Starting Chemo in May 07

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  • lizzzy
    lizzzy Member Posts: 285
    edited November 2007

    Hi Lorain,  Sounds like you are doing great!  I'm not sure about the peach fuzz shaving.  My face feels a little rough.  Maybe my little shaver isn't close enough--I have  a Remington electric shaver for women.  There may be better ways to remove it.  I don't know if you can use Nair on your face.  I've never needed to remove hair from my face before.  My sister is a hairy gal so she recommended shaving with electric shaver. she's never had a problem.  I may have to seek professional help with this if it doesn't get better in the next few months.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    CindyKS - I'm thinking of you tonight and sending healing thoughts, positive energy and cyber hugs your way!

    I hope you sleep well and that you feel surrounded by all the love from all the people in your life tomorrow.  Looking forward to hearing from you when you are able to post.

    Take care,

    Mandy

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  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    CindyKS - sending lots of healing-prayers-hope-surgery-goes-well thoughts your way.  Brave you.  SO happy for you that you like your new docs.  Way to go!

    xoxo

    Amanda 

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  • VirginiaNJ
    VirginiaNJ Member Posts: 634
    edited November 2007

    CindyKS- ditto what everyone else has said.  Best wishes and warm cyber hugs!!  You have an AMAZING attitude...  I truly admire your spirit!!  We look forward to an update when you feel up to it...

    LeeAnne- you would be proud of me...I hired a lawn boy to take care of my leaves!!  Whoo hoo.  I am very excited about that...

    You gals are cracking me up with this peach fuzz stuff.  I had errant hairs growing under my chin, but they haven't been peach fuzz...they are coarse like before...  LOL  Just been plucking them out.  I was hoping they wouldn't come back...  :O

    Virginia

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  • chumfry
    chumfry Member Posts: 642
    edited November 2007

    No, this is definitely fuzz on my cheeks. It's long enough, I can actually pinch it and pull. If it were dark, I'd look like I had muttonchop whiskers! LOL

    I shaved it after my 2005 chemo and it didn't come back, so I think it's OK to shave. I've not heard of anybody actually getting a beard post-chemo. I don't think it's the lack of estrogen. I think it's like the fuzz newborn babies sometimes have on their faces that wears off.

    It's like our hair follicles are starting over from scratch. "OK, how does this work? Hmmm...think I'll start with baby hair." <grin>

    And no, I'm not Stage IV. I've had two separate primary tumors, one medullary and one IDC, so I think I'm still a Stage II--based on tumor size and no lymph node involvement. I'll ask my onc.

    --CindyMN 

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  • ocinny414
    ocinny414 Member Posts: 123
    edited November 2007

    Hi everyone

    Thanks for all the warm wishes and cyber hugs.  I have amazing friends both here and at home.  Tuesday before surgery I was on the phone with most of them,  then yesterday they all called.

    I ended up being the main topic at Cancer Board, the oncologist group I am with get together and talk about their patients and the course of action they were taking.  They all decided that my ER+ was so low that I could be considered negative.  And because the Tomoxifen didn't slow the growth of the recurrence also indicated a negative status.  So being triple negative they decided I didn't need the hysterectomy.  Which is a good thing. 

    The doc did go ahead and remove the lump.  Told mom he isn't really sure what it was.  It was in the muscle tissue.   I feel like I've been lifting weights and have a sore chest muscle from them.  I go to my Onc on Monday and will find out the course of action from them.    I'm just upset that they didn't call the hospital 15 -20 minutes earlier.  They already had me preped for the surgery.  Now I have to grow hair back in another location. LOL TMI sorry.

    Anyway just wanted to let you all know.

    OH the surgeon rattled off my new classification but he said it so fast I only caught a part of it.  I know it started with  M2 Stage IV and triple negative.  I'll find out all the info Monday as well.  That is another thing the old onc never actually told me and I never even thought to ask.  Man do you learn so much so fast.

    OK time to go take another happy pill and have a nap. 

    Thanks again for the cyber hugs and warm wishes,

    CindyKS

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  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    CindyKS - Sounds like your new onc. docs are way on top of it.  Sweet.  Though a little last minute about the whole hyst. surgery deal - I mean, they'd already "prepped" you?  Now you have to deal with all that...ummm...prickly growback - yikes, talk about uncomfortable.  Minor I know, but still.....  But hey, I'm so glad, I never really understood why the hyst. in the first place (not that it's necessary that I understand)...but my point is, I have a good feeling about these new docs from your posts!!

    Cyberhugs galore and enjoy your nap and happy bills.

    how long did you take tamox. BTW? 

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  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    umm... I meant happy pills, with a p, not happy bills with a b....lol.

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  • ocinny414
    ocinny414 Member Posts: 123
    edited November 2007

    I only finished chemo on August 10 and started tomox around August 27.  So I didnt even take it for 2 entire months.  I wonder if the first chemo worked at all.  I had the side effects but the tumor came back so quick it really makes me wonder.  Now I am triple neg and stage IV.  That is the scariest part.

    I just wonder what I am in for now, chemo wise.  Right now the waiting to find out is the hardest part.

    Hugs back,

    CindyKS

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  • Lorain
    Lorain Member Posts: 68
    edited November 2007

    Cindy...you can do it!  Stage IV today is soooo much different than years ago.  As Elizabeth Edwards has said...it is now treated almost as a chronic disease.  They have made strides!  And you will too!  Glad they didn't do the hysterectomy, but too bad they found out so late!  It's a good thing they got the new lump.  We'll all be interested in hearing from you as soon as you know something else.  Again, you are in our prayers! 

    Hugs from Nebraska!  Lorain

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  • chumfry
    chumfry Member Posts: 642
    edited November 2007

    CindyKS, I'm triple negative, too. Did you have AC and Taxol the first time around? If so, they probably won't give you Adriamycin again because it's hard on the heart. I had AC and Taxol in 2005 (every two weeks), but they gave me a different drug regimen this year after my second primary and mastectomy.

    This time, I got Taxol and Carboplatin on a weekly basis. I would go three Fridays in a row and then have a rest week, for 12 total treatments. The side effects were MUCH easier than AC/Taxol, probably because each dose was smaller.

    A new study says these drugs on a weekly regimen are very good for triple negatives. I know at least one Stage IV person on it, so maybe that's what you'll get. My main side effect was fatigue. No nausea. No joint pain. I just slept a LOT. <grin>

    Are they talking radiation, too?

    --CindyMN

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  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited November 2007

    Hey ladies,

    Long time no talk to. Sorry. I've been renovating my mom's house. Every.....single......night after work. She gets home tonight.

    We are almost done. All we have left is:  Install one more kitchen cabinet, sand and stain all the kitchen cabinets, install the stove that hasn't been purchased yet, put in the new bathtub and tile the bathroom shower walls...after we fix the 2x4's that are rotted in there and install insulation....., hang and paint the molding around the rough edges where we put in new drywall, (but that's only around three doors, one window and one part of the ceiling), put in a new wood floor, that "snaps" together, one little piece at a time, in every single room in the house.....(snaps together, yea right. What is that sarcasm??? We worked for 5 hours yesterday and only got one strip done!) replace all the electrical thingys and lets see...what else   oh yea...move all her stuff back in!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!    Crying Into Tissue 

    I'm so freaking tired. I have to pick my mom up at the airport tonight at midnight. Good grief.

    I really don't have time to catch up with everybody but I did want to say I was so happy with you guys having facial hair too. That didn't sound right. But seriously....I have some serious facial hair going on. Thank God it's not dark hair! I'm scared to shave it though...I don't want a 5:00 shadow either!!!

    CindyKS, it's nice to see your positive posts. You are either very brave or you are faking it real good. Funny...not really funny...actually kinda scary, I had my hysterectomy, per my surgeon and onc's advice, because I was triple negative.

    I'm real sorry to hear about the dx they gave you. I've become friends with a girl named Kathy on here that is Stage IV and Trip Neg. We talk on the phone. She's real nice. If you want, I can hook you guys up because she has been trying many different chemo combo's for 2 1/2 years so I'm sure she can offer you advice. And, don't forget, there is also a whole thread designated to Trip Negs. I've learned a lot there. Please keep us posted.

    Well girls, I'm off to Lowe's to play the cancer card and try to get a deal on a scratch n dent stove.

    I hope everyone has a great weekend!

    Hugs, Traci

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  • ocinny414
    ocinny414 Member Posts: 123
    edited November 2007

    Sometimes its hard to stay positive but I'm doing my best.  I dont have time to be negative.  I've been in pain today.  I finally called my doctor and wow I actually got to talk to her.  She thinks the pain could be from the liver lesion.  I will have to go pick up a script for pain meds tomorrow morning,  they cannot fax it so I have to drive to get it.  Just taking what I have tonight.  Percocet and Naproxin.  So far it's helping.  I feel like I have a really bad pulled muscle on my right side under my rib.  

    I've had one of those discouraging days.  I didnt sleep very well last night because of the pain.  The surgery site doesnt bother me its like an annoying pulled muscle.  I take a percocet and sleep for a couple of hours and then take another one.  This last time I took a percocet and 2 naproxin.  The pain seems to be in control now.  Guess it might be another long night of taking pain meds.  I hate taking meds and hold off as long as I possibly can.  But I've decided that I'm not gonna do that anymore.

    My friend from high school is here now so I'll post more later.

    Hugs, 

    CindyKs

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    CindyKS, I think it's a good idea not to let the pain get too bad.  The nurses in the hospital made that very clear to me.  I think it's kinda like the nausea with chemo - don't wait to treat it - get it as soon as it starts.  Glad to hear that you're coping well.  You sound like such a strong woman and a positive person.  How is your mom handling things now?  Have a wonderful time with your high school friend.

    Traci - girl, you are NUTS.  I can hear in your post just how tired and exasperated you are!  Don't you hate when a job gets worse before it gets better and it's usually at that point where you just don't want to do it anymore but it is impossible to leave unfinished?  Your mom is a very lucky lady to have you all working so hard on her home - she did a good job raising you guys!  Please, take it easy though - you just had MAJOR SURGERY! 

    Count me in on the peach fuzz too - I don't even care...I'm just so happy to have hair anywhere after that bald summer!  Well, okay, not really but it's not too noticable so I think I'll just leave it and see what happens - maybe it'll get long enough to braid!

    My rads onc still hasn't called me back.  I started calling him on Monday morning and called 4 days out of 5 and left a message each time and he never even had the courtesy or respect to return my call.  When I do talk with him, I am going to tell him that that is unacceptable!  What krap!  I know how busy he is and I know that my crisis isn't his crisis but that's bullshit!  (Sorry, I'm a littel peeved with him - can you tell?)  Obviously the chances of getting my rads appts. moved up are slim to none now.  Oh well - it's out of my hands, I guess.  So much for going skiing at new year's.  Sigh.

    I hope everyone is doing well...LeeAnne, Liz, Amanda, Virginia, Lorain, CindyMN and anyone else whom I didn't mention specifically...have a wonderful weekend. 

    Mandy

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  • VirginiaNJ
    VirginiaNJ Member Posts: 634
    edited November 2007

    Man- you ladies put me to SHAME!  I had a MUGA scan last Saturday and the guy poked me THREE times making my veins "blow" up.  This subsequently affected my Herceptin infusion...they ususally give me the infusion in the back of the hand...  Well, the gal tried the base of my thumb (????) for some reason and hit a NERVE.  I thought I was going to jump out of my seat.  Then she did the inside of my wrist and gave me a 4 inch black and blue...  I CRIED.  I thought my sister was going to have a heart attack...  She was in full momma bear mode...thought she was going to maul the nurse.  I was not happy...but how can I complain whe we have two ROCK STARS on our hands???

    CindyKS and Traci- I'm speechless.   You guys are amazing!!  Traci- I cannot get over your energy!!  Don't over do it!!   Cindy- sounds like your new docs are awesome and that they are really looking out for you.  I like that they presented your case...  I had that as well.  Even though my cancer was small, it was a "weird" one and my onc in NY presented to the entire practice (maybe 20 oncs).  That kind of made me feel better in deciding the course of action...

    Mandy- you are a crack up...you make me smile...  Bummah about your rad onc.  I have to say, I was very lucky and very happy with mine.  I was able to start 2 days after I met mine...and he was always available to me if I needed him...  I can totally understand your frustration of just wanting to "get the ball rolling."  

    Did anyone watch Robin Roberts have her head shaved on GMA??  OMG, I was more emotional watching HER get her head shaved than I was getting my OWN head shaved!  Interesting...  I felt a little bad for her b/c she didn't have anyone holding her hand!  :(  I at least had my sister doing it and my dad and bro-in-law there and my four nieces...  Guess that's why I didn't cry.

    Lorain- are you the one with the over 1 hour ride to rads??  I've been thinking of you and hoping that you are coping with that...  What a lonnnnng ride.  I can't imagine...

    Oh, I bought myself a present at the jeweler last week...  I went to get some new batteries for watches and I looked in the cabinet and they had a pink ribbon pendant...pink mother of pearl set in rose gold.  I just had to have it...  Embarassed  I know it's the season to give to others, but I couldn't resist.

    By gals....Amanda, CindyMN, Liz, LeeAnne...everyone....

    Have a great weekend.

    Virginia 

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  • ocinny414
    ocinny414 Member Posts: 123
    edited November 2007

    Hi all,

    Ok it wasn't percocet I was taking to begin with it was lortab or generic anyway. Mix one of those with 2 naproxin and you go into lala land.  I slept very well last night when I finally got to sleep.  I slept on the recliner side of my couch.   the cat loved it cause he got to stretch out between my knees.  I dont think I moved all night.

    My doc called me this morning to let me know she had left the prescription at the front desk of the hospital.  I didn't answer the phone because it was a strange number and area code.  She left a message.  I was amazed that as busy as she is she called me.  I'm now taking hydormorphon 2mg tab which is generic for Dilaudid,  it seems to be working.  I've been busy all day.  A older couple we know had a thanksgiving dinner for their camping group and mom and I stopped by there to help them finish up the cooking and serving.  I'm actually better standing than sitting.  Hurts the most to try and take a deep breath.   Dont worry I didnt overdo it.

    Mom seems to be dealing with all this a little better, just those first few days were hard while we came to terms.  We have a long hard road ahead of us and I hope she finds an outlet and someone she can talk to.  I'm gonna talk to the doc about a support group for her.  OOPS better put that on my list.

    Talk later,

    CindyKS

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  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    Crum, CindyKS, sorry you're in pain! Dilaudid is for breakthrough pain - if it gets to the point where that's not doing the trick, mscontin or some other longlasting background painkiller might help.  I needed it for the taxol.  Of course, getting off of morphine is another problem entirely.  But when you need pain mgmt help, you need it.  No sense walking around in pain.

    So, will chemo get at what's causing that pain?  Or targeted radiation? What's the plan to get that fixed?  (Or am I being completely naive?)   

    Virginia -  For my last (and only) bone scan the tech couldn't get the IV in so he tried to jam it into the inside of my wrist near the base of my thumb, which sounds very similar to what happened to you if I understood correctly?  On the pain scale, it was a 9 on a scale of 10.  Reduced me to instant, gasping tears that didn't stop for about 1/2 hr.  The guy looked at me like he thought I was over-reacting, but it HURT SO MUCH.  That spot is damn sensitive.  I was completely embarassed because it seemed like such a minor thing, but from now on I don't let anyone but a very experienced phleb. tech touch me.  I'm willing to wait 45 minutes for them to show up too.  So, anyways, you're not alone.  

    Mandy - That's just rude for the onc's office not to call you back.  At the very least his nurse could call, right? Aargh.

    Lorain, CindyMN, Traci, everyone - have a great weekend!

    Oh, and BTW, with rads fatigue and tamox. the nurse kept telling me to "keep moving"- and I'd look at her and think "yeah, right lady - do you even know what it feels like to be me right now?!" but I wouldn't say it because, well, I was tired.  And then last week she said it again and added the crucial piece of info: "because it helps prevent blood clots."  Well gee, why didn't she say that in the first place?!  Yikes.  So now I am trying to make sure I move at least a little....

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  • ocinny414
    ocinny414 Member Posts: 123
    edited November 2007

    I have an appointment with my oncologist on Monday and hopefully will find out all the pertinent information.  When I spoke with her on the phone Friday evening she mentioned a pill form of chemo but not sure what it was.  She is Indian and has an accent that is hard to understand in person and almost impossible over the phone.  LOL  We just have to tell her to slow down when she is speaking.  The faster she talks to more trouble we have.  Its not an accent I'm used to hearing.  But I guess I will get used to it.

     She also told me to not make any big plans for the beginning of next week.  Mon, Tues, and Wed because of chemo and possible effects from it.  I'm in the waiting and seeing game.

    Actually what she prescribed doesnt help as much as the lortab and naproxin.  I'm thinking about not take the hydromorphon and going back to the lortab.  Guess I will call the office tomorrow and see what they say.

    Well its late WOW really late,

    Have a great Sunday,

    CindyKS

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  • ocinny414
    ocinny414 Member Posts: 123
    edited November 2007

    Wow everyone must be busy today.  No updates.

    My onc just called me and instead of an 11am appt tomorrow at her office I have to be at the hospital by around 8am.  She wants more tests and then will start the chemo at the hospital in case I need fluids.  She will start me with something that is a relative of the adriamycin.  That kinda scares me since I had the allergic reaction but i'm confidant she knows what she is doing.  I'll let everyone know exactly how it turns out tomorrow evening.

    CindyKS

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  • chumfry
    chumfry Member Posts: 642
    edited November 2007

    CindyKS, I've been thinking of you and will hold you especially close in my thoughts tomorrow at 8 a.m.

    --CindyMN

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  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    Cindy KS - Your new doc seems on it; I'm impressed that she's calling you.  is the pain from your surgery getting better?  Let us know how it goes tomorrow, I'm rooting for you big time!

    - Amanda 

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  • lizzzy
    lizzzy Member Posts: 285
    edited November 2007

    Good luck CindyKS.  Hope all goes well!

    Virginia, I saw the Robin shaving her head piece on gma.  Seeing her picture bald brought tears to my eyes because she looked so beautiful.  I left a message on the gma website that I was glad she did the piece.  It hurt me to read about what they did to you with the herceptin infusion.  Geez i'm so sorry.

    How's everyone else doing?  I'm finally starting to feel better.  I hope I can recover quickly from this taxotere trauma.  I finally went for a walk last night for the first time in weeks.  So I'm feeling more optimistic.  Tomorrow I see onc to talk about the tamoxifen.  I'm hoping my wbc's have recovered.  I'm dying for sushi.  I'm so fat now.  Maybe I can go on an all sushi diet. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    Evening everyone,

    My rads onc FINALLY called me first thing this morning.  Apparently he was out of town for a large part of last week...YOU'D THINK HIS NURSE MIGHT HAVE MENTIONED THAT TO ME! I think he was telling me the truth because he sounded a little pissed at her!  Anyways, the short version of a long story is that he apologized and really tried but I cannot change anything, so I have a call in to my surgeon to get my gall bladder surgery rescheduled for hopefully later in January.  Whatever.

    Glad to hear you're feeling better Liz.  Sushi is my VERY favourite food and I am so glad there is no fat in it (I eat salmon sashimi).  You'll be full of energy again in no time!

    CindyKS - hope things went well for you this morning.

    Take care everyone!

    Mandy

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  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    Hey Liz - Hope your walk was nice!

    Mandy - glad your onc called back, sorry it wasn't with a new schedule.

    And all - I'm a rads grad!!  Finished today, they even gave me a diploma/proclamation :):)

    And there's this great product called second skin, which covered and soothed my blistered, raw skin (excruciating); the nurse didn't even bat an eye when I said roxanol was my drug of choice - she basically said good for you, that'll work.  And here I was feeling guilty about it, since I had it left over fr taxol and the rads onc didn't prescribe it.  But heck, it works, and burns effing hurt.  

    This marks the near-end of 9 months of treatment - March 13 - Nov 19.  A long haul. Just a teensy bit tired.  ;)

    And I have company; here's the hard part about being single and this part of treatment.  He's a good guy, and works in the medical field besides, so he won't mind in the least if I don't wear my prosthesis (it hits really sensitive skin) but I mind.  He just went out for a bit to give me some down time (and I yanked that prosethesis off as soon as he went out the door)...sigh....

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  • ocinny414
    ocinny414 Member Posts: 123
    edited November 2007

    What a long day yesterday was,

    I didn't realize they were gonna admit me to the hospital and then they said I might be there overnight.  AHHHH.

    We got to the hospital at around 730 and they didn't even have the orders from my doc yet.  LOL I beat her there.

    She had ordered an ultrasound of my heart and also another CT scan.  I new about the CT scan so I didn't eat.  WELL,  I didn't eat all day cause I didn't get the CT till around 2.  I could have clear liquids and stuff.  They brought me  orange jello and green jello, coffee, an orange Popsicle and something else.  I ate half the Popsicle and drank some coffee.  ugh don't do that  coffee and orange Popsicles don't work.   Then after an hour or so I was bored so thought i'd try the jello.  They were in plastic cups.  I decided to make rude noises with the jello,  you know blow into the side of the cup so the air goes up around the jello.  Ya the nurse decided she was gonna teach her grandkids that trick over thanksgiving.

    Anyway sorr for the rambles up there.

    So I'm now getting 3 drugs every 3 weeks.  The reason for doing it in the hospital this first time is one of them is a cousin to the adriamycin I had the allergic reaction to. 

    Epirubicin,  its red just like adriamycin.  I did fine.  No reaction.  They gave it to me slower than you normally get it and that could have help.  They also gave me lots of benadryl before hand.

    Fluorouracil (5/FU) no problems with it.

    Cytoxin- I had this one before and its the one the says causes nail discoloration, and I think made my nails separate and fall off.

    I have a feeling I will be completely bald this time.  All three of these cause hair loss.  The only problem with that is winters are cold in Kansas and I really don't like wearing hats, or coats for that matter.  Guess lots of things have to change.

    I took my nausea meds last night.  She prescribed 2 but one is for anxiety as well.  I'm talking compazine 10mg and Ativan 0.5mg.  I was a little nauseous last night but so far this morning I'm ok.  I've been up for a couple of hours and drank some water.  I haven't eaten yet and really need to get some food in me.

    I'm on a new diet.  I have to eat foods that are low in phosphorus which means I cannot eat- Dairy, Chocolate drinks, dark colas, cheese, custard, milk, ice cream,  with protein its mainly stuff I don't like anyway you know- beef liver, chicken liver, fish roe, sardines, organ meats,   No Dried beans and peas,  and then no bran cereals, caramels, seeds, nuts (I love almonds) wheat germ and whole grain products.  I'm thinking what the heck am I gonna eat cause I also am not suppose to eat fresh fruit and veggies cause the possibility of bacteria on them that could make me sick.

    Gonna be a long haul this treatment cycle,  but at least I feel I'm getting above the standard quality of care for cancer patients. 

    OK that was alot to type and I need a short nap before I go get my nuelasta shot and blood work.  Oh I only have to drive 40 minutes for that instead of the 1 1/2 hours.  There is a clinic affiliated with the one I go to in Wamego, which is where I just moved from so it will give me a chance to go see some friends as well.

    OK I'm rambling.  Update more later,

    CindyKS

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  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    Wow CindyKS, what a day. 

    Why no phosphorous?  Sounds like cooked veggies (yams?, potatoes)  might be gentle on the tummy and yummy.  But I have no idea what the phosphorous content of those is. My understanding of the fresh fruit and vegies bacteria issues was not to eat them raw,but cooked was good.  Plus with chemo raw is hard on the tummy anyways.  Baked apples maybe?  Applesauce.  Baked squash?

    No whole grains...bummer....does rice count?  I liked rice an awful lot with chemo last time. 

    For the non dairy milk, I like rice milk, a lot.  Almond milk is yummy but more like dessert because of the sugar content - it's a lot like drinking pudding. :)  I of course, with ER+ cancer can't have soy, but maybe you can.  If so, there's lots of yummy soy milk, soy yogurt, soy icecream out there.  Tofutti cuties and all that.

    For a treat, there's a non-dairy icecream made with coconut milk agave sweetner, not sugar, and it's called Coconut Bliss.  Spendy, but it rocks and does the trick.  High fat though, but if you're looking for calories...

    And I like whey protein, but that's dairy based....there must be another alternative.  

    In any case, if you want any help researching non phosphorous foods, I'm curious to find out what they are.  Let me know.

    Anything we can do, ask.  

    Big hugs, hope those allergies stay away!

    3 drugs for 3 weeks for how many rounds?

    Hope the CAT scan results turn out well!!  

    Fingers crossed,

    Amanda 

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  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited November 2007

    Hey ladies,

    I just wanted to check in real quick. Sorry I haven't been on. I've been at my mom's literally every single night. I'm so tired of it. I do not have fingerprints anymore. Today will be the first day in 8 days that I haven't gone over there.

    I'm way, way, way behind in my "real" work because of it so I can't write much just wanted to see how everybody was doing.

    CindyKS as usual, you impress me with your good attitude. I was going to suggest Ativan for sleep. That stuff knocks me out for 5 to 6 hours solid. I hope it does for you too. You've been in my thoughts too.

    All of you guys have.

    I'll catch up more later.

    Love, Traci

    ps I've been kinda blah lately. I been thinking about not putting up my Christmas tree which is something I've done the weekend after Thanksgiving for as long as I can remember.....I sure hope I snap out of it.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    Hi everyone,

    CindyKS - I did those same 3 drugs (FEC ) every 3 weeks too.  I have no idea what kind of dosages I had versus what you'll be receiving but it wasn't too, too terrible for me.  I feel 95% back to normal (still some lingering dry mouth and bitter taste from time to time - but nothing that interferes with my life in any way)  I hope it's not too hard on you but kicks the krap out of those cancer cells!

    Amanda - are you a vegetarian?  If so, I am too!  I've been one for 11 years.  Sucks to be without soy (although I do still enjoy a veggie burger from time to time)

    Traci - I'll bet you're just tired and worn out right now (gee, I wonder why?Smile)  I wish you would put up your tree - it'll probably make you feel good...or you can always try another approach - fake it 'til you make it!  Take care of yourself and I hope you get feeling less "blah" real soon.

    Today my gall bladder is not a happy organ.  It started last night - not sure what I ate to piss it off.  It's manageable - I'm at work today and hopefully playing volleyball tonight but I'll be happy to get that removed!  I still don't have  another surgery date rescheduled.

    Hope everyone is well - have a great day!

    Mandy

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  • VirginiaNJ
    VirginiaNJ Member Posts: 634
    edited November 2007

    Happy Turkey Eve gals (except Mandy who already had her Turkey day LAST month!!).

    CindyKS- thinking of you often and hope you are hanging in there.  Again, your attitude is fantastic...

    Yesterday I got a "Values in Action" award at work from my boss.  He said such beautiful things about how much he admired my strength and attitude through my whole illness...  I've worked the whole time and have taken minimal days off of work.  I think I might even get some moolah too!!  We had a luncheon at work and my lab tech made me a chocolate ooey-gooey lava cake...  It was really nice...

    Today the boss shoo-ed us at 2:30 and as i got home, the landscaper was just pulling away from my house.  I am IN LOVE with the landscaper (and I never set eyes on him...just happy that I don't have to RAKE leaves!!)

    I've also attached a new pic of me b/c today is my "last day of chemo anniversary."  Just as a reminder, my last day of chemo was 6/21, so now this pic is from just now...11/21.  So, there you have the hair growth.  Kinda hard to see in the teeny-tiny pic.

    Ok gals.......hope you all have a wonderful day tomorrow and that you have the opportunity to spend it with people you love.  I am going to my sister's house....

    Friday my Dad has to go into the hospital b/c he has congestive heart failure and is retaining too much fluid...  So, hopefully he will get that taken care of.  At least he could go in after the holiday...

    Virginia 

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  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    Happy Thanksgiving everyone!

    So grateful for all of you!!!xoxoxo

    Liz, BTW - congrats on being done with chemo!!  Sorry that didn't register with me before.

    Traci - you will feel better after a break and a chance to hang out in your space, doing your own stuff - I can't believe how hard you've worked on your mom's stuff so soon after your own hysterectomy, wow, kudos to you.   Usually when I begin to not care about things that normally excite me (such as putting up a tree), it's when I'm bone tired.  Give me a few days of puttering and then I'm ok.

    But hey, what are your all's holiday strategies?  I know from reading some other threads that some women after cancer just don't feel like doing the whole holiday thing, pressure or low-pressure.  I'm thinking the low pressure route, with minimal work.  It's just the guilt involved...for instance, with not doing xmas cards - what are your plans??

    Hugs to all,

    PS Mandy - I'm not vegetarian, just trying to eat healthy (healthily?) - except when I'm queasy, then it goes out the window with my pepsi cravings :0   But I didn't realize how much soy was in my life until I was told not to eat it...One of my favorite dishes was superfresh raw tofu with ginger grated on it and Bragg's liquid aminos.  Loved that dish.  No more :(

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