please help
Comments
-
Sue, I am hoping that you are sleeping soundly and that tomorrow will be a better day.
Wren, thank you for what you have done for our Sue, I hope tomorrow will be better for you as well.
Sue, I pm'd you as well.
Love all around,
Valerie
-
Dear and precious Sue, what can I say? I have not suffered like this so I feel inadequate to give comfort. I am so far away and you need someone there who you know understands. Please, please get help. Ask your dr to give you a stronger dose antidepressants. Is there anyone that you can talk to nearby? Wren, bless her, gave you some leads - I so hope they are helpful. All I can say is that I love you and that you are precious. I was thinking so strongly about you today as I was driving past the lake and the sun was sparkling on the water - it just made me think of you because it looked so beautiful and I thought of a beautiful person: ((((((((((Sue)))))))))). Please don't give up.
Ulla's husband - what a wonderful man! Thank you for posting about our dear Ulla. What a great gift to give her - a new laptop! I can't wait to hear from her again.
((((((((((Lisa))))))))) - I forgot about your computer being down and was starting to worry. Thank you so much for posting. So great to know that you are doing ok. It's going to be exciting to hear about your new 'girl' and the lifted one as they heal up and progress to their full beauty!
Wren - gentle ((())))s to you as you recover from your fill. I am so sorry you are in so much pain. I hope it gets better soon. All you women who have recons - you are so brave. I don't think I can do it!
Karen, you have been through so much too and now you have another surgery next week as well as rads soon. No wonder you feel down, tired and struggling at times yet you, like the other wonderful women here, keep on encouraging everyone. You are a such a sweet thing and am sending you my warmest thoughts and love.
Hugs also to AE, Shirlann, Angie, Valsul, Barbie, Karyll, Sheila, Melody, Tender, Pearl, Tender and Mia and everyone.
Love,
Jane xxxx
-
I did it, I got my tattoos yesterday! She injected lidocaine before starting the procedure. I felt a little bit of needle prick while injecting the numbing medicine but I still felt a little bit of discomfort while working on the first side but the second side was completly numb.
Sue (((((Hugs to you)))) sorry to hear you are so low again. Just know that we love you and are here to help you and listen when ever you need to talk to someone.
Ulla's DH, thank you for posting that she is OK.
to everyone else, Thank you for helping all and being there when someone is crying out for help.
Sheila
-
Sheila - Congrats on getting thru the tattoo'ing. Now you will have to try getting a "real" one!!!
AE
-
I don't think so, these are 'real' enough for me. Even with the numbing I felt it. My mom thinks that I was crazy even getting these cosmetic ones and when I said something about possibly getting some touch-ups done in a month if I am not happy with the color, she again said 'why, Donald is going to be the only one to see them besides the drs'.
My son is talking about getting a tattoo when his ship gets back to port. I told him that it is uncomfortable during the process.
Sheila
-
Sheila, It depends on where you get them. Mine are across my upper back and they didn't hurt that much.
AE
-
Hello Sisters xxx
I am always eternally grateful for your support and I am always sorry to burden you all when I am chemo tranced xxx
Last night I didnt sleep , I sat downstairs and thought and thought...I needed to muster the strength and dig deep .... between midnight and 6 am I never stopped thinking of life and family and you girls and what it all means. I have still found no answer to anything because how can anyone answer such cruel fate .
What I do realise that I can either self destruct from this situation or get up and go....
I do have a terrrible self destruct at times. I think far too deeply ....
I want to carry on following the yellow bricks and do my best to get through each treatment... I want to give it my all for the boys that I love so much .... and not be so weak in the face of adversity .... I want to get back to the person I was....I have been so different since I started chemo ...I think it is having too much of an emotional damage on my mind...I get so confused and tranced up with everything ...xxx
Please Please know that these episodes are not me xxx
-
We know that this isn't who you really are, Sue. This stupid disease gets the best of all of us at times. I'd hate to think what I'd be like if it wasn't for the "happy" pills. My onc has switched me from Lexapro to Effexor to help with my night sweats. They're definitely helping with that, but not so well with the depression. I've been very weepy and sad. Not so much for myself, but for my dad. He had heart surgery seven years ago and suffers from congestive heart failure. His health has declined dramatically in recent months. I can't help but think it's caused by the stress of my bc. There isn't anything more they can do for him at this point, so it's a waiting game. It's very stressful. Damn bootface!!! I hate it that it's effected him this way.
Have a restful day off, Sue. You must be exhausted. Have the shingles started to clear up yet? Things will get better, sweetheart. You'll return to the fun-loving, feisty, beautiful girl we've all come to love. She never left--she's just been through a lot of trauma.
Love and hugs,
Karen
-
Sue, there is absolutely no reason for you to apologize for your behavior. We ALL completely understand how you are feeling. Just know that with each passing day things WILL get better and will bring you one step closer to Oz and you will live happily ever after!!!
We love you!!!
NOW GET SOME REST!!!!!
Aunty Em
-
((((((Karen))))))
Thankyou so much for your understanding, you mean such a lot xxx
I am sorry your meds are changed ...its a no win situation...bootface brings so many trials....having a problem with meds and no bootface is a trial in itself...I have dropped my repeat script in and asked them to up my dose of anti ds' ..... now when all this is over how the hell are we going to wean off them... I have now started to take my strong pain meds again ...just to take the edge off the discomfort and the emotional stress.... Karen I hope you will find a balance with meds too.... You have so much on right now...and having just had a scan and the stress of waiting...the worry of your dad ...the worry of EVERY GOD DAMN THING ...you have every right to feel weepy....I wish we were so much closer .... I am sending you bombastic loving vibes over the ocean.
These post are always messy when I am on steroids...I cant put into words anything in the correct manner....
The shingles seem to be getting better...I have rested not much ...Tom rang me this morning to ask me to work...I told him to get knotted...lol.... sighs.... I am back in tomorrow...
I have a lot of empathy with the relationship you have with your dad Karen.... our dads mean the world to us....I always envisaged looking after him and a role reversal as time went on...I never expected him to see me at 38 just like he saw my mum at 38...it is so ironic timing. It has brought back a lot of sadness to him...and I feel so bad .... Karen your dad loves you loads and at times the situation must feel overpowering...please know that this bond you have will never ever be taken away no matter what.... A bond that goes beyond the realms xxx
Sorry for my grasshopper post ...I cant think straight xxx
-
Aunty Em .... I would love to squeeze you up right now....really really big squeeze.... feel it .... X X X X X
-
Sue, you will make it through this trial of bootface! you are such a strong person. Don't worry about how messed up your posts are, we know where you are coming from and understand completely.
I watched my aunt at 38 fighting ovarian cancer, unfortunately, they did not know where her primary cancer was until after she died. My Grandma thought that because my aunt died, my mom would die from her BC when she was dx in 2001. Mom took Grandma's face in her hands and said "They have removed my cancer, they could not find Arlene's, only treat the mets. I am not Arlene but I will fight like she did." Grandma has understood more about mine and not suggested that I was going to die. The memories do come back about Arlene and her struggles. I just do all I can to honor her memory and fight like a girl.
Sheila
-
Sue "weak in the face of adversity"??? You are the last person I would say is weak! You keep working, encouraging others, looking after your boys, enduring treatment, side effects, sleepless nights and the whole nasty trip that bootface is putting you through! Weak?! NO WAY!! Who wouldn't get depressed and fearful? That does not mean you are weak - thank God you have this forum to come to and vent because you need to let it all out. I hope you are sleeping now. You said in one of your earlier posts this week that you were going to take next week off as a sick week. I so wish you would do that!
Sheila - congratulations on the tats! I am sure that if I had recon I would want to go the whole way and have nipple, tattoo and everything done to make it look the best possible - this is not just for your husband - it's for you and if it makes you feel good about your body - do it!
((((((((((Karen)))))))))), I am so sorry you have this worry over your dear and precious father. Warmest thoughts and love to you.
Love to all the other wonderful women here. I have a busy morning and have to rush.
Jane. xxxxx
-
Jane, that is just why I have done the whole thing. I have always done for others, I thought I will do something for myself, I figured that I am only 47 and I have a lot of living to do. Anyway, they say that the tattoos distract the eye from the horizontal scars that cross my chest. I will wait and see after they stop ozzing. My hubby will be home Saturday which is the day I can keep them uncovered, he won't see how gross they look now. Right now I have some wet gauze to put on the tattoo area then the dry gauze pads over the top, I am only wearing a bra now to hold the gauze in place, I don't want tape on the boob for the next 3 days.
Sheila
-
http://www.youtube.com/watch?v=Gn5L5U92_54
Sue....this is for you darling!!! I hope it brings a smile to your face!!
Olivia and I saw this last night for the first time!! I am sure you have seen it...since it was in Brittain last summer...but how appropriate...the SONG...our song for our Sue!!!
I hope you all enjoy it!!
Much love!
xoxo
Lisa
-
Sheila...congrats on the tatts!! I will be pumping you for info later!
Karen, what surgery are you having?
Sorry...I am so behind on everything, and it is still difficult to sit here for very long.
I am somewhat sad today...tired and not able to eat much...I know it will pass.
Love to all, Shirlann, Lucy, Sue, Mel, Karen, Valerie, Sheila, Jane, Wren, Valsul, Ulla...and anyone else I may have forgotten...you know how I feel about each and everyone of you.
xoxo
Lisa
-
Lisa !! XXX
I forgot all about Connie .... what a wonder !!! She brought tears to a lot of people when she sang this song...thankyou so so much for this xxx That was the first episode of Britains got talent...I hope they do another one.... al the acts and presenters were great.... xx
Lisa I hope you are bearing up now you are on the otherside...you are so brave...I so admire everyone who has had reconstrutction.... you are all amazing....xxx
I still do not know if I can have reconstruction after rads ...xxx
Bit of funny news my dad told me today...my sisters boob job has gone lobsided ...LOL... shes given them holy hell...just wish she was more passionate about things that matter xxx
Jane ..thankyou for making me feel better ...I am very humbled xxx I am taking a weeks holiday 7th to 14th of March if Tom will agree xxx
Sheila...I am so happy you have reached the final tattoos and all is going well.... I have so much admiration for you and the way you handle everything xxx
Is it bcos I have still got a fair amount of treatment and radiation to go that I cannot face the thought of reconstruction.... I just dont feel much respect for myself lately....I have upset too many people with this illness xxx
Much Love xxx
-
Sue...the respect my dear is for all of the people who look at you and wonder how you can do what you do? Who have you upset? Nobody wants to see their loved ones go through this damn bootface, but you my dear have not lost any respect from anyone. If anything, you have GAINED respect from so many people!!
If you should decide reconstruction, which by the way, you can have if you have rads, you just have to wait longer...then you go through with it. You can take lots of time to decide. You can wait a year or longer...whatever is right for you...totally an individual decision. Look at Jane...she has not done it.
You have lots of time to think about what you want down the road...but we first need to travel down the YELLOW BRICK ROAD TO OZ!
-
Happy Valentine's Day, you all! Do you have Valentines Day in England?
Sue, self respect often gets thrown off with this disease, as we see our body's change, our mind's confusion, our disease's effect on family.
In truth, I see an extraordinary woman, witty, empathic, appropriately irritated at the bootface, who has garnished great respect for the manner in which she has carried on through the thick of it...
You're quite astonishing truly, and certainly earned my respect in life.
Tender -
Sue as Lisa said recon is available to you even with rads. I have met a woman on this board who is originally from Lenoir (where I live) but now living in Colorado. She had BC 5 yrs ago and did chemo and rads then and is now going through recon and she seems to be doing well. She is planning on coming back east sometime this spring and we will meet then. She attended the local high school where the organist at church teaches math and he remembers her.
My mom had her single mast done in 2001 and did not have recon done, It is a personal decision.
Just remember all the trials that Dorothy had going down the yellow brick road but she kept going. Keep going down the yellow brick road where we will all meet in OZ.
Sheila
-
Oh truly truly I thank you God for bringing me here...please bless all these understanding sisters with your warm love....xxx
You have all brought tears to me.... I am profoundly touched by the comprehension you have of my feelings .... and once again very humbled at the enormous strength you give to me despite the war we all battle....
One day girls ... we will be onwards and upwards... I truly hope so ...because I love you all so much .... No one can ever reach out to my inner torment like you all do xxx
I am still on the edge....still low ...still dying inside....still self pity ...still worry ... but I know and I hope and pray that I can lift myself out once again and peep .... xxx or is that peek ...or could it be peak ....
Valentines day is almost over...I had some beautiful flowers and gorgeous chocolates.... I hope you all had some loving and caring today ... and tomorrow will be one step further to OZ xxxx
BTW A E .... did you know you were born in 1880 on board an American ship going to Hong Kong.... I will post a couple of links in a min ....that film and the script has me engrossed ...it is absolutely amzing writing and acting for the time period xxx
They dont make them like these anymore !!! xx
-
http://www.imdb.com/name/nm0087404/
http://www.imdb.com/name/nm0087404/
the 2nd link has some quotes...can you just hear the cowardly lion...
."I do believe in spooks. I do believe in spooks. I do, I do, I do, I do, I do believe in spooks"
ahhh lol...I watched this film every xmas with my mum and dad....happy days !!!
-
Oh Sue, how could anyone not love and respect you! You are such an inspiration. Don't worry about recon yet. As Sheila said, it really is a personal decision. I was pretty sure I wanted it before my mastectomy but I am very reluctant to upset any more lymph glands! My physio told me yesterday that my LE varies between a stage 1 and stage 0 so I would like to keep it under control. I know women do have it done with LE and it is successful but as for me, I think I would rather remain uneven and keep LE at bay rather than risk it flaring up and getting worse.
xx
-
I almost forgot......................
-
I hope you all took a look at the you tube link I sent.....you will love it!
Happy Valentine's day to all. I almost forgot about it.
Enjoy your chocolates Sue!!
xoxo
Lisa
-
Hey Sue, thanks for the info on AE. Her birthday was June 4th. Mine is June 7th!!!! How do you like that!!!
I just love that movie..............
Are you wrapped in your afghan???
AE
-
Happy Valentines Day everyone! It is the day after here so I forgot about it today! My gym had pink feather boas and red hearts draped everywhere.
(((((Lisa))))), I'm sorry you are feeling sad. I think that is so normal after surgery. I remember falling in a heap 4 days afterwards and crying very easily. Up until then I had been very upbeat. The tears really helped and I felt a lot better within a couple of days. I hope you feel better soon.
Jane xxx
-
Lisa I did enjoy them !!! hahah ...they all went in my steroid state xxx
Guess what uh oh...problem... I have been eating that much at night over my lap top that there are crumbs and bits all under my keys ...half of them dont work properly LOL...
How do I get them out !!!
Silly greedy pig I am LOLOL xxx
Yes please watch Connie on Lisas link.... beautiful xxx
-
Thanks for the links AE and Sue. I watched the W of Oz just a couple of months ago and I loved it! I love how it has become a symbol of hope and encouragement here.
-
I also thought about doing the bilat mast for 6 months prior to my actual dx of DCIS. So I had plenty of time to think about what I was comfortable with doing. When I had the second biopsy done within 18 months that showed ADH, my surgeon suggested that I think about going through with preventive mast and to let him know on my next appointment. Unfortunately I failed the 6 mo mammo and the biopsy that time showed DCIS. I could not see myself without some type of reconstruction. I am glad that I have not had any problems with my surgeries like some of the women on this site.
Happy V-Day to all.
Sheila
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team