Honey..I am glad my sisters were here to give you a swift kick to the hospital. Good girl..I am so glad you went for help!  I hope each passing hour, you get more and more relief! I do remember how terrible the mouth felt.  I could hardly eat.

    You asked Mel, if she ever wanted to just quit chemo. Well, like Mel...I too wanted to stop..and I only had 1 more to go. But I could not imagine doing even the one more. But...we muster up the strength, bite the bullet and do it.  I think they need to lesten your dose.  You are going through too much!  I love you dear Sue...I went to Melody's candle group and lit a candle for you!

    I was very busy with Olivia and her audition stuff, and my friends mother's calling hours and funeral.  They buried her today, so I went to the home of her grandaughter and helped prepare the food and get it ready for the guests.  I love my girlfriend..she has been a rock to me, and I would do absolutely anything for her.

    AE and UB, I hope you are both doing well.  Thanks for the push aunt em..for our dear Sue.

    Where is our Ulla and Lucy?  We have not seen Lucy for sometime now.  I hope she is ok.

    I am going to lay down and take a bit of a rest.  Love to all my sisters here...Shirlann, Mel, Karen, Lucy, Ulla, Valerie, Jane, Wren, Mia, Sheila, Karyl, Valsul..and anyone else I may have forgotten.

    xoxo

    Lisa

    · Share on FacebookShare on Twitter
  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited February 2008

    Sue, I agree with Shirlann, When I was a single parent my car was falling apart and I could not afford to fix it. It had over 200,000 miles and was not worth fixing. My dad got his part of his dad's estate and took me to the dealership and found me a good used car and paid cash for it. I told him I did not know how to repay him but he said that he wanted to see me in a safe car and not to worry about repaying him. Let him help you take care of yourself.

    Sheila

    · Share on FacebookShare on Twitter
  • my3girls
    my3girls Member Posts: 3,766
    edited February 2008

    Sue...I forgot to mention.  I know you are a strong and independent woman...much like myself...but..let your Dad help you!!! I know this is hard..because I had to let my dad help me.  He gave me some money to help me out over these 4 weeks off work, without pay. When he gave me the money...I cried, and said..no Dad...you don't need to do this...and he said why? I told him...because I felt bad...then he looked at me, hugged me and said...I am not giving this to make you feel bad, I am giving you this to make you feel good, that's all I want to do, is make you feel good!

    Shirlann is right, as a parent, we would do anything we can to help our kids! Let your dad..."feel good" by helping you!  You need it, and he wants to help!  Let him!  You would do the same for your boys.

    I love you!!!!!!!!!!!

    · Share on FacebookShare on Twitter
  • my3girls
    my3girls Member Posts: 3,766
    edited February 2008

    see Sue...look at Sheila's story....lot's of stories out there of good parents...wanting to do whatever they can to help their children...no matter what their age!!Laughing

    · Share on FacebookShare on Twitter
  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited February 2008

    Here is something fun to do.

    Type out the sentence you end up with in a new comment. I can't wait to see what you get stuck with.

    Pick the month you were born:

    January-------I kicked

    February------I loved

    March--------I karate chopped

    April----------I licked  

    May----------I jumped on

    June----------I smelled

    July-----------I did the Macarena With

    August--------I had lunch with

    September----I danced with

    October-------I sang to

    November-----I yelled at

    December-----I ran over 

    Pick the day (number) you were born on:

    1------- a birdbath

    2-------a monster

    3-------a phone

    4-------a fork

    5-------a snowman

    6-------a gangster

    7-------my mobile phone

    8-------my dog

    9-------my best friends' boyfriend

    10-------my neighbor

    11-------my science teacher

    12-------a banana

    13-------a fireman

    14-------a stuffed animal

    15-------a goat

    16-------a pickle

    17-------your mom

    18-------a spoon

    19------ a smurf

    20-------a baseball bat

    21-------a ninja

    22-------Chuck Norris

    23-------a noodle

    24-------a squirrel

    25-------a football player

    26-------my sister

    27-------my brother

    28-------an ipod

    29-------a surfer

    30-------a llama

    31-------A homeless guy

    Pick the color of shirt you are wearing:

    White---------because I'm cool like that

    Black---------because that's how I roll.

    pink-----------because I'm crazy.

    Red-----------because the voices told me to.

    Blue-----------because I'm sexy and I do what I want

    Green---------because I think I need some serious help.

    Purple---------because I'm AWESOME!

    Gray----------because Big Bird said to and he's my leader.

    Yellow--------because someone offered me 1,000,000 dollars

    Orange--------because my family thinks I'm stupid anyway.

    Brown---------because I can.

    Other----------because I'm a Ninja!

    None----------because I can't control myself!

    Now type out the sentence you made in a new comment.  I can't wait to see what you get stuck  with...........

    · Share on FacebookShare on Twitter
  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited February 2008

    I sang to a banana because my family thinks I'm stupid anyway!

    Sheila

    · Share on FacebookShare on Twitter
  • Shirlann
    Shirlann Member Posts: 3,302
    edited February 2008

    See, Sue, we CAN play games!

    Hugs, Shirlann

    · Share on FacebookShare on Twitter
  • my3girls
    my3girls Member Posts: 3,766
    edited February 2008

    Sheila...how fun and cute!

    Thanks!

    I kicked my neighbor because I am crazy!

    Oh no!! haha

    · Share on FacebookShare on Twitter
  • NancyD
    NancyD Member Posts: 3,562
    edited February 2008

    I'm in:

    I licked my brother (ew-w-w, where are we going with this?) because someone offered me $1,000,000.

    Hey, not for $2,000,0000!!! LOL.

    Nancy 

    · Share on FacebookShare on Twitter
  • mommy_mia
    mommy_mia Member Posts: 81
    edited February 2008

    Hi Sue,

    Can you ask your onky about neupogen shots?  Builds your White blood count up in between treatments.  I had them because my WBC was too low after the very first treatment, and it worked to let me keep going with no delays.

    It's a needle everyday for 5 days, but totally worth it.

    Hope you are feeling a little better still...

    Mia

    · Share on FacebookShare on Twitter
  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    ewwwww Nancy lololol

    I DANCED WITH A SNOWMAN BECAUSE BIGBIRD SAID TO AND HE'S MY LEADER !

    LOLOLOLOL

    · Share on FacebookShare on Twitter
  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited February 2008

    I knew I could get a smile on your face Sue.

    Sheila

    · Share on FacebookShare on Twitter
  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited February 2008

    I karate chopped a birdbath because that's how I roll.  He he he!!!!

    I like Nancy's better!  Eeeeewww!  I just envisioned licking MY brother!  Yuck!  You poor thing, Nancy!

    Karen

    · Share on FacebookShare on Twitter
  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    OK ...Hi Lisa Shirlann Mia Nancy Sheila Karen .......Everyone xxx

    It is soooooooooooooooooooo good to see you all!!!!

    I will make my dad happy and ease gingerley into the sickpit after my hol.... thing is I will have failed my job then won't I ...lol...

    Shirlann..... I will sat home and play games with you .... I hate sitting around doing nothing!!! I cant even stand still to do the ironing!!!  I am a ball of energy when I am rested....xxx

    My dad will be well pleased...and infact less worried so it I will be doing him some good too!!! xxx

    Its nearly 10pm so I am going up to switch Daves light out and give him big wet smoochy kiss on lips...dont boys just love their mams' kisses lol..... but we have our new bedtime rule ..10pm lights out ...mother has spoken

    Back in min xxx

     I love my boys sooooooooooo much xxx

    · Share on FacebookShare on Twitter
  • mommy_mia
    mommy_mia Member Posts: 81
    edited February 2008

    ...oh ya.  I felt just like you not wanting to keep going for treatments.  Just like Mel said, I would tell my husband "I can't do another one."  Honestly, after the very first one I thought, how am I going to do this 5 more times?

    But you can do it!  We are here to get you through this!

    Mia

    · Share on FacebookShare on Twitter
  • mommy_mia
    mommy_mia Member Posts: 81
    edited February 2008

    I karate chopped a pickle because I'm cool like that!

    tee hee

    · Share on FacebookShare on Twitter
  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    heheheh this game is brilliant Sheila xxx hehehehe

    Mia I have 6 dog rotten boil in the bag smelly bootface treatments to go ....stupid pile of filth ....

    Laughing

    · Share on FacebookShare on Twitter

Categories