Iodine link to fibrocystic dx
Comments
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Flalady,
Ummm, are you sure of that site? It's a porn site. Or there is something wrong with my PC.
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Rosemary, I take several capsules a day. I also bought dried seaweed from the same company and add it to soups, stews and any other foods it can be hidden in, but mostly small amounts.
I didn't find any mention on whether NatureSpiritHerbs tests for heavy metals, just that the Japanese seaweed has been shown to be heavily contaminated. I think I should ask them directly.
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Iodine got on my radar today and I'm just now browsing this thread. The only link I've followed is the first one to Dr Derry's article.
I was complaining to my friend last night about my thyroid melodrama and how all my medical professionals are using the old normal range which was redefined in 2002. My TSH is 6.4. On Monday when I asked that a free T4 test be added to my bloodwork, I was refused! First my most recent labs weren't in my file. They said the free T4 test is for hyperthyroid and I'm hypo. This, in spite of the information I provided to them from the association of endocrinologists which recommends basic thyroid screening to be TSH and free T4 tests. I have an appt tomorrow with my internist, and I've been having a bad feeling I'd just hit a brick wall when it comes to getting my thyroid treated so I can get some D*&^ relief from this fatigue.
Meanwhile, I have a conversation with my friend's chiropractor. The first thing he wants to investigate is an iodine deficiency. He tells me to swab a 2" circle of iodine on my arm. It should be there 8 hours later if I'm not deficient. Mine was gone in 2 hours. Now I can't remember what all else he said, but I'm cancelling my appointment w/ my internist and going to the chiropractor instead. If I can get relief from some iodine supplements, you can bet your booty I'll give that a whirl before getting wrapped up with any kind of treatment that involves getting poked with a needle every 6 months.
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oops! Rosemary I hope it was not too bad. It's Breastcancerchoices.com Sorry
Flalady
PS I did not have to do the arm test. I just looked where they do my port that I'm still using. When I started it was gone in only one hour.
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flalady,
I must be dense today. Where did you find the iodine test info? I keep running into ads. Or maybe you can just tell me what to do to take the test?
I think I must be getting denser, Althea if your tsh number is 6.4, you should be at no higher than 3.3 for todays standards. They want to drop that even further to 2.0-2.5. Why aren't you getting treated?
Kris, so how much iodine do you think your getting in each day? Funny thing about this, I mentioned this to my sister and she said our mother took iodine everyday. Years ago it was the treatment that seems to be mostly forgotten today. I don't know why my mother took it. I think it was used for a lot of ailments back in the 50's.
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FloridaLady,
Not sure if that is the site.
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I didn't realize that a third of fibrocystic disease becomes breast cancer. But you can reverse the fibrocystic disease with iodine according the Yahoo Iodine Group.
They have about 3,000 members taking iodine for everything from fibro breasts to thyroid cancer.
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>>I think I must be getting denser, Althea if your tsh number is 6.4, you should be at no higher than 3.3 for todays standards. They want to drop that even further to 2.0-2.5. Why aren't you getting treated? <<
I'd like to know the same thing!!!! First of all, I don't understand why my oncologist doesn't show interest in this since radiation is notorious for knocking thyroids off kilter. Second of all, I had to go to my internist with bloodwork that my gynecologist ordered. Thank goodness I have a gyn who knew to run a TSH test. But to get treated, I have to visit my internist. So I did. My cholesteral was also high.
It seemed like all the focus was on my cholesterol. I was told to exercise more and follow a lowfat diet. Get tested again in a month. In the meantime I learn more about thyroid and figure out that two different labs, my gyn, my onc, and my internist are all using the OLD normal range of .35 to 5.5. The new range is .3 to 3.0. Why do we know this and THEY DON'T?
I've been reading a couple of message boards of thyroid patients, and it seems like getting treatment for thyroid problems requires a bigass crowbar. I don't know why doctors would rather allow their patients to suffer than prescribe treatment. One woman reported having complaints for YEARS about her thyroid until it eventually grew around her carotid arteries, at which time the doctor said, oh, too late to do anything now, it's too dangerous to operate. I've been ambivalent about my internist whom I've seen maybe 4 or 5 times in 18 months. Now I'm feeling rather ticked and I'm a hissy fit ready to happen.
It was this morning that I learned about the iodine test. I think I followed the instructions correctly. Get some iodine solution. Saturate a cotton ball and then swab a circle two inches in diameter on the fleshy part of your arm. If you have sufficient levels of iodine in your system, that iodine will take 8 hours to be absorbed into your skin. My circle was gone in two hours.
Ok, I just talked to the chiropractor again just now. He said chlorinated water (ours is very heavy with it in this community) uses the same receptors as iodine. Every time I bathe, the chemicals in the water dominates the absorption of the receptors. This can be balanced by taking iodine supplements. In a week, I will conduct the test again to see how long the iodine takes to absorb into my skin. This is quick, painless and cheap. Now that's the kind of medical testing I like!
I will definitely keep ya'll posted on how this goes. I can go with my baseball bat to the internist at a later date if the iodine route doesn't get my thyroid back into balance.
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This is a very interesting thread -- and I'm bumping it to hide "sophia"!
Ann
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Althea,
I just got some info for you. My husband had his thyroid test taken and had to see the Dr. about it today. Good timing eh. Anyway, the Dr. said the lab that does the workup has scoring from .5-5 and they are taking into account the new standard. So for that lab, he came back normal.
Which leads me to think, WHY AREN'T they scoring or doing a more sensitive test so it can show .5-3 to be in the normal range? Do I believe they are using the the new standard when they show results .5-5? I'll answer that, NO. He was close enough to 3 for me not to be concerned. For you, I don't think so. You know what you know and feel. One of the signs of hypo IS having high cholesterol.
Thanks anomdenet for the test info. I've been taking iodine so I'll take a few days off and do the skin test first then on to the others if I need them.
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Rosemary, the progressive doctors don't rely exclusively on TSH. They go by symptoms. If you're cold or gaining weight, feeling sluggish or have dry skin they give you a trial of iodine or Armour Thyroid or both. I had a normal TSH for years but I was cold and tended towards constipation.
Even thyroid meds didn't really help so I didn't think it was my thyroid until I took the Iodine Loading Test. You have to take four iodine tablets first thing in the morning and then save your urine in this jug they give you. I took the test iodine pills at 8 o'clock and by noon my brain was really alert.
I flunked the Iodine Test - I was really deficient. So I started the iodine tablets. Soon, the dry skin that was flaking off my arms got to normal. I gradually lost the 15 pounds that weren't budging before. And my cholesterol dropped. Apparently hypothyroidism cause high cholesterol! I could kiss the people who turned me onto iodine.
You cannot pry the stuff away from me!
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Rosemary, the sea veggie blend I take is 600 mg per capsule. It includes:
Wakame (brown)
Kombu (brown)
Sea Fern (?)
Grapestone (red)
Iridea (red)
Brown species are blended with Red in a 2:1 ratio.
Ryan Drum, PhD, who has a couple of papers on thyroid health & sea weed on the naturespiritherbs.com site, says Maine & California kelps have about 1,000-2,000 ppm of iodine. (Those from Iceland have 8000 ppm, Norway kelps have 4000 ppm.) He recommends 3-5 grams a day of 'a good powdered kelp'.
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How many milligrams of iodine does "a good powdered kelp" contain?
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Anomdenet, That's what I was hoping to hear. Taking iodine might be the real answer for me. If not, then on to the real testing for thyroid problems. I have so many symptoms for hypo, I could be the poster child.
Thanks Kris, I just bought the iodine drops, and I'll see how that goes first.
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Althea, I just looked at my thyroid test. It says: TSH-T4 and then underneath it gives the values. At the time I was tested my TSH was .197 and my T4 Free (Direct) was 1.62. It indicated that I was getting too much thyroid meds according to my TSH. Six months later my TSH was 3.671 and my T4 Free (Direct) was 1.41. However, with my first test I started experimenting and skipped some doses of Synthroid because I started feeling nervous. Couldn't figure out why. Then a good four weeks before I went back for my next check it was normal. Go figure! So, now I'm taking my 125 mcg dose. I want to see what it is in June when I go back. I find myself not being as sleepy at night, but wanting to sleep very late in the morning. I don't like that!
Now, onto Iodine. If one is eating some salt with Iodine is that sufficient? Geez, we need a doctor on here. NO WE DON'T!!!
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I just talked to James Jungwirth at NatureSpiritHerbs. He had his seaweed tested for total heavy metals (about a year ago) and the test came back in the 'good' range--<20 ppm of total heavy metals.
They harvest along the coast about halfway between Portland and San Francisco--as he said 'not alot going on there, mostly park land.'
He also recommended that those with thyroid issues check out the two new papers posted on his web page.....
Anomdenet, the resources I checked said kelp contains 0.1-0.8% iodine based on dry weight. That would mean 1 capsule of 600 mg could have anywhere from 0.6 to 4.8 mg of iodine. I used two sources, both said the Japanese get about 12 mg of iodine a day in their daily diet and NSH says 3-5 capsules of the sea vegetable blend I take is recommended to provide about 12 mg (clearly it could be as high as 24 mg if 0.8% iodine is the norm & you take 5 capsules). The company said iodine levels in the kelps can vary month to month.
http://www.florahealth.com/flora/home/Canada/HealthInformation/Encyclopedias/Kelp.htm
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Well I'm going to join this Club of women, I'll tell you that!
I just KNOW I'm thyroid difficient; *%## doctors took me off my low dose synthroid and you should just see me now!
Aligator skin on legs, skin hanging down on ankles in spite of buffing after a shower with the pumice stone (I'm starting Aquaphor but that has petrolatum), puffy feet and fingers, worsening of numbness of feet, constipation, hair falling out, freezing cold to touch, oh... you get it.
I asked them to check in November and accepted "it's o.k." but I'm not o.k.
Glad I found this thread. Argghhh, more to do! Again!
Tender -
Not many doctors make treatment decisions that differ from those recommended by the lab tests--and some of you have seen old reference numbers on your lab tests--but, one way to help determine hypothyroidism is to take your basal body temp every day for a week or two. If it's low, you may have undiagnosed hypothyroid.
Do it this way: keep a thermometer next to the bed. When you first wake, put the thermometer into your armpit to take the reading. After getting the reading, you can get up. Don't take the temp if you've been awake & lying in bed for hours--it should be on first wakening.
If your temp is consistently at 97.6 or lower, it could be a sign of hypothyroidism.
Here's a counter point: this test is often used by complementary and alt med doctors. Some believe it's useless. One website says this:
http://thyroid.about.com/od/thyroidbasicsthyroid101/a/5lies_2.htm
Use of basal body temperature is controversial, however, and even those practitioners who use the test caution that it should be part of an overall approach, and not solely relied upon. Holistic thyroid expert Dr. Richard Shames has said: [blockquote]For those who have already been diagnosed with hypothyroidism, the basal temperature test is an additional piece of observational measurement that helps determine whether a person is on the right medicine and/or the right dose, along with considering the response to medication, physical signs (especially ankle reflexes and skin temperature), and blood test results...Temperature testing, however, is not infallible, and -- like any other test -- should never be used alone to rule in or rule out a thyroid condition, or to dictate therapy. This is simply a good piece of information that should be used wisely.[/blockquote]
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But if you already feel you have many signs of the condition, it certainly couldn't hurt to try your own test.
The same website mentioned above also published this on subclinical hypothyroidism:
http://thyroid.about.com/cs/symptomsproblems/a/heartrisk.htm
Hypothyroidism Relationship to Heart Disease and Cardiac Problems
February 2000 -- "Older women with subclinical hypothyroidism were almost twice as likely as women without this condition to have blockages in the aorta. They were also twice as likely to have had heart attacks."According to research published in the Annals of Internal Medicine, a slightly underactive thyroid -- the condition known as subclinical hypothyroidism -- is a major heart disease risk for older women. In the Dutch study, which is being called "The Rotterdam Study," it was found that older women with subclinical hypothyroidism were almost twice as likely as women without this condition to have blockages in the aorta. They were also twice as likely to have had heart attacks.
This common condition, which frequently has no obvious symptoms for patients, and no observable symptoms for doctors, is a strong risk factor for both hardening of the arteries and heart attacks in older women.
Subclinical hypothyroidism is detectable by a blood test, known as the Thyroid Stimulating Hormone (TSH) test. For the purposes of this study, subclinical hypothyroidism was defined as a TSH level greater than 4.0 mU/L in the presence of a normal free thyroxine (Free T4) level. Clinical hypothyroidism was defined as a TSH level greater than 4.0 mU/L and a decreased free thyroxine level.
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I hope others find this thread. Anyone who has done chemo more than likely has a low thyroid. I have read this is why so many ladies are so fatigued during and after treatment. So why don't they test us all?
Flalady
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BlindedB and FloridaL, this is great information.
Hypothyroid patients are very vulnerable to breast cancer-- and then radiation and chemo makes it worse.
Dr. Bernard Eskin feels 80% of all breast cancers have origins in the thyroid.
How do we make more breast cancer patients aware of this? Iodine or thyroid status must impact on recurrence.
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I was just remembering yesterday that I just couldn't get enough salt while going through radiation treatments. I remember one night in particular, I salted my hamburger three times. In hindsight it appears my body was starving for iodine.
I cancelled my appt today with the internist in order to give myself a chance to try the advice of the chiropractor over the next week. Now I'm hesitating on that front also. I received a couple of comments yesterday from people to be careful about taking in too much iodine, that it can make you sick. I could've sworn I read just this week somewhere that iodine was not a substance that would cause a problem if consumed excessively, that it would just flush on through. Today I was reading at 'world's healthiest food' site (hope I did the link sequence right and that it's a credible source of information) that the threshhold for iodine toxicity level is 1,100 mcg for people 19 and older.
I'm hoping someone here is math savvy. My mental focus is in the toilet these days. One microgram (mcg) is 1/1000 of a milligram. So, 1100 mcg is just a bit more than one milligram, right? I got some iodine supplements from the chiropractor yesterday, and just one dose is 3 milligrams.
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3 milligrams seems high because we are told that our daily dose should be 150 micrograms. But that dose won't heal anything. It's just a maintenance dose.
If you think you are deficient you'll need a bit higher dose at first to get you right. You'll have to pay close attention to your body to feel things that are changing for the better, then start down towards a maintenance dose that works for you. Also, you can take the pill every other day at first so you don't go too far past the 1100 mcg's.
I read Dr. Derry on the skin swab test. He said it was useless for assessing our iodine deficiency status.
This is research on Iodine:
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The recommended daily allowance "microgram dose" is not credible. The Japanese eat many milligrams (1,000 micrograms = 1 milligram) and they are the healthiest people on the planet with the least breast cancer.
The OLD THINKING was that more than 6 milligrams iodine was toxic.
But, if you look up the doctors who are experienced using iodine, they can recommend 50 milligrams. See: www.breastcancerchoices.org/iprotocol
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Thank you anomdenet for the link. I feel certain I read the other day that excess iodine is simply excreted through urine.
The link you provided reiterates that, so I feel comforted somewhat. Perhaps I need to read it again, but I didn't see in
there the statement about old thinking saying 6 milligrams or
more was toxic. Where does that come from, do you know? And who came up with 1,100 mcg being the threshhold?
Considering I have supplements of 3mg, the level of 1,100 seems very conservative.
I suppose I should've been taking notes on where I've been reading. The USDA daily recommended amount of iodine is
150mcg. Dont recall where I read it. I did read what
the mayo clinic has to say about this. My notes say that to treat a deficiency, take .3 to 1 mL three to four times
daily of 'strong' iodine. I'm not sure what
strong iodine is, unless it's the 100% version of
what we buy at the store for topical use which is a 3% or 10% solution. And I don't know what a mL is.
I also don't understand how iodine can be toxic if excess amounts are excreted through urine.
Can anyone explain that one to me?
Well, I was adding carriage returns to try and get rid of the horizontal scroll. Not sure it helped much
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Not all of it is excreted. "Toxicity: Chronic toxicity develops only when intake is > 2 mg/day.
Some people who ingest excess amounts of iodine, particularly those who were previously deficient, develop hyperthyroidism (Jod-Basedow phenomenon). Paradoxically, excess uptake of iodine by the thyroid may inhibit thyroid hormone synthesis (called Wolff-Chaikoff effect). Thus, iodide toxicity can eventually cause iodide goiter, hypothyroidism, or myxedema. Very large amounts of iodide may cause a brassy taste, increased salivation, GI irritation, and acneiform skin lesions.
Diagnosis is usually based on thyroid function test and imaging study findings (see Thyroid Disorders: Laboratory Testing of Thyroid Function). Iodine excretion may be more specific but is not usually measured. Treatment consists of correcting thyroid abnormalities and, if intake is excessive, dietary modification."
They aren't reading the same play book. Every where I go I see a different number of how much to take daily.
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>>Over the last 2 decades, iodine was replaced by bromine in the bread making process.
Bromine blocks thyroid function and may interfere with the anticancer effect of iodine on the
breast (4). Now, the risk for breast cancer is 1 in 8 and increasing 1% per year (7).<<This is from the breastcancerchoices site. I didn't know iodine was ever part of the bread making process and I didn't know bromine was either. I've been trying to convince myself for a long time to start making my own bread again. Maybe this will be the impetus I need to get it done.
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>>One of the last essential elements included in the RDA system was iodine, established in 1980 and confirmed in 1989 (8). The RDA for iodine was based on the amount of iodine/iodide needed to prevent goiter, extreme stupidity and hypothyroidism<<
This is just getting better and better! This explains what is so wrong with this country! LOL We're suffering from stupid!
I'd better paste where I found this one.
http://www.breastcancerchoices.org/order.html
Sorry for all the font tags in the previous post. I was trying to get the dern quoted material to be indented.
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Here's another paper on iodine. This one says the Japanese don't really eat as much iodine as they're being given credit for:
http://www.townsendletter.com/AugSept2005/gabyiodine0805.htm
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>>They aren't reading the same play book. Every where I go I see a different number of how much to take daily.<<
Yes, I'm finding that also. Again from the choices site, it says Japanese people typically consume 13.8 mg of iodine daily, and they are some of the healthiest people on the planet. So, I still have the dilemma of deciding who has the most credible information. The breastcancerchoices site also sells iodine supplements, so that rachets them down a few notches in my book on how credible their information is on the benefits of taking iodine supplements.
And meanwhile, the supplements I received from the chiropractor says 'prolamine iodine' on the label. Recenty we discussed the difference between magnesium oxide and magnesium citrate. In my efforts to learn about iodine in its different forms, I'm finding nothing about this prolamine iodine. argh
Thanks for the link you provided rosemary. I want to read the links listed at the bottom of that page but I don't think I can absorb anymore information at the moment. Initially I like the approach Alan Gaby takes toward the topic. With the just the reading I've done today, I sort of feel like the breastcancerchoices site is over there saying "we know what's wrong and we can fix it, buy our product." Whereas Gaby takes some of that same information, such as the intake of iodine by the japanese, and says well, that information may not be all that it appears at first glance.
And in regard to the iodine testing and how to interpret the results, again, it seems like the choices site gloms on to a result that fits an agenda they have and Gaby says, well, what about excretions other than urine? Well, duh! Just in my brief experience with taking iodine for two days, at the risk of providing too much information, I feel compelled to say my last bowel was decidedly different from before the iodine.
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Keep reading the paper. "In studies that have specifically looked at iodine intake among Japanese people, the mean dietary intake (estimated from urinary iodine excretion) was in the range of 330 to 500 mcg per day,7,8 which is at least 25-fold lower than 13.8 mg per day."
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