Need Help! Going thru AC

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Hello out there. Can someone please help me with the metal taste I'm having in my mouth.  I have absolutely no appetite at all. I'm making myself eat (when I can).  I don't want water. My gums are tingling. My vision is off (a little). And I have no energy at all. I have had my 3rd chemo treatment of AC and have one more before I move on. Any suggestions would be most appreciated. Thanks, Sue

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    Oh Sue, I know it well. I too had a really hard time drinking water, despite the fact that they told me it was essential to flush out the Cytoxan in order to prevent bladder cancer down the line (EEEK!)! I finally found that flavored seltzer water didn't have that metallic, sort of sewage-y taste and stocked up on that, carrying everywhere. I did have an appetite, but only wanted weird food like tomatoes, olives and Mexican. One thing that is often suggested here also is that you use plastic utensils instead of metal ones in order to lessen that metallic sense.

    Hang in there, girl....you're almost done!

    ~Marin

  • SisterSuewith2
    SisterSuewith2 Member Posts: 8
    edited November 2007

    Thanks Marin for your response.  I didn't know about the flushing out of Cytoxan in order to prevent bladder cancer.  I've explained to my nurse that I just can't drink alot and she said that's ok just drink what you can. They didn't specify a certain amount a day.  Any suggestions for the nausea? Thanks again, Sue

  • OneBadBoob
    OneBadBoob Member Posts: 1,386
    edited November 2007

    SisterSue, were you prescribed Zofran?  It really helps with the nausea.

    Also, I found drinking peppermint or ginger tea also helps, and also helps to get rid of the metal taste.

    I also found that hard ginger candies help.

  • SisterSuewith2
    SisterSuewith2 Member Posts: 8
    edited November 2007

    Hello Jane, No I was prescribed the Emend. Thanks for the tips on peppermint and ginger tea. This mental taste is awful.  Anything I drink or eat just doesn't taste good at all. I just got some freezer pops from my sister and they seem to helping.  Thanks again for responding. I'm getting some peppermint and ginger tea/candies tomorrow morning. Sue

  • GoodMommy
    GoodMommy Member Posts: 294
    edited November 2007

    Sue,

    I had TAC and had the terrible taste as well.  You need to drink plenty of fluid and I know everything tastes bad.  I went to a Relay for Life Walk when I was doing treatment and they gave a box lunch to the Cancer Survivors.  They gave us Aquafina Water and believe it or not, it was the only water that tasted half way decent.  Just because I knew I had to drink, I would take 3 or 4 swallows every ten minutes or so.  Also, as far as the nausea, my Onc gave me Emend; but she also prescribed other meds including Zofran if I felt I needed it.  I know it's hard to believe, but stay strong before you know it, this will be over.

    God bless,

    Chris

  • Becky59286
    Becky59286 Member Posts: 4
    edited November 2007

    It's been 15 months since my last chemo. I've yet to gain my weight back and my mouth still gets sore at times. I lived mainly off of Cokes during my chemo.As you can guess that didn't work out well.  Since I have a recurrance I'm now taking Faslodex once a month. This too has it's issues.

    Hang in there girl it will be over soon.

  • pinkisit0415
    pinkisit0415 Member Posts: 40
    edited November 2007

    sister -- i know how you feel !!! mine only last the first 7 days but during that time --i find that citrus or lemon flavors block the metal and on tx day --i drink vitamin waters w/ citrus. also found that lipton (boxed extra noodle soup ) really hits the spot!!!!spicey and salty / for me --but in small portions. also my nausea med is zyrtek

    2 days after tx and prochlorehizamine(generic name) rest of time.

    I am taxing ac / w/ taxotere

    I HAVE NOT BEEN SICK -- NOT 1 TIME-- AND I am on tx #5.

    you hang in ther girl--- you r almost done !!!!

    Take Care,

    Pink 

    everyone is different though. you hang i

  • SisterSuewith2
    SisterSuewith2 Member Posts: 8
    edited November 2007

    THANK YOU ALL SOOOOO MUCH FOR THE HELPFUL TIPS AND SUGGESTIONS! Today I'm going to start trying everything. I am so glad that I found this sight. I don't know what I would do without you ALL.  God Bless and good luck to All who have responded it has really helped me alot.  Love, Sue

  • conniehar
    conniehar Member Posts: 954
    edited November 2007

    Another vote for lemon stuff.  I lived on lemon ices and lemonade.  I also second the salty stuff - yes, Doritos/fritos tasted somewhat normal.  Water was the worst even though they told you to drink it a lot. 

    Best of luck to you!  It will soon be over and believe it or not you do forget how bad it was.

  • ravdeb
    ravdeb Member Posts: 3,116
    edited November 2007

    Just in case these great ideas don't help..I put cranberry juice in my water..tinted the water so I got most water with a touch of flavor and I drank it right out of the bottle. It worked the best for me..or tea with mint. All I could think about was getting that stuff OUT OF ME! I still have trouble drinking water today..(over 2 years since diagnosis) and I was a big water drinker before chemo.

  • TerryNY
    TerryNY Member Posts: 603
    edited November 2007

    Drinking through a straw helped me a lot with getting the water down.  Chewing on ice chips was good too. 

    If you're experiencing nausea, please tell your doctor about it as they have great drugs to help eliminate most if not all nausea.  I had Aloxi, Emend and Zofran.  

    You're almost to the end!! 

  • Terry49
    Terry49 Member Posts: 10
    edited December 2007

    I drank sleepy time tea, it's chamomile.  I also drank water during chemo in the 8 oz bottles.  I would put 8 of them on the table next to the IV and just work my way thru them.  Something about them being so small made it feel 'doable'.

    I liked salty too.  Lemon didn't work for me however.  I went with strawberry flavor.

    I agree everything tasted like greasy cardboard, even my favorite crackers, RITZ.  What also helped me was brushing with biotene toothpaste and using biotene mouth rinse.

    Wow, typing with chemo brain is a new experience, a lot of backspacing.

    Make sure your ice cubes are fresh.  When they disolve, they can add a metalic taste too.  I recently 'discovered' lemon-lime sypho water which tastes better slightly watered down.  Takes some of the burn out of the fizz.

    If you are queasy, get some better meds!  I only got queasy when I looked at food that I thought I would be able to eat.  And that when away when I put the food away!

  • sahalie
    sahalie Member Posts: 2,147
    edited December 2007

    The only thing I could drink was grape juice.  I used to drink the vitamin water drinks but can't stand them anymore because I tried to drink them during A/C.

    I tried to drink water because everyone here told me it would flush out the A/C faster.  I really tried but it made me sick so I did as ravdeb did and added cranberry juice to it.  The cranberry juice is also great for our kidneys.

  • FRANCESCA
    FRANCESCA Member Posts: 25
    edited December 2007

    Alicesuzy, that is so weird that you drank warm ginger ale. So did I! It helped sooooooooooooooooooo much. Wow, my doctors had never heard of it.

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