Breast cancer spread to lymph node in neck

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sockmonkey
sockmonkey Member Posts: 10

3rd time in 9 years dealing with breast cancer that has spread. The first time to my other breast and the second time to my chest wall. Now I'm on femara (after having my ovaries & fallopian tubes removed to lower estrogen) to shrink tumor in the lymph note in my neck. Has anyone else experienced breast cancer that has spread to their neck??? My oncologist wants me to have a Pet scan next month...but I'm very anxious.

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  • sallyk
    sallyk Member Posts: 49
    edited October 2007

    Sorry to hear you have to face this again.I just had u.s. yesterday on  my neck. I have a lump and need to see what it is. I can't find much info on this. Hope things work out for you.

    Sallyk

  • katie11
    katie11 Member Posts: 2,514
    edited October 2007

    Dear Sockmonkey and Sallyk,

    Have you had a biopsy carried out on the lymph nodes at the base of your neck?  My onc was convinced that the cancer had spread there, as the lymph nodes were unusually enlarged, but a very simple needle biopsy showed that the lump was benign.  I've since noticed that the nodes in my neck are up and down a lot and that this is in fact quite common.

    Hugs to you both,

    Katie xxx

  • sockmonkey
    sockmonkey Member Posts: 10
    edited October 2007

    Dear Sallyk & Katie 11,

    Thanks for the reply. I'm a newbie @ this site. I've notived that the nodes in my neck are up and down a lot, but I definitely have cancer in this site because of the biopsy results. I haven't been able to find out too much info on this either. My onco said I just have to wait until I have my PET scan to see what the next step is going to be. I hate the waiting part...Are either or you on Femara or other hormonal treatments? 

  • sallyk
    sallyk Member Posts: 49
    edited October 2007

    Hi Sockmoney and Katie,

    I have not had a biopsy. I has a US last week and waiting for the results dr said it is 2.2cm. It is where the port went in the vein in my neck. Dr said it is sitting on a chain of nodes and my thyroid. My blood work came back fine just low white cell count. White cell count has been low since chemo.

    I'm taking arimidex.

  • zarowny9
    zarowny9 Member Posts: 328
    edited October 2007

    Hi I have had a recur in supraclavicular nodes[above the collar bone] I have been dealing with this since Jan and have been staged at a 4.I was told I would need tx's indefinetly.Iam triple neg so this means chemo for me.My ca is stable as of last scan in Sept.I was hoping it would shrink, shrink right the frick away!! Iam doing avastin and xeloda.There really is not alot of info on this,I have been looking since Jan....I wish you all the best of luck and if you find anything out please let me know

  • AliceJean
    AliceJean Member Posts: 625
    edited October 2007

    Also dx stage 4 in Jan. In addition to bone mets,I had enlarged nodes in neck and supraclavicular area; Xeloda and Avastin did the trick for me. I chose to go agressive even though one onc said go back on Tamoxifen. I did 2 and half years of it before switching to Aromasin, and obviously the cells survived....Good luck to you!!!!

  • katie11
    katie11 Member Posts: 2,514
    edited October 2007

    Hi there,

    As the cancer had already spread to the bones anyway (via blood rather than through the lymphatic system) I did 6 months of xeloda and taxotere as part of an agressive first line of treatment. This was successful in getting rid of some of my mets all together and stabilising the rest.  Since then I've been doing tamoxifen and am currently still stable. 

    Good luck to you both and let us know how you're getting on.

    Katie xx

  • EyesOTex
    EyesOTex Member Posts: 194
    edited October 2007

    Hi, ladies,

    I have been lurking around on this board because I'm feeling an enlarged node in my neck (throat area on the bc side) and I don't know whether to be concerned.  I don't feel one in the supraclavicular area, so would that make any sense?  I finished treatment (dd ACT X 6) a year ago yesterday and had bilateral mast.  It sounds like maybe the nodes just go up and down sometimes....?

    dana

  • MarshaB
    MarshaB Member Posts: 14
    edited November 2007

    Hi I have been dealing with this for about a year. I have nodes on my neck about 6 of them, one on the super collarbone. Currently waiting ask the Trykerb and Xelodsa was doing it but stopped waiting so we will see what next.

    Marsha B

    13 years and still ticking!

  • php01
    php01 Member Posts: 17
    edited November 2007

    I had bc spread to the lymph nodes in my neck, my lungs and my clavicle and a rib bone--after last pet scan I have affected nodes clear to my diaphram and more activity in lungs I am now on Navalbene and hoping that this will stop the activity and put the lesions into recession. 

    This is my 3rd round of chemo, my second was gemzar and taxophere, but during my 4th bout of that we found the new activity so we just quit it.

    Then I went to Mayo and got a second opinion, and they sent me back to my oncologist saying he is on the right track and we should start again--so we did.  I take the Navalbene every week, and am getting some side effects, but am getting through it.    Get the biopsy and a scan and find out where you are. 

  • Watson
    Watson Member Posts: 1,490
    edited November 2007

    Eyes O Tex,

    I had enlarged bump on side of neck.  Went to onc and she felt around and said, Yes that is a lymph node.  It's supposed to feel like that.  That was over a year ago.  I just felt around and there is nothing where it was.  So Yes, they do fluctuate.  I would still get it checked out.

    Yee Haw from another Texan,

    Watson

  • EyesOTex
    EyesOTex Member Posts: 194
    edited November 2007

    Thanks, watson,

    You pretty much confirmed what I'm thinking...just a swollen node from whatever's in the air; I'll just keep an eye on it and if it's still there when I see the oncologist in January he can check it out.

    Yee Haw back atcha!

    dana

  • MarshaB
    MarshaB Member Posts: 14
    edited November 2007

    Ladies do not wait and watch, and if they are there and not going down after a month have a biospy done. ASAP! I waited and onc said yea no big deal and know I have six lymph nodes that have cancer mets in them!!!! I was NED for almost two years. Do not always trust your onc go with your gut, it is your body .

  • ekerlin
    ekerlin Member Posts: 3
    edited November 2007

    I have metastatic breast cancer that spread to my lymphatic system, concentrated mostly in my chest, thorax and neck region.  My oncologist has tried various chemo regimes and I am currently on Cycloblastin tablets (Cyclophosphamide).  I had previously been on Xeloda tablets with no effect.  I had a PICC line in for over 6 months, but when they tried to change it last week, they couldn't find a 'good' vein - I've had so much chemo in the past 2 years that all the veins are 'shot'.  Hence I am back on tablets instead of IV.  I've also got a whole lot of surface tumours on the skin covering my entire left breast, neck and shoulders which I am about to have treated with radiotherapy.  So there was no way the onc would authorise a port line to the chest (which would be an alternative to a PICC line).  So I'm feeling a bit cornered in at present.  I've been on treatment of one sort or another since July 2005 and am getting thoroughly sick of it!  Sorry - starting to feel sorry for myself.  Time to think of others.  Best of luck sockmonkey, not sure if my experience is similar to yours, or of any help to you - hope all goes well for you.

    Eileen

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008





    Eileen,



    FlaLady here has been battling a similar situation to yours for many years, and has excellent practical advise, including some gleaned from her alternative medicine expert. She's quite a gal... and has my great admiration.



    Perhaps searching for her threads in her search engine, as well as maybe a pm would help you communicate with a sister on the same path.



    You are so new here to bc.org. I wanted to take a moment to say a personal welcome as well as how sorry I am for your troubles. This sites holds many caring experienced women and men on breast cancer, and we are all challenged in a similar way.



    The "Home" page on bc.org is the Expert site, and it has much up to date information for all the stages of breast cancer.



    Please do keep posting. We hope to help you with your troubles as well as ease your daily pain with some friendship...



    All the best,

    Tender

  • miss-di
    miss-di Member Posts: 161
    edited November 2007

    My surgeon found lump clavicle area during another procedure.  It was scalene node.  I went from NED for 5yrs. to StageIV in one day.  Cancer is in chest, abdomen and liver.

    Herceptin every 3 weeks and Arimidex daily.

    My biopsy was done two days after finding lump.  I also do not believe in waiting. 

    I truly hope yours all negative.  Best to all.

    Diane

  • Nothappy
    Nothappy Member Posts: 11
    edited March 2017

    Has this gone away, or did it transpire?

  • yangtan
    yangtan Member Posts: 75
    edited March 2017

    I have been fighting this for the last 2.5 years, my only site of met. I was given chemo, navelbine and 5 flu that put me in NED for a year. Quality of life was not great. Then it came back I was on haleven put me in NED only six months. Tried taxol, didn't work. Then I was on A/A worked nicely with very decent quality of life for a year. Unfortunately it came back just this week. Meeting my oncologist on Monday looking for new solution. Well, he assured me that I should be around for quite a long time. But I am anxious of my new treatment and quality of life

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