Exercise/Physical Therapy for Bone mets

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kellypa
kellypa Member Posts: 31
Exercise/Physical Therapy for Bone mets

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  • kellypa
    kellypa Member Posts: 31
    edited February 2008

    Are there any of you involved in any type of exercise/physical therapy program who have bone mets?  I have bone mets and my doctor is encouraging me to get into an exercise program or physical therapy to keep me a physically fit as possible.  It will help keep muscles strong, which in turn will help with pain of the bone mets instead of pain meds.  I would love to hear from those of you in the same type of situation that I am in and what you are participating in.

  • AnneW
    AnneW Member Posts: 4,050
    edited February 2008

    HI, Kelly,

    I don't have bone mets, but I didn't want you to be ignored here.

    I am a big advocate of exercise, and I know it can help with chronic pain if done correctly. Do you have a physical therapist at your local cancer center? Do you have access to pool therapy?

    If you haven't been a gym rat to begin with, setting up your own program would be intimidating, and possibly harmful.

    Exercise has great benefits for mood, too.

    I do recommend finding a professional to get you started and monitor your progress initially.

    Anne

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Did your doctor give you any specific advise on exercising? Weight bearing such as walking is simple, kind on the knees, and if done frequently and with monitoring one's calories, can even help with readjusting or loosing weight. I have bad shin bone pain (just had a negative scan), and calf muscle pain, so I'm walking some. My old tread mill is not one that "gives" when you take a step, like the newer ones, so I may look for a used newer one. Don't know how the transportation will work though.



    Weight resistence with 3 pound weights, moving up to 5 pounds, seem reasonable.



    It would be ideal if our medical insurances said here, here is our PT or recommended gym for bone involvement; we'd like to keep you healthy (which lowers their costs). But this idea has not made it to prime time.



    I'm in somewhat of the same boat as you, so if I find anything new, I'll try to post back.



    Great question, very practical and shows you're motivated.



    All the best,

    Tender

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited May 2008

    I was wondering the same thing.  Even the Renewed Strength program at Princess Margaret is reluctant to tackle patients with bone mets.... liability is an issue.... I used to walk everywhere, now a block is an accomplishment.  My therapist even suggested that I take breakthrough medication before taking a walk, just so I can take a walk.... it just seems wrong to have to take medication to exercise!

  • mom2acat
    mom2acat Member Posts: 556
    edited June 2008

    I was diagnosed with bone mets in April 2007. I didn't do much in the way of exercise for many months; my hip hurt from the mets (radiation helped with that though), and I was fatigued from the radiation and had a rough time when my port was put in and had a small punture in my lung from the surgery.

     In March, I decided to get serious about my fitness, and started with my Leslie Sansone Power Mile Workout using 3 pound weights. It takes 15 minutes, and is the equivelent to walking 1 mile. I also started walking outside when the weather permitted, starting out with 20 minute walks. Once I got used to that, I started using a couple of other Leslie Sansone in home walking workouts that were 30 minutes and 2 miles each, or walking outside for 30-40 minutes. After a few weeks, I noticed it really helped with my arthritis pain.

    I try to do some type of exercise for at least 30 minutes on my two days off work, and on the days I work, I do at least a 15 minute in home walking workout. I recently got a Denise Austin in home walking DVD that also has 15 minute workouts. They are a little harder than Leslie's, but they are fun! I have been buying fitness DVDs on Ebay, and I have recently gotten a Dance Workout for Dummies DVD and an Island Girl Tahitian Cardio DVD that I haven't had a chance to try yet. I also have a Leslie Sansone Walk and Kick DVD on the way from Ebay.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2008

    I didn't know that Sansone had a kick video, but do be careful with that type of movement, esp if you have bone mets. Our Fitness Director won't allow us to teach any kickboxing to any population, even the healthiest, due to the sudden snapping and jarring of the extremities involved.

    Since I do teach quite a few people with osteoporosis, I can also caution you against any extreme hyperextension of your spine and advise you to avoid crunches and especially those targeting the obliques and involving twisting. Your best bet is to seek the guidance of a certified Personal Trainer or Exercise Specialist who works with populations with limitations and who can develop an effective exercise program individualized to your needs and goals.

    ~Marin

  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited June 2008

    I don't have bones mets, but I do have osteopenia and spots of osteoporosis in my lower back.

    After I finished physical therapy for a damaged knee, I asked the PT people if they could show me safe exercises for my back. They did show me some small-movement exercises that primarily involve tightening of the lower abdominal muscles and then performing small, controlled leg movements. If nothing else, they suggested that I tighten my lower abdominal muscles while working on the computer, or when stopped at a traffic light. Tighten, hold, breathe in and out, release.

    I have taken this set of exercises to my new (yippee) personal trainer who is also a dietician in a senior care facility, and she wil continue the process. I was also told many of the things Marin cited- don't twist, don't exercise the obliques. I am already experiencing less pain, and my tummy is actually thinking about being flat, well, under the belly fat, that is.

  • mom2acat
    mom2acat Member Posts: 556
    edited June 2008

    I can't do crunches at all, never could. I have acid reflux, and even before cancer, I'd actually get nauseous if I tried. I have a hiatal hernia and I think the stomach crunches just push the acid up.

     From the reviews I read about the Leslie Sansone Walk and Kick video, it sounds like it is very low impact, not like kick boxing at all.

    I can't afford a personal trainer, but I do try to be careful with any exercise. And I won't do anything that involves jumping or running. I don't have osteoporises, but I do have some osteopenia.

  • 20130502
    20130502 Member Posts: 220
    edited July 2013

    Hoping to refresh this topic.  I also want to do safe exercise - and cannot convince my MO to give me a scrip for PT so I am going to have to do it on my own.  I have had hip/leg pain for the past 6 weeks - started the day after I got my first Xgeva injection but it is subsiding and is much less than it was.  I am worried about deconditioning.....

    Any advice how to find a personal trainer who is educated in dealing with special populations as discussed here??

  • Heidihill
    Heidihill Member Posts: 5,476
    edited July 2013

    Can you ask your PCP or GP for a scrip? I also think it is really important.

    Is there a Y or Livestrong program near you? Come join us on the Stage IV Fitness thread. Someone could possibly know more.

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