Chemo in Nov 07

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  • Chris40
    Chris40 Member Posts: 2
    edited November 2007

    Hi Ladies,

    I start chemo on 11/15.  I will start with 4 treatments of AC and then on to T and Herceptin.  One of the tricks my  onc recommended to me for the mouth sores is that during the infusion of C (she said it should take about 10 mins), to keep ice /ice pop in my mouth. Freezing the mouth area will reduce the flow of blood to the mouth and then reduce C getting to the mouth to cause the sores.  I'm hoping it works.  I'm pretty apprehensive about the whole process and definitely hoping and wishing for the best for all of us.  I go to see the "wig lady" tomorrow.

    Christine

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  • jay66
    jay66 Member Posts: 112
    edited November 2007

    Hi November Ladies, glad they sorted out you dx jen.Hope everything goes well for you now.Cheryl and Jen you both have great families, and i bet they keep you both busy. I have to kids 15yr old son and 12 going on 18yr old daughter.Sueps are your boys very old? I can't wait for xmas love to see the kids faces. I don't like dairy very much so since i started chemo I've been taking Caltrite plus the doc said it was ok.We have had hot weather here so I've been swimming look a bit funny with one boob but oh well not much i can do till i get a recon.They say it will be 39 degrees by tuesday next week, aghhhh...tooooo  hot,  lol.Best of luck when you start Chris and Tina.Billi hope your daughter is well, how are you going Meanandpc? Well enjoying everything till next week then I get my second round, so live for the day and take care all, hugs xxxx

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  • Jen44
    Jen44 Member Posts: 631
    edited November 2007

    Hey Jay66,

    I am so glad to hear that you are doing well and able to get out and play.  It gives me hope for how I will feel for the holidays.  I am a little nervous about having my first round of TAC on Monday.  I guess I won't be cooking a big Thanksgiving meal or at least not eating it ;-)  My husband has offered to deep fry the turkey so I don't have to mess with that so that will be a big help.  I hope you continue to do well.  The weather here in Virginia is back and forth.  A couple of days ago it was 44 degrees F and today it is 68 degrees F.  Needless to say not really sure how to dress the kids for school from day to day. 

    Living for today,

    Jenny

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Hello Everyone xxx

    Well I have been to work 8 30am - 4pm ....didnt't really get much sleep last night...and have been feeling sick all day...with an immense craving for chicken.... I just had some delish chix soup and will be filling my trolley with chickens tomorrow....

    My boys are just 13 and 11..... so they getting on a bit ...lol..

    Hope you are all 'OK'

    Much Love xxx

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  • Angel359340
    Angel359340 Member Posts: 4
    edited November 2007

    Hello everyone... this is my first time doing an online chat, but I've been reading everyone's comments and I just feel that I am NOT alone.  All of us women with bc have a connection.

    I was diagnosed 7/07...had radical masectomy left breast on 8/13/07...started AC on 10/8/07..have one more AC to go, then it's on to Taxol every 2 weeks for a total of 4 treatments.  The treatments are OK...but I hate myself on the 3rd, 4th, 5th, 6th day afterwards when you know your count is low and that Neulasta is kicking in because you have "joint" (it's more like muscle pain)...and I feel really light headed and very dizzy(anemia?)..for 3-4 days..  I just stay in my dark bedroom in bed, no TV because looking at it makes me dizzy.  I take Ativan everyday during these BAD days to just get through.  Does anyone else feel this way after AC?  Can anyone tell me if Taxol is WORST or Better as far as side effects???

    I wanted to comment on the ladies that are contemplating about going back to work or work during their chemo tx.

    I thought I could go back to work...but after the first treatment and the side effects...I couldn't do it.  Also if you're in contact with people, kids, etc...you don't want to  be exposed to their colds...I usually get 3-4 colds this time of year and you don't want to make yourself worse.  Try to stay home if you can...check out your disability papers and rules with your employer...This time is for YOU...YOU need to take care of yourself and rest.  The week inbetween treatments when you're feeling better might be OK for you to go back to work...but this is the week when you can finally do things on your own and get out of the house...only to go back in again the next week for another treatment to wipe you out. 

    We are all survivors...we can do this together.  I still have good days and bad...but during my bad days I ask God to help me and only allow what my body can tolerate.  He has answered all of my prayers.  God is with you all the time and don't forget he will get US through all of this.

    Helga

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  • mrs7148
    mrs7148 Member Posts: 225
    edited November 2007

    welcome angel! This is a great site with great women to find friends and to be comforted during this stressful time in our lives.  I was having quite a struggle regarding my work.  I adore the people that are having to work 3x harder because I am out, I really wanted to ease their burden, but I have come to realize that I would do it for them. I do need to recharge myself during the good week and not go to work to possibly get infected or just drag down my energy level.  I have found a few projects around the home I just havent had time for that I can now slowly work on.  It seems to be working wonderfully to fill my time and to satisfy me mentally. 

    I do not have any children in the home and my dh works long hours so I am here alone most of each day. This site has been a God send.

     Cheryl

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  • beeboo
    beeboo Member Posts: 1
    edited November 2007

    Hi all, I'm a new member of this community. Currently recovering from surgery, lumpectomy (clear margins), lymph node biopsy (8 removed, 1 involved w/ micrometastasis), portacath placed. Unfortunately I'm one of the 1 in 100 who had complications w/ portacath placement so am also recovering 1 day in ICU, 3 days in hosp with hemothorax and chest tube to drain fluid/blood. I'm trying to get my lungs back up to speed and my blood count back up so I'll be strong for chemo on the 28th.



    I was sent to the breast clinic at my local teaching hospital on Oct 24 after finding the mass two weeks prior with my primary care physician (I'd had a mammogram in March which was listed as normal) The surg oncolgist did a ultrasound guided biopsy at that first meeting, scheduled me for a mammogram next day with a follow-up appointment having rushed the path results. She diagnosed me with breast cancer on Oct 25. I was scheduled for an MRI on Oct 26th. I met with my full breast cancer team on Oct 31st and surgery on Nov 2nd. Long recovery due to surgical glitch with portacath.



    I met with the Medical Oncologist yesterday. They've officially labelled me Stage II (T2N1). I'm scheduled to start chemo Nov 28th, every 2 weeks for 16 weeks. First 8 weeks Adriamycin + Cytoxan and second 8 weeks Taxol alone. Neulasta next day after every treatment. After chemo I move on to Radiation and Hormone Therapy.



    I'm reading up on things, trying to get myself strong and prepare myself for treatment. Best of luck to all who read and participate in this forum. I've just found this resource today and appreciate all the valuable info! Looking forward with positive energy and crossed fingers to low-side-effect chemo. Beth

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  • mrs7148
    mrs7148 Member Posts: 225
    edited November 2007

    welcome beth! I am sorry you had to seek us out, but glad you found the right place. This site has so much great information and support!  I started my chemo on 11/1  and mine is different than yours because I am her2+, there seems to be many more on your ac than on my tch. I also post on the oct chemo girls, you may want to just read thru all the threads there to gain some insight as to side effects, tips, and perspective from those going through it. Most of those ladies are going for tx2 or 3 now, so the process is very fresh! I go for my 2nd next week. Some work, some dont.  Some have horrible se's, some dont.  Today is day 15 for me and I have yet to lose my hair!

    Cheryl

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  • mommy_mia
    mommy_mia Member Posts: 81
    edited November 2007

    Hi Sueps,

    Although we are "across the pond" from each other, we seem to be in a similar place in life.  I'm 39, er-/pr-, and have 2 boys who are 13 and 10.

    I hope your boys are doing well.  We are trying to keep things as normal as possible.  Also trying to be open with them about this so that they won't be scared but we don't share everything with them.

    The thought of leaving my boys has been the hardest part of this whole thing for me.

    We need to be strong and fight this fight not just for ourselves but for our boys...they need us!

    Wishing you the best!

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  • georgias_mommy
    georgias_mommy Member Posts: 87
    edited November 2007

    Hi everyone. Looks like this is the place where I belong.

    My name is Sharon. I am 39 years old, a multimedia designer, married to my college sweetheart - Kyle, and we have a beautiful 15-month old daughter named Georgia Kay. Oh, yes, I almost forgot...I have breast cancer.

    I had my surgery back on October 10 and there has been JUST enough time to get back to feeling like "wife/mother/career woman". Yesterday my husband and I met with my oncologist and...BOOM!...I'm "cancer woman" again. I start chemo on November 30th and, while completely comfortable with the decision, I'm absolutely scared to death if that makes any sense. I am so happy that I found this site and am looking forward to getting to know each of you and your individual stories.

    I'll give you a few of my details...

    I was diagnosed on 9/11 with Invasive Ductal Carcinoma, Grade III, ER+/PR+, HER2-. Within 48 hours my husband and I met with a surgeon that, well...let's just say that we didn't get a warm fuzzy from them. Here's just one of many examples. When I started asking questions about reconstruction, they said "hold on", left the room, came back a few minutes later with a brochure (on the different reconstruction options) and handed it to MY HUSBAND!!!! Hello?! Suffice it to say that we went for a second opinion and wow, are we happy we did. On the advice of a friend, we ended up going to the Johns Hopkins Avon Foundation Breast Center in Baltimore, MD. What an amazing experience. I won't go into details about it now, but if any of you want a second opinion and are within driving distance of Baltimore, I would HIGHLY recommend this breast center.

    Anyway, I ended up having a lumpectomy with SNM. The final pathology showed a mixed tumor half DCIS/half IDC. I actually had TWO sentinel lymph nodes and was lucky enough that neither of them showed involvement. I had the BRCA1/2 test performed and it came back negative. I also received an Oncotype DX score of 19 which put me one point into the Intermediate range with a 12% chance of reoccurence in 10 years. I just don't think I could forgive myself if I didn't do everything possible to prevent this ugly monster from coming back.

    I will have four rounds of TC followed by radiation (six weeks) and Tamoxifen (5 years). It seems like a long time to me now, but I know that it will go by quicker than I think.

    So...here's to us! May we all become stronger than we ever thought we could! 

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  • Karyll
    Karyll Member Posts: 235
    edited November 2007

    Halfway through November, halfway through chemo, halfway through feeling human. The third tx has kicked me a bit but only into severe fatigue. I am depressive today but I also think it is because my blood is at its lowest before building up again. Take up the look good feeling better workshops they offer. I look a bit peculiar right now with very dark eyebrows but the other stuff was amazing. And although I still feel kinda crappy (just weak and shaky) it was well worth the experience. I have a staff party in a couple of weeks and am already fretting over what to wear on my bald egg... lol.. but hey, maybe I can just draw big enough eyebrows.. *Grin*.

    Keep the faith ladies - we get through a week at  a time. Today, was an hour at a time for me - but I did get through it.

    Blessings

    Karyll

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  • Jen44
    Jen44 Member Posts: 631
    edited November 2007

    Hi everyone,

    I was having a pretty good day today.  I start my chemo treatment on Monday morning so my kids, 10 and 14, asked if they could stay home with me and have a cancer free day.  They are both great kids, both on honor roll even with all this going on, so I let them.  We got movies, ice cream, made cookies, and just vegged all day.  It was great.  Then my cousin, who is a few years older than me, came by.  Right before she left she told me not to take this wrong but that her daughter said, her daughter is 30yrs old with two kids, that she wished she had what I had so she could get new perky boobs without feeling guilty about it.  I just looked at her and told her that she might want to tell her to be careful what she wished for.  I mean how could I take that wrong.  I mean I had just had this great day with my kids and then a family member comes by to tell me how her daughter wished she had this so she could get her breasts cut off and get new perky ones without feeling guilty.  I don't know about the rest of you but when I was told I needed to have a double mastectomy, chemo, and radiation so that I would have a chance at seeing my kids grow up the first thing that popped into my head was "Cool, now I can get new perky boobs and not feel guilty about it!"

    I am sorry to go off like this, but sometimes it just amazes me how completely void of intelligence some people are.  It especially drives my crazy when it is someone in my family that I share genes with. 

    Thanks for letting me vent.  I know that I am not the only one here that has experienced people that just don't realize how stupid they sound.  Just needed to get it off my chest, no pun intended Laughing

    Thanks,

    Jenny

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  • hobblet
    hobblet Member Posts: 21
    edited November 2007

    Hi, sueps,

    In answer to your question about working, yes, I am working through my treatments. I had surgery on August 24 and was back to work on the 29th. I take one day every other week off to drive 3  hours to chemo and 3 hours back. The A/C did not make me feel too bad. I had some mouth sores and constipation, but a stool softener and triple X mouthwash helped with those issues. I was on so many anti-nausea meds that I never felt ill. The first AC was the worst; it felt like a mild hangover the next day. The last three were much easier. I started Taxol last week and the pain from that is bad at night. I have to take 1/2 a hydrocodone to be able to sleep for two or three days after it. It's been a week now, though, and I don't think I'll need anything tonight.You will be fine.

    I think everyone responds differently to the chemo; the key is to keep your doctors informed about annoying side effects. They can do wonders these days to offset the side effects and keep you comfortable. Good luck and hang in there! God bless.

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  • mrs7148
    mrs7148 Member Posts: 225
    edited November 2007

    Jenny,

    I agree with you, so many people say stupid things they don't bother to think about. i had one of my people at work tell me they wish they could do chemo so they could "milk" a few months on sick leave!  It made me feel like i am faking my se's....they are so ignorant.  I have to admit though, I have made the comment to people when after I tell them about the cancer and they are giving me the "pity" look, I have told them "hey, it wont be so bad.  I am over 50, forced to lose weight and will get a tummy tuck and a boob job paid for by the insurance company".  It is all in the attitude! I am turning a negative into a positive.  You have every right to feel anger, but dont let it spoil the moment with your children. 

    Welcome Sharon! I know you will get strength and comfort from all the ladies that post on this thread and others. My second tx is next wednesday 11/21. The worst part of bc is the unknown, but on this site you will find answers to your questions and you can read what others have gone thru just before you so the unknown factor is greatly reduced.

    It is very cold here in the midwest today.  Snow is flying in the air and the north wind is howling.  Time for me to make some lunch.  Have a great weekend ladies.

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  • georgias_mommy
    georgias_mommy Member Posts: 87
    edited November 2007

    Thank you so much Cheryl! You and I are enjoying the snow today, huh? I just realized that you live in Cleveland. We get all that fun lake-effect snow here too and I love it. 

    I've been "lurking" on this site for a few weeks...reading as many posts as I can and gathering an arsenal of tips and tricks about how to get through chemo. There was some question as to when I would start my treatments, so I waited until now to "chime in".

    I've read some posts that made me cry and some that made me giggle. But, by far, the most important thing is how much you all have inspired me. I am humbled by those of you who have "gone before me" and have such positive attitudes. Thank you for making the first part of my journey so much easier! I certainly don't feel as alone now.

    Is anyone out there having TC (Taxotere) instead of AC this month? My oncologist said that he didn't want me to do AC because of the possibility of heart problems down the road as I have some history in my family. He told me that there is a greater chance of neuropathy with taxotere and that sometimes it is permanent. I have a brochure on it, but I simply refuse to read it right now. I think I'm just going to take it day by day.

    I hope that everyone has a good evening. Take care of yourselves!

    Sharon 

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Hello everyone xxx

    It is so nice to be getting to know everyone in this group, and thankyou for all your support and advice.....you all mean the world to me xxx

    I had treatment on Tuesday and am still feeling horrendously nauseated...I have eaten everything form beetroot to melon to salad cream etc tonight...does it wear off for a while before next treatment xx What does everyone take meds wise for nausea...

    I managed to do an 8 hour shift at work today...but I am constantly on the edge of breakdown....I am fearing so much for my 2 boys and their future,it is cutting me up so much.....

    Well sorry for the whine...I hope you are all having an OK moment...

    Much Love xxxx

    My skin is going orange tooSurprised

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Mia ...give your boys a real big cuddle..I can't get enough of my boys recently LOL...feels like I keep touching them for the first time...very strange...xxx

    Hobblet thankyou so much for your strength ...you are a true inspiration to me.....and god bless you xxxx

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Jen...my twin sister booked in for a boob job the week of my mastectomy...and preceded to look like a barbie doll ...LOL ...how is that for fate....you win some you lose some.....and I truly understand xxx

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  • Jen44
    Jen44 Member Posts: 631
    edited November 2007

    Thanks Cheryl and Sueps for the support.  I am okay now, it helps to be able to voice it.  I definitely didn't let them take the wonderful day I had with my kids away.  I have to admit that I to make jokes about it.  I guess I just think that is my privilege not theirs. 

    Sueps as far as the nausea I have my first treatment on Monday so I haven't made it there yet.  My doctor has prescribed me Emend to take the day of the treatment and then the following two days.  She has also prescribed Compazine to help if I need something else.  Most of the places I have been reading people do say it gets better for about a week before your next treatment.  You may want to ask your doctor for something else.  My nurse told me that if I experienced too much nausea then they weren't doing their job because there is too much out there to help.  That gives me some hope that I won't be too terribly nauseas, keeping my fingers crossed.

    Sharon - I start TAC treatments on Monday, which includes Taxotere that can cause the neuropathy.  I talked to my doctor about it and she said that typically it is not permanent.  That if someone is on it for a prolonged period of time that it can be.  Do you know how many treatments you will have with it?  I am having six and she assured me that rarely is it permanent with that few treatments. 

    Thanks for being there everyone!

    Jenny

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  • IamGods
    IamGods Member Posts: 15
    edited November 2007

    Admil,

    How did your first chemo go?   Mine was delayed and I had my first today.  The day was fine today, I guess I'll see how it REALLY went by how I feel from here on out.  I 'm getting  TAC, which I've heard can be rough...

    What have you decided about working at school?  Teaching can be rough - just for how much energy it demands.  You can't really "cut back" much and still get the job done!  I am not going in at all next week, but will try to do what I can the wk. after Thanksgiving.  It may mean going in late and leaving early...  how supportive is your principal and co workers?  So far, mine are great!!! 

    I'll be praying,

    J 

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  • 3boys4me
    3boys4me Member Posts: 319
    edited November 2007

    Hi Ladies,

    I just caught up on all the posts.  So much happens when you don't check in frequently.  I'm feeling pretty good though I've developed lymphedema and just got my sleeve today.  And, my hair is starting to shed.  I'll be getting it buzzed in the next day or two as I just can't deal with the shedding.

    I'm so looking forward to enjoying Thanksgiving.  I'm having it here with my family, my mother-in-law, sister-in-law and a friend and her two boys.  Next AC tx is the 26th.

    you are all in my thoughts and prayers,

    Lisa

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  • georgias_mommy
    georgias_mommy Member Posts: 87
    edited November 2007

    Hi Jenny!

    I'm having four rounds of TC starting on November 30th.

    Thanks so much for that info from your doctor. I use a computer keyboard day in and day out and I was really worried about the possibility of permanent damage. My Mom is suffering from neuropathy in her fingers, toes, lips and tongue. She's going through chemo now too, but not for breast cancer. She and I are going to make quite a pair! 

    Take care,

    Sharon 

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  • IamGods
    IamGods Member Posts: 15
    edited November 2007

    Jenny,

    wow - I read that you live in Hampton, I'm right in Churchland (Portsmouth)! :)  I work every day in Hampton, right off 664.    I am also starting on TAC for 6 rounds, and had my first today.  So far so good, but we'll really start to know after today how it's going to be...   I hope it goes well for you -

    prayers,

    Janet 

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  • IamGods
    IamGods Member Posts: 15
    edited November 2007

    TinaLee,

    Well, it looks like several of us are on similar schedules taking TAC.  I had the first today and will have 6 rounds.  What are the Neupogen shots for?  I will have 1 Neulesta shot the day after each time (I go tomorrow for it).  Is the Neupogen the same type of thing?  I think it's to raise/maintain the white blood cell count.

    Take care, we're all in it together!!

    Prayers,

    J 

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  • sue_blue
    sue_blue Member Posts: 416
    edited November 2007

    I start chemo on Monday with 4 treatments of AC followed by 4 treatments of Taxol. I am wondering what I will feel like for Thanksgiving. I've assigned some different items for others to bring just in case. I am hanging on every word of the ones that aren't having as much trouble and hoping I'll be like that. I saw the oncologist yesterday and he used so many statistics and percentages that it scared me. The percentages sound alright until it's you.



    Some people do really say some incredibly insensitive things. I've heard a few myself; I guess it just speaks more of the person doing the speaking. How long after starting treatment does the hair fall out? I am really wondering how work will figure into this?



    It's great that we are all in this together and ask questions and get encouragement here. I'm sorry we are all in this club, but am glad we have each other. Sue



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  • Jen44
    Jen44 Member Posts: 631
    edited November 2007

    Sharon-I am glad I could help.  I am sorry about you and your mom having to go through this at the same time.  I will keep you both in my prayers. 

    Janet-what a small world.  Are you getting your chemo treatments on this side or in Churchland?  I am going to the Peninsula Cancer Institute beside Riverside Hospital.  The Neulesta shot is to help your body produce white blood cells to take the place of the ones chemo kills.  I will also be getting them.  Are you also doing Emend and Decadron for three days around your chemo treatment?  My doctor told me that I probably wouldn't feel very yucky for the first couple of days after treatment because the Decadron is a type of steroid and that seems to take care of some of the side effects.  For me that means I will probably start feeling yucky on Thanksgiving Day Tongue out 

    Hope everything continues to go well.  We will have to keep each other posted.

    Keep laughing,

    Jenny

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  • Jen44
    Jen44 Member Posts: 631
    edited November 2007

    Lisa- I am with you.  I had long hair and I cut it cut short a couple weeks ago to get ready.  My onco nurse told me my hair would probably start falling out around 10-14 days after my first treatment.  I have already told my family that as soon as it starts to fall out I am shaving my head, I already have the razor.  I just don't think I could stand the piece by piece process.  So bald by Christmas.  Hope the Santa hat still fits.Wink

    Take care and I will be talking to you again soon.

    From one future baldy to another Smile

    Jenny

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  • flash
    flash Member Posts: 1,685
    edited November 2007

    Port in today, chemo starts on 28th. AC dose dense then Taxol/Herceptin. I hope it all goes quickly.

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  • ginnyintx
    ginnyintx Member Posts: 44
    edited November 2007

    hi sueps

    I am so sorry you feel sick, I am on  ondanesetron 8mg, I am instructed to take for 4 days after chemo starting the day of chemo. I had a few stomach aches but no nausea. I also had

    the (nuelesta mispelled)?? shot the next day after chemo.

    Keep the chin up girl, positive, your gonna be the sunsine after

    the storm!!!!!!   hugs ginnyintx

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  • mrs7148
    mrs7148 Member Posts: 225
    edited November 2007

    The hair shedding has begun.  Today is day 17 after my first tx of tch, my scalp is itchy and sorta tingly.  When i take my fingers and comb thru it I get a lots of loose hairs so I told the hubby before he left for work that tonight might be the shaving night. I already cut my hair short to a "pixie" so it shouldn't be too hard for him to buzz the rest off. I ordered a wig from www.tlcdirect.org, the american cancer society website yesterday.  When I went to a local wig shop they had lots of choices and I found two that I felt I looked good in, but the two wigs would have been $400.  One was more than the other and the stylist said she was giving me a good price and the other one at half price!  My insurance will reimburse me but I just cannot spend that much money on my hair.  I am a low maintenance kind of gal so I bought some really cute caps at walmart and will try the scarf/bandana route first. The wig from tlc was only $46 including shipping, so I am curious to see what it will look like on. I will not be going to work at least through my next few tx so the wig will be for Church and any "special" events during the holidays.  I have noticed at my tx a few ladies in scarves, a few in caps, and one very obvious wig. Out of the 20 or so just the few stand out so maybe the rest are wearing really good wigs and they look great.

    The herceptin makes me feel like i am coming down with a cold, tired and stuffy. I need to take my antihistimine so I can get something accomplished around the house today. After my tx on 11/1 I felt ok for a few days because of the pre meds they put in the iv, by day 4 i was taking just the compazine in the morning and i didnt have any nausea problems. The onc also gave me kytril to take if i needed it. Kytril is the same drug as the emend, but the dr said I should only use it if I really needed it because it could cause a rebound effect later.  I did not need to use it. My worst days were days 5-7 and that was fatigue and acheyness, lactose intolerance, and of course the "numb tongue nothing tastes good" side effect.

    As I read the different threads some se's get less with treatment, some get more intense. I guess I will just have to wait and see what tx2 brings. Take care ladies,

    Cheryl

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