please help
Comments
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Hi gals, I had to jump in, I miss you all so much. Walt had the doppler of his carotid arteries, and they were clear, we go in on Thursday to see what has happened to his CT scan of the head. Looking for strokes or tumor. He is a diabetic, so that makes sense.
Ohhhh Sue, they have a vaccine for shingles, dang it, but usually don't give it until you are 60 years old. But I think they need to give it to all chemo people. Idiots. You didn't need that.
I miss all of you, Ulla, Sue, Lisa, Melody, Poppy, all my girls.
Hugs, and kisses, I will let you all know when we find out why Walt is falling over.
Love, Shirlann
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It's so good to hear from you, Shirlann. We've missed you too! It's just not the same around here without you. I sure hope the doctors can figure out what's going on with poor Walt. I'm praying that it's nothing serious.
Please let us know as soon as you find anything out.
Love and hugs,
Karen
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Thanks for your sweet, supportive words, Jane. You are such a blessing to us all. I always feel better after you've given me a pep talk!
Love you!
Karen
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Sue and Karen, I don't think either of you are at all odd in feeling that sort of "clucky" feeling. It think that what you have both had to confront and endure in the last few months makes you feel everything more intensely and 'see' things more vividly. Bootface makes us realise how much we love and hopefully, how much we are loved.
Love to you both and to all here who understand how you feel.
Jane. xxx
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Shirlann - so good to hear from you. I am keeping you and Walt in my prayers and hoping that the CT scan shows nothing serious.
Hugs,
Jane. xxx
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Mornin'ladies.
{{{{{{{{{{{{{{{{Shirlann}}}}}}}}}}} please keep us posted on Walt.
Melody - years ago my DH had bad heart palpatations. Doctors told him the same thing - lay off the caffeine - he stopped then switched to de-caf and he never had them again. Give it try.
Sue, please tell me you didn't go to work today. I think shingles are caused by stress, right?? I just feel terrible for you.
ULLA- WHERE ARE YOU???? Just check in and say Hi!
Lisa- hope you are feeling better. We miss you terribly.
Jane. Lucy, Karen & everyone else my chemo brain can't remember, hope you have a great day!!
Hugs,
AE
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Melody, I hope your palpitations go soon. It must be very unpleasant. Sometimes stress is there and we are too busy to acknowledge it. Are you having much stress at work? ((((()))))
Hi to all my other beautiful sisters. I hope you are all ok. I am off to have a lymph massage. Not sure if I need it this time because my scar and arm pit really seem to have settled down the last couple of weeks. Still, it's wonderfully relaxing and I want to ask my physio if she thinks I am ready for a little scar-tidy-up surgery.
Love,
Jane xxx
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Please please PLEASE FORGIVE ME SISTERS...
I feel very suicidal.
I cant take the trauma of what has happened
I cant live in the frightening bubble anymore
The treatment is barbaric
I cant do the CMF
I am worn out
I have no place on this earth I cannot function.
I have hit a major brick wall
YOU WIN BOOTFACE ..TAKE ME ..YOU TOOK MY YOUTH MY HEALTH MY HAPPINESS MY FAMILYS HAPPINESS...YOU HAVE TAKEN ME TO A DARK PLCE...I HAVE NO ENERGY TO FIGHT YOU....HAVE ME...DO WHAT YOU WISH.... I AM LIFELESS
CMF CHEMO IS EMOTIONALLY BAD ..HOW CAN I PUT MYSELF THRUY IT AGAIN NXT TUESDAY...I ALMOST KILLED MY SELF TONIGHT..MY DAD SAVED ME ...
I HATE THIS SHIT
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Oh Sue, I hate it that we live so far apart. I wish I could just come over and sit with you, hold your hand, and let you vent your anger and frustration over bootface. You can't give in to it though, Sue! Think of your boys. They'd be devastated! That's what gets me through. I've been feeling pretty gloomy this past week too--but I keep reminding myself how much my kids need me. They both have good dads who love them very much, but no one can replace me. Not that I'm supermom or anything. I've made plenty of mistakes. But no one loves them the way I do and no one could care for them the way I do. I have to FIGHT this damn stupid disease with everything in me (which isn't much these days--I'm pretty depleted).
You are a strong, courageous woman Sue! One of the strongest I've ever met. You've come this far--don't you dare give up now!!!! I know it's hard. I feel like I've aged 20 years in the past six months. It WILL get better though. Just keep reminding yourself that you're one of the lucky ones. You found it early. Your lymph nodes were clear. And you're fighting it very aggressively. You're going to be just FINE!!!
Can your dad come over to be with you?? Is your s/o there? I don't want you to be alone if you're feeling suicidal. Do you have Lucy's number? Maybe it would help to call her and talk. I hate this feeling of helplessness.
Hang in there Sue. Remember how much we all love you.
Love and hugs,
Karen
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I spoke to my dad ...he told me to take a day at a time and to get through tonight...and not to think about next Tuesday...he is so sad to see me so cut up.
My oh is here....hes helped a lot...but Karen ...everyone is helpless cos they cant take this lonely place we find ourselves in away from us.
I do not want anymore chemo ...cmf is destroying...I am humiliated and worthless...
Would I fail if i didnt have anymore...
Theres no god damn guarantees anyway
I wish my treatment had been 4 ac end of.
My posts dont make sense even
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Hi Ladies!! I am back from the doctors! I just got my computer service back up!
I have pages to read and catch up, but I wanted to post and say hello. I missed all of you so very much!! I thought about all of you everyday! You ladies are the best.
Karen, I got the books. Thanks so much!! I look forward to the reads.
I will be on here for as long as I am able to sit upright..haha.
I will try to go back and catch up.
THE ONE THING I HAVE TO KNOW...IS HOW KAREN IS?? WHAT DID U FIND OUT ABOUT YOUR SCAN?? I COULD NOT STOP WONDERING.
XOXO
LISA
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GOOD EVENNING LADIES..
I AM ULLA"S HUSBAND..
I AM SORRY TO BE SUCH INTRUDER BUT ULLA ASKED ME SO MANY TIMES TO SIGN IN HERE FOR HER AS HER LAPTOP WAS BROKEN SINCE ABOUT 10 DAYS..
AND I AM SORRY FOR BEING LATE ON DOING THAT BUT I REALLY FORGET TO DO IT EVERYTIME I AM IN WORK..
PLZ FORGIVE MY BEING SUCH BAD HUSBAND....BUT I AM PLANNING TO SURPRISE HER WITH A NEW LAPTOP IN HER NEXT BIRTHDAY NEXT SATURDAY 16TH FEBRUARY SO SHE CAN COMUNICATE WITH ALL OF U AGAIN..
I CANT REMEMBER ALL ABOUT WHERE EXACTLY SHE ASKED ME TO GO IN THESE THREADS,ALL I KNOW AND STILL REMEMBER IS THAT SHE MENTIONED SOME NAMES THAT I SAW THEM HERE IN THIS THREAD,,
SHE SAID THAT ONE OF YOU LADIES (KAREN )WILL TELL THE OTHERS IN ANOTHER THREAD THAT SHE IS OK AND WAITING FOR HER LAPTOP TO E FIXED..SHE DONT KNOW THAT SHE WILL GET A NEW ONE YET....
I WOULD LIKE TO SEND HER (AND MY)BEST WISHES FOR(WELL THIS IS NOT EASY TO REMEMBER ALL THE NAMES THAT SHE TOLD ME BUT I WILL TRY MY BEST)
SHIRLANN..SUE..KAREN..AUNTY EM..MELODY..LUCY..WREN..AND THERE WAS ANOTHER LADY WHO HAD BEEN OPERATED LATELY ..SHE SEND HER SPECIAL GREETINGS...
SORRY IF I FORGET ANYONE OF YOU LADIES AND HOPE YOU ALL HAVE THE BEST TIME AND THE LIGHTEST SIDE EFFECTS OF THIS TOUGH TREATMENTS...
ULLA"S HUSBAND
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I HAVE ALLOT TO READ....BUT I ALSO HAVE ALLOT OF TIME!
I HAVE TO SAY AGAIN..SISTERS...I LOVE YOU ALL!! I CAN'T TELL YOU HOW MUCH I MISSED BEING ON HERE AND TALKING WITH YOU.
GETTING THE BOOKS FROM KAREN, ALONG WITH HER SWEET NOTE...MADE ME FEEL SOO GOOD!
I HAVE THE NOTE NEAR MY BED.
SUE...I KNOW ALLOT IS HAPPENING WITH YOU, I READ SHINGLES, AND MORE CHEMO. BUT WHAT I JUST READ, UPSETS ME. YOU DO NOT WANT TO END ANYTHING. KAREN IS RIGHT..YOUR BOYS NEED YOU! YOU CAN DO THIS SUE..SWEETIE..WE ARE HERE..AND WE LOVE YOU!!
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Sue - AUNTY EM SAYS JUST STOP IT!!!! You are one of the strongest woman I have ever met and YOU WILL GET THRU THIS!!!! I know you are suffering and it SUCKS but I also know that you are a FIGHTER and you would not let this get the best of you. All of this crap will someday SOON be a bad memory.
HANG TOUGH, LIVESTRONG !!!!!
{{{{{{{{{{{{{{{{{{{{{{SUE}}}}}}}}}}}}}}}}}}}}}}}}}}
Aunty Em
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LISA!!!!!! I'm so happy that you're back! We've missed you sooooo much! How are you feeling? Are you very sore? I'm so glad that you received the books. I'm sure you'll enjoy them both. I was worried when we didn't hear from you. I thought that you were having a rough recovery. It didn't even occur to me that your computer was down. My scan came back clear! My lungs are fine. My radiology onc told me that my lungs sound a bit "airier" than most, but still well within normal. I think my other doc is just very cautious. I appreciate that about her.
Give us all the details when you're able to sit up long enough to write long posts. How do you like your new "girl"? Did you have anything done to the other to make it match the new one?
Love and hugs,
Karen
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Lisa - GREAT TO SEE YOU POSTING!!! We missed you sooo much around here. I hope everything is going well. {{{{{{{{{{{LISA}}}}}}}}}}}}}
Ulla's DH - THANK YOU SO MUCH FOR POSTING!! We were all worried about your lovely wife - I hope she is doing well - please let her know Aunty Em misses here.
Gotta run and walk my dogs,
bbl,
AE
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Thank you, Ulla's husband, for posting. We've been so worried about her. Give her our love and tell her that we miss her! I'll let the ladies on our other thread know that she's fine. They've been concerned about her too.
Take care!
Karen
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DEAR SUE,,
I AM SO SORRY TO INTERFERE WITH YOUR OWN PRIVATE FEELINGS ..I READ YOUR POST BY CHANCE WHEN I WAS TRYING TO GET THROUGH THIS FOR MY DEAR ULLA AND I FEEL REALLY THAT YOU ARE A LOVELY ,STRONG ,WONDERFULL WOMAN AND I CAN KNOW NOW WHY MY ULLA LOVES YOU LADIES IN THIS STRONG WAY .AND I DONT FEEL SHAMED TO TELL YOU THAT I FELT SO JEALOUSE OF HER LOVE TO YOU ALL LIKE SHE DO ,YOU ARE THE ONLY PERSONS WHO SHE ALKES WITH,SHE EVEN DOESNT TELL HER OWN FAMILY YET..
PLEASE DEAR SUE I WILL NOT TELL MY ULLA ABOUT YOUR SADNESS HOPING THAT MY WORDS CAN HELP LITTLE..
PLEASE JUST THINK ABOUT THE PEOPLE WHO LOVES YOU SO YOU WILL FIND THE STRENGTH TO FIGHT THIS UGLY DISEASE..
I KEPT WISHING ALL THE TIME THAT MY ULLA CAN THINK ABOUT ME AND FIND THE STRENGTH TO FIGHT JUST TO KEEP WITH ME LONGER...
I LOVE YOU LADIES AS MY ULLA LOVES YOU ...HOPE I AM NOT BOTHERING THIS GIRLY COMMUNITY,,
I AM GOING HOME NOW HOPING YOU ALL A NICE,PEACFUL NIGHT
ULLA"S HUSBAND
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Sue, where are you sweetie? Are you ok? I worry about you so much when you talk like that. Your dad is right--just take things one day at a time. If it wasn't for the shingles, I'm sure the cmf wouldn't be this miserable for you. Just concentrate on recovering from the shingles for now.
Stay strong!! We love you!
Hugs,
Karen
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What a dear, sweet man you are, Ulla's dh. Ulla is very lucky to have you. Thank you for your kind words and for supporting our dear Sue. You're right--she's a very special lady and we all love her dearly. We love your lovely Ulla as well.
Have a wonderful evening.
Hugs,
Karen
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Oh Karen, I am so relieved!!! Yeah!! That is good news.
I won't be sitting here much longer, it is a bit uncomfortable. Two of my girlfriends are bringing a pizza over in about an hour for a visit.
Ulla's hubby..how sweet of you to post for her. Tell her Lisa said hello!!!
Well, my new boob is fine. They did reduce the size of my good one, and lifted it. The only thing is, is that the lifted one sits a little higher and firmer than the new one. I saw the ps today, and they said, that he can do a little alteration when he does the nipple. Not sure if that means where he places the nipple or what?? I know the lifted one, will drop a little on it's own. But overall they look good. They removed all 4 of my drains!! That was a huge relief! I will go back next week for him to be sure no fluid buildup has occured. The insiscion with the reconstructed one...after they took off the tape..was remarkable. I could not believe how good it looked. Then they taped me back up again.
I don't have much of an appetite. My tummy is so tight..you could bounce a dime off of it..haha. I have allot of nausea that comes and goes. So i'ts hard to eat. I am doing my best to eat all healthy food when I can. Pizza tonight..not too healthy..but it is veggie! haha.
I will get on tomorrow and post and give more details. My hands even hurt..not sure why.
It was so great having my niece in there with me, and through recovery.
The operation started at 8:15am...and lasted 3 hrs and 15min. I was in recovery for about 4 hrs.
Talk to all of you tomorrow. Possibly later tonight, if I am not too tired.
Love you all!!!!!!
xoxo
Lisa
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I love you all xxxx I am sorry xxx..I truly am. It is 11pm I am going to lay here shut my eyes ...I am so low ....xxx
Lisa so nice to see you posts xxx So happy to know your ok
Ullas' husband....we love you bcos xxx you look after our Ulla ....and you are both a credit to each other...you need as much support as Ulla..we always tend to forget the o/h need support when we are so miserable
Please pray for me to find strength sisters
love xxx
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Sue, wrap that afghan around you and pretend we are ALL there giving you one BIG HUG!!!
Love ya,
AE
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Sue, please call the onk tomorrow and have her/him give you a higher dose of anti-depressants. I'm thinking the dose you are on is too low. The onk is there for YOU- they don't want to see you suffer.
AE
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Could it be any smaller, jeez.....................
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Sweet dreams, Sue. Remember--one day at a time. You will get through this. Imagine the big group hug that AE spoke of. We may not be with you physically, but we're there in spirit every step of the way.
I just heard on the news that beer may have cancer-fighting properties. Now there's something to celebrate!! Honestly though, AE is right, you need to ask for a higher dose of antidepressant. You shouldn't be suffering so much emotionally. Promise you'll at least ask about it, okay??
Love you,
Karen
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Enjoy your pizza and the company of your friends, Lisa. It's such a relief to know that you're doing so well.
Love and hugs,
Karen
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Sue,
We love you, we care about you, we don't want you to die.
We believe your pain, we believe how badly you hurt, we believe your sorrow.
We know you are hurting so much more than you can tell us.
Here is a UK number you can call to talk with someone about how you feel. I looked it up for you.
United Kingdom
08457 90 90 90Here is a link I found too.
http://www.befrienders.org/ It has a UK link too.
Also, here is something I read on that website.
Suicide is often a permanent solution to a temporary problem When we are depressed, we tend to see things through the very narrow perspective of the present moment. A week or a month later, things may look completely different Most people who once thought about killing themselves are now glad to be alive. They say they didn't want to end their lives - they just wanted to stop the pain.Dear sweet Sue, I am in tears for you. You poor girl. You have so much on your plate, I am sure you are overwhelmed with pain and exhaustion.
Here is my shoulder to lean on, to cry on, to just BE with you.
I am sending you a private message.
Please talk to your doctor, your husband, your children. Let them help you through this.
Here is a big hug (((Sue))) I'm your sister across the ocean and I'm sending you love and prayers for some comfort.
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Dear Ulla's husband. Thank you so much for the note to let us know how our friend Ulla is. I can't wait for her to get her new laptop. I just love her lovely personality posting here with us.
Everyone else, hello to you all. I got another fill today and I'm in a lot of pain, but as the pain doctor said to my brother-in-law when treating him for chronic pain, "It's only pain" and you can deal with pain... It's true. I'm taking meds and dealing with it. It hurts but it won't kill me.
Hugs to all!
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Take care, Wren. I'm so sorry you're in such pain. Still, you're here giving our dear Sue words of encouragement and looking up websites and phone numbers to call for help. What a great person you are!! I'm in awe of you ladies who've had mastectomies with or without reconstruction. You're all so strong and courageous.
I hope tomorrow's a better day, Wren.
Love and hugs,
Karen
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