My Sister My Friend & Cancer

Colleen2007
Colleen2007 Member Posts: 13
My Sister My Friend & Cancer
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  • Colleen2007
    Colleen2007 Member Posts: 13
    edited December 2007

    Hi:  I received the news two weeks ago that my sister has invasive ductal cancer. We have always been very, very close.  I live near Detroit, she lives in Minneapolis.  We do not know the course of action yet.  I do know that the cancer is also in the nodes of her arm area.  We had no family history, she had a mamogram in July, and was told all was clear.  I am afraid for her, and I want to help her in whatever way I can being miles away.  Are there any other sisters of breast cancer patients out there who have gone through this and can offer some advice.  I am so worried.

    Colleen

  • iodine
    iodine Member Posts: 4,289
    edited December 2007

    I don't have a sister but I can offer this advice--Listen to her.  Be supportive, don't judge her choices and decisions, Listen, call and ask how she is, and be ready to hear things that are tough, but continue to call on a regular basis.  Listen.

    My best to both of you.  I had my best friend and she Listened.  No one else would, except the women here.  Please offer her a link to this site for her information and to allow us to support her, too.

    Please come as often as you like and hopefully, we won't take so long to respond.

    You are also welcome to post in the newly diagnosed section--lots more traffic there and we can ans. more of your questions.

    Hugs.

  • Lilsista
    Lilsista Member Posts: 1
    edited December 2007

    Hi Colleen,

    I too have a sister with IDC.  Sometimes I feel very strong and sometimes I cry during office visits. The docs just look at me like "what kind of support person are you!" I used to let it bother me but now I just look at them and think "you people just don't have a clue"'

    I know how scared you are - it is a scary journey to go through. Like Dotti said above, just be there for her and listen without judgement. Above all, just try to be "normal". Go shopping, laugh at your family insanities, do the stuff you normally do together but also follow her lead. Both she and you will find your way and gain tremendous strength. The best part is that you sound like you two are very close as my sis and I are but I am amazed at how our relationship has grown even stronger.

    She will be celebrating her 59th birthday next week. I was trying to think of what to get for her because the idea of getting her more "stuff" just seems too insane.  I have decided to write her a letter to let her know just how special a person she is and always will be.

    Blessings your way

  • iodine
    iodine Member Posts: 4,289
    edited December 2007

    Hi Lilsista, great gift, it will mean the world to her--consider throwing in a massage, too!  LOL

  • snoopy4kkb
    snoopy4kkb Member Posts: 15
    edited December 2007

    We just found out that my best friend of 15 years (sister by heart) is being taken off chemo Cry because it is no longer effective. She has metastatic breast cancer - I just can't imagine being without her.-  I want to do something for her, but am at a loss as to what. I am there every day, sometimes I help out with things around the house, sometimes we just sit and watch tv, sometimes we just sit. She is very tired & weak and it's hard for her to talk much. She knows she is very important to me and I would like to do something very special for her.

    Kathy

  • csp
    csp Member Posts: 2,765
    edited December 2007

    Hi Colleen,

    My younger sister is 3 years out of active treatment for IDC.

    June 13 ,2005. You took me back to that awful , uncertain scary time when she was first dx'd. I am very lucky I live within a mile of her. We are very close also, she is my best friend. Today she is doing good . Please continue to come back, we walked where you are about to go. I promise once there is a plan for battle you will feel a

    little better,  something is being done . Send her cards, call her , you will know what to do . listen , listen, listen. Let her be fearful, angry what ever she needs. When you are sad afraid angry feel useless

    (and you will) dump it here. We will be here for you.

    Hugs to you and your Sister,

    deese's sister Carrie

  • csp
    csp Member Posts: 2,765
    edited December 2007

    Kathy ,

    Sounds like you are doing it. Being there for her, taking care of everyday task must be a relief for her.

    I found out that although I felt the world should stop while I cared for my grandmother it does not. The dishes get dirty, the house needs cleaned, the bills kept coming. Going to the pharmacy for the family, doing the chores all this is very much appreciated. Cooking meals and bringing them in.

    It may seem small to you , but to your much loved friend and family it is a big relief.

    Hugs,

    Carrie

  • quinnie
    quinnie Member Posts: 221
    edited January 2008

    There are many ways to show support. I have 4 sisters and it is amazing how each reacted differently to me. One has ignored me, the other has called me daily, another calls every Friday at 8pm and the other just looks me and tears up!!!  They have all agreed to join a study called the "Sister Study". It is something that they can do to support me and the cause. If any one is interested the web site is info@sisterstudy.org or call 1-877-4sister. The study sounds very interesting and if the shoes were on the other foot I would definately join the study. Not too much time involved but might really show something someday.  Quinnie

  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited January 2008

    Colleen,

    Are you still around? I just saw this thread. My sister had bc 9 yrs ago. I was diagnosed in 2/07. One of our other sisters had uterine and cervical cancer in 6/06. We have one more that is cancer free so far.

    Feel free to pm me. or post again here, at any time....I'll give you whatever words of wisdom I can. Sadly, I am way too experienced in this arena.

    Hugs girl,

    Traci

  • Colleen2007
    Colleen2007 Member Posts: 13
    edited January 2008

    Hi Traci: Thanks for the response. It is now over a month later, and my sister has had her masectomy.  She received the path reports and was diagnosed with stage 3 HER2+ breast cancer.  I was devastated.....took a day off from work and cryed.  Although I didn't tell her that.  I have "digested" the bad news now.  She will start chemo next week, then radiation over the summer.  I am a teacher so will spend my Spring Break with her at the end of March.  I think I will be OK, I think I will be strong for her...but on the other hand I am afraid I will cry in front of her.  Any advice on how to keep it together???  Thanks again.

    Colleen

  • Colleen2007
    Colleen2007 Member Posts: 13
    edited January 2008

    Hi: Thanks so much.  I didn't look back at this site until a month after I joined. I am so glad I did.  I will "use you" for a springboard. My beautiful sister will start months of chemo and radiation.  I am frightened, and want to be strong when I see her.  When I visit her I want to be bright, positive, and there for her 100%.  I think what many who have not gone through this fail to see is how it effects the family members.  Breast cancer devastates us all.  Thanks.

    Colleen

  • quinnie
    quinnie Member Posts: 221
    edited January 2008

    Colleen, After I was diagnosed I found 2 of my sisters (each very different) would not talk about BC. My oldest sister calls frequently to talk about how I feel, what is going on, how my doctor visits were etc. I personally like to talk about it and welcome any of my sisters to call and ask about the details. I feel better when  can talk about it even though I hate it and wish I weren't in this place. So it is OK not to keep it together. That shows how much you care and when My sister cried I felt the love and support from her.

    Take care, Quinnie

  • Colleen2007
    Colleen2007 Member Posts: 13
    edited January 2008

    Quinnie: I love your name! Thanks for you note.  It helps to get advice from someone who is in the same shoes as my sister.  I wondered if she we be offended if I called and asked a million questions, if I send her "pink slippers", and books of quotes from women who have had cancer.  You just aren't sure what the right thing is to do. (By the way I have done all of the above).  I will be writing here over the next couple months.  My vacation is at the end of March through first week in April.  I will spend it with my sister, and still don't know what to expect from her or myself.  I will try not to worry about it and just let thing unfold.

    Thanks,

    Colleen

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Colleen,



    Thank you from all of us with breast cancers who have sisters. While mine are not engaged, it gives me hope and strength to see someone like yourself who is wih her dear sister.



    Personal time, listening, touching in life is a gift given for eternity.



    Thank you,

    Tender

  • sissykar
    sissykar Member Posts: 1
    edited February 2008

    My sis has stage 4 metastatic breast cancer (bones and lungs). She is undergoing chemo now. She has a hard time breathing and can't do anything. It is horrible to watch. I am grieving her and she is still alive- I am simply devastated.

  • twink
    twink Member Posts: 1,574
    edited February 2008

    Losing a sister is very hard.... I know.  My 46 year old sister went suddenly two years ago (from an asthma attack).  I can't imagine watching one of my sisters losing her fight with this awful disease.. that would be very tough.  I have no words for you sissy other than to say that being there for your sister at this time in her life has to be one of the most important things a sister can do... just being there with her.  The chemo may help her... hang in there.

  • Colleen2007
    Colleen2007 Member Posts: 13
    edited February 2008

    Thanks for your note, it made me feel positive about what I have been doing to help my sister.  Sometimes "sisters" come in other ways via friends.  Although my sister is my friend, I have friends and other relatives I consider to be "sisters".  Hopefully you have friends and others who are engaged in journey.  A support group?  My sister says some of the best support comes from those who are going through the same dilema. 

  • brendast
    brendast Member Posts: 11
    edited February 2008

    My sister was just diagnosed with breast cancer; I am not sure in what stage, as I just learned of this last night. They did a biopsy and she will find out the results next week.  I am devastated and feel very, very helpless and very afraid.  She is my only sister and even though we live very far apart, she in Pennsylvania and myself in Arizona, I want to help her. I called her last night and left a long voice mail msg that I would always be here for her.

    What now?

  • Colleen2007
    Colleen2007 Member Posts: 13
    edited February 2008

    Hi Brendast:  I was put in this very situation back in November.  At first I just sat and cried. I just didn't understand how families get through this sort of thing. How do you keep up with everyday activities when this is on your mind? I did let friends and family know what I was thinking.  I find some of the people I am closer to at work are a comfort to me since they will ask how my sister is doing. Some people just aren't empathetic. This site is a good place to "talk".  There is also a website called "CaringBridge" where your sister can keep a journal and each time she makes an entry has the choice to notify friends and family.  My sister is on CaringBridge.  It is great because when she has chemo or a bad day she enters that and everyone knows.  Then I can e-mail her, or call with some hopefully healing words.  It is all about her right now.  Even though we used to talk for hours about everything under the sun the focus now is cancer, treatment, her life.  Be prepared to listen, listen and listen.  Even though my sister appears to be upbeat I know in her core this is all she thinks about. I live far from my sister too; me in Detroit, she in Minneapolis.  I keep in touch with her a few times each week, send her things to cheer her up, and plan to spend my Spring Break with her.  It is devastating, isn't it?  It just plain sucks. (as my students would say....I teach high school) All of us on this board have each other for support too.

    E-mail anytime,

    Colleen

  • gert1
    gert1 Member Posts: 1
    edited February 2008

    Hi,

    am a west indian that resides in USA ,my one and only sister is in the west indies and is going through chemo. it hurts so bad that i cannot be with her to give support .though ,i call very often i still feel empty and helpless.  i cannot hug her, and comb her hair and simply just be with her.please advise as to how to handle a situation like this

  • Colleen2007
    Colleen2007 Member Posts: 13
    edited February 2008

    Gert: Being so far away is awful isn't it? But you can call and give her support, send her loving e-mails. What are some of her favorite things? The day my sister was diagnosed I sent her flowers. Since then books, funny cards, or a hand written letter.  Do you have some time coming up where you could fly home to be with her? Does she have a support team in the West Indies?  I know that my sister's friends and fiance have been a huge source of comfort for me, just knowing that they go to appointments with her, stay with her and support her. I know she appreciates the calls!  As I mentioned in the previous letter, be prepared to listen.

    You are not empty! There are so many more ways to show you care other than being physically present.

    Love,

    Colleen

  • brendast
    brendast Member Posts: 11
    edited February 2008

    Thanks Colleen for the kinds words and encouragment. We just found out yesterday that the breast cancer was confirmed and my sister has to have a lumpectomy (not sure if that is spelled correctly), as well as radiation and chemo.  The good news, if you can call it that, is the docs think they found it early and she has stage 1.  I sent her flowers today and a card.  We are all devastated, but have hope. I say a lot of prayers and think of my sister constantly, wishing I could be with her.

    You hang in there as well.  I know your sister will be looking forward to your upcoming visit.

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Dear Sissykar,



    I'm sorry. For your sister devestated by this disease, and you, devestated by the thought of loosing your sister.



    I'm also sorry I did not respond on the 5th to your new post. I always try to welcome newcomers here at breastcancer.org forum because it truly is a good source for support.



    But your post slipped through, just when you need support the most. This makes me feel horrible.



    Please come back and post again, should you wish. Or look in your "my home" and we can converse by private message if that works better for you.



    Might your sister possibly join us on the mets thread?



    Anyway, I hope you eventually get this message of regret, because it's meant from my heart.



    Tender

  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited February 2008

    Tender,

    You are so nice.

    Sisters.....go ahead and cry!!! It's o.k. to cry! She needs to cry....you get her started with your tears! It feels good to cry and let it out....especially when you first find out, or when your hair falls out, etc., etc.

    My little sis had bc 9yrs ago. I went to Texas from Florida to be with her after her last three chemo treatments. The first time she pulled off her wig and I saw her bald head, I just burst into tears and so did she.

    Then, 9 years later....she is here for Christmas ('07). I wasn't home when she got here but, when I got home and went into my bedroom where she was wrapping presents on the floor, she looked up at me and saw my bandana head and just started crying. So did I! We hugged, shook it off and carried on.

    Listening is good advice. When she wants to talk about it, talk about it and when she doesn't, don't.

    Hugs girls,

    Traci

  • quinnie
    quinnie Member Posts: 221
    edited February 2008

    Sissy: You are in my thoughts and prayers. Having 4 sisters, I can't imagine having one suffering as your sister is. I rememer when 2 of my sisters had biopsies over the past few years and I was sick until we heard their good news. Sister really have a special bond and can feel each others pain.

    Brenda: Its hard to say good news when one is diagnosed with BC. That said,she does have what seems to be a very treatable BC. I have mentioned this in other threads but my 4 sisters have signed up for a sister study. It takes only a little bit of their time initially (2 hours or so) then they are contacted every year by mail to fill out a questinaire. If you are interested the email address is: info@sisterstudy.org. Of course it is free and they even give you a phone card!! My sister has already started the process and a certified home care agency will come and draw blood, take dust from your house (that would be easy for me!!), urine sample, toe nail clippings and go through a questionaire regarding life styles, diet, exercise etc. trying to find a link. The study involved 50,000 women and they already have 35,000. The study will last 10 years. My sisters felt this was something they could do to support me and the cause. Good luck to your sister and keep in touch here. This has been a great support for me as well as others.

    Quinnie

  • cat2026
    cat2026 Member Posts: 3
    edited February 2008

    my sister was diagnosed with lobular cancer in september 2007.she went through 4 months of chemo(every 2 wks)and now will be getting mastectomy next week.she was doing great with the chemo till the last treatment.she stopped sleeping and became very anxious.we took her to dr who gave her anti anxiety and sleep meds.helped a little bit but shes still in a fog and worried  and stressed about minor issues.i cant describe it,shes just not herself mentally and my brother in law and i dont think shes mentally capable of having surgery right now.we are going for pre surgical tues at sloan and someone is going to talk to her.we try so hard to keep her up and tell her that all she needs to worry about is herself,but i know shes just totlly freaking out cause she feels like shes losing control of everything.i just pray that we can snap her out of it and get her to feel that she will be ok.what a nightmare this has been

  • Colleen2007
    Colleen2007 Member Posts: 13
    edited February 2008

    Hi: I have empathy for your situation. If anyone understands it is the "sisters" who are here on this site.  My sister too started her chemo 2 weeks ago.  That evening she became so violently ill she had to be rushed to the hosipital, where she was IV'd more anti-nausea drugs and  hydrated.  Her ordeal is the opposite of your sister's; she had her masectomy first back in January. Now she will endure chemo every two weeks, then this summer daily radiation. I look at photos of her and she looks thin, soon all her hair will be gone.  I feel so sad.  My sister goes to counseling for her "spiritual side" and also goes to nutrician counseling.  She is very very positive. I think that is half the battle.  Is your sister going to some counseling??  Does she talk about her situation?  Maybe she needs to really express her feelings, and she may need some guidance.  I will see my sister for the first time since her diagnosis in a couple weeks, so then I will be able to better judge her mental abilities to continue to fight this.  Cancer really sucks!! Hope your sister improves and is able to deal with the surgery. 

    Colleen

  • cat2026
    cat2026 Member Posts: 3
    edited February 2008

    thank you for responding.ive tried since the beginning to have my sister speak to someone.ive given her phone #s of people who have been in her situation.she was doing well,but now shes mentally not stable,hopefully tomorrow someone can help her when we go for pre surgical testing.how scary is this, she had mammography in jan and in sept ,8 months later ,she finds this 9 cm tumor in her breast.hope your sister is doing ok

  • Colleen2007
    Colleen2007 Member Posts: 13
    edited February 2008

    Hi Again: That is interesting. My sister had a mamogram in August 2007 and was given a "clean bill of health".  In November she has stage 3 breast cancer.  It makes you wonder, doesn't it.  She is encouraging all of her female relatives to get CAT scans or MRI. Her own physicians now are saying the mamograms just aren't reliable. So why aren't we all just getting the better scan?  I have heard this story too many times.  My sister is for her situation doing well.  She is usually an upbeat person, but I think in her core she also believes that a positive attitude will help her beat this. Let me know how things go after her visit tomorrow.

    Colleen

  • brendast
    brendast Member Posts: 11
    edited March 2008

    Well ladies, the time has come.  My sister is having surgery tomorrow and I cannot be there.  Thankfully, my parents will be, so that helps.  This disease is so devastating for everyone.  I have all of these crazy thoughts going through my head and had a terrible dream last night that my sister was misdiagnosed and it was more serious than the doctors originally thought and that I lost her. 

    I pride myself on being strong and being able to get through anything, but this thing has taken the wind out of my sails; I just want to make it better and make it all go away.  It's like a bad dream that you cannot wake up from. 

    For those of you that believe in God or a higher power, please keep my sister in your prayers tomorrow; her name is Lori.  I pray for all of you going through the same thing with your sisters, friends and mothers.  This website has been such a source of strength for me.

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