please help

Hi Ladies,

I'm back home for the night. I first just want to thank you all from the bottom of my heart.  You ladies have no idea how special you are to me.  I love the candle site - I have used it often. 

Nothing much new to report.  They finally got DH,(his name is Bill, by the way) out of the ER and up to oncology. He has a tube in his nose that runs down to his stomach to empty out whats causing the blockage.  Needless to say he HATES IT!!  They won't let him eat and he can only have ice chips to suck on.  His stomach is so distended he looks about 7 months pregnant!! They have him on all kind of pain med's, when I left he was feeling pretty good!!

Not sure how long the tube will be in for - I would think all day tomorrow at best.  I'm hoping they do the biopsy on Monday.  It is a holiday here so I'm not sure.  I'll ask tomorrow. 

He seems to have a good attitude - he told me - "I'm going to fight this like I did before".

I am wiped out - have been up since 2:30AM. Have to ppost in a few spots, will be back in a bit.

I LOVE YOU ALL - THANK YOU!!!

Valerie 

Melody, thank you so much for your kind words. Since he had Non-Hodgkins Lymphoma in his intestine before the onc noticed several different small masses throughout his bowel & intestine  this time.  They attach to the lymph nodes and wind up pressing against other organs.  Thats why he was in some much pain and there is a blockage.  I think the biopsy will just confirm it and be an aid in what type of treatment he will need.

Thank you for allowing him a spot on our trip to Emerald City - that made me smile!!

AE

Valerie, I'm praying for you and your DH that you will both have strength and peace to deal with everything.

Ulla, I hope you are having a great birthday and that we hear from you soon.

Everyone else... I'm thinking of you all. I read this forum every day and I am always inspired.

I love that candle website. Thank you for sharing it with us.

This looks sort of like Delbert, doesn't it?  I had to share it.  My thoughts and prayers are with you, AE.

xoxoxoxo

Karen

Morning Ladies,

Just wanted to pop it before I head to the hosptial.

Thank you all so much for everything.  You ladies ROCK!!! xxxooo

Karen, I LOVE that picture.  My Delbert looks EXACTLY like that.  And yes, Mel both he & my female Chessie curled up with me on the bed last night - extra close.  They both know something was not right.

Ulla - happy belated birthday.  Hope you get that new laptop up & running soon.

Well ladies, I'm off, its now the dreaded "waiting" period. I'm sure I will get no new info today.

LOL. Delbert just came over and crawled on my lap for some hugs & kisses. Just gotta love the old goof ball.

bbl,

AE 

Hi, to all my dear sisters.

Ulla, yes, it sounds like you have stys in the eyes.  They can very well be caused by your immune system being repressed by the chemo.  I am sure that is why Sue got Shingles.  Makes me a little angry, they have a vaccine against shingles, and all our chemo gals need to get this BEFORE they start the treatment. 

Sue, love, you sound a little better?  I hope the shingles are better.  Although it can take several weeks to clear up.  My mom had them and she told me it was pain worse than childbirth.  She was so sick and miserable.  You get to take your pick of what is worse, the shingles or the chemo.

Honey, you are going to be well.  You will not have bootface back in your life.  You are right, many gals feel, when the chemo is done, that they are vulnerable.  You are not.  The chemo did its job and the bootface "thingys" are gone, forever.  But many, many gals feel a sense of desertion or left behind, and are scared of the LACK of people in your face.  Go figure, but we are all just human and that is what humans do.

Valerie, bless your heart, I am so sorry about your dear husband.  I am in the midst of a lot of "what ifs?" too, right now, even though Walt got a good report with his head, he now has peripheral lack of blood flow to his feet.  Worries me silly.

Rads are nothing.  But I would INSIST on a lead apron for your belly.  I asked, but  they said, no, so I let them get away with the no.  Get one to tuck in under your breasts.  I have had rib problems for 9 years and I don't think I would have if I had not been a wuss and had insisted on a covering for my underbreast and belly.  But after they do the "setting up", this takes a while, maybe an hour, but remember, rads does not hurt.  Then, when you go in, it takes longer to get undressed than it does to get the zap.  I was tired in the evenings, so I did NOTHING, and I mean NOTHING.  I worked through the whole thing and 6 days after I finished we left for a strenuous trip to see the whales in Baja.  Everyone is very different, I did not burn, some gals do.  But compared to chemo, rads are a piece of cake.

Well, I love you all and will try to get on oftener, now that we have kinda settled Walt down.

Love, love and tons of kisses to my sisters.

Shirlann 

Hi Sue! First of all , I forgot to say congrats on your scan! That is such a plus for you Sue. I'm sure alot of your pain was from the shingles. And your hair is starting to grow! I know , the fatigue really got to me towards the end of tx. I felt like I would never have energy again. Especially with working and all the normal things we do that keep us busy. I couldn't do anything , but come home and sleep. But it does get better. Hang in there Sue. Get some rest.xxxx

Autie Em , though about you and dh all day. I hope he is resting and tomorrow they will do the biopsy. Know we are all praying and thinking of you. Snuggle up with Delbert and Chessie again. They are like our children and can be so comforting.xxxx

Hi Ulla , so glad to hear from you. Yes , it sounds like you have styes in your eyes. Very painful , definately could be from the chemo. I'm glad you and dh went away for the weekend. I hope you had some good moments. Good luck tomorrow. Everyone says rads is a breeze compared to chemo. I hope thats true for you too.xxxx

Hi Shirlann , glad to hear things are somewhat better for Walt. My SO has had Two operations for PAD. Will he be having more tests for it? I think sometimes they can treat it with meds if its not to bad. I will keep you both in my prayers.xxxx

Hi Karen , hows your dad doing? I'm so sorry you are going through this. I will keep him in my prayers. You hang in there.xxxx

Lisa , gb , wren , Lucy , Valsul , Karyll , and everyone else , thinking of you all and hoping you're all having good moments.xxxx Melody

Ulla, Happy late birthday. It does sound like you have a sty in your eye. I had one about 15 yrs ago, mine did not drain on it's own, I ended up at the opthomologist (eye spec) office where he drained it and gave me drops to put in the eye to help the infection. He told me that it was caused by blocked oil glands in the eyelid and to use warm compresses if I felt any coming up to try and unblock the gland.

I will get caught up with everyone else later.

Love Sheila

hi sisters..

i miissed u all so so so bad..thought about u all during the last 2 weeks..

dear sue..plz just think that u r going to finish it all as i did ..one more tomorrow...and i know that the cmf make u feel and think dark,,ut dont forget that u dont feel as sick as u used to feel with the rd devile...dear sue u will do it honey..

regarding to the 2 holes that u have in ur teeth,,i can give u my openion as a dentist,,,,

ask the dentist to fill the with the temporary filling paste (dont ask him to use the turbine to clean it ..it can wait ..just ask him to put some caries control (calcium hydroxide base) then to fill the tooth with ZINC OXIDE EGENOL till u finished ur all treatments then u can go ack to the dentist to make the permenant filling ....this is the right thing to be done while we r under our therapies...

i hope it i could help u more and do it for u for free by myself ,,,,

dear sisters i want to thank u all for the beautifull birthday cards and pix and wishes..

well about my rads...i was freaked,,i couldnt feel it as easy as described..specially wen the dr told me that they r going to give me the rads from 5 different directions and that i will need to apply the cream that they gave me on the back of my shoulder tooo....

i just felt like i am in an advanced stage of the boot face but i didnt know it be4 now,,,hopping that u can undersatand wat i mean...

i hope tomorrow will be easier than today...the ONK saw my eye today and prescribed an eye drop for me asking me to go back to c him if this didnt work in 2 -3 days...he suspecting herpis infection toooo...grrrhhhhhhhhh

i kept having my periods all the time during the chemo..now after the chemo finished i missed a period ..it didnt show this month...which made me feel so worried...

i love u all my sisterssssssss

lisa thank u so much for the link....it is so nice...

AE..I AM REALLY SORY FOR UR DH SICKNESS..I WILL BE PREYING SO HARD FOR BOTH OF U...

mel..thank u so much for everything ...

shirlann,,,u r the light at the end of the tunnel that keeps me on this tough road,,plz keep shinning...

lucy..sorry for ur separation news BUT.. if u feel better so it is the right decssion that u made ..go on girl ....

gb ...thanks for missing me...

karen ...thank u for ur all nice words ...wen is ur operatino going to be done???

sheilla..thanks alot for ur words too

wren..thanks for missing me too..

love u so mch

Stopping in to thank you all for your good wishes. 

Uncle Bill's (love that Sue)biopsy is tomorrow, then Wednesday he is getting a port but in.  Then he is starting with the dreaded STEROIDS!!!! I am so not looking forward to that. 

Gotta get some sleep, Sue I'll be thinking of you tomorrow, Ulla you as well and Karen the next day.

I Hate Bootface.

AE 

Not too much longer, I hope.  Hang in there, Aunty Em!  Bill beat bootface before, he'll do it again!!

Love you!

Karen

Where is everyone??

That must be it Sheila - I tried several times to get on yesterday afternoon and gave up. It was even a bit difficult to get in first thing this morning. Hope everyone is ok and hope to hear from you all soon.

Anyway, I shouldn't be sitting here - I have a few jobs to apply for and that always takes longer than I expect.

Hugs to you and everyone else

Jane xx 

Lisa, you did have a busy day yesterday so no wonder you are tired! Still, it was nice for you to have dinner with your g/f as well as spending time with your g/s. Hope you have a good sleep and wake feeling refreshed and stronger.

Ulla - I forgot to comment on your advice - what a help you are to Sue! I wish you were my dentist! I tend to get very uptight when I go to the dentist (I had very bad childhood experiences!) and I almost need nitrous oxide to get in the chair! That is a bit of an exaggeration but I do like a bit of the happy gas when I have to have a procedure done.

Must get to those jobs. I just had a coffee so I should be nice and reved up but it's nice sitting in the quiet morning, browsing everyones' posts.

Ok - that's it - I am going to attack the day now!

Hugs,

gb