Triple Neg Survivor

Thank you Lucy...I'm with Cheryl - you give us hope!!

I'm a triple neg survivor and proud of it! I'm over 2 years out! YAY!

It's not all THAT gloomy. There are more out there. We are just a minority.

I had AC followed by Taxol.

I'm new to chat rooms and keep getting lost. thank you Lucycat for your positive replys. I have "1 more treatment" of T.

maybe we'll all die like my Debbie one my closest childhood and adult friend, maybe we won't. it's where we are.....

just want to say I agree with Godsgirl and we all need to keep as much of a positive attitude as possible....

I was dx Triple Neg in '96, micromets to nodes, Stage IIb.  Did A/C & rads.

Back then they told me I would be very lucky to make the 10 year mark. 

Here I am, halfway through Year 12, healthy, happy and livin' life.

I won't tell you it wasn't a rough ride, it was {insert stream of cusswords} horrible.

I learned by experience that a positive attitude won't cure you, or prevent a recurrance but it sure does make life a lot easier to live; for yourself and those around you.

Indigo, I've been where you are now and felt the same way.  I managed to find my way through those feelings, while not denying the truth in them.  I accepted the fact that I have no control over the disease, but I do have control over what I let it do to me emotionally.  I'm not going to tell you to try a positive outlook, I was ready to cram those words down the throats of people who said it to me.  I do hope you find a little ray of sunshine, some little bit of joy to make your journey easier or at least give you a small measure of relief.

All the best,

NED

Go Watson!  I'm with you...don't give up to you have NO more choices.

I have been given nothing but bad news for 2 yrs.  Everyone around me thinks I'm NED because of my attitude.  I'm having a life in the middle of cancer.

Living in hope

Fla

Share,

Good question...I would like to hear everyone answers.  I was told I could not use my port for this or that.  After my 2nd mast. I now could use it for everything at my main clinic.  I just had another surgery at a different clinic and they used my feet it was very painful and than they moved up the leg also very painful.

I love my port and will not take it out for an while.

Fla

Gosh, I hope you all know how very much I and undoubtedly others who aren't triple negative feel for you. It breaks my heart to see how this disease messes with people. And I can just imagine the anger generated when platitudes are given. I'm sorry...



I dropped by to say there is a daughter of a triple negative,Jenn, who may come and post here. Her mom just got recurrence to the lung and both are real scared.



I scrolled through, and if I may say to Sharebear. The IV thing and prior node removal. Practically speaking, you can have an IV in your arm if it means less yearly trauma than putting it in a leg vein or neck vein. The no needle thing is relative. If your life depends on knowing test results, then a single needle stick in the arm with a big vein may be much safer than elsewhere. Some studies show that needle sticks into veins do not cause LE. I've had my LE vein used once in an emergency.



All the best to each and everyone of you remarkable ladies. I wish too for just daily strength.

Tender

Hello Share bear and Everyone,

I am three years out from treatment and am having many opportunities to have blood tests, IVs, and lots of tests using contrast materials. Recently, I had surgery and had blood clots move into my lungs so I'll even have more blood test now. I have found that the people who draw your blood especially for MRIs , CT and PET scans may not be as skilled as a person who works in a hospital lab or your oncologist's office.

I now tell a new person that my veins are very difficult. I pass on some hints I've learned like using a butterfly needle or pediatric needle. I ask them to bring in their top person, the one who is the trouble shooter first, before I have two or three people poke around and scar my veins more.

I'm cheerful and try to appear helpful as I offer this information about my body. I'm learning to be more assertive... not aggressive. It has really seemed to help. I thought they wouldn't be able to use my arm any more, but they have been able to draw my blood lately.

My regular doctor has a lab tech that always is successful so I request her now. She loves the compliment.

I hope others will have ideas on this topic too. It is helpful to hear your tips.

Hope you all have a good week.

Sadie

Thanks Sadie,

I have also had the butterfly and pediatric needles used. The veins are so bad from my previous chemo. You are very correct in saying that the technicians that run the scans are not as skilled as the techs in the blood labs. Before my bilateral, I would let the scan techs poke around and believe me, sometimes it took more than 4 people. Good thing I'm not needle shy. Now, I can't afford to let them poke. My concern is the LE risk.

Sharon

Hi gals, I have been around so long, I have moss on my feet!



9 YEARS NED, TRIPLE NEGATIVE!



SO DUMB BACK THEN. I THOUGHT Tiple Negative WAS A GOOD THING!



Hugs, Shirlann

Sueps,

I have such high hopes for you.  I am four years out from diagnosis and the field has so much more information about triple negative breast cancer now. 

Ask lots of questions at your visit and if you intuition tells you something feels funny, get another opinion.  I did and it made all the difference in my treatment.

If you can, take someone with you to the appointment so they can take notes for you.  Sometimes when emotions are high, it can be hard to take in so much information.

Please keep writing on this site.  The women here have lots of information and the support is wonderful.

Warmly,

Sadie