Jan 2008--Ain't it Great?

Cathy-CA

Hi KathyL -- I'm sorry the death of a local author is hitting you so hard.  I think we all have our days that we wonder will we be one of the unlucky ones.  I've known several people who have died of breast cancer, but know so many more who are survivors that I try not to let my mind go there.  Every day there are advances that improve our odds, so I keep thinking things are only going to get better.  I'm sure for me it helps that I interact with multiple long-term survivors every time I walk in the rec center.  You don't need to apologize for expressing what all of us think from time to time, but I do hope your sunny outlook returns soon.

RN2teach

Another glorious "snow day" for southern WV. Very unusual for us... very much needed for me. I seem to get my best rest in the mornings. Have slept 'til 10am for last 2 mornings and I feel so much better. Told dh that maybe I should consider taking a LOA from work... I have enough sick days to pull it off with pay, but I love my work and my coworkers and students are such a wonderful source of support and encouragement for me.

D1- hope you're feeling okay today. On the neuropathy... I won't be able to pick my nose?? These SEs are just too much! LOL

I love your sense of humor, girl! You had me laughing out loud reading your discussion of gas odors. Give college girl a clothespin!

Kathy- Another rx to Taxotere... YIKES! Hope you've awakened from the Benedryl fog today. I am sorry for the loss of your friend to BC. I understand a little of what you're going thru... When ds's friend lost his mother to BC recently it brought it too close to home for me, imagining not being a part of my kid's futures. It must be particularly scary since your children are so young, not nearly grown like mine. I'm glad we're able to come here and share these feelings. Sending warm thoughts your way!

Vettegal- What a much-needed boost for you to get a great gift from your client!

CathyCa- your schedule sounds so wonderful and I'm glad it has the added bonus of bringing you in contact w/ BC survivors. Very therapeutic!

I found a website that describes the t-shirt and other head wraps. http://www.lookgoodfeelbetter.org/women/hair_help/alt_cov.htm

WVgirl- give me details about the BC conference you were invited to speak at... maybe I can come!

Dana- yep, really praying here. I hear you on getting started w/ chemo--I think we're all anxious for you to get your treatment under way!

Maz- halfway through... hopefully this round is easy on SE. I didn't notice that you're on the 3-drug chemo cocktail b4. You deserve a medal... maybe the BOOBY PRIZE?

Carol- LOL at the image of you flashing your gal at the cop. You are quite the writer yourself. Your posts are always full of energy and good humor. I love reading them!

Kalen and CarolC- hope you're all finished up with your chemo for the day. Congrats Kalen on no longer being a chemo virgin! Hope the se's are mild.

Deb1023- thinking of you and dp this week.

We had a very nice family day yesterday after the derm. appt.--a rare thing with teenagers. 

I go in to see onco and get bloodwork this afternoon. Hopefully counts will be good for round 4 tomorrow. Looks like I'm in good company--my Triple Neg sisters Therese and Deb1023 are scheduled for round 4, too, right?

Catch u later, Gems!

Paula

RN2teach

Hey, me again!

I'm just wondering about these reactions.... Is there a higher incidence with Taxotere as opposed to Taxol? Or vice versa? Just wondering...

P

Determined1

Checking in with my Jewels quickly today.  Have a full dance card till the se's kick in ...

Julie--Ugh, now you have spasms, too??  So sorry.  I know you said the heating pad didn't help much, but stay on it even when you don't have the spasms to keep them under control.  You also need to rest more and slow down (I know, hard to do when you're feeling well, but it's a must).  I find activity aggravates my spasms, so I try really hard to sit more than usual for the couple of days before they set in and again the day after, just to keep them from overwhelming me.  Hope they go away soon.

Carol--so sorry about the lack of chemopause in your life.  I'll gloat--no period since Jan. 1 and I don't miss it--not one little bit!!!

KathyL--You know, even when I see BC in the obits in the paper I have to force my eyes away because it bothers me--it must be awful to have bc claim someone with whom you have a connection.  I know it's hard, but try to look past it.  This woman obviously made great contributions to the bc community and her children will serve as a wonderful legacy and testimony to the type of woman and mother she was.  But what happened to her doesn't happen to all.  Stay positive, particularly as you face your se weekend and know that woman brought--and still brings--great comfort to others with bc.  You know she would want it that way.  And I'm with CathyCA, I hope your sunny outlook returns soon.  We're here for you.

Thinking of Dana at the onc today...

Hoping the chemotinis for CarolC, Wendy, LJ13, and our virgin, Kalen are going well.  Cheers!!!

I'm off to hassle my surgeon for an earlier appointment than the 10th.  My onc thinks I need to get in asap so the surgeon knows what's going on with my arm, pending rads, scar tissue, etc.  I'm also scheduling rad consultations.  And my le therapist has me coming in 4 days next week to do compression wraps to see if we can get this le under control.  All I do is see docs!!!!  And here I'm done with chemo--does this never end???

Also, since I'm hyped on my steroids, I'm going to try to get over to DSW to see if any shoes float my boat.  I got a $10 off coupon for my birthday that expires tomorrow and I'd sure hate to let it go to waste as I LOVE shoes!  So, must shower and get my butt out the door.

FUSE!!

D1

camazur

KathyL--Thanks for speaking what I've been thinking about beating the odds. The death rate from BC is awfully high if you ask me, and every day I pray all I'm going through is going to work, or at least buy me some more time. No one knows how much time they have; maybe we have an advantage being more aware of how precious our time here is. And how precious we are to each other. We are jewels, after all. We come here to share the good thoughts and the bad/sad. I am very afraid my cancer will return, especially after my hormone therapy ends in 5 years. But I'm hoping by then there'll be more new info and therapies.

So I was glad to read your post, sad as it was and made me feel for you.



Maz

wvgirl

A QuICK HELLO

KathyL- I understand how you feel. My Aunt passed away 8yrs ago from BC and my Sister in Law died from Ovarian Cancer 6 yrs ago.

I saw how they both suffered up until the end. I keep telling my self that was long ago and things have changed since then. Then I read about survivors and that hepls me

Paula- I will find out the details of the Conference on my next Onc visit on the 5th and will get back with you. That would be great for you to come and us meet.

Dana-Praying for you every day stay strong sweetie

LilWarrior

Hey Ladies,

Just got back from the Onco and yep its cancer in the liver and he is starting me Tuesday - so change the date for me honey!  I will be getting Taxol and Herceptin every 3 weeks - I think I totally forgot to ask but I will call tomorrow  to make sure. I was thrown off by the Dr saying to me I dont know if you beat this, when I asked him if I can.  Then I told him no, I need you to have the attitude that we will beat this CAUSE I know I will beat this.  He said okay and I squeezed his hand hard and he said you are something else, and I said well I need to beat this Cancer down and I need you to believe this.

He said he is going to try this Chemo and then do a PET scan in 3 to months to see if it is working to kill the Tumor.  I pray over and over that I will beat this Cancer.  I just cant see me dying from a small tumor in my liver.  He was ready to start me now, but i have to wait to get the drugs so I am starting on Tuesday baby.

HAS ANYONE HAD TAXOL AND HERCEPTIN - WHAT SHOULD I DO FOR THE FIRST TIME - ANY REMEDIES - ALSO HE PRESCIBED ME DECARDON TO TAKE A DAY BEFORE CHEMO.  HE SAID IT WILL HELP ME WITH SIDE EFFECTS AND ETC.  PLEASE NOW GIVE ME ANY NEWS THAT I NEED SO THAT I WONT HAVE ANY OR MUCH SIDE EFFECTS.  IT WILL TAKE 6 HOURS HE SAYS FOR MY FIRST TREATMENT THEN 4 HOURS ON THE NEXT ONES.  

I had to buy the nurse some flowers for putting up with me and my phone calls and she laughed and said no more cursing and I told her I dont curse and she said No it was me after you hang up the phone with me I am cursing at you.  I told her well you would be calling a lot if you were fighting for you life too -and she laughed and said you are right.  I was suppose to pay a copayment but the Dr said no, because he knows everyone has been pushing me back and on the side burner.

So please continue to pray that I can beat this Cancer down in my liver, and that this Chemo will do the job.  He also told me I really doubt that you will be able to continue school. I am just going to leave it in Gods hands because he has the last word.

God bless,

Dana - PLEASE KEEP PRAYING FOR ME!!!!!! 

Anonymous

Well, Taxol/Herceptin Tx #2 went down without any problems. The main diffs from Tx #1 were: switched to oral Benadryl (still 50 mg), and a lower dose of Herceptin. Nurse said they "load" Herceptin on the first Tx.

Came home and napped a little. I didn't take an Ativan beforehand ... felt a little bit stressed but also a good bit less "zonked out," so I don't know if I'll keep taking pre-Tx Ativan or just skip it. I still didn't feel quite competent to drive afterward, so having the dp along was a good thing.

Dana, the first treatment takes longer because they drip both the Herceptin and Taxol in more slowly because people can have reactions to both drugs. My onc. said that during Tx one they increase the drip rate until/unless the patient reacts. Then they start the next Tx at the new rate. Thus Tx #2 goes more quickly.

You should visit the Her2/Neu thread on this forum. There are lots of ladies with mets who are on Herceptin who post there. Many have had FANTASTIC success on the treatment. You have every reason to be hopeful that your Tx's will knock your tumors down and keep them down for a long time to come. 

I can't think of anything you need to do to "prepare" for Taxol/Herceptin. Just try to get good sleep/rest the night before, stay well hydrated the day before and day of Tx, and maybe take an Ativan to alleviate any anxiety about the treatment. It's perfectly normal to be a little anxious about it, and there is no shame in taking something to help out. That's why the doctors prescribe these drugs. Far better to be a little sleepy, than freaking out in the infusion center. 

vettegal

Good evening Jewels

Hope everyone has a good day today!

Dana- your still in my thought and prayers!

I took a bath with the new eucalyptus bath salts..and I have to tell you it was amazing. It tells you to take deep breaths while you in the tub and I did. I had the best night sleep i had in months. That real deep-good sleep. Not like i get now..erratic, restless, just bad sleep if any sleep. So, i recomend getting these salts and just relaxing for a few minutes in the tub. My wonderful dh came in the bathroom to keep me company and he loved that smell and it did us both some good!

Got flowers at work today from customer I have never met but deal with on the phone and e-mail. I send out a e-mail update to about 40 different people i know thru work and my last e-mail i explained about the reaction to the taxatore and she could sense my sadness in the  mail and they sent me flowers. My boss is an asshole but i have nice customers!!

Onward to the nice smell of the bath..I can can spoiled by this....

Hugs to everyone...xxoo

Anonymous

Paula, I think Taxotere is supposed to cause fewer reactions than Taxol.

SISKimberly

Afternoon Jewels,

Man, I must be feeling better.  Had my appt. with the plastic surgeon yesterday, then did my labs, mailed two packages, took a walk, read a little, and met a friend for coffee.  I was pooped, and experienced chills, bone pain, and then sweated like a pig (a strange expression since pigs don’t sweat) last night, but then woke with incredible energy.  I swept, mopped, dusted, and vacuumed the house this morning, then went to lunch with another friend…I just got home.  I feel so good comparatively speaking of course to the way I felt this past weekend.

wvgirl- I’m so sorry to hear about your crappy day. Yelled at by customers (it is hard I imagine for those people getting their water turned off to not ‘shoot the messenger’ when they’re feeling desperate), and then getting no support from the DH on top of that…no wonder you’re in a funk.  I think your friends may be right about giving him the this is what I need to stay in this relationship talk.  You deserve so much more than what you’re getting…you aren’t asking for the moon for gosh sakes. 

On an up note, how exciting to be asked to be a speaker. Go for it!

Paula- WhooHoo on the Jim Beam induced sleep and the SnowDay yesterday.  I loved Snow Days as a kid…I didn’t get that those days would be added on to the end of the year at the time, but I sure loved staying home…felt like such a gift. 

Hope you all enjoyed your time together after the dermatologists appt. with shopping and out to dinner.

Vettegal- Your client ROCKS!!!! And bringing in the big gift right in front of your bosses…delicious.  I so hope you had a great soak last night. 

8 pounds in one week…that’s a lot.  I hope your docs are taking that kind of loss seriously as far as helping you manage the big D.

Kathy- Oh sweetie, I am so sorry to hear that Taxotere did it to you again. FUSE!!!!  Know we are here for you as you slip into the fog. I took note of the calendula cream as well since rads is next for me after April.

I’m so glad you were able to share with us your sadness over the loss of someone so loved in your community. Being only 48 is just mind blowing when you consider we are all about the age give or take a few years.
I’m sorry this shook you up so much, but then again it may have been the catalyst you needed to let yourself deal with things you haven’t been able to until now.

When I lost my mom at 57 to Pancreatic Cancer, it wasn’t too long after that Princess Diana passed. Both my twin and I were just overtaken by grief at the loss of her.  She and my mom were both such wonderful giving people who lost their lives too soon, and I think that your reaction is a reflection of your own cancer grieving. It is so unfair to have to deal cancer when you’ve got so much living to do…but having cancer these days is better…what a weird way to say it… than even a few years ago.  Diagnosed in 2004 is very different than diagnoses in 2007/08.  I know it doesn’t seem like it would be, but as a medical professional, you know the strides made in cancer treatment since 2004.  You are right in that we will never be certain that our cancer is gone forever, or know if and when it may recur, but no one knows when something will come around and knock them for a loop.  When and if that time comes, we’ll just deal with it like we’re doing now…in the mean time, we live every day as if it were our last… as it should be with or without cancer.  (((((HUGS))))) 

Oh, and my aunt Flo this last week was short and practically non-existant…more like heavy spotting.
I’ve also had what I think are flashes and definitely night sweats.


D1-Congratulations!!!!  Done with chemo.  Glad to hear you aren’t going to lose your nails.  Mine are still growing and looking good so far and the oncologist always checks them before chemo each week.  Also glad to hear your oncologist wants to check out the cording issue to make sure it isn’t clot.  So, I’ll look forward to hearing about what your oncology radiologist has to say as that’s my next move after April. 

Speaking of HT, I decided not to do the HT…just do the oopherectomy and be done with it. All the stuff I’ve read just doesn’t make enough sense for me to do it for the next five years of my life. 

Way to play the balditude card for parking. 

About the dd. Isn’t it crazy how much more stressed our kids are these days compared to when we were in school. I’m sorry the dd is feeling so much pressure from so many sides…and PMS doesn’t help. 

Lastly, I agree that it has taken us all to be the wonderful community we are, but if you hadn’t started this thread and kept things light and weren’t willing to just let it all hang out so to speak…it wouldn’t be the thread it is today.  Stand up and take a bow, Our Leader Extraordinare!!!!  Hope you enjoyed your day today.

CathyCa- Wow, I love that you are a life-long learner.  I plan to take classes when I retire, too.  We have a great community college near by that offers loads of classes. 

Dana- Man, you sure did a lot after your surgery…maybe you overdid it a little, and that’s all that is going on with your stomach and tail bone. I think I’d mention your pain to the oncologist if it doesn’t resolve itself in a week. He needs all the information in order to plan your treatment. I know you’re ready to start chemo and start knocking these cancer cells down, but it does no one any good to withhold information that could be important.

Congrats on the B. With all of this going on in your life, to get a B on a major exam is huge!!!!!

Just read your post about the liver. Is it breast cancer in the liver, or another cancer?  Glad you’ll be bellying up to the bar next week. I know that will ease your mind.
Be prepared for digestive distress- take Pepcid AC and GasX twice a day starting the day before and for about 6 days or so.  Start your Miralax the day before as well.
 
Your positive spirit shines through girl. The reaction of your oncologist and nurse are proof of that.  Loved the cursing story…and the fact your brought her flowers.

MAZ- Welcome to the Half Way There Club.  Glad you were able to drive yourself and are feeling pretty good…steroid high, eh?  As the fog rolls in know we’ll be here waiting on the other side.

Carol- You are too sweet to me with your compliments. Thank you.  Personally, I love reading your posts, too. You’ve got a great wit.

Good for you educating folks when you have the energy about the different types of chemo and effects.  You’re right, as a society, most people just don’t understand the reality of cancer. All they know is it makes you go bald, feel nauseous, and vomit.

Love the flashing the new boob image…that might have gotten you an indecent exposure trip to the slammer…but when speaking to the judge, you could have argued that a silicone breast prosthetic doesn’t qualify as indecent exposure since there was no skin involved.

Julie- I actually had spasms the other night, too.  It was day 8 after the Nastylasts shot.  That and bone pain with chills.  Thankfully, only two days of that.  Glad to hear you’re having a good day.  You do deserve it!!!! Enjoy.

Well, I’m all caught up.
Hope you all have a wonderful evening tonight…snuggled in and keeping ahead of those se’s or getting good sleep after a good day. 

SIS Kimberly

Jenn51

OK, I'm still here & very ashamed that I haven't been here for you gals lately.  I think I'm trying to work too much because when I get home I'm too tired to do anything.  I don't like giving all I have to work, I need to save something for me.  It's going to take a while to catch up on what's happening.  Hope I feel like it tomorrow.  I had the full chemotini today.

I love you gals & have really missed being in touch.

sista2

please don't kick me out of the jewels.  i have been trying to catch up with you ladies for days.  focusing on reading is a task for me these days, i don't know how you do it with the shout outs and all. 

D1 - congrats on the final tx!!  i'm so sorry about your arm.  you seem to have endured it all.  a great leader.  my onc took out ativan after first tx, it really messed up my head.  you'll be leading us into the rads now.  i was told to wait a month after last tx before starting them, is that what you'll be doing?

KathyL -  these reactions to taxotere have me concerned.  that will be my next poisoning after one more AC.  i was hoping for a little easier ride, especially since they will be every 3 weeks but it's not looking good.  you're almost done, that's awesome.

Dana - you hold on to your positive attitude and don't let anyone bring you down.  great that you're finally getting on the road to fighting and yes, the prayers are real.

sheshe - glad you found a doc you can feel good about, that's so important.  and no A in your tx.  that one worries me even being 43, good for you!

deb - so sorry about your dp's mother.  there isn't much like the pain of losing your mom but, for me, knowing she wasn't suffering anymore and at peace was and is a comfort.  i hope so for her loved ones also.  on the lighter side,  yahoo for the last ac tomorrow.  every 2 wks is a bit**.  hope your se's are nonexistant.

paula - maybe you've said, but do you know the cause of your cough?  i ask because could it be an allergic reaction? i've been getting a wicked sore throat a week after tx and an onc nurse told me it could be that.  i know it's not

because i feel it in my ear too but can't coughs be allergy related? 

when i first started trying to catch up with the posts, i was feeling horrid and thinking why am i doing this to myself.  financially, physically, all of it, it's horrible and my cancer is gone (?), they have found no more, why am i putting myself through all of this treatment?  what damage is it doing to

my body for the future?  and then reading posts of some of you who were suffering some mental doubts and just sick of feeling sick somehow made me feel better.  not alone in my head i suppose.  thanks to all of you for that.  boy the road ahead still seems loooooonnnng.

AND, heartburn - check, night sweats - check, omg they are killing me, i'm waking up with them constantly every night....trouble sleeping - check.  is anyone having trouble with finding things to drink.  especially after treatment when i know i need to hydrate, everytime i try to drink anything i want to throw up.  right now i'm drinking pink lemonade. flavored water, gatorade, done with them.  i'm running out of options.

best to all jewels.  i need to keep up with you.  FUSE's to all!!!!!! 

sheshe48

I just want to send a couple of shout outs. I will finish reading all the post by tomorrow.

Dana, Yes, I really pray for you. I pray for all the gems and everyone one this site. I feel we are all in this together. I know you are young so, just be positive you are going to live and get thru this. You have the courage to beat this. You need to rest and yes, tell the oncologist when something hurts, I agree you are sore from the surgery. Congrats on passing the exam with a B. You will become a nurse. Glad you are finally starting chemo. That was so nice of you to buy flowers for the nurse. I have to admit they have a stressful job.

KathyL  Sorry about your bad reaction that just really sucks,  get feeling better soon. I'm sorry about your friend dying of cancer. I agree with Maz, breast cancer needs to be caught in time. My Aunt died of breast cancer in 2005 she was only 59 yrs old. I believe that was the first person I also knew that died of breast cancer. My cousin almost 2 yrs ago had breast cancer she had a lumpectomy and rads and as far as I know she is fine.

Kimberly  Glad you got to your appt and had coffee with a friend, sounds like you got a boost of energy, so glad you are feeling better.

I was so sorry to hear you lost your mom, cancer is not fair. So glad Aunt Flo decided not to over stay her welcome. Sorry your friends mom passed too of breast cancer. I'll let you know when the T-shirt arrives. Thanks so much, you are so kind. I know all about the chills dept, I'm thinking you might be pre menapausal since you are getting the night sweats. At least your energy is back. I also mopped and vacumed floors today, I don't know where I got the energy from. I think from nerves and tension. Ha ha

Vettegal  That was wonderful that you are sooo appreciated, that couldn't come at a better time.

wvgirl  Sorry you had a crappy day at work, hopefully the rest of the week will be much better.

Maz, I agree with everything you said , we are all in this together.

Paula, if you want to take a loa I would just until you can get thru chemo. I admire your courage and strengh.

I did not have time to read all the post, I promise I will do some more reading tomorrow. For everyone going thru treatment and se's this week take care of yourselfs.

D1  I'm glad your nails are going to be ok. I have been meaning to tell you this when your fingers were sore and I kept forgetting. If you have a finger infection or sore finger. Get a bowl of water as hot as you can stand it and put some epson salt in it, I just dump some in there. And soak your finger for about 15 min or so. Do this x2 a day. And it will take the infection out. I have been using this remedy for years.

Sheshe

golfer779

Okay, I'm ready to scream, sat down after work, watching Ophra reading my fellow sisters posts, typed for about the last 1 1/2 hours and whammo, my puter puked on me and my post went up in smoke! 

Time to get dinner ready now so I'll have to gather my thoughts again at a later time,

Carol

golfer779

Still wanted to yak a little,

Kathy, I was sad to hear of the passing of somebody that made a difference to your life.  I will check out the book that this inspiration wrote, remember this is the best place to share when your feeling down. 

On a happy note, "no flo, no preggers", life is good!

Paula, yeah to a sleep-in!  I think your well deserving after the nights spent in the recliner ... also like your feel good of hanging with the kids, its a rarity to get my 15 old son to actually want to hang with me even if it just a dinner out.  I think he's worried I'll get on my band wagon about a messy room or grades.  I try really hard to be mellow if we get some time together like a dinner out.    Yeah looks like your done with this portion of your txt as of tomorrow, kick some bc butt.

Sorry gals but I'm hitting submit before I lose it again !!!

golfer779

Okay, so some of you are probably thinking "god this golfer lady is a yakking one",

D1, so are you able to raise your arm over your head for an extended period to get your rads txt going?  I know right now I wouldn't be to comfortable in that position.  You will continue to be my fearless leader as you move on to your rad txt, looking forward to your guidance!!!

wvgirl, too cool about being asked to speak at a seminar.  I am going to a one day retreat in April that I think will have similar type speakers.  I would think it will be a good day for your mental health to share!  Can't wait to hear how it goes for you.

On another note, have you had a BRCA gene test or has any other family members had it done?  You stated that others have had the big "C" in your family tree.  Insurance will typically pay for the blood test.  Just my two cents worth. 

Dana, with your vim, vigor and spiritual backing, you'll undoubtedly kick some cancer butt gal. 

LJ, love your sign off, "Worry is a misuse of the imagination".  Boy I wish there was a button to turn "Worry" off. 

Vettegal, what a week you've had, I hope that you can top the week off with a Friday free of diarrhea!!!  Love the tubber idea with the ecup., my tub has become one of my best friends, I can't seem to stay warm.

Kimberly, you wild woman you.  Boy your lows are low and your highs are off the chart.  You definitely take full advantage of your good days.  So the ooph is a definite go for you.  I have this feeling that I'll be doing the same, sounds like its not that bad of a surgery, and compared to the hoots and lymphs it sounds like a walk in the park.  The idea of taking pills for 5 years is not that all appealing to me. 

Jenn51, yeah your back, hope you have your granny glasses on your chain ready for alot of reading.  Glad you got your Celine disc, hope you enjoy the show!

Therese and Deb, time to get number 4 done with.  Always remember the fine words of wisdom from our group, "FUBC and "FUSE", go get um gals.

Okay, signing off before I blow another gasket ... the bar-bee is smoking, time for dinner.

Carol

sheshe48

Carol  Sorry to hear about your puter taking a dump on you. I hope you have a better night.

I'm a little frusterated and I would like the jewels opinion. My new center called and said I would be getting Compazine for nausea and do not take my decadron's and emends from my last dr. I told her I'm allergic to compazine, it almost killed me when I was pregnant with my dd. The nurse said to bring my emend with me on Mon. My old cancer center, gave me aloxi and the other 2 drugs. My question is Do I need anything more than emend with TC?  for the nausea and se's?  I'm getting really scared. I understand the new dr. made a mistake and he does not know me. I guess if I start puking I can call the office and they will give me something, I'm thinking I can take the decadron's after I leave the cancer center if I need it. Any suggestions would be helpful.  I don't want to be abused anymore.

Thanks, sheshe

LilWarrior

Thanks Ladies for all your support.

So what I got is drink plenty of water before and during Chemo and maybe a ativan for anxiety and Pepcid Ac and Gas X twice a day before and 6 days after.  Is that all I need to know???

Will I feel down and out the next week or so - how long does it drag you down?  I am ready for this fight and I cant see my not winning this battle - I am a fighter now. I cant wait to where my shirt my -he ha.  I will make sure I take a picture of it for you. While I was at work today, I seen a 83 year old woman in there and she beat Cancer a while back and I looked into her eyes and said I can beat if you can and she just smiled. I can tell she was in a lot of pain, from a different diagnose so I told her I would pray for her tonight - and that I will do.  

If there is anything else you Ladies think of please remind me before the D day which is tuesday and you will never guess who is going to drop me off - my exboyfriend.  He ha.

 God bless and will check in later to see if you have any more advice for me.

God bless,

Dana 

sheshe48

Hi Dana,

You will need ginger ale and dry toast, crackers. Biotine mouthwash or anykind that does not contain alcohol. Some people are using baking soda and water to rinse out their mouth. Your eyes might be tearing, use warm compresses. Water is going to taste like metal, you may want to drink flavored water, I just put an ounce or 2 of juice in my water. Cranberry juice is good for flusing out the chemo. You have to force yourself to eat, so you don't get too weak. My first week of chemo I lost 7 pds. If you get the weakness and chills you could be down for the count for up to a week. Ask your doctor for something to help you sleep at night. I know their are more things I cold tell you, but I'm blanking right now. If you have the chemo that consipates you, you need STOOl SOFTNERS, other wise you will give birth to a brick or cinder block. So spend this weekend getting prepared. I know if you read back, there are so many suggestions from our jewels on how to cope with the se's.

Sista2  No way are you kicked out of the jewels. We all understand. I faded out for almost a month or so. Glad you are back on the board.

It's snowing like crazy here in MI. We are getting another 2 to 4 inches today. I hope everyone has a nice weekend and is feeling well.

Take care, Sheshe

KathyL

Hellooo Jewels!  Out of the Benadryl fog, and haven't hit the full-blown chemo fog for the weekend yet.  Thank you to all of you for your comments and suggestions from yesterday.  The support on this thread is endless and always right on target.  Bless you all! Kimberly, I think you're right... it just brought to light something that's always been in the back of my mind (and maybe a lot of ours).  I've decided once chemo's done to SLAM the door on this chapter of my life, don't live in fear (it can eat you up), move forward, and DON'T LOOK BACK!  Someone told me this once and I think it may be a good mindset for me to not dwell on the negatives. And I think I'll need to remember also how many SURVIVORS are still around, and not think about the what ifs so much.  It's not going to be easy, and will take some time, but I can do it.  Too much to live for to focus on the alternative. Two great quotes to pass on to my fellow gems; hope they are uplifting, not sad...1)  from Joan Baez... "You don't get to choose how you're going to die.  Or when.  You can only decide how you're going to live.  Now." 2) from Elisabeth Kubler-Ross: "It is only when we truly know and understand that we have a limited time on Earth- and that we have no way of knowing when our time is up- that we will begin to live each day to the fullest, as if it was the only one we had."

OK, enough.. I've gotta get my shout outs done!

D1:  Glad your last round went well!  They tried to push the Ativan on me again, and I refused it.  Don't need no stinkin' Ativan!  Hope your nails hang on, sounds like they will   And how nice, no onc visit until May!  WooHoo!!!  But it sounds like you'll still be quite busy.  And we'd better still hear from you regarding the next leg of your journey.  I don't think this thread should be just for chemo-- it's just how we all met and started to bond. Speaking of which, OLE... I agree, you DO deserve all the credit that the girls have mentioned.  This thread is AMAZING!!!

Dana:  Prayers will never end for you, sweetie!  Did they tell you if it's breast mets to liver or liver cancer separately?  I've got you written down to start Tuesday on Taxol/herceptin every three weeks.  Do you know how many rounds they're going to do yet?  I'm sure they'll do a few and then rescan you to see what's up with your liver.  I agree with I think it was Cathy-CA about the HER2 website-- I've checked it out and like it (I'm HER2+ and doing a year of herceptin, too).  There's also some threads on here that focus on HER2+.  Herceptin is really kicking some butt for us HER2+ girls, and working very well with mets (if that's what you're facing on the liver).  I've also read some very positive things that are in the works for further treatment for HER2+ cancers and even a possible vaccine down the road.  Keep your head up!

Julie:  Sorry to hear you've joined some of the other Jewels in the back spasms.  You just can't get a break-- I think you are the SE queen.  You could write a book about all of them!  Hang tough, girl. 

RN2Teach (Paula):  I've been told Taxotere is the easier drug in general for reactions, SEs, etc. (vs. Taxol).  Thank God I got this one I guess

LJ:  Glad T/H #2 went well for you.  Dana is probably glad to hear it, too!

Kimberly:  You're baaaack!  You are just such a whirlwind when you feel good-- I love reading your posts.  I know I'll be there by next weekend (though not quite as energy-filled as you).

Sista2: OK, we'd NEVER kick out a fellow Jewel!  No worries.  And as for the fear of the Taxotere-- I've hopefully taken that crown now and all the associated drama that goes with it.  So the rest of the Jewels should be safe now.  And God forbid I'm wrong... I have to tell you the nurses are on you like a fly on sh*t.  My team was so great that even though it was scary... I knew I was in good hands and would be fine.  Now that I've done it twice... I totally know what to look for and know they'll take care of it.  Hey, I didn't even need the oxygen this time-- progress!!!

For drinks:  Have you tried teas or ginger ale yet?

Sheshe:  I've done great with my decadron and Aloxi with my T/C.  I am also extremely allergic to compazine-- so I have Zofran on hand at home in case the nausea would hit... but I haven't needed it at all so far (knock on wood).  I also wear Sea Bands for about a day each round (usually day 4 for me), which is probably when the Aloxi has worn off.  I don't know that I'd be real eager to stop the decadron b/c it's what helps combat the nausea and also the SEs of the Taxanes that are common (I take 8 mg twice a day the day before/of/after each chemo round).  I'd urge your new onc to stick with what works for you so far-- don't rock the boat!  Speak up for yourself and give them the reasons why, which are all valid. 

Catch you all later.  I hope to not be too out of it until tomorrow. 

Anonymous

Dana, nausea/vomiting are rarely SEs of Taxol/Herceptin. They do give me 2 Zofran to take orally during the infusion.

The only "fatigue" I have is from the Benadryl they give. The first time they will probably infuse the Benadryl, which hits fast and hard. I dozed during that infusion. The second one, they gave me the "B" orally, and I wasn't as sleepy. I napped after the infusion when I got home, but after both treatments, I have been fine on Day 2 and beyond. No fatigue noticed. If you go every 3 weeks your dosage will be a little stronger, but even so you may be just fine with it. 

Taxol does have a tendency to constipate you, so be sure you have some Senekot/S or your favorite "unplugger" of choice on hand. 

golfer779

Kathy, just a quickie as I am at work, I ordered a copy of Hanging Out With Labcoats, looking forward to reading about Wendi's journey.  Hoping that your spirits are a little higher today.  I think all of us have had those thoughts of what happens if this beast rears its ugly head again, and what the future holds.  Its pretty interesting to me how that topic has not really been brought up much on our post.  Goes to show the positive attitudes we share together.  Your quotes we're great, and again I like LJ quote, that "worry is a missue of our imagination"! 

Be back after work, hope everyone is having a se free day, and go get um gals at the chemotini lounge today!

Carol

Determined1

First of all, Therese--you go girl, last chemotini!!!!  Hoorah!!!  And Deb and Paula last ACs--what a big day for the Jewels!  Belly up and don't send us the tab!  FUBC!!!!

SIS Kimberly--oh yeah, she's baaack!  That was an amazing, thoughtful post--per your usual self.  Thanks, as always for the insights.  Glad you're back.

Jenn51--not to worry, check in when you can.  We all appreciate what you have to say when you have time to say it without too much stress.  The last thing we need to do is stress each other out!  Shoot, we're all just doing the best we can.  We're here for you, not to worry.

Same goes to you, Sista2.  We DO NOT kick a Jewel out!  I agree with KathyL, try ginger ale and ginger teas.  My taste buds are on their way out today and I'm trying to get as much water down as I can before they're completely shot, but I've got juices and ginger ale at the ready, so bring it on.  Oh, and yes, I wait 4 weeks for rads to start.  In the meantime, I'm supposed to meet with rad oncologists to pick one I like and get my simulation (whatever that is) done and tattoos before I start.  Don't worry, I'll share whatever I learn!  I am a little overwhelmed with all my med appointments next week (so far I have 8 scheduled M-Th, Friday I drive up to get college girl for her Spring Break), since it's my down week.  I hope I can keep up, but I've got to get moving if I'm going to be ready to rad-roll in 4 weeks...

Sheshe--Thanks for the info on the nail infection remedy.  I'll keep it in mind.  Luckily, they only seem to be turning black right now--no sign of infection.  YAY.  Hey, you need to be firm with your new onc about your compazine allergy.  DO NOT take anything you know will make you sick.  There are lots of drugs out there.  I do decadron and anzumet and don't have any problems.  I do have compazine as a backup, but (knock on wood) haven't needed it.  Just be clear with your explanations and make the new onc listen.  You can do it.

Carol--that yakky golfer girl, sheesh!  You know what, yak away, baby.  Sometimes it just works like that.  You asked about my arm.  No, I cannot lift it for long, yet.  But I'm working on it.  My le gal really worked me over yesty and made me sore today.  But I'm still doing my exercises and by God, that mobility will be back--after all, I AM DETERMINED1!

Dana--I was wondering the same thing SIS Kimberly asked about, is the cancer on your liver something new, or bc mets?  Sounds like they're finally on your wavelength and you must be excited to start tx.  You've already gotten some great advice, so I'll just add my thoughts and prayers for you.  Keep your fighting spirit!

g2g, gang.  Have to shower and be ready to leave for the nasty-lasta and then the ultrasound in a half hour.  Yikes!  Good thing my hair doesn't take too long...

I'll try not to be too out of it when I slip into my fog, but it's rolling in tonight, so bear with me...

D1

SISKimberly

Good Morning Jewels,

Jenn- Now you hush with the apologies, girl...you've got to do what you've got to do, and if work is what you have to do, and it tires you out to the point you can't check in regularly, we certainly understand. The important thing is you checked in with us all and let us know you're doing well.

Sista- Kick you out? For having chemo-brain? We'd all be kicked out if that was the criteria. No one expects you to shout out daily, especially when you're in the fog or just feeling tired from your day, sweetie. No expectations, here. Glad you were up to catching up with the posts and shouting out now.

Me too on finding things to keep me hydrated. Water starts to get yucky,so I dilute it with a little juice, which changes the flavor up. Tea isn't always tolerable even though I know it's good for me. I don't like sweet drinks, so most sport drinks are out for me. Hope you find something that works. Oh, here's a thought, a nurse told me about Resurgex, which has protein in it, and you add it to water. It's got whey, so I can't have it as I'm allergic to anything to do with cow's milk.

No, you definitely aren't alone in feeling your doubts and feeling down. I'm glad the Jewels were able to show you that there is nothing wrong with being a sapphire.

SheShe- Well, we must have both been bit by the housecleaning bug yesterday. A neighbor said, " Man, you must be sicker that you think to be so excited about cleaning house." Of course, I knew she was trying to be funny, and I laughed with her saying, " You got that right...who would have thought that having cancer would make me glad to do housework, but then the alternative isn't all that enticing." Glad you're feeling good, and you are so welcome for the t-shirt.

I wouldn't worry about your new oncologist's way of doing chemo...every center has their protocol, and I would imagine you'll get the Aloxi in your drip as before and possibly other anti-nausea meds as well. Your new onc. probably needs to see how you tolerate this, so he knows what you really need as opposed to what you last onc. thinks you need. Deep breath...it is going to be OK.

Snowing eh? It's sunny here again, today...and it feels like spring, but heard that March is our rainiest month, so don't think this sun will last...so, I'll just have to go enjoy for both of us.

Carol- You crazy golfer lady, you...you crack me up.

I hate it when my computer just messes up...of course, that usually happens at school...where I have a PC...my Mac doesn't do that...if anything happens with the Mac, it's usually the internet connection that kicks me out for some odd reason,
but oh I've been there when I've lost a good bit of writing...so frustrating. Lost part of my Master's thesis and thought I would just have to tell my advisor that I wasn't able to deal with the stress and give up...funny thing was that my thesis was about the importance of stress education and reduction techniques being taught in schools.
Thankfully, I managed to finish it, although looking at it now makes me cringe...my advisors certainly didn't do a good job at editing for me and giving me advice on where I needed to expand my ideas. Gotta wonder about why we all jump through these hoops...certainly not to learn content area stuff as much as to prove we have the stamina to go through it all. (OK, off my soap box).

And yeah, my lows are low and my highs are high...is Manic-Depression, aka Bipolar Disorder an se? LOL

Dana- Wow, what a turn around...your ex is taking you to your first chemo. Maybe now that you two are roommates, he can be your friend more easily.

I agree with SheShe about the Biotene to help prevent or minimize potential mouth sores and food that will be easy on the tummy. As far as how long it will knock you over, I do Tuesdays, and the Decadron I take the day before, day of, and the day after keeps me buzzing pretty good. Wednesday, I can start to feel the rock in my gut, Thursday, I'm just feeling really weak and blah with a rock in my gut, and Friday, I'm worse. Sat. and Sun. are about the same as Friday, and by Monday, I'm starting to slowly perk up. I'd say 5 days of feeling unable to do life like you need to do it...school and work. Of course, everyone handles chemo differently, so it may be less time down for you.

I'm going to call you Little Warrior if you don't mind...cause that is what you are...and you will be victorious, no doubt about it.

Kathy- Bravo!!!! Loved the realization, the resolve, and the quotes. There is only now, the present moment ,for the past is gone and the future in unknown, so why spend our energies in either place? Our energies need to be in the present moment to fully live and be free of fear. Can't be afraid of this moment cause you're already in it, and it is hasn't done a darn thing to harm you. (Please know I'm speaking of the collective ‘you' here).

You're sounding pretty chipper this morning. Hopefully the fog won't be too thick.

And great advice for sheshe!!!!

Have a wonderful day Jewels...I think I'm going to take my son to lunch. That whole teenage time of life...not wanting to be with the parents so much...gets better in their twenties. It is like a light bulb goes on, and we aren't so much mother and son, but two adults. Oh, that doesn't mean I don't still get on him about keeping up with his grades considering that's his job in our book...more like pep talks because he feels stupid and ill-equipped in classes that require rote memory (terms and definitions) and lots of reading (Learning Disabilities). He's got an IEP, but having more time to take a test that still asks him to deal with rote memory doesn't help him much. I'll be encouraging him to understand that the way he prepares has to be different than the way Kayla prepares (she's getting A's and B's on her exams). He cannot study the day or so before and think he's going to retain the information. He has to find time to review his flashcards each day, several times a day if he's going to build long term memory. Short-term memory doesn't work for him. I'll have to use a gaming analogy as he's really a whiz at computer stuff...and math comes fairly easily to him as well. He's also awesome at the hands-on things like labs. Then, maybe a little shopping. Life is good!!!!!

Catch you all later this evening. 

SIS Kimberly

sheshe48

Thank you Jewels for your support and advice about me changing cancer centers and my new treatment plan.

KathyL  Sounds like your cancer center is good. They are all over you like flys on sh*t. (good one). You know you are in good hands. Glad you are back and coming out of the fog. Thanks for sharing and the suggestions on sea bands and zofran. I'm terrified I'm going to be throwing up.

Jenn51  Nice to see you back on the board, hope your se's won't be too bad.

Kimberly  I keep forgetting to mention your Billy Joel concert. That's just what you needed to lift your spirits. Oh I can't tap, but I can dance. Maybe we can dance our way thru bc treatment. Ha Ha.

Thanks Taxrn  I know we all will win the war. We are bc warriors. That's great you are done with treatment. You go girl!

Cathy-CA  Glad you had fun at your feeling good class. I was signed up for one in Feb, and my sister and I drove an hour to the class and it was cancelled and they did not notifly me. I was not mad at first, but then the nurse, said no way was they having a class for just a few of us and they are so busy. I said no I would not want to enconvience them. That nurse got mad at me. I thought she had her nerve I'm the one with cancer. I just felt abused, then I called ACS to set up another class and she got smart with me. I'm still going to complain about her. I don't think I will sign up for the class. I just wanted something to look forward too. You can tell I have had a bad month. No more neg vibes.

Diana63  Thanks for the link for the songs.

D1  Thanks for the support and suggestions. I do hate decadron it keeps me awake at night. But I did not mention it to the dr. and he said to stop taking it. I guess if I need it I will take it after I leave the center. I guess I will have to go thru it on Mon. and see what happens. I can always call the office. Wow still having trouble with your arm, it must be healing slow.

Have a nice weekend jewels. Sheshe

sheshe48

Judy  Hope you are having a good day.

PAlady  I keep forgetting to mention, you ask me about the weather in MI in Aug for my dd wedding. I have had so much on my mind. I'm sure it will be a hot steamy day. It could be in the 80's or 90's. or it could rain that day and still be hot. Somtimes it getts in the low 100's too.(not to often). I hope you have a nice weekend.

Sista2  I don't want to scare you or any jewel. I would talk to your oncologist. My new oncologist said the risk was to high for me. I agreed with him. I know Adrimycin is a good chemo drug. I agree we are much to young to develop heart diease. You are younger than me. I'm 48 yrs. old. I don't want to cause any panic or anything.

I keep forgetting to mention Happy Belated Birthday to D1. Happy 50th Birthday and we are all grateful you started this thread. I hope Rads goes well for you. You will be paving the way for us.

JulieK_11_30_07

Good afternoon, Jewels! Hope everyone is fairing well this sunny afternoon! I'm soooo glad to finally see some sun in Illinois! And it's supposed to get up in the 50's this weekend!

I had a GREAT day yesterday!! I was feeling good and drove over to my school (an hour away) and visited for a couple hours with all of my friends/colleagues. It was so nice to see everyone. I then met my sister for lunch - she lives about an hour and a half from me, so we don't see each other as often as we'd like. I spent the afternoon doing some shopping - trying to find supplies for my ds's history project due Tuesday. I still haven't found everything we need, so I'll be heading back out today to try to get the rest of the supplies. I was completely exhausted when I got home last night, but it was so worth it!! I slept great, too, so I'm feeling okay today.

My son has a tae kwon do tournament tomorrow a couple hours away, so I know tomorrow will be a tiring day. He's very excited about it, but very nervous. I just hope he does well - he's really nervous and usually doesn't get that way.

CHJ - I hope you're getting some relief from your cold. That's got to be frustrating to have to deal with that in addition to all your se's with chemo. Here's wishing you some relief soon!!

Paula - glad you got a couple days off with snow days!! I always love that phone call! I understand why you're considering taking a leave of absence. It might be just what you need. Believe me, I completely understand how hard it is to consider being gone - I miss my colleagues and students so much. But, considering you're having to deal with sickness on top of your normal se's, it might be a wise decision to stay away from all the germs, etc. that frequent classrooms. That's the one "plus" with my having to take leave - even though mine's unpaid - I have not had to deal with any colds, flu, etc. Best of luck deciding what to do - I know it's so hard to decide.

Kathy - so sorry for the loss of such an inspiration in your community. Such a loss is always difficult, but when it hits home so closely, it makes it even harder. I've had several personal losses to bc in my life and, when I was diagnosed, that was very hard for me to absorb. One thing that does help is that my mil is a 40+ year survivor so I try to focus on her and the other survivors I know of. No worries about venting to us - we're all there right with ya, dear, and completely understand the fears you have. I hope today is a better day for you. Definitely "good" news if chemopause has indeed hit for you!!

D1 - so far, no more spasms. I have been sleeping on a heating pad, so that may be helping. Hope you get into your surgeon sooner! DSW - I'm soooo jealous! We don't have one nearby and I LOVE that place! Hope you found some good deals!

LJ - glad you tx went without a hitch! Hope your se's are minimal!!

Vettegal - I'm so glad you have such thoughtful customers! You deserve it after working with such a jerk for a boss!! Hope you're having a good day!

Cathy & Kimberly - the surgery for the ooph is SO much easier than what I've been through with my bc surgery! It'll be a BREEZE compared to this!

Jenn - good to hear from you again!! You've been in my thoughts - hope all is well with you!

Sista - I'm with you on finding stuff to drink - NOTHING seems to taste good for those two weeks after my tx. And I know I need fluids, but it's hard to force them down when they taste so nasty! I've read that some other Jewels have had luck with ginger ale so I plan to try that this next tx.

Cathy - glad you were able to finally post! If I didn't see at least one daily one from you, I'd be worrying about you! Always love reading your upbeat posts!

Kimberly - glad you're feeling so well! Enjoy lunch and shopping with the ds!

SheShe - hope your new onc gets your meds figured out for you so you're comfortable with them. Stay strong and keep fighting for yourself!

Dana - Kimberly has it right - you are quite the little warrior!! You WILL beat this - stay strong and we're all praying for you.

Well, dear Jewels, I'm off to try to get some things done! Hope you all have a great day!

Julie

LilWarrior

Ahhh - you Ladies are too sweet. 

Me a warrior - he ha.  Maybe I am, I just dont know it.  He ha.  Yes, its the same cancer that spread from the Breast to the Liver (mets) and its only 1 cm and its the only cancer cell that showed up on the PET scan and yet my Positive Dr doesnt know if I will beat this - he ha.  Yea right, I know I will beat this.  

My positive beliefs and positive mind is working miracles now. I am getting paid back for every monthly premium I have paid to blue cross for dec 07- May 09.  Is that a BLESSING FROM GOD OR WHAT???  So I can rest assure that my Health Insurance will be paid, besides that I have no pharmacy payments, no copayments until May 09.  God works miracles.  I am thinking positive vibes that I will destroy this nasty demon inside my body with this Taxol and Herceptin and it wont come back.

HER2 positive ladies, I am just giving a little advice to you - never stop Herceptin because from the Drs and surviviors I have talked to  say this works for life and it helps to battle those nasty little cells.  Just something to think about!  I heard that its bad yet good that we are HER2 being bad because its aggresive, but good that we have herceptin to beat it down baby...  

I have written down all the advice you wonderful Ladies have given me and I am so blessed for you Sexy Mamas.  I call everyone Mama because of the love and nuturing you all give me - just like my Mama would give me if she were alive.  I am so dang thankful for you Ladies - and I want you to know if I can beat this with METS and still have full time school- then you can too..

As some of my Jewels said before - think positive, believe positive, and you shall recieve positive.  Amen!!!!  God is there for you and so I am. 

Lets get this fight on - in this corner we have "Cute Dana" who is alive and feeling fine and over in this corner we have a little cell named "FUBC" - the statistics and God says the Underdog will be "FUBC" and the favors are in "Dana's" corner so please make sure you put your money on "Cute Dana" --- So lets get ready to RUMBLE.......

sheshe48

Dana  girl you made me laugh, love the fight match. I already knows who is losing FUBC. Stay positive and these doctors are not God they don't know. A lot of our cure is attitude, and you are rockin. I'm so glad the cancer has not spread any further, that's in your favor. Go Kick some BC Butt!!

SIS Kim  I got my FUBC T-shirt, thank you so much. My dd got a kick out of it too.

Thanks Julie, I hope all our jewels have a great weekend.