? about herceptin reaction

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debic
debic Member Posts: 216
edited June 2014 in HER2+ (Positive) Breast Cancer
? about herceptin reaction
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  • debic
    debic Member Posts: 216
    edited January 2008

    I need to know if any of you have had a reaction to the herceptin.  My onc said he doesn't think it is from the herceptin.  Each time I have herceptin once every three weeks until May 08 the next three/four days my breast I had lumpectomy on swells almost a whole cup size, gets hot and I feel tingling. It has happened each time and goes away in a few days, this time I went in to show the onc. what it looks like and he gave me an antibiotic!! I called my surgeon and she ordered a mammogram.

    1.7cm ER/PR+ her+  nod neg, 4 DD A/C 12 Taxol/Herceptin 37 Rads.

    Thanks for any help

    Debi

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  • anneshirley
    anneshirley Member Posts: 1,110
    edited January 2008

    Debi,

    I didn't have breast swelling (at least I didn't notice) but my lower legs and feet would definitely swell.  And it didn't get better with time.  Immediately after my last infusion (end of a year) both feet looked like balloons.  Doctors said it wasn't herceptin but six weeks later my feet were normal again and have stayed that way.  It probably makes sense to get mammogram, but I think it may be herceptin since it goes away shortly after.  Good luck. 

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  • Denny123
    Denny123 Member Posts: 1,886
    edited January 2008

    Debi,

    I have had Herceptin for over 4 years with no ill effects at all.  Of course, both of my boobs are gone, so they couldn't swell if they wanted to.

    I would definitely have a full work-up to ascertain the reason.

    Denise

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  • debic
    debic Member Posts: 216
    edited January 2008

    Denise/Anne

    Thanks for you comments I go for an ultrasound on Friday.

    Debi

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  • traci13
    traci13 Member Posts: 3
    edited January 2008

    I didnt have breast swelling with Herceptin but had flu like symptoms and cardiac damage. From the Taxol I have neuropathy that doesnt seem to be going away. I finished the Herceptin last month and think I am getting my strength back finally.

    Traci

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  • bjn850
    bjn850 Member Posts: 28
    edited February 2008

    Yes, I had some breast swelling with Herceptin/chemo infusions. The doctors took a fluid sample from the tumor cavity to check for infection. It was clear.  The swelling lessened when chemo ended and I had only Herceptin. My se are the aches and tireds and now after 12 infusions of Herceptin, a decrease in heart function.  

    bjn

    dx 1/07, stage 2b, 2.5 cm, 2/6 nodes +, er/pr -, Her-2+++

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2008

    Same thing happened to me.  I had to stop Herceptin after 12 rounds r/t heart funciton.

    Nicki (aka chemosabi)

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