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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2007

    Hang on Sue!

    I'm on my way with my trusty magic wand!!!

     

    You have a way with words, my dear. Are you journaling in addition to your posts here? I think when this is all over you need to write a book. I don't know when I've never read such a clear, gripping narrative on what a woman experiences after diagnosis. 

    With hugs,

    Towhee 

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  • Valsul
    Valsul Member Posts: 160
    edited October 2007

    Hi Sue,

    Just to endorse all the posts of these extra special ladies.  My bc showed all the same symptoms as yours - 4.5 cm tumour, very painful breast, ribs and arm, node involvement, invasive and aggressive.  I couldn't even go in my son's car because the suspension was sporty and I had to hold on to my boob to stop the pain.

    When you have your surgery the lab will test it thoroughly and you will have the true diagnosis and this will enable the team - oncologist and radiologist and breast surgeon - to decide your plan of action.  And it will be action - even if that means you actively accept the treatment to get you well again and to stay well.  

    When I was getting my Herceptin infusion on Tuesday this week the lady beside me was feeling very low and was hating the effects of chemo.  The nurse was so kind and said that the positives were that this awful treatment was actually going to get her through this.

    And the waiting is the worst of it all.  Everyone will agree with that.  It is a limbo period when tests are all being taken and you seem to spend more time in hospitals and clinics than anywhere else.  Cancer becomes a full time job.  My husband was my bcpa - right it's Tuesday - Warrington Hospital for bone scan - Weds?  Halton Hosp for CT scan - following Tues chemo, Clatterbridge Hosp - Thurs, wig shop!!  Rest only at weekends...

    I have pm'd you - as you can see I am also in the UK and I have given you my phone number in case you want to have a chat.  I will be gentle with you - you ask what you want, but it's your call Smile

    Much love and big hugs

    Valerie S 

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    Towhee...xx

    I love writing ......I said to my dad last night that I wish there was someway I could turn this thread into an aid to help other ladies...with my anguished posts and all the extraordinary advice...of course my jouney isnt over and I am only just beginning ...I  must be a waffler LOL

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    And Towhee ..your pics have had me in stitches of laughter ....You are one hell of a ladee ...with a grand sense of humour LOL

    much love xxxx

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited October 2007

    Well, not much to add, honey, but just hang in there!  You will make it and do fine.  You will live to be an old lady and call a nice nurse in the rest home, "mama"!  I PROMISE!!!!!

    Love you, sweetie, Shirlann

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    Thankyou Val for the number...I will definitely call you..maybe after the surgery than before....or maybe even Monday night before surgery....I am v drained tonight and dont want to make any promises ..... I would so love to chat...you are very kind xxxxx I need the support xx

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    LOLOL Shirlann...and when I say 'mama' in the nursing home your post will be in my heart; that's if i aint lost the plot at 100!  lol

    There ya go mister stupid cancer go back to ya hole ...you will be in a test tube nxt week getting boiled....And I will be laughing with my kind friends on here...so do one please

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    ...and Karen Thankyou for your love and prayers.....And Melody for your unwavering support...... xxxxxxxxxxx

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007
    I feel like this is my 2nd home Embarassed ...... I must refrain...you will get a nice rest from me nxt Tues xx
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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited October 2007

    There's that wicked sense of humor we've grown to love, Sue!!  Boiling in a test tube!  I love it!!  Darn dirty cancer!!!!!!!!!!!!!!!!!!! 

    You keep that chin up!

    Hugs,

    Karen

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  • PSK07
    PSK07 Member Posts: 781
    edited October 2007

    Sue -

    My mom has that North England "tenacity" Wink. She fought the beast 17 years ago and won.  If a thought or a prayer is in any way possible going to help you, believe me, there are enough of us here to put you right on top. Thank you for articulating your feelings no matter what they are. 

    The darkness is there and I hope it eases into light soon. You will win!

    hugs. Pam

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited October 2007

    Please take Valsul up on her offer and give her a call. She is one special lady that I have had the good fortune to communicate with over the past year. She told me she lives quite close to you, let her help.

    As always, we are here for you and will be until you get tired of us.  Wink

    Valerie

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    Well I am off to bed...thankyou for cheering my up tonight...I feel a little better...even though the battle is looming....I am still down yes but laughing in the face of adversity rocks.....I will be bailing the boil out on Tuesday straight into the lab and that will be round one to me..

    Goodnight my dear friends....you all to me are everything xxx

    Much Love xxx

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    I will definitely take Vasul up on her kind offer.....I will...maybe Monday  evening when the terror sets in,if I am up to it xxxx

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited October 2007

    Hope this brings a smile to your face!!

    Valerie

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  • geebung
    geebung Member Posts: 1,851
    edited October 2007

    Hi Sue,

    Everyone will be asleep now. I tried to check in on this thread this morning but my house was full of men demanding things so I had to wait until now! It's hard to add to what the others here have already posted. Just wanted to let you know that I continue to think of you. Don't you love the above photo!! What a gorgeous face ! The sort only a mother or a dog lover could love!

    So happy to read your post Valerie and to know that you are geographically close to Sue if she needs you.

    Love 

    gb 

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  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Must be going on 5 p.m. there, Sue. Finally it's Friday. Just to let you know I'm thinking of you much. Hoping you see the light at the end of the non-incoming train tunnel.



    I found the post by a fellow Englander explaining the system very informative. She indicates the pace picks up after this dastardly long wait for surgery.



    I hope you pain is not severe, lancating you regularly. I'm afraid the cords are reaction by the local lymph and veins to the tumor: they resolve after the surgery.



    Oh Sue, you have been such a soldier!

    Tender

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    Hi Everyone...well its 830pm, got in from a busy day at work and had a bath, just crashed out now and thought I would post again....lol

     I feel better today...well if only for the adrenalin...I am always rundown on my day off so yday was a bad un....

     I had a voicemail from Claudia today to inform me the bone scan was all clear....there go I by the grace of god.... thankyou...

     So how am I feeling..ummmmm....whacking it....fed up with it..and the journey hasnt started....I DO NOT WANT THIS TO HAPPEN.....yep thats how I feel.....I am  the worlds worst patient....you watch I will be out of the hospital before I reach the recovery room...Oh no..... see I made me heart drop a thousand foot with the thought of everything...

     Well I will let you be.....btw the lump is growing really big....and angry........why are they not abcesses....I dont even know exactly what c**c*r    is ....see I had to use asterisx for the miserable word....

    much love xxxx

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    ps what is the general time difference between most of us...I am useless.. xx

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    Also....I have never liked to eat much ice cream in my entire life...not one for cold frozen things..but for the past few weeks I have had ice cream every night..not craved it but had to have the extreme cold inside of me.....strange huh...just another random thought..

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited October 2007

    Right now in North Carolina it is Friday 3:45 pm.

    My son is stationed in Hawaii and he is 12 hours (oops 6 hours) behind me and he forgets about the time difference and calls me at 6:00 pm his time and it is midnight my time. He has woken me out of a sound sleep more than once.

    Sheila

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    Ahhhh thx Sheila...thats good so we are 5 hours ahead over here...its good to know...strange though..... bless your son...haha....he loves ya xx

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  • geebung
    geebung Member Posts: 1,851
    edited October 2007

    Hi Sue,

    It's about 7.20 am in Australia. I have a friend who lives in France and they are either 8 or 9 hours behind us - depending on daylight saving time. So I guess England would be not too different. We lived in Southampton for nearly 6 months when my boys were young. The middle one started school there. I loved England - especially the countryside. It was like walking into an Enid Blyton book from my childhood!

    I do admire you Sue. You are such a fighter - that is why you say you are not a good patient! You have weathered this last month remarkably well  - worked full time, continued to care for and support your boys and created the most anguished, real descriptions of how you are feeling. I too think you should write a book when you get through this. Can I put my order in for a copy now?!

    hugs,

    gb 

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    Dear gb

    I absolutely love Southampton, I lived in Brighton for 2 years ..not long ago...and I would move back tomorrow if I had the chance...once I get my boys throught their last school who knows....but I guess what I have now may have blighted that dream...

     Well I fell asleep downstairs with the laptop again and have woke up in my usual angry retaliative state to this rubbish I have...I never used to do that...so I am off to bed before I nod off again and wake up worked up and cross...

     Last day at work tomorrow....because c*nc*r dictates......and ruins lives.... evil  sucking leech..

    Gnite everyone and have a lovely day gb xxxxxxx

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  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    I would love to buy a book on a personal fight against this.......

    written in a have it and got it manner....maybe I could put my heart into that..

    catch you all soon xxx

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  • honeygirl
    honeygirl Member Posts: 1,718
    edited October 2007

    Hi Sue! Excellent news about the bone scan!Laughing Thanks be to God. One day at a time Sue. It is 6:30pm here. So it must be around 11:30pm there. I hope you are in restful sleep. I'm thinkin about you and keeping you in my prayers. Oh yes , I would like to put my order in for your book too! I think you would be an awesome writer.

    Ok Sue , lets kick some cancer butt! We can and will do it. Hugs to you Sue and your boys. Melody

    PS-Valerie , you brought a smile to my face. That picture is priceless!

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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited October 2007

    I hope you are resting soundly Sue.  I'm sure the bone scan results have taken a huge weight off your shoulders.  I was thrilled to hear the good news!

    I'd love a copy of your book too.  Let us all know when you get your first book deal Smile.

    Take care and have a great day tomorrow.

    Hugs,

    Karen

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited October 2007

    Sue - hope you are sleeping peacefully - see, you made it throught the week. Your almost there!! I bet you never realized you were so strong!! You go girl!

    Keep posting, your words will definitely make a great book one day.

    How about posting a pic of those boys of yours.  Would love to see them.

    Sweets dreams,

    Valerie

    Glad everyone liked the picture, I'll keep them coming.

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  • geebung
    geebung Member Posts: 1,851
    edited October 2007

    Dear Sue,

    I forgot to comment on the bonescan. Thats awsome! Hope you had a good sleep. You are probably at work now - must be around mid-morning there. I hope it's a busy day so you are distracted from anxious thoughts. Then, you can go home and take some soothing diazapam which will get you through the next 40 or so hours. You will be in my thoughts and prayers.

    love & hugs

    gb 

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  • fd411
    fd411 Member Posts: 398
    edited October 2007

    Hi Sue,

    I rarely post here in the just diagnosed, but I got to reading this thread. 

    I had chemo before surgery, but I thought the month wait between chemo and surgery was waaay too long. I hear it's normal to have that type of waiting period for surgery.

    I had a lumpectomy with a bunch of nodes taken out. I healed up OK; my breast surgeon is really good. You just have to know your limits and take it easy if you need to.

    I worked on the Caronia, QE2 and QM2 for 5 years til I was diagnosed. We were in Southampton alot! I like it there too. Unfortunately, I'll have to sit out the QV.

    Wishing you the best on the 9th and sending hugs across the pond,

    Ferne 

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