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  • livesstrong
    livesstrong Member Posts: 1,799
    edited January 2008

    Ulla,

    You have every reason to fight -

    YOU ARE A YOUNG, BEAUTIFUL WOMAN WHOSE HUSBAND & FAMILY LOVE VERY MUCH. YOU WILL GET THRU THIS AND BECOME AN EVEN BETTER PERSON BECAUSE OF IT.

    Please tell the nurses & doctor tomorrow that you NEED something to help you get thru this - YOU DO NOT HAVE TO SUFFER LIKE THIS.

    Valerie 

  • sueps
    sueps Member Posts: 2,266
    edited January 2008

    Ok I am going to say a prayer for you when I go upstairs Ulla...and I am going to ask God to get you through these dark hours....and to lessen your pain for a while....xxx

    Live in the moment for a bit...do not think of future ...past ...just what is around now....sometimes that is a good coping mechanism...for a rest on the head...xxx

    I send you all my love xxx

  • Ulla
    Ulla Member Posts: 840
    edited January 2008

    PLZ SWEETY SUE GO BED I STARTED TO FEEL SO BAD GUILTY AND SAD TO KEEP U OUT OF BED TILL NOW ,,OH GIRL U HAVE WORK TOMOROW AND BOYS TO FEED AND TAKE CARE ,,GO NOW ..UR NET NANNY WANT U IN BED WITHEN FEW SECONDS

  • sueps
    sueps Member Posts: 2,266
    edited January 2008

    Sweet dreams everyone xxxx

    Much Love xxx

  • sueps
    sueps Member Posts: 2,266
    edited January 2008

    Ok Netnanny....xxxx blimey I gotten a netnanny ...an Aunty Em...a cybermumshirlann......in fact I have been reborn...with loadsa great sisters xxx

    Right I will head for bed....xxx

  • honeygirl
    honeygirl Member Posts: 1,718
    edited January 2008

    Ulla , you must. I do know , you don't know your not going to survive. LOOK at all you have survived already. You have been through hell and back. I don't know why this has happened to you. But , I do know that you are a survivor and God has brought us all together for a reason. And I know the pain you are feeling right now is unbearable , and you want to give up. But please don't. You don't know what the future holds. None of us do. But there is always hope. Just believe. Honestly , when I felt there was no hope , I only could believe. That even though something so horrific was happening , I had to go on. That there was something better beyond all the devastation.

    Ulla , I really wanted to ask , but I didn't know if I should. Did the doctors tell you , you can't have anymore children? Karen is right. You are definately not to old. Even when you are done with all your treatment. I have read posts from other women here , that have gone on after treatment to have babies. And I want to tell you , that four years ago I was pregnant with twins. I didn't know I was pregnant. I was 46 and thought I was going through menopause. Well , I went for my pap and found out , I was pregnant. But , the twins , had died , but would not come out. So I had to have a d/c. AND , I should have had my mammogram then , but my breasts were so sore , I decided to wait. Well , one month lead into the next , and I forgot about the mammogram. Then , three years later bc. If I would have had my mammo then , I probably could of kept my breast and wouldn't have gone through all this.

    Anyway , you just don't know why sometimes. But I know I need you to be here and be my friend.xxxx

  • sueps
    sueps Member Posts: 2,266
    edited January 2008

    Melody..you are a true true friend with a great approach to life...I have learned so much from your posts....Sweetdreams xxx

  • honeygirl
    honeygirl Member Posts: 1,718
    edited January 2008

    Sweet dreams to you Sue.xxxx

  • Ulla
    Ulla Member Posts: 840
    edited January 2008

    OH LIL SWEET LADY???SUE??WAT R U DOING OUT OF UR BED TILL NOW??????????

    IN BED WITHEN 10 SECONDS LIL LADY...NOW...

    10 9 8 7 6 5 4 3 2.5 2 1.5 1 0.5 ,, BED NOWWWWWWWWWWWW

  • Ulla
    Ulla Member Posts: 840
    edited January 2008

    DEAR MEL  ,,,PLZ FEEL FREE TO ASKWATEVER U WANT TO ,,I DO ASK MY ONK ,EVERY MONTH ABOUT THE PREGNENECY ,,SHE HAVE ALWAYS THE SAME ANSWER,,I WOULD NEVER RISK MY LIFE TO HAVE A BABY....IT WILL BE A STIMULATION AND IT IS RISKY,,,THATS WAT IT IS FROM THE SCINETIFIC POINT OF VEIW BUT IT WILL STILL UR DECISSION ALL THE TIME TO TRY OR EVEN TO CUT THE TAMOXIFIN AND TAKE A CHANCE OR JUST TO WAIT THEN TRY ,,BUT STILL IT IS A RISKKKKKK...

    I ASKED MY SURGEON IN THE FIRST TIME OF Dx ,,I ASKED THE WHOLE TEAM OF ONK,,THAT IS COMPOSED OF 3 AMAZING DRS BUT ALL HAVE THE SAME ANSWR...RISKYYYY AS IT STIMULATES THE SLEEPING NASTY CA CELLSSSSSS

  • honeygirl
    honeygirl Member Posts: 1,718
    edited January 2008

    Well Ulla , that is their answer for today. You never know what is to come tomorrow. Medicine has come along way from just five years ago. In five more , they may have an answer for your situation. We just don't know right now. Are you ER ,PR+? Is that why they are so concerned about the hormones? And , not to change the subject , but adoption isn't out of the question , is it? Remember Ulla , there's always tomorrow at Tara! Just believe. There is always hope.xxxx

  • Ulla
    Ulla Member Posts: 840
    edited January 2008

    DEAR MELODY I KEPT TELLING MYSELF THAT ALL THE DAYS AFTER THE Dx,,,I DID HAD ALL THE HOPES ABOUT BEING A REAL MOM,,,I DONT KNOW BUT THE IDEA OF A BOLOGICAL REAL MOM IS WAT I AM REALLY GREIFE FOR,,,,I DONT MEAN ANYTHING WROUNG WITH ADDOPTION BUT IT IS SO COMPLICATED ,,WITH SO MNAY LONG PROCEDURES ,,AND IT JUST DONT MOVE MY MOMMY FEELINGS ,,,

    I KEPT SAY ALLTHE TIME,,SINCE IS MOVING SO FAST AND THAT THERE IS HOPE ,,WHO KNOWS WAT WILL HAPPEN TOMORROW,,

    I KEPT TELLING MYSELF IN THE MOIRROR EVERYTIME,,(((THERE IS ALWAYS TOMORROW AT TARA...)))

    BUT ,I JUST CANT BELIEVE MYSELF ANYMORE ,,,AM TIREDDDDD

  • Ulla
    Ulla Member Posts: 840
    edited January 2008

    SORY MY CA IS BOTH 30% OF MY NASTY CANCER CELLS ARE ESTROGEN +VE AND AND 15% PROGESTRONE +VE

    THEY TOLD ME IT IS A MEDIUM LEVEL HORMON POSATIVE RECEPTORS PERCENTAGE..

    4 +NODES OUT OF 27 REMOVED

    2CM TUMOR

    AM ON THE EDGE OF EVERY BORDER LINE BETWEEN STAGE 1 AND STAGE 2

    AND IT IS A GRADE 3 CA WHICH IS MORE AGRESSIVE IN YOUNGER FEMALES...

  • honeygirl
    honeygirl Member Posts: 1,718
    edited January 2008

    Oh Ulla , you have everyright to be tired! And you know , you have to just think of you right now. Nothing else. Really. None of the other things can be solved right now. But you getting better so you can deal with the other things , is what you need to deal with now.

    What time is your treatment tomorrow? Will your husband be going with you tomorrow?

    Its 9:14pm here right now. What time is it there right now?

  • Ulla
    Ulla Member Posts: 840
    edited January 2008

    DEAR MELODY

    IT IS 3:17 AM NOW ,,AM TOTALLY SLEEPLESSS DUE TO THE DOUBLED STEROIDS DOSE,,

    MY Rx WILL BE 11 AM TOMORROW ,,MY BUSS FROM HERE WILL BE AT 9 AM AND I WILL REACH TO THE HOSPITAL AT ABOUT 10:30 TO HAVE MY BLD WORK BE4 THE Rx ,,,MY HUSBAND WILL BE WITH ME ALL THE TIME ,,I HAVE AN ANGEL NURSE THERE TOO..I REALLY FEEL BETTER EVERYTIME SHE TALKS TO ME SHE IS SO SO KIND ,,SHE IS A REAL ANGEL...IN MY 1ST Rx I WENT ALONE AS MY HUSB, WAS ABROD AND COULDNT FIND A FLIGHT TO RAECH ME .I FOUND MYSELF CRYING IN THE FIRST MINUTE WEN I ENTERD THE ROOM ,,SHE WAS HUGGN ME ,,AND CRIED HER EYES WITH ME ,,SHE COULDNT SAY THAT IT IS OK TO DEAL WITH SUCH HUGE AMOUNT OF SADNESS AND PAIN,,,,

    I LOVE U ALL

    I DONT KNOW WAT IT WAS GOING TO LOOK LIKE IF U WERE NOT MY LIFE

  • honeygirl
    honeygirl Member Posts: 1,718
    edited January 2008

    And you don't have to know what it would be like if we were not in your life! OK , you are about 6 hours ahead of me. Sounds like you have a very wonderful , compasionate nurse. Maybe , sometime around 3pm your time , we will hear from you? I am off work tomorrow and will be home all day. If you feel up to it , please come , let us know how you are. And one more thing Ulla ,I know you need to get some sleep. I know of people and have some in the family that have adopted. I know the feeling of wanting your own biogogical child , but I needed to tell you , from experience and friends , when a child is given to you , as your own , he or she really is just like your own. Its even a more special bond. Because it is one that God trully has brought together through need. And love and understanding just naturally follows. Love you Ulla. Melody

  • honeygirl
    honeygirl Member Posts: 1,718
    edited January 2008

    Well ladies , I am gonna send and e-mail out to Lisa to let her know we are thinking of her.

  • honeygirl
    honeygirl Member Posts: 1,718
    edited January 2008

    Ulla , are you still there?

  • Ulla
    Ulla Member Posts: 840
    edited January 2008

    yes dear mel

    i thought u were not here so i stopped a lil

    i just needed to do something to went out this dark mood,,guess wat i have done?????????

    i shaved my head again,,took all that ugly ,new,weak,sick hair away as it starts falling again few dys ago,,i dont want any toxicated part of me again at all..i will keep shave it till i end this chemo hlll

  • honeygirl
    honeygirl Member Posts: 1,718
    edited January 2008

    You go girl! And I mean it. Take away the dying. When you are done with your chemo , you can start anew.xxxx Melody

  • honeygirl
    honeygirl Member Posts: 1,718
    edited January 2008

    Ulla , this is for you.xxxx

  • honeygirl
    honeygirl Member Posts: 1,718
    edited January 2008

    Ulla , this is from my heart to yours.xxxx

    I pray for your new beginning.

  • Ulla
    Ulla Member Posts: 840
    edited January 2008

    ty really for this angell.

    melody ,,ty for being here for me at these hard times....

    i started to feel slepy lil bit,,

    i must get up at 7 to have agood breakfast for me and huby be4 i take this double steroid dose be4 the Rxmm

    i set my alarm at 7..2hrs will be quite enough for a shower,,chnging and a breakfast before the fth round,,,,

    love u all

    i will post tomorrow as soon as i will come bak from the big city where my hospital is,,,the hospital is in GOTHENBURG it is a very beautifull city in the west side of sweden ..it is the 2nd largest city here after stockholm,,,i love it really,,

    will post again tomorrow wen i can,,

    i guess all these dying fears were due to my last experience with the taxotere,,,

    i was almost dead that day...

    ty for being u

  • honeygirl
    honeygirl Member Posts: 1,718
    edited January 2008

    I know Ulla , I thought about your last tx when I first posted tonight. We are with you sister. Right beside you. Take care. See you tomorrow.xxxx Melody

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited January 2008

    Well, I had my son's basketball game to attend tonight, and I thought for sure there would be a post from Lisa when I got back, but no.  I hope you're ok Lisa.

    Melody, you're such a great person.  You really are so caring and warm.  Thank you for being there for our friend Ulla in her time of need.  You too Sue.  What wonderful friends you both are.

    Ulla, I'm sure you won't see this until you get back from your tx tomorrow, but I'm thinking about you.  I'll pray that things are easier this time.  God bless you, Ulla.

    Hugs to everyone.  Hope you're all resting peacefully.  Love you guys!

    Karen

  • Wren
    Wren Member Posts: 324
    edited January 2008

    Ulla, I am just catching up on reading and I am just overwhelmed at all you have been through!  I wish I could climb through the computer and give you a hug so you would not be alone there. I will pray for you to feel better and that tomorrow your treatment will not make you feel so bad again.

    Sue, your children are adorable.  Mine are grown and away at college.  They are a son 23, and a daughter 21.  They were home for the holidays but have left again.  I miss them so much--and I miss having them as little ones that I could stay at home and care for.  Your boys must have loved their day with their mum--and cakes and pies and all that love. I'm so glad you felt well enough to go out with them.

    All of you who have posted photos of your children and vacation places --  it is so good to see such lovely pictures.

    I sometimes want to post things that happened to me during my treatment (good and bad) and then when I start to post, my complaints seem so trivial... and I just erase things.

    You all do such a great job sharing and expressing yourselves and what this Bootface has done in your lives...  I do gain so much from you all.

  • geebung
    geebung Member Posts: 1,851
    edited January 2008

    I have been away from my computer because I have had lots of visitors - nephews, their wives and partners and children - and I have just sat down and caught up with everyone.

    Ulla, I am dizzy from reading what you have had to endure. What can I say? I cried when I read your posts. You poor darling girl - I just ache for you - so many losses and all your terrifying experiences. Who wouldn't be devastated by all this? It just shows what an amazing person you are. You have had so much trouble and life can only get better from now on - well, in a little while - when you have finished all these horrible treatments. You must believe this. Please listen to the comforting words the others have writen here. You are much loved.

    Mel, you are such a wonderful friend to Ulla. Your words are so genuine and warm and soothing. What a precious person you are on these boards. And Sue - you are also enduring so much yet you have boundless empathy and compassion - I cried when I read about how you lost your daughter too - what a terribly sad experience. All you wonderful women who are on these boards are precious - I have never experienced such a group - it's overwhelming. Thank you so much for your collective love and support. 

    Ulla, I will pray for you and think of you constantly. I am alone for the next 24 hours and I will keep you uppermost in my thoughts. Right now it is just after 10am in Sweden so you are probably on the bus, heading for the hospital. I am so glad you have an angel of a nurse - let her soothing words wash over you and think of us all here sending our most loving thoughts. I know that, by the time you read this, you will be back home but I feel compelled to write it anyway.

    I strongly feel our collective love, radiating towards Sweden and our precious Ulla - I hope you feel it too dear, sweet girl.

    Love and hugs

    gb 

  • my3girls
    my3girls Member Posts: 3,766
    edited January 2008

    Hi girls. I am soooooooo sorry I did not post yesterday!!! It was a long and emotional day!!!!!!!  The good news is...my mammo came back A-OK!!!!!!!!!!  Thank God!! Thank you...all of you for your prayers and good wishes!! I truly felt surrounded by love yesterday while waiting for my news! Sue...I did a little smile while being compressed..thinking of you whispering in my ear! 

    I am so sorry that I worried everyone.  I should have gotten on last night, but first the computer was down, then when my daughter got it back up, I was so tired and cranky!

    I am at work today, and we are so busy, that I was  unable to read all of the posts closely.  I will catch up later when I get home tonight.

    One thing...Ulla...stay strong sweetie..and come here when you need us..that is what we are here for...we love you!!

    I have to tell you, they almost had to reschedule me for my mammo!! I got that message the night before when I got in from work.  I was crying...I told them the next day..there is no way I am reschueduling!! I am off today, I am geared up mentally for this and I need it done before my surgery!  They needed copies of my previous one, since I had it done at a different place.  GRRRRRRRr I was sooo mad.  I drove to the other place after the mammo...got the films,..drove them back to them and waited while they read it.  I swear it felt like hours.  As I was sitting there...I started to say a little prayer..and then the tech came out, with her thumb up...gave me a hug and said...you are good!  Thank God! What a relief!

    I will check in later sisters...again..so sorry to worry everyone!

    Love and hugs to you all!!!!!!!!!!!!!

    xoxo

    Lisa

  • my3girls
    my3girls Member Posts: 3,766
    edited January 2008

    oh...and I can't wait to get home and view the pics mel and sue have posted.  I can't view them at work. Somehow they block them!?

    love..love love to all!

  • livesstrong
    livesstrong Member Posts: 1,799
    edited January 2008

    Don't have much time-

    Ulla - thinking of you today and praying everything goes well.

    Lisa- YIPPEE!!! NED has returned!!!

    Gotta run,

    Valerie

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