Starting Chemo in May 07
Comments
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Good luck Liz!
Don't worry....it's a breeze! No problemo! : )
Hugs, girl. Really. You'll be okie dokie. I drove to my ps's office the next morning.
Love ya girl.
Traci
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ps I totally want to see pics!!!
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yay Leeanne! way to go on loving life and moving beyond cancerland.
Traci - the car story, I think what I didn't explain clearly was that I was tryign to put something away in a car that wasn't there - it was being driven elsewhere :0....sigh.....
Everyone - I need prayers for my mom on Thursday! She had DCIS 8 years ago, took tamoxifen in a trial previous to the DCIS, and last week had an endometrial biopsy that showed precancerous hyperplasia, and so is having a hysterectomy on Thursday. I asked her how long she'd "known" (felt) like something was wrong....and she said 1.5 years!!! AARGH. That doesn't sound good to me. There will be an oncologist there for the surgery and they'll take slides etc. as they go, but I am praying like crazy that they don't find actual cancer inside!! Not to cross that worry bridge until it comes, but I'm seeing the bridge in the horizon and hoping it's not for us. Pls send her healing good wishes and "let it not be cancer" prayers on Thursday! Thank you, so much, from the bottom of my heart.
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Hi Traci, I know it's a little confusing, but first you set up an account at photobucket like that link shows you (apparently this site doesn't provide photo storage for you), then, once you've uploaded your picture at photobucket, you click on the link under the photo, the one that says "direct link" or something (not the e-mail one). That will copy the link into a buffer, then when you come back to this page you click on the tree icon in the post text box. There will be a place to paste the link you copied. Hope that helps!
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Amanda, good energy coming your mom's way!
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Amanda - sending good thoughts and positive energy to your mom (and you) that everything will be benign! What a troubling time for you guys...I believe everything will be just fine!
Liz - thinking of you as you prepare for your surgery (or maybe you've already had it today?) At any rate - please know you are also in my thoughts and I wish you a speedy recovery! I need my virtual running buddy out on the trails with me!! I had a hard run in the snow last night - man that is HARD work!
Lar - you are gorgeous! I like your hair short - you look so funky. Had you always kept your hair long? I need to take the photo tutorial too and get some recent pics of my mug up here (I've given up trying to change my avatar)
Am I the only one or is anyone else fed up with the Christmas machine? I'm not opposed to gifts or spending money but what I am sick of in my family is this whole "give me a list of what you want" krap! Isn't the point of a gift to think of what the person might like? The worst part is that everyone in both families asks me for gift ideas for my kids - I actually have a chart so I can keep track of who bought what and to whom I gave ideas to, to avoid duplication. Hey, how about you spend some time getting to know my kids better!! Anyways, that's my rant for the night. I LOVE Christmas but every year, I have to have a rant about the gluttony...guess today was this year's rant! Thanks for listening
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Have a wonderful evening everyone,
Mandy
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Amanda--best wishes for your Mom. I'll be thinking good thoughts for both of you tomorrow.
Mandy, I'm with you on the Christmas thing. And I hope to be out on the trails--mine aren't so snowy though they may be rainy and cold this time of year--maybe by January I can start running again. That's how long the PS wants me to wait.
Everyone, I feel great today and in fact didn't feel bad yesterday. I was home by 10:30AM and took a few vicodin but the pain was minimal and today I don't feel anything. I can't wait to see what they look like and will take pics when they're "presentable."
Hope everyone's having a good day and a good week!
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OMG!!!! I did it!!!
This is a pic of me and my sis Debbi the night before my hysterectomy! Funny I figured it out tonight.......she's having a prof mast and tram flap tomorrow. Thanks MtnMama!! I really wanted y'all to meet Debbi.
Liz....I told ya so!!! You'll be more sore tomorrow and then...all better! That "bra" they make you wear is a pain in the arse though. I'm cheating now and do not have it on.
Mandy...I hear you sister. We finally got smart and decided to draw names. There are 5 sibilings and SO's and 13 nieces and nephews. We each draw three kids and 1 adult. That way, everybody gets something decent and not a lot of crap.
Amanda....your mom is in my thoughts.....
Hugs, Traci
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crap.....it's funky...it didn't look that way in my white box!!!
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Traci, you and you sis are so cute!!
And how is it that you have hair again? Forgive my chemo/rads brain, I seem to have no memory these days.
Thanks everyone for the good wishes for my mom - tonight I have a very clear and good feeling that everything will be alright.
Also, had my first f/u mammogram on my remaining boob today - all clear! Woohoo. Plus they gave me chocolate while I sat waiting for the digital mammograms to be read.
Furthermore, they were read by a radiologist that I trust and adore (a doc at EPIC West - they SO rock).
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lol!! The pic was before chemo! Your chemo brain is forgiven!
Did you notice the sign on my wall??
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Nice pic Traci! Good luck to your sis for her surgery. Let us know how she is.
Good news on the mammo, Amanda! How's Mom doing? Good luck to her tomorrow.
I'm feeling great again. Had the bandages taken off today. I love my new boobs. They're so soft. I hope they stay that way.
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I had my ultrasound (of my right hip). It unfortunately wasn't a cyst.
It's 3 inches in diameter ... really huge. Next step is MRI. I'm terrified.
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Hey Lar. I'm sorry to hear about this. Let us know how it goes. We're always here if you need to talk.
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hi everyone,
Haven't post for a long time, I'm doing fine, finally my hair is growing not that fast but a little at a time.Can't wait to do a ponytail.... Does anyone has pain in your arm I had 19 nodes out and I still have that football underneath my arm.I started to work last week and I feel great.
Wishing happy holidays to everyone and we did it we kick some cancerbutt.... Merry Christmas !!!!!!!!!
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Evening everyone,
Arrghh! I was just typing a nice long post and clicked on Bernadine - to see if I recognized yoru name (sorry, I don't) and LOST my entire post...so lesson for all of you don't hit anything besides the keyboard while composing a message!
Traci -Great photo of you and your sis! I am joining Amanda in the confusion department though - I thought you just had your hysterectomy a few weeks ago (just before you re-built your mom's house) so I too was confused about your hair!! At any rate - you guys are adorable!
Amanda - Glad to hear you have such a good feeling about your mom. Sometimes once the inital panic subsides, we can listen to our gut and find some real calm! Let us know how she makes out! Congrats on your clean mammo!
Lar - I am so sorry to hear that you are going through such a frightening time right now - please keep in touch. I will keep you in my thoughts and send you well-wishes and positive vibes that everything will be JUST FINE!
Bernadine - I'm really sorry that I don't remember you from any other posts on this board - did you change your user name? No matter - glad to hear that your feeling well and "Happy Holidays" backatcha! Have you gone to any physio regarding your arm stiffness? I think it would be very helpful - sounds like you've got some "cording" going on.
Liz - glad to hear you love your boobs...how are you feeling? When does the tumour board review your case regarding radiation?
Well, hope everyone is well tonight. Those of you going through waiting times - please keep us posted. Enjoy a Christmas cookie for me...sigh!
Take care,
Mandy
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Hey guys...
I had my bi-mast in March. : ) Hysterectomy 10/31.
I'm driving to Atlanta in the am to be with my sister. I'll check in with you guys asap.
Welcome back Bernadine!!
Love everbody!!!!!!!!!!!!!!!
Traci
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Hi Girls...I feel like it's ages since I posted, and I can't remember what everyone has going on... SORRY!
My Dad is home and I am exhausted. My car had major problems last week - $2100 worth of fixing up. UGH!
We got yuckie slushy snow tonight... I shoveled once, then my neighbor across the street plowed my driveway... Another Snoopy dance!!
Lar- sending you good karma with everything. I had to have a pelvic ultra sound followed by the MRI b/c they found multiple cysts and masses. Turns out that many of the masses must have exploded b/c I got my period (first one after months of chemo-pause). The MRI turned up a 3cmX3cm cyst on my ovary and a fibroid in my uterus. The gyno wants me to have another ultrasound and the breast center wants me to have a breast MRI. I have been procrastinating on both as I want to be an ostrich around Christmastime. I guess I just don't want to ruin ANOTHER Christmas. I am thinking of you and hoping everything works out for you...Please do keep us posted...
Mandy- your post about the Xmas machine made me laugh... Our family exchanges lists on Thanksgiving...it's our tradition...and a MUST for our family... It makes my life MUCH easier...I haven't a CLUE what CD's or DVD's my brother has or buys himself during the year, so it's just easier for him to tell me what he wants. And the kids...well, once they get bigger, they get pickier...
Traci- loved the pic. You confused me too girl with the hysterectomy comment. Now I am thinking you are trying to test us...see if we all still have chemo brain!! LOL
Love to the rest...Liz, LeeAnne, Amanda, everyone else my feeble brain is forgetting... I am so exhausted.
Oh, and WAIT 'til you see my crazy funky hair. I have gotten sooooooooooo many comments RE how fast it's growing from my co-workers... It's even getting a wave to it... I swore it wouldn't get curly, but it just might!!
Hugs...
Virginia
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Hey Mandy, Thanks...I'm feeling good. They presented me today and I talked to my oncologist afterwards and had a message from surgeon on phone. They don't agree so I'm going with the more aggressive option (at least that's what I want to do at this moment, I may change my mind in five minutes). I'm mostly afraid that it will mess up my implants but I have to go with what is going to potentially save my life. Kicking cancer butt all over the playground...
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Hi Liz - yay on the soft breasts
- but what's this talk of a more aggressive option - is that rads? sorry, I'm just not tracking these days
Virginia - so glad you're dad is home! and now my soft chide for the day: no ostriching!!! Go get those MRIs etc. DONE. And maybe the results will be good and then you'll be home free. Sorry to push!!
Mandy - Hi, it's just so nice to see you posting!!
Mtn mama - that sucks about your hip. Pls keep us updated....any chance it's just a big benign something?
and my update - bad news about my mom: uterine cancer.
Taking things one step at a time here, going down to be with her soon so I won't be around. Anything you know about hysterectomies and uterine cancer pls PM me or leave a post on my blog. I will update there.
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Amanda: Yes, radiation is what i'm talking about. Not happy but I feel that it is better to do it than not and then regret it later if I have a recurrence.
I'm so sorry to hear about your Mom. I wish her the best--let us know.
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Amanda- I am so sorry about your mom... Dangit... Thinking of you and sending all good/positive karma your way!! And, yes, I will be digging my head out of the sand soon... I'm not sure if I will squeeze the tests in before the new year...but I will get them done.
Liz- bummer about the rads since it seems unexpected, but I think you are doing the right thing... Give yourself the best fighting chance. That's why I did the chemo...my tumor was small and didn't warrant the chemo, but the Her2+ status did...so I had to give myself the best fighting chance possible... You will breeze through rads after everything you have been through. It's just an annoyance for the most part. (Unless you have these crazy-ass commutes like some of the gals do...I was lucky and went to a hospital in the next town from my office...couldn't have been more convenient).
Traci- good luck with your sis today...thinking of you.
Dokie...better earn my paycheck...gotta earn some casino money for my cruise! Whoo hoo... Cindy, Lar, Mandy, everyone...big hugs as always...
Virginia
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Thanks for the encouragement Virginia, and back atcha! Go get those tests done :-)
Amanda, my step-mom had uterine cancer 11 years ago, she had a hysterectomy and has had absolutely no problems since. Whenever I mention the risk of uterine cancer to my onc (with respect to Tamox) she waves it off and says that because it's almost always caught early, it is rarely life threatening. I'm hoping your mom falls right in line with all that and that she gets her life back pronto.
Traci, good luck to your sis!
Nice to meet you Bernadine!
Mandy, thanks for the well wishes. I'm feeling a lot better today mentally. I spoke with my mammo radiologist nephew (I never realized how handy his profession was going to be to me!) last evening, and he says that based on the radiologist report it doesn't rule out a lypoma (collection of fat cells). Maybe it's been collecting over time and I just didn't notice it? It's just so coincidental that it would be noticed the same year I was diagnosed with grade 3 cancer. But I am feeling a lot more optimistic today. I don't usually spend a long time in the depths ... I was much better by last evening.
Thanks for the good thoughts all!
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Amanda, when I had my hysterectomy in 2003 (non-cancer related), I got a lot of info and support from hystersisters.com. They're set up a lot like BC.org, with info and discussion boards grouped by topic.
http://www.hystersisters.com/vb2/
--CindyMN
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Hello everyone,
Amanda - I am so very sorry about your Mom. I know very little about uterine/endometrial cancer but the little bit that I do know is that, (I think) there is a high survival rate...keeping you and your family in my thoughts.
Lar - how are you doing? I hope you are able to not dwell on your hip - I like the sound of a lypoma! We think we are doing so well (emotionally) but it takes very little to tip the scale towards panic or fear (at least for me) Wehn I feel like that I always just get moving - distractions are good! Keep us posted.
Liz - good luck with rads. I would do the same if I were you. I sometimes feel like my treatment hasn't been agressive enough (especially when I hear of others with a similar diagnosis who have gotten much different tx.) I just read that women who get taxols have a 31% higher survival rate over those of us who didn't get it (remember the adriamyacin is apparently useless?) 31%!!!!!! Great - I had FEC (no taxols) When I asked my onc. before I started tx, he said that was for node positive bc. but the study said for all women - regardless of nodes! The whole thing seems like such a crapshoot sometimes!
Virginia - you have had your share of car trouble this year! I have an old 1990 Honda Accord (which I still love and has 358,000kms on it and still going strong!) but everytime I take it in to the mechanic for something, they find more wrong with it and we just dished out $1000 on Wednesday...oh well, still cheaper than a new vehicle...and I really love my little Honda! (Our other vehicle is a minivan - not cool but very useful!)
We have a new WalMart Supercentre that opened up close to my place - the first one in our city! Well, the place is open 24 hours a day (I assume just for Christmas- I hope anyways!) I was wondering who the hell would shop at Wal Mart at 4 in the morning - so I said 'let's find out!' My husband and I set our clock last night (or rather this morning) and we went shopping! I was surprised at how many people were actually there - maybe 50 or so and how many people were doing some major shopping. I'm talking carts full of groceries! It was fun! We came back home and went to back to bed!
Well, it's snowing beautiful, soft, fluffy flakes - there is absolutely no wind so it's just floating down...in my world this means it's perfect conditions to go for a run! I am a little sore though because last night we went toboganning and today I have some bruised areas! I had one wipe-out that was bad enough that some teenagers at the top of the hill yelled down at me to see if I was alright! That bouncing when I run is gonna hurt my butt/hips and ribs! I'm 42 - what was I thinking??? Oh well, we had a blast! (My hubby, who is 10 years older than me) was going over jumps - I said 'you're 52 years old you know!!' We had so much fun.
I hope everyone is having a good evening. Keep well.
Mandy
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Mandy, I had the taxol (taxotere actually) but I had a 100% response to the adriamycin/cytoxan so I probably didn't need it. And the taxotere was pretty bad so I kept thinking the whole time, "why did I consent to this?" Anyway, the thing is everyone has a different situation and while we want to be aggressive we don't want treatments that are just going to make us suffer with no benefit. I think it is a crapshoot and I all these statistics do not make me feel better.
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Mandy....this is why we miss you when you do not post.
I've got $50 that says there is not another girl on this thread that would set their alarm 4:00 to get up and go shopping at WalMart. (Except maybe the day after Turkey Day....people get weird then!) Girl, you are nuts!!!!!!!
Liz....I'm sorry girl. Some girl started a thread on here about "starting rads in Dec"...there are girls on that thread who are doing rads with implants. I think....it's getting kind of common these days (that sucks) but...I think they really pinpoint it. Please keep us posted.
Amanda....I'm sorry about your mom to but....if you're going to get cancer...uterine is a good one to get. My other sister Denise had uterine cancer two years ago. Oh and if you want to know about hysterectomies...you've come to the right place!! My sis Denise had one in June of 2005. My sister Debbi had one in August of 2006 and I just had one on Halloween!!! All of us, under the age of 45.
We all had different kinds too by the way. Different recoveries as well. I'll try your blog. Love ya girl.
I'm at my sister's now. She came home from the hospital today. She was suppose to stay until Monday but...the dr said her surgery "could not have gone better". What is normally a 8-10 hour procedure took less than 5.
Debbi is in some pain tonight. She's got 4 drains (God, those brought back memories...yuck!!) but, she just took an Ambien and is trying to sleep on the sofa sort of reclined.
If y'all stop hearing from me all of the sudden, it's because I've gone to prison for killing her spoiled rotten kids!!! GAWD...................... They were just upstairs playing and jumping and screaming and just as I had had enough and was on my way upstairs to put muzzles on them and tie them to their beds...I heard Dad. They have no idea how lucky they are that Dad shut them up! Good grief! They are 9 and 11 and just spoiled stinking rotten!! Although...they are cute. I saw my niece MacKenna be a cheerleader at a basketball game today and I could not wipe the smile off my face. She is just too cute. (When she's not around her brother!)
Hugs everybody. I gotta crash. I didn't get much sleep last night. I stayed with Debbi in the hospital and of course they were in there every 30 minutes.
Love y'all.
Hugs, Traci
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crap....Virginia....forgot to say, I'm sorry about the MRI's and cysts and all. But hey...cysts are good right??!!
That does suck getting that kind of news at Christmas. You hang in there girl. Your sense of humor will get you through.
Mtnmama, glad to hear you are feeling better!!
Sorry if I forgot anybody else...my eyes are closing. Love you girls.
Traci
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Liz - you're right - there is no specific right treatment for everyone - it is individual and based on the kind of cancer and the oncologist's opinion/experience....good thing I love my oncologist and trust him...I just want everything I read/hear to confirm that I am going to live a long and healthy life - no more cancer, no plane crashes, no car crashes, no heart attack, no choking on a piece of cantaloupe, no spontaneous human combustion - just a peaceful, painless passing in my sleep after a lovemaking session and one helluva orgasm with my hubby at the age of 85 - I mean really, is that too much to ask???
Traci - I normally hate Wal Mart (how can I like a company who has publicly stated their goal is "world retail domination") and this whole outing was done in the name of "science and research". So, aren't you glad to know that there are, in fact, people grocery and Christmas shopping at 4am? I made the sacrifice of going and giving up sleep in order to share my findings with everyone so now you can have a good sleep and not have to go see for yourself. You're very welcome!
I'm glad to hear that your sister is doing so well - she is lucky to have you there. It's so nice that you are so close with your family! The self centeredness of children can be really hard to take soemtimes hey? I remember after a chemo session (about 3 days after when I felt my worst) my son was begging me to play soccer with him - I was like, Hello? Just got poisoned here! (I did end up playing and felt better off after the activity, but that's not the point!)
Well, I went for my run in the snow this afternoon. Except about 1/3 of the way into my run, the wind picked up and the snow really started to dump! So much for soft feathery flakes! My eyes were getting frozen open as snow accumulated in my eyelashes (didn't mind though - happy to have them back!) Also, the peach fuzz on my face collected frost and flakes and by time I got home, I looked like one of those Japanese snow monkeys!!! It was still a great run though!
Well, I'm bushed. We had company last night until midnight, then of course my sleep was interrupted by the WalMart science project and so now, I'm thinking the bed is sounding pretty good!
Have a wonderful night everyone,
Take care,
Mandy
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Mandy- you are a RIOT! I value that you went to Walmart at 4:00 am! I also love your dying after great sex when you are 85...LOL You CRACK me up!!
Traci- you rock...that's so great how you are there for your sister...SUCKS that you are both going through stuff at the same time. Your positive energy and attitude is an inspiration...
Oh, and I know what you all mean about the treatment options. My doctor in NY suggested AC followed by Herceptin... My NJ doctor said to choose an alternate (I don't even remember what now) that wasn't so harsh on the heart. The NY doc totally disagreed and I went for the AC. She said that I didn't need the T because of the size of my cancer...took the attitude of "how much is too much" but now you see the study that says the T is really successful against Her2+ cancer which is what I had... Then I think, GAWD (to use Traci's term!!!), why didn't I do the T as well???? UGH. I can't dwell and make myself crazy... (I'm already koo-koo).
Tonight I had a houseful of friends and family... It was awesome. I had like 30 people here. I was so happy. Had 2 chemo moments...put on a kettle for tea for my dad, but turned on an empty pot. How bad would it have sucked to burn my house down with a house full of guests. Had another chemo moment that made me laugh out loud...but I can't remember what it was... :O
The bad weather held off...whoo hoo! Now I hear sleet hitting my windows. At least everyone got home safe...
Okie dokie. I am going to try and post a pic of me and my sis tomorrow. I need to figure out that photo bucket thingie!
Love you all...
Virginia
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