Anyone starting Chemo in August 07?
Comments
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I don't know if Kaye has this copywrited or not, but the other day I couldn't help singing "M-m-m-my Seroma!" Yup, my strange swollen-ness ended up being just a plain old seroma. And again, I couldn't beat Kaye's record of 250cc's! Just shy of 200 was drained. And it did look like I had grown a boob back. Suppose that's how the "water-bra" was invented?
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Angie--glad to hear there was a fixable problem for your issues! (and now I won't be able to get that song out of my head.)
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Hi all,
PLease forgive me for being gone so long but I think I have MAJOR chemo brain, either that or I just have to much on my mind to keep up with.
Kato - A new lump. I hate that and Im thinking positive thoughts for you. When will you get the path report? IM GLAD YOU HAD IT REMOVED!!!!! Im right there with you on the common sense of removing what isnt supposed to be there.
Nash - Hows mom doing? Is she still in the hospital? Are they taking good care of her? Tell her to keep her spirits up and Im thinking of her dailey.
I understand how some of you who are finishing up treatment feel. When I finished up in 1996 I felt like someone had dropped me off on some deserted road and forgot about me. I mean for 9 months or so I was trudging thru treatment, followed closely by my oncologist and occasionally my surgeon and my rads folk, then POOF nothing . Its really hard to get used to. It does get better.
Im flying to M D Anderson on Tuesday. Im really excited. Im trying to get my kids ready to stay with my parents for 10 - 14 days. Ive never been away from them more than 1 night!!!! I had the tickets given to me by Mercey Air Lift. And I found a hotel nearby for a steal. So now Im getting a little nervous.
I sure hope Dr C. is all they say he is. I believe he is . Is it possible to get homesick before you leave home?
Im still getting treatments every three wks. On Wednesdays, just had one three days ago. Except for fatigue Im fine.
I know Im missing alot but my kids are bugging me to fix them a snack.
Ill check back as soon as I can.
Hugs
Kim
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Ok Girls, Man your battle stations for Tuesday, Jan 23rd for Kimmie. We are praying/hoping the best for you, girlfriend. I hope he's as good as people say he is, too. I'm sure he will be. Your Kimlets will be w/ Grandma for 12 to 14 days, but how long will you be there for? Is it just a consult with something (what?) in the future?
Yes, there is a new (sort-of) lump, but it's the one I already had ultra-sounded (sounded?) at my Cancer Center (City of Hope-and I love them) a month ago or more. At that time the tech, the Dr who read the ultrasound, and my surgeon all said it was nothing. And I believe them.
And now I want someone to take it out anyway. So, the local surgeon felt it, agreed it was probably nothing, and agreed that out it will come. They'll biopsy it at that time. Odd, but if there is no suspicion of anything cancerous, it's a lot easier to get them removed. (Isn't that peculiar?) So, it's not bad, and I'm not nervous, I'm just following my new mantra. It will be done as an outpatient thing sometime soon.
And Angie, (or shall I say: "Your Strange Swollen-ness"?) drained that seroma, eh? Aren't they a drag? They're just a teeny bit better than the drains themselves. At least it is the winter and you can hide it a little. I had mine in JULY. In the DESERT. So sleeveless shirts (my uniform) were out of the picture. Hopefully yours will rejoin it's other little lymph buddies somewhere ELSE in your body.
Nash - Did your mom get out of the Hospital Friday? How's it going?
Will you give me permission to post your picture (the one you sent me) here? (I'll crop your children out of it - don't think its a great idea to have children posted on the net!) But I'd like people to see it (if you won't mind.)
Ok, I need to git, gittin' ladies.
Have a great day.
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Howdy, all,
Sure, Kaye, that's fine to put the photo up. Cropped is a good idea.
My mom is still in the hospital. This two day thing the surgeon had assured us would be the stay appears to have all been a ruse. We actually don't know when she'll be out. They said when the chest tubes stop draining, then she can go. But since the cancer causes the fluid buildup, and she's not getting chemo on the hospital (was supposed to start Taxol tomorrow), the chest tubes will never stop draining as far as I can tell. I will call the onc tomorrow and see what the heck we're supposed to do. She feels OK, other than the fact that she's got two hoses sticking out of her back.
Kim--major rootin' for you this week! I'm so excited you were able to get Mercy Air Lift and can't wait to hear what Dr. C has to say.
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Kim,
My thoughts and strong prayers are with you and your children and parents. Please stay strong and positive and know that there are many of us supporting you. Try to keep us posted.
Lots of hugs and prayers, Jackie
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Ok Girls, Here she is - our own Dr Nash. The hat made her look very hip, true, but the kids make her look very Mommy. (Dh cropped out the children AND the birthday cake in front of her...) I just wanted you to see who was giving us all this great support.Very strange re the "plan" for your mom, Nash. Let us know what they intend to do. (Ever the mystery, isn't it?) At least she feels ok.
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I don't get the results until Feb. 1, thats when I see the onc. Thanks for asking!!!
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Wow,
Nash- Now I know why you get proofed(is that a word?) when you go out. That hat was not magic, you just look great for your age. Thanks, Kaye for the pix.
Hugs, Jackie
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Well we're back from the mountains and the casino. Did manage to bring back a few of Harrah's dollars, but not enough to retire!
Tomorrow is my first day back to work after being off 5 weeks. It's also my appt. with the radiation oncologist in the afternoon. I'm still really sore from the surgeries; I'm guessing that it's mainly the fact that they were just 2 weeks apart. But I do wonder how that is going to impact starting rads.
I hate to complain when I know so many of you are in the midwest and east....but......it IS so double dang cold in Atlanta. I can't wait for spring.
Kimmie.....safe travel and may nothing but wonderful things happen for you. You know we'll all be praying for you. Did you get the hot tub?? LOL
Nash......I agree with Angie..what a gorgeous lady you are. Also, I'd be asking the oncologist what the plan is if your Mom continues to just put out the fluid. They most certainly need to give you some idea of their alternative plan. Give 'em hell girl!
Kaye.....I'm with you, if the good Lord didn't put it there, get it the heck out! Let us know when you schedule your appt.
I may be absent for a few days ladies as I adjust to returning to work and finding myself still not very energetic at this time.
A great week to all.
June
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You girls are so sweet for the kind words.
Good luck, June--hope the back to work transition goes well. Let us know how it goes with the rad onc.
I finally talked to my mom's surgeon today, who said they'll try to take the tubes out in the next day or two and discharge her. I also talked to our crazy onc (who was off today with her kids b/c of MLK, and was speaking to me on her cell phone over the screams of her toddler. I promise, my next project really is to find a new onc). Anyhow, she said as soon as my mom gets discharged, we can start Taxol the next day. So fingers crossed that my mom gets sprung soon. Today was day 6 in the hospital (in a double room, saints save us), and she's starting to climb the walls.
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Hi Ladies,
Kimmie I hope everything goes very well tomorrow - Thumbs up.
Nash - "when the tubes come out" sounds like the seroma refrain. I wonder what happens if they keep draining? What do they do? Well, at least she can still climb walls. That's nice. (Not so good to be stuck on the floor with all the sick people.)
June - back from the Casino and back to work? Eeeew! Culture shock. You'll get right back in the groove - cuz you b 1 tough cookie! Sorry it's cold there. It's cold even here. I even have to wear a sweatshirt at night if I go out, for pete's sake! Brrrrr.
Angie, has y-y-y-y-your seroma started filling up again yet? It seemed to me that hot showers make them worse. Btw, where in New York are you? My sisters live back there and I've been threatening to come visit. It'll be next year - after my daughter's wedding. Yup. I'm thinking we'll be pretty tapped out by then. But I really want to get back there to see them. They're in the City. My brother in law works in New Jersey, and I grew up on Long Island for nine years, before I was transplanted. (I'm a bonafied desert rat now.)
ok, must go watch the tv. (Somebody has to do it.)
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Kaye,
I grew up in Manhattan before moving to Old Bridge, NJ(about 45 minutes south of the city). Please, please....if you come back this way I would love to meet up with you. I have family in Long Island also, so you can't hide from me.
Anyway, that would be fun!!!! And that's wonderful news about your daughter getting married.
Hugs, Jackie
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Yup, Jackie you were already on my list!
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hello ladies ...
nash, your pic above is indeed a very fetching one. How you must miss your locks!
) June, it is still early to go back to work - it must be pretty hard. I find that the treatments were ok, but now after all is said and done, I feel tired, tired. maybe it is spring coming around the corner, or the wierd weather we've been having? (it is nice and warm, snow is melting, and it is only January!!!). Anyway, I am hating being back at work, and I feel totally useless, not to mention without any motivation. Ugh.
I must call the plastic surgeon, but I keep getting the voicemail... I am curious to know when/what/how can be done to give me back some kind of symetry.
Kaye - congrats on your daughter's wedding - that is a nice thing to think about and plan!!! I bet you'll plan the wedding of the year.
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Kimmie, If you're there by now, I hope you have a laptop you can fire up and let us know what he says.
Ok. I GUESS we can wait till you get back.....BTW, where in your bones were the mets found? Chemo brain - I don't remember where. Sorry.
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Lillith, thanks for the vote of support, but I really feel completely inadequate. Fortunately, my daughter has opinions, and resourses and she seems to be thinking this through well.
What are your thoughts on what your options might be for symmetry?
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Hi all. I just realized this will be the very first full week I've had in a very long time that I don't have any doctor appointments. I scarcely know what to do with myself. Alas, it will soon be remedied very quickly as I start rads on Monday, but I'm really liking this whole "live like a normal person" time. I'm even feeling kind of normal again. It's amazing what your immune system can do once you stop poisoning yourself and not getting yourself cut open.
Kimmie, I don't know if you have any way to be checking in here, but I hope that you had a good flight to TX and that you get some great advice and information.
Kaye, I don't know how somebody as strong and funny as you could ever feel inadequate. Look at how much you bouy the spirits of every single woman on this board. There's nothing inadequate about you, my dear!
June, good luck with going back to work. I'm sure it isn't easy to head back when you've had a long break. I'll be going into rads less than three weeks post surgery too, so I'll let you know how it goes. I'm hoping it will all be easy as pie.
Angie, how you feeling? Any better now that the seroma is drained?
Good night, all!
DeAnn
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Kaye, planning a wedding can be a full time job - daunting for anybody. I am sure you'll have fun though to listen to all the happy choices, the decisions - and who will be tasting the cakes???
I hated planning mine, but look forward any friend/family getting married around! such fun. Where is your daughter planning the event? California?As for my symmetrical issues, I have one 36DD side, and one 36A side (during the mastectomy, the surgeon left skin and fat, so it looks very decent... albeit very odd). What I have been thinking is to chop off the other side (I wouldn't even see it as a bilateral.. just cosmetic with benefits!!!), and put in two mini implants (a size B would be perfectly enough for me... for the first time in my life, I'd be able to around without a bra!!! I definitely wouldn't want the extensive surgery required for a DD recon, with grafts from my tummy/backside. I will see the doc on the 11th of March (first appointment available), so I hope to get it done during summer. I hate wearing a prosthesis, and touching the thing is like touching a chicken cutlet.. well I guess that makes sense.
DeAnn - being without doctors can be very very nice. Rads shouldn't be too hard on your time, just the pain to go there everyday. For how long do you have to do them?
Until later, Lil
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HI ALL,
I FIGURED OUT HOW TO USE THESE COMPUTERS THEY HAVE STATIONED ALL OVER THE PLACE.
So far its been great. The fight over was a drag because I had a layover that makes it long. So Im still tired.
Ive been here since 7 am and Ive Meet Dr C. He was great and a cutesy to.!!!!!
Anyway he said originally my cancer was being refered to as two cancers different ones in each breast. Then out of no where the doctors start referring to it as bilateral IBC. So which is it?
Hes going to find out because the ibc is responding well to treatment on the rt side but the lymph nodes under my other arm are NOT responding. Which would make since if they are two different cancers.
Also it would mean the bone cancer could be from either one and we need to see which so we can treat it properly as well!
So this is just day ONE!!!
He called me the Email girl when he came in the room. HAHA
June, going back to work is a big step. Take it slow and dont over due yourself.
Nash - Glad to hear your mom is feeling well despite the tubes.
Lilith - BOY OH BOY!! I thought I had issues when I had my Lumpectomy in 1995. My breast were a double D. But Your really lopsided. Hope you can do something about that.
Kato - Any results yet?
Ive gotta go for a bone scan .
Check in later.
Hugs
Kim
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I've been thinking about you all day, Kim. So glad you checked in!
Dr. C sound totally on top of it. I thought it made sense to biopsy the bone mets. Is the left side the side of your lumpectomy in '95? Could it be a local recurrence of that tumor? Or is it a third primary? I guess that's what they'll figure out.
I'm encouraged to hear of the care you're getting there. I plan to see Dr. C in the future if I have a recurrence--they're the only place in the US that has a clinical interest in pleomorphic lobular.
Tell Dr. C that bc.org thinks he's a Rock Star!
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Hey All,
Yesterday was my first day back to work and I also had my consult with Rad. oncologist. He is okay, I just wasn't real impacted by him one way or the other...know what I mean? He said I would have 6 weeks of rads including the boosters. It seems to me that most of you that have completed rads did 6 weeks and then boosters....should I be concerned ladies? My next appt. is Friday for the CT and misc. I'm hoping that they will actually start me on rads next week. Will let you all know. By the way, is the tatooing process painful?
Kaye: One of the best years of my life was the year my daughter and I spent planning her wedding. However, most of the time while I was 'actually' doing it I wanted to throw knives!!!! It will be wonderful and you just hold on to that and savor what you can. Have you decided on when you're going to do your surgery? Inquiring minds want to know you all.....okay okay...I'm just nosy! LOL
Kim: Your email just MADE my week! We've all been thinking about you and so hoping to hear that all is well. Dr. C sounds incredible....why aren't there more like him around? Keep writing when you can and I'm sending you every positive thought I've ever had. :>
Lilith: Thanks for asking about work. Yes, I'm really pooped. Energy level is better than it's been since last April but still at low levels. So...yes I feel your pain and totally understand. I sure hope things get better for you (like starting tomorrow maybe).
DeAnn: I haven't had a full week yet of zero appts. except for the 2 weeks between the 2 surgeries and that didn't feel like much of a reprieve. Enjoy every minute of 'the time away'...you have so earned it.
I'm really really hoping that they will start my rads next week also. Just think we can compare notes! How many weeks of rads and booster will you be doing?
Nash: Is Mom home or an ETA been set? Give her my best and please add a hug. How are you holding up to the running back and forth to the hospital?
June
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Hi, June. RE: rads--I'm doing 28tx then 7 boosters for a total of 35 tx, but I know of people who do six weeks total. I assume the difference is how many sites they'll be radiating? Don't know for sure. Are you getting any nodes radiated? I'm just doing whole breast for 28tx, then a chest wall/tumor bed boost for the last 7 tx. No nodes.
The tattoos didn't hurt. They're just tiny little pricks.
Mom's ETA appears to be Friday or Saturday. Perhaps when the surgeon orginally told us she'd be in the hospital from Wed-Fri, he neglected to clarify the Friday to which he was referring.
"Oops, I meant a Friday 3 weeks from now...so sorry!" Oh well...she's drained out almost 6 liters of fluid. Egads. I'm doing OK juggling everything, thanks for asking, June. -
Kaye--helping plan your daughter's wedding is going to be so wonderful! What a joy to look forward to after all the cancer crap. That's really exciting.
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Kimmie,
It's great to hear from you. I'm so glad you are there. I pray this will be the answer to all your "problems". Stay strong.
Lots of hugs, Jackie
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YAY KIMMIE! It does sound as though he knows his shtuff. I'm so glad there are Doctors out there like that, and I'm so glad you were able to take advantage of it all. Thanks for keeping us informed - I, too, have been thinking about you constantly since Yesterday. (Dh even told me today at lunch; "Hey! Kimmie posted on one of their computers!", So you have been on his mind, too!)
DeAnn - I laughed out loud at your post, but it's so true. Once we stop hacking into ourselves with sharp instruments, and stop injecting poison in our veins it's amazing how good we feel! What's amazing is that our bodies can actually exist in that state, and then recover from it all! We are truly "fearfully and wonderfully made". I'm glad you're feeling so good!
Lillith - And DeAnn for that matter - you tiny humans with your DD's are amazing! I'm a D but I'm not so tiny anywhere else, so everything kind of blends together. Lillith, no WONDER you want symmetry! I was going to be a smart-alec and go off on how symmetry is overrated, but then I read your post and now i repent in sackcloth and ashes! A "balanced B" sounds great. A friend of mine was a B, had bc, mast and recon to give her a D and I thought: YOU'LL SEE. People don't understand. Clothes don't fit, and if you're overweight at all it makes you look even moreso. When I was younger they made me feel sexy, but now I just feel bovine. (I'll see your chicken cutlet, and raise you one bovine.)
The Tats are nothing. Ok. one hurt a little, but I didn't even feel the other 2 because the same surgery that lets me not shave or perspire under that arm is the same surgery that numbed that area so I could be attacked by a predatory animal with sharp claws and a bad attitude and not feel a thing. With the one, however, I did think about my son who has two enormous wings tatooed on his back from shoulder to hip. I won't be doing that, should anyone ask.
I had 33 rads including 3 boosts. I think Nash is right - they do it according to what they're toasting. I got 30 whole breast, then 3 to the incision. They said they do that because tumors are known to grow again at the incision. I was really thirsty especially toward the end, and had a strange fatigue that didn't seem like fatigue, it seemed like a nanosecond of nausea in my solar plexus. Fortunately very anti-climactic compared to chemo.
Yes, I'm looking forward to helping my daughter plan the wedding. Maybe it's good that I'm so far away, too. She's having it up in Portland, Oregon and her fiance is really into planning it with her - so I think they'll be doing it pretty much themselves. It's probably better that way. Keepin' the checkbook OPEN and the mouth SHUT.
Nash, 6 litres of fluid, eh? ok. she wins. It's a pity they can't recycle that back into her or something. Or feed starving somethings somewhere. (ick.)
Ok, I'm done. I'm going to exercise. If I don't post tomorrow, send the medics.
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Hi,
Ill be sure and tell Dr C. The ROCK STAR commit! He'll love it.
Yellowtownhouse - I can only speak from past experience that the tattoos were not painful. They were just these quick little pricks and compared to all weve been thru its NOTHING. So dont worry.
Six liters WOW and double WOW!! Im gonna start calling your mom super mom!!! So Tell super mom I said Howdy.
Kaye - I dont know if you remember but two wks after I was diagnosed my daughter decides shes getting married on Sept 1st !!!!!!AAAHHHH!!!!!!
Now this was July if you can only imagine. Still and all it went off with out a hitch and was as beautiful as she was. So my thoughts and memories are with you.
Your DH is so sweet to think of all us sickos out here. Tell him Thanks.
A predatory animal with sharp claws and a bad attitude. HAHAHA WHERE DO YOU COME UP WITH THIS STUFF?????>??>??
OK updates-------------------
Today In arrived at MDA to find that good ol Dr. C. has changed my schedule and included a Cardiac Injection followed by a Cardiac Scan AAHHH. Wounder what thats gonna feel like? Oh well Ill let you know. Im in for the whole enchilada so to speak so BRING IT ON!!!
Ill also be getting mammo's and a CT today.
Tomorrow is an ultra sound and PET and the 30th is an MRI
Dr. C. said he may also want to re biopsy because of the discrepancy in the reports from home. I think he believes I have a second and third primary.
OK So thats the update. Feel a bit better today, caught up on some sleep last night. Missing my kids but I talk to them and email them.
Im making them heart magnets to mail them ( they have these craft baskets laying around).
check in later
Hugs
KIm
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Wow, Kim. Sounds like he's got you in the fast lane. That's so great.
Is the Cardiac Scan a MUGA scan? The re-biopsy sounds like a good idea...(Nash said so, so I believe it.) Thanks for the update.
I need to go, 22 year old son and girlfriend are cooking us dinner tonight.
Hmmmmmn. They want me to look at something.
I'm afraid.
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Kim--I'm so excited by the workup you're getting at MDA that I feel like you've won the lottery or something.
We really must get out more, but you know what I mean!Kaye--so what did your son and his girlfriend want you to look at? What they cooked? Her new engagement ring? What, what?
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An engagement ring????? AWWWWKKK!!!! I never even thought of that!
HEAVEN FORBID AT THIS POINT IT SHOULD BE AN ENGAGEMENT RING. (just for the record.)
No, it was the enchiladas (much safer) and she was having a crisis because she thought they were too dry, and nothing she ever cooks comes out right, and she's a failure, and...well...you get the point. They were ABSOLUTELY DELICIOUS, and everything she's ever made over HERE has been delicious (Chili Rellenos, fresh pico de gallo) so I think the pressure just got too much for her. She's pretty darn brave if you ask me. I could NEVER have cooked for my boyfriend's parents.
I was also able to do my part for world peace just by having seconds.
(Always ready to help.)
Everybody know about Paget's Disease? I got an email from a friend with a very emotional plea to forward it to every human I know - which I probably won't do - but when I looked it up on bc.org it was interesting. It's apparently a rash on the breast that is misdiagnosed frequently as a skin disorder, when in fact it is a cancer. We here are so familiar with being skeptical of dr's diagnosees (?) particularly when they involve our breasts, and this is one more reason why. Bottom line? If it's a rash on your breast, take it to an onc not a derm doc.
How'z it goin' Kimmie?
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