Jan 2008--Ain't it Great?

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  • sheshe48
    sheshe48 Member Posts: 338
    edited February 2008

    Hi Jewels,

    I hope everyone is feeling great.

    KathyL and D1  I went to my new cancer center, loved it and the new oncologist he is great and so patient. He even changed my therapy. He said Sherry you are so young and the Adriamycin can damage your heart. He really questioned a lot of things that they were doing to me. It sounds like I made the right decision to leave. I feel it may have saved my life. Maybe I'm exaggerating. I just felt like he was more considerate and they did not treat me like I was a pain in the a**. He could not believe I was not even sent for a bone scan. Next week I will be having that done. NEW TREATMENT DATES:  March 3rd for no# 3. and if it does not change March 24th for # 4. Via picc line, new chemotini TC Taxotere and Cytoxan. I'm hoping I don't react to it. Oh I also have the eye twitching on my left side, did not connect it with cancer or chemo.

    Vettegal Glad you are feeling better, sorry about the runs and the bad week. Sending lots of hugs and good vibes, go kick butt!

    KathyL  That's great ds has the hang of potty training, it won't be long and he will be picking out his own underware. What a cutie. Glad you had a great day with stepmom.

    Tinalee123  Hope you are feeling better.

    B1985UI  Thank you for the advice, your mom sounds like a trooper. I used to eat liver, haven't had it in yrs.

    Carol  That's great you are skating, you go girl!

    Jenny  Sorry about your reaction, get well soon.

    Dana  You are a forever Jewel and we love you. Dana you have such a positive attitude and strong spirit. I believe God will heal you. You are in my prayers and you can beat this. You go girl!

    Paula, Get well soon.

    D1  Congrats on graduating from chemo Hoorah!!  Nice dream, hope your arm gets feeling better too.

    wvgirl  That's great your mom can rollarstake Wow what a rocker!  That's just what you need to kick depression's butt.

    Kris and Deb  Sorry about the bone pain.

    Deb  Sorry to hear about dp mother, you both have my sympathy. She is out of her pain and with the angels now. 

    Juliek  Bueatiful picture glad you had a nice B-Day.

    Kimberly  Glad you are no longer booged down in the fog. Chemo is hard, harder than I could of imagined. Keep your positive spirit and you can get through this. #3 down and #3 more to go. When you are done you can put on your dancing shoes and do the happy dance. I know I will be doing the happy dance after #4.  Congrats to ds in moving into his own place. That's great you were all there lending a hand.

    Diana63  Congrats you made it to #4. Hoorah!!

    Deb  The sapphire and diamond sounds great. I like to believe were all going to be friends fr yrs to come. Chemo brought us all together. It's interesting what cancer brings us, alot of pain and grief.  we are also sent a lantern to light the way. I like to think Jan Jewels is our lantern. Hope I don't sound mushy.

    For everyone suffering form SE's gett well soon and for the gems that are starting their treatment this week, good luck and hope it won't be so bad for you.

    Lots of Hugs Sherry

  • Determined1
    Determined1 Member Posts: 806
    edited February 2008

    Julie, so good to see such a post.  Even though you're having migraines and crying jags, I still see you shining through.  Love the license plate idea--when I get a moment I'll go check to see if it's taken.  Please take care of yourself.  It's okay to cry (I'm not a crier and I've done more than my share since starting chemo), sometimes you just need to let it out.  And you know we're always here.

    Deb, so sorry about your dp's mom.  I hope she went peacefully.  And I hope you and dp can enjoy remembering the good times and some of her mom's expressions to get you through your mourning.  It's always hard to lose a parent, but you'll find they show up in your life even after they're gone.  At my dad's funeral a neighbor kid, who is a genius on the piano, played at the reception.  He then recorded all the songs and made a cd of them to give to my sisters and me.  Well, I put the cd on my iTunes and wouldn't you know, the day before my infusion, one of the songs came up today!  (I keep my iPod on shuffle except during infusion for which I have a special playlist.  With over 2000 songs on there, it's amazing to me that one of my dad's songs played today.)  I believe that was my dad sending me good vibes for tomorrow.  I'll bet your dp finds her mom doing the same for her.  I hope so.  Oh, and I love the sapphire idea!  I had a nub of a thought on the same line, but it never developed.  It's most def not too mushy.

    Back to my psyching for tomorrow.  I need a drink before I can't taste one, but I have to get through my water quotient first!  I'm drinking (and peeing) as fast as I can!!!!!

    D1

  • Determined1
    Determined1 Member Posts: 806
    edited February 2008

    Sherry, you were posting while I was composing.  That's GREAT news about your new center and onc.  I'm so happy for you!!!  Hopefully, the TC will treat you okay.  One of my friends from another thread was doing TAC for her first 2 chemos and switched to TC for the last 4 and said the TC was much better to her.  I'll hope the same for you.  Way to advocate for yourself!!  You rock.

    D1

  • vettegal
    vettegal Member Posts: 287
    edited February 2008

    LadiesCool

    How is everyone this snowy tuesday evening?

    Let's hear it for D1-last treatment tomorrow..YOOOHOOO

    Deb-you have my deepest sympathy on your lost. You are in our thoughts and prayers.

    Kim- i really thought my company would have some compassion. But, its the mighty dollar they worry about. Not like I chose to get cancer. Like I come back from my week off with a really dark tan and goldens streaks through my bald head where the hair used to be!!LOLSurprised

    Dana-keeping you in my thoughts and prayers too for your biopsy.

    My moods are getting better. Thank goodness..FUBC is my statement for the week to get my ass motivated back to having a positive outlook!!!

    Quickie questions..anyone else (i know maybe a few of you) having a heartburn issue?

    is sleeping becoming erratic anymore? Some nights good some night looking for tylenol pm to fall asleep.

    I hope everyone has a great evening..Take care and hugs to all

    xxxooo

  • RN2teach
    RN2teach Member Posts: 312
    edited February 2008

    Evening, Jewels!

    Deb- You and dp have my deepest sympathy. I will be thinking about you and hoping everything goes smoothly in the days ahead.

    Sapphires and diamonds... I LIKE IT!

    D1, Kathy, Maz, and Wendy- time to kick some chemo bootie tomorrow. Wishing easy tx for all.

    Wendy- good luck to your dh... taking care of dw and 2 teenaged ds... sounds like a challenge, for sure! Wishing him lots of patience.

    Therese- live one day at a time... you said it so well. There are no guarantees in life and we're all 'checking out' sooner or later. Best to enjoy the time that you have rather than fret about the uncertainties.

    Kimberly- sounding stronger today. Enjoy the Piano Man tonight!

    Julie- I am so sorry that you're suffering so much. I am glad that you're on a 3 week schedule. You are WAY overdue for a good week to recuperate!

    Sherry- glad your new oncologist visit went well.

    Vettegal- It's good to see your post. I'm definitely not sleeping well, but I've been blaming it on my F#$%ing Cough. Maybe some of it is chemo-related...

    Speaking of the FC, it was really bad last night. I ended up swigging Jim Beam straight from the bottle. Finally quit coughing and slept for 5 hours. It doesn't look like I'm going to get to rest up for tx 4. Oh well, maybe THIS time chemo fatigue with beat this cough into submission.

    Just got The Tudors Season 1 in from Amazon. Think I'll go watch an episode with dh.

    Have a good one Gems,

    Paula

  • PAlady
    PAlady Member Posts: 176
    edited February 2008

    Diana - so glad number 4 was better for you. I am coming up on number 4 next week and hoping it is the same for me.

    Dana - good luck with your biopsy. You have so many people praying for you and there is a lot of power in that!

    VZ Mom - I did have anxiety attacks about 3 days before my first chemo. I used xanax to get through all of those days. Now I can just take one the morning of and that is enough. Good luck with it, you will do fine and soon you will where wonder how the end came so fast!

    KathyL - did your onc say which drug cause the excitable muscles? Good luck with your round tomorrow.

    Deb - sorry about the passing of dp's mother. Keeping you both in thoughts and prayers. It is so bittersweet  when a loved one passes after an illness. You just have to believe she is in a better place.

    Vettegal - I always have horrible heartburn for about a week after my chemo. I have to take Pepcid every 12 hours for the whole week pretty much.  As far as sleeping - I do fine falling asleep, but wake after a few hours and then can't get back to sleep for a few hours. By that time, of course I don't want to take something cause I'm afraid I won't get up in the morning.

    D1 - good luck tomorrow. Very excited for you to be finishing!!!

    Good luck to everyone have their infusions tomorrow. May your se's be few!

  • PAlady
    PAlady Member Posts: 176
    edited February 2008

    Diana - so glad number 4 was better for you. I am coming up on number 4 next week and hoping it is the same for me.

    Dana - good luck with your biopsy. You have so many people praying for you and there is a lot of power in that!

    VZ Mom - I did have anxiety attacks about 3 days before my first chemo. I used xanax to get through all of those days. Now I can just take one the morning of and that is enough. Good luck with it, you will do fine and soon you will where wonder how the end came so fast!

    KathyL - did your onc say which drug cause the excitable muscles? Good luck with your round tomorrow.

    Deb - sorry about the passing of dp's mother. Keeping you both in thoughts and prayers. It is so bittersweet  when a loved one passes after an illness. You just have to believe she is in a better place.

    Vettegal - I always have horrible heartburn for about a week after my chemo. I have to take Pepcid every 12 hours for the whole week pretty much.  As far as sleeping - I do fine falling asleep, but wake after a few hours and then can't get back to sleep for a few hours. By that time, of course I don't want to take something cause I'm afraid I won't get up in the morning.

    D1 - good luck tomorrow. Very excited for you to be finishing!!!

    Good luck to everyone having their infusions tomorrow. May your se's be few!

  • golfer779
    golfer779 Member Posts: 1,378
    edited February 2008

    Just a quick pick me up to our fellow jewels with txt tomorrow ...

    D1, I spent a few mins looking at some of our first posts ... boy have their been alot of highs, and unfortunately even more lows.  Thanks to your initial posts this thread has been a true work of art.  I would be surprised if there are many other threads with the commoradity of this group.  I'd say just about every topic has been covered in one way or another.  I don't know about you, but I would have never in a million years thought I would have been typing like a teenager on the puter, yaking about puke and poop with complete strangers and finding humor in it when at all possible.  It feels just like I'm writing to my best friends and anything goes, gotta love it!

    So as you go forward with your last txt tomorrow I once again just have to say thanks ... and I sure hope you will pave the way with the particulars of rads for us lucky ones who will be following close behind you.  I'm not to sure about getting a sun burn on a missing hoot!  But we must do, what we must do! 

    Kathy and Maz, looks like your on to #3, lets hope that you'll both have a round that is tolerable and the se's stay at bay.  Hopefully, you'll be as armed and dangerous as you can be for kicking those darn se's in the butt!

    Kimberly, glad to see the fog has lifted, how about some sunny days?  Hope you enjoyed the concert, I take it that you have these "big names" coming to Sacramento. 

    I knew I wasn't going to be on the puter til tonight, so as I was heading home from work I decided to call and see if you we're back among the living, glad to see that you are over the hump, enjoyed your post!

    Well I had an expensive PT appt today.  Was driving back to work, in no hurry, just listening to tunes cruising along as "officer friendly"on a motorcycle along side the road caught me on radar.  Nicely waved me over, and gave me a ticket for $113.  Thank goodness he was in a good mood as I was going 60 in a 35mph work zone.  Could have been over $300 he said.  First ticket ever, and I totally was just spacing out, not paying attn, as I knew that they had changed the speed limit there as they have been working on the off/on ramps.  I blame it on true "Chemo Brain"!  Didn't try playing the cancer card though, figured I had already gotten off pretty easy!

    Great to see all the support given to each other on a daily basis, once again I'm pooping out quickly tonight, I think I'm feeling the effects of not having a sleep-in over the weekend.

    Rest well ladies, Carol

  • Vz_mom
    Vz_mom Member Posts: 63
    edited February 2008

    thanks for letting me know the loss of self-control last night was normal, everyone.  I'm feeling much more like myself today, even if there weren't any lawyers at work to boss around Wink

    I hope everyone gets to sleep tonight, and congrats on making it this far in such high spirits.  you are my heroes, and I appreciate your presence here.

    Kalen

  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited February 2008

    Hello Jewels - just checking in again and trying not to get so far behind on all the posts!

    Kathy - I'm basically fighting the "yucky" feeling right now. No more barfing, but my stomach is just "icky" if that makes any sense. I'm eating pretty bland, but keeping everything down. I'm sure the crying doesn't help the migraine - yes, it's still there - going on about 36 hours with it and pretty darn tired of it. My Imitrex takes the edge off, but it hasn't gone completely away yet. I'm just hoping tomorrow's a better day!

    Deb - I'm so sorry for the loss of your dp's mother. You have my sympathy and prayers. Hopefully you can get through the next few days knowing that she is no longer suffering.

    Sherry - I'm so glad you like your new cancer center! You deserve to be treated with the best care and concern and it sounds like you'll get it now. Good for you for taking control of the situation and making it better for yourself!

    Vettegal - you sound like you're doing much better! So glad to see that! YES - I have heartburn issues. I take Pepcid as part of my chemo regimen, but I end up needing it often once that's over! And my sleeping is completely erratic - I have a hard time falling asleep a lot and wake up often once I do. Some nights even Tylenol PM doesn't help at all!

    Paula - You swig that Jim Beam, girl, as much as you need to get some sleep!! Tongue out That is so unfair that you're having that f*@#&$(@ng cough! Here's hoping for a much needed restful night!!

    Carol - I ditto your comments on how strange it is to be so eager to check the thread and type away about things I never thought I'd be talking about with people I've never met! I tell everyone I talk to about my Jewel friends and they all say how wonderful it is, but I don't think they quite "get" it.

    Sorry you got a ticket on the way home tonight! That's a bummer, but at least you got a trooper that was "kind" to you - if you can call $113 kind. I'm kind of the "queen" of tickets in my family and I've NEVER had a kind officer pull me over! My dh, on the other hand, ALWAYS gets out of them - I just can't figure it out!

    Kalen - Glad you're doing better tonight!! Hang in there - you'll do just fine - especially with all the Jewels pulling for you!

    Well, it's about time for another Imitrex shot for me! Hope everyone is tucked in tight and fighting off those stinkin' se's as best you can! {{{{{HUGS}}}}}} to all! I'm thinking of those of you going for tx tomorrow -- go kick some BC butt, girls!!

    Julie

  • Cathy-CA
    Cathy-CA Member Posts: 686
    edited February 2008

    Kim -- Hope you had a great time at Billy Joel.  I'll be up at Arco Arena the beginning of April for a Springsteen concert.  I'm not sure whose boss was unsympathathetic to her side effects from chemo, but it wasn't me.  I'm semi-retired and only do a small amount of IT consulting any more.  I decided not to take on any projects while I was going through chemo, so am pretty much a lady of leisure.  However, I remember reading that post and am very careful when people comment on how well I'm doing to remind them that everyone is different and some people do have a very hard time.  I don't want to be the reason that someone else has unreasonable expectations put on them later.  I realize I'm very lucky that I DON'T have small children (my youngest is a HS senior and very independent), need to work, have an unsupportive spouse, or insurance issues on top of trying to get through treatment.  I spend my days at the gym, in classes and social activities with the most supportive people you can imagine.  It's no wonder I'm having an easy time.

    Deb -- I'm so sorry about dp's loss and your loss as well.  I know my dh is closer to my relatives than his own and some of the deaths in my family have left a real void in his life.

    KathyL -- I know it wasn't on this thread, but I'm too lazy to go back and find the Her2+ thread it was on, but wanted to let you know that the FDA last month approved Herceptin as a stand alone agent.  There are several recommendations around when it should be used and if you're interested, I'll find the link.

    Hope all who are receiving treatment today have an easy time and minimal SEs.

  • sheshe48
    sheshe48 Member Posts: 338
    edited February 2008

    Hi Gems,

    I hope everyone is well. I didn't go much about my new oncologist. But he could tell I was not receiving the best care and he was really questioning everything about my old center and the dr. He said he knew my old doc. But he is deeply dissappointed in my old doc. I'm so glad I had the courage to change cancer centers. What a difference in day and night.

    D1  Go kick some cancer butt today! Thanks for telling me about your friend switching her treatment too. I was worried I would not be getting enough of taxotere for it to make a difference. I'm hoping the TC tini works for me.

    Julie  Hope those migranes leave you alone, I was having horrible headaches too from my sinus infection, they weren't migranes I have not had a migrane since they cut the cancer out of me. I feel your pain.

    Carol  Sorry about the ticket, it seems so unfair to get a ticket when you got so much on your mind and you did even know you were speeding. At least he let you off a little light.

    I hope everyone's SE's will be on the light side, and fight to get out of the fog. Sending positive vibes and Hugs!!!!!!!!!!!!!!!!!!

    Vettegal  I almost forgot you I'm glad your moods are getting better and as far as sleeping, it's a luxury. If I actually sleep thru the night it's a rare thing. Heres to a good nights sleep!!!! 

  • chj127
    chj127 Member Posts: 382
    edited February 2008

    Hi all,

    Carol, I think I might have been tempted to play the cancer card on that ticket. Laughing  That would have been the perfect time to rip off the hat and/or wig and give the sad face...  I say that, but don't know if I'd have the nerve.

    That said, I was at a visitation the other night at our church.  There was a tragic death (car accident) of a 39-year old father of 6.  He was a prominent figure in our church & the community, and everyone loved him.  The line stretched forever - the wait was probably close to 2 hours.  Because dh & I both didn't feel good (both fighting colds), after we waited for about 30 minutes & realized how long it would be, we decided not to stay and went home.  But when we first got there, someone I knew saw me in my hat, and said she would take us out of the line & bump us to the front.  I couldn't do it.  I didn't feel good because of my cold, not because I was weak from chemo...

    Best of luck to everyone getting treatment this week! 

    CHJ

  • texrn
    texrn Member Posts: 99
    edited February 2008

    Good morning everyone,

     Julie - I can't imagine already feeling like sh%#, & having to deal w/ a migraine. Hope the Imitrex worked soon enough for you to get some rest.

    Deb - I'm so sorry for the loss of your dp's mother. Know that you, your dp, & your families are in my thoughts & prayers. I, too, hope that you find peace in the fact that she is no longer suffering.

    Sherry - Good for you!!! It sucks that sometimes we have to intervene on our own behalf just to get the care & consideration we deserve. I hope this new cancer center brings you the care & peace of mind you need to win, not just the battle, but the whole war.

    Vettegal - I know all about the heartburn - after my 1st tx it was so

    constant, even after the nausea was gone. After the 2nd tx, I found that pepcid really helped - I took the first one before my tx, & then took it around the clock, twice a day for 10 days. I also kept my diet as bland as possible during that time.

                 As far as erratic sleeping goes - I have it from the middle of week #2, until the next tx ( it's been that way after all 3 treatments ). For me, anyway, I think it's the worrying part of my brain that seems to kick in at night, plus my hormones. I haven't had a monthly cycle since 12/24 (which lasted 3 weeks) & now, all I have are hot flashes, especially at night. Sleeping pills make me feel hung over, plus I'm kind of cherishing these "drug free" days before my next tx on Friday. If I have to rest during the day, I just try & put my feet up, insteady of lying down, b/c when it comes to napping, I am a champion.

    ...Hope you were able to rest last night.

    Paula - Hope you were able to drink your cough into submission the other night, & that last night was FC free! I pray that it's completely gone by the time you slide into that recliner on Friday for your 4th

    & last (?) AC tx.

    Carol - I know what it's like to be a chemo-space cadet behind the wheel. In the last 2 months, I can't tell you how many times I've caught myself speeding, or how many times I've missed my exit on the freeway. One of these days, I'm afraid I'll pull into the wrong driveway in my neighborhood. Thankfully, you got the ticket at a reduced price!

    Kalen - I'm glad you're doing better. I, too, had anxiety & an overactive imagination, prior to my first chemo. Ativan, & even xanax, can work wonders, as well as talking about it to whoever will listen. Of course, like the others have said - keep busy. Fear of the unknown is sooo much worse than reality - you'll probably walk out of there tomorrow & wonder why you were so anxious. You'll be in my thoughts.

    Dana - I'm continuing to pray for you & send positive vibes your way.

    D1 - Congratulations!!! by the time you read this, you'll be done w/ your last chemo tx. This chapter in your journey is behind you. Hope the fog clears up sooner this time.

    KathyL - Hope tx #3 is quick & painless today...just one more TC to go after this!

                 As far as my nursing career goes, I have worked in a variety of ICU settings, all in adult critical care - trauma, neuro, med ICU, & currently, CVICU. I still love it. Pediatrics - wow! I've always believed it takes such a special,

    resilient person to work w/ sick children, especially after having children of my own.

    Wendy - Hope your dh has gotten a lot of rest - you're truly blessed to have a dh willing to step up to the plate - kudos to him!

    Kimberly - So glad you're out of your fog - did you enjoy the concert? Have always wanted to see the pianoman in action.

    To everyone going for tx, or going thru se's this week - my thoughts & prayers are with all of you, daily.

    Therese

  • SISKimberly
    SISKimberly Member Posts: 762
    edited February 2008
    Good Morning Jewels,

    What a great concert!!!!  Sealed  Billy Joel was outstanding, and his band was so incredibly talented. Even with the very drunk (cheap wine and rum and coke...can you say icky hangover on a work night?) row mates talking loudly (what is it about alcohol that make people think everyone around them are deaf?) throughout songs they didn't dance to and bothering everyone around them, "Come on, get up and dance', it was so great to be there with my dh, my sisters and my best bud and her dh. I did take a nap before getting ready, then headed out around 5:00pm to meet everyone for dinner beforehand. I slept all the way home.

    Today, I have an appt. with the plastic surgeon, my labs, and must mail two packages. One for Sherry- your tshirt and one for my twins dear friend whose mother passed on Monday afternoon after a long battle with cancer. That ought to do me in.

    D1- I'm so glad that you pt is such an advocate for you, and it doesn't hurt she gives a good butt massage either, eh? I hope the wrap works to control the swelling. Go kick some cancer booty today.

    Kathy- Good info from your onc. Glad it made you feel better about tx#3. Wow, another ICU nurse, and pediatrics at that. My hats off to both you and Therese...a belated thank you from mankind for having been on the front lines, and the ones who help pull us through or gently let us go. Grab on tight to D1 and Maz and jump...

      

    Note to both of you and D1, I updated my chemo dates in my earlier post, was that noted?

    Julie- I know that the Academy Awards were Sunday night, but there is no category for most accumulated se's or most days down for the count. Between you and Vettegal, I think we've got everything covered except neuropathy and lymphodema, which CarolC and D1 have taken on for the group. I'm sorry you were a blue jewel yesterday, and hope that tomorrow brings you more energy. Thanks for sharing you enjoy my writing. That makes me feel good...like I was able to help some.  Hope that Imatrex kicked in.

    Deb- I am so sorry for you and your dp, but so grateful to hear that her mom's passing was relatively quick and painless. WhooHoo on the last of your AC!!!!! Half way there!!!! I couldn't agree with D1 more that your dp's mom will show up in wonderful and unexpected ways to let you know she's with you guys.

    I love the idea of the blue sapphire and diamond thing...a testament to the journey. Not too mushy at all.

    I also love that new show, Dexter. I loved watching the main character in Six Feet Under as well.


    Sherry- I am sooooo excited for you that your new Cancer Center and oncologist are awesome!!!! Your choice to take charge did save your life...your quality of life, too. And, heck no you don't mushy saying the Jewels are our light at the end of the tunnel, or imagining our friendships will last a life time. Just because we finish treatment and move on with the new normal doesn't mean we can't check in with each other...so many gals on this site have been corresponding for years and even have annual reunions in different parts of the country. Can't wait to Happy Dance with you...I've got tap shoes, you know!

    Vettegal- There's our funny LOL, girl!!! Welcome back!!!!

    OK, so I have this picture in my head of you preparing in advance a lounge chair, beach blanket, and small table with a suntan lotion and a drink with an umbrella in it (maybe Carol's Cranberry Miralax cocktail with a little too much Miralax in it...OK, just kidding, but it would serve him right) in the boss' office (maybe a coworker would help you out?). You greet him dressed in a hula skirt,a long blonde wig, and of course some bronzer, then offer him a menu of side effects you've suffered while he's worried about the bottom line...oh, that could be a pun directed at the Big D, but let's not go there... and then pull off the wig in front of him stating, "I'd like to see you pull this off without missing any time at work."

    Answer to both questions: Yes and Yes. I take Pepcid AC twice a day (am and pm)from the day before tx through day 6 or so, and then as needed.

    Paula- Oh man, when you hit the Jim Beam straight, it has got to be bad. I'm so sorry that you're not going to get a break before tx#4. Hope you got some sleep last night.

    Hey PALady- Sounds like you're doing great!!!!

    Carol- I did get your message...perked me right up. Thanks. I was napping when you called, so dh didn't wake me. As I stated above...the concert was great. We do have some pretty big names coming to Sacramento. I just got tickets for Michael Buble...I'm a sucker for a cutie singing Sinatra and other wonderful songs he's written himself. Can't wait for that one...May 4th...hopefully, I will not have started rads by then...I could use a little break between, but then that's up to the oncologists as having a break may not be OK.

    I'm so with you on how special our Jewel connection is...you described it well...like a teenager glued to their MySpace and IM's. I know I've said it before, but I feel so incredibly blessed to have you Jewels on my side.

    Bummer about the ticket, but nice he gave you a break.

    CathyCa- Thanks for setting the record straight about the boss...a lady of leisure sounds nice to me. What kinds of classes are you taking? I wish my chemo brain could wrap itself around a class, but that's not happening...although I did sign up for Ophrah's A New Earth class...great book. The message is so wonderful...much like or complimentary to things I've been reading all of my life. Hoping I can get back to my women's gym soon...I had just gotten started when I was diagnosed, so I feel as if I'll be starting all over again...which I will. My muscles have all but disappeared.

    CHJ- Sorry about the loss to your church of someone so beloved. I'm sure the family will understand why you couldn't stay and need comforting in a smaller setting in the near future.

    Therese- Loved the concert...and will be extra vigilant as I drive to my plastic surgeon's office in downtown Sac.

    Gotta run ladies. For those in the lounge today, kick cancer booty...for those in the fog and suffering se's tomorrow will be here soon...for those on the downward slide...take it easy, but have some fun while you're at it.

    Love to all,
    SIS Kimberly

  • wvgirl
    wvgirl Member Posts: 196
    edited February 2008

    Hi there

    Today sucks big time. I have been YELLED at most of the day by upset customers....( It has brought me to tears.)I hate non payment day(shut customers water off because they did not pay there water bills)

    Haven't read post since Sunday will try and get caught up tonight.

     I have been in a deep dark tunnel of depression the last few days.

    DH caught me crying last  night and again ask why I was pouting when did crying represent Pouting ?

    Go to doc next week. Hope it hepls

    My dear friend said to once again have it out with him 1 last time,Yell and scream if I need to she said.Then once this is done he will aging know where I stand and that he needs to step up if he is not willing then move forward. Wow

    I hope all that are getting treatment this week get along well with little or no Se's

  • RN2teach
    RN2teach Member Posts: 312
    edited February 2008

    Doing the SNOW DAY dance here. My kids are ecstatic to have the day off and mama so enjoyed the extra sleep. Thanks to Mr. Beam I slept quite well last night. Was up a couple of times coughing but got it under control with a couple of swigs. Gotta love those tried-and-true old home remedies Tongue out 

    I agree with what you've all been saying about our group. I am soooo grateful that I found the Jewels. I get so much joy, laughter, and support from all of you. It is always a treat to check in and see how everyone is doing. We share our joys and our sorrows. We worry about each other when we go MIA from the boards for a few days. And the advice and info we get to deal with this journey...what would I do without all of you!

    Carol- sorry about that ticket! Glad you got a bit of a break on the fine. I have a bad track record on speeding tickets--most from my youth. Now if I get caught speeding it is from lack of concentration, not the desire to ride like the wind!

    D1- I second Carol's thanks to you for creating the Jewels. We now have over 50 pages of Jewels posts...1515 posts... WOW!

    Julie- hope that headache is gone today. Hope your ds got that report completed and turned in. My ds tends to be a procrastinator. Drives me crazy, but honestly he prob. inherited that trait from me. I love to work under pressure... put out some of my best work during crunch time.

    CathyCa- I'm glad that you're blessed with a good situation all the way around. Fighting BC is a full-time job by itself! You are a great source of info and support for our group--remembering esp. your advice on financial issues. Thanks for being a Jewel!

    CHJ- sorry to hear about the death in your community. I know his family will need your support later on. Hope you and dh recover from that cold soon!

    Kimberly- glad you enjoyed the concert!

    WVGirl- (((Hugs))). You keep venting here and keep the lines open with the people who are giving you the support you need. Hoping and praying for your strength! 

    I'm heading out soon for kids' dermatologist appt. Then shopping for new clothes (gotta love those growth spurts) and dinner in town. Hope all the Jewels have a good day.

    Paula

  • tinalee123
    tinalee123 Member Posts: 112
    edited February 2008

    Hi Jewels,

    Just a few shout out’s today.  Wishing everyone with tx’s this week few se’s.  Remember…one more down, one closer to being done!

    Dana – Wishing the best for you, keep up the positive thinking!

    Deb – Bless you and your dp, and all the care you’ve given her mom.  No doubt you made her final moments in this life comfortable and loving.

    Kimberly – Glad to see you’ve made it through the fog.  The concert sounds fab!

    Paula – So sorry to hear you’re not getting the nighttime rest you need.  Better days are comin’!

    Vettegal – Like PALady, I too am taking an antacid every 12 hours, mine is Zantac 150.  Usually works out to be once the moment I wake up, and once about dinner time.  It’s been a godsend.  After tx #1, I had several sleepless nights because of the heartburn, burping and stomach upset.  The med put a stop to that and I haven’t had a single issue since!  Give it a try.

    Sherry – So glad to hear you found a new center and onco.  Sounds like you are heading in the right direction with them – I hope it’s eased your mind and will allow you to focus on you!

    Carol – I’m with CHJ, I would’ve played the cancer card, too.  Or, I would’ve started sobbing uncontrollably.  Undecided

    D1 – YAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    Wvgirl – My heart breaks for you and the crap you are going through with DH.  I will never understand some people’s indifference to others who are suffering and/or struggling.  Is compassion that hard a concept?

    Echoing others’ comments about what a wonderful connection we all have here.  I’m grateful for each and every one of you.  You’ve all given me an amazing perspective and provided me with helpful information.  This board is the place to be!

    Blessings to all,

    Tina 

  • vettegal
    vettegal Member Posts: 287
    edited February 2008

    Good evening Jewels!!!Kiss

          Hoping D1 had a good treatment today!!!!

    My boss may  be an asshole but my corparate boss was intoday from Chicago and a client of mine came in and brought me from the whitt barn candle company all this mint flavored products..she went in and asked what the best scent is for chemo p atients and i got the HUGE basket of lotion, bath gel and these salts that are eucalyptus for the bath..I am so soaking tonight in the tub...It was so sweet of her and she brought them in right in front of my BIG boss..LOL

    Still have an issue with the diarhea (sp) notnearly as bad..i can live with this type...losing 8lbs last week wasn't bad, but i didn't WANT TO DO IT THAT WAY IF YO KNOW WHAT I MEAN!!Wink

    Hope everyone is feeling well today....

    Stay warm and cozy and take care  xxxoo

  • KathyL
    KathyL Member Posts: 534
    edited February 2008

    Well, I wish I could say today went well... but it didn't.  Had another reaction ot my taxotere; the same as before, but I caught it a liitle earlier so I didn't get to the point of needed oxygen.  I am sooo tired of this sh*t!  I was there 6 1/2 hrs.  The extra Benadryl they had to give me (50mg total) is kicking my butt.  I have to prop my eyelids open with toothpicks to type right now.. but you know I had to check in before I succumb to sleep.  Thank God dh came home early (he was there today to witness the reaction and managed to finagle leaving work at 4:30 and doing work from remote computer until 6:30), and thank God I only have to do this one more time.

    I read all the posts but will just reply to a few as I am so pooped.  Know that you're all in my thoughts, prayers, and heart!

    sheshe: so glad the new cancer center and onc are great.  It definitely sounds like a good move for you :)

    vettegal: I've managed to avoid the heartburn and sleep problems-- hey, I gotta get a break somewhere with all my other drama.  I do take Zantac twice a day 150mg each time on the days I have to take decadron.

    PALady:  the muscle thing/eye twitching is from the taxotere (f*ck that d*mn drug-- I really hate it now after today!)

    D1:  Yay-- you're done with chemo!!!!  A thought for you as you go on to rads. -- Both my cousin and friend who did rads swear by calendula cream... they put it on the hoot(s)night before each rads and had no burnt skin at all.  You can get it at health foods stores.

    Cathy-Ca:  Thanks for the info on herceptin.  It's about time they did that.  If you can find the link again, I'd love to read it.

    Kimberly:  I have one March and 2 April dates up next for you.

    Benadryl is taking over quickly.  See you all tomorrow.

  • Determined1
    Determined1 Member Posts: 806
    edited February 2008

    I'm baaaaack!  Tx was the shortest to date--I was only there 5 hours.  I do not see my onc again till May 21!!!!  I'm going to consult with his rads guy at Georgetown Hospital and also the rad dept at Arlington Hospital, which is 7 minutes from my house (G'town is 30-45 minutes, depending on traffic).  I'm going to do whatever makes me most comfortable (factoring in the commute for 6 1/2 weeks, of course).

    Onc is quite disturbed by my cording.  He says that's likely that's what it is (the stuff in my le arm), but he wants me to go in on Friday when I get my nasty-lasta and be worked in for an ultrasound to rule out the possibility of a blood clot.  I like that he's conservative.  Much rather get it checked than carry merrily on and have a problem down the road.  He said after rads he'll take care of my HT, too.  Guess we'll be friends for a while.

    Good news was we discussed my se's from last time and he agreed to take the Avitan out of my tini today.  I'm not nearly as loopy this time--although the Benedryl still makes me sleepy.  Hoping it will help me sleep through the night cause I sure didn't get much sleep-eye last night!  My chemo nurse examined my fingernails and she thinks I stand a good chance to keep them because the nails are not thickening or curving upward.  She said they'll turn blacker with this tx, but in time they will grow out and be okay.  She recommended nail polish to cover it up.  So that's irritating, (still feels like I'm pressing on a bruise all the time--even when I'm not touching my nails!  And opening bottles, picking my nose, and other daily activities really hurt.  I won't miss this.), but not as dire as I'd thought.

    So, it's done then.  I have to get through my se's and by Friday the 7th, I should be among the living and moving on--it does not seem possible!  I still have a long road (not looking forward to meeting with my surgeon to see if I need tidying up surgery...), so I'll most def be around to cheer my Jewel pals on.  Not to worry.

    Hope KathyL and Maz are okay with their tx's...

    Carol, Paula, Julie and TinaLee--Thanks for your compliments on starting the Jewels, but all I did was begin the thread.  It is ALL of us who have made the Jewel Experience what it is.  We are bound in ways none of us ever expected and I hope and pray we'll be able to maintain our bond for many, many years to come.  Humbly, I don't have a clue what I would've done without all of you.  Thanks for being there and participating in this journey as Sisters in Survival.

    Carol--WTF!  A ticket and you didn't pull the cancer card?  Goodness girl, I've gotten out of three parking garages without paying since I've been bald--and twice I handed the ticket and the money over together and the attendant gave me my money back.  The cop might've been being nice to you, but you need to play your card, girl!

    Vettegal--Yes for me to both heartburn and no sleep.  The first bout I had with the heartburn made me think I was surely dying.  Luckily the dh and college girl both have acid reflux (maybe luckily is the wrong word, but you know what I mean), and immediately prescribed Pepcid AC to me.  I only take it once a day, at about 5p and it really helps.  After reading that others take it twice, I think I'll try that--I'm always wary of taking too many drugs, but the Pepcid will make a huge difference and I agree I deserve relief all day long!  Sleep sucks, too.  Hot flashes mostly awaken me.  I'll have 15 to 20 of them in an average night and have to throw off the covers.  A tylenol PM can give me about 4 hours of sleep in a row, so I think you're on the right track with that.  I figure 4 hours is better than nothing...

    Paula--love your self medicating with the "old fashioned" remedy!  So glad it worked.

    CHJ--You probably still could have used the cancer card at the funeral, but it sounds like the cold issues were keeping you and the dh outta play that day.  Best to just go home and rest.  When you feel up to it, a card and a casserole for his family will make you feel better and like you participated. 

    SIS Kimberly--so glad you had a good time at the concert.  I've heard the Piano Man puts on a good show.  And I'm also glad to see you're filling your dance card again--means you're feeling better.  Just take care not to overdo, our SHERO.

    WVgirl--sometimes you just gotta cry for the release-don't beat yourself up.  In fact, if this is persistent for you, I want you to call your doc tomorrow and tell them what's going on.  You have so many stressors in your life right now that it may be time for some chemical help.  Please think about it.

    Well, the gas is already kicking in and I'm grossing out my dd, who is doing some major PMSing (her bball team has qualified for regional semifinals, which is exciting, but she's not playing; she was just named co-editor of the yearbook for next year and is now having to go to school early and stay late to interview applicants for staff positions for next year; she has the SAT test on Sat. and is frantic trying to prepare; she's fighting off a cold; her mommy had tx today and she knows she's going to have to pitch in more than her share for the next week; she has a big English paper due soon; and she's getting her period.  And I think I have it bad.).  So I must get out the Lysol spray to camouflage my digestive distress (already took some GasX, but it doesn't seem to be working) and calm my dd's grossout factor.  The things we do.

    Onward, Jewels!

    D1

  • Determined1
    Determined1 Member Posts: 806
    edited February 2008

    KathyL--good to hear from you!!  I cannot believe you had another reaction!  That totally sucks.  Sounds like they'll be upping your Benedryl next time, too.  Benefit is the sleep, even though you're jacked up on steroids.  Try to find the silver lining.

    When you're up to it, please forward SIS Kimberly's dates.  I must've missed something somewhere.

    And thanks for the tip on the calendula cream.  I'll keep it in my notes and ask my rad folks about it.

    Get some sleep and we'll hear from you later.

    All the best.

    D1

  • Cathy-CA
    Cathy-CA Member Posts: 686
    edited February 2008

    KathyL -- Here's the link to the info on Herceptin as a single agent http://www.gene.com/gene/features/herceptin .  So sorry you are having such a bad reaction to Taxotere.  I think about you every time I get the stuff keeping my fingers crossed that I don't end up having a problem.  Round three for me is Tuesday.

    Vettegal -- That is just too sweet of your client.  I find that mint really helps my stomach when I'm having an off day.  I keep lots of Mentos candies around for that purpose.  I hope a nice long soak does the trick for you.

    Kim -- I take classes at the community college for fun or to improve my knowleddge of areas where I am going to be traveling.  This semester, I have a Russian history class to get ready for a September trip to Poland, Russia and the Baltic countries.  I'm, also,  taking a travel class on Asia and Africa where you learn about things to see in various countries, a little of the culture and history and watch videos about them.  Then, I normally throw in a culinary arts class.  This semester is French cooking.  I've had this teacher three other semesters and she is a dear.  One of her daughters is a bc survivor, so every week she asks how I'm doing and makes sure I'm not doing anything too tiring.  My husband takes that class with me and it's a lot of fun.  At our community rec center, I'm a regular attendee for yoga, Jazzercise and aqua aerobics classes.  I was surprised by how many of the women I know from these classes are bc survivors themselves.  They have been so supportive and kind to me.  I get never-ending offers of food, rides, shoulders to cry on, and very sweet cards and notes.  What's probably the best thing for me is realizing that these women have full, active lives and I would never have known they ever had a battle with bc had they not told me.  It's hard to feel like this is the end of the world when you are discussing bc during an aqua aerobics class with a 85-yo woman who is a 30+ year survivor.

    I went to Look Good, Feel Better today and if any of you still haven't gone and have the chance, sign up.  I'm not a big make-up person, but you get lots of really nice goodies and it was so fun to sit and talk with others going through treatment.  Even the two instructors were bc survivors and had lots of things to share including a pep talk on how you will wake up one day and start feeling normal again.  Has anyone who has gone tried the T-shirt head wraps that are shown in the book?  It looks like it would be easy to do, but the instructor forgot to bring a styrofoam head to demonstrate on, so just explained it to us.

  • wvgirl
    wvgirl Member Posts: 196
    edited February 2008

    I received a call from my Clinical Trial Nurse -she has ask me to be a speaker at a WV Breast Care Conference that will be in April. She said I can speak on my experience from beginning to where I will be then

    Carol-Great News on your son I use to go skating but have not this year I passed my skates to her because she was still using her skates from back in the 60's.

    JulieK- great pic and the cake looks great

    Kimberly-Glad your back with us. Wow Billy Joel concert sounds like you had a great time.

    Veggegal-Your Boss sound like a real Weiner.

    Paula-ahh the Jim Beam how that brings back happier timesLaughing

    Deb102307-My prayers are being sent to you and your dp in the loss off her mother

    D1-Hope you are well and congrad on the last treatment and your dd's on co-editor I have an appt next Wed with doc

    KathyL I join the chemo brain club also.

    Wendy-Hope your dd's did well with the wisdom teeth and your dh's is helping out.

    Sherry-So glad you changed onc sounds like you did the right thing

    Cathy  the Look Good Feel Better Class I went to they showed us how to do the t-shit wrap. She had one of the gals there to be her model. It was really neat. I came home and starting cutting up old t shirts.

  • LilWarrior
    LilWarrior Member Posts: 268
    edited February 2008

    Hi Ladies,

    Its me Dana - I had the biopsy yesterday, I found out its only 1cm on the liver.  I was awake during the procedure and was very tired afterwards.  I went home and studied for a couple of hours then read the bible and went to bed at 9:30pm.  I slept good, but was so tired today when I woke up.

    I got an B on final test for level 2 - I have 2 more levels and I will be nurse.  Today I woke up with pain in my stomach and my tail bone hurting.  Maybe the laundry I did, dishes and etc after surgery has an effect on all this symptoms I am feeling - either way RIGHT NOW I REFUSE TO MENTION IT THE DR BECAUSE I WANT TO START CHEMO NOW AND START KILLING THESE CANCER CELLS.  I am hoping/praying to God it isnt more Cancer anywhere else - QUESTION - can Cancer spread within the last month all over into my tail bone and stomach since the last PET scan I had about 3 weeks ago.  Or am I just getting tired?  I hope someone has someone good news for me.

    Tomorrow I see the ONCO - YIPPEELaughing and he will tell me if for sure that is Cancer in the liver and what chemo I will take and how long.  I cant wait - so by next week I have joined my lovely Jewels.  If the pain doesnt go away, I will tell him next month or wait till I do another MRI or PET Scan.  I just dont want to mention it to him now because I am tired of waiting on Chemo - I am HER2+ and this cancer went from the breast to arm pits lymph nodes and maybe now the liver - can we please give me some chemo.  He ha..  I hope I dont sound like I am complaining because I am not, but if you still want me to a maintain positive hell give me some chemo.

    I really appreciate that you all are praying for me and not to sound rude but I REALLY HOPE YOU ARE REALLY PRAYING FOR ME because I have so much work left that I have to do.  My friend told me the other day, if its your time its your time, you have served your purpose - then I told her "well I need to have a conference meeting with God tomorrow, cause we have to discuss some matters cause I feel I need more time!  He ha.

    God bless you and remember I pray for each of you - and I am so happy to hear you are all going through it and beating down Cancer.


    God bless, 

    Dana 

  • camazur
    camazur Member Posts: 70
    edited February 2008

    I Downed chemotini #3 (TAC) today, and I'm halfway done!

    Thanks for all the cheers and encouragement from the Jewels.



    Glad D1 had an easy tx today like I did.



    Hoping Wendy did OK, too.



    Sorry you had a reaction, KathyL.



    I even tried driving myself home and it was OK. My daughter has been driving me, but today I wanted to try driving home. I don't get any Benedryl or Ativan.



    Waiting for the fog...



    FUBC and FUSE!



    Maz

  • golfer779
    golfer779 Member Posts: 1,378
    edited February 2008

    Looks like it was another eventful day at the chemotini lounge...

    Kathy, wow I can't believe you we're awake enough to type after all the Benadryl, a half a tablet can wipe me out.  Bummer that you had a reaction, but happy that it wasn't quite as bad as last time.

    I took note of the Calendula Cream for future ref on applying after rads.  Thanks, and hope your feeling better tomorrow.

    D1, so it must have been a pretty cool feeling to here your next onc appt is in May.  I'm still holding out that your problem with your arm will get better with time and pt.  Sounds like a good idea to get it checked out though. 

    Hey I would have played the cancer card, but it would be harder to do since I still have hair!  I guess I could have shown him my "C" binder of almost every moment in my life since diagnosis, oh I got it, I could have flashed him my new right "gal"!  Anyway the check is in the mail to the courthouse.

    And I'll not accept that you just started a thread ... through all of your ups and downs you always we're there to shout out to the growing numbers of all our Jewel family. I know that its not just me who gets a total kick out of your wit!  Take a little credit gal, you earned it!!!

    Maz, hoping that no news is good news tonight and all went smoothly with your txt today.  Looking forward to hearing how your doing.

    Deb, was truly sorry to hear that your dp's mom has passed away.  I'm hoping that many happy memories of her will help ease the pain of losing a loved one. 

    Sherry, hey great news on your new onc.  Wow I'm surprised to hear of a doc actually saying he was disappointed in a fellow doc.  Sounds like your in good space now, and will have much better experience. 

    Paula, I was kidding a few post ago about having a nipper to take the edge off of the coughing, glad to hear that a little JB did the trick.  Hope you had a great day of shopping and dinner out.   Sounds like alot of fun to me, we havn't been going out to much lately, one of us seems to poop out and doesn't feel like doing to much in the eve.  I'll be making up for that when I can have a little nipper myself.  This "M" portion of my regimen is a bummer as I watch others having a nice glass of vino. 

    Julie, something is not fair, a migrane back to back with nausea ... you are having to be quite the trooper to get yourself back on track.  Hang in there, each day is a little closer to being done.

    Cathy, sounds like your on cruise control with your txt ... your taking advantage of having time to take classes, etc. which is great.   I took note to your comment about feeling/doing well while on chemo, I actually shock some people at work when the "C" conversation comes up and I tell them that I am doing chemo.   I swear everyone thinks that all chemo makes you lose your hair and throw up.  At times I try to educate them, other times I don't have the story in me.

    chj, boy we sure have had our share of losses throughout our little Jewel society in such a short time.  Sorry to hear that you too had a service to attend, he must have really been special.

    As I told D1, the cancer card is hard for me to play since I still have hair.  I think the $113 is worth my hair (albeit very thin)!  We'll see if it will hang in there for another 4 months of chemo.

    Therese, havn't heard of too many having the hot flashes (well D1 too) as I read tonight.  I keep thinking I'd trade hot flashes for cramps, thats probably easy to say when you have the other!  No chemopause for me this month either ... I swear everything I had read said menopause while on chemo should/would happen (NOT).  Hoping you have a "cool" nights sleep.

    Kimberly, glad to hear that the show out did the loud drunks.  Hoping that Michael Buble brings a bit more "mature" crowd.  I'm a big Buble fan myself.  Kuddos to your great shout outs as well, I'm jealous at how eloquently so many of you can express yourselves.  I guess I should have paid a little more attn during my Language Arts class myself!

    wvgirl, I hope that your gal friend can bring you some positive support as you deal with the DH.  Just remember that at this time it is about you.  I believe you have tried to communicate with your dh, but it seems he has not been receptive.  Again, please take advantage of your friends, family and support group to express your feelings to those who will bring you positive vibes.

    Vettegal, yeah for the corp boss.  Somebody in your company who "gets it".  That had to make your pooper whole feel all that much more better.  What a "sh*itty weight loss program.  Hoping that your gi track is mellowing out as I type.

    Dana, I love your gusto gal, the "Bring It On" attitude will be your first line of defense.  You may have gotten started a little later than some of us but there are many who still have months to go.  We're not going anywhere, so go get um! 

    CathyC and Wendy, as always ... FUBC and FUSE ... and all the best for a uneventful txt tomorrow.

    Lastly, good luck tomorrow Kalen, your as prepared as anyone for round #1 and will kick some bc butt.  I'll be thinking of ya at 1:30 tomorrow!

    Night, or for many good morning when you read this,

    Carol

  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited February 2008

    Hi Gems!

    I'm almost scared to say it, but I think I'm over the "hump" this time. I had a pretty good day - after NOT sleeping at ALL last night - uugghh! That's very frustrating! I finally took an Ativan at 6:30 a.m. and was able to get a few hours. About 2:00 a.m. I had my first experience with the "spasms" you all have been talking about - YUCK! Mine actually started in my torso area - like there was a cluster of spiky balls rolling around inside me. That lasted for about 30 minutes, then the spasms in my back started. Those lasted for about another 30 minutes. I tried a heating pad, but not much helped to relieve it.

    YIPPPPPPEEEEEEEEE  -- D1 is done!!!!!! I'm so happy for you! Glad your doc is being proactive about the arm - better to be sure and know exactly what you're dealing with.

    Kathy - that sucks you had another freakin' reaction! Glad they were on it quickly and you're okay. Get your rest!

    Maz - YAY for you too for being half-way! That's a good feeling!!

    Vettegal - That's SO nice of your customer to bring you a basket of goodies. Hope you enjoyed your soak in the tub!

    CathyCA - WOW! You are one BUSY woman!!! That's awesome that you take so many classes that interest you! I look forward to getting to the point in my life where I have time for things like that!

    Kimberly - glad you're out of the fog and the concert sounds awesome! Billy Joel is one I've always wanted to see. Rest up!

    WVGirl - that's great you were asked to speak! How exciting!! Hope things are going okay with DH for you ----- remember to focus on YOU! Laughing

    Dana - so glad you see your onc tomorrow! I'm praying they start your treatment SOON!!! Stay positive!!

    Well, nighty-nite, Jewels! Hope the rest of our Gems are fighting off the se's and getting rest!! Stay strong, girls!

    Julie

  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited February 2008
    Oh - forgot to say I'll be thinking of you tomorrow, Kalen!! Go kick some BC butt, girl!! We're all behind you!! Sealed
  • KathyL
    KathyL Member Posts: 534
    edited February 2008

    Good morning Jewels!  I copied this next paragraph from another thread I post to, but have written some more here to you girls as I'm much closer to you and really need to vent...Slept really well thanks to the benadryl post-taxotere reaction yesterday.  I'm feeling sad today though b/c I read last night before bed of a death of a fabulous BC author here in DE.  You have to understand DE is such a small state that everyone knows everyone.  Even though I never met this woman in person, we e-mailed several times.  She was a huge inspiration to many DE women, and many of the things she wrote about we've all been through-- her tx center was the same as mine, and many of her docs were some of the same as mine.  And her book was so good I carried it like a Bible through many stages of my journey and have read many of the books she suggested, etc (her book, if anyone wants to read it is called "Hanging Out With Labcoats" by Wendi Fox Pedicone).  She was dx Aug 2004, and was stage 4 by Sept. 2005.  She had 3 daughters ages 18-21 and a 6 year old son (only one year older than my dd). She died at home Monday, she was 48.  It's the first person I know of that has died from BC, and it's just hit me hard.  So tragic at her age, and it sucks that this awful disease has taken such a vibrant life away.

    And I hate to be a downer, girls, but I am just really having a hard time today.  She was the first person I "know" that has died from BC, and it's hitting me harder than I thought, espcially since I never really met her.  Plus it's made me stop and think... I hope to God that all I'm going through is working.  I don't want to be dead anytime soon.  I know there's no guarantees, and when God says it's time, we go.  But I'm just not ready to go so quickly.  How do you get over that nagging thought of recurrence??  Dana, honey please forgive me for all this... I know you are going through such a tough time right now with your cancer, but I gotta get it out.  I hope I don't bring you down.

    Cathy-CA:  thanks for the link.  D*mn, I missed that info by a few weeks, or maybe I could've just done herceptin.  I was wondering when they'd get around to that idea.  I guess in my case, it's better to hit it with all they've got now, and not regret doing chemo and herceptin.

    WVGirl: Congrats on the speaking offer!  Something I'd love to do if ever called on.  I hope it goes well.  You've got a lot to share.

    Dana: I'll bet the pain is from the biopsy-- they did poke into your belly and take out a few chunks of liver afterall.  I'd call if the pain gets worse, or if you feel weak/dizzy anytime today.  The greatest risk (of bleeding) comes within 24 hours after liver biopsy (I've assisted with many).  And while I guess it's possible to have sprouted more mets to bone since your PET, I doubt it's really that fast growing to have noticed now something that the PET didn't pick up-- extremely unlikely.

    Carol: Chemopause seems to have hit me, but I'll know more in the next week or so.  I was due earlier this week, and still no "Flo".  I am so regular usually.  And heaven knows I am NOT preggers unless it's an immaculate conception!

    Well, I gotta go get some food into me to take the next round of drugs for today.   

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