ADH - Burning sensation ???

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turnberry
turnberry Member Posts: 42
edited June 2014 in High Risk for Breast Cancer
ADH - Burning sensation ???
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  • turnberry
    turnberry Member Posts: 42
    edited December 2007

    I was diagnosed with ADH in Sept. 07 after an excisional biopsy.  In the area where the incision was made I have a small pebble sized lump that appeared about 2 wks ago.  It protrudes from the skin.  At first I thought it to be some kind of scar tissue because of where it is located.  However, within the last two days I have been experiencing a burning sensation in and around the same area, especially when pressure is being applied (like while I'm in bed).  Is this something that could be related to scar tissue building up? 

    Thanks - and hope everyone had a blessed Christmas!

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  • leaf
    leaf Member Posts: 8,188
    edited December 2007

    Yes, it could be scar tissue. But I think that ANY lump should get evaluated by a physician.



    Most breast cancer is painless with no burning sensation. However, some women have painful lumps.



    I had a change in direction of my nipple after my excision. They took my concern seriously, and I had an ultrasound. After 9 months, 2 more ultrasounds and 2 mammos, they did a biopsy, and it did turn out to be scar tissue.



    (I have LCIS and ALH.)

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  • Carol1220
    Carol1220 Member Posts: 402
    edited December 2007

    Turnberry, I found my lump, which was sizable, because I had a burning sensation in my right breast. I hope it is scar tissue but better be on the safe side and have it checked out. Carol

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  • sherryw
    sherryw Member Posts: 172
    edited December 2007

    Can you tell me what ADH is?

     I have a burning in the breast I had my lumpectomy in.  I called the oncologist and she said it was normal.  I have a follow up appointment with my surgeon in February so I will confirm this with him. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    ADH  (atypical ductal hyperplasia) while not bc, does put you at higher risk for bc, so it is important to be vigilant and regular with your breast exams and mammos. You did not mention that anything else was found during the lumpectomy, so that is good news. (sometimes DCIS is found along with ADH).

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  • sherryw
    sherryw Member Posts: 172
    edited December 2007

    AWB

    Thanks for the definition, I was dx 2/05 with Invasive ductal, I had the lumpectomy and an axillary node dissection in which 3 out of 17 nodes were positive.  Do you know if others have breast pain and burning after this amount of time.

    Thanks

    Me

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  • turnberry
    turnberry Member Posts: 42
    edited December 2007

    Thanks all for your input!!!  I am going out of town over the New Year but I will call for an appointment once I get back.  Is it normal that after 3 monthes of healing for scar tissue to suddenly appear?  I have a history of cysts too but I have never experienced this burning type of sensation with them.  Usually more of the achy, tenderness pain.  This small lump protrudes from my skin and looks like there is a white pebble in it.  (Almost like a pimple but feels like a pebble)  Anyone ever have something like this? 

    I think I will try to email the nurse practitioner at my surgeons office and see if she has any input before I leave this weekend.  (We'll see if anyone is around this week)

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  • leaf
    leaf Member Posts: 8,188
    edited December 2007

    My nipple started subtly changing direction within 2 months after my excision. I also had a new 'shadow' when I lifted my arms in my breast. They did an ultrasound, and the image looked to me like a tree, just under my nipple. I started tamoxifen 3 months later, and also had a mammo and ultrasound. They said to have repeats of these in 6 more months, which I did. They then called for 2 biopsies, one for calcs, and one to figure out what this tree-like thing was. For me, the 'tree' shrank between months 5 and 11, while I started tamoxifen.



    Since LCIS women are at much higher risk of ILC, and are usually sensitive to tamoxifen, that was a concern. At the time I didn't know you have lobules under the nipple.



    But it ended up being scar tissue on biopsy. (I had the usual zing-like sensations after excision, but they weren't particularly in the area of the 'tree'. I had no burning sensations.)



    I think it is prudent to get any lumps checked out.

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  • darkfairy
    darkfairy Member Posts: 28
    edited December 2007

    turnberry - please get the lump checked out urgently. I had ADH with cysts and a few years after my surgery, a lump suddenly appeared overnight. Just like you, it burned and stung and protruded from the skin. It turned out to be a very rare tumour called a phyllodes cytosarcoma. There's more information about them here: http://www.bcpals.org.uk/content/phyllodes.html

    I have also had fibroadenomas, which are benign but this phyllodes was different from those. It's that burning sensation - I have never heard anyone describe it for any other type of lump. It is *always* something that's mentioned with phyllodes as is the very rapid growth factor. Please don't wait too long before you get it checked - they are very difficult to accurately diagnose and can grow very quickly.

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  • turnberry
    turnberry Member Posts: 42
    edited December 2007

    Thanks again everyone.

    Dark Fairy - Did the burning sensation happen only when some kind of pressure is being applied or was it all the time?  Mine seems to be when any pressure is applied.

    I did get in contact with the nurse practitioner and I will be going in next week to have it looked at.  She thought by my description over the phone that it might be some kind of knot forming (scar tissue), although that is not what it feels or looks like to me.

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  • ilenee
    ilenee Member Posts: 120
    edited December 2007

    Hi Turnberry,

    I have something similar. My hurts but the pain is more serve with pressure and it is very difficult to sleep. I had surgery 2 weeks ago. I had 3 people look at my  hurting lump and they all think its a hematoma( I know I did not spell that right-I tried spell check).

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  • turnberry
    turnberry Member Posts: 42
    edited December 2007

    Hi ielnee,

    I have had many hematomas and yes they are pretty painful.  My first one was after a cyst aspiration.  I got one after my initial biopsy and then again after my excisional biopsy.  They do go down after some time, but its my understanding they never go away completely.  The pain should subside over time though.

    The lump that I'm experiencing now is a little different.  Its white and is protruding from the surface of my skin.  I'm going to have it looked at next week and hopefully they give me more info. 

    Good luck with the hematoma - did they recommend applying heat to it?

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  • ilenee
    ilenee Member Posts: 120
    edited December 2007

    Thanks Turnberry. Good luck to you with you lump. I hope you feel better soon. I have been apply low heat. They said they can remove it with surgery but right now, I can fathom another surgery!

    We have a subdivision 2 blocks away named Turnberry.

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  • darkfairy
    darkfairy Member Posts: 28
    edited December 2007

    Turnberry - initially the lump only hurt if I was lying on it but as it grew bigger, the pain intensified and I would hurt even when there was no pressure to it as well. I also noticed that these burning sensations (ie when there was no pressure) used to correspond with the lump growing in size. We called it a growing pain! The tumour was also surrounded by cysts and we think some of the pain was coming from those as well. The cysts were almost strangling the tumour, they were sort of wrapped around it and pushing into the surrounding nerves.

    I actually kept a pain diary for a year and it was quite shocking to realise that I only had about completely 7 pain-free days in the whole year.

    Monkey-face - that's quite normal to have some pain after a lumpectomy. This can continue for several months and is caused by the nerve trauma from surgery.

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