Starting Chemo in JAN 2007

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  • viddie
    viddie Member Posts: 547
    edited December 2007

    Hi,



    I just spoke to Lynn. She is recuperating and resting. Everything went as planned and her surgery was a success. She is having a rough day though- She is no longer on morphine and they took the catheter out. She is now on pills and that is a hard transition. She is not quite up to going online yet: still a little nauseous and is running a fever. I also had a fever in the hospital, so I think that is all part of the healing process. Twelve hours is a very long time to be in surgery, but that is how long the Diep surgery takes. I was planning to visit her tomorrow, but we are supposed to get snow and since I live almost two hours away, I regretfully will not be going. in fact, before I had the chance of talking about my visit, Lynn told me not to come because of the weather. She is such a sweetheart. I told her I would say hi to everyone for her.



    I do feel a lot better. Shopping does help. I promised myself a while ago that I would not go into negative territory, so I am back on track trying to think positive thoughts. I just have to click that switch- I wish it were that easy. I read somewhere that if you smile, your brain cannot let you get sad. I tried it and it strangely works. Actually, my fake smile makes me start laughing.

    Sharon,

    I am so sorry about your fibroids, but I am glad it wasn't anything worse.

    Mel,

    I hope you can rest today and feeling better. It can't hurt to call your PCP.

    Tina,

    You must be exhausted. I am glad you had a great time at the concert.

    Caya,

    How are you feeling today?

    Joni,

    I hope you can get some meds to help you with your pain. How are you feeling today?

    Caya,

    I agree with you. People in New England are colder. I do not know if it is shyness or fear. When I lived in Colorado 25 years ago, I could not believe the difference in the friendliness of strangers. Everyone would say hi while passing them on the street, while here they tend to put their eyes down.

    I know that we are very warm to our family and friends, but for whatever reason, they tend to be weary of strangers.

    I hope everyone is having a good day.



    Viddie ( Paula)





  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    Wonderful news about Lynn - although my tummy started hurting just reading about the morphine being stopped. Thinking about you Lynn and hoping all continues to go well. I can't wait to hear all of the details - my surgery is only a few weeks away.

  • skyedivine
    skyedivine Member Posts: 839
    edited December 2007

    Hi Gals,

    Jan, thanks for setting up the new chat! I received it tomorrow. I haven't been to the book discussion site yet because my big computer, which gets the private emails, couldn't handle the Google site it's on. Old browser. So I need to get that URL transferred to my laptop which should only take moments but I just haven't gotten there yet.



    Tina, you did a LOT considering your recent situation. The concert sounds like a lot of fun.

    And Mel, I do think you dodged an ice bullet by avoiding the Milwaukee concert. I did make it to the signing and back in the narrow window of good driving we had, thanks. John Prine is coming to Whitewater Feb. 9 and the dh and I are going to try to make that.



    Caya is your breastbone tender by any chance too? Now that I know Herceptin can bring on costochondritis, which can hurt in chest, back and shoulders, I'm wondering if it might be affecting you too?



    I did not get my mammo today! I went there and had exam and PAP but my obgyn had not set up the mammogram so now they are scrambling to try to get it in this week yet. I am still waiting to hear. She wants a bilateral diagnostic done. She also reminded me, although I had totally forgotten, that I had a d&c last year with my lumpectomy, and here I was worrying all year since about the thick uterine line, which has been gone all this time. Talk about losing it!



    Now I have to go read the rest of the posts. - Skye

  • skyedivine
    skyedivine Member Posts: 839
    edited December 2007

    haha, I just noticed I wrote that I received your info tomorrow, Jan. Wow, am I brain-dead or what? Laughing at myself very hard right now.

  • Nancyab
    Nancyab Member Posts: 276
    edited December 2007

    I am happy to report that next Wednesday I'll finally get that dreaded root canal. Saw my GP today and he wants me to discuss my lymph edema with my BS, whom I see next week. Are we passing the buck? HMMM???

    I finally got my washer and have been busy catching up laundry. I guess I am terribly spoiled because when I don't have my appliances, I am virtually unable to function. 2 years ago it was my dishwasher and within 48 hours the new one in and running. LOL

    Jan, I didn't get the new chatzy e-mail, I haven't been able to chat because I always always forget, but I'd like to have the link in case I do remember.

    Taking tylenol 3 for my tooth pain right now and oooh I am nauseous. Went to Jeff's office and had lunch with him this afternoon and I didn't feel well at all. I ate a little soup, but that was about it. Came home and slept fitfully awhile, I am assuming it's the tylenol and not that tummy bug back for a second go round. EWWW. If my DD is ever home She has pics on her computer that I want to share. Maybe someday she'll stick around long enough to give them to me. But I'm not holding my breath. Well, back to laundry.

    Tina, take it easy...listen to your body, ok!

    Lynn, I hope the discomfort is not too hard on you, Take care!

  • Caya
    Caya Member Posts: 971
    edited December 2007

    Viddie - thanks for updating us on Lynn.  Glad you are feeling better Viddie.  Lynn, take it easy, you've been through alot.

    Skye - it's so funny that you bring up costochondritis because when I googled my symptoms, that came up and I immediately thought of you and the Herceptin connection that your onc. mentioned.  I feel better today, and I will watch it.  I just think it would be too coincidental that my symptoms started about 3 days after I fell on my icy porch steps.

    On top of all this, last night I got up in the night to get a drink and on my way back upstairs to the bedroom I rammed right into the bannister - on my scarline from the mastectomy - I think I may have bruised my ribs.  So the left side is aching, and now my right side - talk about klutz of the year.  Well I'll be at the hospital tomorrow for Herceptin and I 'll show the dr. everything - OY!!

    We bought the treadmill today - we got a great deal because we bought a 2007 model and as the salesman was ringing it up a $200 reduction for Boxing Day (that's Dec. 26th for you American gals)showed up on the computer so he gave it to us.  They are delivering it early next week and I hope all my aches and pains will be gone by then so I can use it.

    Tina - Take it easy.  I hope you are feeling better.

    Nancy - I think your BS is really the person to talk to about the lymphedema as that would be his area of specialty.  And I hope your root canal goes well.  I've had a few of those in my time.  Not a barrel of laughs.

  • Lynn12
    Lynn12 Member Posts: 1,008
    edited December 2007

    Hi my sisters,

    Quick check in...I all of a sudden seem to be feeling a bit better.  i've had the worst head-ache in my life for the past 2 days it was really bringing me down.  It was so bad I couldn't even drink water and I'd get nausous...hadn't eaten anything since Sunday.  My PS finally prescribed some wonder drug and it has made a huge difference, I had some pudding and mashed potatoes.  I liked having teh catheter in much better because now I have to get out of bed to pee..PS says there's a method to their madness. It's been pretty rough so far, but they say yeserday and today are probably the worst, so I'm looking forward to a better day tomorrow.  Eating is a good thing too!

    Anyway, thanks for all your well wishes, that means the world to me.  I'll read the back 2 pages tomorrow. 

    I love you all!

  • skyedivine
    skyedivine Member Posts: 839
    edited December 2007

    Lynn, it's great to hear you are feeling better, and thank goodness the headache is under control. It's amazing how good pudding and mashed potatoes can taste when you haven't been able to eat. Please keep healing!



    Nancy, I sure do sympathize on the root canal. Next to cancer, that is my least favorite malady. I think I've had 3 or 4.



    Caya, a fall like you had can initiate the costochondritis. My rads onc said he got it once from a skiing accident but was able to heal from it after a few months. I think with our radiation damage and the added insult of Herceptin it's harder for us to get rid of it. The rads onc (Dr. Clapper) said he thought he was having a heart attack from the chest pain.



    Ladies one other thing I forgot to mention. My ob/gyn today ordered a blood draw to test me for ovarian cancer, I can't think of the test name right now but it's a simple blood test. Has anyone else had this done? She said it's a good idea with a breast cancer history, and I know my neighbor who had ovarian cancer wished she had had it done sooner and was always urging people to have it done. - Skye

  • IowaCindy
    IowaCindy Member Posts: 341
    edited December 2007

    Lynn, there is a method. Out goes the catheter and it forces you to be up and moving which is good for you. Glad you're feeling much better.

    Caya, I have just cringed reading about your  fall and then bumping your scar. OY indeed!!!!!!!!

    Tomorrw is my appt. with the GYN. Oh yea, love that PAP and the speculum. I told my GYN that I thought some guy screwed together two shoe horns. "Could you use a smaller one, please?"

    Hugs to all. I think I'll go soak in the tub awhile. It seems to be my favorite place these days.

    Cindy 

  • Caya
    Caya Member Posts: 971
    edited December 2007

    A quick check in then I'm downtown for my Herceptin.

    Skye - the blood test for ovarian cancer is called the CA125 - be careful with it, it's known to show many false positives.  Anything under 35 is considered normal.  My mother once had one in the 400s, we were worried sick, then after a transvaginal ultrasound and repeating the test twice, her scores were something like 17 and 20.   I did not have rads, but my shoulder/chest./back pain is better today.  I will still ask the onc. about it.

    Lynn, so glad you checked in.  Take it easy sweetie.

    Okay, it's off the Herceptin # 10 - 10 down, 7 to go- Yay!!

    xoxo caya

  • TPPJ
    TPPJ Member Posts: 1,017
    edited December 2007

    Trying to catch up here on old posts...  Skye, very odd that you'd go from 70 to 55 but I did learn that echos (which are diff. than MUGA's..I've never had a MUGA.) are subject to interpretation.  My main cardio. and the fellow disagreed on what mine was when I left the hospital.  One said 30, the other said "I wouldn't be that generous...I'd say 25%."  What frightens me is that I was trusting that all was well due to my good scores, and it wasn't...  can you rely on anything in today's world?  God...

    Joni, tomorrow's Friday...  your appts. are all set?  You are in western Canada, right?  I mean, left?  (Not very funny joke... :)  I'm hoping your weather will hold out so you can get there w/out any problems.  I know the NE of US is going to get slammed by snow today.

    Melia, ambien is my lifesaver.  I actually ripped the DH two nights ago for not taking his as he tossed/turned ALL night long, which kept me up and I felt like crap yesterday.  I cannot afford that...the heart is drained enough, but add lack of sleep.  I am enforcing mandatory ambien for anyone over 18 in this household!

    Boy, I am a super windbag this am!  One more thing.  I love my ambien to sleep but now I fear it'll chill me out so much, my heart will just quit.  Yet, many times at night I'll get the racy feeling and I am looking for ambien or ataman to chill me out.  On the flip side, if I'm sluggish, coffee sounds good...  but it isn't...so they say.  I feel like I'm doomed if I do anything relaxing wise or stimulant wise.  I am just not an even keel kind of girl!  I can't live that way.  :)

    And Sharon, reading your post reminded me that I read in one of my reports that I have a uterine fibroid.  However, my 1st vag. ultra mentioned nothing of it.  Fibroid or not, I can't do much about that either because I can't have anesthesia.  I am betw. a rock and a hard place I think.  Sharon, what's w/the leg pain and fibroid connection?  Do they make you more suspectible to DVT or something?

  • skyedivine
    skyedivine Member Posts: 839
    edited December 2007

    Cindy, ROFL on the "two shoehorns clamped together." That is exactly what those feel like! Good luck with your exam!



    Joni, how are you doing? I wish for your sake your appt. was today.



    Caya, yes, the CA125, thanks. I will keep the false positive in mind. Let us know what your doc says today.



    Tina, I have a uterine fibroid too but no one was concerned about it -- I think size has a lot to do with whether they start pressing on things and causing nerve problems or need to come out. And I know what you mean about not being able to rely on those heart test scores. I told my onc about you and he just said you never know why sometimes. I'm dreading having another MUGA and trying to inject the dye again.



    Are we trying for chat in the new room tonight? - Skye

  • skyedivine
    skyedivine Member Posts: 839
    edited December 2007

    P.S. A quick hair rant...I think my growth has come to a complete standstill. It looks just like the style of those Roman emperor statues with their little short bangs, and I SO want it to cover my forehead. But it doesn't seem to be growing at all. Every morning I have to make an effort to accept it, even though I'm grateful not to be bald. There. Thanks for listening - skye

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    Lynn - so glad to hear from you. I am thinking about you and sending lots of good thoughts your way. I hope you continue to improve rapidly because it sounds like you are still in quite a bit of pain. I'm glad the headache is gone.

    Skye - I wonder what's going on with your hair. I know hair goes through growth and shedding cycles, so maybe you just have to wait it out a bit? Your Roman emperor comparison has me giggling.

    I'm planning to try to chat tonight. If anyone needs the link PM me.  

  • meliaanne
    meliaanne Member Posts: 682
    edited December 2007

    Jan, I sent you a pm yesterday. Did you get it?

    Melia

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    Melia - I just re-sent the chat info to you. If you don't get it please let me know.

  • TPPJ
    TPPJ Member Posts: 1,017
    edited December 2007

    LOL'ng Caeser (Skye)!

  • Caya
    Caya Member Posts: 971
    edited December 2007

    I had a great meeting with my onc. today - When I told him about my fall and how I came down to emerg. he asked "Which hospital?" and I just looked at him and said "Here of course, I always come to this hospital if I can".  He was very annoyed that they hadn't sent him the ER report (from last Friday!!), so I told him the whole story, the symptoms, etc.  To make a long story short, he wanted to examine me from the waist up - and he did, telling me everything looked/felt fine,and since I've felt better the last 2 days, I should be okay.  However, if the pain persists to obviously let him know.  Then out of the blue he asked me if I was still interested in doing reconstruction.  I think because my scar has healed so nicely he thinks I would have a good aesthetic result.  So we talked about this and I told him that I have seen 2 PS s but that right now I am ambivalent about it, and at any rate I do not want to do anything until after my Herceptin is finished (May 8, but who's counting?)  He doesn't want me to have any other surgery until then either (unless it's life threatening - sounds familiar, eh Tina?).  I saw a woman who was on my Herceptin schedule in the waiting room, and she told me she's missed the last Herceptin infusion because her MUGA was low and she has some heart damage, which the onc. says should reverse, so she's on a Herceptin sabbatical for a while.

    The nurses loved my cookies, and I gave the onc.'s secretary a tin too.  They are such lovely women, hugging me and wishing me a healthy and happy New Year, which I wish for all of us.

    Skye - I hear you on the gladiator look.  I really think the Herceptin is the culprit here, however like you said, any hair is better then no hair. Maybe we should have a chapter called "The Gladiator look - Hail Caesar".

    Lynn - ah, the wonder of drugs - glad you are able to eat.  Rest and be well.

    Cindy - being in the shoe biz, I especially enjoyed your analogy re: the shoehorns/speculum.  LOL!!

    I'm planning on chatting tonight. Catch you gals later.

    Joni - any word?

  • mer1957
    mer1957 Member Posts: 534
    edited December 2007

    Lynn, you are brave..hang in there.  Joni, I'll be praying for you tom.  Caya, hope you continue to get better. Skye, I think the hair grows slow in the winter - at least that is what I am telling myself but I believe it to be true.  I like my haircut but there is not much to do with it.  Cindy hope your appt went okay.  It's always good to get that over with for the year.  Mel, I hope you are feeling better too.  We seem to be struggling lately.  Well good news!  My MRI was clear but Breast Surgeon still wants to see me in Jan (like I would skip that appt? She has the best hands in town for finding stuff).  I called today my GP to get all of my referrals lined up.  I even scheduled an appt with the dermatologist to check all of my moles.  Then more goods news - my SIL had her kidney transplant yesterday and everything seems to be going well.  All 10 of her kids were there (actually one was donating a kidney so he had to be there!).  Back to my crocheting the afghan - what was I thinking?

  • mer1957
    mer1957 Member Posts: 534
    edited December 2007

    The new Chatzy isn't letting me in tonight, says that person is already there or I have to log in ? ? ?

  • Amera
    Amera Member Posts: 452
    edited December 2007

    Lynn, glad you are feeling some better.

     And Skye, I hear you on the hair. As I've mentioned, I am going to tough it out and let it grow for a while. It's so hit or miss. Sometimes I love it and other times it looks like my grandmother's wash and set hair do. I have taken to wearing really wide headbands to squash down the poof. Those seem to work fairly well but give me a headache. You just can't win.

    Not sure about the Herceptin slowing the growth but mine seems to be coming in slowly too. Although it's so curly it's hard to tell. And my eyebrows continue to get thin every 5 weeks or so. I suppose it's just the cycle they're on but it's yet another reminder of things I'd rather not be reminded of.

    Okay, off to bed. I have been hitting the sack at 8:30 these days so I am up late. We got a huge snow storm so I will be up early clearing the snow off the car. Blech!

    Amera

  • Caya
    Caya Member Posts: 971
    edited December 2007

    Mary - this happened to me too.  I think in the upper right hand corner there is a box saying Login/Regsiter - click on it and then you type in your email address.  They will instantly send you a password, and they you go back to the Chatzy site and enter that password and then you will login.

  • viddie
    viddie Member Posts: 547
    edited December 2007

    Hi all,



    Lynn,

    I am glad you are feeling better. Everyday will be easier. The right pills do help. Can you see the snow falling from your window? It is very pretty, especially if you are safe and warm inside. I hope today you feel even better.



    Cindy,

    How did your appointment with your gyno go?

    Skye,

    My hair is the same as yours. Roman emperor statues is an excellent description. lol. I agree with Caya- I think it might be our herception that is slowing our hair growth.

    Tina,

    When I can't sleep, the Atiman works great. There is nothing like a good nights sleep.
    Caya,

    I am glad you had a positive visit with your oncologist. I agree about waiting until after the herceptin. I am going to wait to do stage 2 of the Diep until May, after my herceptin treatments. Are you feeling better?

    Mel,

    How are you feeling?

    Mary,

    That is great news about your MRI. I am so glad your SIL’s transplant went well.





    On my way to chat.

    Viddie

  • meliaanne
    meliaanne Member Posts: 682
    edited December 2007

    Good Morning all,

    Big day today; came into work without the wig. I am tired of headaches everyday. Nothing but nice comments on my short haircut. Gosh, what a relief.

    Melia

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2007

    Good for you Melia!

  • Caya
    Caya Member Posts: 971
    edited December 2007

    Free at last, free at last Melia.

    xoxo

  • Nancyab
    Nancyab Member Posts: 276
    edited December 2007

    Skye, in a few days you will have your baby!! That's a neat Christmas present!

    I wrapped some gifts last night until my arm felt heavy, then I quit. I don't know if I can get use to not finishing what I start. It's a tad bit puffy today just from wrapping. Jeez! I see the BS on Tuesday so hopefully she won't blow it off. I need some sort of help.

    Had Jeff measure my hair it came in at 3 inches! I just have minor waves and curls though. They put straightener in my chemo, cost extra to get it with curls. LOL

    Expecting the white stuff over the weekend, blech!

    Have a great day and weekend everyone!

  • Rebecca
    Rebecca Member Posts: 971
    edited December 2007

    YAHOOOO MELIA!  You go girl.

    Nancy, take it easy for sure if you are getting puffy in your arm. 

    Lynn, I hope you are feeling even better…thinking about you.

    Joni…got you on my mind too, I hope that your onc appt went well today.  Please make sure you update us when you get home.

    Went to get my dress for the wedding fitted today, and it looked really great!  Only minor alterations needed….yipeee!!!!

    Many errands today, so just a quick note for now….

    HUGS to all

     

  • jonimb
    jonimb Member Posts: 900
    edited December 2007

    Hello everyone,

    Well I went to Foothills today, and we went over my bone scan.  There is progression in my hip, and sacro iliac.  Not enough yet to warrant chemo, but if my hip keeps hurting they might try radiation in January.  I didn't want the percocet drugs, as I'm really kind of scared of heavy meds.  I'm on liquid gel advil, and it seems to be working pretty good.

    All my blood work came back really good, so they are not going to do the MRI until February as planned.

    So it might just be arthritis causing my problem (hoping anyway).

    Had a horrible surprise when I got home, my walkout basement is flooding from the ceiling.  Looks like the line that makes the ice in our fridge has gone....anyways the plumber is coming at 6:00 tonite.

    I have to quit my gurning....

    Lynn, big hugs to you in your recovery.

    Thanks for all the caring, it  is really appreciated. 

    Tina, hope you are well.

    Hugs to all....kind of in a tizzy today...Joni

  • luckymel
    luckymel Member Posts: 643
    edited December 2007

    Melia, I'm so proud of you!  Am I now the only one left wearing the wig?  I keep thinking I'll go wigless, and then I look at myself and wonder whether to laugh or cry, usually laugh, then put my wig on and go.  I could do it except that my bangs flip UP, in a tiny little roll the size of a pencil, and it just looks ridiculous.  I'm hoping a bit more length will weigh it down enough to relax it a bit.  Sigh.  

    Joni, have been thinking of you all day.  You too, Lynn - we're about ready for another update.  And Tina, how are you doing?  I was telling my friends about you today, and how after all you'd been through you were out at a Hannah Montana concert.  They were impressed with both halves of the story.

    I thought having cancer was so much easier than I expected it to be, through diagnosis and all the treatment, but now I am finding it so HARD.  I have no confidence that I can do this "survivor" thing at all.  I'm too tired, don't feel well and am afraid I'm never going to feel normal again, feel guilty for complaining but if I don't say something nothing will ever get better.  It took me all week to work up the nerve to call my oncologist and see if I should come in (they said yes) because I didn't want to complain.  I have pain that is getting worse, and I don't want more meds to take, and I don't want to be a chronic pain patient, and I don't really think there is anything she can do for me anyway, but I don't want to feel like this.  I  haven't even been  to the gym for a couple of weeks because I'm so miserable, and that just makes me feel worse.  Then there is the usual Christmas stress (dh is not helpful in the gift buying department - he is the original Scrooge).  I'm overwhelmed, to the point where last night I picked a fight with him because he didn't want to stay up to watch a tv show, of all things - I totally don't like myself when I act like such an a**hole, but I could not stop it.  Anyway, I was such a easygoing, happy cancer patient...how did I turn into a self-pitying jerk once it was over?

    Mary, so glad to hear your MRI was clear.  Hope your SIL is still doing well.  Amera, my eyebrows seem to thin out every few weeks, too - hoping that will stop eventually, since I don't remember that happening pre-chemo.  Of course, pre-chemo, my eyebrows were covered by bangs, so I never looked at them.  Maybe I'll try squashing my bangs down with a headband, would that work?

    Nancy, keep babying that arm - I'm sure your BS will give you some help with that issue.  My BS's office called me yesterday to set up a six month followup appt. - I was thrilled!  I didn't think I was going to get to see him again, and he's such a great guy I threatened to make an appointment just go to in and chat. 

    So glad it's the weekend - hope everyone has a good one.  I'm planning to stay home and Christmas shop online.

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