Younger Survivors?

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  • msphil
    msphil Member Posts: 1,536
    edited May 2007

    Hi i too had a mastectomy (L) side i am now 13 yrs a survivor, had chemo 6 months, 7 weeks rad and 4 weeks theraphy for arm. Positive attitude and HOPE helped get me through Bless U Ms Phil

  • Pharmmom
    Pharmmom Member Posts: 300
    edited May 2007
    Hi,

    I was diagnosed at 38 young in my book! I just celebrated my 43 birthday yesterday!

    Hugs

    Barb
  • marnieshines
    marnieshines Member Posts: 1
    edited May 2007
    hi i am 42 and a 7yr bc surv. with recent bone mets dx
    how about you?
  • ptesinge
    ptesinge Member Posts: 119
    edited June 2007

    i was newly 30 at dx, now one year out!

  • PookieBear
    PookieBear Member Posts: 75
    edited June 2007

    I was diagnosed at 34 in Jan 2006. Doing very well after lumpectomy, chemo, rads and now on Tamoxifen.

  • RoxanneNJ31
    RoxanneNJ31 Member Posts: 180
    edited August 2007
    i am now 33 was dxed at 31 stage 2b with lymph nodes. Had lumpectomy, 4 ac and 4 taxol, surgery, then 6 carbo/gemzar with 33 rads. Was taking arminidex adn lupron but was redxed 3 months ago with stage 4 bone mets. I am currently undergoing chemo (abraxene/advastin) and on zometa a zoladex.

    I always say live for today because you never know what tomorrow brings. Lets all keep our head held up high in this fight again the cancer war.

    Take care and god bless everyone.
  • KimRI
    KimRI Member Posts: 35
    edited August 2007
    I was 33, diagnosed Stage 2B w/1pos. node of 6 in 1/03 after finding a lump. I found it after having my 2nd daughter. She was only 4mths. and my other daughter was a few mths. past 2yrs.old. I had a mast., 4AC, 35 radiation, proph. mast., lat flap reconstruction in '04.

    In 1/06 had recurrance to liver, collapsed 2 vertebra middle back, tumors on 2lower vertebra, had port put in 3/06, had 10 radiation to back and killed those buggers!!!!! Started chemo 3/06-present. Have been in clinical remission for 10mths. Yippee!!!! Also, had hysterectomy, tubes & ovaries removed in 11/06 as a preventative because I am strong estro.+, her2+.

    Doing great and other than some aches from my back, you would never be able to tell I'm Stage IV!!!!

    Kim
  • Carmelle
    Carmelle Member Posts: 388
    edited August 2007
    I was diagnosed young 38...but had lump since 35 or 36.
    Lump was 6 cm/multiple tumors, 5+ nodes of 15
    that was almost 5 years ago.
    Now I'm an old 42...it gets so much better and I even forget most of the time.
    Michelle
  • genavive
    genavive Member Posts: 21
    edited August 2007

    I was diagnosed last year when I was 29, however, I had been trying to get doctors to listen to me since 2004 about my lump. Check out my blog below!

  • rooni
    rooni Member Posts: 135
    edited September 2007

    I was diagnosed in feb 05 at 27 yrs old.So im about 2.5 yrs out and so far so good.Im almost 30 now and so glad to be here for my 3 boys 7,9 and 12(almost 13).Almost a teen he really needs me. thank god.

  • Leee
    Leee Member Posts: 155
    edited September 2007

    I was diagnosed at age 36 in Aug. 2004. My girls were ages 4 and 7 at the time...So far so good!

  • elvis56142
    elvis56142 Member Posts: 1
    edited September 2007

    My sister is 45 and has inflammatory breast cancer with lymph node involvement. She is currently flying from Atlanta to MD Anderson due to the fact that her chemo treatment was unresponsive at Emmory she is just one treatment into FEC. The cancer has spread to her lymph nodes since she was first DX's 5 months ago. I am so afraid for her. Can anyone advise on the FEC treatment and thoughts regarding same. Also looking for any advise on ports vs. pic lines and travel, hotel and medication assistance.



    Audrey

  • nash
    nash Member Posts: 2,600
    edited September 2007

    Audrey, sorry to hear about your sister. MD Anderson is an excellent cancer center. I would think a staff member there should be able to help with travel/hotel recommendations, etc. 

    Most bc chemo patients get a port as oppossed to a pic line. Does she not have anything in place for IV access yet?

    One treatment into FEC is pretty early to tell if it's working or not, although if the lymph node spread occured while during the few weeks of the first chemo cycle, that's probably enough reason to switch regimes early. IBC is notoriously aggressive, but there is a laundry list of chemos to try, and MD Anderson should be able to come up with a good plan of action.

    Is your sister HER+? If she is, there is an excellent website for you to check out, and it also has a section for inflammatory bc--it's www.her2support.org.

  • joykeeperorg
    joykeeperorg Member Posts: 154
    edited September 2007

    I'm 23 yrs old stage IIIA 4 positive out of the 34 removed negative margins on the breast tissue and triple negavtive going thru AC/T dose dense.......

  • lambchop
    lambchop Member Posts: 4
    edited September 2007

    I was 37 when i was diagnosed. Turned the Big 4-0 this year!!!!!!! It is a blessing to grow old! i look forward to every birthday!

    Take care all you young ones! Lambchop.

  • marla13
    marla13 Member Posts: 128
    edited September 2007

    I'm 34, was 32 at dx - Nov. '05, stage 3A, 9/12 +nodes.  Was dx 5 mos after losing twins @ 18 wks.  Did 4 AC, 4 Taxotere, 37 Rads. July '06 was last chemo, July '07 still clear - no cancer (praise God!).  Found out 1 week later I'm expecting.  I'm now 14 weeks and all is well.  I go back to the doctor next week.  I do have some knots on the opposite side of where the cancer was, in my abdomen area, but I'm hoping and praying it's nothing.  Have a 6 year old and a wonderful husband.  There is HOPE!  I refuse to give up or to give in!!!  EVER!

    Sending warm wishes and hugs to all of you!

    Marla

  • RoxanneNJ31
    RoxanneNJ31 Member Posts: 180
    edited September 2007

    I am a 33 year old survivor dx er+pr- her2 -  stage 2b at original dx 05 now stage iV with bone mets 07.  I am currently doing 18 rounds of the advastin/abraxene/zometa/ zoladex cocktail (not as good as a cosmo but oh well he he).  I have very high spirits and know im going to beat it as well as all my strong breast cancer sisters.

    Take care, be positive, and remember stay strong... We are truly the ones the real war, the war for survival and rights to move forward.

    Love and hugs to you all.

    Roxanne

  • Raye99
    Raye99 Member Posts: 1,350
    edited September 2007

    Wow, so many young girls! This may even be considered old, although I felt I was too young as well. Diagnosed last summer at 39 - IDC, Stage IIB, Grade 3, 5cm tumor, 3 our of 9 nodes...came out of NOWHERE.

    Bless you all.

    Raye

  • Lanika
    Lanika Member Posts: 2
    edited September 2007

    I went in on my 30th birthday April 9th because I felt a lump was dx on 04/18/07 with idc right breast 2.4 cm 6/13 nodes were + I just finished my last chemo treatment (6 rounds) and have 6-7 weeks of radiation ahead Glad the chemo is over!

  • michele0369
    michele0369 Member Posts: 5
    edited October 2007

    you can add me to your list. I found out I had stage 3a breast cancer in 06 and just found out they found some brain lesions last month. Hard news, but full of lots of faith and hope..

    MicheleKiss

  • michele0369
    michele0369 Member Posts: 5
    edited October 2007

    Hi Michelle,

    I was told that my cancer was there for years before I found it. I was 36 when I was told it was breast cancer. 13 nodes postived and er/pr postive. I just found out I have brain lesions that they feel were already there from the first cancer. The good news  it's lesions not tumors.

    Good luck,

    Blessings,

    Michele

  • tina-of-lymphland
    tina-of-lymphland Member Posts: 14
    edited November 2007

    Hi I'm Tina, I'm a 13 year survivor, I was 30 when diagnosed so tho I feel OLD lol, I'm one of the younger diagnosed survivors.

    Nice to meet you all.Cool

  • shannon31
    shannon31 Member Posts: 5
    edited November 2007

    hi just saw this i was 30 when i got diagnosed with b/c im now 32 and few months ago had a reconstruction when i was going through the chemo and radio i wish i had had the internet would of been better talking to people my own age who was going through the same instead of dealing with it on my own and with my best m8 my mother has had it 20 times now but wasnt there for me which is something i can never understand but im still here keep ur chin up and be positive it worked for me but boy i did n half eat lol just found a new lump so hoping its nothing to worry about.

  • sweetmama
    sweetmama Member Posts: 3
    edited February 2008

    Hi--I have a question about my mother-in-law who is now on week 4 of radiation after having surgery in December for IBC.  Her Dr. is saying she has to have rads  for 6-7 weeks, even though her tests came back "cancer-free". Why this time frame and why would they even do radiation if there's no cancer?  She only got one breast removed--is the recurrance rate of IBC greater than other BC's? Her Dr. wouldn't take the other breast--not sure why but she is scared about it coming back from other stories she's heard. Once rads are done, what will her "treatment" be for the future? Thanks

  • dunna
    dunna Member Posts: 3
    edited March 2008

    Thanks for sharing your story. I'm 36 and just finished radiation, surgery (had double mastectomy) and chemo. I'm on tamoxifin now. I worry about the future.

  • Steph_Rose
    Steph_Rose Member Posts: 37
    edited March 2008

    Tess! our stories seem so similar

    *I'm 30!* 

    Dxed Feb 14, 08

    had bilat matec with immediate tram flap on Feb 29 

  • divine777
    divine777 Member Posts: 33
    edited March 2008

    Hello everyone, Wink

    My name is Divine.  (that's from my parents not me) ...I am thankful for all of u posting your  storiesInnocent.....Thank you!

    I am just getting to the point now, to hear others stories and find support and strength from all of your courage.  I am praying for all of you. 

    I believe that, we CAN ALL BEAT THIS!  I am 32 years old and was told on August 9, 2007, that I have IBC, stage 4.  It has been an interesting, emotional journey so far...and one that I am determined to have a positive attitude & "enjoy every day" and "be happy no matter what"  Please visit my website to hear my full detailed story and sign in my guest book there, it would make me so happy to see new IBC sisters & friends joining me there.  Keep' keeping on...stay strong and positive live by faith one day @ a time.....and thank u again for this site I just found....I will be back. 

    Read the latest update now by using this link: http://www.caringbridge.org/visit/divineintervention

    peace & love,

    Divine

  • msvirgo828
    msvirgo828 Member Posts: 69
    edited May 2008

    Diagnoised at 25 with Stage 2 IDC currently being tested to see if it has returned.

  • KP1970
    KP1970 Member Posts: 192
    edited May 2008

    I was diagnosed 10/31/06 at the age of 36. My oncologist thinks that the cancer was probably there for 5 years, but I have heard that it can be there for 8-10 years before being detectable (so I may have been in my mid-20s when it started to grow)??! Yikes!

  • BethNY
    BethNY Member Posts: 2,710
    edited May 2008

    Kim I wouldn't totally believe that-- cancers that are slow growing- like grade 1 cancers that are found in patients that are post menopausal are usually there for several years...

    My oncologist thinks that my tumor grew over a period of a few months.

    I was always very in touch with my body.  I was at the GYN for a checkup 6 weeks before I felt the lump, and had a breast exam and all was fine.

    The second I felt the lump in the shower, I knew I hadn't felt it the day before--by the time they did surgery about a month later, the lump was 1.8 cm, and growing super fast- grade 3, and her2pos, and at age 26, I doubt it was there for several years.

    I think for those of us that are younger, every week and month counts-- and I hate when docs still think that all cancers were there for at least 5-8 years.

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